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Scouting for Youth
   With Disabilities
     Part IX F-I
Understanding Categories of Disabilities
         and Best Methods
        Presentation prepared by Lindsay Foster
          Doctoral Dissertation Candidate 2011
        Longhorn Council, Boy Scouts of America
Emotional /
Behavioral / Social
  Impairments
Overview




The Boy Scouts of America wants to include youth who have
emotional and behavior disorders. Many units have welcomed
youth who have emotional difficulties. Scouting units have
also been organized at treatment centers and hospitals and
have become meaningful parts of the treatment program.
Many young people with emotional difficulties have benefitted
from Scouting.
The “Unseen” Disability




Emotional disorders are thought by some to be “unseen”
disabilities. They cannot readily be seen as can
blindness, mental illness, or a physical disability. So, since
sometimes there is no warning of a behavioral episode, adults
can be startled by the actions of a child who finds it hard to
cope with his inner feelings.
Why?


                                                  For these
Behavior                                    youth, misbehavior is
problems                                         an outward
can stem                                      expression of an
  from:       Conflicting   Learning
              Emotions      Difficulties      inward emotional
                                                  problem.



                                            Learned
           Improper
                            Life Patterns   Behaviors
           Coping Skills
                                            from Home
Reactions


Young people have their own ways of overcoming barriers
and having their needs met:


        Some withdraw and say they do not care.



        Some daydream or fail to pay attention.


        Some give up since they see no point in
        continuing to strive when needs are never
        met.
Additional Reactions


                  Violent behaviors such as:
                  • Reckless property damage
                  • Physical attacks on others
                  • Malicious mischief




                  Non-violent behaviors such
                  as:
                  •    Lying
                  •    Stealing
                  •    Setting fires
                  •    Refusing to learn
                  •    Overeating
Language of Behavior




The way a child is treated determines in part how he sees
life and how he regards himself. The world can be viewed
as safe and nurturing, or it can be seen as dangerous and
frightening. If a child is cared for, loved, and accepted, he
can see himself as worthwhile and loveable. If a child can
      accomplish and achieve, he can see himself as
                           competent.
Trust



  Facets of Trust
   •    Trust in the environment
   •    Trust in people
   •    Trust in the future
   •    Trust in oneself
  Be Aware
   • Of making promises that may not be fulfilled
   • Of responsibility to follow through on promises
Why Scouting for Youth With Emotional Disabilities



       Youth want a sense of
       belonging.


        Youth want to achieve.


         Youth want to be recognized
         for achievement.
Planning Activities for Disability-Specific Youth With
Emotional Disabilities
Special Leadership Needs



•Competitive activities should be avoided unless a member
unless a member can compete against his own past
achievement rather than the achievement or skill of others.
•The leader should always remember that the level of
interest and participation of members will vary greatly from
activity to activity.
•The Scouting leader and unit committee must be very
active in helping to plan and evaluate the program activities.
•The goals of Scouting must be understood, and the
planning process and activities adapted to fit the abilities of
the members in the unit.
•Members may need individualized help with reading or
other requirements.
Special Leadership Needs continued
Special Leadership Needs Plan For Success


1. Keep precise and accurate records, especially of
   advancement.
2. Use official Scouting equipment. It is the best available.
   (It is especially important that members have official
   BSA uniforms.)
3. Seek advice from leaders presently working in Scouting
   with youth with emotional disabilities.
4. Follow the program guidelines in the Troop Program
   Features, Cub Scout Program Helps, and the Webelos
   Leader Guide.
5. Develop and use the patrol method (see the
   Scoutmaster Handbook).
6. Keep the “outing” in Scouting.
A Community Unit


 Many community units have members with
 behavioral or emotional problems.
 The leader’s attitude toward a child with emotional
 disabilities is most important. If the leader shows
 acceptance, if he show that he considers the child as much
 a participating member as any other, if se shows he expects
 the same participation (with some support), then the other
 members are likely to react similarly.
 Although the unit leader must set the example and be
 accepting of a member with a disability and be enthusiastic
 about helping him, he must, at the same time, fully
 appreciate the special demands that will be made on his
 patience, understanding, and skill.
Emotional / Behavioral / Social
            Disabilities
What You Should Know About Youth with
        Emotional Disabilities
Scouting Opportunities




Advancement should be guided according to the individual ability of each boy.

