SlideShare uma empresa Scribd logo
1 de 38
Rare Disease Day  2011
Past events 2008 : RD as a Public Health Priority  (overarching theme x 4 years) “ A rare day for special people” 2009 : Patient-centred care  “ Patient Care: A Public Affair!” 2010: Bridging Patients and Research “ Patients & Researchers: Partners for Life!”’
2011 ,[object Object],[object Object],[object Object],[object Object],[object Object]
Participating Countries ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Countries that participated in RDD 2008-11
National Alliances ,[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],RDD website
 
4th edition Theme: Rare Diseases &  Health Inequalities Slogan: “ RARE BUT EQUAL”
RDD website ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],Logo and slogan
 
 
« Rare but Equal » ,[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Friends of RDD
Friends of RDD
[object Object],[object Object],[object Object],[object Object],Social networks
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Creating momentum for National Plans
Reports, surveys ,[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],Country highlights - France
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Country highlights - Hungary
Italy ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Spain ,[object Object],[object Object],[object Object]
Romania ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],More highlights - USA
[object Object],[object Object],[object Object],USA
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Even the Pope acknowledged Rare Disease Day
Federations ,[object Object],[object Object],[object Object]
European event ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Venue Residence Palace International Press Center, Brussels … two steps aways from EC and EP
European event ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
European event ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object]
European event ,[object Object],[object Object],[object Object],[object Object]
Media coverage ,[object Object],[object Object],[object Object],[object Object],Yahoo Health   Les Echos The Independent And more than  2000 on-line press clippings

Mais conteúdo relacionado

Semelhante a Rare disease day 2011 highlights

2009 Convegno Malattie Rare Lipucci Di Paola [22 01]
2009 Convegno Malattie Rare Lipucci Di Paola [22 01]2009 Convegno Malattie Rare Lipucci Di Paola [22 01]
2009 Convegno Malattie Rare Lipucci Di Paola [22 01]cmid
 
WHO Regional Office for Europe’s programmes and actions for public health
WHO Regional Office for Europe’s programmes and actions for public healthWHO Regional Office for Europe’s programmes and actions for public health
WHO Regional Office for Europe’s programmes and actions for public healthWHO Regional Office for Europe
 
Philippe Amouyel, JPND Milan Nov. 2013
Philippe Amouyel, JPND Milan Nov. 2013Philippe Amouyel, JPND Milan Nov. 2013
Philippe Amouyel, JPND Milan Nov. 2013jpndresearch
 
Work of the WHO Regional Office for Europe for public health
Work of the WHO Regional Office for Europe for public healthWork of the WHO Regional Office for Europe for public health
Work of the WHO Regional Office for Europe for public healthWHO Regional Office for Europe
 
Mark Lawler - European Cancer Concord and Queens University Belfast - 8th Eur...
Mark Lawler - European Cancer Concord and Queens University Belfast - 8th Eur...Mark Lawler - European Cancer Concord and Queens University Belfast - 8th Eur...
Mark Lawler - European Cancer Concord and Queens University Belfast - 8th Eur...Cittadinanzattiva onlus
 
Meeting report
Meeting reportMeeting report
Meeting reportFEChair
 
Health 2020 and Nordic public health: a healthier, more equitable Europe
Health 2020 and Nordic public health: a healthier, more equitable EuropeHealth 2020 and Nordic public health: a healthier, more equitable Europe
Health 2020 and Nordic public health: a healthier, more equitable EuropeWHO Regional Office for Europe
 
Regional Director's report on the work of the WHO Regional Office for Europe
Regional Director's report on the work of the WHO Regional Office for EuropeRegional Director's report on the work of the WHO Regional Office for Europe
Regional Director's report on the work of the WHO Regional Office for EuropeWHO Regional Office for Europe
 
Sandra Liede: The Finnish Genome Strategy and the Genome Law
Sandra Liede: The Finnish Genome Strategy and the Genome LawSandra Liede: The Finnish Genome Strategy and the Genome Law
Sandra Liede: The Finnish Genome Strategy and the Genome LawTHL
 
