1. The Internet of Human Beings
Nov 9-12 , 2014 | California
Exponential Big Data = Self Organizing Genomes With Real Time Consent
Alice Rathjen © 2014 -

2. Gene Patents
De-Identified Data
Governments Jurisdiction – with some govts owning/selling their populations genomes
Self- Organizing Genomes with Real time Consent
1st Genome
Alice Rathjen © 2014
-
2nd Genome
3rd Genome
4th Genome
The Evolution of Our Digital Humanity
Digital Citizenship & Human Autonomy
The Emergence of Digital Human Rights

3. The Current Web
The Future Web
Mobile
Internet of Things
Search
E Commerce
Social
Biological Network - Internet of Human Beings
The Old Web
Health Care IT & the Future Web Health Records Evolve Into Biological Domains
Exponential Growth in Data from the Body
Alice Rathjen © 2013 -

4. What Happens Once Genetic Data is Added to a Health Record?
Health Record
Genetic Dataset
“Sticky” Universal Health Record
Alice Rathjen © 2013 -

5. Health Data Becomes Identifiable Big Data = Big Liability
Health Record
Genetic Dataset
De- identified Data
De-Identified
Data
Alice Rathjen © 2013 -

6. Solution : Health IT Network = Biological Domain Registrar
Health Record
Genetic Dataset
Portable Patient Health Record (patient picks trusted registrar)
Alice Rathjen © 2013 -
Real Time Consent

7. Future Health Record Human = Node On The Network
Biometric
Map of the Body
Map of Genome(s)
Lifestyle, Environment
Patient Centric Bi-Directional Information Flow
Alice Rathjen © 2014 -

8. The Human Body & Genome In Time & Space
Alice Rathjen © 2014
-
Real Time Consent
Data Organized by Biometric, with Location & Time
Patient Raw Data Stored Separately
Dynamic Interpretation & Reports
Needs to be able to Scale Indefinitely

9. Dynamic Health Information Quality Rating
Quality of Science
Medical Utility
Viewing Risk
(Graded) A,B,C,D,F
W = Withdrawn , I = Incomplete
(by Scientific Community)
(by Health Care Providers/ Payers)
E = Everyone PG = Physician Guidance R = Restricted
(Medical Ethics, Counselor)
Category
Rating
(Five Star Rating)
(i.e.Movie Rating)
Alice Rathjen © 2013 -

10. User Accounts
Biological Domains
Old Big Data vs. New Big Data
just data
JUST DATA
Alice Rathjen © 2013 -