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  1. 1 HCI Final Report – Team 6 Roberto Medico Roberto.medico91@gmail.com Niko Leinonen Nikoleino91@gmail.com Krista Vilppola Krista.Vilppola@student.oulu.fi Daniel Askeli Daniel.Askeli@student.oulu.fi Jukka Pajukangas Jukka.Pajukangas@student.oulu.fi Pablo Panero Ppanero27@gmail.com ABSTRACT The goal of this report is to present the design of an interactive system to aid people who suffer from dementia. Population in Finland is getting older and there is a need to help elders keep performing their daily activities and living independently. The design phase was iterative. In the first iteration the concept was studied, as well as literature and the targeted disease, a preliminary interface for the systems was also made. In the second iteration a new version of the interface was done by changing, accordingly to the findings of the evaluation, the interface produced in the first iteration. The third iteration, as well as the second one, resulted in an enhanced interfaced. In the first phase of the evaluation the system was evaluated by targeted users (although dementia was simulated), for the second evaluation the same methods were used plus cognitive walkthrough and heuristic evaluation. Future work would involve updating the system to handle better memory loss and a more customizable interface in order to adapt the colors to patients’ preferences. Keywords Dementia, Alzheimer, Human-Computer interaction, assistive technology, care, interaction. INTRODUCTION Assisting people with dementia is a challenging task that involves both a deep understanding of the disease and its effects and a well-reasoned evaluation of the tools and methodologies that could be used to counterbalance or alleviate those. This is why the main mean through which patients are helped is still by placing them side by side with caretakers that can listen to their needs and help them through their daily activities. Nonetheless, having some kind of technology to assist the patients would allow them to be much more independent and their caretakers to be less concerned about them. As mentioned above, though, such technology should be designed and evaluated very accurately, given the particular users the system should interact with. Throughout this paper, our system will be described in detail. The system is supposed to be helpful both for the patient and for the caretaker. A home-system and a bracelet are used to monitor and track patient’s movements and location, what promotes patient’s safety and independence, embedding sensors to measure patient’s health (i.e. pulse rate measurement and a falling detection system). The above-mentioned bracelet is provided with buttons to call for help and/or to set reminders. The home-system also consists of 17-inch screens distributed in the house to be used by the patient to browse useful information and see reminders or alarms. The caretaker is also provided with an application, ideally running on a mobile device such as a 7-inch tablet, to browse patient’s information such as health conditions, location history, devices’ state and to set and send reminders and alarms to the patient’s house or to contact the patient directly. This system assumes that one or more caretakers are assign to one patient. The targeted population of this system is families (or hired people, such as a nurse) that take care of a relative with dementia (e.g. daughter and son take care of his father). BACKGROUND WORK Many studies had already been carried out about this matter, and several attempts to build realistic prototypes have been made by Human-Computer Interaction (HCI for short) designers. Beside the classical well-known clinical symptoms, such as memory loss, it is possible to identify other effects that could be tackled by the technology: agnosia, which is the inability to recognize simple objects or known people, and apraxia, which is the inability to carry out gestures or movements [2].