Scouting for emotionally disabled youth should not be watered-down Scouting.
Rather than lower the standards, more leaders should be recruited to increase
the individual help each child receives as his needs require.
The Outdoor Program
The Outdoor Program 2

Fresh air and exercise are obvious
benefits of a good outdoor program, but
other benefits are:


                                                                                                                                                             An opportunity to take
                                                                               An external orientation
 A variety of success                                A method to help the                                   Situation in which                                   advantage of a
                                                                                  that can provide
oriented activities that    Many opportunities       boys feel a part of the                             structure can promote      A cohesive program          number of task-
                                                                                   alternatives to
    can be chosen          and program ideas for     world at large, rather                              feelings of security in   that can build feelings    oriented activities to
                                                                                anxieties, disordered
according to individual    “off-ground” activities   than just residents of                                a non-institutional         of self-esteem        build cooperation and
                                                                               thinking, and feelings
        needs                                             an agency                                              setting                                     other social skills in a
                                                                                    of self-defeat
                                                                                                                                                                 group setting.
Leadership Development
Personal Growth
Physical
Disabilities
Physical Disabilities
Types of Physical Disabilities
Some Types of Physical Disabilities – Cerebral Palsy


           Definition                  Characteristics               Additional Information

 • A condition caused by        • Spastic – stiff and difficult   • Nearly all will have speech
   damage to the                  movement                          & language difficulties
   brain, usually occurring     • Athetoid – disturbed            • More complex trouble
   before, during, or shortly     sense of balance                  related to injury of the
   following birth              • Combination                       speech formation centers
 • Neither progressive nor      • Characterized by an               in the brain
   communicable                   inability to fully control      • May also have difficulty
 • Not curable                    motor function                    with drooling
 • Not a disease                                                  • About 2/3 have visual
 • Ranges from mild to                                              handicaps
   severe                                                         • Usually take an
                                                                    anticonvulsant during the
                                                                    day
                                                                  • About 2/3 have some
                                                                    degree of mental disability
Some Types of Physical Disabilities – Progressive
Muscular Dystrophy

                                                    Additional
       Definition          Characteristics
                                                   Information
  • Encompasses a       • Should not be       • Youth with this
    group of              permitted to          condition should not
    progressive           become tired but      take part in any
    muscular diseases     should have some      Scout activities that
  • Characterized by      exercise              result in excessive
    progressive         • Begins between        fatigue
    deterioration of      ages of 2 and 10
    skeletal              (most common
    muscles, cause        type)
    unknown             • Progresses from
                          lower trunk, hips
                          and legs up the
                          trunk
Some Types of Physical Disabilities – Progressive
MuscularAtrophy

                                                 Additional
        Definition           Characteristics
                                                Information
  • Covers a number        • Widespread
    of poorly                muscle weakness
    understood
    neurological
    diseases
  • Characterized by
    either failure to
    develop or the
    progressive
    degeneration of
    certain cells in the
    spinal cord
Some Types of Physical Disabilities –Spina Bifida



        Definition              Characteristics        Additional Information

 • Birth defect             • 1 type may only be       • Urinary problems are
   characterized by           detected by x-rays         common
   failure of several         and causes no
   vertebrae to develop       disability
   and enclose the          • 2 out of every 1000
   spinal cord                live births results in
 • Results in two small       spina bifida minifesta
   spines, one on either    • Skin of lower limbs is
   side of the midline of     not sensitive to
   the back, rather than      pain, touch, or heat
   one running down
   the center
Some Types of Physical Disabilities – Heart Defects


      Information             Form 1                Form 2

  • Pumps 103, 680      • Developmental       • Flaws in the
    times per day in      defect which          valves, usually
    the average 12        diverts the           from rheumatic
    year old              bloodstream           fever
  • Otherwise             either into wrong
    appears to be         channels or
    normal                creates unusual
  • Heart disease in      resistance to
    children              blood flow with a
    generally takes       corresponding
    one of two forms:     increase in the
                          heart’s workload
Some Types of Physical Disabilities – Limb Deformities


         Information                     Amputations

  • Birth deformities are         • Caused by surgery or
    rare                            serious accident
  • Usually involves the          • While similar to a
    absence or partial              Scout with a birth
    development of one              deformity, may have a
    or more bones of the            stronger emotional
    limb                            reaction during
                                    adjustment to his
                                    disability
Some Types of Physical Disabilities – Epilepsy




         Definition               Characteristics                   Types                     What to Do

 • A physical condition      • Blackouts or periods of    • Generalized (all brain     • Gently move him to a
   that occurs when there      confused memory              cells)                       side-lying position
   is a sudden, brief        • Episodes of staring or       • Convulsions with         • Do not restrain his
   change in how the brain     unexplained periods of         complete loss of           movements
   works                       unresponsiveness               consciousness            • Do not douse him with
 • Brain cells are not       • Involuntary movement         • Brief period of fixed      water or slap him
   working properly            of arms and legs               staring                  • Do not place a finger or
   resulting in a loss of    • Fainting spells with       • Partial (some brain          object between his
   consciousness, altered      incontinence or              cells)                       teeth
   movement or altered         followed by excessive        • Periods of “automatic”   • Remove nearby objects
   action                      fatigue                        behavior and altered       that might injure him if
                             • Odd sounds, distorted          consciousness              he should hit them
                               perceptions, or episodic   • Grand Mal
                               feelings of feat that      • Focal
                               cannot be explained
                                                          • Petit Mal
                                                          • Psychomotor
Some Types of Physical Disabilities – Brain Damage




