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FASD Fetal Alcohol-Spectrum-Disorder

  1. Fetal AlcoholFetal Alcohol SpectrumSpectrum DisorderDisorderWhat is it ??What is it ?? FASD is the term used to describe the fullFASD is the term used to describe the full range of harm that is caused by alcoholrange of harm that is caused by alcohol used during pregnancyused during pregnancy FASD is damage to the brain that isFASD is damage to the brain that is permanent and irreversible, drugs has lesspermanent and irreversible, drugs has less effect on the brain then Alcohol does whileeffect on the brain then Alcohol does while the woman is pregnantthe woman is pregnant For most to make anything out of their livesFor most to make anything out of their lives they need an “external brain” to led them inthey need an “external brain” to led them in the proper directionthe proper direction
  2. Comparison of the Brain - On the left that of a normal 6 week old, andComparison of the Brain - On the left that of a normal 6 week old, and on the right one that has been effected by alcoholon the right one that has been effected by alcohol
  3. FASDFASD  FASD is the “invisible disorder” – when youFASD is the “invisible disorder” – when you encounter someone they will look as normal asencounter someone they will look as normal as anyone else in most cases, but when givenanyone else in most cases, but when given directions they will only catch a few words in whatdirections they will only catch a few words in what your telling themyour telling them  Here is how they hear what we say….Here is how they hear what we say….  I cdnuoit blveiee that I cluod aulacity uesdnatnrdI cdnuoit blveiee that I cluod aulacity uesdnatnrd waht I was redanieg. Tihs is bcuseae the huamnwaht I was redanieg. Tihs is bcuseae the huamn mnid deos not raed ervey lteter by istlef, but themnid deos not raed ervey lteter by istlef, but the wrods as a wlohe. Amzanig huh ?wrods as a wlohe. Amzanig huh ?
  4. Signs of FASD toSigns of FASD to watch forwatch for  Forgetfulness (within minutes of being toldForgetfulness (within minutes of being told something)something)  Short tempered, refuse to step down or back offShort tempered, refuse to step down or back off  ImpulsivnessImpulsivness  Lack of self control – very much a followerLack of self control – very much a follower  Oppositional / Argumentative / ViolentOppositional / Argumentative / Violent  Struggle socially – usually a pawn to do dirty workStruggle socially – usually a pawn to do dirty work  Poor / Lack of physical hygienePoor / Lack of physical hygiene  No remorse / concern for outcome of actionsNo remorse / concern for outcome of actions  Low emotional ageLow emotional age  Poor memoryPoor memory
  5. Profile of an averageProfile of an average 18 yr old FASD person18 yr old FASD person  Expressive Language - 20 year oldExpressive Language - 20 year old  Comprehension - 6 year oldComprehension - 6 year old  Knowledge of Money and Time - 8 year oldKnowledge of Money and Time - 8 year old  Emotional Maturity - 6 year oldEmotional Maturity - 6 year old  Physical Maturity - 18 year oldPhysical Maturity - 18 year old  Reading - 16 year oldReading - 16 year old  Social skills - 7 year oldSocial skills - 7 year old  Living skills - 11 year oldLiving skills - 11 year old *although reading is almost at the age level of 18 years they do not*although reading is almost at the age level of 18 years they do not comprehend what they just readcomprehend what they just read *only in exceptional cases do you see facial features that can identify*only in exceptional cases do you see facial features that can identify FASD – small eyes – giving the appearance of wide spaceFASD – small eyes – giving the appearance of wide space across bridge of nose. Smooth phitrum (crease on upper lip)across bridge of nose. Smooth phitrum (crease on upper lip) and thin upper lip.and thin upper lip.