  2. 2 There is no doubt that there are different stages of the disease with increasingly effective symptoms, such as hallucinations, depression, aggressive behavior, etc. From the literature we learnt that assistive technology should be designed and used to support the patient in his/her life instead of taking decision for him/her giving the patient a feeling of independence. This could be achieved by supporting patient’s remaining skills and not blaming or pointing out his/her disabilities [1]. In addition, the technology should be unobtrusive and calmly integrate in the existing environment (e.g. the house) in order not to confuse or agitate the patient. Another key point to take into account is that most of the patients suffering from dementia are elders, who are very likely not used to technology and devices, so it is not possible to assume any kind of experience when interacting with computer systems. Assistive technology should improve and support the well- being of the patient by focusing on providing specific functionalities: promote reminiscence and memory, support daily tasks and procedures, promote and suggest physical and social activities, encourage access to outdoor space and involvement in creative hobbies and activities [3]. Besides helping the patient to remember, assistive technology should also assure his/her safety (e.g. by monitoring and tracking house environment and devices, or by sensing health issues, such as falling detection or pulse rate measurement). Concerning the caretaker, technology should help to monitor patient’s health in a reliable and fast way, as well as helping to stay in contact with the patient, allowing direct or indirect communication. METHODS The design process of our system went through two main cycles, involving design, evaluation and prototype testing. The chosen approach was to build a unique system that integrates two main modules, to provide assistance and support both for the patient and the caretaker. The core functionalities the system should provide to the patient are to guarantee and look after his health and safety and to assist him in carrying out daily tasks counterbalancing the known symptoms of dementia. In the early phases of the design process, we decided to make some assumptions about the future users of the system: patients suffer from Alzheimer’s disease and/or Vascular dementia, in the early stages and thus are not affected by physical weaknesses, paralysis, severe problems with communication, concentration, thinking, or hallucinations. Furthermore, the patients are assumed able to walk, cook independently, to ask for help, and to take daily medicines. As for the caretaker, the module is designed to operate on a smartphone or tablet environments. The application helps the caretaker handle the task of taking care of the patient, for example by giving the opportunity to call the patient, add and send reminders and messages to the patient, browse patient’s information, or manage the household devices. System requirements The system uses a server and a database to keep the information updated between the caretaker app and the home system app. The system can also receive information from the following sensors: 1. Facial recognition. 2. Temperature of the rooms. 3. Electricity and water consumption. 4. Pulse-rate of the patient. 5. GPS Tracking of the patient. When the system detects unusual rates of water or electricity consumption, or temperature, it notifies the patient through sound and visual alerts. If the problem is not solved after a considerable amount of time, the system also alerts the caretaker, sending a notification to his application. The system can measure pulse-rate of the patient using the sensors within the bracelet. However the procedure for unusual rates is slightly different: If measured values are unusual (too low/ too high), the system automatically alerts the patient and caretaker/doctors. The system offers some general-purpose actions such as browsing objects, contacts, possible activities to prevent laziness, past events and actions recorded. The system can recognize approaching visitors using facial recognition sensors in the house door. • If it recognizes a known person, it notifies the patient by showing information on the nearest screen. • If it is an unknown person, it notifies the caretaker and the patient as well. The system allows the patient to store reminders and events. The patient can notify the system about actions taken by clicking the reminders button on his bracelet. Once the button is clicked, the nearest screen turns on by showing appropriate options (e.g. patient can notify about medicine taken in the bathroom, or about upcoming events in the living room etc.) • The system allows the patient to store all the relevant information about a reminder (time, place, type, alert, etc.) through the interaction with the touch-screen. • If the reminder is set, it will be shown in the nearest screen at the set date and time and notified by sound and a displayed message.
  3. 3 • The patient can delete alerts by interacting with the screen. • The system notifies the patient about upcoming reminders stored in the nearest screen and at fixed times • The patient can view the reminder by touching the screen and delete it or postpone it. The system allows the patient to alert caretaker and emergency by clicking the red button of the bracelet. The system allows the caretaker to check information about the patient using an application in his/her mobile device. • Patient’s health information (medicine needed, recent visits, etc.). • Patient’s location history. • Manage the status of the devices in the house (e.g. turn off the oven). • Browse past events and reminders. • Add new reminders for the patient. • Browse patient’s house information (id, address, etc.). • Check sensors’ measurements. Use Cases The following diagram shows the use cases from the patient point of view: Figure 1: Patient’s Use Cases The following diagram shows the use cases from the caretaker point of view: Figure 2: Caretaker’s Use Cases The following diagram shows the use cases from the automated home-system point of view: Figure 3: Home-system Use Cases Personas Brian, 50 years old man with the most common type of Alzheimer's disease. The disease is in the early stages and manifests itself through occasional memory loss. Even though Brian sometimes has problems with his memory, he manages to live by himself in his house. Brian is aware of his condition, but sometimes gets confused about basic memorable things, like location of certain objects. Because of the disease, Brian is on medication and must be aided to remember to take his daily dose. Gretchen, 30 years old nurse. Caretaker of Brian. Gretchen has a tablet and is capable of using it every day. She keeps it with her while she is visiting her patient. Gretchen is familiar with using different applications on her tablet embraces easily new apps. Gretchen is also used to all kinds of fast messaging platforms and she is constantly in the swim. (up-to-date). For her, using different applications and devices to help her with her job is not frightening nor challenging.