                  Characteristics                                 Additional Information

 • Outwardly appears normal, may have seizures or   • May have coordination problems that limit
   convulsions as children with cerebral palsy do     functional abilities
 • May be difficulty in
   comprehension, learning, behavior, speech, and
   hearing
 • Often is hyperactive, nervous, restless, and
   moves compulsively with no apparent purpose
Some Types of Physical Disabilities – Down Syndrome


                                                                          Health Related
      Definition            Incidence             Characteristics
                                                                            Problems
 • The most common     • 1 in every 800 to     • Poor muscle tone       • Lowered immune
   and readily           1000 live births in   • Slanting eyes with       system
   identifiable          the U.S.                folds of skin at the   • Visual problems
   chromosomal         • Occurrence is           inner corners          • Hearing problems
   condition             higher in             • Hyper flexibility      • Speech difficulty
   associated with a     pregnancy for         • Short broad hands      • Heart defects
   mental disability     women over 35           with a single            (approximately
                       • Most common             crease across the        1/3)
                         forms do not occur      palm on one or         • Atalanntoaxial
                         in a family more        both hands               instability
                         than once             • Broad feet with        • Obesity
                                                 short toes
                                                                        • Mental disabilitie
                                               • Flat bridge of the
                                                 nose
                                               • Short, low-set ears
                                               • Small head
                                               • Small oral cavity
                                               • Short, high pitched
                                                 cries in infancy
Some Types of Physical Disabilities – Diabetes




         Definition                    Types                    Questions to Ask

 • A disorder in which the   • Type I                      • Does the Scout
   body fails to make          • May be controlled by        administer insulin
   proper use of                 diet                        himself?
   sugar, and so the sugar     • Given                     • Will Scout adhere to
   accumulates in the            medication, insulin, by     diabetic diet, particularly
   blood and often passes        injection                   on camping trips?
   in the urine                                            • What is the Scout’s
                             • Type II
                               • May be controlled by        medication schedule?
                                 diet                      • What should be done
                                                             for insulin shock?
                                                           • What are the symptoms
                                                             of insulin reaction?
Scouting For a Youth in a Special Unit




                              The fact that Scouting is     Scouting is based upon
 Scouting is geared to the    a worldwide movement            the high ideals and
   abiding interests of       gives breadth and depth          purposes that are
          youth.              to belonging to a Scout      necessary to rich living in
                                       group.                   a social world.


                                                 Scouting permits
                                             children with disabilities
                 Scouting has a strong
                                            to work closely with other
                dedication in service to
                                              boys and girls toward
               others and to community.
                                               common goals and
                                                      ideals.
Needs of Youth with Disabilities
Emotional Problems



  •Physically disabled youth do not come in a single
  mold, any more than other youth do.
  •Youth with disabilities may have more difficulty adjusting to
  society.
  •Youth with disabilities may sense feelings of pity or
  rejection by others, and they may respond to them by:
      • developing feelings of inferiority,
      • becoming more timid, or
      • overcompensating and becoming more aggressive.
The Physical Benefits of Scouting


     One of the Scouting movement’s
 principal goals is mental and physical
  fitness, and disabled youth derive at
   least as much physical benefit from
       Scouting as do other youth.

     As leaders are not physicians or
therapists, the Scout leader should plan
 a full agenda of Scouting activities with
    no regard to therapy; the physical
            benefits will follow.
Placing Youth in Scouting

                         Youth with a         Vernon
                           disability      Mallinson in
                            should        None Can Be
                                              Called
          Will the        become a          Deformed
         Scout do          Scout in        asserts that
                          whatever        children with
         better in      type of unit is
                                            disabilities
                                             should, if
         a special      available or is   possible, soci
           unit?             most           alize with
                                           nondisabled
                         appropriate.        children.
Why Scouting for Youth With Physical Disabilities?




“The disabled child has a right to grow up in a world which
does not set him apart, which looks at him not with scorn or
   pity or ridicule but which welcomes him, exactly as it
welcomes every child, which offers him identical privileges
                and identical responsibilities.”
~ White House Conference on Child Health and Protection
What You Should Know About the Youth’s Disability




                             Problems could
                             include:
                             •Transportation for hikes and
                             campouts
                             •Involving all youth in games
                             and contests
                             •Acceptance of the youth by the
                             other members as just another
                             Scout.
When a Disabled Youth Joins
Helping Cub Scouts, Boy Scouts, &Venturers With
Physical Disabilities
Physical Disabilities
  Discussion Topics
Will He Hold Us Back? - DISCUSSION



       DISCUSSION TOPIC:
     By definition, a physically
 disabled youth is one who has
  some disability that makes it
 difficult or impossible for him to
   do some things that Scouts
 normally do. Unit leaders might
occasionally face the question of
 whether to hold back the other
youth to allow the disabled youth
to keep up or let him work at his
    own pace while the others
     proceed at a faster pace.