  6. People with FASDPeople with FASD often:often:  Absorb the emotion around them or “in the room” if youAbsorb the emotion around them or “in the room” if you are yelling and screaming they will do it right backare yelling and screaming they will do it right back – isolate and speak calmly.– isolate and speak calmly.  Can’t understand the here and now with the futureCan’t understand the here and now with the future - speak at their level to understand- speak at their level to understand  Often have a huge response to very little stimulusOften have a huge response to very little stimulus (Overreact ) usually violently as their brain doesn’t(Overreact ) usually violently as their brain doesn’t understandunderstand – remove the source of the stimulus– remove the source of the stimulus  Can become focused on an item / event and can’t dropCan become focused on an item / event and can’t drop itit – remove to an area with minimal distractions– remove to an area with minimal distractions  Although appearing normal they have trouble with theAlthough appearing normal they have trouble with the simplest instructions and directionssimplest instructions and directions – speak in terms– speak in terms they will understand, at a slower speedthey will understand, at a slower speed
  7. Executive ImpairmentExecutive Impairment IssuesIssues  These people struggle as well with everydayThese people struggle as well with everyday functions such as:functions such as:  InhibitionsInhibitions  PlanningPlanning  Time perceptionTime perception  Internal orderingInternal ordering  Working memoryWorking memory  Self-monitoringSelf-monitoring  Verbal self –regulationVerbal self –regulation  Regulation of emotionRegulation of emotion  MotivationMotivation
  8. Associated disordersAssociated disorders to FASDto FASD  Attachment disorder (RAD)Attachment disorder (RAD)  Attention Deficit Disorder (ADD)Attention Deficit Disorder (ADD)  Attention Deficit Hyperactive Disorder (ADHD)Attention Deficit Hyperactive Disorder (ADHD)  Autism / Tourette’s SyndromeAutism / Tourette’s Syndrome  Oppositional Defiant Disorder (ODD)Oppositional Defiant Disorder (ODD)  Conduct Disorder (CD)Conduct Disorder (CD)  Obsessive Compulsive Disorder (OCD)Obsessive Compulsive Disorder (OCD)  Language / Learning Disability (LD)Language / Learning Disability (LD)  Sensory Integration Dysfunction (SID)Sensory Integration Dysfunction (SID)  Pervasive Development Disorder (PDD)Pervasive Development Disorder (PDD)
  9. Reaction to stress andReaction to stress and fear is usually fight orfear is usually fight or flight….flight….  often have what may typically beoften have what may typically be considered an “over reaction” to stressfulconsidered an “over reaction” to stressful situations, this usually leads to “fight orsituations, this usually leads to “fight or flight” episodes. These can result fromflight” episodes. These can result from the simplest conversations – but its theirthe simplest conversations – but its their lack of not being able to understand whatlack of not being able to understand what they are being told or the directions theythey are being told or the directions they are given…..most cases it will be fightare given…..most cases it will be fight
  10. Take intoTake into consideration…consideration…  A person suffering from FASD is only as good as theA person suffering from FASD is only as good as the environment he / she is associated withenvironment he / she is associated with  FASD people are aFASD people are a “10 second person trying to live and“10 second person trying to live and survive in a 1 second worldsurvive in a 1 second world ““  People suffer from FASD should be considered one of thePeople suffer from FASD should be considered one of the most vulnerable people in society – 1 in 1000 are effectedmost vulnerable people in society – 1 in 1000 are effected with FASD, most common cause of brain damage presentlywith FASD, most common cause of brain damage presently in North America ( numbers based on reported cases soin North America ( numbers based on reported cases so many go wrongly diagnosed or unreported ).many go wrongly diagnosed or unreported ).  Their lives require principles, structure, and cues to directTheir lives require principles, structure, and cues to direct and assist with their memory deficitand assist with their memory deficit  Think brain, not behaviour….Think brain, not behaviour….
  11. If I can leave you withIf I can leave you with one thoughtone thought  Please remember that FASD is not thePlease remember that FASD is not the person it is the brain… our loved ones haveperson it is the brain… our loved ones have no control and as hard as it is to rememberno control and as hard as it is to remember this all the time step back and think beforethis all the time step back and think before you act. They will love you for it !!!you act. They will love you for it !!!  Thanks for reading this brief presentation.Thanks for reading this brief presentation.  Jeff Gowland – Hamilton Police Service,Jeff Gowland – Hamilton Police Service, Hamilton Ontario CanadaHamilton Ontario Canada  Father of an incredibly 14 yr old with ARNDFather of an incredibly 14 yr old with ARND
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