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TESTING FOR HIV INFECTION:
How to offer the test and deliver test results



                Carol Q Galper, Ed.D.
                Principle Investigator

              Alyssa Bittenbender, MPH
                  Program Director
Arizona AIDS Education and Training Center (AETC)
                              Mission
 The mission of the Arizona AIDS Education and Training Center is
 to provide healthcare professionals with the knowledge and skills
 necessary to provide outstanding care to people living with HIV
 and AIDS.

                           Who we serve
 Physicians, dentists, nurses, mid-level practitioners (NP, PA),
 pharmacists and mental health workers will have access to
 training from peer colleagues who possess expertise in the
 management and treatment of HIV disease.


                      www.AETC-Arizona.org
Objectives
 1. Describe the rationale for HIV screening

 2. Practice offering an HIV test and giving
    HIV test results to patients

 3. Evaluate a newly diagnosed patient’s
    immediate needs and make a short-term
    plan.
My primary profession/discipline is…
    1.   Physician
    2.   Physician Assistant
    3.   Nurse Practitioner
    4.   Nurse
    5.   Case manager
    6.   Community Health Worker
    7.   Other
I discuss HIV testing with my patients…



     1.   Always
     2.   Sometimes
     3.   Never
     4.   Not Applicable
What do you think is the number one reason
providers are reluctant to discuss HIV with
patients?

    1.   Not enough time
    2.   Low Prevalence
    3.   Fear / concern of offending patient
    4.   Other
Source of HIV Tests and Positive Tests

• 38% - 44% of adults age 18-64 have been tested
• 16-22 million persons age 18-64 tested annually in U.S.
                                    HIV tests*        HIV+ tests**
Private doctor/HMO                    44%                17%
Hospital, ED, Outpatient              22%                27%
Community clinic (public)              9%                21%
HIV counseling/testing                 5%                 9%
Correctional facility                  0.6%               5%
STD clinic                             0.1%               6%
Drug treatment clinic                  0.7%               2%
       *National Health Interview Survey, 2002
       **Suppl. to HIV/AIDS surveillance, 2000-2003
Awareness of Serostatus Among People
with HIV and Estimates of Transmission
     ~25%
   Unaware         Accounting for:           ~54%
       of                                    of New
   Infection                               Infections



     ~75%                                       Marks, et al
   Aware of                                 AIDS 2006;20:1447-50
   Infection

                                             ~46%
                                             of New
                                           Infections


     People Living with          New Sexual Infections
     HIV/AIDS: 1,039,000-        Each Year: ~32,000
     1,185,000
Reasons for testing: late versus early testers
    Supplement to HIV/AIDS Surveillance, 2000-2003
  100%
                           Late (Tested < 1 yr before AIDS dx)
  80%
                           Early (Tested >5 yrs before AIDS dx)
  60%


  40%


  20%


   0%
         Illness Self/partner Wanted to Routine    Required   Other
                   at risk     know     check up
Offering an HIV test
Explain rationale for HIV screening
   • Improves patient care
   • Reduces HIV transmissions

Normalize the test
   • “I offer a test to all my patients”

Know your clinic’s consenting process ahead of time.
Delivering the negative test result
1. State the result in a direct, neutral tone
   “This means you don’t have HIV”
   Avoid medical jargon

2. Check and respond to patient’s reaction


3. Explain the window period and advise on
   re-testing if needed
   What is an example of a situation in which you
   would advise someone to be re-tested?
What are some concerns about telling
patients they have a positive test result?

   1.   I don’t know what to say, or how to say it
   2.   Fear of how the patient will respond
   3.   Fear of how I (the provider) will respond
   4.   What can I do that will be helpful?
   5.   I don’t know where to refer patients
   6.   Other
Delivering a Positive Result
 • State result in a direct, neutral tone, and wait for patient’s
   response
    - Provide for immediate needs

 • Address individual needs and concerns
    - Sources of emotional support
    - Information about HIV infection and medical care
    - Information about transmission and partner notification

 • Make a short-term plan
    - Link to needed services
    - Ask what’s most important to do first
    - “Close the session, but not the door”


                                                                    13
Delivering a Positive Result
 • State result in a direct, neutral tone, and wait for
   patient’s response
    “Your HIV test from last week is positive……..In other words,
      the test shows that you do have HIV.”

