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John Wilbanks & Stephen Friend Partnering for Cures: Standardized Informed Consent 2011-11-08

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John Wilbanks & Stephen Friend, Nov 7-8, 2011. Partnering for Cures: Standardized Informed Consent, New York, NY

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PORTABLE  LEGAL  CONSENT   John  Wilbanks  
“one more thing”
what‘s missing?
network effects.
how do we get there?
standards, legal and technical.
start with the patient.
patient-driven data collection.
in the beginning, there was consent.
simple. weak. standardized. open.
simple. weak. standardized. open.
simple. weak. standardized. open.
simple. weak. standardized. open.
http://weconsent.us
@wilbanks jtw@del-fi.org supported by: Sage Bionetworks Ewing Marion Kauffman Foundation Lybba.org

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