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Lifecare &
the Sandwich Generation
Caring for aging parents and Caring for your kids
the phenomenon of the “Sandwich Generation”
iS here to Stay. iS your family ready?
                                              brightstarcare.com
doeS MoM Like You BeST?
                                                                                  Family care expectations are more emotional than pragmatic.

inTro To The phenoMenon
                                                                                  Whether they’re discussed or not, studies have shown that most families
                                                                                  develop distinct care expectations, usually falling on one adult child,
                                                                                  and most often a daughter. Those expectations are rooted in emotional
According to the National Family Caregivers Association, more than 50             connections and perceived shared values more than availability.
million Americans provide care for a chronically ill, disabled or aged family
                                                                                  “Mom’s not thinking of things like: ‘Is my daughter married? Does she
member or friend during any given year, and that number is growing.                have children? Does she have problems that might prevent her being a
                                                                                  good caregiver? Does she have the resources to be a good caregiver?’”
Adult children are often first in line to care for their aging parents.           said Karl Pillemer, a gerontologist at Cornell University, explaining the results
But what if those adult children are still raising children of their own?         of one such study to The New York Times. “Being married or being a parent
                                                                                  didn’t matter at all. Being employed only mattered a little.”
This is the burgeoning challenge faced by an entire “Sandwich Generation”
of family caregivers.
When added to the many responsibilities of their own daily lives,
including work and raising their own family, caring for a loved one
with declining health can be quite an undertaking.
In addition to the physical and financial strain of “being everywhere at once,”
Sandwich Generation caregivers bear a complicated emotional burden.
The worry, pain and sorrow they already feel over a parent’s illness are
compounded by the demanding challenges of caregiving.
Feelings of powerlessness and guilt are prevalent in family caregivers —
for repeatedly having to “choose” one family need over another, for feeling
that no choice can ever be the “right” one, and even for feeling they have
no choice at all.
The challenges are real and daunting, and more families are facing
them every day.
SoMe daTa aBouT The
growing nuMBer of peopLe
caring for aging parenTS
and The iMpLicaTionS
More than one in five American adults act as caregivers
to other adults, a figure that represents nearly 23 million
American households. The vast majority of caregivers —
nearly 90% — are helping relatives. While most report caring
for only one other adult, 30% care for two or more at the
same time. The average duration of caregiving is
greater than four years.
The chaLLengeS of caring
                                       for an aging parenT
                                       eMoTionaL/MenTaL • phYSicaL • financiaL
                                       It’s not easy to become a parent to a parent. Without the proper resources,
                                       this delicate role reversal can strain both ends of a relationship, especially
                                       when it’s combined with the stress, anxiety and pain of an illness.
                                       Caregivers commonly report that it’s most difficult to make time for themselves,
                                       manage emotional and physical stress, and balance work and family
                                       responsibilities. Many are at risk of becoming patients themselves,
                                       primarily due to these unmet needs. As care demands progressively increase,
                                       greater health effects are measured on caregivers.
                                       On average, caregivers to persons age 50 or over report more than $5,500
                                       in out-of-pocket spending annually. The cost in time is even greater.
                                       AARP conservatively values the unpaid hours of family caregivers at $375
                                       billion annually.
                                        • More than $1,000 for every man, woman and child in the United States
                                        • And 37% of caregivers report that they had to reduce their work hours
                                          or quit their jobs completely to handle their care responsibilities.




                    – Diary excerpt,
Evercare Study of Family Caregivers
The iMporTance of
oBTaining SupporT in
caring for aging parenTS
Despite the growing commonality of caring for aging relatives, it all too
often remains a solitary endeavor for caregivers, many of whom provide
most or all of their care alone.
Caregivers tend to focus on their loved one at the expense of their own
well-being, and they are often reluctant to share duties or ask for help.
Feelings of guilt and responsibility can make it very difficult to
request assistance, or even to accept it when it’s offered.
                                                                               warning SignS of caregiver STreSS
Caregivers endure increased risks of depression and illness, especially if
they don’t receive enough support. It is important for caregivers to realize   • Anger
that being exhausted, stressed or “burned out” will diminish the quality of    • Guilt
care they can provide.                                                         • Anxiety/irritability
                                                                               • Exhaustion
The old axiom rings especially true for the Sandwich Generation: in order      • Inability to concentrate
to care for others, you have to care for yourself.                             • Depression
                                                                               • Thoughts of harm to self or others
                                                                               • Weight loss
reSourceS/TipS for caring for an aging faMiLY MeMBer–
reSpiTe care, aSSiSTance froM an rn/cna, eTc.
One of the best support strategies for caregivers is to make sure they are aware of    care plans prescribed by doctors. Nurses are also wonderful sources of information
and understand the resources that are available to them.                               for both caregivers and patients, helping both to better understand and care for
                                                                                       their specific needs.
The thought of engaging outside respite services makes many family
caregivers uncomfortable, but the benefits can be twofold:
                                                                                       pediaTric, newBorn and diSaBLed care
1. Caregivers get the assistance they desperately need.
                                                                                       Family care needs aren’t always age dependent. Something as common as a
2. They also learn how to provide better care for their loved one.                     broken bone or the arrival of a new baby can complicate life in a hurry. If a child
                                                                                       already has special needs, caring for an aging parent can be even more difficult
reSpiTe care                                                                           to manage.

