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Disrupting the culture
around chronic pain
Chronic Pain Australia
State Library NSW 2015
Anne-Marie Elias
Twitter: @ChiefDisrupter
ChiefDisrupter@anne-marieelias.com
Beyond Chronic Pain
 “What I like about “Beyond Chronic Pain” is that it does look at all aspects
of living with pain and understanding and attending to all parts of one’s life
in order to get better pain care and also to live a more fulfilling live with
pain. It’s down to earth and practical, having exercises and being
interactive by asking people/readers to make lists of various kinds and
meditate on various things. So it’s more than a book; it’s really a companion
to someone who really wants to understand his or her pain and live a better
life with pain, while putting it into the perspective of whole living with
body, mind, and spirit. I think it’s a great tool for people who are living with
pain.”

Will Rowe – CEO American Pain Foundation

Innovation
Resourceful
Reflective
Creative
Responsive
Adaptive
Collaborative
User designed
Disruptive
Chronic Pain Australia
 Celebrate your successes
 Innovative user centred programs
 Volunteers
 Information gateway
 Big Red Bus
 Cross sector
 24/7 Forum
 Use of social media
Chronic Pain Australia
 Time to leverage more
 Data visualisation (NICTA)
 Hackathon (Hack for Chronic pain )
 Meet Ups
 Social Innovation pitch
 Rapid prototyping solutions
Innovation is a mindset
 Change the culture
 Courage to bring outside talent, new voices
 Mavericks step up to the plate
Disruptive Social Innovation
 Flip the way we look at a problem
 Collaborate broadly
 Leverage untapped resources and social capital all around us
Disrupting Chronic Pain
 Focus on stories
 Share the insights, experiences and triumphs
 Inspire conversations and actions
 Leverage the social capital in the community
 Use social media
Case Study – parallel paradigm
 ENABLED EMPLOYMENT
 Flipping Disability to ABILITY
 Focus on gaps
 Social media
 Stories
 Engaging, Innovative, Positive
Untapped Resources
 Benojo – matching corporates http://benojo.com
 Global Sisters micro-financing for women http://www.globalsisters.org
 Good 360 http://good360.org.au/
 Macquarie University Professional and Community Engagement - cross faculty and
discipline students internship
http://mq.edu.au/about_us/offices_and_units/professional_and_community_engagement/
 UTS Shop Front – cross faculty students internship http://www.uts.edu.au/partners-and-
community/initiatives/uts-shopfront-community-program/welcome
 UTS The Big Lift http://www.biglift.org (regional program)
 The Funding Network https://www.thefundingnetwork.com.au
 Deloitte Sparked access staff’s time, talent and resources http://www.skillsforchange.com
Thank You
 Anne-Marie Elias, Social Change Connector, Innovator, Strategist
 Associate, UTS Centre for Local Government and Design Innovation Research
Centre
 ChiefDisrupter@anne-marieelias.com
 0418236546
 www.anne-marieelias.com
 Blog: https://disrupter4change.wordpress.com/
 Twitter: @ChiefDisrupter

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Chronic pain australia disrupting the culture around people living with chronic pain 2015

  • 1. Disrupting the culture around chronic pain Chronic Pain Australia State Library NSW 2015 Anne-Marie Elias Twitter: @ChiefDisrupter ChiefDisrupter@anne-marieelias.com
  • 2. Beyond Chronic Pain  “What I like about “Beyond Chronic Pain” is that it does look at all aspects of living with pain and understanding and attending to all parts of one’s life in order to get better pain care and also to live a more fulfilling live with pain. It’s down to earth and practical, having exercises and being interactive by asking people/readers to make lists of various kinds and meditate on various things. So it’s more than a book; it’s really a companion to someone who really wants to understand his or her pain and live a better life with pain, while putting it into the perspective of whole living with body, mind, and spirit. I think it’s a great tool for people who are living with pain.”  Will Rowe – CEO American Pain Foundation 
  • 4. Chronic Pain Australia  Celebrate your successes  Innovative user centred programs  Volunteers  Information gateway  Big Red Bus  Cross sector  24/7 Forum  Use of social media
  • 5. Chronic Pain Australia  Time to leverage more  Data visualisation (NICTA)  Hackathon (Hack for Chronic pain )  Meet Ups  Social Innovation pitch  Rapid prototyping solutions
  • 6. Innovation is a mindset  Change the culture  Courage to bring outside talent, new voices  Mavericks step up to the plate
  • 7. Disruptive Social Innovation  Flip the way we look at a problem  Collaborate broadly  Leverage untapped resources and social capital all around us
  • 8. Disrupting Chronic Pain  Focus on stories  Share the insights, experiences and triumphs  Inspire conversations and actions  Leverage the social capital in the community  Use social media
  • 9. Case Study – parallel paradigm  ENABLED EMPLOYMENT  Flipping Disability to ABILITY  Focus on gaps  Social media  Stories  Engaging, Innovative, Positive
  • 10. Untapped Resources  Benojo – matching corporates http://benojo.com  Global Sisters micro-financing for women http://www.globalsisters.org  Good 360 http://good360.org.au/  Macquarie University Professional and Community Engagement - cross faculty and discipline students internship http://mq.edu.au/about_us/offices_and_units/professional_and_community_engagement/  UTS Shop Front – cross faculty students internship http://www.uts.edu.au/partners-and- community/initiatives/uts-shopfront-community-program/welcome  UTS The Big Lift http://www.biglift.org (regional program)  The Funding Network https://www.thefundingnetwork.com.au  Deloitte Sparked access staff’s time, talent and resources http://www.skillsforchange.com
  • 11. Thank You  Anne-Marie Elias, Social Change Connector, Innovator, Strategist  Associate, UTS Centre for Local Government and Design Innovation Research Centre  ChiefDisrupter@anne-marieelias.com  0418236546  www.anne-marieelias.com  Blog: https://disrupter4change.wordpress.com/  Twitter: @ChiefDisrupter