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Introduction
According to the Autism Society
website
 In December 2009, the Centers for Disease Control
 and Prevention issued their ADDM autism prevalence
 report. The report concluded that the prevalence of
 autism had risen to 1 in every 110 births in the United
 States and almost 1 in 70 boys. The issuance of this
 report caused a media uproar, but the news was not a
 surprise to the Autism Society or to the 1.5 million
 Americans living with the effects of autism spectrum
 disorder.
Costs
 Currently, the Autism Society estimates that the
 lifetime cost of caring for a child with autism ranges
 from $3.5 million to $5 million, and that the United
 States is facing almost $90 billion annually in costs for
 autism (this figure includes research, insurance costs
 and non-covered expenses, Medicaid waivers for
 autism, educational
 spending, housing, transportation, employment, in
 addition to related therapeutic services and caregiver
 costs).
 The diagnostic category of pervasive
                  developmental disorders (PDD) refers to a
                  group of disorders characterized by delays
                  in the development of socialization and
                  communication skills. Parents may note
                  symptoms as early as infancy, although the
                  typical age of onset is before 3 years of age.
                  Symptoms may include problems with using
                  and understanding language; difficulty
                  relating to people, objects, and events;
                  unusual play with toys and other objects;
                  difficulty with changes in routine or familiar
                  surroundings, and repetitive body
                  movements or behavior patterns. Autism (a
                  developmental brain disorder characterized
                  by impaired social interaction and
                  communication skills, and a limited range of
                  activities and interests) is the most
                  characteristic and best studied PDD.
The DSM-IV-TR defines
Zero to Three Casebook Addition
    According to the 0-3 casebook there is a pdd listed for those 24 months and younger
    called Multi-System developmental disorder. A child with MSDD does not totally lack
    the ability to develop a social/emotional relationship with a primary caregiver but will
    have impairment in developing this relationship. The child may:
        1) avoid contact with caregivers, but will give slight cues that show attachment. These
children have difficulty forming, maintaining, and/or developing communication, including
preverbal gestures. For many toddlers with MSDD, language does not serve a communicative
     intent. They may memorize parts of songs or dialogue but they do not use speech to
                                           communicate.
                    2)A child with MSDD may have major difficulty processing
   visual, auditory, tactile, proprioceptive (spatial awareness of one’s body), and vestibular
      sensations. Most have poor motor planning—they lack the ability to sequence their
movements to create a desired outcome—and may appear very clumsy when learning a new
                                               skill.
      3) Infants and toddlers diagnosed with MSDD also show impairments in processing
sensations. For example, they may be extremely sensitive to touch (startling or even having a
  tantrum when touched lightly), or they may show great pleasure in heavy pressure (being
                 sat on or wedging themselves in small spaces behind furniture).
 4)Get an interactive brain map which provides information on brain development of young
                                             children.
People who have Aspergers say its like being locked in a shell with
little ability to communicate with the outside world. Its hard to
stay involved with your world.



http://www.youtube.com/watch?v=OV_CcmLlaw4&feature=relate
d
Types of PDD
 Autistic Disorder central feature is the markedly abnormal or impaired development in
  social interaction and communication and a restricted repertoire of activity and interest.
 Asperger's disorder-Severe or sustained impairment in social interaction and the
  significant development of restrictive patterns of behavior, interest and activity. The
  difference is that there was no clinically significant delays in Language or cognitive
  development. No delays in the development of age-appropriate self-help skills, adaptive
  behavior and curiosity about the environment.
 Rett's Syndrome is the development of multiple specific deficits following a period of
  normal functioning after birth. A loss of previously acquired purposeful hand skills
  before the development of a characteristic resembling hand wringing or hand washing.
  The interest in the social environment diminishes in the first several years after the onset
  of the disorder. Significant impairment in expressive and receptive language
  development with severe psychomotor retardation.
 Childhood Disintegrative Disorder is a marked regression in multiple areas of
  functioning following two years of apparently normal behavior development. A clinically
  significant loss in at least two areas ; expressive or receptive language; social skills or
  adaptive behavior; bowel or bladder control; or play and motor skills. They also display
  characteristics of Autistic disorder.
 PDD- NOS is used when the criteria has not been met in the descriptors above because of
  a typical symptomatology.
What impediments are there
during childhood

   Difficulty with        Sometimes children      These children have a
understanding verbal      have odd behaviors         low frustration
and non-verbal social     which aren’t readily     tolerance and may
    interactions           accepted by peers          strike others



             Motor skills may not
                                       Could to be both a
             be like their peers –
                                       bully and a victim.
             lack interest in play
To Improve Social Skill
Currently, some school uses the Step 2
Social skills training program for children with different levels of
social skill attainment[i.e.Asperger's Syndrome].
One common theme is accessing peer interactions to model the
things learned in training when using this Step 2 program.
Children without these impediments could benefit from increasing
their skills in handling interactions with others.
A recurrent theme in research is to increase social and conflict
resolution skills as a mechanism to decrease bullying behavior and
change the learning environment.
In one instance a psychologist developed a way for nuero-typical
kids helped those with Aspergers learn to interact with peers and
develop a freindships with others. Thereby decreases the level of
bullying by others.
