Crowdsourcing Lay Summaries: Bridging the Gap in Health Research

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Liz Lyon presentsCrowdsourcing Lay Summaries: Bridging the Gap in Health Research at the Patients Participate !Workshop at the British Library, 17th June 2011

Saúde e medicina Tecnologia Notícias e política

Patients
Participate!
#JISCPP

Crowd-sourcing lay-summaries:
Bridging the Gap in Health Research

1

2011: Citizens
getting involved
in science

2

But……
Public
understanding
of science
gets lost in
technical
http://www.flickr.com/photos/83456375@N00/100109448/
language
6

• How will open and participative
science initiatives impact on
research practice?

• What are scientists and funder
attitudes towards citizen science?

• What are the societal
implications?

• How should professional
scientists, volunteers, amateurs
and citizen scientists work
together?

7
http://www.ukoln.ac.uk/ukoln/staff/e.j.lyon/publications.html#november-2009

Patients Participate!
• Bridging the Gap
• Feasibility pilot study
• Stem cell research
• Develop Use Cases
• Deliver advocacy, guidance
• Report &
Citizen-patients producing Recommendations
crowd-sourced lay summaries • JISC funding
of UK PubMed Central papers
Blog : http://blogs.ukoln.ac.uk/patientsparticipate/

8

The team
• Monica Duke
• Liz Lyon
• Lee-Ann Coleman
• Karen Walshe
• Allan Sudlow
• Simon Denegri
• Sara Ellis
• Stephen Friend
• Melanie Welham
• Julian Chaudhuri
The Blog :
http://blogs.ukoln.ac.uk/patientsparticipate/
9
http://www.flickr.com/photos/andrewpescod/203127348/

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Crowdsourcing Lay Summaries: Bridging the Gap in Health Research

1. Patients Participate! #JISCPP Crowd-sourcing lay-summaries: Bridging the Gap in Health Research 1

2. 2011: Citizens getting involved in science 2

3. Classify galaxies… 3

4. 4

5. Validate results data and publish

6. But…… Public understanding of science gets lost in technical http://www.flickr.com/photos/83456375@N00/100109448/ language 6

7. • How will open and participative science initiatives impact on research practice? • What are scientists and funder attitudes towards citizen science? • What are the societal implications? • How should professional scientists, volunteers, amateurs and citizen scientists work together? 7 http://www.ukoln.ac.uk/ukoln/staff/e.j.lyon/publications.html#november-2009

8. Patients Participate! • Bridging the Gap • Feasibility pilot study • Stem cell research • Develop Use Cases • Deliver advocacy, guidance • Report & Citizen-patients producing Recommendations crowd-sourced lay summaries • JISC funding of UK PubMed Central papers Blog : http://blogs.ukoln.ac.uk/patientsparticipate/ 8

9. The team • Monica Duke • Liz Lyon • Lee-Ann Coleman • Karen Walshe • Allan Sudlow • Simon Denegri • Sara Ellis • Stephen Friend • Melanie Welham • Julian Chaudhuri The Blog : http://blogs.ukoln.ac.uk/patientsparticipate/ 9 http://www.flickr.com/photos/andrewpescod/203127348/

Crowdsourcing Lay Summaries: Bridging the Gap in Health Research

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