    What’s the right answer?
Games and Contests - DISCUSSION




                             When an individual with
                             physically disabilities is
                              unable to compete on
                            equal terms, how may he
                               participate in active
                                     games?
Helping the Guy Next To You - DISCUSSION
The Youth in a Unit With Scouts With Disabilities

This is essentially the same as in any
other unit. The way the activities are
carried out may be different
depending upon the needs of the
Scouts.
A special unit might include:
•Youth with a single disabling condition in a hospital or
residential facility
•Youth with a variety of disabling conditions in a children’s
hospital or long-term rehabilitation facility
•Youth with a variety of disabling conditions in a unit outside
an institution
Running Your Program




                     The need to
                                             The level of
The need to        experiment, to
                                           participation by
 slow down          find out what
                                           boys could vary
  activities       works and what
                                            considerably
                       doesn’t

               Three things to consider:
Running Your Program: DISCUSSION




                     Discussion:
                                           Discussion:
  Discussion:       How much and
                                            How may
What needs to be   what types of trial
                                         participation be
 considered?       and error should
                                          encouraged?
                      be used?

          Break into small groups and discuss.
HELP!




   From Parents   With Personal
    and Others       Needs
Six Point Plan for Success




 Keep precise and      Use official Scouting    Seek advice from
     accurate           equipment; it is the    leaders presently
records, especially      best available for        working with
 of advancement.       camping and hiking.       disabled Scouts.


                        Develop and use
Follow the program
                        the patrol method
guidelines outlined                            Keep the “outing” in
                             (see the
 in the official BSA                               Scouting.
                          Scoutmaster
      literature.
                           Handbook).
Hiking and Camping




Probably fewer special troops and Webelos dens hike than camp, because in such
units there is a high proportion of youth who use wheelchairs or cumbersome leg
braces – traveling over rough terrain can be an ordeal for them.
Experienced Scout leaders of youth with disabilities recommend:
•There be an adult or nondisabled Scout for every two disabled Scouts
•Hikes be relatively short (depending upon capability of the hikers)
•Hikes be on fairly smooth terrain, particularly when youth are in wheelchairs
•Plenty of time be allowed because of the slower pace of the hikers
•Hikers do not get too far from easy access to transportation in case any of them
become fatigued
Hiking and Camping




Nearly all troops of disabled Scouts are perfectly capable of overnight and
long-term camping, providing that the conditions are not too rugged.
Special factors must be considered:
•Presence of Sand
•Presence of Rugged Terrain
•Presence of Ramps
•Presence of Individuals to Port Gear
• Presence of First Aider
Visual Impairments
The Scouting Challenge


  Every Scout will excel in some areas and not in other. The
  same is true for blind Scouts. What is important is that they
                are given the opportunity to try.
  They are more alike other boys than they are unlike them.
Follow Practical Advice
Discard Old Notions



  •The old notion that blind boys are helpless is false.
  •Another incorrect notion is that a boy’s disability is more
  extensive than it is.
  •One might tend to attribute poor coordination and
  balance to blindness, when in fact the boy has not had
  the physical experience necessary to attain control.
  •A blind boy’s knowledge of objects may be limited.
  •In physical capability, finger dexterity and
  coordination, the blind boy’s disability may be a limitation
  because of lack of experience but it is not necessarily
  prohibitive.
Sense Compensations




•Blind boys see neither smiles nor frowns (a smiling face may
have a “frowning” voice).
•Keep the Scout’s attention by recognizing him for what he
has done.
•Just as often, though, a boy who is blind can be encouraged
by a pat on the shoulder and the leader’s reassurance.
Other Concerns

     Intelligent discipline and safety


     Choosing the right unit


     Leadership demands in mixed units


     Special units


     Boy Scouting


     Trial and error


     Merit badge work


     Additional opportunities
Visual Impairment ACTIVITY
   In a small group, use the cards to
  separate the various activities and
suggestions into the categories listed on
               the slide.
Group Activities - ACTIVITY

    Camping


 Pitching a Tent


    Whipping


   Tying Knots


     Lashing


     Nature


    First Aid


     Hiking


   Using Maps


 Compass Skills


 Physical Fitness
Cognitive, Intellectual, and
Developmental Disabilities
Should the Term “Mental Retardation” Be Used?




       The American
                               It is characterized by
      Association on                                      It is important to noted
                             significant limitations in
      Intellectual and                                           that “mental
                              intellectual functioning
      Developmental                                           retardation” offers
                              and adaptive behavior
    Disabilities defines                                   special protections in
                                   as expressed in
 “mental retardation” is a                                key areas of state and
                             conceptual, social, and
   disability that occurs                                       federal policy.
                             practical adaptive skills.
      before age 18.
What Is Mental Retardation?