Communication
2) verbal and nonverbal communication
 By age 3, most children have passed predictable milestones on the path to
  learning language; one of the earliest is babbling. By the first birthday, a typical
  toddler says words, turns when he hears his name, points when he wants a
  toy, and when offered something distasteful, makes it clear that the answer is
  “no.”
 Some children diagnosed with ASD remain mute throughout their lives. Some
  infants who later show signs of ASD coo and babble during the first few
  months of life, but they soon stop. Others may be delayed, developing
  language as late as age 5 to 9. Some children may learn to use communication
  systems such as pictures or sign language.
 Those who do speak often use language in unusual ways. They seem unable to
  combine words into meaningful sentences. Some speak only single
  words, while others repeat the same phrase over and over softly. Some ASD
  children parrot what they hear, a condition called echolalia. Although many
  children with no ASD go through a stage where they repeat what they hear, it
  normally passes by the time they are 3.
Repetitive Behavior
 3) They will often have unusual responses to sensory experiences, such as
  certain sounds or the way objects look. Each of these symptoms can range
  from mild to severe. Although children with ASD usually appear physically
  normal and have good muscle control, odd repetitive motions may set them off
  from other children. These behaviors might be extreme and highly apparent or
  more subtle. Some children and older individuals spend a lot of time
  repeatedly flapping their arms or walking on their toes. Some suddenly freeze
  in position.
 As children, they might spend hours lining up their cars and trains in a certain
  way, rather than using them for pretend play. If someone accidentally moves
  one of the toys, the child may be tremendously upset. ASD children need, and
  demand, absolute consistency in their environment. A slight change in any
  routine—in mealtimes, dressing, taking a bath, going to school at a certain
  time and by the same route—can be extremely disturbing. Perhaps order and
  sameness lend some stability in a world of confusion.
 Repetitive behavior sometimes takes the form of a persistent, intense
  preoccupation. For example, the child might be obsessed with learning all
  about vacuum cleaners, train schedules, or lighthouses. Often there is great
  interest in numbers, symbols, or science topics.
There is no known cure for PDD. Medications are used to
address specific behavioral problems; therapy for children
 with PDD should be specialized according to need. Some
children with PDD benefit from specialized classrooms in
 which the class size is small and instruction is given on a
one-to-one basis. Others function well in standard special
       education classes or regular classes with additional
                                                    support.
Some children need therapy for
depression symptoms
 Use medication to assist with depression symptoms.
 Seek therapy where CBT can be used to restructure
 thought patterns. Learn to see how thoughts impact
 experiences. Provide direction as to how to deal with
 the depression and changes that could improve
 symptoms and dealing with change.
Some of the treatment programs
   Applied Behavior Analysis (ABA)
   ABA is a broad set of principles and guidelines that is often used as a framework for treating
    autism. ABA is a one-on-one, intensive, structured teaching program based on the ideas of behavior
    modification and involving reinforced practice of different skills. You may also hear it called Discrete
    Trial Therapy (or DTT). Other terms associated with ABA are: functional communication
    training, incidental teaching, script/script fading, self-management, shaping, behavior
    chaining, errorless learning, functional assessment, reinforcement systems and activity schedules.
    Each word in the name “Applied Behavior Analysis” is important:
   “Applied” means that you are trying cause positive change in socially significant behaviors.
   “Behavior” changes over time are observed and measured.
   “Analysis” refers to the way the evidence is collected and evaluated to show how an intervention
    caused a behavior change.
   Lovaas Therapy
   The Lovaas Model of Applied Behavior Analysis is a specific ABA treatment method developed by Ivar
    Lovaas. For more information, visit his website.
   Developmental, Individual-Difference, Relationship-Based (DIR) Therapy : DIR—also called Floor
    time or the Greenspan Method—is based more on relationships than behavior modification. The
    Interdisciplinary Council on Developmental and Learning Disorders (founded by Stanley Greenspan)
    has information about the DIR/Floor time model. You can also visit The Floortime Foundation to
    learn more.
   Augmentative and Alternative Communication (AAC)-This augmentative communication glossary
    will help you learn the terms. AAC can use strategies like the Picture Exchange Communication
    System (PECS) and sign language.
Unconventional therapies
 Auditory Integration therapy
   After 35+ years of clinical practice and study, Dr. Berard determined that, in many cases, distortions in
    hearing or auditory processing contribute to behavioral or learning disorders. In the large majority of
    Dr. Berard's cases, AIT significantly reduced some or many of the handicaps associated with autism
    spectrum disorders, central auditory processing disorders (CAPD),
   speech and language disorders, sensory issues including auditory, tactile or other sensory sensitivities
    (hyper or hypo), dyslexia, pervasive developmental disorder (PDD), attention deficit disorder with or
    without hyperactivity, anxiety, and depression.
   Berard Auditory Integration Training was designed to normalize hearing and the ways in which the
    brain processes auditory information. For example, an individual tests as hypersensitive to the
    frequencies of 1,000 and 8,000 Hertz while perception of all other frequencies falls within the normal
    range. The individual becomes over stimulated, disoriented or agitated in the presence of sounds at
    1,000 and 8,000 Hertz. Therefore, Berard AIT works to normalize the hearing response across all
    frequencies within the normal hearing range.
