50 Disease Specific Websites For Seniors, Caregivers And Aging Parents

50 Disease Specific Websites for Seniors,
Caregivers and Aging parents

Whether you are a caregiver by trade or you are providing care for a
family member in need, caregiving is a challenging job. One of the best
support strategies for caregivers is to make sure they are aware of and
understand the resources that are available to them.

Here are some disease specific and health related agencies and
websites to receive information, support and assistance - whether you
are a family caregiver, a professional caregiver, or looking for additional
information on issues related to family caregiving.
For the caregiver - these resources might help to cope with your role as
the caregiver.

1 Disease Specific Websites for Seniors, Caregivers and Aging parents 2

The Alzheimer's Association is the American Autoimmune Related
leading, global voluntary health Diseases Association, is dedicated to
organization in Alzheimer care and eradicating autoimmune diseases
support. through patient education,
autoimmune disease research, public
awareness, and advocacy and patient
services.


The American Cancer Society is a The American Diabetes Association
nationwide, community-based is leading the fight against the
voluntary health organization deadly consequences of diabetes
dedicated to eliminating cancer as and fighting for those affected by
a major health problem. diabetes.


American Foundation for AIDS American Heart Association - Learn
Research - Founded in 1985, amfAR more about the American Heart
is dedicated to ending the global Association's efforts to reduce
AIDS epidemic through innovative death caused by cardiovascular
research. disease.


American Kidney Fund - is a American Liver Foundation -
volunteer health organization provides information on liver
dedicated to providing kidney diseases, as well as advocacy for
services and programs for people education, treatment and research
with or at risk of kidney disease. funding.


The American Lung Association is American Pain Foundation - is an
the leading organization working to independent nonprofit 501(c)3
save lives by improving lung health organization serving people with
and preventing lung disease through pain through information,
Education, Advocacy and Research. advocacy, and support.


The American Parkinson Disease American Stroke Association - offers
Association – APDA focuses its support and information for stroke
energies on research, patient patients, caregivers and their
services, education and raising families.
public awareness of the Parkinson's
disease.


American Tinnitus Association is a The ALS Association is a leading
non-profit organization working to source of information for those
improve the resources, information, battling ALS and for people looking
and assistance available to sufferers for the latest news and
of tinnitus. information about the disease.


Asthma & Allergy Foundation of Cancer and Careers offers support
America provides free information for women with breast and other
and resources from the leading cancers: career coaches, diaries,
national nonprofit organization for cancer wigs, legal advice, free
people with allergies and asthma. publications, support for employers,
coworkers and caregivers.


Cancer Financial Assistance Cancer Research and Prevention
Coalition - (CFAC) is a coalition of Foundation - Provides Cancer
organizations helping cancer prevention and early detection
patients limit their financial through research, education and
challenges. community outreach to all
populations, including children and
the underserved.


CHADD (Children and Adults with Crohn's & Colitis Foundation of
Attention-Deficit/Hyperactivity America - is a non-profit, volunteer-
Disorder) is the nation's leading driven organization dedicated to
non-profit organization serving finding the cure for Crohn's disease
individuals with AD/HD and their and ulcerative colitis.
families.


Cystic Fibrosis Foundation - is the Easter Seals provides exceptional
leading organization in the United services, education, outreach, and
States devoted to cystic fibrosis. advocacy so that people living with
autism and other disabilities can
live, learn, work and play in our
communities


The Epilepsy Foundation of The Foundation Fighting Blindness -
America® is the national voluntary is a publicly-supported charity
agency dedicated solely to the raising money to fund research for
welfare of the almost 3 million macular degeneration, retinitis
people with epilepsy in the U.S. and pigmentosa (RP), related diseases,
their families and providing information,
resources and referrals.


Kidney Cancer Association (KCA) is a The Huntington’s Disease Society
charitable organization made up of of America, Inc. (HDSA) is a
patients, family members, National, voluntary health
physicians, researchers, and other organization dedicated to
health professionals globally. improving the lives of people with
Huntington's Disease and their
families.


The Leukemia & Lymphoma Lupus Foundation of America - (LFA)
Society - (LLS) is the world's is the foremost national nonprofit
largest voluntary health voluntary health organization
organization dedicated to funding dedicated to finding the causes of and
blood cancer research, education cure for lupus and providing support,
and patient services. services and hope to all people
affected by lupus.


Mesothelioma Web - The Most March of Dimes Birth Defects
Comprehensive Mesothelioma Foundation - is a nonprofit charit
Website providing mesothelioma provideing information and answers
symptoms, diagnosis, Malignant about pregnancy, your baby, folic
mesothelioma treatment and acid, prematurity, genetic disorders,
traditional and new treatment birth defects and much more.
options


Muhammad Ali Parkinson Center and Myasthenia Gravis Foundation
Movement Disorders Clinic is a of America - (MGFA) is the only
National Parkinson Foundation Center national volunteer health
of Excellence, and a wonderful agency dedicated solely to the
resource for people with Parkinson's fight against myasthenia gravis.
and their families.


Myositis Association - (TMA) is a National Down Syndrome Society - is
non-profit, voluntary health the main source of information for
agency dedicated to improving the people with Down syndrome.
lives of people affected by myositis.


The National Hemophilia National Mental Health Association -
Foundation is dedicated to Mental Health America is the
finding better treatments and country's oldest and largest nonprofit
cures for bleeding and clotting organization addressing all aspects of
disorders and to preventing the mental health and mental illness.
complications of these disorders
through education, advocacy
and research.


National Multiple Sclerosis Society National Organization for Rare
- is a collective of passionate Disorders - is a unique federation of
individuals who want to move voluntary health organizations
together toward a world free of dedicated to helping people with
multiple sclerosis. rare "orphan" diseases and assisting
the organizations that serve them.


National Osteoporosis Foundation- National Psoriasis Foundation
(NOF) is the leading consumer and - is the largest psoriasis patient
community-focused health organization advocacy organization in the
dedicated to the prevention of world.
osteoporosis and broken bones.


National Sleep Foundation - is a 501(c)3 Osteogenesis Imperfecta
charitable, educational, and scientific Foundation - is a voluntary
not-for-profit organization dedicated to national health organization
improving sleep health and safety dedicated to improving the
through education, public awareness, quality of life for individuals
and advocacy. affected by OI.


The Paget Foundation - provides Partners Against Pain - is a resource
information for patients and that serves patients, caregivers, and
medical professionals for Paget's healthcare professionals to help
disease of bone, fibrous dysplasia, alleviate unnecessary suffering by
osteopetrosis, and skeletal leading efforts to advance standards
complications of breast and prostate of pain care through education and
cancer. advocacy.


Sjogren's Syndrome Foundation is a The Spina Bifida Association (SBA)
national non-profit, multi-faceted is the only national voluntary
organization focused on increasing health agency solely dedicated to
research, education and awareness enhancing the lives of those with
for Sjögren's syndrome. Spina Bifida and those whose lives
are touched by this challenging
birth defect.


Tourette Syndrome Association is Tuberous Sclerosis Alliance - is
the only national voluntary dedicated to finding a cure for
non-profit membership organization tuberous sclerosis complex while
dedicated to enhancing the lives of improving the lives of those
those with Tourette Syndrome. affected.


United Ostomy Association - The United Cerebral Palsy - (UCP) is a
UOAA is a national organization to leading service provider and
provide support, information and advocate for adults and children
advocacy to ostomates and their with disabilities, including cerebral
caregivers. palsy.

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50 Disease Specific Websites For Seniors, Caregivers And Aging Parents

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