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Strengthening NCD and RF surveillance in
the Americas
Branka Legetic.
PAHO-WHO Regional adviser,
Workshop on STEPS Stoke ,Curacao, Nov 2010
Strategic Plan 2008-2012
Surveillance & policy of NCDs & RF
• SO 3: To prevent and reduce disease,
disability and premature death of chronic
non communicable diseases, violence and
injuries
• SO6: To promote health and development and
prevent and reduce RF such as use of tobacco,
alcohol, drugs and other psychoactive substances,
unhealthy diets, physical inactivity and unsafe sex
• SO 6; SO9;SO11;SO15
PAHO Regional Strategy and Plan
of Action on an Integrated
Approach to the Prevention and
Control of Chronic Diseases
WHO 2008-2013 Action Plan for
the Global Strategy for the
Prevention and Control of Non
communicable Diseases
http://www.paho.org/cncd_surveillance
Development and strengthening of
Country capacity for surveillance of
chronic diseases, their consequences,
RF, and impact of PH interventions
Monitoring NCDs and their
determinants and evaluate progress
at the national, regional and global
levels
Surveillance line of
Action
To encourage and
support the
development and
strengthening of
countries’ capacity for
better surveillance of
chronic diseases, their
consequences, their
risk factors, and the
impact of public health
interventions.
Development & strengthening
of chronic disease and risk
factor surveillance systems
Focus on the following in the countries, sub
regions and the Region:
• Capacity assessment, use for monitoring & evaluation
• Ongoing collection of reliable, comparable, and quality
data;
• timely and advanced analysis;
• dissemination and use of analysis results for national
policy and program planning & evaluation,
• technical competency of the surveillance
workforce
• novel thinking and innovation
Available documents and tools
http://www.paho.org/cncd_surveillance
TOOL: Country Profile of Capacity and
Response to NCDs
http://www.paho.org/cncd_surveillance/countrycapacityandresponse
TOOL: Minimum dataset for
NCDs
http://paho.org/cncd_surveillance/minimumdataset
Purpose:
• to combine multiple data
sources in one functional annual
reporting system as a foundation
for CNCD surveillance.
• to remedy the fragmentation of
traditional country surveillance
systems
• to facilitate further analysis on
a national, sub Regional, and
Regional level and
the generation of more complex
indicators for NCDs.
In 2010
Assessment of capacity:
• Country capacity to respond to NCDs : instrument in Excel
available on www.paho,org/cncd_surveillance
• PROGRES REPORT for Directing Council
Ongoing collection of reliable, comparable
and timely data
• Implementation of Minimum data set in implementation in
20 countries
• Support RF studies
• Pan Am STEPS & introducing new methods
TOOLS: Methodology for Risk Factor
Surveillance
Disease, risk and protective factors in adults:
Pan Am STEPS-
New fact sheet on Determinants & RF
E STEPS
Additional modules
MULTIMOD: Methodology for use of land and cell
phones
Pan American STEPS
-UPDATE
January 2008 Presently in the Field:
Paraguay
Published and
promoted for policy
