"Patient involvement in medicines R&D: Bringing to life with EUPATI", presented by Jan Geissler, EUPATI Director, at the EUPATI 2013 Conference on 19 April 2013

1. Jan Geissler, EUPATI Director
Patient involvement in
medicines R&D:
Bringing to life with EUPATI
The project is receiving support from the Innovative Medicines Initiative Joint Undertaking under grant agreement n° 115334, resources of which are composed
of financial contribution from the European Union's Seventh Framework Programme (FP7/2007-2013) and EFPIA companies.

2. Public
Research Ethics
Committees
Competent
authorities
Policy makers
HTA agencies
& committees
Research subject
Info provider
Advisor
Reviewer
Co-researcher
Driving force
Clinical
Research
For patient-centric medicines R&D, we
need more trained patient advocates

3. EUPATI: A paradigm shift in empowering
patients on medicines R&D
 Launched Feb 2012, runs for 5 years,
30 consortium members,
PPP of EU Commission and EFPIA
 will develop and disseminate
objective, credible, correct knowledge
about medicines R&D “end to end”
 will build competencies
& expert capacity among patients
& public
 will facilitate patient involvement in R&D
to support industry, academia, authorities
and ethics committees

4. EUPATI Internet Library
EUPATI Educational Toolbox
EUPATI Training Programme
To bring this to life, EUPATI develops
education targeted at different levels
100
“expert”
patient
advocates
12.000
patient
advocates
100.000
individuals

5.  Leading pan-EU patient umbrella
groups. EPF coordinates.
 Strong impetus from key academic
partners and research organisations
 Industry expertise in medicines R&D,
IT, capacity building
 Advisory bodies & codes committed to
ensure independence and good
governance
• EMA, Swissmedic, MHRA, BfArM
• Bioethics, genetics, HTA, economics, evidence
based med.,
patient advocacy
• Ethics Panel
Working in partnership
with strong governance

6. Coordination
& Communication
EUPATI Network
& Meetings
Needs, focus groups,
literature review
Content Development
& Translations
e-Learning
& content platform
Course deployment,
National Platforms
Sustainability & Guidance
Bringing to life: Our work packages

7. EUPATI National Platforms:
Partnership on the country level
EUPATI National Platforms will...
 make sure EUPATI understands educational
needs in R&D on national level
when developing content
 disseminate EUPATI’s existing training material and
information on the national level
 To raise public interest about EUPATI in 12 countries
 To identify training faculty, logistics and financial
support on the national level
AT
BE
CH
DE
ES
FR
IT
IE
LUX
MT
PL
UK

8. 8
There are still too many empty seats
in medicines R&D.
Join us to bring our vision to life.

9. Working in partnership
to empower patients
on medicines R&D.
Web:
www.patientsacademy.eu
Twitter: @eupatients
as well as: