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Patient Autonomy and Advance Directive

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Patient Autonomy and Advance Directive

  1. 1. Empowerment objective - for laypeople to have an understanding of PATIENT AUTONOMY AND ADVANCE HEALTH CARE DIRECTIVE as Rights in Patient Empowerment. Patient Autonomy and Advance Directive
  2. 2. Empowerment objective - for laypeople to have an understanding of PATIENT AUTONOMY AND ADVANCE HEALTH CARE DIRECTIVE as Rights in Patient Empowerment. Patient Autonomy and Advance Directive I have a Patient Empowerment Program in which I like to empower the lay people or patients to take control in the management of their health.
  3. 3. I launched this PEP TALK on May 15, 2021 with MODULE on COVID19. 2nd Module: PATIENT EMPOWERMENT 3rd Module: PATIENT MANAGEMENT PROCESS 4th Module RIGHTS IN PATIENT EMPOWERMENT Patient Autonomy and Advance Directive Empowerment objective - for laypeople to have an understanding of PATIENT AUTONOMY AND ADVANCE HEALTH CARE DIRECTIVE as Rights in Patient Empowerment.
  4. 4. Patient Autonomy and Advance Directive Empowerment objective - for laypeople to have an understanding of PATIENT AUTONOMY AND ADVANCE HEALTH CARE DIRECTIVE as Rights in Patient Empowerment. What I have in mind in my PEP TALK which may run for 3 years is to empower at least 30 persons, with my family members and my patients as a priority. This is my key performance indicator. I hope you will be in my group of 30.
  5. 5. Patient Autonomy and Advance Directive Empowerment objective - for laypeople to have an understanding of PATIENT AUTONOMY AND ADVANCE HEALTH CARE DIRECTIVE as Rights in Patient Empowerment. 4th Module RIGHTS IN PATIENT EMPOWERMENT 2 Parts • Basic Rights • Patient Autonomy and Advance Directive
  6. 6. Patient Autonomy and Advance Directive Empowerment objective - for laypeople to have an understanding of PATIENT AUTONOMY AND ADVANCE HEALTH CARE DIRECTIVE as Rights in Patient Empowerment. My PEP TALK today is entitled: Patient Autonomy and Advance Directive.
  7. 7. Patient Autonomy and Advance Directive The foremost right in patient empowerment is PATIENT AUTONOMY.
  8. 8. Patient Autonomy and Advance Directive Patient autonomy is defined as the right of all competent adults to make informed decisions about their health and medical care.
  9. 9. Patient Autonomy and Advance Directive Patient autonomy is one of the principal ethical principles established in the medical world and being respected by all physicians. Patient autonomy is also embodied in the bill of human rights, specifically on the right to health.
  10. 10. Patient Autonomy and Advance Directive Right to health means the states or countries have the legal obligation to promote the health of their citizens. And under the right to health, there are 2 components: freedom and entitlement. The freedom component has emphatically stressed the rights of every citizen to control one’s health and body. Thus, patient autonomy is embodied in this freedom component of right to health.
  11. 11. Patient Autonomy and Advance Directive So, everybody, physicians or health care providers and even relatives included, should respect patient autonomy with regards to decisions on health.
  12. 12. Patient Autonomy and Advance Directive In medical practice, the principle of PATIENT AUTONOMY underlies the requirement to seek the consent or informed agreement of the patient before any investigation or treatment takes place.
  13. 13. Patient Autonomy and Advance Directive However, this principle comes into prominence when hard decisions involving patient autonomy have to be made in the care of the terminally-ill patients. The advance health care directive will demonstrate the application of patient autonomy.
  14. 14. Patient Autonomy and Advance Directive There are 2 keywords or phrases in the definition of patient autonomy: “competent adults” and “informed decisions.” “Competent adults” means conscious, coherent and discerning adults. “Informed decisions” means a permission or no permission is granted by the competent adults after proper understanding of the purpose; options with benefit, risk, cost and availability data analysis; and consequences of procedures to be undertaken. These 2 components or requirements must be fulfilled for patient autonomy to be ethically and legally binding.
  15. 15. Patient Autonomy and Advance Directive So, after being advised properly and adequately, after studying more data and information by himself if needed and after introspection, a patient can end up with a decision of either informed consent or informed refusal.
  16. 16. Patient Autonomy and Advance Directive Whatever be his decision, because of his right to patient autonomy, this should be respected as long as there is nothing illegal in the court of law of the land where he is residing.
  17. 17. Patient Autonomy and Advance Directive Patient autonomy should be respected in whatever settings such as when being managed by a physician; when being managed by relatives; and when doing self-management.
  18. 18. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive
  19. 19. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive An advance health care directive is patient autonomy in action or in operation.
  20. 20. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive An advance health care directive or living will is an advance health care planning in which the author or person who makes this explains how he wants medical decisions to be made in case he cannot make decisions already.
  21. 21. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive By setting the contents of an advance health care directive, the author is exercising his right of patient autonomy as what are usually placed in the directive are what medical measures he will allow to done and what he does not want to be done to his body.
  22. 22. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive By the way, a last will as differentiated from a living will is a document in which the author or person who makes this determines what and how he wants done with his property and other material things after he passes away.
  23. 23. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive Advance health care planning is not just about old age. At any age, a medical crisis could leave a person too ill to make his own health care decisions. Advance health care planning can be and should be done in any adult age.
  24. 24. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive Advance health care planning is not yet very popular yet in the Philippines compared to other countries. If there are people making it, they are usually done by terminally-ill patients who have accepted their status and who want to prepare well for the eventuality, not only for themselves but also for the family.
  25. 25. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive It is advisable, though, for all competent adults to have an advance health care directive as part of the patient empowerment program (to gain greater control over decision and actions on their health).
  26. 26. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive ADVISABLE! As mentioned, at any adult age. It does not have to be old age or at the time when one is suffering from an incurable disease. An advance health care directive is also included in an intentional living plan of a person who plans out his life properly.
  27. 27. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive To repeat, an advance health care directive is a document that spells out some medical decisions and actions that the author wants done and not to be done to his body in case he cannot make decisions anymore.
  28. 28. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive The document can be notarized or not. What is most important is there is a concrete document that is known to be made, dated and regularly updated by the competent-adult author and its contents are known to and accepted by immediate relatives and significant others.
  29. 29. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive This document serves as a guide to the immediate relatives and significant others when the time comes to implement the contents as well as to the health care professionals who may eventually be called to manage him.
  30. 30. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive
  31. 31. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive ADVANCE HEALTHCARE DIRECTIVE on How I Want To Be Treated MEDICALLY, When I am Near End-of-life, When I have a Terminal Illness, and When I Am Bedridden I, Reynaldo O. Joson, residing at XXXXXXXXXX Makati City, being of sound mind, willfully and voluntarily make this ADVANCE HEALTHCARE DIRECTIVE:
  32. 32. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive (1) If the situation occurs that I am in a VEGETATIVE STATE or COMA from an INCURABLE disease process or injury (as determined by two physicians approved by my wife [AAAAAAAAAA] or in her absence, either my son [BBBBBBBBBBBB] or my daughter [CCCCCCCCCC]), I desire and direct that ALL LIFE-SUSTAINING PROCEDURES AND MEANS BE WITHHELD OR WITHDRAWN, including assisted respiratory ventilation, artificially administered fluids or nutrition (intravenous, gastric, jejunal, or other tube feedings), and blood transfusion and that I be permitted to die naturally.
  33. 33. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive (2) If I should develop severe mental impairment to the degree that I am TOTALLY UNABLE TO PERFORM ACTIVITIES OF DAILY LIVING OR AT LEAST TO RECOGNIZE AND MEANINGFULLY COMMUNICATE WITH MY FAMILY AND OTHERS (as determined by two physicians approved by my wife [AAAAAAAAAA] or in her absence, either my son [BBBBBBBBBBBB] or my daughter [CCCCCCCCCC]), I DO NOT WANT INTENSIVE OR PROLONGED HOSPITALIZATIONS, MAJOR SURGERY, ARTIFICIALLY ADMINISTERED FLUIDS OR NUTRITION (INTRAVENOUS, GASTRIC, JEJUNAL, OR OTHER TUBE FEEDINGS), BLOOD TRANSFUSIONS, OR ASSISTED VENTILATION.
  34. 34. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive (3) If the circumstance occurs that I am in a state of near-death, but a good possibility exists (more than 50% probability) of recovery to a purposeful situation (such as my being able to write or otherwise communicate helpful thoughts and information to my family and others), then I do not restrict my physicians from exercising their skills with prudence, wisdom, and restraint.
