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6-120-1630-Ruiz
- 8. The rol of community manager it will be not “paternalistic” (we can repeat the “old model” the rol of community manager it will be “collaborative, facilitator, motivational....” ...”making the things happen”
- 9. The “need analysis” it's a wonderful opportunity to work and learn from the ePatients and to meet personally.
- 10. Work with the “Association's Space” in the Hospital increase the trust of the users and is becoming a “meeting point”
- 21. Send information and resources
- 22. For personal use (mail,personal interest)
- 23. To find support and help
- 24. To meet other families with the same condition
- 25. To know more about the disease
- 27. Share with others like you
- 28. Specific contents of health
- 30. Easy access to content and resources
- 36. personalized medicine = personalized experience in use of SM for Health?
Notas do Editor
- Brief description: Internet is a common tool in our daily living that offers new possibilities for communicating and delivering health care treatments. One of these possibilities is to use Internet to create a community where professionals (such as psychologists) and caregivers can work together in order to generate processes to improve the quality of life, by providing caregivers with resources to cope with difficult situations. From this perspective, in this session, two projects aimed to improve quality of life of caregivers will be discussed. Psinet is a research group of the Internet Interdisciplinary Institute of the UOC. We work on Psychology, Health and the Net and now we are working on using the internet to improve the quality of life of different groups of people.
- Since the beginning, APTIC is a collaborative initivative, that means there are diferent agents working together in it and coordinated by the group at the University. The idea was born in a seminair And was defined after talking with the professionals of the Hospital. Immediately after, we contacted with the Patients Associations in order to know what they needed and their willingnes to collaborate. After that, we need technological support (since we are just psychologists) to design the platform, and this is when an ehealth Foundation joined the project and suggested us to work together with a developers community, since whe wanted to use open software. And when we had to run the platform we needed a coordinator to do it in a systematic way, so we ask for some funds to the catalan health governement.
- And this is APTIC, a community of practice within a social network structure. That means we pretend to grow up and feed the platform in a collaborative way, by sharing and adding different expertises in a common project. For that purpose, we thought the best sructure was a social network. This is the main page of the website. As you can see, you have to register before joining the network. DIAPOS d’APTIC Des de fora Un cop dins Dashboard Perfil Comunitats
- And have several resources from your profile. As well as a private intraweb mail.
- We expect the processes will be centered on the communities, so the main exchange may be within each community. We have initially created different communities in a wide scope of interests, such as welcome and how to start, preparing questions to the psysicians, analyzing the information on the internet, specific tools about technology or about healthy lifestyles, relax techniques, social and financtial resources… And different associations have already created their own, such as Klinefelter Syndrome in Chile, Feder Spanish Association of Rare Diseases, or ADIAM Disabilities Association in the Maresme, a zone in Catalonia.
- There’s a general calendar and also an specific one for each community where members can share different events. And, as you can see, resources can be rated.
- From the very beggining you can tailor your dashboard just by selecting and draging the widget you prefer. So it is completely dynamic.