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Promoting a global response to multiple
          chronic diseases (polypathology) in the age of
              social media: the OPIMEC experience

       This presentation summarizes progress since 2008 when the project was initiated
          with support from the Andalusian Health Ministry (Spain), and a team led by
Alejandro Jadad (University of Toronto) and Andres Cabrera (Andalusian School of Public Health).

                            (Please press the spacebar to advance)
OPIMEC is the Spanish acronym for the
Observatory of Innovative Practices for Complex Chronic Disease Management.
OPIMEC is a nonprofit initiative that promotes the development and exchange of
   knowledge and experiences on the management of polypathology across
geographical, organizational and cultural boundaries by harnessing the power of
                               online social media.
Guided by a well-established framework for chronic disease management, we have
gone from science fiction to real life, developing a global collaborative effort that led to
the release of the first co-created book focused on the challenges of people living with
                          multiple chronic disease management
One of the results of this collective effort is a book on polypathology that gathers the
 best available knowledge and the most relevant research gaps about this major
                            challenge to our health systems
Critical Mass
          02




                                                                  Participation
  Aim                        User-friendliness                              10
                                           06
   01

                                                 Innovation      Acknowledgement
                  Contents                               07
                        04                                                        09



          Leadership          No SPAM                         Connection
                  03                 05                               08


        OPIMEC is an online ecosystem with ten components powered by
social media. The first five are fully developed, while the rest are shaping up nicely
                 with input from its rapidly growing community.
01 Common aim


                      To reduce the impact of
             multiple complex chronic diseases on the
                population and on health systems


The main objective of OPIMEC is to contribute to worldwide efforts to reduce the
 impact of multiple chronic diseases on the population and on health systems.
02 Critical Mass




 To achieve this, it serves as the meeting point for an exciting
  group of people and leading edge collaborative resources.
02 Critical Mass




 To achieve this, it serves as the meeting point for an exciting
  group of people and leading edge collaborative resources.
02 Critical Mass                People with two or more chronic diseases

                                               2005
                                            9-31%




 One of our top challenges is that we don’t have precise data on the prevalence of
polypathology. Based on the current best estimates, there are from 700 million to 2
       billion people living with two or more chronic diseases in the world.
               That's between 9 and 31% of the world´s population.
02 Critical Mass                 People with two or more chronic diseases

                                                  2050
                                                  2005
                                               40%
                                              9-31%




               It is estimated that these figures will double by 2050.
One of our research priorities is to promote collaborative research on classification
             and detection of co-existing complex chronic diseases.
02 Critical Mass

                                             A huge global
                                             problem
                                             that involves
                                             many people

A big global problem requires a massive global response. Successful prevention,
diagnosis, treatment, monitoring and care of people living with multiple chronic
  diseases should involve a concerted effort involving every sector of society.
02 Critical Mass
                             The OPIMEC community
                                      A growing number of professionals,
                                     who are working to improve the care of
                                       people with chronic diseases, have
                                      joined OPIMEC or other social media
Collage date: January 2010




                                        connected to OPIMEC, like special
                                         groups on Facebook, Twitter and
                                                    Linkedin.
02 Critical Mass
                              The OPIMEC community
 Collage date: January 2010




As of April 2011, the OPIMEC community included over 700 professionals
 from more than thirty countries, a number that continues to grow.
03 Leadership




OPIMEC is a valuable resource to leaders committed to joining efforts to
                meet the challenges of polypathology.
03 Leadership




Together, they are able to encourage other people to bring the best
    available knowledge, practices and resources to key local
                           environments,
03 Leadership




  heading projects that inspire others to colaborate online,
     and to project, globally, the output of their efforts.
04 Contents
04 Contents

OPIMEC has now identified more
  than 170 practices around the
world and 1300 other knowledge
   resources related to chronic
      disease management,
  represented by documents in
   multiple formats and media,
   which are available to health
professionals, researchers, policy
         makers, patients
       and their caregivers
                                     Innovative practices
04 Contents

   The files available on the
OPIMEC platform can be linked
  to each other and to other
 online social media, enabling
users to share knowledge and
      experiencies easily
04 Contents
                                           PRACTICES

 Anyone with interesting       DOCUMENTS               NEWS
material to share, can do it
   on OPIMEC, simply,
       with a click!
                                           SHARE

                               RESOURCES               EVENTS

                                           KNOWLEDGE
04 Contents
Personal workspace
Users can manage content of interest in
a personal workspace which is created
 for them at the time of registration on
                OPIMEC.

 Through this workspace, user can edit
    their profile, access to his or her
   contents easily, send and receive
messages and invite other people to join
  their own personal network so as to
   follow their activities on OPIMEC.
04 Contents
Team workspace
  Members can also create or
 participate in groups focused
   on a specific area and that
  need to exchange material
     privately,or to develop
knowledge collaboratively. This
 includes research proposals,
 articles, reports, declarations,
   guides, books or strategic
      plans, among others.
04 Contents
     Workteams
   OPIMEC supports several
  important teams, including:
 The Scientific Committee of the
 Spanish Conference on Chronic
  Diseases: This is a team led by
 two Spanish Scientific Societies
that are working on a Declaration
 to improve the quality of care for
   people with chronic diseases
          living in Spain
04 Contents
   Workteams
  A team developing the
   Strategic Plan for the
  management of chronic
diseases in Andalusia, Spain
04 Contents
 Workteams

    URSA-MAYOR: an
   international team
 developing a joint pain-
  European report and
consultation on migration
   and healthy ageing
04 Contents
   Workteams
 A network of ten teams who
are co-creating knowledge on
     polypathology. This
 community was responsible
     for the first book on
  polypathology launched in
  2010, which continues to
         evolve online
04 Contents
    Workteams

  OPIMEC is an open network,
 where anyone can create and
            publish
interesting material, making it
 accesible to others, including
   those who are not formally
          registered
05 No SPAM
            OPIMEC:
- Doesn’t have commercial
interests.
- Is protected by powerful anti-
spam software.
- Has an editorial team which
identifies, selects, reviews and
verifies material of interest.
- Has external certification for
the quality of its processes.
06 User-friendliness

 OPIMEC is becoming easier to
use, thanks to intuitive, accesible
     tools that are constantly
   evaluated by its members.

    The platform usability is
 constantly improving to match
  the evolution of social media
           resources.
07 Innovation

   OPIMEC is powered by
LiveDok (Live Document for
Knowledge co-creation), an
open source technology that
 enables users to develop a
document in two languages,
and to improve it in response
 to comments from peers.
07 Innovation

   OPIMEC is powered by
LiveDok (Live Document for
Knowledge co-creation), an
open source technology that
 enables users to develop a
document in two languages,
and to improve it in response
 to comments from peers.
07 Innovation

    The platform also follows
  Copyleft and Contributorship
     approaches to content
management. Copyleft promotes
 the exchange of work without
 restriction and Contributorship
  acknowledges the work of all
members of collaborative groups.
08 Connection




Taking full advantage of all of the technology, methodology and concepts
available on the platform, members only need a good Internet connection,
      open web access, and basic knowledge of online social media.
09 Acknowledgement




                     The platform also uses social
                     media to promote recognition of
                     individuals and organizations for
                     their contributions.
10 Participation



Gaining full benefit from OPIMEC only requires three simple
                           steps:
10 Participation



                         Join

           First, to register as a formal member
10 Participation



                              Share

Second, to be willing to share experiences, materials and knowledge
10 Participation                                           Co-create




Third, to start co-creating knowledge with colleagues from the rest of the world!
10 Participation                                 Co-create
                    This is how the OPIMEC community succeeded in
                     creating an entire book in less than a year, from
                         scratch and with no in-person meetings.
                     Volunteers contributed from all over the world,
                    simultaneously, in English and Spanish, by using
                           OPIMEC with no financial incentives.
                     To the best of our knowledge, this was the first
                   attempt to co-create knowledge, globally around a
                   health issue, using Web 2.0 and social networking
                            tools and following the principles of
                               contributorship and copyleft.
                          It was an exciting adventure!
The lead contributors collected
state-of-the-art information on the
 following ten different aspects of
  polypathology, synthesizing the
     best available knowledge,
identifying gaps and eliciting ideas
on innovative strategies to address
                them
Knowledge areas-Workteams
1. Why Multiple Chronic Diseases? Why now? What is going on around the world? AR. Jadad

