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From popular culture to social networking:
Disability media advocacy comes of age
Guest Presenter:
Beth Haller, Ph.D., Department of Mass
Communication and Communication
Studies, Towson University, USA
bhaller@towson.edu
Social media benefits for people with certain
impairments
Deaf actress Marlee Matlin: “In Twitter
there were no barriers.”
Blind Film Critic Tommy Edison
Social media activism generally
• Using social media to coordinate group gatherings
• Assembling organized numbers of people
• Using social media to warn like-minded people about
those who are against the group’s activist stance
• Real time updates allows a group to adjust to any
actions against it
• Getting messages to people not directly involved but
still interested in the activism
• Enlist support and/or coverage from the news media
and others around the world
Activists harness social media because
that’s where people get their news
Pros & cons of social media news
Why Facebook matters to people with disability
Why New Mobility readers are using Facebook
National ADAPT leverages Twitter
ADAPT Twitter feed posts
• Pictures from ADAPT protestors and others
• Information about those arrested.
• Links to any media coverage of protests.
• Information so someone who wanted to
participate but couldn’t be in DC could follow
along.
• People not in DC could even become active by
calling the federal legislator in charge of the
budget proposing the cuts via the phone # ADAPT
tweeted.
Tweets build a cross-disability
community
A May 3, 2011 tweet said:
“Remember that ADAPT fights for
all disabilities: physical, dd,
psychiatric, blind, deaf, autism,
MCS, everyone. That is why we are
here.”
ADAPT protest video makes it onto
CNN web page as iReport
ADAPT Minnesota continues the message
Disability Rights Education & Defense
Fund (DREDF) YouTube channel
Its YouTube channel has:
• Training videos, such as information helping
parents understand the special education process
and how to advocate for their disabled child
• Disability rights history: “The Power of 504,” a
short documentary video about the 1977 civil
rights demonstration by people with disabilities
that resulted in the first Federal Civil Rights Law
protecting people with disabilities.
Social media use during natural
disasters: Nick & Alejandra
Alejandra’s Facebook post about their situation
Little Free Radical blog
Blog article that told Nick’s story
Nick’s thank you on Facebook
Boston’s 90.9 WBUR Tumblr about Nick
NPR Talk of the Nation story about Sandy’s
impact on people with disabilities
Science show NOVA focuses on the
people affected by Sandy
Inaccessible shelters in NYC
(Photos from 2011 from Hurricane Irene but nothing had changed for Hurricane Sandy.)
NY disability activist Mike Volkman says:
“What we are doing now with
Facebook really shows the true
potential of what the Internet can do
to transform our society. We are
seeing changes that rival historically
the invention of the printing press.”
Pop culture and activism
• Comedian Josh Blue
• Autism consultant Alex Plank
• Promotion of American Sign Language and
Deaf culture on Switched at Birth
• Teal Sherer’s My Gimpy Life
Comedian Josh Blue: “I can say things that
other people might not be able to get away
with because of having a disability.”
Alex Plank founded autism social
media site Wrong Planet in 2004
Alex Plank became the autism
consultant on FX’s The Bridge in 2012
Alex Plank Twitter page
ABC Family’s Switched at Birth
embraces ASL & Deaf culture
ASL lessons from Switched at Birth
Teal Sherer’s web series, ‘My Gimpy Life’
Pop culture adds visibility
Journalists who cover disability
From byline to tweet
I tweeted this to the journalist who wrote the
story on the previous slide. It was information
from a Melbourne activist who found the
National Disability Summit was only allowing 12
people with disability attend for the discounted
rate - $55 versus $1,500.

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Social media & disability activism - University of Sydney, March 2, 2015

