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                                                                                Autumn 20
                                                                                www.alzheimers-brace.org




                      Schools’                                    Reduce                     An anniversary
                      fundraising                                 your risk                  on the horizon
                      Local students take up the                  Benefit from the latest    Find out what we’re planning
                      challenge on page 5                         research, see page 7       for our 25th year on page 11


A major new
research project
was launched on
1st June in The
BRACE Centre at
Frenchay Hospital.




 Major new research in The BRACE Centre
A partnership between BRACE,             Bristol into pharmaceutical trials       Liz’s colleagues include Dr Judy
Bristol University and North Bristol     for patient benefit. Over the next       Haworth, already well known to
NHS Trust will fund a new dementia       5-10 years, we hope that dementia        many BRACE supporters because of
treatment clinic and related             research will yield a range of           her work in The BRACE Centre over
research. BRACE’s contribution,          effective medications, allowing          a number of years, and Dr Margaret
£571,000 over five years, funds the      treatment to be tailored according       Newson, clinical psychologist with
research element of the project.         to the needs of each patient.            expertise in dementia. Liz has
                                                                                  also gathered assistant clinical
The new initiative will enhance          “I am delighted to take on the           psychologists, researchers and
Bristol’s reputation as a leading        challenge of developing dementia         support staff to the Centre.
centre of dementia research.             care and research in Bristol. I hope
                                         that through high quality research       BRACE Chief Executive Mark Poarch
Dr Liz Coulthard, head of the new        in Bristol, we can transform the         says, “It’s great to see The BRACE
unit and consultant senior lecturer      outlook for dementia sufferers.”         Centre really busy again – it’s
in dementia neurology, hopes                                                      buzzing! It’s also very good for us
the team will develop improved           A new neurology dementia clinic          as a charity to be sharing a building
methods of diagnosis and eventually      held in the BRACE Centre at              with some of the researchers we
medications to treat Alzheimer’s.        Frenchay hospital, where patients        support, because it enables us to
                                         with dementia will be accurately         keep in touch with developments.”
Liz says, “Work will focus on            diagnosed and treated, will run
translating the world class              alongside the programme of clinical      Liz tells more about this exciting
preclinical dementia research in         dementia research.                       new project on page 10.


 | BRACE                                                                                   www.alzheimers-brace.org
Don’t miss                        Programme of Events                              Welcome to our new Chairman,
                               the BRACE                              20/202                                               Alan Parsons
                               Autumn Fair                      SEPTEMBER
                                                                SUN 11 Bristol Half Marathon
                                                                                                                                                        The former Managing
                                                                                                                                                        Director of Bristol Water,
                                                                                                                                                                                                  problem for health services around
                                                                                                                                                                                                  the world. If BRACE and its many
                                                                                                                                                                                                  supporters can help medical science
                                                                SAT 24 Collection at Co-operative Portishead                                            Alan Parsons, is the new                  defeat dementia, what a wonderful
                               to be officially opened by       THU 29 Fashion Show and Sale                                                            Chairman of BRACE. He joins               achievement that would be.”
                               Ali Vowles of BBC Bristol               Greenfield Centre, Winterbourne,                                                 ten existing trustees and
                                                                       Bristol 7.00 for 7.30pm                                                          replaces Canon John Rogan,                Alan graduated in physics but
               SAtuRdAy 8 OCtOBER                                                                                                                                                                 then trained as an accountant and
                10.00am to 12.30pm                              OCTOBER                                                                                 who remains a Trustee.                    developed a career in business.
 Newman Hall, Grange Court Road, Westbury-on-Trym               SAT 8   Autumn Fair,
                                                                        Newman Hall, Westbury-on-Trym                                                   Alan, who recently stepped down           BRACE Chief Executive Mark Poarch
  Many stalls including: Beauty  Bath, Second-hand Books,              10.00am to 12.30pm                                                              as Managing Director of the utilities     says, “Alan is a superb new addition
    Bric-a-brac, Cakes  Jams, Collectables, Jewellery,         FRI 21  SAT 22                                                                         firm, says he is honoured to be           to our Board of Trustees. In his
                Plants  Shrubs, Toys  Games                                                                                                           joining the charity.                      role as chairman, he will be able
                                                                        Collection at Sainsbury’s Kingswood
        The new range of BRACE Christmas cards and                                                                                                                                                to help us find new ways to raise
            2012 BRACE calendar will be on sale                 NOVEMBER                                                                                He says, “I am delighted to be            money and help win the fight
                                                                SAT 5  Christmas Bazaar @ Linda’s                                                       joining BRACE, a regional charity         against Alzheimer’s and other
                     Refreshments available                                                                                                             that has already achieved so much         forms of dementia. With our
                                                                       94 Worrall Road, Clifton
                                                                       10.00am to 4.00pm                                                                and which has such an important           strengthened team, we shall
             We look forward to seeing you!
                                                                                                                                                        task ahead of it. Dementia is             continue to develop as an important
                                                                SAT 19 Christmas Market,
            With thanks to CJ Hole Henleaze for their                                                                                                   a terrible illness and a major            player in dementia research.”
                                                                       Greenfield Centre, Winterbourne,
                 sponsorship of the Autumn Fair
                                                                       Bristol
                                                                       2.00 to 5.00pm
 Friends in
 the north!
                                                                DECEMBER
                                                                SUN 4 BRACE Carol Service,
                                                                      St Mary Redcliffe Church
                                                                                                                  TXT us £!
                                                                      3.00pm                                      you can now text a
                                                                MARCH 2012                                        donation of up to £10 to
                                                                SAT 24 3MC Three Mens Company                     BRACE from your mobile
                                                                       An evening of light entertainment          phone. Messages are
  Although BRACE is a West Country charity, we receive help            Bradbury Hall, Waterford Road,             free on all networks and                         The Front Room Gallery            story writing competitions,
  and support from friends further afield who hear of us               Henleaze                                                                                    is an annual arts trail           a balloon race and ‘guerrilla
  through family or find us on the Internet. We are very glad          Details will be published in January       BRACE will receive 100%                          held in Totterdown,               ducks’. It will also include
  of their support!                                                    Update and on the BRACE website            of the donation.                                 Bristol and we are very           artwork by the wonderful
                                                                                                                                                                                                     poet, comedian and Radio 4
                                                                MAY                                               All you need do is text “ALZH25”
                                                                                                                                                                   pleased that this year it
  On Saturday 25th June, Helen Welton from Nunthorpe,                                                                                                                                                favourite, John Hegley.
                                                                TUE 22 BRACE Golf Day,                            and the amount (£10 or less)                     will be proudly raising
  Middlesbrough, held a fundraising garden party at her
  home in aid of BRACE. In the photograph you can see                  Henbury Golf Club                          to 70070. For example,                           money for BRACE plus              The art trail takes place
  Helen, wearing a BRACE t-shirt, alongside her husband,        THU 24 Big BRACE Anniversary Coffee Morning       to donate £5 simply                              the Wallace and Gromit            between Friday 18th and
  Richard Marbrow and friend and neighbour Julie, who                  St Monica’s Trust, Westbury-on-Trym        text “ALZH25 £5”           TO:70070              ‘Cots for Tots’ appeal.           Sunday 20th November this
  helped on the day.                                                   10.30am                                                              ALZH25 £5
                                                                                                                                                                                                     year. For further details go
                                                                                                                  ALZH 25 is the unique                                                              to www.frontroom.org.uk
                                                                                                                  code for BRACE.                                  Always exciting and full of
  Helen said, “Many of the items in the sale came from                                                                                                             locally produced art, this
  Richard’s mother, Muriel, as she now lives with her           Details of more anniversary events                                                                 year’s trail aims to include
                                                                                                                                                                                                     Volunteers, artists and great
                                                                                                                  You can also add                                                                   ideas are always welcome!
  daughter since Alzheimer’s has made it impossible for her     to follow on our website and in the               Gift Aid.                                        more music than ever, plus
  to live independently. Muriel has difficulty recognising      January Update.                                                                                    animation, poetry and short
  Richard now but she is still keeping going. My husband’s
  father Norman Marbrow died from Alzheimer’s in 2001.”
                                                                Watch out for                                     Go on –
                                                                this emblem!
  A very big thank you to Helen and her helpers for raising
                                                                                                                  give it
  £200 for BRACE.                                               For further information about any of the above    a go!
                                                                events please contact the BRACE Appeal Office