Respite care provides short-term, temporary relief from caregiving responsibilities.   Families now have a wide range of care options to respond to both expected and
                                                                                       unexpected needs at any age, whether the condition is temporary or chronic.
Many times, a little bit of help goes a long way, whether it’s the freedom to run a
few errands, pick the kids up from school, or simply take a much-needed break.         Always remember: You are not alone! Countless families face the very same
Respite care gives family caregivers some time for themselves and for other personal   circumstances, and care options are expanding to meet these growing needs.
and family matters, and it’s available for both recurring and on-demand needs.

aSSiSTance froM an rn/Lpn/cna
When care demands exceed the medical capabilities of a family caregiver,
professional nursing assistance becomes a necessity, both for the patient’s well-
being and for the family’s peace of mind.
• Certified nursing assistants (CNAs) provide personal care services and assist with
  daily living activities.
• Registered nurses (RNs) and licensed practical nurses (LPNs) supervise CNAs
  and are further qualified to administer medications and perform advanced
  medical procedures.
Bringing professional care into the home can allow patients to remain in their most
comfortable and familiar surroundings without sacrificing safety or disrupting the
Ten TipS for faMiLY caregiverS froM The
       naTionaL faMiLY caregiverS aSSociaTion
1. Choose to take charge of your life, and don’t let      6. There’s a difference between caring and doing. Be
   your loved one’s illness or disability always take        open to technologies and ideas that promote your
   center stage.                                             loved one’s independence.

2. Remember to be good to yourself. Love, honor and       7. Trust your instincts. Most of the time they’ll lead
   value yourself. You’re doing a very hard job and you
                                                             you in the right direction.
   deserve some quality time, just for you.
                                                          8. Grieve for your losses, and then allow yourself to
3. Watch out for signs of depression, and don’t delay
                                                             dream new dreams.
   in getting professional help when you need it.

4. When people offer to help, accept the offer and        9. Stand up for your rights as a caregiver and
   suggest specific things that they can do.                 a citizen.

5. Educate yourself about your loved one’s condition.     10. Seek support from other caregivers. There is great
   Information is empowering.                                 strength in knowing you are not alone.
You are noT aLone:
SoMe faMiLY caregiving reSourceS
faMiLY caregiver aLLiance                                           The naTionaL aLLiance for caregiving
Founded in 1977, Family Caregiver Alliance (FCA) was                Established in 1996, The National Alliance for Caregiving (NAC)
the first community-based nonprofit organization in                 is a non-profit coalition of national organizations focusing
the country to address the needs of families and friends            on issues of family caregiving. Alliance members include
providing long-term care at home. Long recognized as a              grassroots organizations, professional associations,
pioneer in health services, FCA now offers programs at              service organizations, disease-specific organizations,
national, state and local levels to support and                     a government agency, and corporations.
sustain caregivers.
                                                                    Visit the NAC online at www.caregiving.org
Visit FCA online at www.caregiver.org


                                                                    The naTionaL faMiLY caregiverS aSSociaTion
faMiLY caregiving 101
                                                                    The National Family Caregivers Association (NFCA) educates,
A joint effort by the National Family Caregivers Association        supports, empowers and speaks up for the more than 50
(NFCA) and the National Alliance for Caregiving (NAC) to            million Americans who care for loved ones with a chronic
recognize, support and advise family caregivers.                    illness or disability or the frailties of old age.
Their outreach program is called
                                                                    Visit the NFCA online at www.thefamilycaregiver.org
“Family Caregiving: It’s not all up to you.”
Visit Family Caregiving 101 online at www.familycaregiving101.org
BroughT To You BY BrighTSTar
            We know how overwhelming the responsibility of caring for a family member can be.
            We once needed help caring for a loved one, but didn’t know where to turn to give her
                         the quality of care, and the quality of life, she deserved.
     At BrightStar, our mission is to go above and beyond to Make More Possible — more joy, more comfort,
   more security, more quality, more time, more peace of mind. Helping people is more than just our mission;
it’s our passion. It’s what makes us truly shine — knowing that we’re making a real difference by bringing more
                                           to the lives of others every day.