EPAD 2017 - Jan Willem Van de Loo
EPAD 2017 - Jan Willem Van de LooEPAD 2017 - Jan Willem Van de Loo
EPAD 2017 - Jan Willem Van de LooMarc van Gurp
 
Patients as empowered partners? Experience about the Expo at the European C...
Patients as empowered partners? Experience about the Expo at the European C...Patients as empowered partners? Experience about the Expo at the European C...
Patients as empowered partners? Experience about the Expo at the European C...jangeissler
 
EANM patient information on thyroid cancer
EANM patient information on thyroid cancerEANM patient information on thyroid cancer
EANM patient information on thyroid cancerMarika Porrey
 
O futuro é brilhante - a saúde pública do futuro
 O futuro é brilhante - a saúde pública do futuro O futuro é brilhante - a saúde pública do futuro
O futuro é brilhante - a saúde pública do futuroJohn Middleton
 

Semelhante a Rare disease day 2011 highlights (20)

Rare Disease Day 2010 report on campaign
Rare Disease Day 2010 report on campaign   Rare Disease Day 2010 report on campaign
Rare Disease Day 2010 report on campaign
 
2009 Convegno Malattie Rare Lipucci Di Paola [22 01]
2009 Convegno Malattie Rare Lipucci Di Paola [22 01]2009 Convegno Malattie Rare Lipucci Di Paola [22 01]
2009 Convegno Malattie Rare Lipucci Di Paola [22 01]
 
Sesion 2 terkel 14 05 2010 (final)
Sesion 2 terkel 14 05 2010 (final)Sesion 2 terkel 14 05 2010 (final)
Sesion 2 terkel 14 05 2010 (final)
 
Session 2 terkel_andersen
Session 2 terkel_andersenSession 2 terkel_andersen
Session 2 terkel_andersen
 
WHO Regional Office for Europe’s programmes and actions for public health
WHO Regional Office for Europe’s programmes and actions for public healthWHO Regional Office for Europe’s programmes and actions for public health
WHO Regional Office for Europe’s programmes and actions for public health
 
Philippe Amouyel, JPND Milan Nov. 2013
Philippe Amouyel, JPND Milan Nov. 2013Philippe Amouyel, JPND Milan Nov. 2013
Philippe Amouyel, JPND Milan Nov. 2013
 
Work of the WHO Regional Office for Europe for public health
Work of the WHO Regional Office for Europe for public healthWork of the WHO Regional Office for Europe for public health
Work of the WHO Regional Office for Europe for public health
 
Mark Lawler - European Cancer Concord and Queens University Belfast - 8th Eur...
Mark Lawler - European Cancer Concord and Queens University Belfast - 8th Eur...Mark Lawler - European Cancer Concord and Queens University Belfast - 8th Eur...
Mark Lawler - European Cancer Concord and Queens University Belfast - 8th Eur...
 
Workshop 4 - "EURORDIS Research Policy recommendation"
Workshop 4 - "EURORDIS Research Policy recommendation"Workshop 4 - "EURORDIS Research Policy recommendation"
Workshop 4 - "EURORDIS Research Policy recommendation"
 
Meeting report
Meeting reportMeeting report
Meeting report
 
Meeting report Family Matters
Meeting report Family MattersMeeting report Family Matters
Meeting report Family Matters
 
Health 2020 and Nordic public health: a healthier, more equitable Europe
Health 2020 and Nordic public health: a healthier, more equitable EuropeHealth 2020 and Nordic public health: a healthier, more equitable Europe
Health 2020 and Nordic public health: a healthier, more equitable Europe
 
Regional Director's report on the work of the WHO Regional Office for Europe
Regional Director's report on the work of the WHO Regional Office for EuropeRegional Director's report on the work of the WHO Regional Office for Europe
Regional Director's report on the work of the WHO Regional Office for Europe
 