An individual is considered to have mental retardation (or more appropriately a
cognitive, intellectual, or developmental disability) when these three criteria are
met:

           Intellectual
        functioning level
        (IQ) below 70-75


           Significant             • Daily skills needed to live, work, and play in the
        limitations in two           community
                                   • Communication, self-care, home living, social
        or more adaptive             skills, leisure, health and safety, self-
            skill areas              direction, functional academics, community use, & work



       Preexisting mental
         condition as a
        child (defined as
         age 18 or less)
Questions Regarding Cognitive, Intellectual, and
Developmental Disabilities
Additional Concerns and Issues



      Activities of Common Interest


               Uniforming


              Leader Helps


   Faith, Hope, Understanding & Desire


             Scouting Spirit


    Immediate & Frequent Recognition


           Learn by Teaching


             Selecting a Unit
Appendix
Fact Sheets and Forms
Appendix
Resources
Appendix
Best Practices and Additional Resources

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Part 3 Scouting For Youth With Disabilities

  • 1. Scouting for Youth With Disabilities Part IX F-I Understanding Categories of Disabilities and Best Methods Presentation prepared by Lindsay Foster Doctoral Dissertation Candidate 2011 Longhorn Council, Boy Scouts of America
  • 2. Emotional / Behavioral / Social Impairments
  • 3. Overview The Boy Scouts of America wants to include youth who have emotional and behavior disorders. Many units have welcomed youth who have emotional difficulties. Scouting units have also been organized at treatment centers and hospitals and have become meaningful parts of the treatment program. Many young people with emotional difficulties have benefitted from Scouting.
  • 4. The “Unseen” Disability Emotional disorders are thought by some to be “unseen” disabilities. They cannot readily be seen as can blindness, mental illness, or a physical disability. So, since sometimes there is no warning of a behavioral episode, adults can be startled by the actions of a child who finds it hard to cope with his inner feelings.
  • 5. Why? For these Behavior youth, misbehavior is problems an outward can stem expression of an from: Conflicting Learning Emotions Difficulties inward emotional problem. Learned Improper Life Patterns Behaviors Coping Skills from Home
  • 6. Reactions Young people have their own ways of overcoming barriers and having their needs met: Some withdraw and say they do not care. Some daydream or fail to pay attention. Some give up since they see no point in continuing to strive when needs are never met.
  • 7. Additional Reactions Violent behaviors such as: • Reckless property damage • Physical attacks on others • Malicious mischief Non-violent behaviors such as: • Lying • Stealing • Setting fires • Refusing to learn • Overeating
  • 8. Language of Behavior The way a child is treated determines in part how he sees life and how he regards himself. The world can be viewed as safe and nurturing, or it can be seen as dangerous and frightening. If a child is cared for, loved, and accepted, he can see himself as worthwhile and loveable. If a child can accomplish and achieve, he can see himself as competent.
  • 9. Trust Facets of Trust • Trust in the environment • Trust in people • Trust in the future • Trust in oneself Be Aware • Of making promises that may not be fulfilled • Of responsibility to follow through on promises
  • 10. Why Scouting for Youth With Emotional Disabilities Youth want a sense of belonging. Youth want to achieve. Youth want to be recognized for achievement.
  • 11. Planning Activities for Disability-Specific Youth With Emotional Disabilities
  • 12. Special Leadership Needs •Competitive activities should be avoided unless a member unless a member can compete against his own past achievement rather than the achievement or skill of others. •The leader should always remember that the level of interest and participation of members will vary greatly from activity to activity. •The Scouting leader and unit committee must be very active in helping to plan and evaluate the program activities. •The goals of Scouting must be understood, and the planning process and activities adapted to fit the abilities of the members in the unit. •Members may need individualized help with reading or other requirements.
  • 14. Special Leadership Needs Plan For Success 1. Keep precise and accurate records, especially of advancement. 2. Use official Scouting equipment. It is the best available. (It is especially important that members have official BSA uniforms.) 3. Seek advice from leaders presently working in Scouting with youth with emotional disabilities. 4. Follow the program guidelines in the Troop Program Features, Cub Scout Program Helps, and the Webelos Leader Guide. 5. Develop and use the patrol method (see the Scoutmaster Handbook). 6. Keep the “outing” in Scouting.
  • 15. A Community Unit Many community units have members with behavioral or emotional problems. The leader’s attitude toward a child with emotional disabilities is most important. If the leader shows acceptance, if he show that he considers the child as much a participating member as any other, if se shows he expects the same participation (with some support), then the other members are likely to react similarly. Although the unit leader must set the example and be accepting of a member with a disability and be enthusiastic about helping him, he must, at the same time, fully appreciate the special demands that will be made on his patience, understanding, and skill.
  • 16. Emotional / Behavioral / Social Disabilities What You Should Know About Youth with Emotional Disabilities
  • 17. Scouting Opportunities Advancement should be guided according to the individual ability of each boy. Scouting for emotionally disabled youth should not be watered-down Scouting. Rather than lower the standards, more leaders should be recruited to increase the individual help each child receives as his needs require.
  • 19. The Outdoor Program 2 Fresh air and exercise are obvious benefits of a good outdoor program, but other benefits are: An opportunity to take An external orientation A variety of success A method to help the Situation in which advantage of a that can provide oriented activities that Many opportunities boys feel a part of the structure can promote A cohesive program number of task- alternatives to can be chosen and program ideas for world at large, rather feelings of security in that can build feelings oriented activities to anxieties, disordered according to individual “off-ground” activities than just residents of a non-institutional of self-esteem build cooperation and thinking, and feelings needs an agency setting other social skills in a of self-defeat group setting.
  • 23. Physical Disabilities Types of Physical Disabilities
