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Communication in
Serious Illness:
Courageous Conversations to
Elicit Goals of Care
Anthony Back
University of Washington
Cambia Palliative Care Center of Excellence
start image
Goals of care
Not about selling hospice
Discovering values that
shape medical decisions
“Clinicians need to
initiate conversations…”
“frank…and explicit
discussion…”
Do ‘big picture’ conversations
matter?
• 332 patients identified prospectively
• Asked “Have you and your doctor
discussed any particular wishes about the
care you would want to receive if you were
dying?”
• Yes/no: compared re
– Distress/Depression p=NS
– Accepts illness as terminal OR 2.19
– Wants to know life expect OR 2.40
JAMA 300:1665, 2008
Outcomes correlated with a transition
conversation
• Medical care in last week of life
– ICU admission OR 0.35
– Ventilator use 0.26
– Resuscitation attempt 0.16
– Outpt hospice >1 wk 1.58
• Caregiver bereavement
– Better QOL p=0.001
– Felt prepared for death p=0.001
– Regret p>0.001
JAMA 300:1665, 2008
Close-­‐up	
  of	
  a	
  cri/cal	
  moment
• Excerpt	
  from	
  consult:	
  
• “So	
  if	
  you	
  had	
  100	
  people,	
  the	
  survival	
  curve	
  drops	
  
down	
  because	
  people	
  die	
  of	
  one	
  thing	
  or	
  another,	
  
including	
  relapse.	
  That	
  tends	
  to	
  level	
  off	
  at	
  about	
  
2.5	
  years	
  aGer	
  transplant	
  and	
  stays	
  level	
  aGer	
  that.	
  
It’s	
  about	
  30%	
  in	
  your	
  situa/on”	
  
• Pa/ent’s	
  pre-­‐visit	
  es/mate	
  of	
  cure:	
  90-­‐100%	
  
• Pa/ent’s	
  post-­‐visit	
  es/mate	
  of	
  cure:	
  90-­‐100%
30
Strong	
  emo/ons	
  hijack	
  cogni/on
“AGer	
  he	
  said	
  the	
  30%,	
  he	
  just	
  kept	
  
dinging	
  along	
  in	
  his	
  facts,	
  and	
  I	
  was	
  
stunned.	
  Literally,	
  my	
  notetaking	
  was	
  
completely	
  done.	
  	
  
All	
  I	
  wrote	
  was	
  30%	
  the	
  rest	
  of	
  the	
  /me	
  
all	
  over	
  my	
  paper.	
  	
  
And	
  I	
  mean,	
  I	
  just	
  couldn’t	
  get	
  past	
  that	
  
point.	
  I	
  don’t	
  know	
  how	
  to	
  describe	
  it”
Doctor	
  self-­‐rated	
  	
  
competence
Pa/ent-­‐rated	
  	
  
competence
Physician	
  self-­‐assessment:	
  imperfect
Communication is a
learned expertise
Our learning model
MODEL
PRACTICE
REFLECT
Scaffolding your learning
• Goal = what you’re trying to learn or get
better at. Set your intention every time.
• Time out = Pausing the action before too
much happens to remember.Take notes!
• Rewind & replay = Backing up to improve.
Go slow now to go fast later—
• Take home = crystallizes learning to
make it portable. Collect these!
18
‘You don’t get benefits from
mechanical repetition, but by
adjusting your execution
over and over...’

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Communication in Serious Illness: Courageous Conversations to Elicit Goals of Care - Tony Back

  • 1. Communication in Serious Illness: Courageous Conversations to Elicit Goals of Care Anthony Back University of Washington Cambia Palliative Care Center of Excellence
  • 5. Discovering values that shape medical decisions
  • 6.
  • 7. “Clinicians need to initiate conversations…”
  • 8.
  • 10. Do ‘big picture’ conversations matter? • 332 patients identified prospectively • Asked “Have you and your doctor discussed any particular wishes about the care you would want to receive if you were dying?” • Yes/no: compared re – Distress/Depression p=NS – Accepts illness as terminal OR 2.19 – Wants to know life expect OR 2.40 JAMA 300:1665, 2008
  • 11. Outcomes correlated with a transition conversation • Medical care in last week of life – ICU admission OR 0.35 – Ventilator use 0.26 – Resuscitation attempt 0.16 – Outpt hospice >1 wk 1.58 • Caregiver bereavement – Better QOL p=0.001 – Felt prepared for death p=0.001 – Regret p>0.001 JAMA 300:1665, 2008
  • 12.
  • 13. Close-­‐up  of  a  cri/cal  moment • Excerpt  from  consult:   • “So  if  you  had  100  people,  the  survival  curve  drops   down  because  people  die  of  one  thing  or  another,   including  relapse.  That  tends  to  level  off  at  about   2.5  years  aGer  transplant  and  stays  level  aGer  that.   It’s  about  30%  in  your  situa/on”   • Pa/ent’s  pre-­‐visit  es/mate  of  cure:  90-­‐100%   • Pa/ent’s  post-­‐visit  es/mate  of  cure:  90-­‐100% 30
  • 14. Strong  emo/ons  hijack  cogni/on “AGer  he  said  the  30%,  he  just  kept   dinging  along  in  his  facts,  and  I  was   stunned.  Literally,  my  notetaking  was   completely  done.     All  I  wrote  was  30%  the  rest  of  the  /me   all  over  my  paper.     And  I  mean,  I  just  couldn’t  get  past  that   point.  I  don’t  know  how  to  describe  it”
  • 15. Doctor  self-­‐rated     competence Pa/ent-­‐rated     competence Physician  self-­‐assessment:  imperfect
  • 18. Scaffolding your learning • Goal = what you’re trying to learn or get better at. Set your intention every time. • Time out = Pausing the action before too much happens to remember.Take notes! • Rewind & replay = Backing up to improve. Go slow now to go fast later— • Take home = crystallizes learning to make it portable. Collect these! 18
  • 19. ‘You don’t get benefits from mechanical repetition, but by adjusting your execution over and over...’