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Intellectual Disability, Culture and
      Service Engagement for
            Newcomers


       Community Living Toronto
           April 24, 2009
Agenda

1. What is an intellectual disability
2. Community Living Toronto video
3. Stats: Need for access and supports
4. Results and Recommendations from the United
   Way/Roeher/Community Living Toronto report
4. How to Access Services and Supports
5. ConnectABILITY workshop
6. Questions


                                             2
Workshop Objective:


To Bridge the gaps between settlement and
    disability services by:
a) Settlement Agencies getting to know the
    disability services in Toronto/Ontario and
    how to access them.
 b) Start to think about strategies on how
    settlement workers and Community Living
    staff can work together.
Intellectual Disability vs.
             Learning Disability
• Intellectual Disability: A person may learn new
  skills at a different rate. It is life long and can
  affect a person’s emotional, and daily living
  skills. For example Down Syndrome and Autism

• Learning Disability: A person learns and
  understands instructions in different ways;
  therefore the way a teacher teaches needs to be
  changed or modified to accommodate the
  person’s learning style.


                                                        4
Newcomers with Disabilities
       Need for Supports

• 87% needed help accessing community/recreation
  activities
• 84% needed a modified work schedule in order to
  provide care
• 81% needed help with information and referral to
  supports and services
• 78% needed life/social skills development
• 78% needed respite care
• 65% needed child care



                                                     5
Access to Supports


• 33% of respondents reported receiving no help from
  friends, neighbours, or service agencies
• 70% indicated difficulty participating in activities with
  other families because of a lack of special supports
  or equipment
• 38% had difficulty participating in activities because
  they felt they “were not wanted”




                                                              6
Community Living and the
Developmental Services Sector




                                7
Disability, Culture and Service
                   Engagement
• Established our starting
  point
• Provided key Findings
  and Recommendations




                                           8
Process

• Literature Review of all relevant materials
• Community consultations with members of the groups
  studied
• Interviews with service providers who work with
  members of these groups
• In-depth surveys and focus groups with persons with
  disabilities, their families, members of the three
  communities and ethno-specific social service
  organizations




                                                        9
Somali Community

•   Confusion about the difference between mental health
    issues and intellectual disability
•   Little discrimination between types of illness/ chronic
    health issues/disability
•   Somali culture relies on the verbal exchange of
    information
•   “Too many taboos”
    Somalis suffer from multiple forms of exclusion (e.g.
    employment, housing, administration problems related
    to a lack of official citizenship documentation), therefore
    the problems associated with intellectual disability may
    not be seen as a primary service need.

                                                              10
Chinese Community


• There is a great deal of diversity among the
  Chinese community in Toronto and Canada
• Families may feel that they should take sole
  responsibility for the provision of care
• There is great value in “keeping face,” (i.e.
  maintaining strength of character and the
  position of one’s family) and great possible
  loss in “losing face” (i.e. seeming weak or
  bringing shame to one’s family).


                                                  11
Tamil Community

• Families may not acknowledge the presence of disability
• Children with disabilities may be excluded from social
  gatherings, hidden from the community
• Families may feel marriage prospects of children are
  compromised by the presence of a person with a
  disability in the family – points to widespread negative
  beliefs within the community
• Two major barriers to Tamil community use of support
  services are (1) lack of knowledge about what services
  are available, and (2) lack of English language
  skills/shortage of information in the Tamil language
• Tamil individuals and families may be more comfortable
  looking outside their ethnic community for help and
  support.

                                                         12
Recommendations


Establish ongoing relationships between
Community Living agencies, ethno-cultural
organizations and settlement workers.

Work with ethno-cultural organizations to
establish support groups for individuals with
disabilities and their families. This would
allow those touched by disability to “come
out of hiding” and connect with others facing
similar situations in a safe environment

                                           13
Recommendations


As much as possible, offer service coordination in the first
language of the family, either through interpreters or
employment of staff fluent in languages other than English.


Community Living agencies to strengthen connections with
schools in their area. Relationships with newcomer families
can be started and maintained through connections to
principals, teachers, guidance counselors, etc.