2 | BRACE                                                                          www.alzheimers-brace.org      call the BRACE appeal office on 0117 340 4831                                                         Autumn 20 |
How a protein may hold the key to Alzheimer’s
Research that could help medical science defeat Alzheimer’s
disease is happening just a mile from the BRACE charity office.
dr Myra Conway and BRACE funded Phd researcher
Jonathon Hull are based at the University of the West of
England (UWE). Their work centres on a substance called
                                                             Following a successful post-doctoral period of 5 years
                                                             Myra was appointed as Lecturer in Clinical Biochemistry
                                                             at the university of Brighton in 2003. Opportunity
                                                                                                                          Schools’ Fundraising
glutamate, which occurs in the brain and is necessary        knocked and shortly afterwards Myra was appointed as         Following an approach                 the Concorde Partnership organised      The students were then given
                                                                                                                                                                this fundraising ‘challenge’ for Year   BRACE T-shirts and let loose to
for memory and learning. However, if an imbalance            Senior Lecturer in Biomedical Science at UWE, where she      from the Concorde                     12 students from three partner          discuss their ideas!
occurs, glutamate can become toxic to brain cells.           has been developing her research and continues to lead
                                                             and lecture in Clinical Biochemistry.                        Partnership earlier                   secondary schools – Abbeywood,
                                                                                                                                                                                                        Two days later we returned to
                                                                                                                                                                Bradley Stoke and Patchway.
Myra says, “Levels of glutamate are regulated by a                                                                        this year 25 students                 This was part of a wider menu of        the school to find they had raised
protein called hBCAT. Jonathon’s research has already        Currently, Myra is director of Studies for 4 Phd students,
shown that this protein is far more common in the brains     1 research technician, 8 undergraduate research students     from Bristol spent                    activities to enable them to gain       £519.83 by holding a number of
                                                                                                                                                                valuable experience in different        events including a raffle, car wash,
of people with Alzheimer’s, and this could be causing        and 1 MSc student. Several of these projects are in joint    two days in July                      fields aimed at broadening their        swimathon, name the bear and
dangerously high levels of glutamate.”                       collaboration with dr Katy Chalmers, Prof Seth Love and
                                                             dr Pat Kehoe at the South West dementia Brain Bank.          fundraising for BRACE.                horizons while giving them a            cake sale.
This research, funded by BRACE, could help to identify                                                                                                          competitive edge over other
                                                                                                                                                                university/job applicants.              We are hoping that this
“biomarkers”, the clues that doctors need to identify the    Our research scholar, Jonathon Hull, comes from Essex
                                                                                                                                                                                                        collaboration will continue and
disease as early and accurately as possible. To read more    and completed his undergraduate degree in Biomedical
                                                                                                                                                                23 students from Bradley Stoke          look forward to working with these
about Myra and Jon’s research, please see the Research       Science at uWE. Jonathon achieved a first class honours
                                                                                                                                                                Community School and 2 from             schools, the Concorde Partnership
Update published as an insert of this Newsletter.            degree and the highest mark recorded for his year group,
                                                                                                                                                                Abbeywood School chose charity          and other students in the future.
                                                             which was recognised by the Oxford Press prize
Myra comes from Cork city in Ireland and achieved a first    at graduation.                                                                                     fundraising as their activity.
                                                                                                                                                                                                        Our thanks to Susan and Ashley for
class honours degree in Biochemistry and completed her
                                                                                                                                                                Day one started with talks by Susan     giving their time to speak to the
Phd at the university of Galway, Ireland. In 1998, Myra      This project began in June 2010 after BRACE had awarded
                                                                                                                                                                Marshfield (BRACE trustee) about        students and to all the teachers and
travelled to the US to take a post as a Research Fellow at   a grant for Phd research directed by Myra.
                                                                                                                                                                the role of BRACE and Ashley White,     students involved in fundraising.
Wake Forest University Medical Center, North Carolina,
                                                                                                                                                                who talked about how she and her        Well done!
where she first started work on the hBCAt proteins.
                                                                                                                                                                friends had raised funds for BRACE.


 | BRACE                                                                                 www.alzheimers-brace.org        call the BRACE appeal office on 0117 340 4831                                                      Autumn 20 |
Christmas with BRACE                                                           Confirmed events at which all our
                                                                               cards (subject to availability) and
                                                                                                                     You can reduce
                                                                                                                     your risk of dementia!
                                                                               the calendar will be available are:

                                                                               FASHION SHOW
                                                                               Greenfield Centre, Park Avenue,
                                                                               Winterbourne                          Though anyone can develop dementia, you
                                                                               Thursday 29 September 7.30pm          can reduce the risk by the way you live. The
                                                                               BRACE AUTUMN FAIR
                                                                                                                     earlier in adult life you can start applying the
                                                                               Newman Hall, Grange Court Road,       following principles, the greater their impact is
                                                                               Westbury-on-Trym                      likely to be. This is one way in which the fruits
                                                                               Saturday 8 October 10am-12.30pm
                                                                                                                     of research can help you today.
                                                                               St PEtER’S HENLEAZE CARd SALE
                                                                               St Peter’s Church Hall, Henleaze
                                                                               Saturday 15 October                   Here are some top tips based                                                A good diet.
                                                                               10am to 12noon                        on what researchers have                                                    The “Mediterranean diet”,
                                                                                                                     been telling us.                                                            with plenty of olive oil, fruit,
                                                                               BACKWELL CARD SALE                                                                                                fresh vegetables and fish is
                                                                               Parish Hall, Backwell                 Take regular exercise.                                                      beneficial. Foods high in folic acid,
                                                                               Saturday 22 October                   This is the single best way to cut                                          antioxidants and omega 3 are
                                                                               10am to 12noon                        your risk of dementia, perhaps by                                           helpful. Specific foods that have
                                                                                                                     as much as 45%. Exercise for half                                              been suggested as good for the
                                                                               From 1st November at                  an hour three times a week,                                                       brain include turmeric and
                                                                               HAIGH ANd SONS                        or do enough exercise to leave                                                      sage. Eating lots of food
                                                                               Estate Agents, North View,            you slightly out of breath.                                                          high in saturated fat,
                                                                               Westbury Park, Bristol                This does not have to                                                                 however, is not a good
This year our calendar                 and Son, Estate Agents, North View,
                                                                               (open Monday-Friday 9am-6pm           be anything extreme
                                       Westbury Park from 1st November                                                                                                                                      idea. A study of 815
celebrates the great                   (Open Mon-Fri 9am – 6pm and Sat         and Saturday 9am-5pm)                 – brisk walking is generally                                                            people over the age
engineer Isambard                      9am – 5pm).                                                                   beneficial, for example.                                                                of 65 years in Chicago
                                                                               CHRIStMAS BAZAAR @ LINdA’S            The more frail a person is,                                                             suggested that eating
Kingdom Brunel and, for                                                        94 Worrall Road, Clifton              the more the exercise is
                                       Please order early. We often sell                                                                                                                                     fish regularly can
the first time, includes               out of the calendar and the most        Saturday 5 November                   likely to help them. Even                                                               significantly reduce the
photographs from                       popular designs of cards.               10am to 4pm                           15 minutes walk, three times                                                            risk of Alzheimer’s.
                                                                                                                     a week is enough to produce
outside Bristol.                       BRACE cards and calendar will           PORtISHEAd CARd SALE                  a positive effect. This is true                                                       Keep your brain
                                       be on sale at many BRACE events         Somerset Hall, High Street,           even in the over 65s.                                                                active.
A number of people have                leading up to Christmas, see the list   Portishead                                                                                                                Keeping socially, physically
contributed to this calendar and we    to date on the right. Alternatively     Saturday 12 November                  Watch your weight.                                                                 and mentally active will help
are grateful to them for allowing us   they will be available for purchase     10am to 12noon                        Recent research suggests that                                                    you, even in old age. Having
to use their photographs. We hope      online by visiting our shop page at                                           being obese or even moderately                                                 an active social life in old age
you enjoy it!                          www.alzheimers-brace.org/BRACE_         dOWNENd SCHOOL FAIR                   overweight in middle age can                                                is an important part of a defence
                                       Shop.htm                                Downend School                        increase your risk enormously.                                              strategy, but you can also create
                 We also have                                                  Saturday 19 November                  A 27-year study of 10,000 people                                            new links in the brain by mental
                 a much larger         If you would like more information      11am to 3pm                           found that obese people in their                                            activity such as learning a new
                 selection of          about BRACE, our forthcoming                                                  40s were 74% more likely to develop                                         language. A US study has suggested
                 Christmas cards       events, or would like to volunteer      CHRISTMAS MARKET                      dementia compared to those of                                               that the risk of developing
                 this year due to      to help with our fundraising,                                                 normal weight.                         Alcohol in moderation.               Alzheimer’s disease is more than
                                                                               Greenfield Centre, Park Avenue,
                 increased demand,     please contact:                                                                                                      A glass of red wine every day
                                                                               Winterbourne                                                                                                      doubled in lonely people.
                 led as always by      the BRACE Appeal Office,                Saturday 19 November
                                                                                                                     Don’t smoke.                           can help cut your level of risk,
                 Brian Sanders’ card                                                                                 Smoking is quite simply not good for   but excessive drinking is not good   In general, the advice is – if it’s
                                       Frenchay Hospital, Bristol BS16 1LE     2pm to 5pm
which this year depicts Bathurst                                                                                     you, and dementia is yet another       for your brain. A recent study       good for your heart, it’s good for
                                       Telephone: 0117 340 4831                                                      serious condition made more likely     suggested that heavy drinkers and
Basin, City Docks, Bristol.                                                    CAROL SERVICE                                                                                                     your brain. The advice we all hear
                                       Email:                                                                        by the habit. Among people smoking     teetotallers were both more likely   about keeping our hearts healthy is
                                                                               St Mary Redcliffe Church, Bristol
You will be able to buy your cards     admin@alzheimers-brace.org                                                    40 or more cigarettes a day, the       than light drinkers to develop       worth following for the sake of our
                                                                               Sunday 4 December 3pm
and calendars at the BRACE Appeal      Website:                                                                      risk of Alzheimer’s is claimed to be   cognitive problems.                  brains, too.
Office (available now) and at Haigh    www.alzheimers-brace.org                                                      57% higher.


