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Health begins where we
live, learn, work, and play
  Addressing racism as a threat
  to the health and well-being
          of our nation
     Camara Phyllis Jones, MD, MPH, PhD
     Social Determinants of Health and Equity

              Leadership Challenge
                 Fairfax, Virginia
              September 17, 2012
Levels of health intervention




Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Addressing the                                        Primary prevention
         social determinants of health




                                                               Safety net programs and
                                                               secondary prevention




                                                               Medical care and
                                                               tertiary prevention
Source: Jones CP et al. J Health Care Poor Underserved 2009.
But how do disparities arise?
    Differences in the quality of care received within the
     health care system

    Differences in access to health care, including
     preventive and curative services

    Differences in life opportunities, exposures, and
     stresses that result in differences in underlying health
     status
Source: Smedley BD, Stith AY, Nelson AR (editors). Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care.
Washington, DC: The National Academies Press, 2002.
Source: Byrd WM, Clayton LA. An American Health Dilemma: Race, Medicine, and Health Care in the United States, 1900-2000.
New York, NY: Routledge, 2002.
Source: Phelan JC, Link BG, Tehranifar P. Social Conditions as Fundamental Causes of Health Inequalities. J Health Soc Behav
2010;51(S):S28-S40.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Differences in




                                                               Differences in access to care
                                         exposures and
                                         opportunities




 Differences in quality of care
 (ambulance slow or goes the wrong way)
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Addressing the
social determinants of equity:

Why are there differences
in resources
along the cliff face?

Why are there differences
in who is found
at different parts of the cliff?

Source: Jones CP et al. J Health Care Poor Underserved 2009.
3 dimensions of health intervention




Source: Jones CP et al. J Health Care Poor Underserved 2009.
3 dimensions of health intervention

Health services




Source: Jones CP et al. J Health Care Poor Underserved 2009.
3 dimensions of health intervention

Health services

Addressing social determinants of health




Source: Jones CP et al. J Health Care Poor Underserved 2009.
3 dimensions of health intervention

Health services

Addressing social determinants of health

Addressing social determinants of equity




Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health




                                                         Individual
                                                         behaviors




Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health




                                                   Social determinants
                                                   of health (contexts)



                                                         Individual
                                                         behaviors




Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health


  Determinants
  of health and
  illness that are
                                                   Social determinants
  outside of the                                   of health (contexts)
  individual

                                                         Individual
  Beyond genetic                                         behaviors
  predispositions

  Beyond individual
  behaviors




Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health


  Determinants                                                            The contexts in
  of health and                                                           which
  illness that are                                                        individual
                                                   Social determinants
  outside of the                                   of health (contexts)   behaviors arise
  individual

                                                         Individual
  Beyond genetic                                         behaviors
  predispositions

  Beyond individual
  behaviors




Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health


  Individual
  resources
  Education,                                          Social determinants
  occupation,                                         of health (contexts)
  income, wealth
                                                           Individual
                                                           behaviors




Source: CSDH. Closing the gap in a generation: health equity through action on the social determinants of health. Final Report of the
Commission on Social Determinants of Health. Geneva: World Health Organization, 2008.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health


  Individual
  resources
  Education,                                          Social determinants
  occupation,                                         of health (contexts)
  income, wealth
  Neighborhood
                                                           Individual
  resources                                                behaviors
  Housing, food
  choices, public
  safety,
  transportation,
  parks and
  recreation,
  political clout
Source: CSDH. Closing the gap in a generation: health equity through action on the social determinants of health. Final Report of the
Commission on Social Determinants of Health. Geneva: World Health Organization, 2008.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health


  Individual                                                                                      Hazards and
  resources                                                                                       toxic exposures
  Education,                                          Social determinants                         Pesticides, lead,
  occupation,                                         of health (contexts)                        reservoirs of
  income, wealth                                                                                  infection
  Neighborhood
                                                           Individual
  resources                                                behaviors
  Housing, food
  choices, public
  safety,
  transportation,
  parks and
  recreation,
  political clout
Source: CSDH. Closing the gap in a generation: health equity through action on the social determinants of health. Final Report of the
Commission on Social Determinants of Health. Geneva: World Health Organization, 2008.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health


  Individual                                                                                      Hazards and
  resources                                                                                       toxic exposures
  Education,                                          Social determinants                         Pesticides, lead,
  occupation,                                         of health (contexts)                        reservoirs of
  income, wealth                                                                                  infection
  Neighborhood                                                                                    Opportunity
                                                           Individual
  resources                                                behaviors                              structures
  Housing, food                                                                                   Schools, jobs,
  choices, public                                                                                 justice
  safety,
  transportation,
  parks and
  recreation,
  political clout
Source: CSDH. Closing the gap in a generation: health equity through action on the social determinants of health. Final Report of the
Commission on Social Determinants of Health. Geneva: World Health Organization, 2008.
Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health



                                            Structural determinants of context


                                                   Social determinants
                                                   of health (contexts)



                                                         Individual
                                                         behaviors




Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health
Determine the
range of
observed contexts
                                            Structural determinants of context


                                                   Social determinants
                                                   of health (contexts)



                                                         Individual
                                                         behaviors




Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health
Determine the
range of
observed contexts
                                            Structural determinants of context


                                                   Social determinants
                                                   of health (contexts)



                                                         Individual
                                                         behaviors




Determine the
distribution of
different populations
into those contexts

Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health
Determine the                                                                    Include economic
range of                                                                         systems, racism,
observed contexts                                                                and other systems
                                            Structural determinants of context   of power

                                                   Social determinants
                                                   of health (contexts)



                                                         Individual
                                                         behaviors




Determine the
distribution of
different populations
into those contexts

Source: Jones CP et al. J Health Care Poor Underserved 2009.
Determinants of health
Determine the                                                                    Include economic
range of                                                                         systems, racism,
observed contexts                                                                and other systems
                                            Structural determinants of context   of power

                                                   Social determinants
                                                   of health (contexts)



                                                         Individual
                                                         behaviors




Determine the                                                                    The social
distribution of                                                                  determinants of
different populations                                                            equity
into those contexts

Source: Jones CP et al. J Health Care Poor Underserved 2009.
Addressing the social determinants
                               of HEALTH
    Involves the medical care and public health systems,
     but clearly extends beyond these

    Requires collaboration with multiple sectors outside of
     health, including education, housing, labor, justice,
     transportation, agriculture, immigration, and
     environment



Source: National Prevention Council. National Prevention Strategy. Washington, DC: U.S. Department of Health and Human
Services, Office of the Surgeon General, 2011.

Source: Jones CP, Jones CY, Perry GS, Barclay G. Addressing the Social Determinants of Children’s Health: A Cliff Analogy.
J Health Care Poor Underserved 2009;20(4)Suppl:1-12.
Addressing the social determinants
                               of EQUITY
    Involves monitoring for inequities in exposures and
     opportunities, as well as for disparities in outcomes

    Involves examination of and intervention on the
     mechanisms of power
       Structures: the who?, what?, when?, and where? of
        decision-making
       Policies: the written how?
       Practices and norms: the unwritten how?
       Values: the why?

