Laurie Chan, University of Ottawa, spoke during the Transparency, Risk Communication & Stakeholder Engagement at the CEC Chemicals Management Forum in San Antonio, Texas, on May 16, 2012. More at: http://www.cec.org/chemicals2012
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Laurie Chan: Successful Partnership between Health Researchers and First Nations Communities
1. Successful Partnership between
Health Researchers and First
Nations Communities
Laurie Hing Man Chan, Ph.D.
Professor and Canada Research Chair
in Toxicology and Environmental Health
University of Ottawa
4. First Nations Food, Nutrition and
Environment Study
Funding for this study is provided by Health Canada.
The information and opinions expressed in this presentation are those of the authors/researchers and
do not necessarily reflect the official views of Health Canada.
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6. This study is led by
Dr. Laurie Chan, Toxicologist and Professor,
University of Northern BC
Dr. Olivier Receveur, Nutritionist and Professor,
Université de Montréal
Dr. Donald Sharp, Assembly of First Nations
With contributions from: Dr. Constantine
Tikhonov, Dr. Harold Schwartz, and
Dr. Caroline Mimeault.
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7. Objectives
In partnership with First Nation communities,
the study will aim to:
Document traditional and market food
consumption
Document food security and some water quality
issues in communities
Estimate exposure to contaminants and intake of
nutrients of concern across communities
Document self-reported health status and
lifestyle habits across communities
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8. First Nations First Nations Food,
Nutrition and Environment Study
100 communities from 2008-2018
~8 - 12 communities per year and
returning back in the last 2 years
Systematic Random Sampling by
region and ecozone
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9. Partnership and Community
Participation
The project involves the participating
communities at all stages of the project
CIHR guidelines are followed which respect
the OCAP principles
Data is kept confidential
Both community and individual consent
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10. Approach
Methodology workshop
Community visits and negotiation of Research
Agreement
Hiring of research assistants in communities
Collecting seasonal food samples
Training of research assistants
Interviews, hair and drinking water collection
Data and sample analysis
Result reporting and communications
Return data and training 22
11.
12. Research Agreement (1)
Scope of the study
Methods and Procedures
Responsibilities of Lead Researchers
Responsibilities of the First Nation
Non-commercial Purpose
First Nation Involvement and
Training
Informed Consent
13. Research Agreement (2)
Confidentiality
Expected outcomes, Benefits and
Risks
Data Management and Ownership
Health Canada’s Role in the
Research
Dissemination of Results
Term and Termination
14. Data Management (1)
The Data collected is confidential and no name is
attached to a record.
Copies will be kept at the offices of the PIs in
electronic form.
Each First Nation will have a copy of its own Data.
AFN will be the Data custodian.
The PIs will be available assist First Nation
members should First Nation members decide to
use the Data for different purpose beyond the
objectives of this particular project.
15. Data Management (2)
All Data shall vest in and remain the property of
the First Nation, or individual member thereof who
provided it.
The Lead Researcher will be able to use the Data
for purposes set out in this Agreement.
The First Nation understands that the Lead
Researcher’s participation in the Study is conducted
under a broader scope of scientific research and
the Lead Researcher intends to present the
research findings by a variety of means including
conference presentations, teaching, publishing in
academic journals, and reports to the funding
agency, Health Canada.
16. Dissemination of Results (1)
Any future publication or dissemination of research
results, beyond what is described in this agreement
shall not be undertaken without an agreement
between the Lead Researcher and
consultation/accommodation with the First Nation
community.
The First Nation Community will be the first to
receive community research results and the first
invited to provide input and feedback on the
results.
Community results should be presented in a format
and language appropriate and accessible to the
First Nation community.
17. Dissemination of Results (2)
Results will not be released without prior
presentation and consultation with the First Nation
Community.
The Lead Researcher agrees to participate in
community meetings to discuss the results and
their implications.
The Lead Researcher shall release the findings of
the study to the public at large in a joint research
report, scientific journal or other publication.
Participating First Nations will be acknowledged.
18. Dissemination of Results (3)
Any future publication or dissemination of research
results, beyond what is described in this agreement
shall not be undertaken without an agreement
between the Lead Researcher and
consultation/accommodation with the First Nation
community.