This was presented at the 9th annual University of Massachusetts and New England Area Librarian e-Science Symposium on Thursday, April 6, 2017.

1. sex,
lies,
and data

4. • OkCupid’s data

9. STRUCTURES for PROTECTION

10. INSTITUTIONAL REVIEW BOARD

11. TUSKEGEE SYPHILIS EXPERIMENTS

15. 1974

16. 1991

17. 2006

18. 2017

19. 2031
16

21. ALGORITHMIC DISCRIMINATION

26. SOMETIMES,
THE WRONG THING TO DO
MAY BE ALLOWED.

27. SOMETIMES,
THE RIGHT THING TO DO MAY BE
AGAINST THE RULES.

28. POLICY VIGILANTISM

29. POLICY REFORM

30. SOME GROUND RULES

31. 1.
SILENCE
DOES NOT EQUAL CONSENT.

32. 2.
ONLINE AVAILABILITY
DOES NOT MAKE SOMETHING PUBLIC.

33. 3.
TOOLS ARE NOT NEUTRAL.

34. 4.
DATA ARE NOT NEUTRAL.

35. 5.
ETHICS ARE COMPLEX
& INTERSECTIONAL.

36. 6.
OUR ONTOLOGIES & EPISTEMOLOGIES
ARE SUSPECT.

37. ONTOLOGY

38. ONTOLOGY

39. EPISTEMOLOGIES

40. EPISTEMOLOGY

41. EPISTEMOLOGY

42. values are built
into all research.
(this includes yours)

43. so build something
into all research that
interrogates those values.

44. sex,
lies,
and data

45. articles and documents mentioned
• Bretan, M. (2016). You Are What You Eat... Listen to, Watch, and Read. arXiv preprint arXiv:1612.04403.
https://arxiv.org/abs/1612.04403
• Chohaney, M. L., & Panozzo, K. A. (2016). Infidelity and the Internet: The Geography of Ashley Madison Usership in the United
States. Geographical Review. https://papers.ssrn.com/sol3/papers.cfm?abstract_id=2745062
• Griffin, J. M., Kruger, S. A., & Maturana, G. (2016). Do Personal Ethics Influence Corporate Ethics?.
https://papers.ssrn.com/sol3/papers.cfm?abstract_id=2745062
• Heller, J. (1972). Syphilis victims in US study went untreated for 40 years. New York Times, 1, 8.
https://repository.library.georgetown.edu/handle/10822/764254
• Kirkegaard, E., & Bjerrekær, J. D. (2014). The OKCupid Dataset: A very Large Public Dataset of Dating Site Users. Open
Differential Psychology. https://openpsych.net/files/papers/Kirkegaard_2016g.pdf
• Kramer, A. D., Guillory, J. E., & Hancock, J. T. (2014). Experimental evidence of massive-scale emotional contagion through
social networks. Proceedings of the National Academy of Sciences, 111(24), 8788-8790.
http://www.pnas.org/content/early/2014/05/29/1320040111.short
• National Commission for the Protection of Human Subjects of Biome Beha Resea, & Ryan, K. J. P. (1978). The Belmont Report:
Ethical Principles and Guidelines for the Protection of Human Subjects of Research-the National Commission for the Protection
of Human Subjects of Biomedical and Behavioral Research. US Government Printing Office.
https://videocast.nih.gov/pdf/ohrp_appendix_belmont_report_vol_2.pdf

46. image credits
• Aneta Ivanova. Woman/Building Double Exposure Photograph. Digital image. Double Exposure Portraits. Fubiz, 2012. Web. 23 Mar. 2017.
<http://www.fubiz.net/2013/06/18/double-exposure-portraits-series/>.
• Ashley Madison website. Digital image. Why the Ashley Madison Hack Can Save Your Marriage. Http://www.huffingtonpost.com/, 23 July 2016. Web. 17 Mar. 2017.
<http://www.huffingtonpost.com/tara-averill/ashley-madison-hack_b_7853642.html>.
• Berg, Albert. Nosferatu (1922) Film Still. Digital image. Human Echoes Rundown: Nosferatu (1922). Human Echos, 23 Feb. 2016. Web. 23 Mar. 2017.
<http://humanechoes.com/nosferatu-1922-rundown/>.
• The DevBettmann. Army Recruiter Administering IQ Test to Black Man. Digital image. Getty Images, 15 Mar. 1918. Web. 23 Mar. 2017.
<http://www.gettyimages.com/license/515170010>.
• The Devil Wears Prada Movie Poster. Digital image. The Devil Wears Prada. Film-cine.com, 12 Jan. 2011. Web. 17 Mar. 2017. <http://movies.film-cine.com/the-devil-wears-
prada-m297>.
• Eowyn. I.Q. Score Distribution. Digital image. How Smart or Stupid Is Your Country? Fellowship of the Minds, 11 Oct. 2014. Web. 23 Mar. 2017.
<https://fellowshipoftheminds.com/tag/iq-scores-and-percentiles/>.
• Fast and the Furious Movie Poster Spoof. Digital image. Furious 8 Movie times. Https://movietimes.com, n.d. Web. 17 Mar. 2017. <https://movietimes.com/movies/furious-8-
2017/celebrities>.
• Framing. Digital image. General Contracting Services. Canadian Insulation Inc., n.d. Web. 17 Mar. 2017. <http://canadianinsulationinc.com/>.
• Gallup, Sean. Facebook Window. Digital image. Can We Face Away from Facebook? Http://www.thenewsstar.com/, 13 May 2016. Web. 17 Mar. 2017.
<http://www.thenewsstar.com/story/opinion/columnists/2016/05/13/can-face-away-facebook/84358174/>.
• The Godfather Part II Movie Poster. Digital image. Explore Movies Team S, 70S Movies, and More! Pinterest, n.d. Web. 17 Mar. 2017.
<https://www.pinterest.com/pin/516506650985348603/>.
• Google Search Result for Docotor. Digital image. Algorithmic Discrimination: The World as It Is or as It Ought to Be? Kevin Meurer, 5 Oct. 2015. Web. 17 Mar. 2017.
<http://kevinmeurer.com/algorithmic-discrimination-the-world-as-it-is-or-as-it-ought-to-be/>.
• Google Search Result for Secretary. Digital image. Algorithmic Discrimination: The World as It Is or as It Ought to Be? Kevin Meurer, 5 Oct. 2015. Web. 17 Mar. 2017.
<http://kevinmeurer.com/algorithmic-discrimination-the-world-as-it-is-or-as-it-ought-to-be/>.