   In another example, an individual's hearing is asymmetrical (significantly different between the two
    ears). When the right and left ears perceive sounds in an extremely different way, problems with
    sound discrimination can occur. Again, Berard AIT works to normalize the hearing of both ears.
Unconventional Therapies Cont.
 Sensory integration therapy best if referred to Occupational therapy
   the child must be able to successfully meet the challenges that are presented through playful activities (Just Right
    Challenge);
   the child adapts her behavior with new and useful strategies in response to the challenges presented (Adaptive
    Response);
   the child will want to participate because the activities are fun (Active Engagement); and
   the child's preferences are used to initiate therapeutic experiences within the session (Child Directed).
   Suggestions for activities:
   swinging in a hammock (movement through space);
   dancing to music (sound);
   playing in boxes filled with beans (touch);
   crawling through tunnels (touch and movement through space);
   hitting swinging balls (eye-hand coordination);
   spinning on a chair (balance and vision); and
   balancing on a beam (balance

   Pasted from <http://autism.healingthresholds.com/therapy/sensory-integration
Observations or questions used to
identify traits
 1. Poor eye contact, or staring from unusual angle
 2. Ignores when called, pervasive ignoring, not turning head to voice
 3. Excessive fear of noises (vacuum cleaner); covers ears frequently
 4. In his/her own world (aloof)
 5. Lack of curiosity about the environment
 6. Facial expressions don't fit situations
 7. Inappropriate crying or laughing
 8. Temper tantrums, overreacting when not getting his/her way
 9. Ignores pain (bumps head accidentally without reacting)
10. Doesn't like to be touched or held (body, head)
 11. Hates crowds, difficulties in restaurants and supermarkets
 12. Inappropriately anxious, scared
 13. Inappropriate emotional response (not reaching to be picked up)
 14. Abnormal joy expression when seeing parents
 15. Lack of ability to imitate
Questions or Observations to
identify SOCIAL INTERACTION
DIFFICULTIES
1. Loss of acquired speech
2. Produces unusual noises or infantile squeals
3. Voice louder than required
 4. Frequent gibberish or jargon
 5. Difficulty understanding basic things ("just can't get it")
 6. Pulls parents around when wants something
 7. Difficulty expressing needs or desires, using gestures
8. No spontaneous initiation of speech and communication
9. Repeats heard words, parts of words or TV commercials
10. Repetitive language (same word or phrase over and over)
11. Can't sustain conversation
12. Monotonous speech, wrong pausing
13. Speaks same to kids, adults, objects (can't differentiated
14. Uses language inappropriately (wrong words or phrases
ABNORMAL SYMBOLIC OR
IMAGINARY PLAY / use as questions or observations
1. Hand or finer flapping; self stimulation
2. Head banging
3. Self mutilation, inflicting pain or injury
4. Toe walking, clumsy body posture
5. Arranging toys in rows
6. Smelling, banging, licking or other inappropriate use of toys
 7. Interest in toy parts, such as car wheels
8. Obsessed with objects or topics (trains, weather, numbers, dates)
9. Spinning objects, self, or fascination with spinning objects
10. Restricted interest, (watching the same video over and over
11. Difficulty stopping repetitive "boring" activity or conversation
12. Attachment to unusual objects, (sticks, stones, strings, or hair)
13. Stubborn about rituals and routines; resists to change
14. Restricted taste by consistency, shape or form (refuses solids)
15. Savant ability, restricted skill superior to age group (reads early, memorizes books)
Individuals who have Aspergers
and Employment
 Employment should take advantage of the individual's strengths and abilities.
  Temple Grandin, Ph.D., suggests, "jobs should have a well-defined goal or
  endpoint," and that your "boss must recognize your social limitations." In A
  Parent's Guide to Asperger Syndrome and High-Functioning Autism, the
  authors describe three employment possibilities: competitive, supported, and
  secure or sheltered.
 Competitive employment is the most independent, with no support offered in
  the work environment. Individuals with Asperger’s Syndrome may be
  successful in careers that require focus on details but have limited social
  interaction with colleagues such as computer sciences, research or library
  sciences. In supported employment, a system of supports allows individuals to
  have paid employment in the community, sometimes as part of a mobile
  crew, other times individually in a job developed for the person. In secure or
  sheltered employment, an individual is guaranteed a job in a facility-based
  setting. Individuals in secure settings generally also receive work skills and
  behavior training, while sheltered employment may not provide training that
  would allow for more independence. There is a 70% unemployment rate for
  individuals 20 yrs old or older.
Concerns with vocational concerns
 One way to engage the client in therapy is to provide structure.
  Individuals with Asperger‟s struggle with
  planning, organizing, and prioritizing; external structure can
  compensate for these weaknesses (Anderson & Morris, 2006). Be
  clear about details concerning where to wait, where to sit, the
  beginning and ending time of the session, etc. Set an agenda for
  each session, including appropriate topics of discussion (Ramsay
  et al., 2005). Be aware that the typical therapy hour may not be
  appropriate for this population. Clients may need shorter
  sessions because they are mentally exhausted due to the
  combined stressors of social interaction and CBT therapy.