Source: Jones CP, Jones CY, Perry GS, Barclay G. Addressing the Social Determinants of Children’s Health: A Cliff Analogy.
J Health Care Poor Underserved 2009;20(4)Suppl:1-12.
Beyond individual behaviors
    Address the social determinants of health,
     including poverty, in order to achieve large and
     sustained improvements in health outcomes

    Address the social determinants of equity,
     including racism, in order to achieve social justice and
     eliminate health disparities




Source: Jones CP, Jones CY, Perry GS, Barclay G. Addressing the Social Determinants of Children’s Health: A Cliff Analogy.
J Health Care Poor Underserved 2009;20(4)Suppl:1-12.
Why racism?
    To eliminate racial disparities in health, need examine
     fundamental causes
        “Race” is only a rough proxy for social class, culture, or genes
        “Race” captures the social classification of people in our “race”-
         conscious society
    Hypothesize racism as a fundamental cause of racial
     disparities in health




Source: Jones CP. “Race”, Racism, and the Practice of Epidemiology. Am J Epidemiol 2001;154(4):299-304.
What is racism?
     A system




Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
What is racism?
     A system of structuring opportunity and assigning
     value




Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
What is racism?
     A system of structuring opportunity and assigning
     value based on the social interpretation of how we look
     (which is what we call “race”)




Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
What is racism?
     A system of structuring opportunity and assigning
     value based on the social interpretation of how we look
     (which is what we call “race”), that

        Disadvantages some individuals and communities




Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
What is racism?
     A system of structuring opportunity and assigning
     value based on the social interpretation of how we look
     (which is what we call “race”), that

        Disadvantages some individuals and communities
        Advantages other individuals and communities




Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
What is racism?
     A system of structuring opportunity and assigning
     value based on the social interpretation of how we look
     (which is what we call “race”), that

        Disadvantages some individuals and communities
        Advantages other individuals and communities
        Saps the strength of the whole society through the waste of
         human resources




Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
Levels of Racism
    Institutionalized
    Personally-mediated
    Internalized




Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
Institutionalized racism
    Differential access to the goods, services, and
     opportunities of society, by “race”

    Examples
          Housing, education, employment, income
          Medical facilities
          Clean environment
          Information, resources, voice


    Explains the association between social class and “race”

Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
Personally-mediated racism
    Differential assumptions about the abilities, motives,
     and intents of others, by “race”
    Differential actions based on those assumptions

    Prejudice and discrimination
    Examples
          Police brutality
          Physician disrespect
          Shopkeeper vigilance
          Waiter indifference
          Teacher devaluation
Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
Internalized racism
    Acceptance by the stigmatized “races” of negative
     messages about our own abilities and intrinsic worth

    Examples
        Self-devaluation
        White man’s ice is colder
        Resignation, helplessness, hopelessness


    Accepting limitations to our full humanity


Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
Levels of Racism: A Gardener’s Tale


Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
Who is the gardener?


                                                                            Power to decide
                                                                            Power to act
                                                                            Control of resources


                                                                        Dangerous when
                                                                            Allied with one group
                                                                            Not concerned with equity




Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
Measuring institutionalized racism
    Scan for evidence of “racial” disparities
        “Could racism be operating here?”
        Routinely monitor opportunities as well as outcomes by “race”


    Identify mechanisms
        “How is racism operating here?”
        Structures: the who?, what?, when?, and where?
         of decision-making
        Policies: the written how?
        Practices and norms: the unwritten how?
        Values: the why?

Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
“Reactions to Race” module
   Six-question optional module on the Behavioral Risk
    Factor Surveillance System since 2002

     “How do other people usually classify you in this country?”
     “How often do you think about your race?”
     Perceptions of differential treatment at work or when seeking
      health care
     Reports of physical symptoms or emotional upset as a result of
      “race”-based treatment
States using the “Reactions to Race” module
                        2002 to 2011 BRFSS




Arkansas, California, Colorado, Connecticut, Delaware, District of Columbia, Florida, Georgia, Indiana,
Kentucky, Massachusetts, Michigan, Mississippi, Nebraska, New Hampshire, New Mexico, North Carolina,
Ohio, Rhode Island, South Carolina, Tennessee, Vermont, Virginia, Washington, Wisconsin
States using the “Reactions to Race” module
Arkansas                       2004
California       2002
Colorado                       2004
Connecticut                                                              2010
Delaware         2002          2004   2005

DC                             2004
Florida          2002
Georgia                                                                  2010
Indiana                                                           2009
Kentucky                                                                 2010

Massachusetts                                2006          2008
Michigan                                     2006
Mississippi                    2004
Nebraska                                                   2008   2009
New Hampshire    2002

New Mexico       2002
North Carolina   2002
Ohio                    2003          2005                                      2011
Rhode Island                   2004                 2007                 2010
South Carolina          2003   2004

Tennessee                             2005
Vermont                                                    2008
Virginia                                                   2008
Washington                     2004
Wisconsin                      2004   2005   2006
States using the “Reactions to Race” module
Arkansas                       2004
California       2002
Colorado                       2004
Connecticut                                                              2010
Delaware         2002          2004   2005

DC                             2004
Florida          2002
Georgia                                                                  2010
Indiana                                                           2009
Kentucky                                                                 2010

Massachusetts                                2006          2008
Michigan                                     2006
Mississippi                    2004
Nebraska                                                   2008   2009
New Hampshire    2002

New Mexico       2002
North Carolina   2002
Ohio                    2003          2005                                      2011
Rhode Island                   2004                 2007                 2010
South Carolina          2003   2004

Tennessee                             2005
Vermont                                                    2008
Virginia                                                   2008
Washington                     2004
Wisconsin                      2004   2005   2006
Socially-assigned “race”
   How do other people usually classify you in this
    country? Would you say:

       White
       Black or African-American
       Hispanic or Latino
       Asian
       Native Hawaiian or Other Pacific Islander
       American Indian or Alaska Native
       Some other group
Socially-assigned “race”
    On-the-street “race” quickly and routinely assigned
     without benefit of queries about self-identification,
     ancestry, culture, or genetic endowment

    Ad hoc racial classification, an influential basis for
     interactions between individuals and institutions for
     centuries

    Substrate upon which racism operates


Source: Jones CP, Truman BI, Elam-Evans LD, Jones CA, Jones CY, Jiles R, Rumisha SF, Perry GS. Using “socially assigned race”
to probe White advantages in health status. Ethn Dis 2008;18(4):496-504.
General health status
   Would you say that in general your health is:

       Excellent
       Very good
       Good
       Fair
       Poor
General health status by socially-assigned "race", 2004 BRFSS
                         100
                         80
                         60
percent of respondents
                         40
                         20




                               58.3                43.7                  41.2                36.1
                         0




                               White               Black               Hispanic             AIAN
                                              Report excellent or very good health
General health status by socially-assigned "race", 2004 BRFSS
                         100
                         80
                         60
percent of respondents
                         40
                         20




                               58.3                43.7                  41.2                36.1
                         0




                               White               Black               Hispanic             AIAN
                                              Report excellent or very good health
General health status by socially-assigned "race", 2004 BRFSS

                                                   Report fair or poor health
                         100


                               13.9                21.5                   20.9               22.1
                         80
                         60
percent of respondents
                         40
                         20




                               58.3                43.7                   41.2               36.1
                         0




                               White               Black                Hispanic            AIAN
                                              Report excellent or very good health
General health status and “race”
   Being perceived as White is associated with better
    health
Self-identified ethnicity
   Are you Hispanic or Latino?

     Yes
     No
Self-identified “race”
   Which one or more of the following would you say is
    your race?

