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International Diabetes Federation



           Isabella Platon
       Head of Communications

       Roche Bloggers Meeting, San Diego
                 23 June 2011
                                       The Global Diabetes Epidemic:
                                                     The Role of IDF
Who we are and
 what we do




                 The Global Diabetes Epidemic:
                               The Role of IDF
Mission


    Promoting diabetes care,
prevention and a cure worldwide




                       The Global Diabetes Epidemic:
                                     The Role of IDF
A Vibrant Federation
220+ member associations in 160+ countries

2 million+ members

USD 750 million combined income

7 regional offices



                             The Global Diabetes Epidemic:
                                           The Role of IDF
A GLOBAL epidemic out of
        control

                    The Global Diabetes Epidemic:
                                  The Role of IDF
million have
diabetes


    The Global Diabetes Epidemic:
                  The Role of IDF
out   in developing
of    countries


             The Global Diabetes Epidemic:
                           The Role of IDF
million within
a generation



      The Global Diabetes Epidemic:
                    The Role of IDF
million deaths a year



               The Global Diabetes Epidemic:
                             The Role of IDF
billion in health
care spending
globally




     The Global Diabetes Epidemic:
                   The Role of IDF
An epidemic in IDF’s
North America & Caribbean
         Region
                    The Global Diabetes Epidemic:
                                  The Role of IDF
Number of people with diabetes

Top 10 Number of People with Diabetes (20-79 years) 2010, 2030




                                                                 The Global Diabetes Epidemic:
                                                                               The Role of IDF
300,000 deaths a year

                The Global Diabetes Epidemic:
                              The Role of IDF
global spending



        The Global Diabetes Epidemic:
                      The Role of IDF
activities
Fighting to stem the spiralling
      diabetes epidemic

                         The Global Diabetes Epidemic:
                                       The Role of IDF
roles of IDF Global



             The Global Diabetes Epidemic:
                           The Role of IDF
Global advocacy &
campaigning



            The Global Diabetes Epidemic:
                          The Role of IDF
Global voice for
             people with diabetes
UN Resolution 61/225 on
Diabetes – 2006

   “recognized diabetes as a
chronic, debilitating and costly
 disease associated with major
complications that pose severe
risks for families, countries and
        the entire world”


                                    The Global Diabetes Epidemic:
                                                  The Role of IDF
Global voice of
        diabetes in NCD Alliance
Four NGO federations with
900 associations in 170
countries

Formed in January 2009




                             The Global Diabetes Epidemic:
                                           The Role of IDF
World Diabetes Day
• Over 800 global monuments
  bathed in blue
• Extensive grassroots
  participation
• Global and regional media
  coverage
• Significant involvement online




                                   The Global Diabetes Epidemic:
                                                 The Role of IDF
Case study: WDD in China
• Chinese Diabetes Society
  launching large scale diabetes
  awareness campaign
• Press conference held in the
  Great Hall of the People,
  Tiananmen Square, Beijing
• A special event at the Great
  Wall
• Over 20 landmarks and
  monuments lit up in blue
• Blue circle pins distributed
                                   The Global Diabetes Epidemic:
                                                 The Role of IDF
Gathering the
evidence



            The Global Diabetes Epidemic:
                          The Role of IDF
IDF Diabetes Atlas 4th Edition




                        The Global Diabetes Epidemic:
                                      The Role of IDF
Health Economics

• Diabetes Social and        • Economic evaluation of IDF
  Economic Impact Studies:     programmes
    - China
    - Kazakhstan             • Working with WHO on
                               innovative resourcing for
    - Africa
                               NCDs in low- and middle-
                               income countries




                                            The Global Diabetes Epidemic:
                                                          The Role of IDF
Policy Research




             The Global Diabetes Epidemic:
                           The Role of IDF
BRIDGES & D-STaRT

Aims to identify, test and publish   Supports the development of
practical solutions to improve       projects in low- and middle-
outcomes for people with             income countries (LMCs)
diabetes throughout the world        which have less exposure to
                                     international funding.