  Conversely, clients may need longer sessions if they need extra
  time to process information or are particularly difficult to
  redirect from their restricted and repetitive interests (Anderson
  & Morris, 2006). In order to develop workable treatment goals
  that are relevant
Vocational Issues
Interview transcripts revealed four major themes identified by
people with Asperger’s concerning why they have difficulty
becoming successfully employed. The four themes are: 1) mastering
the job application process, 2) adapting to new job routines, 3)
communication, and 4) navigating social interactions with
employers and coworkers.
 The job coach should be able to help the client break down larger
tasks into smaller, more manageable parts, and to help the client
develop strategies to prioritize which tasks should be completed
first, act as a social “translator” between the client , must be able to
explicitly decode coworkers and supervisors‟ body language, voice
tone, and facial expressions for the individual with Asperger‟s .
http://youtu.be/XP3zE1P2-a0- is a video about teaching vocational
skills
Researchers can be found
 The NINDS conducts and supports research on
  developmental disabilities, including PDD. Much of
  this research focuses on understanding the
  neurological basis of PDD and on developing
  techniques to diagnose, treat, prevent, and ultimately
  cure this and similar disorders.
 NIH Patient Recruitment for Pervasive Developmental
  Disorders Clinical Trials
 At NIH Clinical Center
 There is an Autism research Institute
Websites
 info@horizonsdrc.com Horizons Developmental Remediation Center. Horizons
  Developmental Remediation Center has a reputation locally, nationally, and
  abroad for providing exceptional quality assessment and treatment to
  children, adolescents, and adults with autism, Asperger’s Syndrome, PDD-
  NOS, ADHD, and other neurodevelopmental disorders. Through the use of a
  comprehensive developmental and family-based approach, we develop
  individualized treatment plans to meet the needs of your child and family.
 www.grasp.org- This organization was started by a man who was diagnosed after his son
  was diagnosed. He has a lot of pertinent information
 .Parenting Aspergers,
  Information Online LLC,
  PO Box 789,
  Portsmouth,
  PO19DY,
  UK.
  Phone:
  0845 519 3412
  For the quickest response use our support desk
  http://parentingaspergers.zendesk.com/anonymous_requests/new
 www.fraser.org Provides information and services for individuals with PDD and Autism
  Spectrum Disorders.
Resources
   National Dissemination Center for Children with Disabilities
   U.S. Dept. of Education, Office of Special Education Programs
   1825 Connecticut Avenue NW, Suite 700
   Washington, DC 20009
   nichcy@aed.org
   http://www.nichcy.org
   Tel: 800-695-0285 202-884-8200
   Fax: 202-884-8441      National Institute of Mental Health (NIMH)
   National Institutes of Health, DHHS
   6001 Executive Blvd. Rm. 8184, MSC 9663
   Bethesda, MD 20892-9663
   nimhinfo@nih.gov
   http://www.nimh.nih.gov
   Tel: 301-443-4513/866-415-8051 301-443-8431 (TTY)
   Fax: 301-443-4279
   National Institute on Deafness and Other Communication Disorders Information Clearinghouse
   1 Communication Avenue
   Bethesda, MD 20892-3456
   nidcdinfo@nidcd.nih.gov
   http://www.nidcd.nih.gov
   Tel: 800-241-1044 800-241-1055 (TTD/TTY)       National Institute of Child Health and Human Information Resource Center
   P.O. Box 3006
   Rockville, MD 20847
   NICHDInformationResourceCenter@mail.nih.gov
   Tel: 800-370-2943 888-320-6942 (TTY)
Resources Cont.
   National Organization for Rare Disorders (NORD)
   P.O. Box 1968
   (55 Kenosia Avenue)
   Danbury, CT 06813-1968
   orphan@rarediseases.org
   http://www.rarediseases.org
   Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
   Fax: 203-798-2291     American Speech-Language-Hearing Association
    (ASHA)
   2200 Research Boulevard
   Rockville, MD 20850
   actioncenter@asha.org
   https://asha.org
   Tel: 800-638-8255
   Fax: 301-571-0457
Resources Cont.
   MAAP Services for Autism, Asperger Syndrome, and PDD
   P.O. Box 524
   Crown Point, IN 46307
   info@maapservices.org
   http://www.maapservices.org
   Tel: 219-662-1311
   Fax: 219-662-0638    Autism Network International (ANI)
   P.O. Box 35448
   Syracuse, NY 13235-5448
   jisincla@syr.edu
   http://www.ani.ac
   Autism Research Institute (ARI)
   4182 Adams Avenue
   San Diego, CA 92116
   director@autism.com
   http://www.autismresearchinstitute.com
   Tel: 866-366-3361
   Fax: 619-563-6840     Autism National Committee (AUTCOM)
   P.O. Box 429
   Forest Knolls, CA 94933
   http://www.autcom.org
References
 DSM-IV-TR
References
 Zero- Three Casebook(1997) Lieberman, Wieder, Fenichel
 www.zerotothree.org/baby-brain-map.html
 www.childrain.org The PDD Assessment Scale/
  Screening Questionnaire
   www.autism.com/ari - ATEC form screening tool
 Minnesota Association for Children’s Mental Health •
  MACMH 800-528-4511 • 651-644-7333 • www.macmh.org
 National Institute of /neurological disorders and Stroke
   http://www.ninds.nih.gov/
 http://www.autism-society.org/

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Asperger’S Syndrome And Pervasive Developmental Disorder

  • 2. According to the Autism Society website  In December 2009, the Centers for Disease Control and Prevention issued their ADDM autism prevalence report. The report concluded that the prevalence of autism had risen to 1 in every 110 births in the United States and almost 1 in 70 boys. The issuance of this report caused a media uproar, but the news was not a surprise to the Autism Society or to the 1.5 million Americans living with the effects of autism spectrum disorder.