                                                               14
Recommendations



Community Living organizations can work
together with settlement agencies to
educate families on intellectual disabilities
and services available to them




                                                15
Outcome Statements

• Community Living Toronto will outreach to all
  communities in Toronto so all people who have
  an intellectual disability and their families will
  have equal knowledge and access to our
  services and supports.
• Community Living Toronto’s staff will have the
  skills, knowledge and resources to support
  individuals and families from the various
  backgrounds and cultures within the City of
  Toronto

                                                       16
Access, Resources and Services
Access to Services and Supports

• Community Living Toronto
  www.communitylivingtoronto.ca
  Our Access numbers: 647-426-3219 (3220)
• City Kids www.mothercraft.ca 416-920-6543
• Developmental Services of Toronto
  www.dsto.com
• Respite Services www.respiteservices.com




                                              18
Resources




            19
Community Living Toronto
                Family Support
•   Mom’s Support Groups
•   Pilot Parents
•   Sib Shops
•   Person Directed Planning




                                       20
Individualized Government Funding
               available to families




•   Special Services at Home
•   Ontario Disability Support Program: Income Supports
•   Passport Funding
•   Assistance for Children with Severe Disabilities Program



                   www.mcss.gov.on.ca


                                                           21
Toronto Parks and Recreation

•   Adapted Programs / Integrated Services
•    Adapted Programs:
    Recreation programs promote both social and skill development. Qualified staff gives
    encouragement and support to meet the individual needs of the participants. Staff are
    18 years or older and are selected based on positive attitude, experience working
    with individuals with special needs, enthusiasm and compassion.
•   Integrated Services:
    Participating together in recreation programs enhances the quality of life for
    everyone. People with disabilities/special needs are encouraged to participate in
    diverse recreational opportunities within their community, at a level of participation
    suitable to their ability, program choice and facility access.
•   For detailed program information refer to the district of your choice.
•   Adapted & Integrated - North York
•   Adapted & Integrated -Etobicoke York
•   Adapted & Integrated -Toronto/East York
•   Adapted & Integrated - Scarborough




                                                                                        22
Web-site




• French: Les gens sont importants
• Portuguese:O importante são as pessoas
• Shrilankan:
இைை அைைததம மககைைபறறியைை
• Spanish: Todo por las personas
• Somalian: Dadka ayeey ku saabsan tahay
• Italian:Si parla di persone
• Mandarin: 為智障人士提供創新的支援服務,我們在這方面一直站在領導的地位。
                                              23
Why we need to work with the
            Settlement Sector
• Settlement workers are one of the first contacts for
  newcomers upon their arrival in Canada
• There is a trust level established already between the
  families and the settlement workers
• The Settlement and Ethnic specific organizations have
  the skills and resources to support the language and
  cultural barriers
• Community Living has been more successful when
  partnering with the Settlement Sector in providing
  supports for newcomers with an intellectual disability



                                                           24
Results from the Survey
                                                              N/A, 3
•     Have you encountered
      challenges when providing                      No, 34
      service/support to individuals and
      families from diverse
                                                                        Yes, 74
      backgrounds and cultures?




           General Admin

           Gender Issues

       Family Resistance

    Religious Dif f erences

     Cultural Dif f erences

      Language Barriers

                              0   10       20   30        40           50     60   70

                                                                                        25
N/A, 10


• Do you utilize any internal
  or external resources to                    No, 41          Yes, 60



  support you with these
  challenges?


             Training

            Literature
           Translator

      Outside Agency

         Professional
             Internet

        Family/Friend

           Co-worker

                         0      5   10   15              20         25   30


                                                                              26
• We have developed a partnership plan to
  educate the Somali Community on intellectual
  disabilities and access to services and supports
• Developed a working relationship between
  Midaynta and Community Living Toronto Family
  Support Workers to support Somali families



                                                 27
• Information sessions on Services and Supports
  in English, Mandarin and Cantonese
• Support with (and distribution of the results) of
  our research study on Culture, Disability and
  Service Engagement
• Support with Mandarin and Cantonese
  translations of information on ConnectABILITY

                                                      28
• We have connected Working Women
  Community Centre’s child care supports to
  Community Living Toronto’s Early Childhood
  Services

• Working Women Community Centre connected
  us with OCASI (Ontario Council of Agencies
  Serving Immigrants)



                                               29
Interactive Discussion Session

• A newcomer parent told you that she would like
  some information on health services in order to
  “cure” her son (15 years old) with Down
  Syndrome. The mother also told you that she
  would keep her son at home, out of the sight of
  the community until her son “felt” a little bit
  better. She also asked you not to call Children’s
  Aid.
 What are some options and strategies that you do
                   with the family.

