Rare Lives captures the beauty and uniqueness in the daily lives of people affected by rare diseases, using a combination of documentary photography, words and data. Rare Lives give voice and image to the needs, hopes, difficulties and joy stemming from the daily conquests of people suffering from a rare disease.

2. RARE LIVES is a pilot project on rare
diseases developed in 7 European
countries with the support of Sanofi
Genzyme.

3. A photographic journey across Europe
with the goal to investigate needs, hopes,
difficulties, but, above all, joys and daily
achievements of those suffering from a
rare disease.

4. COUNTRIES VISITED7
FAMILIES INVOLVED
PUBLICATIONS IN THE MAJOR
EUROPEAN MAGAZINES
TALKS: ITALIAN PARLIAMENT, THE ITALIAN
INSTITUTE OF HEALTH, THE MAKER FAIRE
EURO RAISED IN A 3 MONTHS ONLINE
CROWDFUNDING CAMPAIGN
28
6
3
28K
THE “LIKES” ON THE ITALIAN FEDERATION
OF RARE DISEASES FACEBOOK PAGE2X

5. THE SOCIAL CONNECTION
We found the extraordinary within the
ordinary and focusing the public eye on it,
in a way that is personal yet informative.

6. THE EMOTIONAL IMPACT
We used documentary photography to
provoke feelings and create associations
within the viewers minds.

7. THE PRACTICAL USE
We provided educational as well as emotional
content to used in various types of campaigns
online, in print or on billboards.

8. HOW WE DID THAT
OUR STRATEGY

9. EMPATHY (human sensitivity)
+
INFORMATION (informative data)
=
ENRICHMENT, ENGAGEMENT, CAPTURE
of a SUPPORTIVE AUDIENCE

10. Photojournalism is the language of truth and
the catalyst of action.
Images and the stories behind them, can
transform your audience from a viewer to a
participant.

11. A photographic voyage in the lives of
people affected by particular diseases,
exposing their daily struggles, needs and
hopes, is the most provoking way to
impact the public vision on this topic.

12. Only by witnessing the difficulties as well as
joys of their daily conquests, can viewers
comprehend the value behind brand business
concept and allow them to develop a strong
bond of trust, loyalty and long-term
relationship with their consumers.

13. HOW WE USED THESE
CONTENTS?

14. • web site/blog
• social networks
• showreel
1

15. • exhibitions in
public and
private spaces
• exhibitions in
events, fairs and
galas
2

16. • Contents for
publications/
offline medias
2

17. WWW.RARELIVES.COM

18. All contents and proposals in this document are strictly private, confidential and
all relevant usage rights are an exclusive property of Echo Photojournalism.
Any diffusion or usage of this material is expressly prohibited without the
permission of Echo Photojournalism.
ALDO SOLIGNO
aldo@echophotojournalism.com
+1 (917) 794-9229
100 Willoughby Street, Suite 16C, Brooklyn NY
www.echophotojournalism.com