  • 1. From popular culture to social networking: Disability media advocacy comes of age Guest Presenter: Beth Haller, Ph.D., Department of Mass Communication and Communication Studies, Towson University, USA bhaller@towson.edu
  • 2. Social media benefits for people with certain impairments
  • 3. Deaf actress Marlee Matlin: “In Twitter there were no barriers.”
  • 4. Blind Film Critic Tommy Edison
  • 5. Social media activism generally • Using social media to coordinate group gatherings • Assembling organized numbers of people • Using social media to warn like-minded people about those who are against the group’s activist stance • Real time updates allows a group to adjust to any actions against it • Getting messages to people not directly involved but still interested in the activism • Enlist support and/or coverage from the news media and others around the world
  • 6. Activists harness social media because that’s where people get their news
  • 7. Pros & cons of social media news
  • 8. Why Facebook matters to people with disability
  • 9. Why New Mobility readers are using Facebook
  • 11. ADAPT Twitter feed posts • Pictures from ADAPT protestors and others • Information about those arrested. • Links to any media coverage of protests. • Information so someone who wanted to participate but couldn’t be in DC could follow along. • People not in DC could even become active by calling the federal legislator in charge of the budget proposing the cuts via the phone # ADAPT tweeted.
  • 12. Tweets build a cross-disability community A May 3, 2011 tweet said: “Remember that ADAPT fights for all disabilities: physical, dd, psychiatric, blind, deaf, autism, MCS, everyone. That is why we are here.”
  • 13. ADAPT protest video makes it onto CNN web page as iReport
  • 15. Disability Rights Education & Defense Fund (DREDF) YouTube channel Its YouTube channel has: • Training videos, such as information helping parents understand the special education process and how to advocate for their disabled child • Disability rights history: “The Power of 504,” a short documentary video about the 1977 civil rights demonstration by people with disabilities that resulted in the first Federal Civil Rights Law protecting people with disabilities.
  • 16. Social media use during natural disasters: Nick & Alejandra
  • 17. Alejandra’s Facebook post about their situation
  • 19. Blog article that told Nick’s story
  • 20. Nick’s thank you on Facebook
  • 21. Boston’s 90.9 WBUR Tumblr about Nick
  • 22. NPR Talk of the Nation story about Sandy’s impact on people with disabilities
  • 23. Science show NOVA focuses on the people affected by Sandy
  • 24. Inaccessible shelters in NYC (Photos from 2011 from Hurricane Irene but nothing had changed for Hurricane Sandy.)
  • 25. NY disability activist Mike Volkman says: “What we are doing now with Facebook really shows the true potential of what the Internet can do to transform our society. We are seeing changes that rival historically the invention of the printing press.”
  • 26. Pop culture and activism • Comedian Josh Blue • Autism consultant Alex Plank • Promotion of American Sign Language and Deaf culture on Switched at Birth • Teal Sherer’s My Gimpy Life
  • 27. Comedian Josh Blue: “I can say things that other people might not be able to get away with because of having a disability.”
  • 28. Alex Plank founded autism social media site Wrong Planet in 2004
  • 29. Alex Plank became the autism consultant on FX’s The Bridge in 2012
  • 31. ABC Family’s Switched at Birth embraces ASL & Deaf culture
  • 32. ASL lessons from Switched at Birth
  • 33. Teal Sherer’s web series, ‘My Gimpy Life’
  • 34. Pop culture adds visibility
  • 35. Journalists who cover disability
  • 36. From byline to tweet I tweeted this to the journalist who wrote the story on the previous slide. It was information from a Melbourne activist who found the National Disability Summit was only allowing 12 people with disability attend for the discounted rate - $55 versus $1,500.

Notas do Editor

  1. http://www.adweek.com/socialtimes/social-news/462734?red=at
  2. http://www.adweek.com/socialtimes/social-news/462734?red=at
  3. http://www.newmobility.com/2009/08/why-does-facebook-matter/
  4. http://www.newmobility.com/2009/08/why-does-facebook-matter/
  5. https://twitter.com/NationalADAPT
  6. http://theuptake.org/2011/05/11/protesters-disrupt-debate-on-mn-anti-gay-constitutional-amendment/
  7. https://www.youtube.com/user/DREDFvideo
  8. http://www.nickscrusade.org/about/
  9. http://littlefreeradical.com/2012/10/31/unconventional-aid-helping-nick-dupree-social-networking-style/
  10. http://littlefreeradical.com/2012/10/31/unconventional-aid-helping-nick-dupree-social-networking-style/
  11. http://kindworld.tumblr.com/post/35059522429/hurricane-sandy-knocks-out-a-disabled-mans-breathing
  12. http://www.npr.org/2012/11/01/164113455/sandy-especially-tough-on-vulnerable-populations
  13. http://media-dis-n-dat.blogspot.com.au/2014/10/no-longer-left-behind-emergency.html
  14. http://joshblue.com/
  15. http://wrongplanet.net/
  16. http://www.salon.com/2013/07/11/finally_a_realistic_autistic_character_on_television/
  17. https://twitter.com/alexplank
  18. http://www.washingtonpost.com/blogs/tv-column/post/gallaudet-university-uses-all-sign-language-episode-of-switched-at-birth-to-air-new-commercial/2013/03/04/0017a45a-8508-11e2-9d71-f0feafdd1394_blog.html
  19. https://www.youtube.com/watch?v=UZNZ7EA4yTo&list=PLt1alZH4ufequK3g4XeVCk5NO1KqeYKhq
  20. https://www.youtube.com/user/MyGimpyLife
  21. http://www.dailylife.com.au/news-and-views/dl-opinion/my-kitchen-rules-does-reality-tv-do-a-better-job-of-depicting-people-with-disability-20150130-132brx.html
  22. http://www.abc.net.au/news/2015-02-06/australia-behind-in-including-performers-with-disabilities/6076738
  23. https://www.facebook.com/jaxjacki.brown/posts/10153618162357166