purposes: Aruba,
Bahamas, St Kitts
Attended II Level training &
completed data processing :
Aruba, Bahamas, Uruguay, St
Kits, Barbados, BVI, Dominica
Trained level 1 and in
preparatory phase:
Dominican Republic,
Cuba, T&T, Curacao,
Turks & Cayucos
Planning I Level training in
2008: St Lucia, St Vincent,
Panama, C Rica, Grenada
Chile, Argentina, Brazil, Mexico, Colombia, Jamaica are in process of mapping and harmonization of
data with Pan Am STEPS
Advances in 2010
Dissemination and use of analysis results for national policy
and program planning & evaluation
• Workshops for STEPS advanced analysis CAREC Feb 2010
• Policy and program implementation based on data analysis
• Caribbean Portal as part of PAHO health observatory CAREC 2010
Technical competency of the surveillance workforce
• FETP including NCDs, in collaboration with Brazil, Colombia &
CDC
• Training for cancer registry: in collaboration with IARC,
• Guayaquil 2010; Port of Spain 2010,
2010 cont
Novel thinking and innovation
• Training & pilot of Multi Mod surveillance
Miami Sept 2010
• Mini STEPS as part of census, labor or other
studies for annual updates on behavioral RF,
Caribbean
• Use of Sentinel sites for PHC and hospital
performance monitoring C Rica pilot
Cancer incidence/ cancer registers –
geographic coverage in LAC based on CI5 IX
Improving information on incidence,
prevalence and survival of CVD
WHOs STEPwise Aapproach to Stroke Surveillance, STEPS Stroke
(based on WHO MONICA Project)
TOOLS: STEPS
Stroke methodology
http://www.paho.org/cncd_surveillance/stepsstroke
Stroke as one of the 3 main causes of death in the
Americas
1st % 2nd % 3rd %
Anguilla 14.7 Argentina 8.2 Antigua and Barbuda 8.3
Brazil 10.7 Belize 6.7 Canada 7
French Guyana 8.7 Barbados 8.8 Colombia 7.4
Guadeloupe 11.9 Bermuda 7.4 Haiti 8.6
Guyana 10.9 Cayman Islands 6.4 Montserrat 8.8
Martinique 12.2 Chile 9.6 Nicaragua 7.7
Panama 11.2 Costa Rica 6.3 Puerto Rico 5.8
Paraguay 10.6 Cuba 10.4 Trinidad and Tobago 10.7
Suriname 12.9 Dominican Republic 10
St. Kitts and Nevis 10.1 Ecuador 6.2
Uruguay 12.4 Peru 4.8
St. Lucia 12.1
United States 6.9
Venezuela 7.2
Virgin Islands (US) 7.6
STEPS Stroke in LAC – State and Perspectives
Countries that have implemented STEPS stroke, 1,2, 3 step : Chile, Mexico,
Brazil (Sao Paulo + 5 regions), Barbados,
Countries interested in implementing STEPS Stroke: Colombia, Uruguay,
Argentina, Honduras, Curacao
STEPS Stroke Instrument available on PAHO WEB: in English, Spanish and soon in Portuguese
STEPS Stroke supported by: World Stroke organization, World Federation of Neurology, PAHO-WHO
EMMA: Estudo de Mortalidade
e Morbilidade do Acidente
Vascular Cerebral
STROQUE: Stroke
Register of Queretaro.
Municipio Queretaro
TAURUSs: Talca Urban
& Rural Stroke Study
Barbados, MI &
Stroke register
STEPS STROKE initiatives in Latin
America and Caribbean
Acronym Name City,
Country
Population STEPS P.I Funding
Agency
EMMA Estudo de
Mortalidade e
Morbidade do
Acidente
Vascular
Cerebral
Sao Paulo,
Brazil
10 Million 1-2-3 Dr. P.A
Lotufo
CNP
STROQUE Stroke Register
of Queretaro,
Municipio
Queretaro
Municipio
Queretaro,
Mexico
725,000 1-2-3 Dr. F.
