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Dr Ghaiath Hussein, MBBS, MHSc. (Bioethics)
How to resolve an ethical issue in clinical practice?
Tools for ethical analysis and decision making
Islamic approach to ethical decision making
Do you remember?
He Killed Her!!
○ Questions answered by Bioethics
○ deciding what we should do (what decisions are
morally right or acceptable);
○ explaining why we should do it (how do we
justify our decision in moral terms); and
○ describing how we should do it (the method or
manner of our response when we act on our decision).
Who (& what) affects ethical
decision making?
How to approach an ethical
issue?
I- Set of Ethical standards
‫األخالقية‬ ‫المرجعيات‬ ‫من‬ ‫أمثلة‬
Secular
philosophies
Most western
philosophies
• Utilitarianism
• Deontology
• Virtue Ethics
• Principlism
Oriental
‘Religions/
philosophies
Buddhism
Confucian
ethics
Daoist ethics
Hindu ethics
Religious
(Abrahamic)
Jewish ethics
Christian ethics
Islamic ethics
II- Tools for Ethical
Analysis
 Why do we need tools for ethical analysis? ‫لماذا‬
‫األخالقي‬ ‫للتحليل‬ ‫أدوات‬ ‫نحتاج‬
 To make sure we do not miss any information or
possible factor that could affect the decision we take
 How do they help us reach ethical decision? ‫كيف‬
‫األخالقي‬ ‫التحليل‬ ‫أدوات‬ ‫تساعدنا‬ ‫أن‬ ‫يمكن‬
 Tools that helps us have information about all those
involved in the decision
 Who is involved in ethical decision? (what do
you think?)
Tools & frameworks for ethical
analysis
 The Four Boxes Model ‫األربعة‬ ‫الصناديق‬ ‫نموذج‬
‫المعلومات‬
‫الطبية‬
- Simple medical facts
- age, sex, current condition, treatment
options
- Avoid vague or subjective terms like ‘hard’,
‘hopeless’, ‘advanced’
- Use clear and specific terms e.g., Cancer
of X, in stage Y
‫يريد‬ ‫ماذا‬
‫المريض‬
Address the following:
What does the patient want?
Does the patient have the capacity to decide?
If not, who will decide for the patient?
Do the patient's wishes reflect a process that
is informed? understood? voluntary?
‫كفاءة‬‫الحياة‬
‫المتوقعة‬
Overall assessment of the patient’s
prognosis with each of the treatment
options;
What are the advantages and
disadvantages of each treatment option?
‫تتوفر‬ ‫أن‬ ‫يمكن‬ ‫حياة‬ ‫نوعية‬ ‫أفضل‬ ‫هي‬ ‫ما‬
‫للمريض؟‬
‫العوامل‬
‫المحيطة‬
Social, legal, economic, and institutional
circumstances in the case that can:
influence the decision
be influenced by the decision
‫والقانونية‬ ‫االجتماعية‬ ‫الجوانب‬(‫الشرعية‬)
‫والمؤسسية‬ ،‫والمالية‬(‫تسمح‬ ‫هل‬‫سياسات‬
‫المقترح؟‬ ‫بالعالج‬ ‫المستشفى‬)
CLEO Approach
Legal:‫القانونية‬ ‫الجوانب‬Clinical:‫الطبية‬ ‫الجوانب‬
Legally required process for treatment
decision making when a patient lacks
capacity to do so
Family involvement: who to involve?
when and how substitute treatment
decisions are to be made?
Diagnoses: Irreversible? Progressive?
Permanent?
Prognoses: Disabling? Terminal?
clinicians’ level of certainty?
Organizational:‫المؤسسية‬Ethical:‫األخالقية‬ ‫الجوانب‬
Any institutional pressures to not have
a bed blocked by someone whose
recovery will be long and slow or the
benefits seemingly small?
Any other healthcare facilities better
able to provide palliative/rehabilitative
care for longer periods of time?
Any different views as to diagnosis,
prognosis, next steps among the team or
other physicians
The patient’s will, desires, perception of
life, relationship with their family? What
cultural or religious beliefs involved?
Family’s stand: why? To show their
fidelity to the patient and/or deal with
their individual and collective
sadness/shock/grieving?
No longer sure what is really going on or
who to trust
III- Modalities of resolving ethical
issues
Collect
information
• Medical
• Non-
medical
Meet
involved
parties
• Doctors
• Nurses
• Patient (&
family)
Ethical
Analysis
• Weighing
collected
info. vs.
ethical
principles
(& laws)
Decision
Making
• Single
decision;
or
• Provide
alternativ
es
Follow-Up
• How
decisions
are
implement
ed?
• Lessons
learned
 What are the facts (medical/scientific)? ‫هي‬ ‫ما‬
‫والطبية‬ ‫العلمية‬ ‫الحقائق‬
 Is there a text on the issue from Koran and/or
Sunna?‫المسألة؟‬ ‫في‬ ‫واضح‬ ‫نص‬ ‫السنة‬ ‫أو‬ ‫القرآن‬ ‫في‬ ‫هل‬
 Which Sharia Goals are involved? ‫مقاصد‬ ‫هي‬ ‫ما‬
‫الصلة؟‬ ‫ذات‬ ‫الشريعة‬
 Which fiqhi principles are applicable? ‫القواعد‬ ‫من‬ ‫أي‬
‫الحالة؟‬ ‫في‬ ‫تطبيقه‬ ‫يمكن‬ ‫الفقهية‬
 Weighing of goals & principles?‫والقواعد‬ ‫المقاصد‬ ‫موازنة‬
 Is there a previous Fatwa on similar issue? ‫الفتاوى‬
‫الصلة‬ ‫ذات‬
Summary of Islamic
Analysis
1-‫ال‬ ‫حفظ‬ ‫عالقة؟‬ ‫له‬ ‫الشريعة‬ ‫مقاصد‬ ‫من‬ ‫أي‬...
‫الدين‬ ‫النفس‬ ‫العقل‬ ‫المال‬ ‫النسل‬
2-‫تطبيقه؟‬ ‫يمكن‬ ‫الفقهية‬ ‫القواعد‬ ‫من‬ ‫أي‬
‫القصد‬-
‫النية‬
‫المشقة‬ ‫الضرر‬ ‫اليقين‬ ‫العرف‬
3-‫تطبيقه؟‬ ‫يمكن‬ ‫الفرعية‬ ‫الفقهية‬ ‫القواعد‬ ‫من‬ ‫أي‬
Case for discussion
 Batoul is a 36 years old Saudi lady. She is a mother
of 2 children (8 & 10 years old), and she is now
pregnant in her 13th week of gestation with a
normal and viable fetus.
 Two weeks ago, she was found to have a huge
ovarian mass (19 X 12 cm) found to be a
cystoadenocarcinoma with features of metastasis.
 She is a candidate for chemotherapy. Thus, the
oncology board of the hospital recommended the
termination of pregnancy. Three consultants,
including her following obstetrician and an
oncologist, had approved this recommendation.
Case for discussion…cont.
 She did not accept to terminate the pregnancy amid
fear of being an illegal (haram) act. Accordingly, the
husband was approached, he approved and signed
the consent on her behalf.
 Batoul felt terribly upset from what happened, and
refused to start the chemotherapy. The case was
submitted to the ethics committee of the hospital in
which you are a member.
 You were delegated by the ethics committee to
resolve the case.
 Use one of the case analysis tools and the Islamic
approach to analyse the case and come with conclusions
Discussion questions:
 What are the ethical issues involved in this
case?
 Describe in details the steps you will take,
including what are the information that you
will collect, who you will meet, what are the
questions that you may want to ask, what are
the factors (medical, ethical, religious, legal,
etc.) that you will consider as you recommend
a decision.
 Describe briefly the modality that you will
suggest to implement and follow-up the
recommendation that you will come up with.
Example of analysis
 Example for listing of the ethical issues?
Ethical issues Points of ethical consideration
Abortion Is it ethical to terminate pregnancy at this stage?
Does the fetus has any rights (needs protection) at
this stage?
If it has rights; what if its rights conflict with the
mother’s right to live, survive, keep her health?
The Islamic legality of termination of pregnancy in
this condition
Example of using
philosophical schools
 By using Principle-based ethics
(principlism)
Ethical principle Points of ethical consideration
Autonomy Doe the woman has the right to decide on her own?
Does she has the capacity to decide?
Does the husband should/must have a role in the
decision?
Beneficence …
Non-malificence …
Download more lectures from:
https://sites.google.com/site/medicalethicscourse/
More Resources:
http://med-ethics.com/
http://omarkasule.tripod.com/
http://www.islamset.com/ethics/index.html

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Lecture 6 & 7 introduction to ethical analysis and clinical consultations

  • 1. Dr Ghaiath Hussein, MBBS, MHSc. (Bioethics) How to resolve an ethical issue in clinical practice? Tools for ethical analysis and decision making Islamic approach to ethical decision making
  • 2. Do you remember? He Killed Her!! ○ Questions answered by Bioethics ○ deciding what we should do (what decisions are morally right or acceptable); ○ explaining why we should do it (how do we justify our decision in moral terms); and ○ describing how we should do it (the method or manner of our response when we act on our decision).
  • 3. Who (& what) affects ethical decision making?
  • 4. How to approach an ethical issue?
  • 5. I- Set of Ethical standards ‫األخالقية‬ ‫المرجعيات‬ ‫من‬ ‫أمثلة‬ Secular philosophies Most western philosophies • Utilitarianism • Deontology • Virtue Ethics • Principlism Oriental ‘Religions/ philosophies Buddhism Confucian ethics Daoist ethics Hindu ethics Religious (Abrahamic) Jewish ethics Christian ethics Islamic ethics
  • 6. II- Tools for Ethical Analysis  Why do we need tools for ethical analysis? ‫لماذا‬ ‫األخالقي‬ ‫للتحليل‬ ‫أدوات‬ ‫نحتاج‬  To make sure we do not miss any information or possible factor that could affect the decision we take  How do they help us reach ethical decision? ‫كيف‬ ‫األخالقي‬ ‫التحليل‬ ‫أدوات‬ ‫تساعدنا‬ ‫أن‬ ‫يمكن‬  Tools that helps us have information about all those involved in the decision  Who is involved in ethical decision? (what do you think?)
  • 7. Tools & frameworks for ethical analysis  The Four Boxes Model ‫األربعة‬ ‫الصناديق‬ ‫نموذج‬ ‫المعلومات‬ ‫الطبية‬ - Simple medical facts - age, sex, current condition, treatment options - Avoid vague or subjective terms like ‘hard’, ‘hopeless’, ‘advanced’ - Use clear and specific terms e.g., Cancer of X, in stage Y ‫يريد‬ ‫ماذا‬ ‫المريض‬ Address the following: What does the patient want? Does the patient have the capacity to decide? If not, who will decide for the patient? Do the patient's wishes reflect a process that is informed? understood? voluntary? ‫كفاءة‬‫الحياة‬ ‫المتوقعة‬ Overall assessment of the patient’s prognosis with each of the treatment options; What are the advantages and disadvantages of each treatment option? ‫تتوفر‬ ‫أن‬ ‫يمكن‬ ‫حياة‬ ‫نوعية‬ ‫أفضل‬ ‫هي‬ ‫ما‬ ‫للمريض؟‬ ‫العوامل‬ ‫المحيطة‬ Social, legal, economic, and institutional circumstances in the case that can: influence the decision be influenced by the decision ‫والقانونية‬ ‫االجتماعية‬ ‫الجوانب‬(‫الشرعية‬) ‫والمؤسسية‬ ،‫والمالية‬(‫تسمح‬ ‫هل‬‫سياسات‬ ‫المقترح؟‬ ‫بالعالج‬ ‫المستشفى‬)
  • 8. CLEO Approach Legal:‫القانونية‬ ‫الجوانب‬Clinical:‫الطبية‬ ‫الجوانب‬ Legally required process for treatment decision making when a patient lacks capacity to do so Family involvement: who to involve? when and how substitute treatment decisions are to be made? Diagnoses: Irreversible? Progressive? Permanent? Prognoses: Disabling? Terminal? clinicians’ level of certainty? Organizational:‫المؤسسية‬Ethical:‫األخالقية‬ ‫الجوانب‬ Any institutional pressures to not have a bed blocked by someone whose recovery will be long and slow or the benefits seemingly small? Any other healthcare facilities better able to provide palliative/rehabilitative care for longer periods of time? Any different views as to diagnosis, prognosis, next steps among the team or other physicians The patient’s will, desires, perception of life, relationship with their family? What cultural or religious beliefs involved? Family’s stand: why? To show their fidelity to the patient and/or deal with their individual and collective sadness/shock/grieving? No longer sure what is really going on or who to trust
  • 9. III- Modalities of resolving ethical issues
  • 10. Collect information • Medical • Non- medical Meet involved parties • Doctors • Nurses • Patient (& family) Ethical Analysis • Weighing collected info. vs. ethical principles (& laws) Decision Making • Single decision; or • Provide alternativ es Follow-Up • How decisions are implement ed? • Lessons learned
  • 11.
  • 12.  What are the facts (medical/scientific)? ‫هي‬ ‫ما‬ ‫والطبية‬ ‫العلمية‬ ‫الحقائق‬  Is there a text on the issue from Koran and/or Sunna?‫المسألة؟‬ ‫في‬ ‫واضح‬ ‫نص‬ ‫السنة‬ ‫أو‬ ‫القرآن‬ ‫في‬ ‫هل‬  Which Sharia Goals are involved? ‫مقاصد‬ ‫هي‬ ‫ما‬ ‫الصلة؟‬ ‫ذات‬ ‫الشريعة‬  Which fiqhi principles are applicable? ‫القواعد‬ ‫من‬ ‫أي‬ ‫الحالة؟‬ ‫في‬ ‫تطبيقه‬ ‫يمكن‬ ‫الفقهية‬  Weighing of goals & principles?‫والقواعد‬ ‫المقاصد‬ ‫موازنة‬  Is there a previous Fatwa on similar issue? ‫الفتاوى‬ ‫الصلة‬ ‫ذات‬
  • 13. Summary of Islamic Analysis 1-‫ال‬ ‫حفظ‬ ‫عالقة؟‬ ‫له‬ ‫الشريعة‬ ‫مقاصد‬ ‫من‬ ‫أي‬... ‫الدين‬ ‫النفس‬ ‫العقل‬ ‫المال‬ ‫النسل‬ 2-‫تطبيقه؟‬ ‫يمكن‬ ‫الفقهية‬ ‫القواعد‬ ‫من‬ ‫أي‬ ‫القصد‬- ‫النية‬ ‫المشقة‬ ‫الضرر‬ ‫اليقين‬ ‫العرف‬ 3-‫تطبيقه؟‬ ‫يمكن‬ ‫الفرعية‬ ‫الفقهية‬ ‫القواعد‬ ‫من‬ ‫أي‬
  • 14. Case for discussion  Batoul is a 36 years old Saudi lady. She is a mother of 2 children (8 & 10 years old), and she is now pregnant in her 13th week of gestation with a normal and viable fetus.  Two weeks ago, she was found to have a huge ovarian mass (19 X 12 cm) found to be a cystoadenocarcinoma with features of metastasis.  She is a candidate for chemotherapy. Thus, the oncology board of the hospital recommended the termination of pregnancy. Three consultants, including her following obstetrician and an oncologist, had approved this recommendation.
  • 15. Case for discussion…cont.  She did not accept to terminate the pregnancy amid fear of being an illegal (haram) act. Accordingly, the husband was approached, he approved and signed the consent on her behalf.  Batoul felt terribly upset from what happened, and refused to start the chemotherapy. The case was submitted to the ethics committee of the hospital in which you are a member.  You were delegated by the ethics committee to resolve the case.  Use one of the case analysis tools and the Islamic approach to analyse the case and come with conclusions
  • 16. Discussion questions:  What are the ethical issues involved in this case?  Describe in details the steps you will take, including what are the information that you will collect, who you will meet, what are the questions that you may want to ask, what are the factors (medical, ethical, religious, legal, etc.) that you will consider as you recommend a decision.  Describe briefly the modality that you will suggest to implement and follow-up the recommendation that you will come up with.
  • 17. Example of analysis  Example for listing of the ethical issues? Ethical issues Points of ethical consideration Abortion Is it ethical to terminate pregnancy at this stage? Does the fetus has any rights (needs protection) at this stage? If it has rights; what if its rights conflict with the mother’s right to live, survive, keep her health? The Islamic legality of termination of pregnancy in this condition
  • 18. Example of using philosophical schools  By using Principle-based ethics (principlism) Ethical principle Points of ethical consideration Autonomy Doe the woman has the right to decide on her own? Does she has the capacity to decide? Does the husband should/must have a role in the decision? Beneficence … Non-malificence …
  • 19. Download more lectures from: https://sites.google.com/site/medicalethicscourse/ More Resources: http://med-ethics.com/ http://omarkasule.tripod.com/ http://www.islamset.com/ethics/index.html