2. The language of polypathology. M. Ollero, M. Bernabéu and M. Rincón

3. Prevention and health promotion. R. Smith, C. Rabadán-Diehl, A. Cravioto and A. Wall-Medrano

4. Management models. R. Bengoa, F. Martos and R. Nuño

5. Patient education and self-management support. P. McGowan P, K. Lorig, AR. Jadad

6. Primary care. M. Ollero, JM de la Higuera, M. Bernabeu and MA Ortiz

7. Supportive care and palliative care. A. Lee and O. Yew Jin

8. Integrative medicine. C Tamayo, A Arreaza and C Almonte

9. Socioeconomic implications. F. Martos and E. Herrera

10.Genomics, Robotics, Informatics/eHealth and Nanotechnologies (GRIN). J.Lorca

11. Dealing with the challenges of polypathology, together: What’s next? A. Cabrera, AR. Jadad
This effort set an example of
global knowledge co-creation, in record time,
around major health challenges, transcending
           traditional boundaries
What did we learn during the process?
• It is essential to have a clear common goal, a diverse editorial group, and
  institutional support

• Matching versions of the same document in multiple languages is difficult
• Firm deadlines for contributions must be set and enforced
• Technological glitches are unavoidable
• Copyleft and contributorship are viable options
             These are some key lessons we learned during
                 the process of knowledge co-creation
More ongoing co-creation projects emerged




   The report of a consultation by the European Commission on
                     Active and Healthy Ageing
More ongoing co-creation projects emerged




A declaration for improving the care quality of people with chronic diseases
              which is driven by Spanish scientific societies.
            Its first version was presented in January in Seville.
More ongoing co-creation projects emerged




The Strategic Andalusian Plan on caring for people with chronic diseases. It will be
 launched at the Care Quality Forum that will be celebrated in October of 2011 in
                           Granada, Andalusia, Spain
More ongoing co-creation projects emerged



                             RESEARCH AGENDA




The European Grant Planning Committee meeting to define a research agenda
around the integrated systems of health and social services that are required to
    meet the needs of elderly individuals with complex chronic conditions.
You are welcome to participate in these projects.
       OPIMEC will also support any other initiative of interest to you.




The Andalusian team: Andrés Cabrera, Diana Gosálvez, Alejandro López, Begoña Isac, Antonio Contreras

                        Please, contact us at info@opimec.org

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OPIMEC: Professional Network