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Caring For Aging Parents

  • 1. Spread Thin Lifecare & the Sandwich Generation Caring for aging parents and Caring for your kids the phenomenon of the “Sandwich Generation” iS here to Stay. iS your family ready? brightstarcare.com
  • 2. doeS MoM Like You BeST? Family care expectations are more emotional than pragmatic. inTro To The phenoMenon Whether they’re discussed or not, studies have shown that most families develop distinct care expectations, usually falling on one adult child, and most often a daughter. Those expectations are rooted in emotional According to the National Family Caregivers Association, more than 50 connections and perceived shared values more than availability. million Americans provide care for a chronically ill, disabled or aged family “Mom’s not thinking of things like: ‘Is my daughter married? Does she member or friend during any given year, and that number is growing. have children? Does she have problems that might prevent her being a good caregiver? Does she have the resources to be a good caregiver?’” Adult children are often first in line to care for their aging parents. said Karl Pillemer, a gerontologist at Cornell University, explaining the results But what if those adult children are still raising children of their own? of one such study to The New York Times. “Being married or being a parent didn’t matter at all. Being employed only mattered a little.” This is the burgeoning challenge faced by an entire “Sandwich Generation” of family caregivers. When added to the many responsibilities of their own daily lives, including work and raising their own family, caring for a loved one with declining health can be quite an undertaking. In addition to the physical and financial strain of “being everywhere at once,” Sandwich Generation caregivers bear a complicated emotional burden. The worry, pain and sorrow they already feel over a parent’s illness are compounded by the demanding challenges of caregiving. Feelings of powerlessness and guilt are prevalent in family caregivers — for repeatedly having to “choose” one family need over another, for feeling that no choice can ever be the “right” one, and even for feeling they have no choice at all. The challenges are real and daunting, and more families are facing them every day.
  • 3. SoMe daTa aBouT The growing nuMBer of peopLe caring for aging parenTS and The iMpLicaTionS More than one in five American adults act as caregivers to other adults, a figure that represents nearly 23 million American households. The vast majority of caregivers — nearly 90% — are helping relatives. While most report caring for only one other adult, 30% care for two or more at the same time. The average duration of caregiving is greater than four years.
  • 4. The chaLLengeS of caring for an aging parenT eMoTionaL/MenTaL • phYSicaL • financiaL It’s not easy to become a parent to a parent. Without the proper resources, this delicate role reversal can strain both ends of a relationship, especially when it’s combined with the stress, anxiety and pain of an illness. Caregivers commonly report that it’s most difficult to make time for themselves, manage emotional and physical stress, and balance work and family responsibilities. Many are at risk of becoming patients themselves, primarily due to these unmet needs. As care demands progressively increase, greater health effects are measured on caregivers. On average, caregivers to persons age 50 or over report more than $5,500 in out-of-pocket spending annually. The cost in time is even greater. AARP conservatively values the unpaid hours of family caregivers at $375 billion annually. • More than $1,000 for every man, woman and child in the United States • And 37% of caregivers report that they had to reduce their work hours or quit their jobs completely to handle their care responsibilities. – Diary excerpt, Evercare Study of Family Caregivers
  • 5. The iMporTance of oBTaining SupporT in caring for aging parenTS Despite the growing commonality of caring for aging relatives, it all too often remains a solitary endeavor for caregivers, many of whom provide most or all of their care alone. Caregivers tend to focus on their loved one at the expense of their own well-being, and they are often reluctant to share duties or ask for help. Feelings of guilt and responsibility can make it very difficult to request assistance, or even to accept it when it’s offered. warning SignS of caregiver STreSS Caregivers endure increased risks of depression and illness, especially if they don’t receive enough support. It is important for caregivers to realize • Anger that being exhausted, stressed or “burned out” will diminish the quality of • Guilt care they can provide. • Anxiety/irritability • Exhaustion The old axiom rings especially true for the Sandwich Generation: in order • Inability to concentrate to care for others, you have to care for yourself. • Depression • Thoughts of harm to self or others • Weight loss