  4. 4 General assumptions: General assumptions and characteristics of the targeted users. Patient with Alzheimer (most common 75%) is capable of: • Walking. • Cook independently. • Asking for help. • Take her/his medicines. Patient with Vascular dementia (second most common 15%), in the early stages: • Patient do not has physical weaknesses or paralyses. • Not severe problems with communication, concentration or thinking. • No hallucinations. Scenarios The patient: Brian is a 50 years old man suffering from dementia, still at its early stage. While sitting on his couch and watching TV, his phone rings: his daughter is coming over tomorrow for dinner; Brian presses a yellow button on his bracelet. After that, Brian stands up and reaches a screen behind him: while approaching the screen turns yellow and a virtual assistant comes up, asking for the detail of the event Brian wants to be remembered about: “Which event would you like to remind?” “Day and time?”, “When/How many reminders?”. Sometime later Brian wants to eat something: as he steps into the kitchen, the screen right next to the fridge turns on and displays an alert: “The oven has been used 30 minutes ago”. Brian now recalls that he had already decided to bake some food an hour ago and realizes that IT IS now ready in the oven: so Brian can eat the food, happily noticing that it is still hot. It is now time to take his medicine: Brian cannot remember if he already took them. However, he knows that if he did, he would have pressed the pink button on his bracelet. Therefore, he enters the bathroom and approaches the medicine shelf: the nearby screen turns on and displays a message: “You last took your medicine today at 4pm”. Some days later, as he step into the bathroom a message pops up on the screen nearby the medicine shelf: “Hi Brian, this is a reminder about the doctor’s visit tomorrow at 14pm, remember to be home at that time. Have a good day, Gretchen!” Brian hides the message, and decides to go for a walk to the nearby shops: since he know it’s possible he will forget the shop’s position or the destination he wants to reach, he uses the screen to set the route to be followed, so that whenever he gets lost the GPS sensor inside his bracelet will alert him using vocal directions. It’s Friday morning and the bell rings; Brian is not expecting any visit so he checks the nearby screen in the living room where he’s sitting and the system automatically recognizes the visitor as his nephew Kevin; Brian can welcome him and enjoy his visit. The caretaker: Gretchen is a 30-years-old nurse; since some months, she is taking care of Brian. It is 4 pm and she wants to check how Brian is doing: she takes her tablet and opens the application. Some notifications let her know that Brian took his pills and that he turned on the oven; she then wants to check if everything is ok with the devices in Brian’s house, for instance if the water is not running and if the oven has been also turned off after the use. After those checks, she post a message for Brian to make him aware of the doctor’s visit next Friday: she enters the Messages section of the application and leave a geo-located message by uploading it in the access point close to the medicine shelf, so that it will pop-up in the screen next time Brian approaches it. She can also set the range of time the message should be displayed to make sure that Brian would not forget it even after reading it once. Gretchen is happy about the system and feels confident that this kind of monitoring can be really effective even in case of a sudden crisis, because Brian can always use the buttons on his bracelet and on the screens to ask immediate help both from her and the doctor.