  • 3. Costs  Currently, the Autism Society estimates that the lifetime cost of caring for a child with autism ranges from $3.5 million to $5 million, and that the United States is facing almost $90 billion annually in costs for autism (this figure includes research, insurance costs and non-covered expenses, Medicaid waivers for autism, educational spending, housing, transportation, employment, in addition to related therapeutic services and caregiver costs).
  • 4.  The diagnostic category of pervasive developmental disorders (PDD) refers to a group of disorders characterized by delays in the development of socialization and communication skills. Parents may note symptoms as early as infancy, although the typical age of onset is before 3 years of age. Symptoms may include problems with using and understanding language; difficulty relating to people, objects, and events; unusual play with toys and other objects; difficulty with changes in routine or familiar surroundings, and repetitive body movements or behavior patterns. Autism (a developmental brain disorder characterized by impaired social interaction and communication skills, and a limited range of activities and interests) is the most characteristic and best studied PDD. The DSM-IV-TR defines
  • 5. Zero to Three Casebook Addition  According to the 0-3 casebook there is a pdd listed for those 24 months and younger called Multi-System developmental disorder. A child with MSDD does not totally lack the ability to develop a social/emotional relationship with a primary caregiver but will have impairment in developing this relationship. The child may: 1) avoid contact with caregivers, but will give slight cues that show attachment. These children have difficulty forming, maintaining, and/or developing communication, including preverbal gestures. For many toddlers with MSDD, language does not serve a communicative intent. They may memorize parts of songs or dialogue but they do not use speech to communicate. 2)A child with MSDD may have major difficulty processing visual, auditory, tactile, proprioceptive (spatial awareness of one’s body), and vestibular sensations. Most have poor motor planning—they lack the ability to sequence their movements to create a desired outcome—and may appear very clumsy when learning a new skill. 3) Infants and toddlers diagnosed with MSDD also show impairments in processing sensations. For example, they may be extremely sensitive to touch (startling or even having a tantrum when touched lightly), or they may show great pleasure in heavy pressure (being sat on or wedging themselves in small spaces behind furniture). 4)Get an interactive brain map which provides information on brain development of young children.
  • 6. People who have Aspergers say its like being locked in a shell with little ability to communicate with the outside world. Its hard to stay involved with your world. http://www.youtube.com/watch?v=OV_CcmLlaw4&feature=relate d
  • 7. Types of PDD  Autistic Disorder central feature is the markedly abnormal or impaired development in social interaction and communication and a restricted repertoire of activity and interest.  Asperger's disorder-Severe or sustained impairment in social interaction and the significant development of restrictive patterns of behavior, interest and activity. The difference is that there was no clinically significant delays in Language or cognitive development. No delays in the development of age-appropriate self-help skills, adaptive behavior and curiosity about the environment.  Rett's Syndrome is the development of multiple specific deficits following a period of normal functioning after birth. A loss of previously acquired purposeful hand skills before the development of a characteristic resembling hand wringing or hand washing. The interest in the social environment diminishes in the first several years after the onset of the disorder. Significant impairment in expressive and receptive language development with severe psychomotor retardation.  Childhood Disintegrative Disorder is a marked regression in multiple areas of functioning following two years of apparently normal behavior development. A clinically significant loss in at least two areas ; expressive or receptive language; social skills or adaptive behavior; bowel or bladder control; or play and motor skills. They also display characteristics of Autistic disorder.  PDD- NOS is used when the criteria has not been met in the descriptors above because of a typical symptomatology.
  • 8. What impediments are there during childhood Difficulty with Sometimes children These children have a understanding verbal have odd behaviors low frustration and non-verbal social which aren’t readily tolerance and may interactions accepted by peers strike others Motor skills may not Could to be both a be like their peers – bully and a victim. lack interest in play
  • 9. To Improve Social Skill Currently, some school uses the Step 2 Social skills training program for children with different levels of social skill attainment[i.e.Asperger's Syndrome]. One common theme is accessing peer interactions to model the things learned in training when using this Step 2 program. Children without these impediments could benefit from increasing their skills in handling interactions with others. A recurrent theme in research is to increase social and conflict resolution skills as a mechanism to decrease bullying behavior and change the learning environment. In one instance a psychologist developed a way for nuero-typical kids helped those with Aspergers learn to interact with peers and develop a freindships with others. Thereby decreases the level of bullying by others.