                                                  30
Information
          Available Electronically
• Report on Disability, Culture and Service
  Engagement (in 5 languages)
• This Power Point presentation (with all of it’s
  web links)
• Information on Community Living Toronto, the
  Developmental Service Sector of Toronto and
  Community Living Ontario
• Developmental Services Branch information
  from the Ministry of Community and Social
  Services (Spotlight on Transformation)

                                                    31
Thank you




            32

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E2 Intellectual Disability Culture And Service Engagement for Newcomers to Toronto_Bob Ferguson & Layla Ibrahim

  • 1. Intellectual Disability, Culture and Service Engagement for Newcomers Community Living Toronto April 24, 2009
  • 2. Agenda 1. What is an intellectual disability 2. Community Living Toronto video 3. Stats: Need for access and supports 4. Results and Recommendations from the United Way/Roeher/Community Living Toronto report 4. How to Access Services and Supports 5. ConnectABILITY workshop 6. Questions 2
  • 3. Workshop Objective: To Bridge the gaps between settlement and disability services by: a) Settlement Agencies getting to know the disability services in Toronto/Ontario and how to access them. b) Start to think about strategies on how settlement workers and Community Living staff can work together.
  • 4. Intellectual Disability vs. Learning Disability • Intellectual Disability: A person may learn new skills at a different rate. It is life long and can affect a person’s emotional, and daily living skills. For example Down Syndrome and Autism • Learning Disability: A person learns and understands instructions in different ways; therefore the way a teacher teaches needs to be changed or modified to accommodate the person’s learning style. 4
  • 5. Newcomers with Disabilities Need for Supports • 87% needed help accessing community/recreation activities • 84% needed a modified work schedule in order to provide care • 81% needed help with information and referral to supports and services • 78% needed life/social skills development • 78% needed respite care • 65% needed child care 5
  • 6. Access to Supports • 33% of respondents reported receiving no help from friends, neighbours, or service agencies • 70% indicated difficulty participating in activities with other families because of a lack of special supports or equipment • 38% had difficulty participating in activities because they felt they “were not wanted” 6
  • 7. Community Living and the Developmental Services Sector 7
  • 8. Disability, Culture and Service Engagement • Established our starting point • Provided key Findings and Recommendations 8
  • 9. Process • Literature Review of all relevant materials • Community consultations with members of the groups studied • Interviews with service providers who work with members of these groups • In-depth surveys and focus groups with persons with disabilities, their families, members of the three communities and ethno-specific social service organizations 9
  • 10. Somali Community • Confusion about the difference between mental health issues and intellectual disability • Little discrimination between types of illness/ chronic health issues/disability • Somali culture relies on the verbal exchange of information • “Too many taboos” Somalis suffer from multiple forms of exclusion (e.g. employment, housing, administration problems related to a lack of official citizenship documentation), therefore the problems associated with intellectual disability may not be seen as a primary service need. 10
  • 11. Chinese Community • There is a great deal of diversity among the Chinese community in Toronto and Canada • Families may feel that they should take sole responsibility for the provision of care • There is great value in “keeping face,” (i.e. maintaining strength of character and the position of one’s family) and great possible loss in “losing face” (i.e. seeming weak or bringing shame to one’s family). 11
  • 12. Tamil Community • Families may not acknowledge the presence of disability • Children with disabilities may be excluded from social gatherings, hidden from the community • Families may feel marriage prospects of children are compromised by the presence of a person with a disability in the family – points to widespread negative beliefs within the community • Two major barriers to Tamil community use of support services are (1) lack of knowledge about what services are available, and (2) lack of English language skills/shortage of information in the Tamil language • Tamil individuals and families may be more comfortable looking outside their ethnic community for help and support. 12
  • 13. Recommendations Establish ongoing relationships between Community Living agencies, ethno-cultural organizations and settlement workers. Work with ethno-cultural organizations to establish support groups for individuals with disabilities and their families. This would allow those touched by disability to “come out of hiding” and connect with others facing similar situations in a safe environment 13
  • 14. Recommendations As much as possible, offer service coordination in the first language of the family, either through interpreters or employment of staff fluent in languages other than English. Community Living agencies to strengthen connections with schools in their area. Relationships with newcomer families can be started and maintained through connections to principals, teachers, guidance counselors, etc. 14