Barrinagarre
menteria
CONCYTEQ
CONACYT
TAURUSs Talca Urban &
Rural Stroke
Study
Provincia
Talca, Chile
390,000 1-2-3 Dr. P.M
Lavados
CONICYT
National
population
Register of
Barbados
Barbados 300,000 1-2-3 Dr. Anselm
Hennins
MOH
Barbados
STEPS Stroke...what it offers
• Study Protocol and
Instrument
• Data Entry Tool
• International Comparisons
Advances in 2010
• Cancer Registry: Brasilia Declaration on improving
information on cancer signed by 19 countries
• Training for cancer registry: in collaboration with
IARC: Guayaquil 2010; Port of Spain 2010
• Stroke registry: Manual STEP STROKE in en, Sp &
Portuguese on the WEB
• Temporary advisers to support countries
• Training for Step Stroke: Curacao 2010
SUBREGIONAL Support
• MERCOSUR:
Common Market
of the South
- VENT working group
• 2008, 2009,2010
• Andean
- VENT working group
• 2009, 2010
Chile
English Speaking Caribbean
• Declaration of Port of Spain
(2007)
• To be established, as a matter of
urgency, the programs necessary
for research and surveillance of
the risk factors for NCDs with
the support of our Universities
and the Caribbean Epidemiology
Centre/Pan American Health
Organization (CAREC/PAHO);”
• EPI meetings :
• 2006,
• 2007,
• 2008,
• 2010
PHIP Architecture
Use of results for national policy
Policy Observatory
Project
Policy
Developm
ent
Policy
Developm
ent
Policy
M
onitoring
Policy
M
onitoring
Capacity B
uilding
Capacity B
uilding
Policy Research
Policy Research
Advocacy
Advocacy
NCD POLICY
NCD POLICY
OBSERVATORY
OBSERVATORY
Policy Dialogue
Policy Dialogue
Operationally the Observatory will support and
promote a number of functions, at regional, sub-
regional and country levels:
Advances in use of results for
national policy
Case study methodology:
• Brazil
• C Rica
• Canada
National NCD policies
• Chile
• Uruguay
• Aruba,
• Dominica
• Bahamas,
• St Kits & Nevis
Policy dialogues
Support Sub regional or Regional policy
planning process
Caribbean –Summit &
follow up
Advances in 2010
• Policy Observatory project meeting
Port of Spain, November 17,18 2010
Purpose: Discus and prepare governments for UN
Special Session on NCD September 2011
Conclusions
 NCD and RF surveillance are of importance for political
and technical agenda
 Secures commitment for strengthening capacity at national
and sub regional level
 Jointly developed & implemented standardized
instruments:
1. Shorten the process of obtaining reliable timely information
2. Secure inter-country comparability and comparability over
time
3. Secures sustainability of collection and analysis
4. Strengthen partnerships
Please visit:
www.paho.org/cncd_surveillance
Thank You

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Curacao 2010 Legetic.ppt

  • 1. Strengthening NCD and RF surveillance in the Americas Branka Legetic. PAHO-WHO Regional adviser, Workshop on STEPS Stoke ,Curacao, Nov 2010
  • 2. Strategic Plan 2008-2012 Surveillance & policy of NCDs & RF • SO 3: To prevent and reduce disease, disability and premature death of chronic non communicable diseases, violence and injuries • SO6: To promote health and development and prevent and reduce RF such as use of tobacco, alcohol, drugs and other psychoactive substances, unhealthy diets, physical inactivity and unsafe sex • SO 6; SO9;SO11;SO15
  • 3. PAHO Regional Strategy and Plan of Action on an Integrated Approach to the Prevention and Control of Chronic Diseases WHO 2008-2013 Action Plan for the Global Strategy for the Prevention and Control of Non communicable Diseases http://www.paho.org/cncd_surveillance Development and strengthening of Country capacity for surveillance of chronic diseases, their consequences, RF, and impact of PH interventions Monitoring NCDs and their determinants and evaluate progress at the national, regional and global levels
  • 4. Surveillance line of Action To encourage and support the development and strengthening of countries’ capacity for better surveillance of chronic diseases, their consequences, their risk factors, and the impact of public health interventions. Development & strengthening of chronic disease and risk factor surveillance systems
  • 5. Focus on the following in the countries, sub regions and the Region: • Capacity assessment, use for monitoring & evaluation • Ongoing collection of reliable, comparable, and quality data; • timely and advanced analysis; • dissemination and use of analysis results for national policy and program planning & evaluation, • technical competency of the surveillance workforce • novel thinking and innovation
  • 6. Available documents and tools http://www.paho.org/cncd_surveillance
  • 7. TOOL: Country Profile of Capacity and Response to NCDs http://www.paho.org/cncd_surveillance/countrycapacityandresponse
  • 8. TOOL: Minimum dataset for NCDs http://paho.org/cncd_surveillance/minimumdataset Purpose: • to combine multiple data sources in one functional annual reporting system as a foundation for CNCD surveillance. • to remedy the fragmentation of traditional country surveillance systems • to facilitate further analysis on a national, sub Regional, and Regional level and the generation of more complex indicators for NCDs.