  5. 5 Possible mislead use 1. Issues with the patient • Alerts and notifications are not heard / ignored by the patient • Alerts and notifications get annoying and repetitive, making the system useless • Tracking and surveillance makes the patient uncomfortable: he removes his bracelet and/or never actively uses it • Patient encounters difficulties using the screens / doesn’t think they’re helpful in any way 2. Issues with the caretaker • Caretaker does not fully understand the interface provided: he/she switches on/off the devices without any purpose, causing issues to the patient (e.g. suddenly the lights turn off etc.) • Caretaker doesn’t get notifications or tracking info because of the lack of interaction with the bracelet by the patient • Caretaker leaves too many messages and reminders, annoying the patient 3. Issues with the system • System is full of alerts and messages: house becomes a rainbow mess! • Proximity recognition failure: screen doesn’t turn on or turn on when the patient is far away Evaluation Techniques First Phase The first evaluation phase was carried out using observation methods and query techniques. The first experiments involved a think aloud technique, where participants were asked to perform tasks using paper prototypes of the Patient module. Since the systems has many functionalities (some of them very similar to use) and the time required from a volunteer to test them all would be to much, tasks (from both systems, patient’s and caretaker’s) were split in two groups. Since getting volunteers who suffer from dementia is out of our reach, the experiment tried to simulate the dementia condition (memory loss, disorientation, etc.) in the following way: 1. The volunteer was introduced a possible scenario and given a task to perform. 2. While performing that task, the volunteer was changed without explaining nor introduce the scenario to the new volunteer. 3. The new volunteer was asked to try to understand and finish the task that was being performed by the previous volunteer. This experiment was carried out using 8 volunteers. Think aloud observation was also used to evaluate the Caretaker module. In this case there was no need to perform any kind of simulation of special conditions (we assume caretakers are standard users). After the experiments, each participant was asked to fill in a questionnaire regarding the user experience with the system. The answers gave us some insights on the user’s perception of the system and some implications for design: • The caretaker application only targets one patient. • Patient location tracking was not well explained. • There is no login system. • Objects view in patient system was not clearly explained. One volunteer did not understand what it was for (button). • The possibility to turn the home-system screens, from both caretaker app and the own system, was missing. • The possibility to turn on devices (while managing them) can mistakenly lead to dangerous situations (e.g. turning on the oven) • They patient might not remember the contact even when looking at the photo. As a result to this feedback some changes were made to both interfaces: • Add labels to every button just in case the patient forgets what it is for. • Add an information button in each screen, in that way the patient can check what was s/he doing if s/he loses her/his memory in the middle of a task. • Add a label to the contacts that are relatives, so the patient always is reminded of who are her/his relatives. • The possibility of turning on devices from the caretaker app will be removed. In this way, generation of dangerous (by mistake) situations is avoided. • The home-screens will have the possibility to be turned off by the patient. Second Phase After the first rough evaluation, we decided to perform some expert evaluation within the group, using cognitive walkthrough and heuristic evaluation. Six more evaluations were also carried out using the same method than in the
  6. 6 first phase (changing volunteers to simulate memory loss, etc.). The analysis was performed against both the Patient and the Caretaker application. The tasks taken into account, when performing cognitive walkthrough, in the Patient app evaluation are the following: add reminder, ask for help (using the bracelet), add reminder, and browse history, contacts, activities and objects (using the screens). The following problems arose from the evaluations were: • Patients did not know how to continue when retaking the task in the middle of its performance (when the change between volunteers happened). • Some inconsistency between buttons’ shape and labels were found (info and home button were not always labeled and info button size was not big enough). • Activity icon was not intuitive. Most of the volunteers misunderstood it with pulse-rate and patient status information. • Objects icon was not intuitive. Volunteers did not know what its functionality was. • Objects label (i.e. objects) was not intuitive. Volunteers did not know what its functionality was. • In the objects view, a patient might not recognize the object by its name, or might not know how to use it or what its functionality is. • Some volunteers had doubts about the accuracy of the colors in the patient application. • The patient might forget the functionalities of the buttons of the bracelet. • The patient might not see the buttons if it is dark. • The patient might not understand if he performed the action properly when using the bracelet. • Home-system displays might be too large (when testing with a TV) or too small (when testing with an iPad). • Asking for help only alerts the caretaker, without contacting him directly. • Patient could forget about the screen presence/use when they are in an idle state (thus showing nothing). With regards of the Caretaker app evaluation, the only issue that arose was the absence of self-explanatory icons to allow an easier navigation (and