                                                  The Global Diabetes Epidemic:
                                                                The Role of IDF
Best practice
projects



                The Global Diabetes Epidemic:
                              The Role of IDF
Diabetes Education

• Building networks:
  Centers of Education, D-Net
• Supporting development of the
  global health workforce for diabetes
  through training programmes, tools
  and publications
• Evaluation and Advocacy




                                         The Global Diabetes Epidemic:
                                                       The Role of IDF
IDF Task Forces:
             Expert Volunteers
• Convenes world class expert task
  forces to set global standards
  and pilot best practice in
  diabetes advocacy, care and
  education
• For example, recently launched
  Guide to National Diabetes
  Programmes




                                     The Global Diabetes Epidemic:
                                                   The Role of IDF
Global guidelines
& advice



             The Global Diabetes Epidemic:
                           The Role of IDF
The Global Diabetes Epidemic:
              The Role of IDF
Humanitarian
programmes



           The Global Diabetes Epidemic:
                         The Role of IDF
The IDF Life for a Child
     Programme




                     The Global Diabetes Epidemic:
                                   The Role of IDF
Convening the global
diabetes community



              The Global Diabetes Epidemic:
                            The Role of IDF
The World Diabetes Congress
     Dubai, 4-8 December 2011
• Why Dubai?
  Strategic location – one of the hotspots of
  global diabetes epidemic
• Scope – 12,000 participants
• Objective – Political engagement –
  follow-up to UN Summit
• New for 2011!
– Global Diabetes Forum – political
  event
– Programme themes – health systems,
  global challenges in health, NCDs


                                                The Global Diabetes Epidemic:
                                                              The Role of IDF
COMMUNICATION CHANNELS
 Newsletter       NEW! Website   Social Media




NEW! Multimedia


                                 The Global Diabetes Epidemic:
                                           World Diabetes Day
                                               The Role of IDF
CALLS TO ACTION
NEW: PARTICIPATIVE VIDEO




                           The Global Diabetes Epidemic:
                                     World Diabetes Day
                                         The Role of IDF
OUTREACH
ELECTRONIC CLICK CAMPAIGN




                            The Global Diabetes Epidemic:
                                      World Diabetes Day
                                          The Role of IDF
OUTREACH
Member Associations
Bloggers                     5th Edition
Media
        •   Press releases
        •   Alerts
        •   Articles
Social Media
BCC Champions
Aligned organisations




                              The Global Diabetes Epidemic:
                                        World Diabetes Day
                                            The Role of IDF
UN Summit on NCDs:
      87 Days To Go




Update on the UN High-Level Summit
             on NCDs
      19-20 September 2011
                             The Global Diabetes Epidemic:
                                           The Role of IDF
Two Years On: The NCD Alliance
“A Special Political Asset” – Peter Piot, Former Head of UNAIDS
•   Four Federations
•   UN Summit Partners: 7 major NGOs
•   Private Sector Supporters: 9 major companies
•   Common Interest Group (CIG): 350 NGOs
•   Local and Regional NCD Alliances: 24 worldwide
•   Allies: WHO, PAHO, WEF, Lancet, governments…

    We have built an NCD civil society movement with diabetes
                       visible and leading


                                                The Global Diabetes Epidemic:
                                                              The Role of IDF
One Year On From Historic Vote:
Significant Progress

• NCDs are on the global agenda
• Government level discussions / statements: national
  consultations, WHO regional consultations, Moscow
  Ministerial Conference, Commonwealth Health Ministers
  Meeting, WHA
• Evidence: WHO Global Status Report May 2011
• What works: WHO, Lancet Priority Actions, Commonwealth
  Good Practice Case Studies…