    • Provide for immediate needs
    “You look really shocked. This must be hard to take in.”
    “What is first on your mind right now?”
    “Many people I’ve talked with have expressed similar feelings
      when they learn they have a positive result.”


                                                              14
Delivering a Positive Result
 • State result in a direct, neutral tone, and wait for patient’s
   response
    - Provide for immediate needs

 • Address individual needs and concerns
    - Sources of emotional support
    - Information about HIV infection and medical care
    - Information about transmission and partner notification

 • Make a short-term plan
    - Link to needed services
    - Ask what’s most important to do first
    - “Close the session, but not the door”


                                                                    15
Sources of Emotional Support
 • Who can patient turn to now?
   -   Friend
   -   Family member
   -   Partner
   -   Counselor
   -   Faith community

   “Who do you trust that you can tell
     about this positive test?”
   “How have you handled stressful situations
     like this in the past? How can that work
     for you now?”
HIV Infection and Medical Care
 • Patient may need basic information about what
   HIV infection means
    - For their own health
       “What would you like to ask about HIV and your health?”
    - For their partner’s health
       “What do you think this means for your partner’s health?”

 • With appropriate care, HIV is a manageable chronic
   infection
      “Medical care will be very important because, although HIV is not
      curable, there are good treatments that help keep people well.”



                                                                      17
Link to Medical Services
 • Link to HIV care
    - Make first appointment if you will provide care yourself
    - Refer to provider with patient’s insurance
    - Refer to Ryan White clinics
       > Become familiar with local care networks


 “What about health care? Do you have insurance to cover
   that? If not, we can help you find a doctor.”

 “Who do you plan to see for medical care? When do you
   expect to make your first appointment?”


                                                             18
Transmission

 • Answer questions about HIV transmission
 • May want to notify current partners, from
   last 6-12 months, since last HIV test


  “Knowing you have HIV, what are your
   concerns about giving HIV to someone else?”


                                               19
Discuss Disclosure
 • Explore whether the patient is able to talk
   about the implications of the positive results
   “How do you think your partner will react when
     you tell him?”
 • Screen for domestic violence
   “Have you ever been in a relationship where your
     partner hurt you, threatened you, forced sexual
     contact, or tried to control your life?”
HIV Partner Services
(Partner Counseling and Referral Services)

 • Assist persons living with
   HIV with telling their
   partner(s) about possible exposure
 • Provide partners with access to testing and
   other prevention services
 • Voluntary and confidential
 • Services available through local health
   department
                                                 21
How Do Patients Feel About Health
Department Partner Services?
 Survey of persons w/recently reported HIV
 • 84% agreed (somewhat/strongly) health
   department should routinely offer everyone
   diagnosed with HIV help in notifying
   partners
 • 20% would want help in notifying at least
   one partner from last 6 months

             Golden et.al. JAIDS 32: 196-202 2003 22
Delivering a Positive Result
 • State result in a direct, neutral tone, and wait for patient’s
   response
    - Provide for immediate needs

 • Address individual needs and concerns
    - Sources of emotional support
    - Information about HIV infection and medical care
    - Information about transmission and partner notification

 • Make a short-term plan
    - Link to needed services
    - Ask what’s most important to do first
    - “Close the session, but not the door”


                                                                    23
Link to Needed Services
 •   Review patients options for medical care
 •   Provide specific written referrals
 •   Limit referrals to one or two
 •   Encourage follow through
 •   Appropriate referrals may include
     - Drug treatment facilities
     - Mental Health
     - Social Services
Ask What’s Most Important
to do First
 • Work with your patient to make a plan for
   the next few hours or days

 “We’ve talked about a lot, what’s most
  important for you to deal with first?”
 “What do you plan to do today when you leave
  here?”
Close the Session,
But Not the Door
 • “Warm handoff” is the standard of care

 “It’s important to take this one step at a time.
    I’ll call you tomorrow to see how it’s going.”
 “You may think of other questions after you
   leave today. Feel free to call me or come
   back.”