Sandra Liede: The Finnish Genome Strategy and the Genome Law
Sandra Liede: The Finnish Genome Strategy and the Genome LawSandra Liede: The Finnish Genome Strategy and the Genome Law
Sandra Liede: The Finnish Genome Strategy and the Genome Law
 
EPAD 2017 - Jan Willem Van de Loo
EPAD 2017 - Jan Willem Van de LooEPAD 2017 - Jan Willem Van de Loo
EPAD 2017 - Jan Willem Van de Loo
 
Patients as empowered partners? Experience about the Expo at the European C...
Patients as empowered partners? Experience about the Expo at the European C...Patients as empowered partners? Experience about the Expo at the European C...
Patients as empowered partners? Experience about the Expo at the European C...
 
eHealth in Europe: Rules and Regulations
eHealth in Europe: Rules and RegulationseHealth in Europe: Rules and Regulations
eHealth in Europe: Rules and Regulations
 
Press release. Policy Audit Fertility
Press release. Policy Audit Fertility Press release. Policy Audit Fertility
Press release. Policy Audit Fertility
 
EANM patient information on thyroid cancer
EANM patient information on thyroid cancerEANM patient information on thyroid cancer
EANM patient information on thyroid cancer
 
O futuro é brilhante - a saúde pública do futuro
 O futuro é brilhante - a saúde pública do futuro O futuro é brilhante - a saúde pública do futuro
O futuro é brilhante - a saúde pública do futuro
 

Mais de EURORDIS - Rare Diseases Europe

RareConnect.org webinar How to use Twitter to build your online rare disease ...
RareConnect.org webinar How to use Twitter to build your online rare disease ...RareConnect.org webinar How to use Twitter to build your online rare disease ...
RareConnect.org webinar How to use Twitter to build your online rare disease ...EURORDIS - Rare Diseases Europe
 
RareConnect.org webinar: How to start an awareness day for your rare disease
RareConnect.org webinar: How to start an awareness day for your rare diseaseRareConnect.org webinar: How to start an awareness day for your rare disease
RareConnect.org webinar: How to start an awareness day for your rare diseaseEURORDIS - Rare Diseases Europe
 
Update on the Mysasthenia Gravis community on RareConnect.org
Update on the Mysasthenia Gravis community on RareConnect.orgUpdate on the Mysasthenia Gravis community on RareConnect.org
Update on the Mysasthenia Gravis community on RareConnect.orgEURORDIS - Rare Diseases Europe
 
RareConnect.org - Connecting Rare Disease Patients Globally
RareConnect.org - Connecting Rare Disease Patients GloballyRareConnect.org - Connecting Rare Disease Patients Globally
RareConnect.org - Connecting Rare Disease Patients GloballyEURORDIS - Rare Diseases Europe
 
Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...EURORDIS - Rare Diseases Europe
 
Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...EURORDIS - Rare Diseases Europe
 
Results of a survey on the role of Patient Groups in Research and their prio...
Results of a survey on the role of Patient Groups in Research and their prio...Results of a survey on the role of Patient Groups in Research and their prio...
Results of a survey on the role of Patient Groups in Research and their prio...EURORDIS - Rare Diseases Europe
 
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...EURORDIS - Rare Diseases Europe
 
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe" Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe" EURORDIS - Rare Diseases Europe
 
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"EURORDIS - Rare Diseases Europe
 
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"EURORDIS - Rare Diseases Europe
 
Conference 5 - “Patient’s Experience in the Development and Implementation of...
Conference 5 - “Patient’s Experience in the Development and Implementation of...Conference 5 - “Patient’s Experience in the Development and Implementation of...
Conference 5 - “Patient’s Experience in the Development and Implementation of...EURORDIS - Rare Diseases Europe
 

Mais de EURORDIS - Rare Diseases Europe (20)

RareConnect.org webinar How to use Twitter to build your online rare disease ...
RareConnect.org webinar How to use Twitter to build your online rare disease ...RareConnect.org webinar How to use Twitter to build your online rare disease ...
RareConnect.org webinar How to use Twitter to build your online rare disease ...
 