to rely on users‘ recognition instead of recall). The proposed solutions for the problems found in the second phase of the evaluation were: • Buttons were rearranged, resized and labeled consistently. • Activity icon and label were changed. • Objects icon and label were changed. • Objects have and icon apart from the name so the user might recognize it. • Buttons on the bracelet were changed. They are now labeled and they would have a led so the patient can see them when the room is dark. • Home-system displays will be about 17 inches. This size allows displaying the application UI in a way that every button can be reached and the user does not need to move in order to interact with it. Regarding the colors, as in the first phase, not everyone agreed in its accuracy. However, almost all the volunteers agreed that the colors and icons of the caretaker’s application were appropriate. Some volunteers said that the green screen used for reminder pending might be a little bit intrusive, but since it has to be noticed when appearing, we decided to keep the color. In the following pictures, the evolution of the system can be appreciated1 : The first step was to divide the screen in regions in which to show the different main functionalities. Figure 4: Caretaker’s homepage regions. The next step was to fill in the regions with example content in order to be able to evaluate it. 1 In order not to make this report too large, not all the old mockups are shown. All of them can be found in Support_Files.zip/Mockups/
  7. 7 Figure 5: Caretaker’s homepage version 1. After evaluating, a new version of the homepage was made. In this case, the regions were changed. Instead of the content itself, icons to access functionalities and content are shown. Figure 6: Caretaker’s homepage version 2 without icons. The next step was to paint the interface using the previously chosen colors (see Figure 5). Figure 7: Caretaker’s homepage version 2 with colors. After the second phase of the evaluation, icons were chosen and added to the home screen. Figure 8: Caretaker’s homepage with icons. The case of the patient application evolution is quite simpler since there were fewer changes to be made. The fist design of the homepage had icons and labels for the offered features. Figure 9: Patient’s homepage version 1.
  8. 8 The next step in the design was to fill the interface with colors and make the main buttons distinguishable. Figure 10: Patient’s homepage version 2. After the evaluation some changes were made, as the change of icons and labels. Figure 11: Patient’s homepage version 3.
  9. 9 The last part of the system to take into account is the bracelet. In this case, only two versions were made. Figure 12: Patient’s bracelet version 1. As the buttons could be confusing without labels, they were changed as shown below: Figure 13: Patient's bracelet version 2. RESULTS Our application is a smart-home interactive system to assist people with dementia. The application is composed of two main interfaces for both the patient and the caretaker. Both patient and caretaker’s applications are constantly connected to each other, thus receiving and sending information to each other. Patient’s interface consists of an automated home-system and one personal portable device (i.e. bracelet). The home- system consists of an overall sensing and tracking application and multiple touch-screens connected to it. The main function of the application is to help patients live independently, improve their security, and provide help and information about daily objects and activities. Caretaker’s application is designed to operate on smartphone and/or tablet environments. The application helps the caretaker handle the task of taking care of the patient, for example, the caretaker can call the patient, edit messages and add reminders for the patient, browse patient’s information, or manage the household devices. Both the applications are connected to the server, which keeps both client applications updated. Figure 14: System architecture There are several general assumptions and characteristics of the targeted users of the application. For the dementia patient, the assumptions are that patient have Alzheimer’s disease, or Vascular dementia in the early stages. Furthermore, the patients are assumed able to walk, cook independently, capable of asking help, and taking her/his daily medicine. Patients are also not expected to have any physical weaknesses or paralyses, severe problems with communication, concentration or thinking, or hallucinations.
  10. 10 Wireframes Figure 15: Patient app wireframe
  11. 11 Figure 16: Caretaker app wireframe
  12. 12 Home-system The home-system, or patient’s application, will remind the patient about the ones that has been add into the system, either by the patient himself or by his/her caretaker. Figure 17: Reminder pending screen of the patient's application When the patient touch the screen the reminder will be shown, giving the possibility to postpone it, delete it, or go to the homepage of the system. Figure 18: Reminder screen of the patient's application After performing an action the patient can finish the interaction with the system and retake whatever action s/he was performing before, or keep using the system by going to the homepage.
  13. 13 Figure 19: Patient's application homepage Once in the homepage the patient can perform various actions. Among this actions are: looking for an outdoor or indoor activity, browse contacts or appliances, check previous reminders and tasks, or add a reminder for himself2 . 2 To see all the mockups of the mentioned features go to Support_Files/Mockups/Milestone_3. Figure 20: Add reminder screen of the patient's application
  14. 14 Caretaker application This part of the system allows the caretaker to stay in touch (i.e. by calling), and control and check patient and household status. Figure 21: Caretaker's application homepage.
