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Latest news from the world of children's palliative care mar 2014

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Latest news from the world of children's palliative care


Vision, Mission & Aims
ICPCN’s Vision

To live in a world where children’s palliative care is acknowledged and respected as a unique service, and every child and young person with life-limiting or life-threatening conditions and their families can receive the best quality of life and care regardless of which country they live in. The International Children’s Palliative Care Network (ICPCN) shares a vision that the total need of life-threatened or life-limited children should be met to encompass physical, emotional, spiritual and developmental aspects of care.

ICPCN’s Mission

Our mission is to achieve the best quality of life and care for children and young people with life-limiting conditions, their families and carers worldwide, by raising awareness of children’s palliative care, lobbying for the global development of children’s palliative care services, and sharing expertise, skills and knowledge.

ICPCN’s Aims

To help services across the world to develop and meet the total care and support needs of life-limited children and their families.
To advocate and raise awareness of children’s palliative care and the specific needs of life-limited or life-threatened children and their families.
To develop a strong ICPCN membership from children’s palliative care services across the globe.
To facilitate communication and sharing of resources, information and research worldwide, and to provide a ‘one stop shop’ for information relating to children’s palliative care.
To campaign for the global development of children’s palliative care services.
To enable the sharing of expertise and information between children’s palliative care practitioners.
To increase the international evidence base for children’s palliative care.
To maximise ICPCN’s resources by developing its fundraising activities in order to discharge its mission.

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Latest news from the world of children's palliative care mar 2014

  1. 1. EAPC Report published on core competencies in education on PPC With the support of the Maruzza Foundation, the European Association for Palliative Care (EAPC) has published a document outlining core competencies for education in children’s palliative care.An important document has been published and is now available for download which provides a guide to core competencies for education in children’s palliative care. The report was compiled by the EAPC’s Children’s Palliative Care Education Task Force. The writing of the report was supported by the Fondazione Maruzza Lefebvre D’Ovidio Onlus (The Maruzza Foundation) an independent non‐profit organization based in Rome, Italy, that advocates globally for effective and sustainable palliative care and pain management for all those in need. Read more A good reason to be in Rome this November The 2nd Congress on Paediatric Palliative Care – A Global Gathering, is set to take place in Rome, Italy from 19 – 21 November 2014. Abstract submission deadline is 15 June. The goal of the 2nd Congress on Paediatric Palliative Care is to engage with professionals working with critically ill children worldwide by providing an international forum for interdisciplinary knowledge sharing where experiences, current topics and new perspectives on key issues regarding palliative care for children and their families can be debated, compared and discussed. Abstracts should focus on work that introduces new ideas and/or concepts; new research findings and advances to the field of Paediatric Palliative Care, as well as analysis of both success and failure. Read more Support the ICPCN Mumbai Declaration 2014 The ICPCN Mumbai Declaration reads: We believe that all children (neonates, children and young people) have the right to the best quality of life. When they have life-limiting conditions they have the right to high quality palliative care to meet their needs. We believe that euthanasia is not part of children’s palliative care and is not an alternative http://www.icpcn.org/
  2. 2. to palliative care. It is imperative that we work together to improve access to children’s palliative care around the world, including ensuring access to appropriate pain and symptom control. We call on all governments to transform children’s lives through the development of children’s palliative care, and in particular we urge the Belgian government to reconsider their recent decision to allow euthanasia of children. This includes: 1. Access to children’s palliative care within the children’s health care system 2. Access to appropriate pain and symptom management (including medications) for all children 3. Supporting children and their families to be able to live their lives to the best of their ability for as long as possible. Support the declaration Do you get the feeling you are missing out? Sign up for weekly ehospice alerts. Did you know that there is an International Children's edition of ehospice? Stories, articles, up-to-the-minute news and reviews about what is happening in the international world of children's palliative care are regularly uploaded to the ehospice site. Click hereto keep one step ahead by signing up to receive daily or weekly alerts. Contributions to the children's edition of ehospice in the form of articles, book reviews, opinion pieces and general news are welcomed. To contribute, please contact the editor oninfo@icpcn.co.za Extended abstract deadline for 3rd International Children's Hospice Congress to be held in Pécs, Hungary The ‘Touching rainbows’ 3rd International Children’s hospice Congress will be held in Pécs, Hungary with the support of the International Children’s Palliative Care Network
  3. 3. (ICPCN) and the Light of My Eyes Foundation. The broad theme of the congress is pain management of incurably ill children and young adults. The deadline for abstracts has been extended to 31 March 2014. Read more | Copyright © 2014 ICPCN, All rights reserved. Our mailing address is: Cluster Box 3050 Assagay 3624 South Africa Contact the editor on: info@icpcn.co.za unsubscribe from this list | update subscription preferences