  • 24. Some Types of Physical Disabilities – Cerebral Palsy Definition Characteristics Additional Information • A condition caused by • Spastic – stiff and difficult • Nearly all will have speech damage to the movement & language difficulties brain, usually occurring • Athetoid – disturbed • More complex trouble before, during, or shortly sense of balance related to injury of the following birth • Combination speech formation centers • Neither progressive nor • Characterized by an in the brain communicable inability to fully control • May also have difficulty • Not curable motor function with drooling • Not a disease • About 2/3 have visual • Ranges from mild to handicaps severe • Usually take an anticonvulsant during the day • About 2/3 have some degree of mental disability
  • 25. Some Types of Physical Disabilities – Progressive Muscular Dystrophy Additional Definition Characteristics Information • Encompasses a • Should not be • Youth with this group of permitted to condition should not progressive become tired but take part in any muscular diseases should have some Scout activities that • Characterized by exercise result in excessive progressive • Begins between fatigue deterioration of ages of 2 and 10 skeletal (most common muscles, cause type) unknown • Progresses from lower trunk, hips and legs up the trunk
  • 26. Some Types of Physical Disabilities – Progressive MuscularAtrophy Additional Definition Characteristics Information • Covers a number • Widespread of poorly muscle weakness understood neurological diseases • Characterized by either failure to develop or the progressive degeneration of certain cells in the spinal cord
  • 27. Some Types of Physical Disabilities –Spina Bifida Definition Characteristics Additional Information • Birth defect • 1 type may only be • Urinary problems are characterized by detected by x-rays common failure of several and causes no vertebrae to develop disability and enclose the • 2 out of every 1000 spinal cord live births results in • Results in two small spina bifida minifesta spines, one on either • Skin of lower limbs is side of the midline of not sensitive to the back, rather than pain, touch, or heat one running down the center
  • 28. Some Types of Physical Disabilities – Heart Defects Information Form 1 Form 2 • Pumps 103, 680 • Developmental • Flaws in the times per day in defect which valves, usually the average 12 diverts the from rheumatic year old bloodstream fever • Otherwise either into wrong appears to be channels or normal creates unusual • Heart disease in resistance to children blood flow with a generally takes corresponding one of two forms: increase in the heart’s workload
  • 29. Some Types of Physical Disabilities – Limb Deformities Information Amputations • Birth deformities are • Caused by surgery or rare serious accident • Usually involves the • While similar to a absence or partial Scout with a birth development of one deformity, may have a or more bones of the stronger emotional limb reaction during adjustment to his disability
  • 30. Some Types of Physical Disabilities – Epilepsy Definition Characteristics Types What to Do • A physical condition • Blackouts or periods of • Generalized (all brain • Gently move him to a that occurs when there confused memory cells) side-lying position is a sudden, brief • Episodes of staring or • Convulsions with • Do not restrain his change in how the brain unexplained periods of complete loss of movements works unresponsiveness consciousness • Do not douse him with • Brain cells are not • Involuntary movement • Brief period of fixed water or slap him working properly of arms and legs staring • Do not place a finger or resulting in a loss of • Fainting spells with • Partial (some brain object between his consciousness, altered incontinence or cells) teeth movement or altered followed by excessive • Periods of “automatic” • Remove nearby objects action fatigue behavior and altered that might injure him if • Odd sounds, distorted consciousness he should hit them perceptions, or episodic • Grand Mal feelings of feat that • Focal cannot be explained • Petit Mal • Psychomotor
  • 31. Some Types of Physical Disabilities – Brain Damage Characteristics Additional Information • Outwardly appears normal, may have seizures or • May have coordination problems that limit convulsions as children with cerebral palsy do functional abilities • May be difficulty in comprehension, learning, behavior, speech, and hearing • Often is hyperactive, nervous, restless, and moves compulsively with no apparent purpose
  • 32. Some Types of Physical Disabilities – Down Syndrome Health Related Definition Incidence Characteristics Problems • The most common • 1 in every 800 to • Poor muscle tone • Lowered immune and readily 1000 live births in • Slanting eyes with system identifiable the U.S. folds of skin at the • Visual problems chromosomal • Occurrence is inner corners • Hearing problems condition higher in • Hyper flexibility • Speech difficulty associated with a pregnancy for • Short broad hands • Heart defects mental disability women over 35 with a single (approximately • Most common crease across the 1/3) forms do not occur palm on one or • Atalanntoaxial in a family more both hands instability than once • Broad feet with • Obesity short toes • Mental disabilitie • Flat bridge of the nose • Short, low-set ears • Small head • Small oral cavity • Short, high pitched cries in infancy
  • 33. Some Types of Physical Disabilities – Diabetes Definition Types Questions to Ask • A disorder in which the • Type I • Does the Scout body fails to make • May be controlled by administer insulin proper use of diet himself? sugar, and so the sugar • Given • Will Scout adhere to accumulates in the medication, insulin, by diabetic diet, particularly blood and often passes injection on camping trips? in the urine • What is the Scout’s • Type II • May be controlled by medication schedule? diet • What should be done for insulin shock? • What are the symptoms of insulin reaction?
  • 34. Scouting For a Youth in a Special Unit The fact that Scouting is Scouting is based upon Scouting is geared to the a worldwide movement the high ideals and abiding interests of gives breadth and depth purposes that are youth. to belonging to a Scout necessary to rich living in group. a social world. Scouting permits children with disabilities Scouting has a strong to work closely with other dedication in service to boys and girls toward others and to community. common goals and ideals.
  • 35. Needs of Youth with Disabilities
  • 36. Emotional Problems •Physically disabled youth do not come in a single mold, any more than other youth do. •Youth with disabilities may have more difficulty adjusting to society. •Youth with disabilities may sense feelings of pity or rejection by others, and they may respond to them by: • developing feelings of inferiority, • becoming more timid, or • overcompensating and becoming more aggressive.
  • 37. The Physical Benefits of Scouting One of the Scouting movement’s principal goals is mental and physical fitness, and disabled youth derive at least as much physical benefit from Scouting as do other youth. As leaders are not physicians or therapists, the Scout leader should plan a full agenda of Scouting activities with no regard to therapy; the physical benefits will follow.