  • 1. Promoting a global response to multiple chronic diseases (polypathology) in the age of social media: the OPIMEC experience This presentation summarizes progress since 2008 when the project was initiated with support from the Andalusian Health Ministry (Spain), and a team led by Alejandro Jadad (University of Toronto) and Andres Cabrera (Andalusian School of Public Health). (Please press the spacebar to advance)
  • 2. OPIMEC is the Spanish acronym for the Observatory of Innovative Practices for Complex Chronic Disease Management.
  • 3. OPIMEC is a nonprofit initiative that promotes the development and exchange of knowledge and experiences on the management of polypathology across geographical, organizational and cultural boundaries by harnessing the power of online social media.
  • 4. Guided by a well-established framework for chronic disease management, we have gone from science fiction to real life, developing a global collaborative effort that led to the release of the first co-created book focused on the challenges of people living with multiple chronic disease management
  • 5. One of the results of this collective effort is a book on polypathology that gathers the best available knowledge and the most relevant research gaps about this major challenge to our health systems
  • 6. Critical Mass 02 Participation Aim User-friendliness 10 06 01 Innovation Acknowledgement Contents 07 04 09 Leadership No SPAM Connection 03 05 08 OPIMEC is an online ecosystem with ten components powered by social media. The first five are fully developed, while the rest are shaping up nicely with input from its rapidly growing community.
  • 7. 01 Common aim To reduce the impact of multiple complex chronic diseases on the population and on health systems The main objective of OPIMEC is to contribute to worldwide efforts to reduce the impact of multiple chronic diseases on the population and on health systems.
  • 8. 02 Critical Mass To achieve this, it serves as the meeting point for an exciting group of people and leading edge collaborative resources.
  • 9. 02 Critical Mass To achieve this, it serves as the meeting point for an exciting group of people and leading edge collaborative resources.
  • 10. 02 Critical Mass People with two or more chronic diseases 2005 9-31% One of our top challenges is that we don’t have precise data on the prevalence of polypathology. Based on the current best estimates, there are from 700 million to 2 billion people living with two or more chronic diseases in the world. That's between 9 and 31% of the world´s population.
  • 11. 02 Critical Mass People with two or more chronic diseases 2050 2005 40% 9-31% It is estimated that these figures will double by 2050. One of our research priorities is to promote collaborative research on classification and detection of co-existing complex chronic diseases.
  • 12. 02 Critical Mass A huge global problem that involves many people A big global problem requires a massive global response. Successful prevention, diagnosis, treatment, monitoring and care of people living with multiple chronic diseases should involve a concerted effort involving every sector of society.
  • 13. 02 Critical Mass The OPIMEC community A growing number of professionals, who are working to improve the care of people with chronic diseases, have joined OPIMEC or other social media Collage date: January 2010 connected to OPIMEC, like special groups on Facebook, Twitter and Linkedin.
  • 14. 02 Critical Mass The OPIMEC community Collage date: January 2010 As of April 2011, the OPIMEC community included over 700 professionals from more than thirty countries, a number that continues to grow.
  • 15. 03 Leadership OPIMEC is a valuable resource to leaders committed to joining efforts to meet the challenges of polypathology.
  • 16. 03 Leadership Together, they are able to encourage other people to bring the best available knowledge, practices and resources to key local environments,
  • 17. 03 Leadership heading projects that inspire others to colaborate online, and to project, globally, the output of their efforts.
  • 19. 04 Contents OPIMEC has now identified more than 170 practices around the world and 1300 other knowledge resources related to chronic disease management, represented by documents in multiple formats and media, which are available to health professionals, researchers, policy makers, patients and their caregivers Innovative practices
  • 20. 04 Contents The files available on the OPIMEC platform can be linked to each other and to other online social media, enabling users to share knowledge and experiencies easily
  • 21. 04 Contents PRACTICES Anyone with interesting DOCUMENTS NEWS material to share, can do it on OPIMEC, simply, with a click! SHARE RESOURCES EVENTS KNOWLEDGE
  • 22. 04 Contents Personal workspace Users can manage content of interest in a personal workspace which is created for them at the time of registration on OPIMEC. Through this workspace, user can edit their profile, access to his or her contents easily, send and receive messages and invite other people to join their own personal network so as to follow their activities on OPIMEC.
  • 23. 04 Contents Team workspace Members can also create or participate in groups focused on a specific area and that need to exchange material privately,or to develop knowledge collaboratively. This includes research proposals, articles, reports, declarations, guides, books or strategic plans, among others.
  • 24. 04 Contents Workteams OPIMEC supports several important teams, including: The Scientific Committee of the Spanish Conference on Chronic Diseases: This is a team led by two Spanish Scientific Societies that are working on a Declaration to improve the quality of care for people with chronic diseases living in Spain
  • 25. 04 Contents Workteams A team developing the Strategic Plan for the management of chronic diseases in Andalusia, Spain