  • 10. Communication 2) verbal and nonverbal communication  By age 3, most children have passed predictable milestones on the path to learning language; one of the earliest is babbling. By the first birthday, a typical toddler says words, turns when he hears his name, points when he wants a toy, and when offered something distasteful, makes it clear that the answer is “no.”  Some children diagnosed with ASD remain mute throughout their lives. Some infants who later show signs of ASD coo and babble during the first few months of life, but they soon stop. Others may be delayed, developing language as late as age 5 to 9. Some children may learn to use communication systems such as pictures or sign language.  Those who do speak often use language in unusual ways. They seem unable to combine words into meaningful sentences. Some speak only single words, while others repeat the same phrase over and over softly. Some ASD children parrot what they hear, a condition called echolalia. Although many children with no ASD go through a stage where they repeat what they hear, it normally passes by the time they are 3.
  • 11. Repetitive Behavior  3) They will often have unusual responses to sensory experiences, such as certain sounds or the way objects look. Each of these symptoms can range from mild to severe. Although children with ASD usually appear physically normal and have good muscle control, odd repetitive motions may set them off from other children. These behaviors might be extreme and highly apparent or more subtle. Some children and older individuals spend a lot of time repeatedly flapping their arms or walking on their toes. Some suddenly freeze in position.  As children, they might spend hours lining up their cars and trains in a certain way, rather than using them for pretend play. If someone accidentally moves one of the toys, the child may be tremendously upset. ASD children need, and demand, absolute consistency in their environment. A slight change in any routine—in mealtimes, dressing, taking a bath, going to school at a certain time and by the same route—can be extremely disturbing. Perhaps order and sameness lend some stability in a world of confusion.  Repetitive behavior sometimes takes the form of a persistent, intense preoccupation. For example, the child might be obsessed with learning all about vacuum cleaners, train schedules, or lighthouses. Often there is great interest in numbers, symbols, or science topics.
  • 12. There is no known cure for PDD. Medications are used to address specific behavioral problems; therapy for children with PDD should be specialized according to need. Some children with PDD benefit from specialized classrooms in which the class size is small and instruction is given on a one-to-one basis. Others function well in standard special education classes or regular classes with additional support.
  • 13. Some children need therapy for depression symptoms  Use medication to assist with depression symptoms.  Seek therapy where CBT can be used to restructure thought patterns. Learn to see how thoughts impact experiences. Provide direction as to how to deal with the depression and changes that could improve symptoms and dealing with change.
  • 14. Some of the treatment programs  Applied Behavior Analysis (ABA)  ABA is a broad set of principles and guidelines that is often used as a framework for treating autism. ABA is a one-on-one, intensive, structured teaching program based on the ideas of behavior modification and involving reinforced practice of different skills. You may also hear it called Discrete Trial Therapy (or DTT). Other terms associated with ABA are: functional communication training, incidental teaching, script/script fading, self-management, shaping, behavior chaining, errorless learning, functional assessment, reinforcement systems and activity schedules. Each word in the name “Applied Behavior Analysis” is important:  “Applied” means that you are trying cause positive change in socially significant behaviors.  “Behavior” changes over time are observed and measured.  “Analysis” refers to the way the evidence is collected and evaluated to show how an intervention caused a behavior change.  Lovaas Therapy  The Lovaas Model of Applied Behavior Analysis is a specific ABA treatment method developed by Ivar Lovaas. For more information, visit his website.  Developmental, Individual-Difference, Relationship-Based (DIR) Therapy : DIR—also called Floor time or the Greenspan Method—is based more on relationships than behavior modification. The Interdisciplinary Council on Developmental and Learning Disorders (founded by Stanley Greenspan) has information about the DIR/Floor time model. You can also visit The Floortime Foundation to learn more.  Augmentative and Alternative Communication (AAC)-This augmentative communication glossary will help you learn the terms. AAC can use strategies like the Picture Exchange Communication System (PECS) and sign language.
  • 15. Unconventional therapies  Auditory Integration therapy  After 35+ years of clinical practice and study, Dr. Berard determined that, in many cases, distortions in hearing or auditory processing contribute to behavioral or learning disorders. In the large majority of Dr. Berard's cases, AIT significantly reduced some or many of the handicaps associated with autism spectrum disorders, central auditory processing disorders (CAPD),  speech and language disorders, sensory issues including auditory, tactile or other sensory sensitivities (hyper or hypo), dyslexia, pervasive developmental disorder (PDD), attention deficit disorder with or without hyperactivity, anxiety, and depression.  Berard Auditory Integration Training was designed to normalize hearing and the ways in which the brain processes auditory information. For example, an individual tests as hypersensitive to the frequencies of 1,000 and 8,000 Hertz while perception of all other frequencies falls within the normal range. The individual becomes over stimulated, disoriented or agitated in the presence of sounds at 1,000 and 8,000 Hertz. Therefore, Berard AIT works to normalize the hearing response across all frequencies within the normal hearing range.  In another example, an individual's hearing is asymmetrical (significantly different between the two ears). When the right and left ears perceive sounds in an extremely different way, problems with sound discrimination can occur. Again, Berard AIT works to normalize the hearing of both ears.
