1. What information and training
do patients and public need
Per Spindler
Director, Biopeople, University of Copenhagen, Denmark
2. WORK AHEAD !
EUPATI contributes to IMI‘s goal of raising
patients‘ awareness and participation in
pharmaceutical R&D
provides scientifically reliable, objective, comprehensive, user-friendly
information on therapeutic innovation and pharmaceutical Research &
Development
reaches out to patients incl. the lay and hard to reach patient
community
enables a meaningful involvement and empowerment of patients and
raises public awareness (lead redesign of health care innovation)
facilitates appropriate patient-relevant advice to industry, academia,
authorities and ethics committees
3. Audiences: advocacy leaders
and the public at large
EUPATI Training Programme ( experts)
Academic Modular Certificate Programme 100
Patient Ambassadors. Patient patient
Journalists, Patient Trainers
advocates
EUPATI Educational Toolbox ( education)
Tool box with a variety of distributable formats 12.000
Paper-based patient
booklets, presentations, eLearning, webinars, vi advocates
deos etc.
EUPATI Internet Library ( information)
Wiki” “YouTube” Social Media” Internet
Sources (Editorial Board) 100.000
TV films and/or cartoons individuals
4. Content development of EUPATI
targets important aspects of
therapeutic innovation
1. Medicines development process
from research to approval
2. Personalized and predictive medicine
3. Drug safety and risk/benefit assessment of medicines
4. Pharmaco-economics, health economics and health
technology assessment
5. Design and objectives of clinical trials
(& roles of stakeholders)
6. Patients roles & responsibilities in innovative
medicines development
5. Reflecting European diversity:
7 languages
7 most frequently spoken languages:
English, French, German, Spanish, Polish,
Russian, Italian
Serving 12 European countries:
UK, Ireland, Malta, France, Luxemburg, the francophone
Belgium and Switzerland, Germany, Austria, the German-
speaking Part of Switzerland, Spain, Italy and Poland, plus
Russian-speaking population in CEE
6. The first steps are needs assessment
and material collection followed by
content development
Strategy & methodology for
Identification and review of training material
available information resources to the three audiences
Knowledge & attitude survey Collection of available material
Analysis of information needs Adaptation, production
incl. format and style of delivery and translation of material
Review & gap analysis
7. Get to know us!
Web:
www.patientsacademy.eu
Twitter: @eupatients
as well as:
