Ethical Issues in Social Media in Health

1. 11 Ethical Issues in Social Media & Privacy in Health Nawanan Theera-Ampornpunt, MD, PhD Department of Community Medicine Faculty of Medicine Ramathibodi Hospital Mahidol University SlideShare.net/Nawanan nawanan.the@mahidol.ac.th September 28, 2016

2. 22 The Age of User-Generated Content Time’s Person of the Year 2006: You

3. 33 Thailand Internet User Profile (2016) • Electronic Transactions Development Agency (Public Organization) https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html

4. 44 Source: ETDA (2016) Thailand Internet User Profile (2016) https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html

9. 99 Let’s look at some social media case studies...

10. 1010 Social Media Case Study #1 Disclaimer: Presented for Academic Discussions Only

12. 1212 http://news.mthai.com/hot-news/world-news/453842.html Social Media Case Study #2

13. 1313 http://pantip.com/topic/33678081 https://www.facebook.com/photo.php?fbid=971229119583658&set=a.37957656541558 6.90794.100000897364762&type=1&theater Social Media Case Study #3

14. 1414 http://www.matichon.co.th/news_detail.php?newsid=1429341430 Social Media Case Study #4

16. 1616 http://manager.co.th/Entertainment/View News.aspx?NewsID=9580000076405 Social Media Case Study #6

17. 1717 Social Media Case Study #7 Real Message on • "อาจารย์ครับ เมื่อวาน ผมออก OPD เจอ คุณ... คนไข้... ที่อาจารย์ผ่าไป แล้ว มา ฉายรังสีต่อที่... ตอนนี้ Happy ดี ไม่ค่อยปวด เดินได้สบาย คนไข้ ฝากขอบคุณอาจารย์อีกครั้ง -- อีกอย่างคนไข้ช่วงนี้ไม่ค่อยสะดวกเลยไม่ได้ ไป กทม. บอกว่าถ้าพร้อมจะไป Follow-up กับอาจารย์ครับ"

18. 1818 Social Media Case Study #8

20. 2020 Social Media Case Study #10 Source: Facebook Page โหดสัส V2 อ้างอิงภาพจากหน้า 7 นสพ.ไทยรัฐ วันที่ 6 พ.ค. 2557 และ http://www.reuters.com/article/2013/10/16/us-philippines-quake-idUSBRE99E01R20131016

21. 2121 From a forwarded message in “LINE” in early July, 2015 Social Media Case Study #11: Online Consultation

22. 2222 Social Media Case Study #12: Hoaxes - PR Nightmare & Response http://new.khaosod.co.th.khaosod.online/dek3/win.html (อันตราย! ไม่ควรเข้าเว็บนี้)

23. 2323 Social Media Case Study #12: Hoaxes - PR Nightmare & Response

24. 2424 http://www.thairath.co.th/content/413776 Social Media Best Practice Resources

25. 2525 http://www.doctorcpr.com/blog/5-things- doctors-should-never-post-on-social- media/ Social Media Best Practice Resources

26. 2626 Risks of Social Media • Blurring lines between personal & professional lives • Work-life balance • Inappropriate & unprofessional conduct • False/misleading information • Limitations & liability of online consultations • Privacy risks

27. 2727 How Line Chats Can Violate Patient’s Privacy? • Multiple viewers in a Line group • Ability to capture screens or forward • Posts in the wrong groups • Cached data • Unencrypted transmission (latest news: encrypted) • Admin access to data in Line’s server • Password Discovery

28. 2828 Social Media Case Study #13 http://sport.sanook.com/84101/น้องก้อย-โค้ชเช-จบยาก-อ.พิทักษ์-ขุดไลน์ปริศนาให้นักข่าวเผยแพร่/

29. 2929 Since social media come with risks • Should people stop using it? • Should CIO ban its use by employees?

30. 3030 Maslow's Hierarchy of Needs Image Source: http://en.wikipedia.org/wiki/Maslow's_hierarchy_of_needs

31. 3131 Why People Use Social Media? • To seek & to share information/knowledge • To seek & to share valued opinion • To seek & to give friendship/relationship • To seek & to give mental support, respect, love, acceptance • In simplest terms: To “socialize”

32. 3232 Some Social Media in Healthcare: PatientsLikeMe PatientsLikeMe.com

33. 3333 Some Social Media in Healthcare: CaringBridge CaringBridge.org

34. 3434 Why People Use Social Media in Healthcare? • To seek & to share health information/knowledge – Information asymmetry in healthcare – Information could be general or personalized • To seek & to share health-related valued opinion • To seek & to give friendship/relationship • To seek & to give mental support, respect, love, acceptance during medical journeys • To consult/socialize/give support among colleagues

35. 3535 • Richard Davies deBronkart Jr. • Cancer survivor & blogger • Found proper cancer treatment through online social network after diagnosis • Activist for participatory medicine & patient engagement through information technology Meet E-Patient Dave http://www.epatientdave.com/

36. 3636 • Not “Electronic” Patient • Engaged • Equipped • Empowered • Educated • Enlightened • Etc. Dave’s E-Patient Definition From Dr. Danny Sands’ tutorial presentation at AMIA2013

37. 3737 So... How should we use social media in healthcare as health professionals?

38. 3838 • Technical solutions – Restrict use of social media – Secure platform – “Secure messaging” applications • Management solutions – Organizational social media policy & enforcement – User awareness training – Organizational culture & best practices Solutions for Proper Social Media Use in Healthcare

39. 3939 Organizational Policy on Social Media

40. 4040 Social Media Guidelines for Health Practitioners Drafting Project For National Health Commission Nawanan Theera-Ampornpunt

41. 4141 • Continuous Professionalism • Pausing Before Posting • Professional Online Behaviors • Privacy Settings and Separating Personal and Professional Information • Professional Boundaries with Patients and Others • Respecting Privacy Social Media Guidelines for Health Practitioners

42. 4242 • Non-Advertising • Full Disclosure • Self-Identification • Avoiding Misrepresentation • Fact Checking before Sharing • Cautious Practice for Online Consultation Social Media Guidelines for Health Practitioners

Ethical Issues in Social Media in Health

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