  • 15. Recommendations Community Living organizations can work together with settlement agencies to educate families on intellectual disabilities and services available to them 15
  • 16. Outcome Statements • Community Living Toronto will outreach to all communities in Toronto so all people who have an intellectual disability and their families will have equal knowledge and access to our services and supports. • Community Living Toronto’s staff will have the skills, knowledge and resources to support individuals and families from the various backgrounds and cultures within the City of Toronto 16
  • 18. Access to Services and Supports • Community Living Toronto www.communitylivingtoronto.ca Our Access numbers: 647-426-3219 (3220) • City Kids www.mothercraft.ca 416-920-6543 • Developmental Services of Toronto www.dsto.com • Respite Services www.respiteservices.com 18
  • 19. Resources 19
  • 20. Community Living Toronto Family Support • Mom’s Support Groups • Pilot Parents • Sib Shops • Person Directed Planning 20
  • 21. Individualized Government Funding available to families • Special Services at Home • Ontario Disability Support Program: Income Supports • Passport Funding • Assistance for Children with Severe Disabilities Program www.mcss.gov.on.ca 21
  • 22. Toronto Parks and Recreation • Adapted Programs / Integrated Services • Adapted Programs: Recreation programs promote both social and skill development. Qualified staff gives encouragement and support to meet the individual needs of the participants. Staff are 18 years or older and are selected based on positive attitude, experience working with individuals with special needs, enthusiasm and compassion. • Integrated Services: Participating together in recreation programs enhances the quality of life for everyone. People with disabilities/special needs are encouraged to participate in diverse recreational opportunities within their community, at a level of participation suitable to their ability, program choice and facility access. • For detailed program information refer to the district of your choice. • Adapted & Integrated - North York • Adapted & Integrated -Etobicoke York • Adapted & Integrated -Toronto/East York • Adapted & Integrated - Scarborough 22
  • 23. Web-site • French: Les gens sont importants • Portuguese:O importante são as pessoas • Shrilankan: இைை அைைததம மககைைபறறியைை • Spanish: Todo por las personas • Somalian: Dadka ayeey ku saabsan tahay • Italian:Si parla di persone • Mandarin: 為智障人士提供創新的支援服務,我們在這方面一直站在領導的地位。 23
  • 24. Why we need to work with the Settlement Sector • Settlement workers are one of the first contacts for newcomers upon their arrival in Canada • There is a trust level established already between the families and the settlement workers • The Settlement and Ethnic specific organizations have the skills and resources to support the language and cultural barriers • Community Living has been more successful when partnering with the Settlement Sector in providing supports for newcomers with an intellectual disability 24
  • 25. Results from the Survey N/A, 3 • Have you encountered challenges when providing No, 34 service/support to individuals and families from diverse Yes, 74 backgrounds and cultures? General Admin Gender Issues Family Resistance Religious Dif f erences Cultural Dif f erences Language Barriers 0 10 20 30 40 50 60 70 25
  • 26. N/A, 10 • Do you utilize any internal or external resources to No, 41 Yes, 60 support you with these challenges? Training Literature Translator Outside Agency Professional Internet Family/Friend Co-worker 0 5 10 15 20 25 30 26
  • 27. • We have developed a partnership plan to educate the Somali Community on intellectual disabilities and access to services and supports • Developed a working relationship between Midaynta and Community Living Toronto Family Support Workers to support Somali families 27
  • 28. • Information sessions on Services and Supports in English, Mandarin and Cantonese • Support with (and distribution of the results) of our research study on Culture, Disability and Service Engagement • Support with Mandarin and Cantonese translations of information on ConnectABILITY 28
  • 29. • We have connected Working Women Community Centre’s child care supports to Community Living Toronto’s Early Childhood Services • Working Women Community Centre connected us with OCASI (Ontario Council of Agencies Serving Immigrants) 29
  • 30. Interactive Discussion Session • A newcomer parent told you that she would like some information on health services in order to “cure” her son (15 years old) with Down Syndrome. The mother also told you that she would keep her son at home, out of the sight of the community until her son “felt” a little bit better. She also asked you not to call Children’s Aid. What are some options and strategies that you do with the family. 30
  • 31. Information Available Electronically • Report on Disability, Culture and Service Engagement (in 5 languages) • This Power Point presentation (with all of it’s web links) • Information on Community Living Toronto, the Developmental Service Sector of Toronto and Community Living Ontario • Developmental Services Branch information from the Ministry of Community and Social Services (Spotlight on Transformation) 31
  • 32. Thank you 32