RareConnect.org Update 2016
RareConnect.org Update 2016RareConnect.org Update 2016
RareConnect.org Update 2016
 
RareConnect.org webinar: How to start an awareness day for your rare disease
RareConnect.org webinar: How to start an awareness day for your rare diseaseRareConnect.org webinar: How to start an awareness day for your rare disease
RareConnect.org webinar: How to start an awareness day for your rare disease
 
Living with TRAPS poll results
Living with TRAPS poll resultsLiving with TRAPS poll results
Living with TRAPS poll results
 
Pitt Hopkins syndrome community on RareConnect.org
Pitt Hopkins syndrome community on RareConnect.orgPitt Hopkins syndrome community on RareConnect.org
Pitt Hopkins syndrome community on RareConnect.org
 
The Value of Online Communities
The Value of Online CommunitiesThe Value of Online Communities
The Value of Online Communities
 
Updates to RareConnect.org in 2014
Updates to RareConnect.org in 2014Updates to RareConnect.org in 2014
Updates to RareConnect.org in 2014
 
Update on the Mysasthenia Gravis community on RareConnect.org
Update on the Mysasthenia Gravis community on RareConnect.orgUpdate on the Mysasthenia Gravis community on RareConnect.org
Update on the Mysasthenia Gravis community on RareConnect.org
 
Surveys and polls: The RareConnect.org Experience
Surveys and polls: The RareConnect.org ExperienceSurveys and polls: The RareConnect.org Experience
Surveys and polls: The RareConnect.org Experience
 
RareConnect.org - Connecting Rare Disease Patients Globally
RareConnect.org - Connecting Rare Disease Patients GloballyRareConnect.org - Connecting Rare Disease Patients Globally
RareConnect.org - Connecting Rare Disease Patients Globally
 
Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...
 
Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...
 
Results of a survey on the role of Patient Groups in Research and their prio...
Results of a survey on the role of Patient Groups in Research and their prio...Results of a survey on the role of Patient Groups in Research and their prio...
Results of a survey on the role of Patient Groups in Research and their prio...
 
Conference 3 "Outcomes of 15 National Conferences, "
Conference 3   "Outcomes of 15 National Conferences, "Conference 3   "Outcomes of 15 National Conferences, "
Conference 3 "Outcomes of 15 National Conferences, "
 
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...
 
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe" Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"
 
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"
 
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"
 
Conference 5 - “Patient’s Experience in the Development and Implementation of...
Conference 5 - “Patient’s Experience in the Development and Implementation of...Conference 5 - “Patient’s Experience in the Development and Implementation of...
Conference 5 - “Patient’s Experience in the Development and Implementation of...
 
Workshop 3 - "Presentation of the Epi-Rare project"
Workshop 3 - "Presentation of the Epi-Rare project"Workshop 3 - "Presentation of the Epi-Rare project"
Workshop 3 - "Presentation of the Epi-Rare project"
 

Último

PULMONARY EMBOLISM AND ITS MANAGEMENTS.pdf
PULMONARY EMBOLISM AND ITS MANAGEMENTS.pdfPULMONARY EMBOLISM AND ITS MANAGEMENTS.pdf
PULMONARY EMBOLISM AND ITS MANAGEMENTS.pdfDolisha Warbi
 
Presentation on General Anesthetics pdf.
Presentation on General Anesthetics pdf.Presentation on General Anesthetics pdf.
Presentation on General Anesthetics pdf.Prerana Jadhav
 
Report Back from SGO: What’s New in Uterine Cancer?.pptx
Report Back from SGO: What’s New in Uterine Cancer?.pptxReport Back from SGO: What’s New in Uterine Cancer?.pptx
Report Back from SGO: What’s New in Uterine Cancer?.pptxbkling
 
History and Development of Pharmacovigilence.pdf
History and Development of Pharmacovigilence.pdfHistory and Development of Pharmacovigilence.pdf
History and Development of Pharmacovigilence.pdfSasikiranMarri
 
