1. Dear Endocrinologist:
We no longer live in the 1990’s
Joyce Lee, MD, MPH
http://www.doctorasdesigner.com/
Twitter: @joyclee
Hashtag: #2016ADA

2. JAMA Pediatrics (Social Media Editor)
Unitio
Samuelson Associates
Verily

3. 82 publications
NIH funding
Obesity & Type 2 diabetes:
Biomarkers/Child Health Policy
Type 1 diabetes:
Learning Health Systems
Mobile Technology/Data Visualization/
Participatory Design/Online Communities

6. Q: Are there any other uses of
social media in clinical medicine or
research that you want to learn
about?
A: “No. This is a complete waste
of time. This is not real research.
The fad will die out soon.”

7. You are a
Public Physician
whether you like
it or not

11. Conversations cannot be controlled,
they can only be joined
-Facebook Effect

13. When a physician asks, “Should I post this
on social media?” the answer does not
depend on whether the content is
professional or personal but instead
depends on whether it is appropriate for a
physician in a public space

15. A Few Rules of Thumb

16. Remember HIPAA!Don’t talk
about patients,
even in general
terms
If you wouldn’t
say it in an
elevator, don’t
say it online

18. Don’t Fear Social Media,
Leverage It!

22. Crafting Your
Professional Identity

23. @egghead

24. @SeattleMamaDoc
@Doctor_V
@EndoGoddess
@Dermdoc
@kidney_boy
Your name? Your specialty?
It’s up to you

30. Pin a tweet

31. Tweet
140 characters

32. Tweet something of interest

33. #diabetes
#quantifiedself
#mhealth
#dataviz
#dsma
#doc
#dblog
A #hashtag can mean many
things like a topic or group

34. Use #hashtags

35. #showmeyourpump

36. #openaps

38. Mention

39. Reply

40. RT = Retweet/Quote Tweet
h/t = Hat tip

41. Following & Followers

44. To keep abreast of and
troubleshoot diabetes
technology in real-time

47. To learn what’s actually
useful for our patients

49. To witness the incredible
creativity and hacking
capabilities of individuals/
families with diabetes

50. iSeismometer iPhone app + CGM
on nightstand = effective alarm!

51. Glucose Sensor + Flovent = Rash-free?

59. 18,000+
members

62. Find New Tools
for Your Research

63. #dataviz

65. AHRQ grant-
Personalized patient-centered
data visualizations for
diabetes

66. To Connect directly with
Patients/Caregivers
for Research

69. 16 cases worldwide
Parent advocacy/fundraising
Treatments
Clinical Trials
Only pt with NGLY-1

70. “It’s kind of a shift in the scientific
world that we have to recognize-that,
in this day of social media, dedicated,
educated, and well-informed families
have the ability to make a huge impact.
Gone are the days when we could just
say, we’re a cloistered community of
researchers, and we alone know how to
do this”
-Vandana Shashi

71. nightscoutstudy.info

73. To connect our patients and
families with online
communities

74. myglu.org
Diabetes Online Community
(DOC)

75. “Social media has saved lives in the diabetes
community. It has helped people who are
struggling with their diabetes to take control
and improve their health. It shows people that
there isn’t such a thing as a “perfect diabetic,”
but there can be an educated and determined
one.”
-Kerri Sparling @sixuntilme

81. Social media is changing what it
means to be a doctor today

83. Twitter: @joyclee
www.doctorasdesigner.com
www.nightscoutstudy.info
http://twittersuperuser.com/
Special thanks to patients/
caregivers/docs online, &
the human network!
www.diabetesemoticons.com

84. Tweet frequently.
Have something interesting to say.
Live-tweet events and breaking news.
Find & follow people who share your
interests.
Join the conversation.
Give more than you ask for.
Join tweetups and Twitter chats.
Be yourself.