  • 26. 04 Contents Workteams URSA-MAYOR: an international team developing a joint pain- European report and consultation on migration and healthy ageing
  • 27. 04 Contents Workteams A network of ten teams who are co-creating knowledge on polypathology. This community was responsible for the first book on polypathology launched in 2010, which continues to evolve online
  • 28. 04 Contents Workteams OPIMEC is an open network, where anyone can create and publish interesting material, making it accesible to others, including those who are not formally registered
  • 29. 05 No SPAM OPIMEC: - Doesn’t have commercial interests. - Is protected by powerful anti- spam software. - Has an editorial team which identifies, selects, reviews and verifies material of interest. - Has external certification for the quality of its processes.
  • 30. 06 User-friendliness OPIMEC is becoming easier to use, thanks to intuitive, accesible tools that are constantly evaluated by its members. The platform usability is constantly improving to match the evolution of social media resources.
  • 31. 07 Innovation OPIMEC is powered by LiveDok (Live Document for Knowledge co-creation), an open source technology that enables users to develop a document in two languages, and to improve it in response to comments from peers.
  • 32. 07 Innovation OPIMEC is powered by LiveDok (Live Document for Knowledge co-creation), an open source technology that enables users to develop a document in two languages, and to improve it in response to comments from peers.
  • 33. 07 Innovation The platform also follows Copyleft and Contributorship approaches to content management. Copyleft promotes the exchange of work without restriction and Contributorship acknowledges the work of all members of collaborative groups.
  • 34. 08 Connection Taking full advantage of all of the technology, methodology and concepts available on the platform, members only need a good Internet connection, open web access, and basic knowledge of online social media.
  • 35. 09 Acknowledgement The platform also uses social media to promote recognition of individuals and organizations for their contributions.
  • 36. 10 Participation Gaining full benefit from OPIMEC only requires three simple steps:
  • 37. 10 Participation Join First, to register as a formal member
  • 38. 10 Participation Share Second, to be willing to share experiences, materials and knowledge
  • 39. 10 Participation Co-create Third, to start co-creating knowledge with colleagues from the rest of the world!
  • 40. 10 Participation Co-create This is how the OPIMEC community succeeded in creating an entire book in less than a year, from scratch and with no in-person meetings. Volunteers contributed from all over the world, simultaneously, in English and Spanish, by using OPIMEC with no financial incentives. To the best of our knowledge, this was the first attempt to co-create knowledge, globally around a health issue, using Web 2.0 and social networking tools and following the principles of contributorship and copyleft. It was an exciting adventure!
  • 41. The lead contributors collected state-of-the-art information on the following ten different aspects of polypathology, synthesizing the best available knowledge, identifying gaps and eliciting ideas on innovative strategies to address them
  • 42. Knowledge areas-Workteams 1. Why Multiple Chronic Diseases? Why now? What is going on around the world? AR. Jadad 2. The language of polypathology. M. Ollero, M. Bernabéu and M. Rincón 3. Prevention and health promotion. R. Smith, C. Rabadán-Diehl, A. Cravioto and A. Wall-Medrano 4. Management models. R. Bengoa, F. Martos and R. Nuño 5. Patient education and self-management support. P. McGowan P, K. Lorig, AR. Jadad 6. Primary care. M. Ollero, JM de la Higuera, M. Bernabeu and MA Ortiz 7. Supportive care and palliative care. A. Lee and O. Yew Jin 8. Integrative medicine. C Tamayo, A Arreaza and C Almonte 9. Socioeconomic implications. F. Martos and E. Herrera 10.Genomics, Robotics, Informatics/eHealth and Nanotechnologies (GRIN). J.Lorca 11. Dealing with the challenges of polypathology, together: What’s next? A. Cabrera, AR. Jadad
  • 43. This effort set an example of global knowledge co-creation, in record time, around major health challenges, transcending traditional boundaries
  • 44. What did we learn during the process? • It is essential to have a clear common goal, a diverse editorial group, and institutional support • Matching versions of the same document in multiple languages is difficult • Firm deadlines for contributions must be set and enforced • Technological glitches are unavoidable • Copyleft and contributorship are viable options These are some key lessons we learned during the process of knowledge co-creation
  • 45. More ongoing co-creation projects emerged The report of a consultation by the European Commission on Active and Healthy Ageing
  • 46. More ongoing co-creation projects emerged A declaration for improving the care quality of people with chronic diseases which is driven by Spanish scientific societies. Its first version was presented in January in Seville.
  • 47. More ongoing co-creation projects emerged The Strategic Andalusian Plan on caring for people with chronic diseases. It will be launched at the Care Quality Forum that will be celebrated in October of 2011 in Granada, Andalusia, Spain
  • 48. More ongoing co-creation projects emerged RESEARCH AGENDA The European Grant Planning Committee meeting to define a research agenda around the integrated systems of health and social services that are required to meet the needs of elderly individuals with complex chronic conditions.
  • 49. You are welcome to participate in these projects. OPIMEC will also support any other initiative of interest to you. The Andalusian team: Andrés Cabrera, Diana Gosálvez, Alejandro López, Begoña Isac, Antonio Contreras Please, contact us at info@opimec.org

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  342. \n
  343. \n
  344. \n
  345. \n
  346. \n
  347. \n
  348. \n
  349. \n