COVID-19 (NOVEL CORONA VIRUS DISEASE PANDEMIC ).pptx
COVID-19  (NOVEL CORONA  VIRUS DISEASE PANDEMIC ).pptxCOVID-19  (NOVEL CORONA  VIRUS DISEASE PANDEMIC ).pptx
COVID-19 (NOVEL CORONA VIRUS DISEASE PANDEMIC ).pptxBibekananda shah
 
Music Therapy's Impact in Palliative Care| IAPCON2024| Dr. Tara Rajendran
Music Therapy's Impact in Palliative Care| IAPCON2024| Dr. Tara RajendranMusic Therapy's Impact in Palliative Care| IAPCON2024| Dr. Tara Rajendran
Music Therapy's Impact in Palliative Care| IAPCON2024| Dr. Tara RajendranTara Rajendran
 
world health day presentation ppt download
world health day presentation ppt downloadworld health day presentation ppt download
world health day presentation ppt downloadAnkitKumar311566
 
Lippincott Microcards_ Microbiology Flash Cards-LWW (2015).pdf
Lippincott Microcards_ Microbiology Flash Cards-LWW (2015).pdfLippincott Microcards_ Microbiology Flash Cards-LWW (2015).pdf
Lippincott Microcards_ Microbiology Flash Cards-LWW (2015).pdfSreeja Cherukuru
 
Radiation Dosimetry Parameters and Isodose Curves.pptx
Radiation Dosimetry Parameters and Isodose Curves.pptxRadiation Dosimetry Parameters and Isodose Curves.pptx
Radiation Dosimetry Parameters and Isodose Curves.pptxDr. Dheeraj Kumar
 
Pharmaceutical Marketting: Unit-5, Pricing
Pharmaceutical Marketting: Unit-5, PricingPharmaceutical Marketting: Unit-5, Pricing
Pharmaceutical Marketting: Unit-5, PricingArunagarwal328757
 
SWD (Short wave diathermy)- Physiotherapy.ppt
SWD (Short wave diathermy)- Physiotherapy.pptSWD (Short wave diathermy)- Physiotherapy.ppt
SWD (Short wave diathermy)- Physiotherapy.pptMumux Mirani
 
Let's Talk About It: To Disclose or Not to Disclose?
Let's Talk About It: To Disclose or Not to Disclose?Let's Talk About It: To Disclose or Not to Disclose?
Let's Talk About It: To Disclose or Not to Disclose?bkling
 
LUNG TUMORS AND ITS CLASSIFICATIONS.pdf
LUNG TUMORS AND ITS  CLASSIFICATIONS.pdfLUNG TUMORS AND ITS  CLASSIFICATIONS.pdf
LUNG TUMORS AND ITS CLASSIFICATIONS.pdfDolisha Warbi
 
call girls in Connaught Place DELHI 🔝 >༒9540349809 🔝 genuine Escort Service ...
call girls in Connaught Place  DELHI 🔝 >༒9540349809 🔝 genuine Escort Service ...call girls in Connaught Place  DELHI 🔝 >༒9540349809 🔝 genuine Escort Service ...
call girls in Connaught Place DELHI 🔝 >༒9540349809 🔝 genuine Escort Service ...saminamagar
 
call girls in Dwarka Sector 21 Metro DELHI 🔝 >༒9540349809 🔝 genuine Escort Se...
call girls in Dwarka Sector 21 Metro DELHI 🔝 >༒9540349809 🔝 genuine Escort Se...call girls in Dwarka Sector 21 Metro DELHI 🔝 >༒9540349809 🔝 genuine Escort Se...
call girls in Dwarka Sector 21 Metro DELHI 🔝 >༒9540349809 🔝 genuine Escort Se...saminamagar
 
PULMONARY EDEMA AND ITS MANAGEMENT.pdf
PULMONARY EDEMA AND  ITS  MANAGEMENT.pdfPULMONARY EDEMA AND  ITS  MANAGEMENT.pdf
PULMONARY EDEMA AND ITS MANAGEMENT.pdfDolisha Warbi
 