 | BRACE                                                                             www.alzheimers-brace.org       call the BRACE appeal office on 0117 340 4831                                                    Autumn 20 |
£2,2.00
 £.00
  £0.0
£,00.00
              Running totals...
                                                                                                                                                                         Photos from the left
                                                                                                                                                                         Emma Cook, husband and friends at the top



£,00.00
                                                                                                                                                                         of Snowdon | Sue Martin | Dan and George |
                                                                                                                                                                         Hannah and Vicky




 £,.
             Vicky Ledbury wanted to do             that Joe was watching down, proud      alongside the 21 mile mark and         Max Peters had to withdraw due            It was last year that Amanda
             something in memory of her father-     of what I was doing, that kept me      saw the elite men run past looking     to a knee injury but his generous         Nethercott made the decision to
             in-law Joe, who passed away in         going to the end. It was one of the    fresh as a daisy! It was only a mile   supporters still sponsored him to         get fit. She took up running with
             March last year quite unexpectedly.    most amazing experiences of my         or so later that the heat of the day   the tune of £1,119.51. Neil Drew          a goal of doing a 10k in less than
             In the last months of his life he      life and one I would go through        started to get to me. At mile 22 I     was also unable to get to the start       an hour and achieved this in the
             was badly affected by dementia         again to raise more awareness of       was really struggling but found some   line due to an accident a couple          Bristol 10k in May, and at the same



£,.00
             and Vicky said she wanted to raise     the work that BRACE does.”             energy from somewhere to carry         of days before the marathon in            time raising funds for research in
             awareness of the impact that the                                              me through to the end. Crossing        which he fractured his ankle but          Alzheimer’s after her grandmother
             disease has on family members and      Hannah Clark, who raised £986          the finish line was very emotional;    had already secured sponsorship of        sadly had to be put in a care home
             to know that the money she raised,     sponsorship, said of the day, “I       the crowds were terrific all the way   £1,645.00. Both Max and Neil are          when the family could no longer
             which incidentally amounted to         found the London marathon such an      round and really made my day!”         hoping to be fit to run in the 2012       cope. Her initial aim was to raise



  £0.00
             £2,121, would be used locally.         amazing experience and one I will                                             London Marathon.                          £500 in sponsorship but to Amanda’s
                                                    never forget ....from all the crowds    “I really enjoyed the marathon”                                                 delight (and ours) the final figure
             Vicky said, “I was very lucky to       and supporters cheering everyone       said Sue Martin. “It was hard          Others who have taken part in             was £1,314.
             have the opportunity to run this       on, to the other amazing runners       work and hot, but I did it and I am    sponsored events this year include
             year’s London Marathon for BRACE.      all running for brilliant causes.      grateful to BRACE for giving me the    Belinda Morley and her husband            Also taking part in the Bristol 10k
             I met Hannah, one of the other         My legs hurt but just getting that     place and experience. We all know      who raised £130 when they ran in          were friends Daniel and George



 £.00
             BRACE runners, in the long queue       medal at the end made them hurt        what an overwhelming condition         the Bath Half Marathon in March.          who said of the run “The 10k
             for the start line which gave me       less! Throughout the day I had my      dementia can be and how it can         Also in March, Emma Cook and              was amazing; we really enjoyed
             a real boost as I was feeling quite    great aunt in mind as she had been     impact on those that are affected      her husband Mark, together with           ourselves and finished in quite a
             emotional before the start, thinking   diagnosed with Alzheimer’s and was     by it, their families and friends. I   friends Rich and Ryan, climbed up         good time too!” Daniel and George
             a lot about the challenge ahead and    the main reason I wanted to raise      am proud to have run for BRACE in      Mount Snowdon raising £435.00.            raised a very welcome £647 for
             the reasons why I was doing it. The    money for BRACE, knowing every         the London Marathon as I know that     Emma said “Sadly my Nan passed            BRACE.


£,.00
             first ten miles weren’t too bad but    penny raised really is going to make   the money raised from my generous      away when I was 16 after a long
             then an old injury really played up    a difference for others.”              supporters is being put to good        battle with Alzheimer’s. I wanted         We are grateful to everyone who
             which lead to me having to walk                                               use.” So far Sue has raised £1,070.    to help to raise some money so            has supported us by taking part in
             most of the second 13 miles! Going     Matthew Hunt ran in memory of his                                             hopefully one day there will be a         a sponsored event, raising much
             over Tower Bridge was an amazing       girlfriend’s granddad who died from    Sebastian Hobbs was following in       cure and no-one else will have to         needed funds for BRACE. If you



  £.00
             experience as everyone on the          Alzheimer’s. He raised £703.50 and     the footsteps of two of his work       suffer with this terrible disease. I      would like to do the same please
             Bridge was cheering us on so that      said “I had an amazing day. One of     colleagues who had run for BRACE       really do hope my fund-raising will       contact us at the BRACE Appeal
             gave me a massive boost and it         the highlights for me was getting      in previous years. Sebastian raised    make a difference.”                       Office for a sponsor pack – we will
             was that memory and the thought        to 13 miles where the route runs       raised £1,030 in sponsorship.                                                    be very pleased to hear from you.


  | BRACE                                                   www.alzheimers-brace.org      call the BRACE appeal office on 0117 340 4831                                                           Autumn 20 |
Building up to our
                                                                                                                                          silver anniversary!
                                                                                                                    BRACE is 25 years      In the 1980s, a small and determined          However, we can tell you that the big
                                                                                                                                           group of volunteers was raising funds as      event is likely to be at the Tobacco Factory
 Major new research in The BRACE Centre                                                                             old in September
                                                                                                                    2012, and we want
                                                                                                                    to celebrate our
                                                                                                                                           the Friends of Age Research (Bristol), a
                                                                                                                                           local branch of a national charity. This
                                                                                                                                                                                         in Bristol in September. Plans are still being
                                                                                                                                                                                         formulated, but we would like to thank
                                                                                                                                           group, which was chaired by Mary Sansbury     the management of the Tobacco Factory
Continuing our cover story on this                         several different types of memory including very short
                                                                                                                    silver anniversary     and included Dr Brandon Lush, Senior          for their generosity in offering us the use
                                                           term or working memory and longer term memory. We
exciting new research, Liz Coulthard                       are using computerised cognitive tasks to study the      in style! There        Geriatrician at Frenchay Hospital, decided    of the theatre. You can also make a note
explains what the project involves:                        way in which patients retain memory over time and        will be some           that it wanted to devote its efforts to       in your diary for a lively concert on 24th
                                                           how this could be improved using medication.             special events         supporting locally based research. The        March. See Programme of Events on page 2.
                                                                                                                    throughout the         opportunity to do this was provided by the
Several different streams of clinical research are
planned focussing on Alzheimer’s disease and other
                                                         Further studies will be based on the preclinical,
                                                         laboratory-based work of the Dementia Research
                                                                                                                    year and we hope
                                                                                                                                           work of Professor Gordon Wilcock at Bristol
                                                                                                                                           university. On 24th September 1987 the
                                                                                                                                                                                                 3 ways you can
dementias. Each research study involves asking           Group, run by Professor Seth Love and dr Patrick
                                                                                                                    to make 2012 a         charity was founded, with Gordon Wilcock,           help make 2012 our
patients and volunteers for their informed consent to                                                               bumper year for        Brandon Lush, david Pockney and John
take part. At the heart of the research program is a
                                                         Kehoe. Their work has demonstrated that blood
                                                         vessels are affected early in the course of Alzheimer’s    fundraising.           Rogan as its first trustees.
                                                                                                                                                                                                 best ever year
research register where details of willing patients and  disease. We plan to study the possible beneficial                                                                                1. Ask us for a standing order form so
healthy volunteers are recorded. Using the register,     effects of agents that can protect blood vessels and                              Beating Alzheimer’s was never going to be      that you can make a monthly donation.
we can then identify and contact participants                             are already used safely to treat high                            a short-term task. Enormous progress has       Regular giving helps us plan. If you
suitable for a given study. Patients recruited onto “patients can blood pressure. In addition there is                                     been made by medical science in the last       are already a regular donor, could you
the research register and into studies will come                          the opportunity to help with the early                           quarter of a century and BRACE has played
primarily from the new neurology dementia clinic take part in
                                                                                                                                                                                          increase your donation? If you currently
                                                                          stages of stem cell research already                             a significant role. However, there remains     pay income tax, you can also increase
in the BRACE centre.                                 research in          underway in Bristol and Bath.                                    much to be done and the growing numbers        the value of your donation through Gift
                                                                                                                                           of people with dementia make our task all
Patients are referred to the cognitive neurology    a familiar           In order to measure the effectiveness                             the more urgent.
                                                                                                                                                                                          Aid (at no extra cost to yourself).
and dementia clinic by GPs or other hospital        environment” of treatments, we are going to                                                                                           2. Give us your time! We need people
consultants who suspect that they might have                             perform repeated psychology tests,                                There are ways that you can help make          to help with collections, take part in
some form of dementia. The clinicians then carry                         as well as detailed brain imaging.                                2012 a great year for BRACE and for the        sponsored events, and help at sales and
out tests to establish what their symptoms mean          Repeated volumetric MR imaging of the brain can tell                              fight against dementia.                        other events.
and, if the cause is dementia, try to establish which    us how much the brain shrinks over time and we can
form of dementia is involved. Patients attending the     measure any benefit of the trial drugs on brain volume.                           Next year’s events are still being planned     3. Ask your employer/school/church/
clinic are asked if they would like to be entered onto   We are building strong links with the Clinical Research                           and we cannot give you all the details yet.    club to join our Silver Service and pledge
the research register. Much of the research is based in  and Imaging Centre (CRIC) in the University of Bristol                            The information will be published on our       to raise at least £500 for BRACE in 2012.
The BRACE Centre ensuring that patients can take part    and the medical physics departments of North Bristol                              website and in the next update (January)       Contact us for details.
in research in a familiar environment and research and   Trust and University Hospital, Bristol, in order to                               and spring Newsletter (April).
clinical care are closely allied.                        develop high quality image analysis both for clinical
                                                           and research work.
Planned research projects will look both at the
underlying problems experienced by people who have         Over time we hope to develop a portfolio of studies
dementia and also how therapy can be targeted to           each designed to improve understanding and treatment
individual patients. Our first studies are investigating   of dementia.
how memory can be affected in dementia. There are

