Invited presentation, Health and Biomedical Informatics Centre Launch symposium, March 2014.

1. HaBIC
Ehealth and Participatory Health
Informatics Research
Symposium 28 March 2014
Kathleen Gray

2. HaBIC’s ehealth research agenda:
questions of changing professional practice &
quality of care

3. Ehealth : Education of future clinicians
How can we ensure that next gen
professionals are discerning users of
data, information, knowledge and
technologies?
National interprofessional review of
learning, teaching and assessment
of ehealth in universities
Commonwealth Office of Learning
and Teaching, University of
Queensland, University of Western
Sydney, Curtin University

4. Ehealth: Assessment of provider organization
connectivity
How can we plan for providers’
high-capacity broadband
requirements for future health
services delivery?
Scenarios based on in-depth
review of network requirements
and performance priorities with
health CIOs
IBES & Australian Centre for
Health Innovation

5. Ehealth: Evaluation of telehealth implementations
Could we learn more, sooner
about good practice by evaluating
the plethora of pilots more
systematically?
A framework that includes
patients / clinicians / health
service manages / IT managers;
sets of metrics derived from
Australian criteria
Melbourne Research Office &
IBES; Melbourne Health, RCH,
Wangaratta; RDNS; VeRSI;
UWS; & industry partners
“Much mention has been
made in the press of
individual Telehealth
activities as if they were
highly novel…”
One in Four Lives: The Future of
Telehealth in Australia. March 2014
http://bit.ly/1mXuOze

6. Ehealth: More ….
• Dynamic predictive length of stay modelling that rapidly identifies
patients most at risk (NHMRC / UNSW)
• Non-contact 3D falls detection, prevention and behavioural
monitoring in aged residential & home environments: developing
a clinical evaluation and application framework (IBES & industry
partners )
• Social media support for informal learning and development
among practicing health professionals (PhD Xin Li & industry
partner)

7. HaBIC’s participatory health research agenda:
questions of self-help and health outcomes

8. Participatory health: Mobile augmented reality for
public engagement with health research
MAR on your smartphone or
tablet – can it engage people in
the street in greater interaction
with biomedical and healthcare
research in the Parkville
Precinct?
Interface prototype, information
architecture, field trials
Melbourne Scholarly Information
Innovation Fund; Melbourne
Research Office & IBES; 4
research institutes

9. Participatory health: IPTV 2.0 for health literacy
Internet protocol TV with web 2.0
personalisation, in your home – can it
educate people with low health
literacy and low Internet literacy about
how to manage their chronic
disease?
Technical integration; process
modelling; consumer and provider
acceptance testing
IBES, Diabetes Australia-Vic &
industry partners

10. Participatory health: Social media for people with
chronic disease
Social media platforms and tools
– what is the evidence that they
work, and what is the mechanism
by which they work, for people
who are using them to manage
their chronic disease (chronic
pain; brain tumours) ?
Review of platforms; international
user survey; RCT pilot study
IBES; PhD Mark Merolli;
Universita della Svizzera Italiana;
Melbourne Health

11. Participatory health: Self-quantification for
everybody
Self-quantification devices and apps – can
they be used in combination - and in
partnership with peers, clinicians and
researchers - to support personal health
self-management effectively at scale?
S-Q laboratory & user guide; PHR and
EHR integration testing; international user
survey; clinical trial by very obese
pregnant women
IBES & Melbourne Medical School; PhD
Manal Almalki; Master of IS Mark
Whooley; Melbourne Quantified Self
Group; Sunshine Hospital

12. Participatory health : More
• Smart Companion home medicine shelf: self-
management of medication using RFID sensor network
(IBES)
• Direct-to-consumer online medical consultation services
(PhD Ibrahim Al-Mahdi)
• Direct-to-consumer personal genomics and metabolomics
services and datasets

13. Selected publications
Almalki, M., Martin-Sanchez, F., & Gray, K. (2013). Self-Quantification: The Informatics of personal data
management for health and fitness. Melbourne: Institute for a Broadband-Enabled Society.
Gilbert, C., Gray, K., Martin Sanchez, F., Karunasekera, S., Bhakoo, V., Harrison, S., Smolenaers, F., & Egan, J.
(2013). Health Provider Broadband Connectivity: A review of technical requirements. Melbourne: Institute for a
Broadband-Enabled Society.
Dattakumar, A., Gray, K., Jury, S., Biggs, B., Maeder, A., Noble, D., Borda, A., Schulz, T., & Gasko, H. (2013). A
Unified Approach for the Evaluation of Telehealth Implementations in Australia. Melbourne: Institute for a
Broadband-Enabled Society.
Gray, K., Clarke, K., Kwong, M., Alzougool, B., Hines, C., Tidhar, G., & Frukhtman, F. (2014). Internet Protocol
Television for personalized home-based health information: Design-based research on a diabetes education
system. JMIR Research Protocols, 3(1), e13.
Gray, K., Dattakumar, A., Maeder, A., Butler-Henderson, K., Chenery, H. (2014). Advancing Ehealth Education for
the Clinical Health Professions. Final Report. Sydney, NSW: Department of Education Office for Learning and
Teaching.
Kilby, J., Gray, K., Elliott, K., Waycott, J., Martin Sanchez, F., & Dave, B. (2013). Designing a mobile augmented
reality tool for the locative visualisation of biomedical knowledge. In C. Lehmann, E. Ammenwerth, Eds,.
MEDINFO 2013: Proceedings of the 14th World Congress on Medical and Health Informatics: Building a
healthcare future through trusted information, Copenhagen. Amsterdam, Netherlands: IOS Press.
Martin Sanchez, F., Lopez Campos, G., & Gray, K. (2013). Biomedical informatics methods for personalized
medicine and participatory health. (pp. 347-385) In N. Sarker, Ed., Methods in Biomedical Informatics: A
Pragmatic Approach. London: Academic Press. ISBN 9780124016781.
Merolli, M., Gray, K., & Martin-Sanchez, F. (2013). Health outcomes and related effects of using social media in
chronic disease management: A literature review and analysis of affordances. Journal of Biomedical Informatics,
46(6), 957-969.

14. Image credits
• resources3.news.com.au/images/2011/04/13/1226038/727543-e-health.gif
• www.nepeandgp.org.au/ehealth.aspx
• www.ahwi.edu.au
• theconversation.com
• clinicalposters.com/anatomy/body/304.html
• mobihealthnews.com/4048/interview-layar-augmented-reality-and-wireless-
healthcare/
• broadband.unimelb.edu.au
• www.healthcareos.com
• quantified-self.meetup.com