What can the voluntary sector contribute? - Jeremy Taylor, presented at Age UKs "Living well with long term conditions" conference on 14th November 2012

1. Living well with long
term conditions
What can the voluntary and community
sector contribute?
Jeremy Taylor
14 November 2012

2. National Voices is:
• The national coalition of health and social care
charities for England
• Mission: to strengthen the voices of patients,
service users, carers and their representatives
• 150 organisations as members
• “the leading coalition of health and social care
charities” HSJ

3. Our themes
• quality - a safe, effective service delivering a good
experience
• voice, choice and involvement - treating people
and communities as partners in their health and in care
• right care, right place, right time getting it right in
particular for people with long term conditions, disabilities,
complex needs
• a seamless service – “joined up around my needs, not
your organisations”
• fairness and justice – tackling health inequalities; living
the NHS Constitution, ensuring access to services.

4. What is “living well”?
• Knowledge
• Confidence
• Independence and control
• Care
• Support
• Involvement
• Connectedness
• Income, safety, security
• Employment

5. Out-of- Continence
The Web of Consultant Adviser
Hours
Care Doctors
District Speech &
(Last 7 yrs) Language Adviser
GP Nurses
Care team
2 live-in carers
(alternating weekly) Dementia Dietician
Replacement carer Advisory
[Some night nursing – Nurse?
Health] Community
Emergency carers Dentist
& Barbara Malcolm &
Barbara
Occupational
Social Therapist
Worker
Equipment
Oxygen Service
Wheelchair
Direct service
Service
Payments
Team; Alzheimer’s
Physiotherapist
Rowan Soc outreach
Alternating
Org. worker
Mattress technician

6. The UK voluntary sector
• 164,000 active voluntary orgs
• £36.7 bn spending in 2009/10
• 765,000 paid staff – 617,000 fte
• Volunteers = 1.3 million fte staff
• 57% in “health and social work”
• = 1.1 million fte people (staff + volunteers)
Source NCVO

7. How does VCS help
people live well?
• Information and advice – eg helplines,
websites, leaflets
• Practical and emotional support – eg
befriending
• Support with self management
• Advocacy, care navigation
• Supporting carers
• Organising peer support

8. Wider VCS contribution
• Innovator
– new models of care and engagement
• Connecter
– Seeing the whole person
– Bridge between communities and agencies
• Shaper of services
– Campaigning/awareness raising/fundraising
– Involvement in JSNA, commissioning
– Providing a voice for people and communities
• Funder/commmissioner
– Eg hospice movement
• Builder of social value
– Volunteering, peer support, community development

9. Some examples
• Stroke Association : Life After Stroke Service
• Macmillan Cancer Support – advice on financial
issues
• Carers’ Trust carers’ centres
• Expert Patient Programme CIC: self management
programmes
• Diabetes UK: contributor to “year of care”
• Care navigator services – eg Kent
• WRVS: befriending, meals on wheels
• Contact a family – helpline for parents of disabled
children

10. Lisa Cox, community health champion

11. The VCS “pitch”
• Commission our services – we’ll fill the gaps;
we’ll give you something new
• We’ll help you commission your services
• Let us be your “Heineken”
• Buy into our expertise
• Let us be your critical friends

12. Thanks for listening
jeremy.taylor@nationalvoices.org.uk
www.nationalvoices.org.uk
@NVTweeting
@JeremyTaylorNV