  15. 15 In order to check patient status, the caretaker(s) can check the patient information. Figure 22: Patient's information screen of the caretaker's application.
  16. 16 The caretaker(s) can also check his/her notifications (when and which medicines did s/he take, for how long and what devices are on/off, etc.). Figure 23: Caretaker's notifications screen
  17. 17 In order to check the household status the caretaker can check its information Figure 24: Patient's house information screen of the caretaker's application.
  18. 18 The caretaker can also check the status of the devices that the house contains, and if necessary change it (e.g. turn off the oven because it has been on for more than 2 hours and the patient is not cooking something that requires it). Figure 25: Manage devices screen of the caretaker's application.
  19. 19 If the caretaker needs to communicate with the patient, s/he can call him by using the application. Alternatively, simply add a message or a reminder that will be shown in the patient’s home-system. Figure 26: Messages and reminder screen of the caretaker's application
  20. 20 Bracelet The third and last part of the system is an interactive bracelet that will always be carried by the patient. Figure 27: Patient's bracelet By using it, the patient can ask for help by clicking the red “help” button. It will alert the caretaker and the doctors (e.g. hospital) that something bad had happened. If the patient is in the house and clicks the green “remind me” button the nearest screen will turn on and allow him/her to add a reminder. DISCUSSION In general, the designed system tries to take into account the main requirements an assistive technology for dementia patients should have: reminders, leisure, communication and security [4]. The design of the caretaker’s application is fast and easy to navigate through; this is an important requisite in order to enable the caretaker to take a quick view of the patient’s status and events in his/her house without spending too much time. That is possible because of the different set of options in the homepage that allows the user to perform almost every task using just a few clicks. In addition, all the touchable parts of the interface are big enough to avoid mistakes when clicking, and that is what makes the application easy to use on tablet or other mobile device. The system is trying to help one or more caretakers with only one patient to look after. The caretaker could be the patient’s relative(s) or other non-trained user instead of an actual nurse. Due to this, the application should not be too complicated nor technical for people without healthcare education. Regarding future work and changes to be made to the system, there should be more help in case of memory loss and the colors of the applications could be changed. Concerning the memory loss problem, we noticed that some volunteers were unsuccessful in finishing the task that another volunteer started. The main scenario where this problem arose was when writing a reminder, that is why the process followed to perform that action should be iterative (i.e. click the “add reminder” button, then specify about what the reminder would be about by clicking a button from a list and then the reminder could be set). In this way the patient could get more feedback about what was happening before losing his/her memory. Concerning the colors, we could not come up with a suitable combination that every participant liked. This is due to some inconclusive results (i.e. some participants liked them, others did not). Since colors are just a matter of taste, the solution would be to make them customizable by the patient and the caretaker according to their preferences. However, not all the colors could be changed (e.g. the reminder pending view of the patient’s application must be intrusive so it is noticed). ACKNOWLEDGMENTS We thank to all the volunteers that made the evaluation process possible without asking for anything in return. The original bracelet image (without buttons) and some of the icons of the patient application are copyrighted. REFERENCES 1. Bjørneby, S., Duff, P., & Mäki, O. (2003). Developing assistive technology for people with dementia. Assistive Technology: Shaping the Future, 781- 786.Mather, B.D. Making up titles for conference papers. Ext. Abstracts CHI 2000, ACM Press (2000), 1-2. 2. Cahill, S., Macijauskiene, J., Nygård, A. M., Faulkner, J. P., & Hagen, I. (2007). Technology in dementia care. Technology and Disability, 19(2), 55-60 3. Sixsmith, A. J., Gibson, G., Orpwood, R. D., & Torrington, J. M. (2007). Developing a technology ‘wish-list’to enhance the quality of life of people with dementia. Gerontechnology, 6(1), 2-19. 4. http://www.atdementia.org.uk
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