  • 16. Unconventional Therapies Cont.  Sensory integration therapy best if referred to Occupational therapy  the child must be able to successfully meet the challenges that are presented through playful activities (Just Right Challenge);  the child adapts her behavior with new and useful strategies in response to the challenges presented (Adaptive Response);  the child will want to participate because the activities are fun (Active Engagement); and  the child's preferences are used to initiate therapeutic experiences within the session (Child Directed).  Suggestions for activities:  swinging in a hammock (movement through space);  dancing to music (sound);  playing in boxes filled with beans (touch);  crawling through tunnels (touch and movement through space);  hitting swinging balls (eye-hand coordination);  spinning on a chair (balance and vision); and  balancing on a beam (balance   Pasted from <http://autism.healingthresholds.com/therapy/sensory-integration
  • 17. Observations or questions used to identify traits 1. Poor eye contact, or staring from unusual angle 2. Ignores when called, pervasive ignoring, not turning head to voice 3. Excessive fear of noises (vacuum cleaner); covers ears frequently 4. In his/her own world (aloof) 5. Lack of curiosity about the environment 6. Facial expressions don't fit situations 7. Inappropriate crying or laughing 8. Temper tantrums, overreacting when not getting his/her way 9. Ignores pain (bumps head accidentally without reacting) 10. Doesn't like to be touched or held (body, head) 11. Hates crowds, difficulties in restaurants and supermarkets 12. Inappropriately anxious, scared 13. Inappropriate emotional response (not reaching to be picked up) 14. Abnormal joy expression when seeing parents 15. Lack of ability to imitate
  • 18. Questions or Observations to identify SOCIAL INTERACTION DIFFICULTIES 1. Loss of acquired speech 2. Produces unusual noises or infantile squeals 3. Voice louder than required 4. Frequent gibberish or jargon 5. Difficulty understanding basic things ("just can't get it") 6. Pulls parents around when wants something 7. Difficulty expressing needs or desires, using gestures 8. No spontaneous initiation of speech and communication 9. Repeats heard words, parts of words or TV commercials 10. Repetitive language (same word or phrase over and over) 11. Can't sustain conversation 12. Monotonous speech, wrong pausing 13. Speaks same to kids, adults, objects (can't differentiated 14. Uses language inappropriately (wrong words or phrases
  • 19. ABNORMAL SYMBOLIC OR IMAGINARY PLAY / use as questions or observations 1. Hand or finer flapping; self stimulation 2. Head banging 3. Self mutilation, inflicting pain or injury 4. Toe walking, clumsy body posture 5. Arranging toys in rows 6. Smelling, banging, licking or other inappropriate use of toys 7. Interest in toy parts, such as car wheels 8. Obsessed with objects or topics (trains, weather, numbers, dates) 9. Spinning objects, self, or fascination with spinning objects 10. Restricted interest, (watching the same video over and over 11. Difficulty stopping repetitive "boring" activity or conversation 12. Attachment to unusual objects, (sticks, stones, strings, or hair) 13. Stubborn about rituals and routines; resists to change 14. Restricted taste by consistency, shape or form (refuses solids) 15. Savant ability, restricted skill superior to age group (reads early, memorizes books)
  • 20. Individuals who have Aspergers and Employment  Employment should take advantage of the individual's strengths and abilities. Temple Grandin, Ph.D., suggests, "jobs should have a well-defined goal or endpoint," and that your "boss must recognize your social limitations." In A Parent's Guide to Asperger Syndrome and High-Functioning Autism, the authors describe three employment possibilities: competitive, supported, and secure or sheltered.  Competitive employment is the most independent, with no support offered in the work environment. Individuals with Asperger’s Syndrome may be successful in careers that require focus on details but have limited social interaction with colleagues such as computer sciences, research or library sciences. In supported employment, a system of supports allows individuals to have paid employment in the community, sometimes as part of a mobile crew, other times individually in a job developed for the person. In secure or sheltered employment, an individual is guaranteed a job in a facility-based setting. Individuals in secure settings generally also receive work skills and behavior training, while sheltered employment may not provide training that would allow for more independence. There is a 70% unemployment rate for individuals 20 yrs old or older.
  • 21. Concerns with vocational concerns  One way to engage the client in therapy is to provide structure. Individuals with Asperger‟s struggle with planning, organizing, and prioritizing; external structure can compensate for these weaknesses (Anderson & Morris, 2006). Be clear about details concerning where to wait, where to sit, the beginning and ending time of the session, etc. Set an agenda for each session, including appropriate topics of discussion (Ramsay et al., 2005). Be aware that the typical therapy hour may not be appropriate for this population. Clients may need shorter sessions because they are mentally exhausted due to the combined stressors of social interaction and CBT therapy. Conversely, clients may need longer sessions if they need extra time to process information or are particularly difficult to redirect from their restricted and repetitive interests (Anderson & Morris, 2006). In order to develop workable treatment goals that are relevant
  • 22. Vocational Issues Interview transcripts revealed four major themes identified by people with Asperger’s concerning why they have difficulty becoming successfully employed. The four themes are: 1) mastering the job application process, 2) adapting to new job routines, 3) communication, and 4) navigating social interactions with employers and coworkers. The job coach should be able to help the client break down larger tasks into smaller, more manageable parts, and to help the client develop strategies to prioritize which tasks should be completed first, act as a social “translator” between the client , must be able to explicitly decode coworkers and supervisors‟ body language, voice tone, and facial expressions for the individual with Asperger‟s . http://youtu.be/XP3zE1P2-a0- is a video about teaching vocational skills
  • 23. Researchers can be found  The NINDS conducts and supports research on developmental disabilities, including PDD. Much of this research focuses on understanding the neurological basis of PDD and on developing techniques to diagnose, treat, prevent, and ultimately cure this and similar disorders.  NIH Patient Recruitment for Pervasive Developmental Disorders Clinical Trials  At NIH Clinical Center  There is an Autism research Institute
  • 24. Websites  info@horizonsdrc.com Horizons Developmental Remediation Center. Horizons Developmental Remediation Center has a reputation locally, nationally, and abroad for providing exceptional quality assessment and treatment to children, adolescents, and adults with autism, Asperger’s Syndrome, PDD- NOS, ADHD, and other neurodevelopmental disorders. Through the use of a comprehensive developmental and family-based approach, we develop individualized treatment plans to meet the needs of your child and family.  www.grasp.org- This organization was started by a man who was diagnosed after his son was diagnosed. He has a lot of pertinent information  .Parenting Aspergers, Information Online LLC, PO Box 789, Portsmouth, PO19DY, UK. Phone: 0845 519 3412 For the quickest response use our support desk http://parentingaspergers.zendesk.com/anonymous_requests/new  www.fraser.org Provides information and services for individuals with PDD and Autism Spectrum Disorders.