0 | BRACE                                                                            www.alzheimers-brace.org      call the BRACE appeal office on 0117 340 4831                                                     Autumn 20 |
The annual Golf Day
                                            BRACE Golf Day 20
                                                                                                            I feel as though I have known
                                                                                                            about BRACE forever – but it is
has become a major                                                                                          really only about 20 years. My
fixture in the BRACE                                                                                        first knowledge came when I
calendar. This was the                                                                                      was visiting an aged terrapin
                                                                                                            building at Blackberry Hill
tenth time the event                                                                                        Hospital for my husband’s tests
has been held, and in                                                                                       and follow up after he had been
                                                                                                            diagnosed as having Alzheimer’s
total has raised over                                                                                       disease. He died in 1993.
£50,000.
We are very grateful to Roger and
Pat Higgins and all the other
volunteers who work with them
to make the Golf Day possible.
                                                                                  A volunteer’s story       by Susan Marshfield
Because of all the work that Roger                                                                          Everyone has their own way of dealing          Pat Whitby Strevens, to “help out” with
has done over the years, it seemed                                                                          with death. My work was my salvation           BRACE. I have been “helping out” with
fitting that he and the other “BRACE                                                                        – I loved it. One day my boss said he had      BRACE ever since! It has its rewards;
Boys” were the winners this year!                                                                           been visited by the chairman of BRACE,         the satisfaction of seeing the amount
                                                                                                            who was looking for some free manpower         of research the charity is now able
The prizes were presented by                                                                                to organise a business event raising           to fund, the wider knowledge of the
Olympic medallist Kate Allenby, who                                                                         awareness of the charity. Because he           disease nationally, as well as our part in
won bronze in the modern pentathlon                                                                         knew of my experience he said he was           promoting knowledge locally. PLuS our
in Sydney in 2000. Kate also gave an                                                                        happy for me to take it on if I was willing,   input into the Memory Disorder Clinic, the
amusing and inspiring speech.                                                                               using the facilities of the workplace, my      Brain Bank and the laboratories, for which
                                                                                                            PA etc. So I became a BRACE volunteer!         we have to thank the John James Trust,
Another highlight, on a day when a
                                                                                                                                                           another great Bristol institution. A far cry
strong wind made driving difficult,                                                                         Thanks to the help of some great Bristol       from the old terrapin.
was a hole in one achieved by James                                                                         companies - Bristol Blue Glass and
Hodder of the Rolls Royce team.                                                                             Aardman Animation to name but two - the        I was rewarded with a seat on the
                                                                                                            event was staged at Merchant Venturers         Board as a trustee – the first female, I
A poignant moment came during
                                                                                                            Hall. My biggest fear? Not that it would       might add. I am also rewarded by being
the presentation to the winning
                                                                                                            fail or that nobody would come, but that       recognised by lots of people who now
team. One of the team members,
                                                                                                            something might happen to Aardman’s            know me and quite often expect me to
Ivor Williams, dedicated the win to
                                                                                                            “Creature Comforts” animals which were         shake a tin or sell them something from
the memory of Dr David Dawbarn, a
                                                                                                            on loan!                                       BRACE. My sons expect me to frequently
greatly respected research scientist
                                                                                                                                                           be “doing something” for BRACE and even
at Bristol University who died                                                                              When I retired, I was approached by            my grandsons now play on the Golf Day.
suddenly in 2010. Ivor had taught                                                                           Richard Lalonde, the then chairman,
David at Bath University.                                                                                   to join with him and Mary Sansbury,            When asked if you will volunteer, give it
                                                                                                            together with Professor Wilcock and the        serious thought and, if you can – do it!
We look forward to the next Golf
                                                                                                            much overworked part time secretary,
Day on 22 May 2012 and invite early
expressions of interest in taking part.

Photos from top:
                                                                                    Competition Winners                                                                       Portishead
                                                                                                                                                                              Flower Show 
James Hodder and the Rolls Royce team                                               Our latest winners are Mrs A Holden                                                       Country Fair
after James’ hole in one                                                            from Westbury-on-Trym who won
Kate Allenby presents the winners’                                                  the Stationery competition in our                                                         Carole Jenkins and
trophies to The BRACE Boys (l-r, David                                              Spring newsletter. The winner of                                                          Betty Harris on the
Macbean, Ivor Williams, Steve Lucas, Kate                                                                                                                                     BRACE stall which,
Allenby and Roger Higgins)                                                          the Gemstones competition will be
                                                                                    announced in our next newsletter.                                                         as well as raising
Volunteers at work on the scoreboard                                                                                                                                         £347.85, won second
Kate Allenby with new BRACE Chairman                                                Our latest competition is enclosed.
Alan Parsons
                                                                                                                                                                              prize for the best non-
                                                                                    Good luck!                                                                                trade exhibit.
General view of the course


2 | BRACE                                             www.alzheimers-brace.org   call the BRACE appeal office on 0117 340 4831                                                      Autumn 20 |
Take an adventure in Kenya… for BRACE
                                                                                                                 KenyanAventure is a travel                People who travel on their tours            If these dates are not possible for
                                                                                                                 company with a difference.                spend some of their holiday                 you, it is also possible to organise
                                                                                                                                                           helping local people on community           your own trip in support of BRACE.

                       Charitable Gifting on Death                                                               As well as providing the
                                                                                                                 sight seeing opportunities
                                                                                                                 and relaxation most people
                                                                                                                                                           projects.

                                                                                                                                                           The company wants to help
                                                                                                                                                                                                       You would probably be travelling
                                                                                                                                                                                                       with individuals supporting a range
                                                                                                                                                                                                       of other charities.
                       In April 2011 George Osborne announced       This is good news for Charities. It is       expect from a holiday,                    charities in the UK as well, by giving
                                                                                                                                                           its customers the option of raising         For further information about this
                       in the Budget Speech that the                designed to encourage us to remember         it sets out to help local
                       Government will introduce for deaths         our favourite causes in our Wills. The                                                 sponsorship. KenyanAdventure                remarkable opportunity, please see
                                                                                                                 communities in Kenya.                     has chosen BRACE as one of its              http://www.kenyanadventure.com/
                       occurring from 6th April 2012 a reduced      reduction in the Inheritance tax rate
                       rate of Inheritance tax of 36% where a       means that a large charitable gift will                                                supported charities and is inviting         brace.html or ring 0845 862 1381.
                       person leaves 10% or more of their net       have a much smaller impact on your                                                     people to support BRACE through a
                       assets to a charity or charities.            beneficiaries where the estate is liable                                               trip that will take place from 12th
                                                                    to Inheritance tax.                                                                    to 23rd March 2012.
                       George Osborne stated “do the right
      Jenny Pierce,
         a legacies
                       thing for Charity and the Government
                       will do the right thing by you”.
                                                                    George Osborne and the Government
                                                                    very much want it to become the norm
                                                                    that we leave 10% of our wealth on
                                                                                                                 BRACE Donation Form
    specialist with    Currently any gifts to Charity in your       death to Charity. This is part of the        Please find enclosed a donation of £__________ to BRACE.
   Wards Solicitors    Will do not incur Inheritance tax.           vision for the Big Society.