                                            The Global Diabetes Epidemic:
                                                          The Role of IDF
The Last 3 Months:
Activities and Impact
• Established our NCDA asks – Proposed Outcomes Document
• High profile events and speaking roles – Moscow, Commonwealth
  WHA…
• Building the case for action:
   – Joined forces with The Lancet – 2 influential papers
   – NCDA working groups policy papers: women, tobacco, children
• Strengthened civil society role in Summit – Civil Society Task Force
• Mobilised MAs – advocacy alerts, CIG calls, website




                                                 The Global Diabetes Epidemic:
                                                               The Role of IDF
The NCD Alliance’s
 vision for success

  Launched in April

               34 ‘Asks’




        The Global Diabetes Epidemic:
                      The Role of IDF
Pocket Proposed Outcomes Document
                       LEADERSHIP AND INTERNATIONAL CO-OPERATION
• Establish an NCDs Partnership, linked to WHO, to coordinate follow up action with member states, other UN
  and multilateral agencies, foundations, NGOs and private sector
• Commit to a whole-of-government response through costed national plans for NCD prevention and
  treatment
• Increase national and international resources for NCD prevention and treatment
• Include NCDs in global health and development goals after 2015

                 PREVENTION                                               TREATMENT
• Accelerate implementation of Framework              • Strengthen health systems through integration of
  Convention on Tobacco Control (FCTC)                  NCD prevention and treatment
• Reduce dietary salt, sugar, trans-fats and          • Increase access to affordable, quality-assured
  harmful use of alcohol                                essential medicines and technologies to prevent and
• Implement strategies to encourage physical            treat cancer, cardiovascular disease, chronic
  activity                                              respiratory disease and diabetes, including vaccines
                                                        and palliative care.


                       MONITORING, REPORTING AND ACCOUNTABILITY
•   Establish a high level Accountability Commission on NCDs with cross sector representation to monitor
    Summit commitments

                                                                                    The Global Diabetes Epidemic:
                                                                                                  The Role of IDF
IP3
      Civil Society Hearing - June 16th, New York




                                                    The Global Diabetes Epidemic:
                                                                  The Role of IDF
Slide 46

IP3        UPDATE FROM CTSF
           Isabella Platon, 6/17/2011
Civil Society Hearing – 16 June
 • 400 NGOs and 90 Missions present
 • 3 panels (aligned with Summit round tables):
    - Scale of the challenge
    - Solutions at the national and local level
    - International cooperation
 • Each panel had 1 VIP, 1 Member State and 3 Civil society speakers
 • Outputs:
    – Timing allows messages to directly input into Summit Draft
      Outcomes Document – negotiations underway
    – Summary of Hearing prepared by WHO and Office President UN
      General Assembly will be an official UN document for the
      Summit
                                                  The Global Diabetes Epidemic:
                                                                The Role of IDF
UN Summit on NCDs
What Will Happen in New York

Saturday 17th and Sunday 18th am:
  • NGO Briefing and solidarity meeting

Sunday 18th pm:
  • ‘NCD Carnival’ to celebrate NCD Summit (part of Wellness Week)

Monday 19th and Tuesday 20th (until 15:00pm):
 • UN Summit on NCDs
       - Side Events - IDF, NCD Alliance, and many others
       - Tight Security – very few NGOs admitted. Numbers unknown
       - Last Minute Lobbying – Outcomes Document text




                                                      The Global Diabetes Epidemic:
                                                                    The Role of IDF
Call to Action:
87 Days To Go

•    Two determinants of success:
      – What is written in the final Outcomes Document
      – Who is there to commit to it, i.e. Heads of State / Government
•    Secure attendance of Heads of State / Government:
      - Work with NCD Alliance colleagues – joint lobbying
•    Influence Outcomes Document:
      - Find out who is drafting/advising at national level / New York
      - Use IDF Advocacy Toolkit, Pocket POD, crafted language we will provide
      - Act before parliaments recess – critical
      - Work in regional / political blocs
•   Feedback country-level intelligence to IDF – who is going, positions etc.
•   Share good practice / what works in diabetes



                                                               The Global Diabetes Epidemic:
                                                                             The Role of IDF
Summary

• The world has changed – NCDs are on the agenda
• We need to keep stressing:
   – We know what to do for diabetes
   – That prevention and treatment are both essential
   – Linkages/comorbidities of diabetes/TB/CVD/maternal
     health etc
   – Doing nothing will come at a cost – excellent long term
     investment
   – Appeal to the “head, heart and pocket”



                                              The Global Diabetes Epidemic:
                                                            The Role of IDF
Thank you!




