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Social Media&Rare Diseases
1. Social Media and Rare Diseases Luis Fernandez Luque, PhD Student Norut Tromsø (Norway) Manuel Armayones Ruiz, PhD Grupo de Investigación Psinet- Universitat Oberta de Catalunya (Spain) President of Asociación Española de Síndrome de Lowe
43. Some Research Questions How can we encourage patients and researchers to work collaboratively against rare diseases? What motivational strategies could encourage collaborative work (collective intelligence) of these groups? Could be the video a useful tool? How collaborative activities between patients and researchers and their coordination can be supported by means of computer systems?