Measurement of Radiation and Dosimetric Procedure.pptx
Measurement of Radiation and Dosimetric Procedure.pptxMeasurement of Radiation and Dosimetric Procedure.pptx
Measurement of Radiation and Dosimetric Procedure.pptxDr. Dheeraj Kumar
 
call girls in aerocity DELHI 🔝 >༒9540349809 🔝 genuine Escort Service 🔝✔️✔️
call girls in aerocity DELHI 🔝 >༒9540349809 🔝 genuine Escort Service 🔝✔️✔️call girls in aerocity DELHI 🔝 >༒9540349809 🔝 genuine Escort Service 🔝✔️✔️
call girls in aerocity DELHI 🔝 >༒9540349809 🔝 genuine Escort Service 🔝✔️✔️saminamagar
 
Basic principles involved in the traditional systems of medicine PDF.pdf
Basic principles involved in the traditional systems of medicine PDF.pdfBasic principles involved in the traditional systems of medicine PDF.pdf
Basic principles involved in the traditional systems of medicine PDF.pdfDivya Kanojiya
 

Último (20)

PULMONARY EMBOLISM AND ITS MANAGEMENTS.pdf
PULMONARY EMBOLISM AND ITS MANAGEMENTS.pdfPULMONARY EMBOLISM AND ITS MANAGEMENTS.pdf
PULMONARY EMBOLISM AND ITS MANAGEMENTS.pdf
 
Presentation on General Anesthetics pdf.
Presentation on General Anesthetics pdf.Presentation on General Anesthetics pdf.
Presentation on General Anesthetics pdf.
 
Report Back from SGO: What’s New in Uterine Cancer?.pptx
Report Back from SGO: What’s New in Uterine Cancer?.pptxReport Back from SGO: What’s New in Uterine Cancer?.pptx
Report Back from SGO: What’s New in Uterine Cancer?.pptx
 
History and Development of Pharmacovigilence.pdf
History and Development of Pharmacovigilence.pdfHistory and Development of Pharmacovigilence.pdf
History and Development of Pharmacovigilence.pdf
 
COVID-19 (NOVEL CORONA VIRUS DISEASE PANDEMIC ).pptx
COVID-19  (NOVEL CORONA  VIRUS DISEASE PANDEMIC ).pptxCOVID-19  (NOVEL CORONA  VIRUS DISEASE PANDEMIC ).pptx
COVID-19 (NOVEL CORONA VIRUS DISEASE PANDEMIC ).pptx
 
Music Therapy's Impact in Palliative Care| IAPCON2024| Dr. Tara Rajendran
Music Therapy's Impact in Palliative Care| IAPCON2024| Dr. Tara RajendranMusic Therapy's Impact in Palliative Care| IAPCON2024| Dr. Tara Rajendran
Music Therapy's Impact in Palliative Care| IAPCON2024| Dr. Tara Rajendran
 
world health day presentation ppt download
world health day presentation ppt downloadworld health day presentation ppt download
world health day presentation ppt download
 
Lippincott Microcards_ Microbiology Flash Cards-LWW (2015).pdf
Lippincott Microcards_ Microbiology Flash Cards-LWW (2015).pdfLippincott Microcards_ Microbiology Flash Cards-LWW (2015).pdf
Lippincott Microcards_ Microbiology Flash Cards-LWW (2015).pdf
 
Radiation Dosimetry Parameters and Isodose Curves.pptx
Radiation Dosimetry Parameters and Isodose Curves.pptxRadiation Dosimetry Parameters and Isodose Curves.pptx
Radiation Dosimetry Parameters and Isodose Curves.pptx
 
Pharmaceutical Marketting: Unit-5, Pricing
Pharmaceutical Marketting: Unit-5, PricingPharmaceutical Marketting: Unit-5, Pricing
Pharmaceutical Marketting: Unit-5, Pricing
 
SWD (Short wave diathermy)- Physiotherapy.ppt
SWD (Short wave diathermy)- Physiotherapy.pptSWD (Short wave diathermy)- Physiotherapy.ppt
SWD (Short wave diathermy)- Physiotherapy.ppt
 
Let's Talk About It: To Disclose or Not to Disclose?
Let's Talk About It: To Disclose or Not to Disclose?Let's Talk About It: To Disclose or Not to Disclose?
Let's Talk About It: To Disclose or Not to Disclose?
 