       White
       Black or African-American
       Asian
       Native Hawaiian or Other Pacific Islander
       American Indian or Alaska Native
       Other


   Which one of these groups would you say best
    represents your race?
Self-identified “race”/ethnicity
   Hispanic
     “Yes” to Hispanic/Latino ethnicity question
     Any response to race question
   White
     “No” to Hispanic/Latino ethnicity question
     Only one response to race question, “White”
   Black
     “No” to Hispanic/Latino ethnicity question
     Only one response to race question, “Black”
   American Indian/Alaska Native
     “No” to Hispanic/Latino ethnicity question
     Only one response to race question, “AI/AN”
Two measures of “race”
                              How usually classified by others
                             White    Black    Hispanic    AIAN   ...
                     White
                             98.4       0.1       0.3       0.1   1.1
                    26,373
How self-identify




                     Black
                              0.4      96.3       0.8       0.3   2.2
                     5,246
Two measures of “race”
                                How usually classified by others
                               White    Black    Hispanic    AIAN   ...
                      White
                               98.4       0.1       0.3       0.1   1.1
                     26,373
How self-identify




                      Black
                                0.4      96.3       0.8       0.3   2.2
                      5,246
                    Hispanic
                               26.8       3.5      63.0       1.2   5.5
                       1,528
Two measures of “race”
                                How usually classified by others
                               White    Black    Hispanic    AIAN   ...
                      White
                               98.4       0.1       0.3       0.1   1.1
                     26,373
How self-identify




                      Black
                                0.4      96.3       0.8       0.3   2.2
                      5,246
                    Hispanic
                               26.8       3.5      63.0       1.2   5.5
                       1,528
General health status, by self-identified and socially-assigned "race", 2004
                         100
                         80
percent of respondents
                         60




                                                                                                  58.6
                                                                         53.7



                                          39.8
                         40
                         20
                         0




                                    Hispanic-Hispanic               Hispanic-White             White-White
                                                        Report excellent or very good health
General health status, by self-identified and socially-assigned "race", 2004
                         100

                                 Test of H0: That there is no difference in proportions
                                 reporting excellent or very good health
                         80




                                 Hispanic-Hispanic versus White-White
                                 p < 0.0001
percent of respondents
                         60




                                                                                                  58.6




                                          39.8
                         40
                         20
                         0




                                    Hispanic-Hispanic                                          White-White
                                                        Report excellent or very good health
General health status, by self-identified and socially-assigned "race", 2004
                         100

                                 Test of H0: That there is no difference in proportions
                                 reporting excellent or very good health
                         80




                                 Hispanic-Hispanic versus Hispanic-White
                                 p = 0.0019
percent of respondents
                         60




                                                                         53.7



                                          39.8
                         40
                         20
                         0




                                    Hispanic-Hispanic               Hispanic-White
                                                        Report excellent or very good health
General health status, by self-identified and socially-assigned "race", 2004
                         100

                                 Test of H0: That there is no difference in proportions
                                 reporting excellent or very good health
                         80




                                 Hispanic-White versus White-White
                                 p = 0.1895
percent of respondents
                         60




                                                                                                58.6
                                                                      53.7
                         40
                         20
                         0




                                                                 Hispanic-White              White-White
                                                   Report excellent or very good health
Two measures of “race”
                                How usually classified by others
                               White    Black    Hispanic    AIAN   ...
                      White
                               98.4       0.1       0.3       0.1   1.1
                     26,373
How self-identify




                      Black
                                0.4      96.3       0.8       0.3   2.2
                      5,246
                    Hispanic
                               26.8       3.5      63.0       1.2   5.5
                       1,528
                       AIAN
                               47.6       3.4       7.3      35.9   5.8
                        321
Two measures of “race”
                                How usually classified by others
                               White    Black    Hispanic    AIAN   ...
                      White
                               98.4       0.1       0.3       0.1   1.1
                     26,373
How self-identify




                      Black
                                0.4      96.3       0.8       0.3   2.2
                      5,246
                    Hispanic
                               26.8       3.5      63.0       1.2   5.5
                       1,528
                       AIAN
                               47.6       3.4       7.3      35.9   5.8
                        321
General health status, by self-identified and socially-assigned "race", 2004
                         100
                         80
percent of respondents
                         60




                                                                                                58.6
                                                                     52.6
                         40




                                           32
                         20
                         0




                                       AIAN-AIAN                  AIAN-White                 White-White
                                                   Report excellent or very good health
General health status, by self-identified and socially-assigned "race", 2004
                         100

                                 Test of H0: That there is no difference in proportions
                                 reporting excellent or very good health
                         80




                                 AIAN-AIAN versus White-White
                                 p < 0.0001
percent of respondents
                         60




                                                                                                58.6
                         40




                                           32
                         20
                         0




                                       AIAN-AIAN                                             White-White
                                                   Report excellent or very good health
General health status, by self-identified and socially-assigned "race", 2004
                         100

                                 Test of H0: That there is no difference in proportions
                                 reporting excellent or very good health
                         80




                                 AIAN-AIAN versus AIAN-White
                                 p = 0.0122
percent of respondents
                         60




                                                                      52.6
                         40




                                           32
                         20
                         0




                                       AIAN-AIAN                  AIAN-White
                                                   Report excellent or very good health
General health status, by self-identified and socially-assigned "race", 2004
                         100

                                 Test of H0: That there is no difference in proportions
                                 reporting excellent or very good health
                         80




                                 AIAN-White versus White-White
                                 p = 0.3070
percent of respondents
                         60




                                                                                                58.6
                                                                      52.6
                         40
                         20
                         0




                                                                  AIAN-White                 White-White
                                                   Report excellent or very good health
Two measures of “race”
                                How usually classified by others
                               White    Black    Hispanic    AIAN   ...
                      White
                               98.4       0.1       0.3       0.1   1.1
                     26,373
How self-identify




                      Black
                                0.4      96.3       0.8       0.3   2.2
                      5,246
                    Hispanic
                               26.8       3.5      63.0       1.2   5.5
                       1,528
                       AIAN
                               47.6       3.4       7.3      35.9   5.8
                        321
                    > 1 race
                               59.5      22.5       3.8       5.3   8.9
                         406
Two measures of “race”
                                How usually classified by others
                               White    Black    Hispanic    AIAN   ...
                      White
                               98.4       0.1       0.3       0.1   1.1
                     26,373
How self-identify




                      Black
                                0.4      96.3       0.8       0.3   2.2
                      5,246
                    Hispanic
                               26.8       3.5      63.0       1.2   5.5
                       1,528
                       AIAN
                               47.6       3.4       7.3      35.9   5.8
                        321
                    > 1 race
                               59.5      22.5       3.8       5.3   8.9
                         406
General health status and “race”
   Being perceived as White is associated with better
    health
     Even within non-White self-identified “race”/ethnic groups
General health status and “race”
   Being perceived as White is associated with better
    health
     Even within non-White self-identified “race”/ethnic groups
     Even within the same educational level
General health status and “race”
   Being perceived as White is associated with better
    health
     Even within non-White self-identified “race”/ethnic groups
     Even within the same educational level


   Being perceived as White is associated with higher
    education
Key questions
   Why is socially-assigned “race” associated with self-
    rated general health status?
     Even within non-White self-identified “race”/ethnic groups
     Even within the same educational level


   Why is socially-assigned “race” associated with
    educational level?
Racism
     A system of structuring opportunity and assigning
     value based on the social interpretation of how we look
     (which is what we call “race”), that

        Disadvantages some individuals and communities
        Advantages other individuals and communities
        Saps the strength of the whole society through the waste of
         human resources



Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.

Source: Jones CP, Truman BI, Elam-Evans LD, Jones CA, Jones CY, Jiles R, Rumisha SF, Perry GS. Using “socially assigned race” to probe
White advantages in health status. Ethn Dis 2008;18(4):496-504.
What is [inequity] ?
A system of structuring opportunity and assigning
value based on [fill in the blank]
What is [inequity] ?
A system of structuring opportunity and assigning
value based on [fill in the blank], that

 Disadvantages some individuals and communities
 Advantages other individuals and communities
 Saps the strength of the whole society through the waste of
  human resources
Many possible axes of inequity
   “Race”
   Gender
   Ethnicity
   Labor roles and social class markers
   Nationality, language, and legal status
   Sexual orientation
   Disability status
   Geography
   Religion

These are risk markers
ICERD: International Convention on the
    Elimination of all forms of Racial Discrimination
   International anti-racism treaty adopted by the UN
    General Assembly in 1965
    http://www2.ohchr.org/english/law/cerd.htm


   US signed in 1966
   US ratified in 1994

   2nd US report submitted to the UN Committee on the
    Elimination of Racial Discrimination (CERD) in 2007
    http://www2.ohchr.org/english/bodies/cerd/docs/AdvanceVersion
    /cerd_c_usa6.doc
CERD Concluding Observations
   14-page document (8 May 2008) available online
    http://www.state.gov/documents/organization/107361.pdf