  35. 35. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive However, I do not desire extreme measures such as a transplant, extensive and complicated surgery, chemotherapy, radiotherapy, dialysis, etc. And, if the state of near-death is part of a terminal cancer or other progressively incurable disease process or injury, then I desire that MEASURES BE DIRECTED AT COMFORT, RATHER THAN TO DELAY THE MOMENT OF DEATH.
  36. 36. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive (4) Furthermore, if I am in a vegetative state or coma from an incurable disease process or injury, or in a state of near- death with a progressively incurable disease or injury, or if I have developed severe mental impairment to the degree that I am totally unable to perform activities of daily living or at least to recognize and meaningfully communicate with my family and others (as determined by two physicians approved by my wife [AAAAAAAAAA] or in her absence, either my son [BBBBBBBBBBBB] or my daughter [CCCCCCCCCC]), and IF MY HEART OR LUNGS CEASE TO FUNCTION, I DO NOT WANT TO BE BROUGHT BACK TO LIFE WITH MEDICATIONS OR WITH ELECTRICAL OR MECHANICAL RESUSCITATION OR VENTILATION, OR EVEN WITH ORDINARY CARDIOPULMONARY RESUSCITATION.
  37. 37. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive (5) In any of the above circumstances, it is MY DESIRE TO BE MADE COMFORTABLE WITH MEDICATIONS THAT ARE USED TO CONTROL PAIN, knowing that such medications may unintentionally hasten death. However, medications should not be used with the intention of causing death.
  38. 38. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive (6) It is my desire that the COSTS OF MY TERMINAL CARE BE KEPT TO A MINIMUM, inclusive of diagnostics and treatment and also place of care (MINIMALIST MANAGEMENT). Diagnosis shall be mainly CLINICAL, based on symptoms and signs. Unless there are compelling reasons to the contrary, I would PREFER TO SPEND MY LAST DAYS AT HOME RATHER THAN IN A HOSPITAL OR OTHER EXPENSIVE MEDICAL FACILITY – unless being at home would be an unreasonable burden on my family.
  39. 39. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive This ADVANCE HEALTHCARE DIRECTIVE shall be accompanied by implementing guidelines and instructions which I shall be read and followed by all concerned.
  40. 40. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive I am legally competent to make this ADVANCE HEALTHCARE DIRECTIVE, and I understand its full import. My wife [AAAAAAAAAA] or in her absence, either my son [BBBBBBBBBBBB] or my daughter [CCCCCCCCCC] shall enforce this ADVANCE HEALTHCARE DIRECTIVE. Witness my hand, this 20th day of January 2021. Signature
  41. 41. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive Implementing Guidelines and Instructions I, Reynaldo O. Joson, am a mortal human being who may get sick anytime of whatever cause. In the event that I became unconscious and cannot make any decision regarding treatment to be instituted on my body, here are the guidelines that I am leaving for my immediate family members, my brothers and sisters, and my attending physicians to follow:
  42. 42. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive Implementing Guidelines and Instructions 1.For diagnosis of my health problem, rely heavily on clinical parameters and include observation. 2.Do paraclinical diagnostic procedures only when the results will significantly affect the plan of treatment. 3.Try to save me only when my chances of recovery without disability, note without disability, are more than 50%.
  43. 43. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive Implementing Guidelines and Instructions 4.No heroic measures when my chances of recovery from my disease are less than 50%. • No respirator. • No nasogastric tube. • No tracheostomy. • No gastrostomy. • No urinary catheter • No intravenous fluid. • No blood transfusion. Keep me in a private room until I expire.
  44. 44. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive Implementing Guidelines and Instructions 5.No heroic measures if I have the following diseases or conditions: Cancer Cerebrovascular accident
  45. 45. Patient Autonomy and Advance Directive An example of advance health care directive - ROJoson Advance Health Care Directive - which I formulated in 2006 (when I was 57 years old) and have been reviewing and updating up to now (2021 - 72 years old) - which I have made known to my wife and 2 children. ROJoson Advance Health Care Directive Implementing Guidelines and Instructions 6.Do not hurt me unnecessarily when my chances of complete recovery are small. Let me die as peacefully as you can afford me. 7.Keep costs of my terminal care to a minimum possible inclusive of diagnostics and treatment and also place of care.