   in Bristol, looks   If a person’s estate is liable to            The precise details of the changes to the
                                                                                                                 FULL NAME
                                                                                                                                                                             Gift Aid Declaration
                       Inheritance tax then after deducting
       at the likely   exemptions and reliefs any excess sum
                                                                    tax rate are currently being thrashed                                                                    If you are a uK taxpayer and complete the form below,
                                                                    out. The Treasury are putting together       ADDRESS                                                     BRACE can recover at least an additional 25p for every pound
     impact of this    (the net estate) is taxable at 40%.          a consultation paper. The consultation                                                                   donated, through the Government’s Gift Aid scheme – at no
                                                                                                                                                                             extra cost to you!
    year’s budget.     So where your estate is subject
                                                                    closes on 31st August this year.
                                                                                                                                                                             I am a uK taxpayer and want BRACE to treat the following
                       to Inheritance tax every £100 left           A charitable gift post April 2012 reduces                                                                donations as Gift Aid donations:
                       to Charity will reduce the amount            what your beneficiaries receive but by                                                                   • this donation      Yes    No
                       remaining for the beneficiaries but will     significantly less than under the current                                                                • all donations I make from the date of this declaration onwards
                                                                                                                                                                               (until I notify you otherwise) as Gift Aid donations   Yes   No
                       also reduce the Inheritance tax on the       Inheritance tax regime.
                                                                                                                                                                             • this and all past donations I have made        Yes   No
                       estate by £40. Currently the effective
                       cost of the legacy to Charity to the         These measures are to be welcomed as                                                                     I confirm that I am a uK taxpayer, resident in the uK for tax
                       remaining beneficiaries is £60 per £100      it will encourage charitable gifting. It                                                                 purposes and that I will advise BRACE if this situation should
                                                                                                                                                                             change.
                       gifted.                                      is vital if you are thinking of leaving a
                                                                    gift to Charity in your Will that you take
                       From April 2012 if 10% of your net estate                                                                                                             SIGNED
                                                                    professional advice from a specialist
                       is given to Charity, the effective cost of   Solicitor.
                                                                                                                 POSt COdE                                                   DATE
                       the charitable legacy to the remaining
                       beneficiaries of your Will is only £24 per   Jenny Pierce,                                Thank you for your donation. Please tick this box if you would like to receive a written acknowledgement:
                       £100 gifted if you have a taxable estate.    Wards Solicitors
                                                                    July 2011                                    Please return to BRACE Appeal Office, Frenchay Hospital, Bristol BS16 1LE

 | BRACE                                                                        www.alzheimers-brace.org       call the BRACE appeal office on 0117 340 4831                                                                 Autumn 20 |
News in brief...



                                                                                   Bristol Barons Ball chose BRACE
 Members of Saltford Golf Club                                                     as its charity at the end of
 held a charity coffee morning in                                                  2010 and raised over £3,000
 aid of BRACE on 3rd March - and                                                   for us in one evening. With
 raised a remarkable £2,500 in a                                                   Gift Aid, the final total will be
 little over two hours.                                                            much higher.

 this year’s Ladies Captain, Pam
 Street (pictured above), selected
 BRACE as the charity for the club
 to support. Pam said, “A huge,
 big thank you to everyone who
 contributed to our wonderfully
 successful charity coffee morning.
 I couldn’t have done it without all
 my hard-working helpers and of
 course all the people who came
 and spent money.”
                                       We are grateful to the members               “They’re not all for
                                       of Stinchcombe Hill Golf Club in             me, honest…”
                                       Gloucestershire. They raised £3,169
                                       and Geoff Simms came to the BRACE            This was heard several times
                                       Golf Day to present the cheque.              by Lynn and Debbie as they
                                                                                    served delicious homemade
                                       Geoff says, “I have supported BRACE          cakes to their customers,
                                       for the past 15 years or so and latterly     many of them hospital staff.
                                       for the 10 years of the Golf Day. I was
                                       brought into supporting by my mother         Lynn, a dementia nurse who
                                       who carried out fundraising until she        works in the John James
                                       passed away a few years ago.”                Laboratories at Frenchay
 Our thanks to the organisers of the                                                Hospital, arranged the
 Bristol Beer Festival in March.        Photo: Geoff Simms brought Stinchcombe’s    cake sale and raffle as her
 They raised £479 for BRACE by              cheque to the BRACE Golf Day and        contribution to Dementia
                                               presented it to Kate Allenby         Awareness Week in July,
 asking customers to donate their                    and Alan Parsons
 unused beer tokens.                                                                raising £143 for BRACE.



 | BRACE                                                                              www.alzheimers-brace.org