                                                     26
Role Play!

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AETC Testing for HIV Infection Bittenbender

  • 1. TESTING FOR HIV INFECTION: How to offer the test and deliver test results Carol Q Galper, Ed.D. Principle Investigator Alyssa Bittenbender, MPH Program Director
  • 2. Arizona AIDS Education and Training Center (AETC) Mission The mission of the Arizona AIDS Education and Training Center is to provide healthcare professionals with the knowledge and skills necessary to provide outstanding care to people living with HIV and AIDS. Who we serve Physicians, dentists, nurses, mid-level practitioners (NP, PA), pharmacists and mental health workers will have access to training from peer colleagues who possess expertise in the management and treatment of HIV disease. www.AETC-Arizona.org
  • 3. Objectives 1. Describe the rationale for HIV screening 2. Practice offering an HIV test and giving HIV test results to patients 3. Evaluate a newly diagnosed patient’s immediate needs and make a short-term plan.
  • 4. My primary profession/discipline is… 1. Physician 2. Physician Assistant 3. Nurse Practitioner 4. Nurse 5. Case manager 6. Community Health Worker 7. Other
  • 5. I discuss HIV testing with my patients… 1. Always 2. Sometimes 3. Never 4. Not Applicable
  • 6. What do you think is the number one reason providers are reluctant to discuss HIV with patients? 1. Not enough time 2. Low Prevalence 3. Fear / concern of offending patient 4. Other
  • 7. Source of HIV Tests and Positive Tests • 38% - 44% of adults age 18-64 have been tested • 16-22 million persons age 18-64 tested annually in U.S. HIV tests* HIV+ tests** Private doctor/HMO 44% 17% Hospital, ED, Outpatient 22% 27% Community clinic (public) 9% 21% HIV counseling/testing 5% 9% Correctional facility 0.6% 5% STD clinic 0.1% 6% Drug treatment clinic 0.7% 2% *National Health Interview Survey, 2002 **Suppl. to HIV/AIDS surveillance, 2000-2003
  • 8. Awareness of Serostatus Among People with HIV and Estimates of Transmission ~25% Unaware Accounting for: ~54% of of New Infection Infections ~75% Marks, et al Aware of AIDS 2006;20:1447-50 Infection ~46% of New Infections People Living with New Sexual Infections HIV/AIDS: 1,039,000- Each Year: ~32,000 1,185,000
  • 9. Reasons for testing: late versus early testers Supplement to HIV/AIDS Surveillance, 2000-2003 100% Late (Tested < 1 yr before AIDS dx) 80% Early (Tested >5 yrs before AIDS dx) 60% 40% 20% 0% Illness Self/partner Wanted to Routine Required Other at risk know check up
  • 10. Offering an HIV test Explain rationale for HIV screening • Improves patient care • Reduces HIV transmissions Normalize the test • “I offer a test to all my patients” Know your clinic’s consenting process ahead of time.
  • 11. Delivering the negative test result 1. State the result in a direct, neutral tone “This means you don’t have HIV” Avoid medical jargon 2. Check and respond to patient’s reaction 3. Explain the window period and advise on re-testing if needed What is an example of a situation in which you would advise someone to be re-tested?
  • 12. What are some concerns about telling patients they have a positive test result? 1. I don’t know what to say, or how to say it 2. Fear of how the patient will respond 3. Fear of how I (the provider) will respond 4. What can I do that will be helpful? 5. I don’t know where to refer patients 6. Other
  • 13. Delivering a Positive Result • State result in a direct, neutral tone, and wait for patient’s response - Provide for immediate needs • Address individual needs and concerns - Sources of emotional support - Information about HIV infection and medical care - Information about transmission and partner notification • Make a short-term plan - Link to needed services - Ask what’s most important to do first - “Close the session, but not the door” 13
  • 14. Delivering a Positive Result • State result in a direct, neutral tone, and wait for patient’s response “Your HIV test from last week is positive……..In other words, the test shows that you do have HIV.” • Provide for immediate needs “You look really shocked. This must be hard to take in.” “What is first on your mind right now?” “Many people I’ve talked with have expressed similar feelings when they learn they have a positive result.” 14