2011: Our generation’s chance to change the future

                                      The Global Diabetes Epidemic:
                                                    The Role of IDF

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IDF Presentation to 2011 Roche Social Media Summit

  • 1. International Diabetes Federation Isabella Platon Head of Communications Roche Bloggers Meeting, San Diego 23 June 2011 The Global Diabetes Epidemic: The Role of IDF
  • 2. Who we are and what we do The Global Diabetes Epidemic: The Role of IDF
  • 3. Mission Promoting diabetes care, prevention and a cure worldwide The Global Diabetes Epidemic: The Role of IDF
  • 4. A Vibrant Federation 220+ member associations in 160+ countries 2 million+ members USD 750 million combined income 7 regional offices The Global Diabetes Epidemic: The Role of IDF
  • 5. A GLOBAL epidemic out of control The Global Diabetes Epidemic: The Role of IDF
  • 6. million have diabetes The Global Diabetes Epidemic: The Role of IDF
  • 7. out in developing of countries The Global Diabetes Epidemic: The Role of IDF
  • 8. million within a generation The Global Diabetes Epidemic: The Role of IDF
  • 9. million deaths a year The Global Diabetes Epidemic: The Role of IDF
  • 10. billion in health care spending globally The Global Diabetes Epidemic: The Role of IDF
  • 11. An epidemic in IDF’s North America & Caribbean Region The Global Diabetes Epidemic: The Role of IDF
  • 12. Number of people with diabetes Top 10 Number of People with Diabetes (20-79 years) 2010, 2030 The Global Diabetes Epidemic: The Role of IDF
  • 13. 300,000 deaths a year The Global Diabetes Epidemic: The Role of IDF
  • 14. global spending The Global Diabetes Epidemic: The Role of IDF
  • 15. activities Fighting to stem the spiralling diabetes epidemic The Global Diabetes Epidemic: The Role of IDF
  • 16. roles of IDF Global The Global Diabetes Epidemic: The Role of IDF
  • 17. Global advocacy & campaigning The Global Diabetes Epidemic: The Role of IDF
  • 18. Global voice for people with diabetes UN Resolution 61/225 on Diabetes – 2006 “recognized diabetes as a chronic, debilitating and costly disease associated with major complications that pose severe risks for families, countries and the entire world” The Global Diabetes Epidemic: The Role of IDF
  • 19. Global voice of diabetes in NCD Alliance Four NGO federations with 900 associations in 170 countries Formed in January 2009 The Global Diabetes Epidemic: The Role of IDF
  • 20. World Diabetes Day • Over 800 global monuments bathed in blue • Extensive grassroots participation • Global and regional media coverage • Significant involvement online The Global Diabetes Epidemic: The Role of IDF
  • 21. Case study: WDD in China • Chinese Diabetes Society launching large scale diabetes awareness campaign • Press conference held in the Great Hall of the People, Tiananmen Square, Beijing • A special event at the Great Wall • Over 20 landmarks and monuments lit up in blue • Blue circle pins distributed The Global Diabetes Epidemic: The Role of IDF
  • 22. Gathering the evidence The Global Diabetes Epidemic: The Role of IDF
  • 23. IDF Diabetes Atlas 4th Edition The Global Diabetes Epidemic: The Role of IDF
  • 24. Health Economics • Diabetes Social and • Economic evaluation of IDF Economic Impact Studies: programmes - China - Kazakhstan • Working with WHO on innovative resourcing for - Africa NCDs in low- and middle- income countries The Global Diabetes Epidemic: The Role of IDF
  • 25. Policy Research The Global Diabetes Epidemic: The Role of IDF
  • 26. BRIDGES & D-STaRT Aims to identify, test and publish Supports the development of practical solutions to improve projects in low- and middle- outcomes for people with income countries (LMCs) diabetes throughout the world which have less exposure to international funding. The Global Diabetes Epidemic: The Role of IDF