Mais conteúdo relacionado

Newsletter Autumn2011 04

  • 1. newsletter Autumn 20 www.alzheimers-brace.org Schools’ Reduce An anniversary fundraising your risk on the horizon Local students take up the Benefit from the latest Find out what we’re planning challenge on page 5 research, see page 7 for our 25th year on page 11 A major new research project was launched on 1st June in The BRACE Centre at Frenchay Hospital. Major new research in The BRACE Centre A partnership between BRACE, Bristol into pharmaceutical trials Liz’s colleagues include Dr Judy Bristol University and North Bristol for patient benefit. Over the next Haworth, already well known to NHS Trust will fund a new dementia 5-10 years, we hope that dementia many BRACE supporters because of treatment clinic and related research will yield a range of her work in The BRACE Centre over research. BRACE’s contribution, effective medications, allowing a number of years, and Dr Margaret £571,000 over five years, funds the treatment to be tailored according Newson, clinical psychologist with research element of the project. to the needs of each patient. expertise in dementia. Liz has also gathered assistant clinical The new initiative will enhance “I am delighted to take on the psychologists, researchers and Bristol’s reputation as a leading challenge of developing dementia support staff to the Centre. centre of dementia research. care and research in Bristol. I hope that through high quality research BRACE Chief Executive Mark Poarch Dr Liz Coulthard, head of the new in Bristol, we can transform the says, “It’s great to see The BRACE unit and consultant senior lecturer outlook for dementia sufferers.” Centre really busy again – it’s in dementia neurology, hopes buzzing! It’s also very good for us the team will develop improved A new neurology dementia clinic as a charity to be sharing a building methods of diagnosis and eventually held in the BRACE Centre at with some of the researchers we medications to treat Alzheimer’s. Frenchay hospital, where patients support, because it enables us to with dementia will be accurately keep in touch with developments.” Liz says, “Work will focus on diagnosed and treated, will run translating the world class alongside the programme of clinical Liz tells more about this exciting preclinical dementia research in dementia research. new project on page 10. | BRACE www.alzheimers-brace.org
  • 2. Don’t miss Programme of Events Welcome to our new Chairman, the BRACE 20/202 Alan Parsons Autumn Fair SEPTEMBER SUN 11 Bristol Half Marathon The former Managing Director of Bristol Water, problem for health services around the world. If BRACE and its many supporters can help medical science SAT 24 Collection at Co-operative Portishead Alan Parsons, is the new defeat dementia, what a wonderful to be officially opened by THU 29 Fashion Show and Sale Chairman of BRACE. He joins achievement that would be.” Ali Vowles of BBC Bristol Greenfield Centre, Winterbourne, ten existing trustees and Bristol 7.00 for 7.30pm replaces Canon John Rogan, Alan graduated in physics but SAtuRdAy 8 OCtOBER then trained as an accountant and 10.00am to 12.30pm OCTOBER who remains a Trustee. developed a career in business. Newman Hall, Grange Court Road, Westbury-on-Trym SAT 8 Autumn Fair, Newman Hall, Westbury-on-Trym Alan, who recently stepped down BRACE Chief Executive Mark Poarch Many stalls including: Beauty Bath, Second-hand Books, 10.00am to 12.30pm as Managing Director of the utilities says, “Alan is a superb new addition Bric-a-brac, Cakes Jams, Collectables, Jewellery, FRI 21 SAT 22 firm, says he is honoured to be to our Board of Trustees. In his Plants Shrubs, Toys Games joining the charity. role as chairman, he will be able Collection at Sainsbury’s Kingswood The new range of BRACE Christmas cards and to help us find new ways to raise 2012 BRACE calendar will be on sale NOVEMBER He says, “I am delighted to be money and help win the fight SAT 5 Christmas Bazaar @ Linda’s joining BRACE, a regional charity against Alzheimer’s and other Refreshments available that has already achieved so much forms of dementia. With our 94 Worrall Road, Clifton 10.00am to 4.00pm and which has such an important strengthened team, we shall We look forward to seeing you! task ahead of it. Dementia is continue to develop as an important SAT 19 Christmas Market, With thanks to CJ Hole Henleaze for their a terrible illness and a major player in dementia research.” Greenfield Centre, Winterbourne, sponsorship of the Autumn Fair Bristol 2.00 to 5.00pm Friends in the north! DECEMBER SUN 4 BRACE Carol Service, St Mary Redcliffe Church TXT us £! 3.00pm you can now text a MARCH 2012 donation of up to £10 to SAT 24 3MC Three Mens Company BRACE from your mobile An evening of light entertainment phone. Messages are Although BRACE is a West Country charity, we receive help Bradbury Hall, Waterford Road, free on all networks and The Front Room Gallery story writing competitions, and support from friends further afield who hear of us Henleaze is an annual arts trail a balloon race and ‘guerrilla through family or find us on the Internet. We are very glad Details will be published in January BRACE will receive 100% held in Totterdown, ducks’. It will also include of their support! Update and on the BRACE website of the donation. Bristol and we are very artwork by the wonderful poet, comedian and Radio 4 MAY All you need do is text “ALZH25” pleased that this year it On Saturday 25th June, Helen Welton from Nunthorpe, favourite, John Hegley. TUE 22 BRACE Golf Day, and the amount (£10 or less) will be proudly raising Middlesbrough, held a fundraising garden party at her home in aid of BRACE. In the photograph you can see Henbury Golf Club to 70070. For example, money for BRACE plus The art trail takes place Helen, wearing a BRACE t-shirt, alongside her husband, THU 24 Big BRACE Anniversary Coffee Morning to donate £5 simply the Wallace and Gromit between Friday 18th and Richard Marbrow and friend and neighbour Julie, who St Monica’s Trust, Westbury-on-Trym text “ALZH25 £5” TO:70070 ‘Cots for Tots’ appeal. Sunday 20th November this helped on the day. 10.30am ALZH25 £5 year. For further details go ALZH 25 is the unique to www.frontroom.org.uk code for BRACE. Always exciting and full of Helen said, “Many of the items in the sale came from locally produced art, this Richard’s mother, Muriel, as she now lives with her Details of more anniversary events year’s trail aims to include Volunteers, artists and great You can also add ideas are always welcome! daughter since Alzheimer’s has made it impossible for her to follow on our website and in the Gift Aid. more music than ever, plus to live independently. Muriel has difficulty recognising January Update. animation, poetry and short Richard now but she is still keeping going. My husband’s father Norman Marbrow died from Alzheimer’s in 2001.” Watch out for Go on – this emblem! A very big thank you to Helen and her helpers for raising give it £200 for BRACE. For further information about any of the above a go! events please contact the BRACE Appeal Office 2 | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 20 |
  • 3. How a protein may hold the key to Alzheimer’s Research that could help medical science defeat Alzheimer’s disease is happening just a mile from the BRACE charity office. dr Myra Conway and BRACE funded Phd researcher Jonathon Hull are based at the University of the West of England (UWE). Their work centres on a substance called Following a successful post-doctoral period of 5 years Myra was appointed as Lecturer in Clinical Biochemistry at the university of Brighton in 2003. Opportunity Schools’ Fundraising glutamate, which occurs in the brain and is necessary knocked and shortly afterwards Myra was appointed as Following an approach the Concorde Partnership organised The students were then given this fundraising ‘challenge’ for Year BRACE T-shirts and let loose to for memory and learning. However, if an imbalance Senior Lecturer in Biomedical Science at UWE, where she from the Concorde 12 students from three partner discuss their ideas! occurs, glutamate can become toxic to brain cells. has been developing her research and continues to lead and lecture in Clinical Biochemistry. Partnership earlier secondary schools – Abbeywood, Two days later we returned to Bradley Stoke and Patchway. Myra says, “Levels of glutamate are regulated by a this year 25 students This was part of a wider menu of the school to find they had raised protein called hBCAT. Jonathon’s research has already Currently, Myra is director of Studies for 4 Phd students, shown that this protein is far more common in the brains 1 research technician, 8 undergraduate research students from Bristol spent activities to enable them to gain £519.83 by holding a number of valuable experience in different events including a raffle, car wash, of people with Alzheimer’s, and this could be causing and 1 MSc student. Several of these projects are in joint two days in July fields aimed at broadening their swimathon, name the bear and dangerously high levels of glutamate.” collaboration with dr Katy Chalmers, Prof Seth Love and dr Pat Kehoe at the South West dementia Brain Bank. fundraising for BRACE. horizons while giving them a cake sale. This research, funded by BRACE, could help to identify competitive edge over other university/job applicants. We are hoping that this “biomarkers”, the clues that doctors need to identify the Our research scholar, Jonathon Hull, comes from Essex collaboration will continue and disease as early and accurately as possible. To read more and completed his undergraduate degree in Biomedical 23 students from Bradley Stoke look forward to working with these about Myra and Jon’s research, please see the Research Science at uWE. Jonathon achieved a first class honours Community School and 2 from schools, the Concorde Partnership Update published as an insert of this Newsletter. degree and the highest mark recorded for his year group, Abbeywood School chose charity and other students in the future. which was recognised by the Oxford Press prize Myra comes from Cork city in Ireland and achieved a first at graduation. fundraising as their activity. Our thanks to Susan and Ashley for class honours degree in Biochemistry and completed her Day one started with talks by Susan giving their time to speak to the Phd at the university of Galway, Ireland. In 1998, Myra This project began in June 2010 after BRACE had awarded Marshfield (BRACE trustee) about students and to all the teachers and travelled to the US to take a post as a Research Fellow at a grant for Phd research directed by Myra. the role of BRACE and Ashley White, students involved in fundraising. Wake Forest University Medical Center, North Carolina, who talked about how she and her Well done! where she first started work on the hBCAt proteins. friends had raised funds for BRACE. | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 20 |
