Glomerular Filtration rate and its determinants.pptx
Barbara Skerritt - IPPOSI Patient Reported Outcome Measures conference Oct 2018
1. ICHOM and ICON
GLobal Outcomes
BEnchmarking (GLOBE)
IPPOSI
Barbara Skerritt
Director of Product Innovation, ICON
8th October 2018
2. ICHOM's global outcomes benchmarking program is exciting
work that has never been done before
ICHOM and ICON benchmarking outcomes across the globe
ICHOM and ICON collectedCataract and Hip/Knee/OsteoarthritisStandardSet data from leading providers across
the globe
Progress and Impact:
▪ Risk-adjustment of raw data and benchmark on key indicators—focusing on patient-reported outcomes
▪ Individual reporting to participating organizations
▪ “Best-in-class” organizations identified with intent to publish about their performance
Countries Sites
Patients
(Since '16)
Cataracts 8 53 90k
Hip/Knee/
Osteoarthritis
5 25 7k
3. Objectives of the GLOBE pilots
▪ Data governance and data flow: demonstrate feasibility of aggregating data
across borders on a harmonized dataset
▪ Technological: demonstrate feasibility of data collection within an ecosystem of
different collection solutions
1
2
Can we build it?
Is it a valuable service?
▪ Is there meaningful outcome variation in our data?
▪ Can we stimulate more rapid improvement informed by international outcomes
data?
The GLOBE pilots aim to address two main questions:
The answers have helped us to understand whether it is feasible & valuable to scale this
program
4. Program Design Phase (Jan-Apr 2016)
4 months
Finalize and
distribute study plan
Finalize and
distribute key
indicators and data
transfer
specifications
Finalizeprogram
materials
Month1
Month2
Endof
Month4
Month3
Month4
Conduct study plan
review / governance
call (group)
Receive signed
participation
agreements from
submitting sites
Onboardsites
Receive first test
data
Conduct technical
calls (1:1)
6. End of Pilot
Timeline and key figures of GLOBE Pilots
1
2
3
Program Design
(3/4 months)
Data Collection
(~12 months)
Reporting
(1/2 months)
GLOBE
Pilot
1
2
CAT Key Figures: HKO Key Figures :
13 participating institutions (53 sites) 11 participating institutions (25 sites)
362,220 records of operative eyes 6,602 surgical records of hip and knee joints with
osteoarthritis
24 providing production data 15 sites providing production data
~18 months
OVER 200 data transfers
8. GLOBE program outcomes – what have we learned?
Provide the legal framework to facilitate data transfer
Assess the data transfer mechanism that is acceptable for hospitals and scalable
Detecting and understanding the variation between hospitals
Development of risk adjustment tools and benchmarking analyses / visualizations
Provides lessons learned for appropriate application, administration and effective use of patient-
reported outcomes (PROs) and PRO measurement (PROM) instruments
Serves as a proof-of-concept for data management, analysis, and reporting processes required for
international benchmarking
More work required improve implementation and to ensure the integrity of the data
Offers a foundation for a long-term benchmarking programs for other conditions