   Concerns and recommendations
       Racial profiling (para 14)
       Residential segregation (para 16)
       Disproportionate incarceration (para 20)
       Differential access to health care (para 32)
       Achievement gap in education (para 34)
Our goal: To expand the conversation
Health services
Our goal: To expand the conversation
Health services




Social determinants
of health
Our goal: To expand the conversation
Health services




Social determinants
of health




Social determinants
of equity




Source: Jones CP et al. J Health Care Poor Underserved 2009.
Camara Phyllis Jones, MD, MPH, PhD


(404) 374-3198 cell
(404) 498-1128 work

camara99@bellsouth.net
Barriers in moving the nation
                  to care about social justice
   A-historical culture
     The present as disconnected from the past
     Current distribution of advantage/disadvantage as happenstance
     Systems and structures as givens and immutable
   Narrow focus on the individual
       Self-interest narrowly defined
       Limited sense of interdependence
       Limited sense of collective efficacy
       Systems and structures as invisible or irrelevant
   “Myth of meritocracy”
     Role of hard work
     Denial of racism
     Two babies: Equal potential or equal opportunity?
Moving the nation
   Changing opportunity structures
       Understand the importance of history
       Challenge the narrow focus on the individual
       Expose the “myth of meritocracy”
       Acknowledge existence of systems and structures
       View systems and structures as modifiable
       Break down barriers to opportunity
       Build bridges to opportunity
       Transform consumers to citizens
       Intervene on decision-making processes
   Valuing all people equally
     Break out of bubbles to experience our common humanity
     Embrace ALL children as OUR children
Unpublished allegories
    Dual Reality: A Restaurant Saga
    Conveyor Belt: Stages of Anti-racism
    Japanese Lanterns: Colored Perceptions
    Understanding This Bus We Are On
    Bicycles on a Hill: Equal Opportunity?
    Bus Seating: The Permanence of Privilege
    Bus Survey: Who Counts?
    Airplane Seating: Invisible Tether



Source: Jones CP, unpublished allegories developed for course “Race” and Racism, Harvard School of Public Health, 1994 to 2000.
Resources
   National Partnership for Action to End Health
    Disparities
    Office of Minority Health, US Department of Health and Human
    Services
    http://www.minorityhealth.hhs.gov/npa/

     National Stakeholder Strategy for Achieving Health Equity
     HHS Action Plan to Reduce Racial and Ethnic Health Disparities


    Regional Health Equity Councils
    http://minorityhealth.hhs.gov/npa/templates/browse.aspx?lvl=1&
    lvlid=42#1
Resources
   Healthy People 2020
    http://www.healthypeople.gov/2020/default.aspx


    Overarching goals:
     Attain high-quality, longer lives free of preventable disease,
      disability, injury, and premature death.
     Achieve health equity, eliminate disparities, and improve the
      health of all groups.
     Create social and physical environments that promote good
      health for all.
     Promote quality of life, healthy development, and healthy
      behaviors across all life stages.
    42 topic areas, including 13 new ones
Resources
   National Prevention Strategy
    National Prevention, Health Promotion, and Public Health Council
    http://www.healthcare.gov/prevention/nphpphc
Resources
   US-Brazil Joint Action Plan to Eliminate Racial and
    Ethnic Discrimination and Promote Equality
    Five-year bilateral agreement signed in 2008
    http://www.state.gov/p/wha/rls/2008/111446.htm
    http://www.state.gov/p/wha/rt/social/brazil/index.htm


    Areas of focus
       Civil society engagement
       Economic opportunities and labor
       Education
       Environmental justice
       Health
       Justice
Resources
   CDC Racism and Health Workgroup
    rahw@cdc.gov


    Communications and Dissemination
    Education and Development
    Global Matters
    Liaison and Partnership
    Organizational Excellence
    Policy and Legislation
    Science and Publications
Resources
   Race: The Power of an Illusion
    California Newsreel
    http://www.pbs.org/race
    http://newsreel.org/video/RACE-THE-POWER-OF-AN-ILLUSION


   RACE – Are We So Different?
    American Anthropological Association
    http://www.understandingrace.org/home.html
Resources
   3rd World Conference Against Racism, Racial
    Discrimination, Xenophobia and Related Intolerance
    Convened by the United Nations in Durban, South Africa in 2001
    http://www.un.org/WCAR/


    Durban Declaration and Programme of Action
    http://www.un.org/WCAR/durban.pdf
Resources
   Unnatural Causes: Is Inequality Making Us Sick?
    California Newsreel
    http://www.unnaturalcauses.org


   Closing the gap in a generation: Health equity through
    action on the social determinants of health
    WHO Commission on Social Determinants of Health
    http://www.who.int/social_determinants/thecommission/finalrep
    ort/en/index.html
Resources
   World Conference on Social Determinants of Health
    Convened by the World Health Organization in Rio de Janeiro,
    Brasil in 2011
    http://www.who.int/sdhconference/en/


    Rio Political Declaration on Social Determinants of
    Health
    http://www.who.int/sdhconference/declaration/en/
Resources
   International Convention on the Elimination of all
    forms of Racial Discrimination (ICERD)
    Adopted by the United Nations General Assembly in 1965
    http://www2.ohchr.org/english/law/cerd.htm


   Committee to Eliminate Racial Discrimination (CERD)
    Office of the United Nations High Commissioner for Human Rights
    http://www2.ohchr.org/english/bodies/cerd/
Resources
   2007 USA State Department report to the CERD
    http://www2.ohchr.org/english/bodies/cerd/docs/AdvanceVersion
    /cerd_c_usa6.doc


   2007 NGO shadow reports to the CERD
    http://www2.ohchr.org/english/bodies/cerd/cerds72-ngos-
    usa.htm


   2008 CERD Concluding Observations to the USA
    http://www.state.gov/documents/organization/107361.pdf
Resources
   Report of the Secretary’s Task Force on Black and
    Minority Health
    Margaret M. Heckler, Secretary
    U.S. Department of Health and Human Services
    http://collections.nlm.nih.gov/ext/heckler/8602912V1/PDF/86029
    12V1.pdf


   Unequal Treatment: Confronting Racial and Ethnic
    Disparities in Health Care
    Brian D. Smedley, Adrienne Y. Stith, Alan R. Nelson, Editors
    Institute of Medicine of the National Academies
    http://www.nap.edu/openbook.php?isbn=030908265X
Resources
   The Gardener’s Tale podcast
    CityMatCH Health Equity and Social Justice Action Group
    http://www.citymatch.org/UR_tale.php


   International Coalition of Cities Against Racism
    United Nations Educational, Scientific and Cultural Organization
    http://www.unesco.org/new/en/social-and-human-
    sciences/themes/human-rights/fight-against-
    discrimination/coalition-of-cities/
Camara Phyllis Jones, MD, MPH, PhD


(404) 374-3198 cell
(404) 498-1128 work

camara99@bellsouth.net
Policies of interest
    Policies allowing segregation of resources and risks

    Policies creating inherited group disadvantage

    Policies favoring the differential valuation of human
     life by “race”

    Policies limiting self-determination



Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
Policies allowing segregation of
resources and risks

Redlining, municipal zoning, toxic dump siting

Use of local property taxes to fund public education
Policies creating inherited group
disadvantage

Lack of social security for children

Estate inheritance

Lack of reparations for historical injustices
Policies favoring the differential
valuation of human life by “race”

Curriculum

Media invisibility / hypervisibility

Myth of meritocracy and denial of racism
Policies limiting self-determination


De jure and de facto limitations to voting rights

“Majority rules” when there is a fixed minority
Camara Phyllis Jones, MD, MPH, PhD


(404) 374-3198 cell
(404) 498-1128 work

camara99@bellsouth.net
Achieving health equity
    “Health equity” is assurance of the conditions for
     optimal health for all people

    Achieving health equity requires
        Valuing all individuals and populations equally
        Recognizing and rectifying historical injustices
        Providing resources according to need


    Health disparities will be eliminated when health
     equity is achieved

Source: Jones CP 2010, adapted from the National Partnership for Action to End Health Disparities
Our tasks
   Put racism on the agenda
     Name racism as a force determining the other social determinants
      of health
     Routinely monitor for differential exposures, opportunities, and
      outcomes by “race”
Our tasks
   Ask , “How is racism operating here?”
     Identify mechanisms in structures, policies, practices, norms, and
      values
     Attend to both what exists and what is lacking
Our tasks
   Organize and strategize to act
     Join in grassroots organizing around the conditions of people’s
      lives
     Identify the structural factors creating and perpetuating those
      conditions
     Link with similar efforts across the country and around the world
Camara Phyllis Jones, MD, MPH, PhD


(404) 374-3198 cell
(404) 498-1128 work

camara99@bellsouth.net
What is racism?
“Racism includes racist ideologies, prejudiced attitudes,
  discriminatory behavior, structural arrangements and
  institutionalized practices resulting in racial inequality
  as well as the fallacious notion that discriminatory
  relations between groups are morally and scientifically
  justifiable;

“it is reflected in discriminatory provisions in legislation
   or regulations and discriminatory practices as well as in
   anti-social beliefs and acts;


Source: United Nations Educational, Cultural, and Scientific Organization, 1978.
What is racism?
“it hinders the development of its victims, perverts those
   who practice it, divides nations internally, impedes
   international co-operation and gives rise to political
   tensions between peoples;

“it is contrary to the fundamental principles of
   international law and, consequently, seriously disturbs
   international peace and security.”




Source: United Nations Educational, Cultural, and Scientific Organization, 1978.
Camara Phyllis Jones, MD, MPH, PhD


(404) 374-3198 cell
(404) 498-1128 work

camara99@bellsouth.net

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Addressing Racism as a Threat to the Health and Well-Being of Our Nation

  • 1. Health begins where we live, learn, work, and play Addressing racism as a threat to the health and well-being of our nation Camara Phyllis Jones, MD, MPH, PhD Social Determinants of Health and Equity Leadership Challenge Fairfax, Virginia September 17, 2012
  • 2. Levels of health intervention Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 3. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 4. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 5. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 6. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 7. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 8. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 9. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 10. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 11. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 12. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 13. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 14. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 15. Addressing the Primary prevention social determinants of health Safety net programs and secondary prevention Medical care and tertiary prevention Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 16. But how do disparities arise?  Differences in the quality of care received within the health care system  Differences in access to health care, including preventive and curative services  Differences in life opportunities, exposures, and stresses that result in differences in underlying health status Source: Smedley BD, Stith AY, Nelson AR (editors). Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. Washington, DC: The National Academies Press, 2002. Source: Byrd WM, Clayton LA. An American Health Dilemma: Race, Medicine, and Health Care in the United States, 1900-2000. New York, NY: Routledge, 2002. Source: Phelan JC, Link BG, Tehranifar P. Social Conditions as Fundamental Causes of Health Inequalities. J Health Soc Behav 2010;51(S):S28-S40.
  • 17. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 18. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 19. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 20. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 21. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 22. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 23. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 24. Differences in Differences in access to care exposures and opportunities Differences in quality of care (ambulance slow or goes the wrong way) Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 25. Addressing the social determinants of equity: Why are there differences in resources along the cliff face? Why are there differences in who is found at different parts of the cliff? Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 26. 3 dimensions of health intervention Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 27. 3 dimensions of health intervention Health services Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 28. 3 dimensions of health intervention Health services Addressing social determinants of health Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 29. 3 dimensions of health intervention Health services Addressing social determinants of health Addressing social determinants of equity Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 30. Determinants of health Individual behaviors Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 31. Determinants of health Social determinants of health (contexts) Individual behaviors Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 32. Determinants of health Determinants of health and illness that are Social determinants outside of the of health (contexts) individual Individual Beyond genetic behaviors predispositions Beyond individual behaviors Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 33. Determinants of health Determinants The contexts in of health and which illness that are individual Social determinants outside of the of health (contexts) behaviors arise individual Individual Beyond genetic behaviors predispositions Beyond individual behaviors Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 34. Determinants of health Individual resources Education, Social determinants occupation, of health (contexts) income, wealth Individual behaviors Source: CSDH. Closing the gap in a generation: health equity through action on the social determinants of health. Final Report of the Commission on Social Determinants of Health. Geneva: World Health Organization, 2008. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 35. Determinants of health Individual resources Education, Social determinants occupation, of health (contexts) income, wealth Neighborhood Individual resources behaviors Housing, food choices, public safety, transportation, parks and recreation, political clout Source: CSDH. Closing the gap in a generation: health equity through action on the social determinants of health. Final Report of the Commission on Social Determinants of Health. Geneva: World Health Organization, 2008. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 36. Determinants of health Individual Hazards and resources toxic exposures Education, Social determinants Pesticides, lead, occupation, of health (contexts) reservoirs of income, wealth infection Neighborhood Individual resources behaviors Housing, food choices, public safety, transportation, parks and recreation, political clout Source: CSDH. Closing the gap in a generation: health equity through action on the social determinants of health. Final Report of the Commission on Social Determinants of Health. Geneva: World Health Organization, 2008. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 37. Determinants of health Individual Hazards and resources toxic exposures Education, Social determinants Pesticides, lead, occupation, of health (contexts) reservoirs of income, wealth infection Neighborhood Opportunity Individual resources behaviors structures Housing, food Schools, jobs, choices, public justice safety, transportation, parks and recreation, political clout Source: CSDH. Closing the gap in a generation: health equity through action on the social determinants of health. Final Report of the Commission on Social Determinants of Health. Geneva: World Health Organization, 2008. Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 38. Determinants of health Structural determinants of context Social determinants of health (contexts) Individual behaviors Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 39. Determinants of health Determine the range of observed contexts Structural determinants of context Social determinants of health (contexts) Individual behaviors Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 40. Determinants of health Determine the range of observed contexts Structural determinants of context Social determinants of health (contexts) Individual behaviors Determine the distribution of different populations into those contexts Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 41. Determinants of health Determine the Include economic range of systems, racism, observed contexts and other systems Structural determinants of context of power Social determinants of health (contexts) Individual behaviors Determine the distribution of different populations into those contexts Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 42. Determinants of health Determine the Include economic range of systems, racism, observed contexts and other systems Structural determinants of context of power Social determinants of health (contexts) Individual behaviors Determine the The social distribution of determinants of different populations equity into those contexts Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 43. Addressing the social determinants of HEALTH  Involves the medical care and public health systems, but clearly extends beyond these  Requires collaboration with multiple sectors outside of health, including education, housing, labor, justice, transportation, agriculture, immigration, and environment Source: National Prevention Council. National Prevention Strategy. Washington, DC: U.S. Department of Health and Human Services, Office of the Surgeon General, 2011. Source: Jones CP, Jones CY, Perry GS, Barclay G. Addressing the Social Determinants of Children’s Health: A Cliff Analogy. J Health Care Poor Underserved 2009;20(4)Suppl:1-12.
  • 44. Addressing the social determinants of EQUITY  Involves monitoring for inequities in exposures and opportunities, as well as for disparities in outcomes  Involves examination of and intervention on the mechanisms of power  Structures: the who?, what?, when?, and where? of decision-making  Policies: the written how?  Practices and norms: the unwritten how?  Values: the why? Source: Jones CP, Jones CY, Perry GS, Barclay G. Addressing the Social Determinants of Children’s Health: A Cliff Analogy. J Health Care Poor Underserved 2009;20(4)Suppl:1-12.
  • 45. Beyond individual behaviors  Address the social determinants of health, including poverty, in order to achieve large and sustained improvements in health outcomes  Address the social determinants of equity, including racism, in order to achieve social justice and eliminate health disparities Source: Jones CP, Jones CY, Perry GS, Barclay G. Addressing the Social Determinants of Children’s Health: A Cliff Analogy. J Health Care Poor Underserved 2009;20(4)Suppl:1-12.
  • 46. Why racism?  To eliminate racial disparities in health, need examine fundamental causes  “Race” is only a rough proxy for social class, culture, or genes  “Race” captures the social classification of people in our “race”- conscious society  Hypothesize racism as a fundamental cause of racial disparities in health Source: Jones CP. “Race”, Racism, and the Practice of Epidemiology. Am J Epidemiol 2001;154(4):299-304.
  • 47. What is racism? A system Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
  • 48. What is racism? A system of structuring opportunity and assigning value Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
  • 49. What is racism? A system of structuring opportunity and assigning value based on the social interpretation of how we look (which is what we call “race”) Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
  • 50. What is racism? A system of structuring opportunity and assigning value based on the social interpretation of how we look (which is what we call “race”), that  Disadvantages some individuals and communities Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
  • 51. What is racism? A system of structuring opportunity and assigning value based on the social interpretation of how we look (which is what we call “race”), that  Disadvantages some individuals and communities  Advantages other individuals and communities Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
  • 52. What is racism? A system of structuring opportunity and assigning value based on the social interpretation of how we look (which is what we call “race”), that  Disadvantages some individuals and communities  Advantages other individuals and communities  Saps the strength of the whole society through the waste of human resources Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
  • 53. Levels of Racism  Institutionalized  Personally-mediated  Internalized Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
  • 54. Institutionalized racism  Differential access to the goods, services, and opportunities of society, by “race”  Examples  Housing, education, employment, income  Medical facilities  Clean environment  Information, resources, voice  Explains the association between social class and “race” Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
  • 55. Personally-mediated racism  Differential assumptions about the abilities, motives, and intents of others, by “race”  Differential actions based on those assumptions  Prejudice and discrimination  Examples  Police brutality  Physician disrespect  Shopkeeper vigilance  Waiter indifference  Teacher devaluation Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
  • 56. Internalized racism  Acceptance by the stigmatized “races” of negative messages about our own abilities and intrinsic worth  Examples  Self-devaluation  White man’s ice is colder  Resignation, helplessness, hopelessness  Accepting limitations to our full humanity Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
  • 57. Levels of Racism: A Gardener’s Tale Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
  • 58. Who is the gardener?  Power to decide  Power to act  Control of resources  Dangerous when  Allied with one group  Not concerned with equity Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
  • 59. Measuring institutionalized racism  Scan for evidence of “racial” disparities  “Could racism be operating here?”  Routinely monitor opportunities as well as outcomes by “race”  Identify mechanisms  “How is racism operating here?”  Structures: the who?, what?, when?, and where? of decision-making  Policies: the written how?  Practices and norms: the unwritten how?  Values: the why? Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
  • 60. “Reactions to Race” module  Six-question optional module on the Behavioral Risk Factor Surveillance System since 2002  “How do other people usually classify you in this country?”  “How often do you think about your race?”  Perceptions of differential treatment at work or when seeking health care  Reports of physical symptoms or emotional upset as a result of “race”-based treatment
  • 61. States using the “Reactions to Race” module 2002 to 2011 BRFSS Arkansas, California, Colorado, Connecticut, Delaware, District of Columbia, Florida, Georgia, Indiana, Kentucky, Massachusetts, Michigan, Mississippi, Nebraska, New Hampshire, New Mexico, North Carolina, Ohio, Rhode Island, South Carolina, Tennessee, Vermont, Virginia, Washington, Wisconsin
  • 62. States using the “Reactions to Race” module Arkansas 2004 California 2002 Colorado 2004 Connecticut 2010 Delaware 2002 2004 2005 DC 2004 Florida 2002 Georgia 2010 Indiana 2009 Kentucky 2010 Massachusetts 2006 2008 Michigan 2006 Mississippi 2004 Nebraska 2008 2009 New Hampshire 2002 New Mexico 2002 North Carolina 2002 Ohio 2003 2005 2011 Rhode Island 2004 2007 2010 South Carolina 2003 2004 Tennessee 2005 Vermont 2008 Virginia 2008 Washington 2004 Wisconsin 2004 2005 2006
  • 63. States using the “Reactions to Race” module Arkansas 2004 California 2002 Colorado 2004 Connecticut 2010 Delaware 2002 2004 2005 DC 2004 Florida 2002 Georgia 2010 Indiana 2009 Kentucky 2010 Massachusetts 2006 2008 Michigan 2006 Mississippi 2004 Nebraska 2008 2009 New Hampshire 2002 New Mexico 2002 North Carolina 2002 Ohio 2003 2005 2011 Rhode Island 2004 2007 2010 South Carolina 2003 2004 Tennessee 2005 Vermont 2008 Virginia 2008 Washington 2004 Wisconsin 2004 2005 2006
  • 64. Socially-assigned “race”  How do other people usually classify you in this country? Would you say:  White  Black or African-American  Hispanic or Latino  Asian  Native Hawaiian or Other Pacific Islander  American Indian or Alaska Native  Some other group
  • 65. Socially-assigned “race”  On-the-street “race” quickly and routinely assigned without benefit of queries about self-identification, ancestry, culture, or genetic endowment  Ad hoc racial classification, an influential basis for interactions between individuals and institutions for centuries  Substrate upon which racism operates Source: Jones CP, Truman BI, Elam-Evans LD, Jones CA, Jones CY, Jiles R, Rumisha SF, Perry GS. Using “socially assigned race” to probe White advantages in health status. Ethn Dis 2008;18(4):496-504.
  • 66. General health status  Would you say that in general your health is:  Excellent  Very good  Good  Fair  Poor
  • 67. General health status by socially-assigned "race", 2004 BRFSS 100 80 60 percent of respondents 40 20 58.3 43.7 41.2 36.1 0 White Black Hispanic AIAN Report excellent or very good health
  • 68. General health status by socially-assigned "race", 2004 BRFSS 100 80 60 percent of respondents 40 20 58.3 43.7 41.2 36.1 0 White Black Hispanic AIAN Report excellent or very good health
  • 69. General health status by socially-assigned "race", 2004 BRFSS Report fair or poor health 100 13.9 21.5 20.9 22.1 80 60 percent of respondents 40 20 58.3 43.7 41.2 36.1 0 White Black Hispanic AIAN Report excellent or very good health
  • 70. General health status and “race”  Being perceived as White is associated with better health
  • 71. Self-identified ethnicity  Are you Hispanic or Latino?  Yes  No
  • 72. Self-identified “race”  Which one or more of the following would you say is your race?  White  Black or African-American  Asian  Native Hawaiian or Other Pacific Islander  American Indian or Alaska Native  Other  Which one of these groups would you say best represents your race?
  • 73. Self-identified “race”/ethnicity  Hispanic  “Yes” to Hispanic/Latino ethnicity question  Any response to race question  White  “No” to Hispanic/Latino ethnicity question  Only one response to race question, “White”  Black  “No” to Hispanic/Latino ethnicity question  Only one response to race question, “Black”  American Indian/Alaska Native  “No” to Hispanic/Latino ethnicity question  Only one response to race question, “AI/AN”
  • 74. Two measures of “race” How usually classified by others White Black Hispanic AIAN ... White 98.4 0.1 0.3 0.1 1.1 26,373 How self-identify Black 0.4 96.3 0.8 0.3 2.2 5,246
  • 75. Two measures of “race” How usually classified by others White Black Hispanic AIAN ... White 98.4 0.1 0.3 0.1 1.1 26,373 How self-identify Black 0.4 96.3 0.8 0.3 2.2 5,246 Hispanic 26.8 3.5 63.0 1.2 5.5 1,528
  • 76. Two measures of “race” How usually classified by others White Black Hispanic AIAN ... White 98.4 0.1 0.3 0.1 1.1 26,373 How self-identify Black 0.4 96.3 0.8 0.3 2.2 5,246 Hispanic 26.8 3.5 63.0 1.2 5.5 1,528
  • 77. General health status, by self-identified and socially-assigned "race", 2004 100 80 percent of respondents 60 58.6 53.7 39.8 40 20 0 Hispanic-Hispanic Hispanic-White White-White Report excellent or very good health
  • 78. General health status, by self-identified and socially-assigned "race", 2004 100 Test of H0: That there is no difference in proportions reporting excellent or very good health 80 Hispanic-Hispanic versus White-White p < 0.0001 percent of respondents 60 58.6 39.8 40 20 0 Hispanic-Hispanic White-White Report excellent or very good health
  • 79. General health status, by self-identified and socially-assigned "race", 2004 100 Test of H0: That there is no difference in proportions reporting excellent or very good health 80 Hispanic-Hispanic versus Hispanic-White p = 0.0019 percent of respondents 60 53.7 39.8 40 20 0 Hispanic-Hispanic Hispanic-White Report excellent or very good health
  • 80. General health status, by self-identified and socially-assigned "race", 2004 100 Test of H0: That there is no difference in proportions reporting excellent or very good health 80 Hispanic-White versus White-White p = 0.1895 percent of respondents 60 58.6 53.7 40 20 0 Hispanic-White White-White Report excellent or very good health
  • 81. Two measures of “race” How usually classified by others White Black Hispanic AIAN ... White 98.4 0.1 0.3 0.1 1.1 26,373 How self-identify Black 0.4 96.3 0.8 0.3 2.2 5,246 Hispanic 26.8 3.5 63.0 1.2 5.5 1,528 AIAN 47.6 3.4 7.3 35.9 5.8 321
  • 82. Two measures of “race” How usually classified by others White Black Hispanic AIAN ... White 98.4 0.1 0.3 0.1 1.1 26,373 How self-identify Black 0.4 96.3 0.8 0.3 2.2 5,246 Hispanic 26.8 3.5 63.0 1.2 5.5 1,528 AIAN 47.6 3.4 7.3 35.9 5.8 321
  • 83. General health status, by self-identified and socially-assigned "race", 2004 100 80 percent of respondents 60 58.6 52.6 40 32 20 0 AIAN-AIAN AIAN-White White-White Report excellent or very good health
  • 84. General health status, by self-identified and socially-assigned "race", 2004 100 Test of H0: That there is no difference in proportions reporting excellent or very good health 80 AIAN-AIAN versus White-White p < 0.0001 percent of respondents 60 58.6 40 32 20 0 AIAN-AIAN White-White Report excellent or very good health
  • 85. General health status, by self-identified and socially-assigned "race", 2004 100 Test of H0: That there is no difference in proportions reporting excellent or very good health 80 AIAN-AIAN versus AIAN-White p = 0.0122 percent of respondents 60 52.6 40 32 20 0 AIAN-AIAN AIAN-White Report excellent or very good health
  • 86. General health status, by self-identified and socially-assigned "race", 2004 100 Test of H0: That there is no difference in proportions reporting excellent or very good health 80 AIAN-White versus White-White p = 0.3070 percent of respondents 60 58.6 52.6 40 20 0 AIAN-White White-White Report excellent or very good health
  • 87. Two measures of “race” How usually classified by others White Black Hispanic AIAN ... White 98.4 0.1 0.3 0.1 1.1 26,373 How self-identify Black 0.4 96.3 0.8 0.3 2.2 5,246 Hispanic 26.8 3.5 63.0 1.2 5.5 1,528 AIAN 47.6 3.4 7.3 35.9 5.8 321 > 1 race 59.5 22.5 3.8 5.3 8.9 406
  • 88. Two measures of “race” How usually classified by others White Black Hispanic AIAN ... White 98.4 0.1 0.3 0.1 1.1 26,373 How self-identify Black 0.4 96.3 0.8 0.3 2.2 5,246 Hispanic 26.8 3.5 63.0 1.2 5.5 1,528 AIAN 47.6 3.4 7.3 35.9 5.8 321 > 1 race 59.5 22.5 3.8 5.3 8.9 406
  • 89. General health status and “race”  Being perceived as White is associated with better health  Even within non-White self-identified “race”/ethnic groups
  • 90. General health status and “race”  Being perceived as White is associated with better health  Even within non-White self-identified “race”/ethnic groups  Even within the same educational level
  • 91. General health status and “race”  Being perceived as White is associated with better health  Even within non-White self-identified “race”/ethnic groups  Even within the same educational level  Being perceived as White is associated with higher education
  • 92. Key questions  Why is socially-assigned “race” associated with self- rated general health status?  Even within non-White self-identified “race”/ethnic groups  Even within the same educational level  Why is socially-assigned “race” associated with educational level?
  • 93. Racism A system of structuring opportunity and assigning value based on the social interpretation of how we look (which is what we call “race”), that  Disadvantages some individuals and communities  Advantages other individuals and communities  Saps the strength of the whole society through the waste of human resources Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22. Source: Jones CP, Truman BI, Elam-Evans LD, Jones CA, Jones CY, Jiles R, Rumisha SF, Perry GS. Using “socially assigned race” to probe White advantages in health status. Ethn Dis 2008;18(4):496-504.
  • 94. What is [inequity] ? A system of structuring opportunity and assigning value based on [fill in the blank]
  • 95. What is [inequity] ? A system of structuring opportunity and assigning value based on [fill in the blank], that  Disadvantages some individuals and communities  Advantages other individuals and communities  Saps the strength of the whole society through the waste of human resources
  • 96. Many possible axes of inequity  “Race”  Gender  Ethnicity  Labor roles and social class markers  Nationality, language, and legal status  Sexual orientation  Disability status  Geography  Religion These are risk markers
  • 97. ICERD: International Convention on the Elimination of all forms of Racial Discrimination  International anti-racism treaty adopted by the UN General Assembly in 1965 http://www2.ohchr.org/english/law/cerd.htm  US signed in 1966  US ratified in 1994  2nd US report submitted to the UN Committee on the Elimination of Racial Discrimination (CERD) in 2007 http://www2.ohchr.org/english/bodies/cerd/docs/AdvanceVersion /cerd_c_usa6.doc
  • 98. CERD Concluding Observations  14-page document (8 May 2008) available online http://www.state.gov/documents/organization/107361.pdf  Concerns and recommendations  Racial profiling (para 14)  Residential segregation (para 16)  Disproportionate incarceration (para 20)  Differential access to health care (para 32)  Achievement gap in education (para 34)
  • 99. Our goal: To expand the conversation Health services
  • 100. Our goal: To expand the conversation Health services Social determinants of health
  • 101. Our goal: To expand the conversation Health services Social determinants of health Social determinants of equity Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 102. Camara Phyllis Jones, MD, MPH, PhD (404) 374-3198 cell (404) 498-1128 work camara99@bellsouth.net
  • 103. Barriers in moving the nation to care about social justice  A-historical culture  The present as disconnected from the past  Current distribution of advantage/disadvantage as happenstance  Systems and structures as givens and immutable  Narrow focus on the individual  Self-interest narrowly defined  Limited sense of interdependence  Limited sense of collective efficacy  Systems and structures as invisible or irrelevant  “Myth of meritocracy”  Role of hard work  Denial of racism  Two babies: Equal potential or equal opportunity?
  • 104. Moving the nation  Changing opportunity structures  Understand the importance of history  Challenge the narrow focus on the individual  Expose the “myth of meritocracy”  Acknowledge existence of systems and structures  View systems and structures as modifiable  Break down barriers to opportunity  Build bridges to opportunity  Transform consumers to citizens  Intervene on decision-making processes  Valuing all people equally  Break out of bubbles to experience our common humanity  Embrace ALL children as OUR children
  • 105. Unpublished allegories  Dual Reality: A Restaurant Saga  Conveyor Belt: Stages of Anti-racism  Japanese Lanterns: Colored Perceptions  Understanding This Bus We Are On  Bicycles on a Hill: Equal Opportunity?  Bus Seating: The Permanence of Privilege  Bus Survey: Who Counts?  Airplane Seating: Invisible Tether Source: Jones CP, unpublished allegories developed for course “Race” and Racism, Harvard School of Public Health, 1994 to 2000.
  • 106. Resources  National Partnership for Action to End Health Disparities Office of Minority Health, US Department of Health and Human Services http://www.minorityhealth.hhs.gov/npa/  National Stakeholder Strategy for Achieving Health Equity  HHS Action Plan to Reduce Racial and Ethnic Health Disparities Regional Health Equity Councils http://minorityhealth.hhs.gov/npa/templates/browse.aspx?lvl=1& lvlid=42#1
  • 107. Resources  Healthy People 2020 http://www.healthypeople.gov/2020/default.aspx Overarching goals:  Attain high-quality, longer lives free of preventable disease, disability, injury, and premature death.  Achieve health equity, eliminate disparities, and improve the health of all groups.  Create social and physical environments that promote good health for all.  Promote quality of life, healthy development, and healthy behaviors across all life stages. 42 topic areas, including 13 new ones
  • 108. Resources  National Prevention Strategy National Prevention, Health Promotion, and Public Health Council http://www.healthcare.gov/prevention/nphpphc
  • 109. Resources  US-Brazil Joint Action Plan to Eliminate Racial and Ethnic Discrimination and Promote Equality Five-year bilateral agreement signed in 2008 http://www.state.gov/p/wha/rls/2008/111446.htm http://www.state.gov/p/wha/rt/social/brazil/index.htm Areas of focus  Civil society engagement  Economic opportunities and labor  Education  Environmental justice  Health  Justice
  • 110. Resources  CDC Racism and Health Workgroup rahw@cdc.gov Communications and Dissemination Education and Development Global Matters Liaison and Partnership Organizational Excellence Policy and Legislation Science and Publications
  • 111. Resources  Race: The Power of an Illusion California Newsreel http://www.pbs.org/race http://newsreel.org/video/RACE-THE-POWER-OF-AN-ILLUSION  RACE – Are We So Different? American Anthropological Association http://www.understandingrace.org/home.html
  • 112. Resources  3rd World Conference Against Racism, Racial Discrimination, Xenophobia and Related Intolerance Convened by the United Nations in Durban, South Africa in 2001 http://www.un.org/WCAR/ Durban Declaration and Programme of Action http://www.un.org/WCAR/durban.pdf
  • 113. Resources  Unnatural Causes: Is Inequality Making Us Sick? California Newsreel http://www.unnaturalcauses.org  Closing the gap in a generation: Health equity through action on the social determinants of health WHO Commission on Social Determinants of Health http://www.who.int/social_determinants/thecommission/finalrep ort/en/index.html
  • 114. Resources  World Conference on Social Determinants of Health Convened by the World Health Organization in Rio de Janeiro, Brasil in 2011 http://www.who.int/sdhconference/en/ Rio Political Declaration on Social Determinants of Health http://www.who.int/sdhconference/declaration/en/
  • 115. Resources  International Convention on the Elimination of all forms of Racial Discrimination (ICERD) Adopted by the United Nations General Assembly in 1965 http://www2.ohchr.org/english/law/cerd.htm  Committee to Eliminate Racial Discrimination (CERD) Office of the United Nations High Commissioner for Human Rights http://www2.ohchr.org/english/bodies/cerd/
  • 116. Resources  2007 USA State Department report to the CERD http://www2.ohchr.org/english/bodies/cerd/docs/AdvanceVersion /cerd_c_usa6.doc  2007 NGO shadow reports to the CERD http://www2.ohchr.org/english/bodies/cerd/cerds72-ngos- usa.htm  2008 CERD Concluding Observations to the USA http://www.state.gov/documents/organization/107361.pdf
  • 117. Resources  Report of the Secretary’s Task Force on Black and Minority Health Margaret M. Heckler, Secretary U.S. Department of Health and Human Services http://collections.nlm.nih.gov/ext/heckler/8602912V1/PDF/86029 12V1.pdf  Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care Brian D. Smedley, Adrienne Y. Stith, Alan R. Nelson, Editors Institute of Medicine of the National Academies http://www.nap.edu/openbook.php?isbn=030908265X
  • 118. Resources  The Gardener’s Tale podcast CityMatCH Health Equity and Social Justice Action Group http://www.citymatch.org/UR_tale.php  International Coalition of Cities Against Racism United Nations Educational, Scientific and Cultural Organization http://www.unesco.org/new/en/social-and-human- sciences/themes/human-rights/fight-against- discrimination/coalition-of-cities/
  • 119. Camara Phyllis Jones, MD, MPH, PhD (404) 374-3198 cell (404) 498-1128 work camara99@bellsouth.net
  • 120. Policies of interest  Policies allowing segregation of resources and risks  Policies creating inherited group disadvantage  Policies favoring the differential valuation of human life by “race”  Policies limiting self-determination Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
  • 121. Policies allowing segregation of resources and risks Redlining, municipal zoning, toxic dump siting Use of local property taxes to fund public education
  • 122. Policies creating inherited group disadvantage Lack of social security for children Estate inheritance Lack of reparations for historical injustices
  • 123. Policies favoring the differential valuation of human life by “race” Curriculum Media invisibility / hypervisibility Myth of meritocracy and denial of racism
  • 124. Policies limiting self-determination De jure and de facto limitations to voting rights “Majority rules” when there is a fixed minority
  • 125. Camara Phyllis Jones, MD, MPH, PhD (404) 374-3198 cell (404) 498-1128 work camara99@bellsouth.net
  • 126. Achieving health equity  “Health equity” is assurance of the conditions for optimal health for all people  Achieving health equity requires  Valuing all individuals and populations equally  Recognizing and rectifying historical injustices  Providing resources according to need  Health disparities will be eliminated when health equity is achieved Source: Jones CP 2010, adapted from the National Partnership for Action to End Health Disparities
  • 127. Our tasks  Put racism on the agenda  Name racism as a force determining the other social determinants of health  Routinely monitor for differential exposures, opportunities, and outcomes by “race”
  • 128. Our tasks  Ask , “How is racism operating here?”  Identify mechanisms in structures, policies, practices, norms, and values  Attend to both what exists and what is lacking
  • 129. Our tasks  Organize and strategize to act  Join in grassroots organizing around the conditions of people’s lives  Identify the structural factors creating and perpetuating those conditions  Link with similar efforts across the country and around the world
  • 130. Camara Phyllis Jones, MD, MPH, PhD (404) 374-3198 cell (404) 498-1128 work camara99@bellsouth.net
  • 131. What is racism? “Racism includes racist ideologies, prejudiced attitudes, discriminatory behavior, structural arrangements and institutionalized practices resulting in racial inequality as well as the fallacious notion that discriminatory relations between groups are morally and scientifically justifiable; “it is reflected in discriminatory provisions in legislation or regulations and discriminatory practices as well as in anti-social beliefs and acts; Source: United Nations Educational, Cultural, and Scientific Organization, 1978.
  • 132. What is racism? “it hinders the development of its victims, perverts those who practice it, divides nations internally, impedes international co-operation and gives rise to political tensions between peoples; “it is contrary to the fundamental principles of international law and, consequently, seriously disturbs international peace and security.” Source: United Nations Educational, Cultural, and Scientific Organization, 1978.
  • 133. Camara Phyllis Jones, MD, MPH, PhD (404) 374-3198 cell (404) 498-1128 work camara99@bellsouth.net