  • 38. Placing Youth in Scouting Youth with a Vernon disability Mallinson in should None Can Be Called Will the become a Deformed Scout do Scout in asserts that whatever children with better in type of unit is disabilities should, if a special available or is possible, soci unit? most alize with nondisabled appropriate. children.
  • 39. Why Scouting for Youth With Physical Disabilities? “The disabled child has a right to grow up in a world which does not set him apart, which looks at him not with scorn or pity or ridicule but which welcomes him, exactly as it welcomes every child, which offers him identical privileges and identical responsibilities.” ~ White House Conference on Child Health and Protection
  • 40. What You Should Know About the Youth’s Disability Problems could include: •Transportation for hikes and campouts •Involving all youth in games and contests •Acceptance of the youth by the other members as just another Scout.
  • 41. When a Disabled Youth Joins
  • 42. Helping Cub Scouts, Boy Scouts, &Venturers With Physical Disabilities
  • 43. Physical Disabilities Discussion Topics
  • 44. Will He Hold Us Back? - DISCUSSION DISCUSSION TOPIC: By definition, a physically disabled youth is one who has some disability that makes it difficult or impossible for him to do some things that Scouts normally do. Unit leaders might occasionally face the question of whether to hold back the other youth to allow the disabled youth to keep up or let him work at his own pace while the others proceed at a faster pace. What’s the right answer?
  • 45. Games and Contests - DISCUSSION When an individual with physically disabilities is unable to compete on equal terms, how may he participate in active games?
  • 46. Helping the Guy Next To You - DISCUSSION
  • 47. The Youth in a Unit With Scouts With Disabilities This is essentially the same as in any other unit. The way the activities are carried out may be different depending upon the needs of the Scouts. A special unit might include: •Youth with a single disabling condition in a hospital or residential facility •Youth with a variety of disabling conditions in a children’s hospital or long-term rehabilitation facility •Youth with a variety of disabling conditions in a unit outside an institution
  • 48. Running Your Program The need to The level of The need to experiment, to participation by slow down find out what boys could vary activities works and what considerably doesn’t Three things to consider:
  • 49. Running Your Program: DISCUSSION Discussion: Discussion: Discussion: How much and How may What needs to be what types of trial participation be considered? and error should encouraged? be used? Break into small groups and discuss.
  • 50. HELP! From Parents With Personal and Others Needs
  • 51. Six Point Plan for Success Keep precise and Use official Scouting Seek advice from accurate equipment; it is the leaders presently records, especially best available for working with of advancement. camping and hiking. disabled Scouts. Develop and use Follow the program the patrol method guidelines outlined Keep the “outing” in (see the in the official BSA Scouting. Scoutmaster literature. Handbook).
  • 52. Hiking and Camping Probably fewer special troops and Webelos dens hike than camp, because in such units there is a high proportion of youth who use wheelchairs or cumbersome leg braces – traveling over rough terrain can be an ordeal for them. Experienced Scout leaders of youth with disabilities recommend: •There be an adult or nondisabled Scout for every two disabled Scouts •Hikes be relatively short (depending upon capability of the hikers) •Hikes be on fairly smooth terrain, particularly when youth are in wheelchairs •Plenty of time be allowed because of the slower pace of the hikers •Hikers do not get too far from easy access to transportation in case any of them become fatigued
  • 53. Hiking and Camping Nearly all troops of disabled Scouts are perfectly capable of overnight and long-term camping, providing that the conditions are not too rugged. Special factors must be considered: •Presence of Sand •Presence of Rugged Terrain •Presence of Ramps •Presence of Individuals to Port Gear • Presence of First Aider
  • 55.
  • 56. The Scouting Challenge Every Scout will excel in some areas and not in other. The same is true for blind Scouts. What is important is that they are given the opportunity to try. They are more alike other boys than they are unlike them.
  • 58. Discard Old Notions •The old notion that blind boys are helpless is false. •Another incorrect notion is that a boy’s disability is more extensive than it is. •One might tend to attribute poor coordination and balance to blindness, when in fact the boy has not had the physical experience necessary to attain control. •A blind boy’s knowledge of objects may be limited. •In physical capability, finger dexterity and coordination, the blind boy’s disability may be a limitation because of lack of experience but it is not necessarily prohibitive.
  • 59. Sense Compensations •Blind boys see neither smiles nor frowns (a smiling face may have a “frowning” voice). •Keep the Scout’s attention by recognizing him for what he has done. •Just as often, though, a boy who is blind can be encouraged by a pat on the shoulder and the leader’s reassurance.
  • 60. Other Concerns Intelligent discipline and safety Choosing the right unit Leadership demands in mixed units Special units Boy Scouting Trial and error Merit badge work Additional opportunities
  • 61. Visual Impairment ACTIVITY In a small group, use the cards to separate the various activities and suggestions into the categories listed on the slide.
  • 62. Group Activities - ACTIVITY Camping Pitching a Tent Whipping Tying Knots Lashing Nature First Aid Hiking Using Maps Compass Skills Physical Fitness
  • 64. Should the Term “Mental Retardation” Be Used? The American It is characterized by Association on It is important to noted significant limitations in Intellectual and that “mental intellectual functioning Developmental retardation” offers and adaptive behavior Disabilities defines special protections in as expressed in “mental retardation” is a key areas of state and conceptual, social, and disability that occurs federal policy. practical adaptive skills. before age 18.
  • 65. What Is Mental Retardation? An individual is considered to have mental retardation (or more appropriately a cognitive, intellectual, or developmental disability) when these three criteria are met: Intellectual functioning level (IQ) below 70-75 Significant • Daily skills needed to live, work, and play in the limitations in two community • Communication, self-care, home living, social or more adaptive skills, leisure, health and safety, self- skill areas direction, functional academics, community use, & work Preexisting mental condition as a child (defined as age 18 or less)
  • 66. Questions Regarding Cognitive, Intellectual, and Developmental Disabilities
  • 67. Additional Concerns and Issues Activities of Common Interest Uniforming Leader Helps Faith, Hope, Understanding & Desire Scouting Spirit Immediate & Frequent Recognition Learn by Teaching Selecting a Unit
  • 70. Appendix Best Practices and Additional Resources

