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Preventing Diabetes in
Aboriginal Communities:
To Screen or Not To Screen
  Adrian Jacobs – Community Liaison
MDSi Field Team, BRAID Research Group
          University of Alberta
Preventing Diabetes in
Aboriginal Communities:
   To Screen or Not To Screen
To Screen or Not To Screen
Yes, as long as it is an act of empowerment
 that resources the Aboriginal community to
       make Health Agenda decisions.




James Lamouche   Dr. Daniele Behn Smith   Dr. Dawn Martin-Hill
The Screening Debate
   2003 CDA guidelines recommend community-
    based screening
   2008 CDA guideline do not recommended
    community-based screening
   ADA discourages community-based screening
Why not?
   Potential poor patient follow-up
   Uncertain health impact
   Fear of
     Labeling
     Stigmatization

     Feelings of loss of control

   Cultural barriers
Reasons to screen

   Cost effectiveness of prevention
   Current and projected costs of extant diabetes
   Socio-cultural benefit
     Empowerment
     Capacity building

     Collaboration

     Cultural renewal
My Own Diagnosis
“Your mother has it. You have it.
  You are Aboriginal. You are
   genetically pre-disposed.”
“The White Man did this to you.”
Lifestyle change.
   Active lifestyle
       Hunting
       Fishing
       Nomadic life
       Horticulture
       Natural harvesting
Change of Diet
FROM                      TO
 Lean wild meats          White fat

 Fish                     White flour

 Fruits and vegetables    White sugar

                           White salt

                           Caffeine
Disempowerment
   Colonialism
   Treaty breaking
   Indian Act
   Residential Schools
   Racism
   Poverty
“We did this to you.”
Colonialism
   Another people’s agenda
   Another people’s values
   Another people’s norm
     Creation of a norm makes all others deviant
     This leads to marginalization

     The end result is stigmatization – the ultimate
      disempowerment
“I take responsibility for this.”
Blame-deflecting
   I was not there.
   We did not make these decisions.
   That happened so long ago, you just need to get
    over it.
Healthy immigrant effect
   Immigrants to Canada are healthier than
    Canadians when they arrive
   After being here a number of years they are less
    healthy than Canadians
     European immigrants decline less
     People of colour of non-European origin decline the
      most
Who is making them sick?
   Western culture?
     European immigrants suffer less
     Non-European immigrants suffer more

   As an Aboriginal I can say, “Perhaps it is making
    you sick like it made us sick.”
What is making them sick?
   Western medicine’s “norm making?”
     What happens if you use a northern European as
      “the norm?”
     What about a southern European?

     What about an English Canadian or French
      Canadian?




   As an Aboriginal I can say, “It doesn’t matter,
    they are all Western, we will never correspond.”
Aboriginal Diabetes Pre-Disposition
   I lamented
     My grandmother’s diabetes
     My mother’s diabetes

     My diabetes

     My Aboriginal heritage

   I hoped my children would not be cursed by my
    Aboriginal genetics
“No (not bad genetics)! Good
    genetics – bad diet and lifestyle!”
   This turned everything completely around in me
     My heritage is not the problem
     My genetics is not the problem

     I have a great heritage

     I have great genetics
Decolonized Thinking
   I am Ongwehohweh and I am not a deviation!
   Our Aboriginal heritage is our asset.
   We are how the Creator made US.
   We don’t have to change to become “normal.”
   We are the “norm” for US.
   Give us the tools and we will find our way
    through to health for US.
Decolonization
   Prime Minister Harper apologized for the
    “policy of assimilation” as expressed in the
    Residential School system
   What does “not assimilating” Aboriginal people
    look like?
RCAP (Royal Commission
                 on Aboriginal Peoples)

   A return to the treaty relationship
     Nation to Nation
     Respect

   Dealing honestly with the past
     Treaty violations
     Residential Schools

   Reconciliation
Ruppert Ross
“while western psychology’s discussions about things
like Complex PTSD might help non-aboriginal people
understand the impact of residential schools, they
remain western discussions, coming out of a western
world-view. A different world-view, however, would
result in a different vision of what a healthy person is,
a different description of ill-health, and different
prescriptions for returning to good-health.” Heartsong:
Exploring Emotional Suppression and Disconnection in
Aboriginal Canada, Nov. 2009
Empowerment
   The locus of control for Aboriginal Health
    needs to be in the Aboriginal community not
    outside.
     Health Policy
     Health Budget

     Health Programming

     Health Accountability
Colonialism in Health
Aboriginal Control
To Screen or Not To Screen
   MDSi produces a data resource for Aboriginal control
   Community Based Research and Education
   NAHO’s OCAP (Ownership Control Access
    Possession)
   Decolonizing Aboriginal Health requires it.
       “YES, as long as it is an act of
        empowerment, resourcing the
       Aboriginal community to make
         health agenda decisions.”
Adrian Jacobs – ajacobs@ualberta.ca
                           www.braiddm.ca
“Restoring Aboriginal culture through community-based type 2 diabetes screening”
                          by Richard Oster, Ellen Toth
               International Journal of Circumpolar Health 2010
                  http://www.braiddm.ca/69_3_oster.pdf
Nia:wen Gowa