  • 6. reSourceS/TipS for caring for an aging faMiLY MeMBer– reSpiTe care, aSSiSTance froM an rn/cna, eTc. One of the best support strategies for caregivers is to make sure they are aware of care plans prescribed by doctors. Nurses are also wonderful sources of information and understand the resources that are available to them. for both caregivers and patients, helping both to better understand and care for their specific needs. The thought of engaging outside respite services makes many family caregivers uncomfortable, but the benefits can be twofold: pediaTric, newBorn and diSaBLed care 1. Caregivers get the assistance they desperately need. Family care needs aren’t always age dependent. Something as common as a 2. They also learn how to provide better care for their loved one. broken bone or the arrival of a new baby can complicate life in a hurry. If a child already has special needs, caring for an aging parent can be even more difficult reSpiTe care to manage. Respite care provides short-term, temporary relief from caregiving responsibilities. Families now have a wide range of care options to respond to both expected and unexpected needs at any age, whether the condition is temporary or chronic. Many times, a little bit of help goes a long way, whether it’s the freedom to run a few errands, pick the kids up from school, or simply take a much-needed break. Always remember: You are not alone! Countless families face the very same Respite care gives family caregivers some time for themselves and for other personal circumstances, and care options are expanding to meet these growing needs. and family matters, and it’s available for both recurring and on-demand needs. aSSiSTance froM an rn/Lpn/cna When care demands exceed the medical capabilities of a family caregiver, professional nursing assistance becomes a necessity, both for the patient’s well- being and for the family’s peace of mind. • Certified nursing assistants (CNAs) provide personal care services and assist with daily living activities. • Registered nurses (RNs) and licensed practical nurses (LPNs) supervise CNAs and are further qualified to administer medications and perform advanced medical procedures. Bringing professional care into the home can allow patients to remain in their most comfortable and familiar surroundings without sacrificing safety or disrupting the
  • 7. Ten TipS for faMiLY caregiverS froM The naTionaL faMiLY caregiverS aSSociaTion 1. Choose to take charge of your life, and don’t let 6. There’s a difference between caring and doing. Be your loved one’s illness or disability always take open to technologies and ideas that promote your center stage. loved one’s independence. 2. Remember to be good to yourself. Love, honor and 7. Trust your instincts. Most of the time they’ll lead value yourself. You’re doing a very hard job and you you in the right direction. deserve some quality time, just for you. 8. Grieve for your losses, and then allow yourself to 3. Watch out for signs of depression, and don’t delay dream new dreams. in getting professional help when you need it. 4. When people offer to help, accept the offer and 9. Stand up for your rights as a caregiver and suggest specific things that they can do. a citizen. 5. Educate yourself about your loved one’s condition. 10. Seek support from other caregivers. There is great Information is empowering. strength in knowing you are not alone.
  • 8. You are noT aLone: SoMe faMiLY caregiving reSourceS faMiLY caregiver aLLiance The naTionaL aLLiance for caregiving Founded in 1977, Family Caregiver Alliance (FCA) was Established in 1996, The National Alliance for Caregiving (NAC) the first community-based nonprofit organization in is a non-profit coalition of national organizations focusing the country to address the needs of families and friends on issues of family caregiving. Alliance members include providing long-term care at home. Long recognized as a grassroots organizations, professional associations, pioneer in health services, FCA now offers programs at service organizations, disease-specific organizations, national, state and local levels to support and a government agency, and corporations. sustain caregivers. Visit the NAC online at www.caregiving.org Visit FCA online at www.caregiver.org The naTionaL faMiLY caregiverS aSSociaTion faMiLY caregiving 101 The National Family Caregivers Association (NFCA) educates, A joint effort by the National Family Caregivers Association supports, empowers and speaks up for the more than 50 (NFCA) and the National Alliance for Caregiving (NAC) to million Americans who care for loved ones with a chronic recognize, support and advise family caregivers. illness or disability or the frailties of old age. Their outreach program is called Visit the NFCA online at www.thefamilycaregiver.org “Family Caregiving: It’s not all up to you.” Visit Family Caregiving 101 online at www.familycaregiving101.org
  • 9. BroughT To You BY BrighTSTar We know how overwhelming the responsibility of caring for a family member can be. We once needed help caring for a loved one, but didn’t know where to turn to give her the quality of care, and the quality of life, she deserved. At BrightStar, our mission is to go above and beyond to Make More Possible — more joy, more comfort, more security, more quality, more time, more peace of mind. Helping people is more than just our mission; it’s our passion. It’s what makes us truly shine — knowing that we’re making a real difference by bringing more to the lives of others every day.