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Regional Breakout- Region 9 & 10
1.
Breakoutâ Region 9 & 10 12/08/09 ActivitiesÂ
â LEND PACâWEST conference calls â Thinking of webinars â Advisory groups to coordinate â Workforce development o Primarily screening o Capacity building among professionals o Advisory and steering committees â Training â Research o Learn the Signs Act Early o Coâoccurrence of ASD and FASD o Intervention Research o Guanfacine research â WAâ Community Asset Management â ORâ DBPs created ASD screening lecture  training parents via webinar â HIâ Training PCPs  now ADOSâtrained â AKâ Neurodevelopmental outreach clinics, streamline referrals â CAâ Ethnographic studies, oral health, ophtho o 2 DBPs in every continuity clinic session â TRAINING o WAâ Improving education for family trainees Increased number of LEND trainees New autism center @ Seattle Childrenâs (DBP fellows, interns, and LEND trainees) o ORâ Autism parent training programsâ rural o AKâ statewide Autism Institute TASSE siteâ grant for behavior service supports Collaborative system in early childhood STATE POSTâSUMMIT ACCOMPLISHMENTS â Region 9  o AZ, NV, CA, HI o Provide technical assistance o CELPAâ State of CA divided o Create a state coalition o Attempt to organize an autism registryÂ
2.
o Professional Development Institute grant fundsÂ
o  In CA, learning to work more closely between North CA and South CA â Region 10 o WAâ state implementation grant and LEND joined forces COLLABORATIVE PRODUCT OR OUTCOME â ORâ Governor just started Autism Commission (screening, medical, school) â WAâ Policiesâworking on access, capacity building, and expanding access to rural areas â CAâ Many activities, folks from UCEDD serve on state councils o Creating screening plan o Using telehealth to do outreach â AKâ Struggles with care providers and referrals o High turnover rate in early care and education  how to educate these folks? â Learn the Signs Act Early â Otherâ Part C on the chopping block in some states â Shared interest in capacity building â Collective interest in screening and intervention â FamilyâtoâFamily  one in every state.  Possibility of collaborating to support this? â Referral overload to DBPs â Idea of WIC as a place for ASD screening?   Video lectures, webinar â Parent access/screening tool   problems with families who struggle with things like this â Problem of cultural miscommunication of signs o Time if diagnosis differs across different ethnicities (CA, AK, HI, everywhere) IDEAS â What do we have to share? â Repository of info, tools, and toys â Use technical support centersâ regional technical support â Learn the Signsâ English and Spanish â Mass translation (electronically) â SHARING INFO â AMCHIP serves as resource center for state implementation grantsâ Can AMCHIP contribute to repository? â ITAC Website â SPHARCâ State Public Health Autism Resource Center â Interest in sharing info via telehealth? â Importance of establishing collaborative relationships â PACâWEST LEND consortium    ACTION ITEMS â 1) Resource SharingÂ
3.
o
SPHARC has public and private domains o Idea of a searchable database/list, and can they do the search?  There needs to be a search function o Partners for new projectsâ ability to find â 2) Identify person to share resources TARGET DATES AND POINT PERSON(S) â ITAC and SPHARCâ identify a point person to bring in these resources by January 2010. SUPPORT NEEDS â Repository of info, tools, etc. â Resource sharing â Relationship developmentÂ
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