  46. 46. Patient Autonomy and Advance Directive As mentioned, advance health care planning is not yet very popular in the Philippines. However, what is becoming more and more popular now is something akin to the advance health care directives in persons who are seriously or terminally ill. The issue of withholding and withdrawing life-sustaining orders in these seriously or terminally-ill patients often crop up in the last minute. Advance Directive and DNR
  47. 47. Patient Autonomy and Advance Directive In this day and age, most, if not all hospitals in the Philippines already have a readied proforma form commonly called DNR Order or Form with DNR denoting Do Not Resuscitate. Advance Directive and DNR In this day and age, most, if not all hospitals in the Philippines already have a readied proforma form commonly called DNR Order or Form with DNR denoting Do Not Resuscitate.
  48. 48. Patient Autonomy and Advance Directive The DNR orders should originate from the patients and significant others. They may arise after discussion with the physicians. Advance Directive and DNR
  49. 49. Patient Autonomy and Advance Directive The attending physicians of these seriously or terminally-ill patients can make the formal medical orders only upon instructions from the patients and significant others. Advance Directive and DNR
  50. 50. Patient Autonomy and Advance Directive Patients and significant others should tell their attending physicians way before how they want to be treated when they are seriously or terminally ill in terms of withholding and withdrawing life-sustaining treatment which may be futile and which may affect their quality and dignity of life. If they don’t tell their attending physicians beforehand, the latter will order all possible life- sustaining treatment despite the odds. Advance Directive and DNR
  51. 51. Patient Autonomy and Advance Directive The following have to be decided by the patients and significant others (through an advance directive or DNR order): withhold – not to be done; withdraw – to remove after being done Advance Directive and DNR
  52. 52. Patient Autonomy and Advance Directive •Whether to do resuscitation or not. •whether to do defibrillation or not. •Whether to do intubation or not. •Whether to do mechanical ventilation or not. •Whether to do dialysis or not. Advance Directive and DNR
  53. 53. Patient Autonomy and Advance Directive •Whether to do nasogastric tube insertion or not. •Whether to do gastrostomy or enterostomy or not. •Whether to have artificial hydration or not. •Whether to have artificial nutrition or not. •Whether to have medications or not. Advance Directive and DNR
  54. 54. Patient Autonomy and Advance Directive •Whether to have diagnostic procedures or not. •Whether to have operative procedures or not. • Others Advance Directive and DNR
  55. 55. Patient Autonomy and Advance Directive The patients and significant others can specify what to withhold and what and when to withdraw. Advance Directive and DNR
  56. 56. Patient Autonomy and Advance Directive All of the above instructions from the patients and significant others should be written and signed (and witnessed) in a document or form. Advance Directive and DNR
  57. 57. Patient Autonomy and Advance Directive After giving the initial instructions, the patients and significant orders can change or revoke them anytime they wish. However, these new instructions should also be written and signed (and witnessed) in a document or form. Advance Directive and DNR
  58. 58. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive This document serves as a guide to the immediate relatives and significant others when the time comes to implement the contents as well as to the health care professionals who may eventually be called to manage him.
  59. 59. Patient Autonomy and Advance Directive Advance Health Care Directive or Advance Directive This document serves as a guide to the immediate relatives and significant others when the time comes to implement the contents as well as to the health care professionals who may eventually be called to manage him. I am ______, a cancer patient. Should I be brought to the hospital during emergency or my last breath, please do no intubate and do not resuscitate. Thank you. Signed Date: PS. I just need the oxygen.
  60. 60. Patient Autonomy and Advance Directive So, there you are – the PATIENT AUTONOMY AND ADVANCE HEALTH CARE DIRECTIVE as rights in patient empowerment. • Maximize your knowledge (KAALAMAN) on these rights. • Maximize your capability (KAKAYANAN) in seeking for and implementing these rights. • Lastly, maximize your self-determination (KAPANGYARIHAN) in using the rights in gaining greater control over decisions and actions affecting your health. Conclusion Take Away
  61. 61. Empowerment objective - for laypeople to have an understanding of PATIENT AUTONOMY AND ADVANCE HEALTH CARE DIRECTIVE as Rights in Patient Empowerment. Patient Autonomy and Advance Directive

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