  • 25. Resources  National Dissemination Center for Children with Disabilities  U.S. Dept. of Education, Office of Special Education Programs  1825 Connecticut Avenue NW, Suite 700  Washington, DC 20009  nichcy@aed.org  http://www.nichcy.org  Tel: 800-695-0285 202-884-8200  Fax: 202-884-8441 National Institute of Mental Health (NIMH)  National Institutes of Health, DHHS  6001 Executive Blvd. Rm. 8184, MSC 9663  Bethesda, MD 20892-9663  nimhinfo@nih.gov  http://www.nimh.nih.gov  Tel: 301-443-4513/866-415-8051 301-443-8431 (TTY)  Fax: 301-443-4279  National Institute on Deafness and Other Communication Disorders Information Clearinghouse  1 Communication Avenue  Bethesda, MD 20892-3456  nidcdinfo@nidcd.nih.gov  http://www.nidcd.nih.gov  Tel: 800-241-1044 800-241-1055 (TTD/TTY) National Institute of Child Health and Human Information Resource Center  P.O. Box 3006  Rockville, MD 20847  NICHDInformationResourceCenter@mail.nih.gov  Tel: 800-370-2943 888-320-6942 (TTY)
  • 26. Resources Cont.  National Organization for Rare Disorders (NORD)  P.O. Box 1968  (55 Kenosia Avenue)  Danbury, CT 06813-1968  orphan@rarediseases.org  http://www.rarediseases.org  Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)  Fax: 203-798-2291 American Speech-Language-Hearing Association (ASHA)  2200 Research Boulevard  Rockville, MD 20850  actioncenter@asha.org  https://asha.org  Tel: 800-638-8255  Fax: 301-571-0457
  • 27. Resources Cont.  MAAP Services for Autism, Asperger Syndrome, and PDD  P.O. Box 524  Crown Point, IN 46307  info@maapservices.org  http://www.maapservices.org  Tel: 219-662-1311  Fax: 219-662-0638 Autism Network International (ANI)  P.O. Box 35448  Syracuse, NY 13235-5448  jisincla@syr.edu  http://www.ani.ac  Autism Research Institute (ARI)  4182 Adams Avenue  San Diego, CA 92116  director@autism.com  http://www.autismresearchinstitute.com  Tel: 866-366-3361  Fax: 619-563-6840 Autism National Committee (AUTCOM)  P.O. Box 429  Forest Knolls, CA 94933  http://www.autcom.org
  • 29. References  Zero- Three Casebook(1997) Lieberman, Wieder, Fenichel  www.zerotothree.org/baby-brain-map.html  www.childrain.org The PDD Assessment Scale/ Screening Questionnaire www.autism.com/ari - ATEC form screening tool  Minnesota Association for Children’s Mental Health • MACMH 800-528-4511 • 651-644-7333 • www.macmh.org  National Institute of /neurological disorders and Stroke http://www.ninds.nih.gov/  http://www.autism-society.org/

Notas do Editor

  1. Rett Syndrome: Rett syndrome is relatively rare, affecting almost exclusively females, one out of 10,000 to 15,000. After a period of normal development, sometime between 6 and 18 months, autism-like symptoms begin to appear. The little girl’s mental and social development regresses—she no longer responds to her parents and pulls away from any social contact. If she has been talking, she stops; she cannot control her feet; she wrings her hands. Some of the problems associated with Rett syndrome can be treated. Physical, occupational, and speech therapy can help with problems of coordination, movement, and speech.
  2. Impediments identified during childhood can follow them to adulthood if not addressed during the school days.
  3. Conflicting viewpoints as to the extent to the percentages of children involved in bullying but all agree that the children need to look at bullying the same as adults or is this a stretch due the cognitive abilities of children. Children function within their own structure, a pecking order is established, children need to want to change the status quo in a large number not just one or two.
  4. Relate some of Andrews preoccupations.
  5. Research suggests that on-going support during placement as the clients’ needs change leads to longer employment.