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Preventing Diabetes in Aboriginal Communities: To Screen or Not To Screen

  • 1. Preventing Diabetes in Aboriginal Communities: To Screen or Not To Screen Adrian Jacobs – Community Liaison MDSi Field Team, BRAID Research Group University of Alberta
  • 2. Preventing Diabetes in Aboriginal Communities: To Screen or Not To Screen
  • 3. To Screen or Not To Screen Yes, as long as it is an act of empowerment that resources the Aboriginal community to make Health Agenda decisions. James Lamouche Dr. Daniele Behn Smith Dr. Dawn Martin-Hill
  • 4. The Screening Debate  2003 CDA guidelines recommend community- based screening  2008 CDA guideline do not recommended community-based screening  ADA discourages community-based screening
  • 5. Why not?  Potential poor patient follow-up  Uncertain health impact  Fear of  Labeling  Stigmatization  Feelings of loss of control  Cultural barriers
  • 6. Reasons to screen  Cost effectiveness of prevention  Current and projected costs of extant diabetes  Socio-cultural benefit  Empowerment  Capacity building  Collaboration  Cultural renewal
  • 8. “Your mother has it. You have it. You are Aboriginal. You are genetically pre-disposed.”
  • 9. “The White Man did this to you.”
  • 10. Lifestyle change.  Active lifestyle  Hunting  Fishing  Nomadic life  Horticulture  Natural harvesting
  • 11. Change of Diet FROM TO  Lean wild meats  White fat  Fish  White flour  Fruits and vegetables  White sugar  White salt  Caffeine
  • 12. Disempowerment  Colonialism  Treaty breaking  Indian Act  Residential Schools  Racism  Poverty
  • 13. “We did this to you.”
  • 14. Colonialism  Another people’s agenda  Another people’s values  Another people’s norm  Creation of a norm makes all others deviant  This leads to marginalization  The end result is stigmatization – the ultimate disempowerment
  • 15. “I take responsibility for this.”
  • 16. Blame-deflecting  I was not there.  We did not make these decisions.  That happened so long ago, you just need to get over it.
  • 17. Healthy immigrant effect  Immigrants to Canada are healthier than Canadians when they arrive  After being here a number of years they are less healthy than Canadians  European immigrants decline less  People of colour of non-European origin decline the most
  • 18. Who is making them sick?  Western culture?  European immigrants suffer less  Non-European immigrants suffer more  As an Aboriginal I can say, “Perhaps it is making you sick like it made us sick.”
  • 19. What is making them sick?  Western medicine’s “norm making?”  What happens if you use a northern European as “the norm?”  What about a southern European?  What about an English Canadian or French Canadian?  As an Aboriginal I can say, “It doesn’t matter, they are all Western, we will never correspond.”
  • 20. Aboriginal Diabetes Pre-Disposition  I lamented  My grandmother’s diabetes  My mother’s diabetes  My diabetes  My Aboriginal heritage  I hoped my children would not be cursed by my Aboriginal genetics
  • 21. “No (not bad genetics)! Good genetics – bad diet and lifestyle!”  This turned everything completely around in me  My heritage is not the problem  My genetics is not the problem  I have a great heritage  I have great genetics
  • 22. Decolonized Thinking  I am Ongwehohweh and I am not a deviation!  Our Aboriginal heritage is our asset.  We are how the Creator made US.  We don’t have to change to become “normal.”  We are the “norm” for US.  Give us the tools and we will find our way through to health for US.
  • 23. Decolonization  Prime Minister Harper apologized for the “policy of assimilation” as expressed in the Residential School system  What does “not assimilating” Aboriginal people look like?
  • 24. RCAP (Royal Commission on Aboriginal Peoples)  A return to the treaty relationship  Nation to Nation  Respect  Dealing honestly with the past  Treaty violations  Residential Schools  Reconciliation
  • 25. Ruppert Ross “while western psychology’s discussions about things like Complex PTSD might help non-aboriginal people understand the impact of residential schools, they remain western discussions, coming out of a western world-view. A different world-view, however, would result in a different vision of what a healthy person is, a different description of ill-health, and different prescriptions for returning to good-health.” Heartsong: Exploring Emotional Suppression and Disconnection in Aboriginal Canada, Nov. 2009
  • 26. Empowerment  The locus of control for Aboriginal Health needs to be in the Aboriginal community not outside.  Health Policy  Health Budget  Health Programming  Health Accountability
  • 29. To Screen or Not To Screen  MDSi produces a data resource for Aboriginal control  Community Based Research and Education  NAHO’s OCAP (Ownership Control Access Possession)  Decolonizing Aboriginal Health requires it. “YES, as long as it is an act of empowerment, resourcing the Aboriginal community to make health agenda decisions.”
  • 30. Adrian Jacobs – ajacobs@ualberta.ca www.braiddm.ca “Restoring Aboriginal culture through community-based type 2 diabetes screening” by Richard Oster, Ellen Toth International Journal of Circumpolar Health 2010 http://www.braiddm.ca/69_3_oster.pdf