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Practicing social media in health
and medicine:
A primer for researchers and health professionals

Daniel Hooker            (Fran)Cisco Grajales     eHealth Investigative
Researcher               Graduate Student         Partnership Program
eHealth Strategy Office   Researcher               (eHIPP) Rounds
                         eHealth Strategy Office   June 16, 2011
@danhooker
                         Trainee, Western
                         Regional Training
                         Centre for HSR

                         @ciscogiii
Introductions
image credit Kris Krug
Overview

By the end of this presentation, you will be able to:
• Define “social media” and understand generally
  how they are used in medicine and health research
• Identify issues relating to the everyday use of social
  media in health and medicine
• Understand current directions in social media
  research
• Recognize future directions in the field
Social Media Defined

• Social media is the use of web-based and mobile
  technologies to turn communication into interactive
  dialogue. (Wikipedia)

• Often synonymous with Web 2.0

• “Seems to be like Pink Floyd lyrics: It can mean
  different things to different people, depending on
  your state of mind.” (Kevin Maney)
Basic Premises of Social Media

• Social media research in medicine is parallel in with telephone-
 based telemedicine
• No true “experts”: things change and evolve - FAST!
• No service, website or company fits into one service category.
  • Education and Awareness
  • Data Collection
  • Remote Monitoring
  • P2P Communication
  • Disease and Epidemic Outbreak Tracking
  • Diagnostic Treatment and Support
BLOGS
What is a Blog?




A blog is a type of website... usually maintained by an
individual with regular entries of commentary,
descriptions of events, or other material such as
graphics or video. (Wikipedia, 12 June 2011)
What is Twitter?

• Twitter is often called a “microblog”:
  primarily text- and hyperlink-based
  communication 140-characters in length.

• Allows people to exchange ideas rapidly
  and consume with massive amounts of
  information quickly.

• The 140-character limit was chosen
  based on text-messaging.
What is social networking?




Web-based tools that allow for social interaction
through profile pages of “friends” who upload, share,
and comment on each others’ digital media.
Facebook for Rounding?
ISSUES: Privacy / Professionalism
ISSUES: Privacy / Professionalism
ISSUES: Privacy / Professionalism
What about information quality?
MYTHS
Social
media is
always
positive
Social
media is
always
positive
Social media is brand new
Social media is too hard
Gender Equity?

• Many of the leaders are women
• @DrVal, Founder of getbetterhealth.com
• @sixuntilme, Highly Regarded ePatient
• @CorineJansen, Chief Listening Officer, UMC St. Radboud
RESEARCH
Rules of engagement

                      • Be authentic

                      • Maintain professionalism

                      • Have fun & don’t let the fear of
                       the unknown stop you

                      • Ask for help

                      • Focus, Grab Attention, Engage,
                       and Take Action (The Dragonfly
                       Model)
WHAT DOES THE FUTURE HOLD?
• Facilitating research production by enhancing collaboration,
  communication, information sharing (Community of Practice)


• Clinical trial recruitment


• Staying current


• Open(ing) peer review


• Fighting misinformation spread


• Shifting roles for patients, providers and policy makers
THANK YOU
Questions?
Daniel Hooker
http://danielhooker.com/
@danhooker
daniel.h@ubc.ca




Fran(Cisco) J Grajales III
http://franciscograjales.com/
@ciscogiii
cisco@franciscograjales.com

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Practicing social media in health and medicine: A primer for researchers and health professionals

  • 1. Practicing social media in health and medicine: A primer for researchers and health professionals Daniel Hooker (Fran)Cisco Grajales eHealth Investigative Researcher Graduate Student Partnership Program eHealth Strategy Office Researcher (eHIPP) Rounds eHealth Strategy Office June 16, 2011 @danhooker Trainee, Western Regional Training Centre for HSR @ciscogiii
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  • 7. Overview By the end of this presentation, you will be able to: • Define “social media” and understand generally how they are used in medicine and health research • Identify issues relating to the everyday use of social media in health and medicine • Understand current directions in social media research • Recognize future directions in the field
  • 8. Social Media Defined • Social media is the use of web-based and mobile technologies to turn communication into interactive dialogue. (Wikipedia) • Often synonymous with Web 2.0 • “Seems to be like Pink Floyd lyrics: It can mean different things to different people, depending on your state of mind.” (Kevin Maney)
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  • 11. Basic Premises of Social Media • Social media research in medicine is parallel in with telephone- based telemedicine • No true “experts”: things change and evolve - FAST! • No service, website or company fits into one service category. • Education and Awareness • Data Collection • Remote Monitoring • P2P Communication • Disease and Epidemic Outbreak Tracking • Diagnostic Treatment and Support
  • 12. BLOGS
  • 13. What is a Blog? A blog is a type of website... usually maintained by an individual with regular entries of commentary, descriptions of events, or other material such as graphics or video. (Wikipedia, 12 June 2011)
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  • 19. What is Twitter? • Twitter is often called a “microblog”: primarily text- and hyperlink-based communication 140-characters in length. • Allows people to exchange ideas rapidly and consume with massive amounts of information quickly. • The 140-character limit was chosen based on text-messaging.
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  • 27. What is social networking? Web-based tools that allow for social interaction through profile pages of “friends” who upload, share, and comment on each others’ digital media.
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  • 33. ISSUES: Privacy / Professionalism
  • 34. ISSUES: Privacy / Professionalism
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  • 40. ISSUES: Privacy / Professionalism
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  • 51. MYTHS
  • 54. Social media is brand new
  • 55. Social media is too hard
  • 56. Gender Equity? • Many of the leaders are women • @DrVal, Founder of getbetterhealth.com • @sixuntilme, Highly Regarded ePatient • @CorineJansen, Chief Listening Officer, UMC St. Radboud
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  • 67. Rules of engagement • Be authentic • Maintain professionalism • Have fun & don’t let the fear of the unknown stop you • Ask for help • Focus, Grab Attention, Engage, and Take Action (The Dragonfly Model)
  • 68. WHAT DOES THE FUTURE HOLD?
  • 69. • Facilitating research production by enhancing collaboration, communication, information sharing (Community of Practice) • Clinical trial recruitment • Staying current • Open(ing) peer review • Fighting misinformation spread • Shifting roles for patients, providers and policy makers
  • 72. Daniel Hooker http://danielhooker.com/ @danhooker daniel.h@ubc.ca Fran(Cisco) J Grajales III http://franciscograjales.com/ @ciscogiii cisco@franciscograjales.com

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