  • 9. In 2010 Assessment of capacity: • Country capacity to respond to NCDs : instrument in Excel available on www.paho,org/cncd_surveillance • PROGRES REPORT for Directing Council Ongoing collection of reliable, comparable and timely data • Implementation of Minimum data set in implementation in 20 countries • Support RF studies • Pan Am STEPS & introducing new methods
  • 10. TOOLS: Methodology for Risk Factor Surveillance Disease, risk and protective factors in adults: Pan Am STEPS- New fact sheet on Determinants & RF E STEPS Additional modules MULTIMOD: Methodology for use of land and cell phones
  • 11. Pan American STEPS -UPDATE January 2008 Presently in the Field: Paraguay Published and promoted for policy purposes: Aruba, Bahamas, St Kitts Attended II Level training & completed data processing : Aruba, Bahamas, Uruguay, St Kits, Barbados, BVI, Dominica Trained level 1 and in preparatory phase: Dominican Republic, Cuba, T&T, Curacao, Turks & Cayucos Planning I Level training in 2008: St Lucia, St Vincent, Panama, C Rica, Grenada Chile, Argentina, Brazil, Mexico, Colombia, Jamaica are in process of mapping and harmonization of data with Pan Am STEPS
  • 12. Advances in 2010 Dissemination and use of analysis results for national policy and program planning & evaluation • Workshops for STEPS advanced analysis CAREC Feb 2010 • Policy and program implementation based on data analysis • Caribbean Portal as part of PAHO health observatory CAREC 2010 Technical competency of the surveillance workforce • FETP including NCDs, in collaboration with Brazil, Colombia & CDC • Training for cancer registry: in collaboration with IARC, • Guayaquil 2010; Port of Spain 2010,
  • 13. 2010 cont Novel thinking and innovation • Training & pilot of Multi Mod surveillance Miami Sept 2010 • Mini STEPS as part of census, labor or other studies for annual updates on behavioral RF, Caribbean • Use of Sentinel sites for PHC and hospital performance monitoring C Rica pilot
  • 14. Cancer incidence/ cancer registers – geographic coverage in LAC based on CI5 IX
  • 15. Improving information on incidence, prevalence and survival of CVD WHOs STEPwise Aapproach to Stroke Surveillance, STEPS Stroke (based on WHO MONICA Project) TOOLS: STEPS Stroke methodology http://www.paho.org/cncd_surveillance/stepsstroke
  • 16. Stroke as one of the 3 main causes of death in the Americas 1st % 2nd % 3rd % Anguilla 14.7 Argentina 8.2 Antigua and Barbuda 8.3 Brazil 10.7 Belize 6.7 Canada 7 French Guyana 8.7 Barbados 8.8 Colombia 7.4 Guadeloupe 11.9 Bermuda 7.4 Haiti 8.6 Guyana 10.9 Cayman Islands 6.4 Montserrat 8.8 Martinique 12.2 Chile 9.6 Nicaragua 7.7 Panama 11.2 Costa Rica 6.3 Puerto Rico 5.8 Paraguay 10.6 Cuba 10.4 Trinidad and Tobago 10.7 Suriname 12.9 Dominican Republic 10 St. Kitts and Nevis 10.1 Ecuador 6.2 Uruguay 12.4 Peru 4.8 St. Lucia 12.1 United States 6.9 Venezuela 7.2 Virgin Islands (US) 7.6
  • 17. STEPS Stroke in LAC – State and Perspectives Countries that have implemented STEPS stroke, 1,2, 3 step : Chile, Mexico, Brazil (Sao Paulo + 5 regions), Barbados, Countries interested in implementing STEPS Stroke: Colombia, Uruguay, Argentina, Honduras, Curacao STEPS Stroke Instrument available on PAHO WEB: in English, Spanish and soon in Portuguese STEPS Stroke supported by: World Stroke organization, World Federation of Neurology, PAHO-WHO EMMA: Estudo de Mortalidade e Morbilidade do Acidente Vascular Cerebral STROQUE: Stroke Register of Queretaro. Municipio Queretaro TAURUSs: Talca Urban & Rural Stroke Study Barbados, MI & Stroke register