  • 4. Christmas with BRACE Confirmed events at which all our cards (subject to availability) and You can reduce your risk of dementia! the calendar will be available are: FASHION SHOW Greenfield Centre, Park Avenue, Winterbourne Though anyone can develop dementia, you Thursday 29 September 7.30pm can reduce the risk by the way you live. The BRACE AUTUMN FAIR earlier in adult life you can start applying the Newman Hall, Grange Court Road, following principles, the greater their impact is Westbury-on-Trym likely to be. This is one way in which the fruits Saturday 8 October 10am-12.30pm of research can help you today. St PEtER’S HENLEAZE CARd SALE St Peter’s Church Hall, Henleaze Saturday 15 October Here are some top tips based A good diet. 10am to 12noon on what researchers have The “Mediterranean diet”, been telling us. with plenty of olive oil, fruit, BACKWELL CARD SALE fresh vegetables and fish is Parish Hall, Backwell Take regular exercise. beneficial. Foods high in folic acid, Saturday 22 October This is the single best way to cut antioxidants and omega 3 are 10am to 12noon your risk of dementia, perhaps by helpful. Specific foods that have as much as 45%. Exercise for half been suggested as good for the From 1st November at an hour three times a week, brain include turmeric and HAIGH ANd SONS or do enough exercise to leave sage. Eating lots of food Estate Agents, North View, you slightly out of breath. high in saturated fat, Westbury Park, Bristol This does not have to however, is not a good This year our calendar and Son, Estate Agents, North View, (open Monday-Friday 9am-6pm be anything extreme Westbury Park from 1st November idea. A study of 815 celebrates the great (Open Mon-Fri 9am – 6pm and Sat and Saturday 9am-5pm) – brisk walking is generally people over the age engineer Isambard 9am – 5pm). beneficial, for example. of 65 years in Chicago CHRIStMAS BAZAAR @ LINdA’S The more frail a person is, suggested that eating Kingdom Brunel and, for 94 Worrall Road, Clifton the more the exercise is Please order early. We often sell fish regularly can the first time, includes out of the calendar and the most Saturday 5 November likely to help them. Even significantly reduce the photographs from popular designs of cards. 10am to 4pm 15 minutes walk, three times risk of Alzheimer’s. a week is enough to produce outside Bristol. BRACE cards and calendar will PORtISHEAd CARd SALE a positive effect. This is true Keep your brain be on sale at many BRACE events Somerset Hall, High Street, even in the over 65s. active. A number of people have leading up to Christmas, see the list Portishead Keeping socially, physically contributed to this calendar and we to date on the right. Alternatively Saturday 12 November Watch your weight. and mentally active will help are grateful to them for allowing us they will be available for purchase 10am to 12noon Recent research suggests that you, even in old age. Having to use their photographs. We hope online by visiting our shop page at being obese or even moderately an active social life in old age you enjoy it! www.alzheimers-brace.org/BRACE_ dOWNENd SCHOOL FAIR overweight in middle age can is an important part of a defence Shop.htm Downend School increase your risk enormously. strategy, but you can also create We also have Saturday 19 November A 27-year study of 10,000 people new links in the brain by mental a much larger If you would like more information 11am to 3pm found that obese people in their activity such as learning a new selection of about BRACE, our forthcoming 40s were 74% more likely to develop language. A US study has suggested Christmas cards events, or would like to volunteer CHRISTMAS MARKET dementia compared to those of that the risk of developing this year due to to help with our fundraising, normal weight. Alcohol in moderation. Alzheimer’s disease is more than Greenfield Centre, Park Avenue, increased demand, please contact: A glass of red wine every day Winterbourne doubled in lonely people. led as always by the BRACE Appeal Office, Saturday 19 November Don’t smoke. can help cut your level of risk, Brian Sanders’ card Smoking is quite simply not good for but excessive drinking is not good In general, the advice is – if it’s Frenchay Hospital, Bristol BS16 1LE 2pm to 5pm which this year depicts Bathurst you, and dementia is yet another for your brain. A recent study good for your heart, it’s good for Telephone: 0117 340 4831 serious condition made more likely suggested that heavy drinkers and Basin, City Docks, Bristol. CAROL SERVICE your brain. The advice we all hear Email: by the habit. Among people smoking teetotallers were both more likely about keeping our hearts healthy is St Mary Redcliffe Church, Bristol You will be able to buy your cards admin@alzheimers-brace.org 40 or more cigarettes a day, the than light drinkers to develop worth following for the sake of our Sunday 4 December 3pm and calendars at the BRACE Appeal Website: risk of Alzheimer’s is claimed to be cognitive problems. brains, too. Office (available now) and at Haigh www.alzheimers-brace.org 57% higher. | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 20 |
  • 5. £2,2.00 £.00 £0.0 £,00.00 Running totals... Photos from the left Emma Cook, husband and friends at the top £,00.00 of Snowdon | Sue Martin | Dan and George | Hannah and Vicky £,. Vicky Ledbury wanted to do that Joe was watching down, proud alongside the 21 mile mark and Max Peters had to withdraw due It was last year that Amanda something in memory of her father- of what I was doing, that kept me saw the elite men run past looking to a knee injury but his generous Nethercott made the decision to in-law Joe, who passed away in going to the end. It was one of the fresh as a daisy! It was only a mile supporters still sponsored him to get fit. She took up running with March last year quite unexpectedly. most amazing experiences of my or so later that the heat of the day the tune of £1,119.51. Neil Drew a goal of doing a 10k in less than In the last months of his life he life and one I would go through started to get to me. At mile 22 I was also unable to get to the start an hour and achieved this in the was badly affected by dementia again to raise more awareness of was really struggling but found some line due to an accident a couple Bristol 10k in May, and at the same £,.00 and Vicky said she wanted to raise the work that BRACE does.” energy from somewhere to carry of days before the marathon in time raising funds for research in awareness of the impact that the me through to the end. Crossing which he fractured his ankle but Alzheimer’s after her grandmother disease has on family members and Hannah Clark, who raised £986 the finish line was very emotional; had already secured sponsorship of sadly had to be put in a care home to know that the money she raised, sponsorship, said of the day, “I the crowds were terrific all the way £1,645.00. Both Max and Neil are when the family could no longer which incidentally amounted to found the London marathon such an round and really made my day!” hoping to be fit to run in the 2012 cope. Her initial aim was to raise £0.00 £2,121, would be used locally. amazing experience and one I will London Marathon. £500 in sponsorship but to Amanda’s never forget ....from all the crowds “I really enjoyed the marathon” delight (and ours) the final figure Vicky said, “I was very lucky to and supporters cheering everyone said Sue Martin. “It was hard Others who have taken part in was £1,314. have the opportunity to run this on, to the other amazing runners work and hot, but I did it and I am sponsored events this year include year’s London Marathon for BRACE. all running for brilliant causes. grateful to BRACE for giving me the Belinda Morley and her husband Also taking part in the Bristol 10k I met Hannah, one of the other My legs hurt but just getting that place and experience. We all know who raised £130 when they ran in were friends Daniel and George £.00 BRACE runners, in the long queue medal at the end made them hurt what an overwhelming condition the Bath Half Marathon in March. who said of the run “The 10k for the start line which gave me less! Throughout the day I had my dementia can be and how it can Also in March, Emma Cook and was amazing; we really enjoyed a real boost as I was feeling quite great aunt in mind as she had been impact on those that are affected her husband Mark, together with ourselves and finished in quite a emotional before the start, thinking diagnosed with Alzheimer’s and was by it, their families and friends. I friends Rich and Ryan, climbed up good time too!” Daniel and George a lot about the challenge ahead and the main reason I wanted to raise am proud to have run for BRACE in Mount Snowdon raising £435.00. raised a very welcome £647 for the reasons why I was doing it. The money for BRACE, knowing every the London Marathon as I know that Emma said “Sadly my Nan passed BRACE. £,.00 first ten miles weren’t too bad but penny raised really is going to make the money raised from my generous away when I was 16 after a long then an old injury really played up a difference for others.” supporters is being put to good battle with Alzheimer’s. I wanted We are grateful to everyone who which lead to me having to walk use.” So far Sue has raised £1,070. to help to raise some money so has supported us by taking part in most of the second 13 miles! Going Matthew Hunt ran in memory of his hopefully one day there will be a a sponsored event, raising much over Tower Bridge was an amazing girlfriend’s granddad who died from Sebastian Hobbs was following in cure and no-one else will have to needed funds for BRACE. If you £.00 experience as everyone on the Alzheimer’s. He raised £703.50 and the footsteps of two of his work suffer with this terrible disease. I would like to do the same please Bridge was cheering us on so that said “I had an amazing day. One of colleagues who had run for BRACE really do hope my fund-raising will contact us at the BRACE Appeal gave me a massive boost and it the highlights for me was getting in previous years. Sebastian raised make a difference.” Office for a sponsor pack – we will was that memory and the thought to 13 miles where the route runs raised £1,030 in sponsorship. be very pleased to hear from you. | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 20 |
  • 6. Building up to our silver anniversary! BRACE is 25 years In the 1980s, a small and determined However, we can tell you that the big group of volunteers was raising funds as event is likely to be at the Tobacco Factory Major new research in The BRACE Centre old in September 2012, and we want to celebrate our the Friends of Age Research (Bristol), a local branch of a national charity. This in Bristol in September. Plans are still being formulated, but we would like to thank group, which was chaired by Mary Sansbury the management of the Tobacco Factory Continuing our cover story on this several different types of memory including very short silver anniversary and included Dr Brandon Lush, Senior for their generosity in offering us the use term or working memory and longer term memory. We exciting new research, Liz Coulthard are using computerised cognitive tasks to study the in style! There Geriatrician at Frenchay Hospital, decided of the theatre. You can also make a note explains what the project involves: way in which patients retain memory over time and will be some that it wanted to devote its efforts to in your diary for a lively concert on 24th how this could be improved using medication. special events supporting locally based research. The March. See Programme of Events on page 2. throughout the opportunity to do this was provided by the Several different streams of clinical research are planned focussing on Alzheimer’s disease and other Further studies will be based on the preclinical, laboratory-based work of the Dementia Research year and we hope work of Professor Gordon Wilcock at Bristol university. On 24th September 1987 the 3 ways you can dementias. Each research study involves asking Group, run by Professor Seth Love and dr Patrick to make 2012 a charity was founded, with Gordon Wilcock, help make 2012 our patients and volunteers for their informed consent to bumper year for Brandon Lush, david Pockney and John take part. At the heart of the research program is a Kehoe. Their work has demonstrated that blood vessels are affected early in the course of Alzheimer’s fundraising. Rogan as its first trustees. best ever year research register where details of willing patients and disease. We plan to study the possible beneficial 1. Ask us for a standing order form so healthy volunteers are recorded. Using the register, effects of agents that can protect blood vessels and Beating Alzheimer’s was never going to be that you can make a monthly donation. we can then identify and contact participants are already used safely to treat high a short-term task. Enormous progress has Regular giving helps us plan. If you suitable for a given study. Patients recruited onto “patients can blood pressure. In addition there is been made by medical science in the last are already a regular donor, could you the research register and into studies will come the opportunity to help with the early quarter of a century and BRACE has played primarily from the new neurology dementia clinic take part in increase your donation? If you currently stages of stem cell research already a significant role. However, there remains pay income tax, you can also increase in the BRACE centre. research in underway in Bristol and Bath. much to be done and the growing numbers the value of your donation through Gift of people with dementia make our task all Patients are referred to the cognitive neurology a familiar In order to measure the effectiveness the more urgent. Aid (at no extra cost to yourself). and dementia clinic by GPs or other hospital environment” of treatments, we are going to 2. Give us your time! We need people consultants who suspect that they might have perform repeated psychology tests, There are ways that you can help make to help with collections, take part in some form of dementia. The clinicians then carry as well as detailed brain imaging. 