  • 15. Delivering a Positive Result • State result in a direct, neutral tone, and wait for patient’s response - Provide for immediate needs • Address individual needs and concerns - Sources of emotional support - Information about HIV infection and medical care - Information about transmission and partner notification • Make a short-term plan - Link to needed services - Ask what’s most important to do first - “Close the session, but not the door” 15
  • 16. Sources of Emotional Support • Who can patient turn to now? - Friend - Family member - Partner - Counselor - Faith community “Who do you trust that you can tell about this positive test?” “How have you handled stressful situations like this in the past? How can that work for you now?”
  • 17. HIV Infection and Medical Care • Patient may need basic information about what HIV infection means - For their own health “What would you like to ask about HIV and your health?” - For their partner’s health “What do you think this means for your partner’s health?” • With appropriate care, HIV is a manageable chronic infection “Medical care will be very important because, although HIV is not curable, there are good treatments that help keep people well.” 17
  • 18. Link to Medical Services • Link to HIV care - Make first appointment if you will provide care yourself - Refer to provider with patient’s insurance - Refer to Ryan White clinics > Become familiar with local care networks “What about health care? Do you have insurance to cover that? If not, we can help you find a doctor.” “Who do you plan to see for medical care? When do you expect to make your first appointment?” 18
  • 19. Transmission • Answer questions about HIV transmission • May want to notify current partners, from last 6-12 months, since last HIV test “Knowing you have HIV, what are your concerns about giving HIV to someone else?” 19
  • 20. Discuss Disclosure • Explore whether the patient is able to talk about the implications of the positive results “How do you think your partner will react when you tell him?” • Screen for domestic violence “Have you ever been in a relationship where your partner hurt you, threatened you, forced sexual contact, or tried to control your life?”
  • 21. HIV Partner Services (Partner Counseling and Referral Services) • Assist persons living with HIV with telling their partner(s) about possible exposure • Provide partners with access to testing and other prevention services • Voluntary and confidential • Services available through local health department 21
  • 22. How Do Patients Feel About Health Department Partner Services? Survey of persons w/recently reported HIV • 84% agreed (somewhat/strongly) health department should routinely offer everyone diagnosed with HIV help in notifying partners • 20% would want help in notifying at least one partner from last 6 months Golden et.al. JAIDS 32: 196-202 2003 22
  • 23. Delivering a Positive Result • State result in a direct, neutral tone, and wait for patient’s response - Provide for immediate needs • Address individual needs and concerns - Sources of emotional support - Information about HIV infection and medical care - Information about transmission and partner notification • Make a short-term plan - Link to needed services - Ask what’s most important to do first - “Close the session, but not the door” 23
  • 24. Link to Needed Services • Review patients options for medical care • Provide specific written referrals • Limit referrals to one or two • Encourage follow through • Appropriate referrals may include - Drug treatment facilities - Mental Health - Social Services
  • 25. Ask What’s Most Important to do First • Work with your patient to make a plan for the next few hours or days “We’ve talked about a lot, what’s most important for you to deal with first?” “What do you plan to do today when you leave here?”
  • 26. Close the Session, But Not the Door • “Warm handoff” is the standard of care “It’s important to take this one step at a time. I’ll call you tomorrow to see how it’s going.” “You may think of other questions after you leave today. Feel free to call me or come back.” 26

Notas do Editor

  1. What is the window period?What is an example of a situation in which you would advise someone to be re-tested?What can you do to stay negative?