47. • Haeckel, Ernst. Racial Hierarchy in Man. Digital image. Darwinism-Eugenics-Evolution. Inbred Science, n.d. Web. 23 Mar. 2017.
<https://inbredscience.wordpress.com/euvolution/>.
• Hidden Figures Movie Poster. Digital image. Study of Women in Film Shows a Significant Increase in Female Protagonists. Broadwayworld.com, 25 Feb. 2017. Web. 17 Mar.
2017. <http://www.broadwayworld.com/bwwtv/article/Study-of-Women-in-Film-Shows-a-Significant-Increase-in-Female-Protagonists-20170225>.
• Home Rennovation. Digital image. Services-EMCMillwork. EMCMillwork, n.d. Web. 17 Mar. 2017. <http://www.emcmillwork.com/services-2/>.
• House on Fire. Digital image. PROTECT YOUR FAMILY: BUILD A FIRE RESISTANT HOME. EcoSteal, 28 June 2016. Web. 17 Mar. 2017.
<http://ecosteel.com/ecosteelprefab/protect-you-family/>.
• Huttenhower, Curtis. PhyloPhlAn Inferred Phylogenetic Tree. Digital image. PhyloPhlAn. The Huttenhower Lab, n.d. Web. 23 Mar. 2017.
<https://huttenhower.sph.harvard.edu/phylophlan>.
• IRB group. Digital image. 6 Personality Types to Ban From Brainstorming Sessions. Inc.com, n.d. Web. 17 Mar. 2017. <http://www.inc.com/christina-desmarais/6-personality-
types-to-ban-from-your-next-brainstorming-session.html>.
• Management & Data Science. Digital image. Lancement De La 1ère Revue Académique Française En Data Science : Entretien Avec Olivier MAMAVI Son Rédacteur En Chef.
Http://www.revue-rms.fr/, n.d. Web. 17 Mar. 2017. <http://www.revue-rms.fr/Lancement-de-la-1ere-revue-academique-francaise-en-Data-Science-entretien-avec-Olivier-
MAMAVI-son-redacteur-en-chef_a209.html>.
• NYT Syphilis Story. Digital image. Gli Stati Uniti Dicono Che Le Parole Di Chavez Sul Cancro Sono ‘orribili E Riprovevoli’. N.p., 12 Jan. 2011. Web. 17 Mar. 2017.
<https://gilguysparks.files.wordpress.com/2012/01/us-exp-hum.jpg>.
• OkCupid Ad. Digital image. Getting Started On OkCupid. Http://www.askmen.com/, n.d. Web. 17 Mar. 2017.
<http://www.askmen.com/nouveaux_classiques/confiance_succes/online-dating-sites_8.html>.
• Point Break Movie Poster. Digital image. The Movie Jerks: Episode 198. TheMovieJerks.ca.blogspot.com, 11 July 2006. Web. 17 Mar. 2017.
<https://4.bp.blogspot.com/qDLfOONeuK8/V4RNxS8wrHI/AAAAAAAAB40/Y1CfKBm8lXkH4aGMmmgW6FT4xM4mTQ5ACKgB/s1600/v1.bTsxMTI5MDkzMztqOzE3MTIzOzIwNDg
7MTM5NTsxODYw.jpg>.
• Redfin Interface. Digital image. Hot or Not? Redfin “Hot Homes” Show Buyers When to Move Quickly. Redfin, 26 June 2014. Web. 17 Mar. 2017.
<https://www.redfin.com/blog/2014/06/redfin-hot-homes.html>.
• Three Black Teenagers Google Result. Digital image. Teen Googles ‘Three Black Teenagers’ and ‘Three White Teenagers’ to Startling Results. Atlanta Black Star, 10 June 2006.
Web. 17 Mar. 2017. <http://atlantablackstar.com/2016/06/10/teen-googles-three-black-teenagers-and-three-white-teenagers-to-startling-results/>.
• Tuskegee syphilis experiment. Digital image. Andrasi. N.p., 07 Feb. 2006. Web. 17 Mar. 2017.
• Watering Can. Digital image. If You Want To Make Someone’s Life Miserable, Give Them One of These As A Gift. Http://wonderfulengineering.com/, 2014. Web. 17 Mar. 2017.
<http://wonderfulengineering.com/if-you-want-to-make-someones-life-miserable-give-them-one-of-these-as-a-gift/>.
image credits continued

48. further reading
• S Mannheimer, SWH Young, D Rossmann On the Ethics of Social Network
Research in Libraries. Journal of Information, Communication, and Ethics in
Society 14 (2)
• S Mannheimer, EA Hull Sharing selves: Developing an ethical framework for
curating social media data. International Digital Curation Conference 2017
• Data and Society: https://datasociety.net/
• Council for Big Data, Ethics, and Society: http://bdes.datasociety.net/
• Literally anything by these people (seriously):
Anna Lauren Hoffmann http://annaeveryday.com/
danah boyd https://datasociety.net/people/boyd-danah/
Safiya Umoja Noble https://gseis.ucla.edu/directory/safiya-umoja-noble/

49. shea swauger
researcher support services
auraria library
shea.swauger@ucdenver.edu
303-556-4759
http://library.auraria.edu