Notas do Editor

  1. Auditory/Oral – These programs teach children to make maximum use of their residual hearing through amplification (hearing aids or cochlear implants) to augment their residual hearing with speech (lip) reading and to speak. This approach excludes the use of sign language.Cued Speech/Language – This is a visual communication system combining eight hand shapes (cues) that represent different sounds of speech. These cues are used simultaneously with speaking. The hand shapes help the child distinguish sounds that look the same on the lips (e.g. “P” and “B”). The cues significantly enhance lip reading ability.Total Communication – This approach uses a combination of methods to teach a child, including a form of sign language, finger spelling, speech (lip) reading, speak, and amplification. The sign language used in total communication is not a language in and of itself, like American Sign Language, but an invented artificially constructed system following English grammatical structure.American Sign Language – In this bilingual and bicultural approach, American Sign Language is taught as the child’s primary language, and English as the second language. ASL is recognized as a true language in its own right and does not follow the grammatical structure of English. This method is used extensively within the deaf community, a group that views itself as having a separate culture and identity from mainstream society.
  2. Usually, the unit is part of a treatment center or a hospital and will incorporate the treatment goals of that organization, institution, or agency into its work with youth. The unit is supported by a unit committee, usually staff at the organization, or individuals in the community who are interested in Scouting and familiar with the work of the organization.
  3. Hearing leaders must realize that a speech deficiency or a deaf boy’s inability to explain a word in the same way as a hearing Scout does not disqualify a boy from Scouting. Leaders must not allow Scouts who are deaf to bog down on the more difficult verbal aspects. If a boy knows that a Scouts does not lie or cheat or steal, he doesn’t need to stumble over the word “trustworthy.” This requirement may also be difficult for hearing boys.
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  14. ReferenceA Guide to Working with Boy Scouts with DisABILITIES, No. 33056C Form “Parent or Guardian Informed Consent,” which gives specific leaders permission for one-on-one with a Scout for physical health care purposes.