  • 18. STEPS STROKE initiatives in Latin America and Caribbean Acronym Name City, Country Population STEPS P.I Funding Agency EMMA Estudo de Mortalidade e Morbidade do Acidente Vascular Cerebral Sao Paulo, Brazil 10 Million 1-2-3 Dr. P.A Lotufo CNP STROQUE Stroke Register of Queretaro, Municipio Queretaro Municipio Queretaro, Mexico 725,000 1-2-3 Dr. F. Barrinagarre menteria CONCYTEQ CONACYT TAURUSs Talca Urban & Rural Stroke Study Provincia Talca, Chile 390,000 1-2-3 Dr. P.M Lavados CONICYT National population Register of Barbados Barbados 300,000 1-2-3 Dr. Anselm Hennins MOH Barbados
  • 19. STEPS Stroke...what it offers • Study Protocol and Instrument • Data Entry Tool • International Comparisons
  • 20. Advances in 2010 • Cancer Registry: Brasilia Declaration on improving information on cancer signed by 19 countries • Training for cancer registry: in collaboration with IARC: Guayaquil 2010; Port of Spain 2010 • Stroke registry: Manual STEP STROKE in en, Sp & Portuguese on the WEB • Temporary advisers to support countries • Training for Step Stroke: Curacao 2010
  • 21. SUBREGIONAL Support • MERCOSUR: Common Market of the South - VENT working group • 2008, 2009,2010 • Andean - VENT working group • 2009, 2010 Chile
  • 22. English Speaking Caribbean • Declaration of Port of Spain (2007) • To be established, as a matter of urgency, the programs necessary for research and surveillance of the risk factors for NCDs with the support of our Universities and the Caribbean Epidemiology Centre/Pan American Health Organization (CAREC/PAHO);” • EPI meetings : • 2006, • 2007, • 2008, • 2010
  • 24. Use of results for national policy Policy Observatory Project
  • 25. Policy Developm ent Policy Developm ent Policy M onitoring Policy M onitoring Capacity B uilding Capacity B uilding Policy Research Policy Research Advocacy Advocacy NCD POLICY NCD POLICY OBSERVATORY OBSERVATORY Policy Dialogue Policy Dialogue Operationally the Observatory will support and promote a number of functions, at regional, sub- regional and country levels:
  • 26. Advances in use of results for national policy Case study methodology: • Brazil • C Rica • Canada National NCD policies • Chile • Uruguay • Aruba, • Dominica • Bahamas, • St Kits & Nevis Policy dialogues Support Sub regional or Regional policy planning process Caribbean –Summit & follow up
  • 27. Advances in 2010 • Policy Observatory project meeting Port of Spain, November 17,18 2010 Purpose: Discus and prepare governments for UN Special Session on NCD September 2011
  • 28. Conclusions  NCD and RF surveillance are of importance for political and technical agenda  Secures commitment for strengthening capacity at national and sub regional level  Jointly developed & implemented standardized instruments: 1. Shorten the process of obtaining reliable timely information 2. Secure inter-country comparability and comparability over time 3. Secures sustainability of collection and analysis 4. Strengthen partnerships