2012 a great year for BRACE and for the sponsored events, and help at sales and out tests to establish what their symptoms mean Repeated volumetric MR imaging of the brain can tell fight against dementia. other events. and, if the cause is dementia, try to establish which us how much the brain shrinks over time and we can form of dementia is involved. Patients attending the measure any benefit of the trial drugs on brain volume. Next year’s events are still being planned 3. Ask your employer/school/church/ clinic are asked if they would like to be entered onto We are building strong links with the Clinical Research and we cannot give you all the details yet. club to join our Silver Service and pledge the research register. Much of the research is based in and Imaging Centre (CRIC) in the University of Bristol The information will be published on our to raise at least £500 for BRACE in 2012. The BRACE Centre ensuring that patients can take part and the medical physics departments of North Bristol website and in the next update (January) Contact us for details. in research in a familiar environment and research and Trust and University Hospital, Bristol, in order to and spring Newsletter (April). clinical care are closely allied. develop high quality image analysis both for clinical and research work. Planned research projects will look both at the underlying problems experienced by people who have Over time we hope to develop a portfolio of studies dementia and also how therapy can be targeted to each designed to improve understanding and treatment individual patients. Our first studies are investigating of dementia. how memory can be affected in dementia. There are 0 | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 20 |
  • 7. The annual Golf Day BRACE Golf Day 20 I feel as though I have known about BRACE forever – but it is has become a major really only about 20 years. My fixture in the BRACE first knowledge came when I calendar. This was the was visiting an aged terrapin building at Blackberry Hill tenth time the event Hospital for my husband’s tests has been held, and in and follow up after he had been diagnosed as having Alzheimer’s total has raised over disease. He died in 1993. £50,000. We are very grateful to Roger and Pat Higgins and all the other volunteers who work with them to make the Golf Day possible. A volunteer’s story by Susan Marshfield Because of all the work that Roger Everyone has their own way of dealing Pat Whitby Strevens, to “help out” with has done over the years, it seemed with death. My work was my salvation BRACE. I have been “helping out” with fitting that he and the other “BRACE – I loved it. One day my boss said he had BRACE ever since! It has its rewards; Boys” were the winners this year! been visited by the chairman of BRACE, the satisfaction of seeing the amount who was looking for some free manpower of research the charity is now able The prizes were presented by to organise a business event raising to fund, the wider knowledge of the Olympic medallist Kate Allenby, who awareness of the charity. Because he disease nationally, as well as our part in won bronze in the modern pentathlon knew of my experience he said he was promoting knowledge locally. PLuS our in Sydney in 2000. Kate also gave an happy for me to take it on if I was willing, input into the Memory Disorder Clinic, the amusing and inspiring speech. using the facilities of the workplace, my Brain Bank and the laboratories, for which PA etc. So I became a BRACE volunteer! we have to thank the John James Trust, Another highlight, on a day when a another great Bristol institution. A far cry strong wind made driving difficult, Thanks to the help of some great Bristol from the old terrapin. was a hole in one achieved by James companies - Bristol Blue Glass and Hodder of the Rolls Royce team. Aardman Animation to name but two - the I was rewarded with a seat on the event was staged at Merchant Venturers Board as a trustee – the first female, I A poignant moment came during Hall. My biggest fear? Not that it would might add. I am also rewarded by being the presentation to the winning fail or that nobody would come, but that recognised by lots of people who now team. One of the team members, something might happen to Aardman’s know me and quite often expect me to Ivor Williams, dedicated the win to “Creature Comforts” animals which were shake a tin or sell them something from the memory of Dr David Dawbarn, a on loan! BRACE. My sons expect me to frequently greatly respected research scientist be “doing something” for BRACE and even at Bristol University who died When I retired, I was approached by my grandsons now play on the Golf Day. suddenly in 2010. Ivor had taught Richard Lalonde, the then chairman, David at Bath University. to join with him and Mary Sansbury, When asked if you will volunteer, give it together with Professor Wilcock and the serious thought and, if you can – do it! We look forward to the next Golf much overworked part time secretary, Day on 22 May 2012 and invite early expressions of interest in taking part. Photos from top: Competition Winners Portishead Flower Show James Hodder and the Rolls Royce team Our latest winners are Mrs A Holden Country Fair after James’ hole in one from Westbury-on-Trym who won Kate Allenby presents the winners’ the Stationery competition in our Carole Jenkins and trophies to The BRACE Boys (l-r, David Spring newsletter. The winner of Betty Harris on the Macbean, Ivor Williams, Steve Lucas, Kate BRACE stall which, Allenby and Roger Higgins) the Gemstones competition will be announced in our next newsletter. as well as raising Volunteers at work on the scoreboard £347.85, won second Kate Allenby with new BRACE Chairman Our latest competition is enclosed. Alan Parsons prize for the best non- Good luck! trade exhibit. General view of the course 2 | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 20 |
  • 8. Take an adventure in Kenya… for BRACE KenyanAventure is a travel People who travel on their tours If these dates are not possible for company with a difference. spend some of their holiday you, it is also possible to organise helping local people on community your own trip in support of BRACE. Charitable Gifting on Death As well as providing the sight seeing opportunities and relaxation most people projects. The company wants to help You would probably be travelling with individuals supporting a range of other charities. In April 2011 George Osborne announced This is good news for Charities. It is expect from a holiday, charities in the UK as well, by giving its customers the option of raising For further information about this in the Budget Speech that the designed to encourage us to remember it sets out to help local Government will introduce for deaths our favourite causes in our Wills. The sponsorship. KenyanAdventure remarkable opportunity, please see communities in Kenya. has chosen BRACE as one of its http://www.kenyanadventure.com/ occurring from 6th April 2012 a reduced reduction in the Inheritance tax rate rate of Inheritance tax of 36% where a means that a large charitable gift will supported charities and is inviting brace.html or ring 0845 862 1381. person leaves 10% or more of their net have a much smaller impact on your people to support BRACE through a assets to a charity or charities. beneficiaries where the estate is liable trip that will take place from 12th to Inheritance tax. to 23rd March 2012. George Osborne stated “do the right Jenny Pierce, a legacies thing for Charity and the Government will do the right thing by you”. George Osborne and the Government very much want it to become the norm that we leave 10% of our wealth on BRACE Donation Form specialist with Currently any gifts to Charity in your death to Charity. This is part of the Please find enclosed a donation of £__________ to BRACE. Wards Solicitors Will do not incur Inheritance tax. vision for the Big Society. in Bristol, looks If a person’s estate is liable to The precise details of the changes to the FULL NAME Gift Aid Declaration Inheritance tax then after deducting at the likely exemptions and reliefs any excess sum tax rate are currently being thrashed If you are a uK taxpayer and complete the form below, out. The Treasury are putting together ADDRESS BRACE can recover at least an additional 25p for every pound impact of this (the net estate) is taxable at 40%. a consultation paper. The consultation donated, through the Government’s Gift Aid scheme – at no extra cost to you! year’s budget. So where your estate is subject closes on 31st August this year. I am a uK taxpayer and want BRACE to treat the following to Inheritance tax every £100 left A charitable gift post April 2012 reduces donations as Gift Aid donations: to Charity will reduce the amount what your beneficiaries receive but by • this donation Yes No remaining for the beneficiaries but will significantly less than under the current • all donations I make from the date of this declaration onwards (until I notify you otherwise) as Gift Aid donations Yes No also reduce the Inheritance tax on the Inheritance tax regime. • this and all past donations I have made Yes No estate by £40. Currently the effective cost of the legacy to Charity to the These measures are to be welcomed as I confirm that I am a uK taxpayer, resident in the uK for tax remaining beneficiaries is £60 per £100 it will encourage charitable gifting. It purposes and that I will advise BRACE if this situation should change. gifted. is vital if you are thinking of leaving a gift to Charity in your Will that you take From April 2012 if 10% of your net estate SIGNED professional advice from a specialist is given to Charity, the effective cost of Solicitor. POSt COdE DATE the charitable legacy to the remaining beneficiaries of your Will is only £24 per Jenny Pierce, Thank you for your donation. Please tick this box if you would like to receive a written acknowledgement: £100 gifted if you have a taxable estate. Wards Solicitors July 2011 Please return to BRACE Appeal Office, Frenchay Hospital, Bristol BS16 1LE | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 20 |
  • 9. News in brief... Bristol Barons Ball chose BRACE Members of Saltford Golf Club as its charity at the end of held a charity coffee morning in 2010 and raised over £3,000 aid of BRACE on 3rd March - and for us in one evening. With raised a remarkable £2,500 in a Gift Aid, the final total will be little over two hours. much higher. this year’s Ladies Captain, Pam Street (pictured above), selected BRACE as the charity for the club to support. Pam said, “A huge, big thank you to everyone who contributed to our wonderfully successful charity coffee morning. I couldn’t have done it without all my hard-working helpers and of course all the people who came and spent money.” We are grateful to the members “They’re not all for of Stinchcombe Hill Golf Club in me, honest…” Gloucestershire. They raised £3,169 and Geoff Simms came to the BRACE This was heard several times Golf Day to present the cheque. by Lynn and Debbie as they served delicious homemade Geoff says, “I have supported BRACE cakes to their customers, for the past 15 years or so and latterly many of them hospital staff. for the 10 years of the Golf Day. I was brought into supporting by my mother Lynn, a dementia nurse who who carried out fundraising until she works in the John James passed away a few years ago.” Laboratories at Frenchay Our thanks to the organisers of the Hospital, arranged the Bristol Beer Festival in March. Photo: Geoff Simms brought Stinchcombe’s cake sale and raffle as her They raised £479 for BRACE by cheque to the BRACE Golf Day and contribution to Dementia presented it to Kate Allenby Awareness Week in July, asking customers to donate their and Alan Parsons unused beer tokens. raising £143 for BRACE. | BRACE www.alzheimers-brace.org