  • 27. Best practice projects The Global Diabetes Epidemic: The Role of IDF
  • 28. Diabetes Education • Building networks: Centers of Education, D-Net • Supporting development of the global health workforce for diabetes through training programmes, tools and publications • Evaluation and Advocacy The Global Diabetes Epidemic: The Role of IDF
  • 29. IDF Task Forces: Expert Volunteers • Convenes world class expert task forces to set global standards and pilot best practice in diabetes advocacy, care and education • For example, recently launched Guide to National Diabetes Programmes The Global Diabetes Epidemic: The Role of IDF
  • 30. Global guidelines & advice The Global Diabetes Epidemic: The Role of IDF
  • 31. The Global Diabetes Epidemic: The Role of IDF
  • 32. Humanitarian programmes The Global Diabetes Epidemic: The Role of IDF
  • 33. The IDF Life for a Child Programme The Global Diabetes Epidemic: The Role of IDF
  • 34. Convening the global diabetes community The Global Diabetes Epidemic: The Role of IDF
  • 35. The World Diabetes Congress Dubai, 4-8 December 2011 • Why Dubai? Strategic location – one of the hotspots of global diabetes epidemic • Scope – 12,000 participants • Objective – Political engagement – follow-up to UN Summit • New for 2011! – Global Diabetes Forum – political event – Programme themes – health systems, global challenges in health, NCDs The Global Diabetes Epidemic: The Role of IDF
  • 36. COMMUNICATION CHANNELS Newsletter NEW! Website Social Media NEW! Multimedia The Global Diabetes Epidemic: World Diabetes Day The Role of IDF
  • 37. CALLS TO ACTION NEW: PARTICIPATIVE VIDEO The Global Diabetes Epidemic: World Diabetes Day The Role of IDF
  • 38. OUTREACH ELECTRONIC CLICK CAMPAIGN The Global Diabetes Epidemic: World Diabetes Day The Role of IDF
  • 39. OUTREACH Member Associations Bloggers 5th Edition Media • Press releases • Alerts • Articles Social Media BCC Champions Aligned organisations The Global Diabetes Epidemic: World Diabetes Day The Role of IDF
  • 40. UN Summit on NCDs: 87 Days To Go Update on the UN High-Level Summit on NCDs 19-20 September 2011 The Global Diabetes Epidemic: The Role of IDF
  • 41. Two Years On: The NCD Alliance “A Special Political Asset” – Peter Piot, Former Head of UNAIDS • Four Federations • UN Summit Partners: 7 major NGOs • Private Sector Supporters: 9 major companies • Common Interest Group (CIG): 350 NGOs • Local and Regional NCD Alliances: 24 worldwide • Allies: WHO, PAHO, WEF, Lancet, governments… We have built an NCD civil society movement with diabetes visible and leading The Global Diabetes Epidemic: The Role of IDF
  • 42. One Year On From Historic Vote: Significant Progress • NCDs are on the global agenda • Government level discussions / statements: national consultations, WHO regional consultations, Moscow Ministerial Conference, Commonwealth Health Ministers Meeting, WHA • Evidence: WHO Global Status Report May 2011 • What works: WHO, Lancet Priority Actions, Commonwealth Good Practice Case Studies… The Global Diabetes Epidemic: The Role of IDF
  • 43. The Last 3 Months: Activities and Impact • Established our NCDA asks – Proposed Outcomes Document • High profile events and speaking roles – Moscow, Commonwealth WHA… • Building the case for action: – Joined forces with The Lancet – 2 influential papers – NCDA working groups policy papers: women, tobacco, children • Strengthened civil society role in Summit – Civil Society Task Force • Mobilised MAs – advocacy alerts, CIG calls, website The Global Diabetes Epidemic: The Role of IDF