LUNG TUMORS AND ITS CLASSIFICATIONS.pdf
LUNG TUMORS AND ITS  CLASSIFICATIONS.pdfLUNG TUMORS AND ITS  CLASSIFICATIONS.pdf
LUNG TUMORS AND ITS CLASSIFICATIONS.pdf
 
call girls in Connaught Place DELHI 🔝 >༒9540349809 🔝 genuine Escort Service ...
call girls in Connaught Place  DELHI 🔝 >༒9540349809 🔝 genuine Escort Service ...call girls in Connaught Place  DELHI 🔝 >༒9540349809 🔝 genuine Escort Service ...
call girls in Connaught Place DELHI 🔝 >༒9540349809 🔝 genuine Escort Service ...
 
call girls in Dwarka Sector 21 Metro DELHI 🔝 >༒9540349809 🔝 genuine Escort Se...
call girls in Dwarka Sector 21 Metro DELHI 🔝 >༒9540349809 🔝 genuine Escort Se...call girls in Dwarka Sector 21 Metro DELHI 🔝 >༒9540349809 🔝 genuine Escort Se...
call girls in Dwarka Sector 21 Metro DELHI 🔝 >༒9540349809 🔝 genuine Escort Se...
 
PULMONARY EDEMA AND ITS MANAGEMENT.pdf
PULMONARY EDEMA AND  ITS  MANAGEMENT.pdfPULMONARY EDEMA AND  ITS  MANAGEMENT.pdf
PULMONARY EDEMA AND ITS MANAGEMENT.pdf
 
Measurement of Radiation and Dosimetric Procedure.pptx
Measurement of Radiation and Dosimetric Procedure.pptxMeasurement of Radiation and Dosimetric Procedure.pptx
Measurement of Radiation and Dosimetric Procedure.pptx
 
call girls in aerocity DELHI 🔝 >༒9540349809 🔝 genuine Escort Service 🔝✔️✔️
call girls in aerocity DELHI 🔝 >༒9540349809 🔝 genuine Escort Service 🔝✔️✔️call girls in aerocity DELHI 🔝 >༒9540349809 🔝 genuine Escort Service 🔝✔️✔️
call girls in aerocity DELHI 🔝 >༒9540349809 🔝 genuine Escort Service 🔝✔️✔️
 
Basic principles involved in the traditional systems of medicine PDF.pdf
Basic principles involved in the traditional systems of medicine PDF.pdfBasic principles involved in the traditional systems of medicine PDF.pdf
Basic principles involved in the traditional systems of medicine PDF.pdf
 
Epilepsy
EpilepsyEpilepsy
Epilepsy
 

Rare disease day 2011 highlights

  • 2. Past events 2008 : RD as a Public Health Priority (overarching theme x 4 years) “ A rare day for special people” 2009 : Patient-centred care “ Patient Care: A Public Affair!” 2010: Bridging Patients and Research “ Patients & Researchers: Partners for Life!”’
  • 3.
  • 4.
  • 6.
  • 7.
  • 8.  
  • 9. 4th edition Theme: Rare Diseases & Health Inequalities Slogan: “ RARE BUT EQUAL”
  • 10.
  • 11.
  • 12.  
  • 13.  
  • 14.
  • 15.
  • 17.
  • 18.
  • 19.
  • 20.
  • 21.
  • 22.
  • 23.
  • 24.
  • 25.
  • 26.
  • 27.
  • 28.
  • 29.
  • 30.
  • 31.
  • 32.
  • 33. Venue Residence Palace International Press Center, Brussels … two steps aways from EC and EP
  • 34.
  • 35.
  • 36.
  • 37.
  • 38.