  • 44. The NCD Alliance’s vision for success Launched in April 34 ‘Asks’ The Global Diabetes Epidemic: The Role of IDF
  • 45. Pocket Proposed Outcomes Document LEADERSHIP AND INTERNATIONAL CO-OPERATION • Establish an NCDs Partnership, linked to WHO, to coordinate follow up action with member states, other UN and multilateral agencies, foundations, NGOs and private sector • Commit to a whole-of-government response through costed national plans for NCD prevention and treatment • Increase national and international resources for NCD prevention and treatment • Include NCDs in global health and development goals after 2015 PREVENTION TREATMENT • Accelerate implementation of Framework • Strengthen health systems through integration of Convention on Tobacco Control (FCTC) NCD prevention and treatment • Reduce dietary salt, sugar, trans-fats and • Increase access to affordable, quality-assured harmful use of alcohol essential medicines and technologies to prevent and • Implement strategies to encourage physical treat cancer, cardiovascular disease, chronic activity respiratory disease and diabetes, including vaccines and palliative care. MONITORING, REPORTING AND ACCOUNTABILITY • Establish a high level Accountability Commission on NCDs with cross sector representation to monitor Summit commitments The Global Diabetes Epidemic: The Role of IDF
  • 46. IP3 Civil Society Hearing - June 16th, New York The Global Diabetes Epidemic: The Role of IDF
  • 47. Slide 46 IP3 UPDATE FROM CTSF Isabella Platon, 6/17/2011
  • 48. Civil Society Hearing – 16 June • 400 NGOs and 90 Missions present • 3 panels (aligned with Summit round tables): - Scale of the challenge - Solutions at the national and local level - International cooperation • Each panel had 1 VIP, 1 Member State and 3 Civil society speakers • Outputs: – Timing allows messages to directly input into Summit Draft Outcomes Document – negotiations underway – Summary of Hearing prepared by WHO and Office President UN General Assembly will be an official UN document for the Summit The Global Diabetes Epidemic: The Role of IDF
  • 49. UN Summit on NCDs What Will Happen in New York Saturday 17th and Sunday 18th am: • NGO Briefing and solidarity meeting Sunday 18th pm: • ‘NCD Carnival’ to celebrate NCD Summit (part of Wellness Week) Monday 19th and Tuesday 20th (until 15:00pm): • UN Summit on NCDs - Side Events - IDF, NCD Alliance, and many others - Tight Security – very few NGOs admitted. Numbers unknown - Last Minute Lobbying – Outcomes Document text The Global Diabetes Epidemic: The Role of IDF
  • 50. Call to Action: 87 Days To Go • Two determinants of success: – What is written in the final Outcomes Document – Who is there to commit to it, i.e. Heads of State / Government • Secure attendance of Heads of State / Government: - Work with NCD Alliance colleagues – joint lobbying • Influence Outcomes Document: - Find out who is drafting/advising at national level / New York - Use IDF Advocacy Toolkit, Pocket POD, crafted language we will provide - Act before parliaments recess – critical - Work in regional / political blocs • Feedback country-level intelligence to IDF – who is going, positions etc. • Share good practice / what works in diabetes The Global Diabetes Epidemic: The Role of IDF
  • 51. Summary • The world has changed – NCDs are on the agenda • We need to keep stressing: – We know what to do for diabetes – That prevention and treatment are both essential – Linkages/comorbidities of diabetes/TB/CVD/maternal health etc – Doing nothing will come at a cost – excellent long term investment – Appeal to the “head, heart and pocket” The Global Diabetes Epidemic: The Role of IDF
  • 52. Thank you! 2011: Our generation’s chance to change the future The Global Diabetes Epidemic: The Role of IDF