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SOC 600          Sociology of Disasters – Research Paper   Aug 12, 2011




       The Canadian Red Cross Tainted Blood Scandal


                  a sociological analysis




                         Leo de Sousa




Leo de Sousa                                                        1
SOC 600                     Sociology of Disasters – Research Paper                  Aug 12, 2011


                                          Abstract

The Canadian Red Cross Tainted Blood Scandal spanned decades and to this day, individuals,

families, groups and the nation feel its deadly impacts. The Canadian national blood supply

was contaminated with two infectious viruses, Hepatitis-C and HIV during the late 1970s, 1980s

and the early 1990s. This was the worst tragedy in Canadian medical history with over 20,000

Canadians infected after receiving blood or blood factors to treat their illnesses or during

surgery. Most of the people infected with HIV died. The Canadian Federal government

commissioned an Inquiry into the Blood System in Canada headed by Justice Horace Krever on

October 4, 1993. The report places blame on the Canadian Red Cross, the Federal government

and the Provincial governments for dysfunctional management, inadequate funding and failing

to act in a responsible manner. The Krever Commission report triggered sweeping changes

including the establishing the Canadian Blood Services agency to replace the Canadian Red

Cross Society to manage the blood supply system in Canada.

This paper provides a sociological analysis of the Canadian Red Cross Tainted Blood Disaster.

The paper covers the following topics (a) Background – the State of the Canadian Blood System,

Methods of Transmission and Infection, Detecting and Testing Blood Donations, Compensation

for Victims, Federal Commission of Inquiry, and Criminal Negligence and Responsibility (b)

Sociological Analysis – Disaster Categorization and Typology, Memory and Trauma, Toxic and

Non Toxic Threats, Individual and Collective Trauma, and Risk Amplification and (c) Conclusions

and (d) Appendix 1.




Leo de Sousa                                                                                    2
SOC 600                      Sociology of Disasters – Research Paper                 Aug 12, 2011


                                       Background

The State of the Canadian Blood System

The Canadian national blood supply managed by the Canadian Red Cross Society was

contaminated with two infectious viruses, Hepatitis-C and HIV during the late 1970s, 1980s and

into the early 1990s. The Canadian Red Cross ran the blood supply system since 1947. They

started out as a self-funded organization but over time began to rely more on government

subsidies. This was due to the increased demand for blood products in the Canadian Health

Care system. By 1974, the governments (federal and provincial) fully funded the blood service.

Justice Krever stated “The relationship between the Red Cross and the governments, and their

committees, was poorly defined and was often dysfunctional.” (Krever, 1997, p. 986) By the

1970s, Hepatitis was a known disease but only in its Hepatitis-A and Hepatitis-B forms. By the

end of this calamity, Hepatitis-C was identified and could be precisely tested for but not before

many people were infected with it by receiving blood transfusions and blood products. The

longer term impacts of Hepatitis-C are not fully understood but most patients develop ongoing

hepatitis as well as liver damage or liver cancer. While investigations into Hepatitis continued,

a new disease began to emerge. This turned out to be HIV and again the blood system proved

to be the infection media for AIDS. Infection with HIV inevitably leads to AIDS and eventually is

fatal. Justice Horace Krever specifically stated that “It is necessary to understand the historical

and institutional context in which those efforts were made. The description of that context is

focused, although not exclusively, on 1982, the year in which a relationship first was recognized

between infection with AIDS and the use of blood components and blood products. The most


Leo de Sousa                                                                                     3
SOC 600                      Sociology of Disasters – Research Paper               Aug 12, 2011


important measures to prevent or to minimize the risk of AIDS and Hepatitis-C were taken after

that year.” (Krever, 1997, p. 43)

Methods of Transmission and Infection

There were two main ways that people became infected with one or both viruses. The first

method was via blood transfusion usually in a hospital environment. The transfusions provided

patients with red blood cells, platelets and plasma and were usually given to surgery patients.

The second infection method occurred with patients receiving blood factor concentrates. The

main patients requiring these blood products were hemophiliacs. Once a test was created to

detect the HIV virus, and the symptoms of AIDS were showing up in homosexual men and

hemophiliacs with no history of homosexual behavior, the common factor became the blood

supply. By 1993, over 700 Canadian hemophiliacs were infected with HIV via blood

transfusions and receiving blood factors. Secondary infections occurred in some partners of

the people who unknowingly were infected by tainted blood products in both the United States

and Canada.

Detecting and Testing Blood Donations

In March 1985, the US Food and Drug Administration (USFDA) approved and licensed

companies to distribute HIV-antibody testing kits. By May 1985, all US blood and plasma

collection centers were testing donations for the presence of HIV. In August 1985, the

Canadian Blood Committee approved funding for testing of blood donations for the presence of

HIV-antibodies. It took until Nov 1985, for the Canadian Red Cross began testing all blood

donations for HIV. The USFDA recommended a dual test for Hepatitis-C in February 1986.

Some US blood fractionators actually start testing for Hepatitis-C in November 1985. In April


Leo de Sousa                                                                                    4
SOC 600                     Sociology of Disasters – Research Paper                Aug 12, 2011


1986, the American Association of Blood Banks decides to implement Hepatitis-C testing. In the

same month, the Canadian Red Cross rejects testing for Hepatitis-C pending more testing. “The

Canadian Red Cross decides tests might prevent a small number of cases at a cost of $20

million.” (CBC News, 2007) This is a key difference in the two blood systems response to

Hepatitis-C tainted blood supplies. It took 4 more years, June 1990, for the Canadian Red Cross

to begin testing for the Hepatitis-C HCV-antibody in blood products. But unscreened plasma

continued to be used for up to 2 more years before all blood products were tested. (CBC News,

2007) The Krever Commission reported that 95% of hemophiliacs who received blood products

before 1990 were infected with Hepatitis-C. (CBC News, 2007) Detailed time lines for both HIV

and AIDS from 1981 to 1994 (Krever, 1997, pp. xxi - xxviii) and Hepatitis from 1965 to 1995

(Krever, 1997, pp. xxix - xxxii) can be found in Volume 1 of the Krever Commission Report. The

CBC News site also provides a timeline from 1971 to 2007 explaining the milestones of virus

detection, blood services actions, government responses and the final outcome of criminal

negligence trials for Red Cross and government officials. (CBC News, 2007)

Compensation for Victims


The victims of the Canadian Tainted Blood Scandal have had a long road to seek compensation.

The Canadian Federal government announced a compensation package for 1,250 Canadians

who contracted HIV from tainted blood for a total amount on $150 million CAD on December

14, 1989. On March 27, 1998, Federal and Provincial Ministers of Health announced a new

compensation package worth $1.2 billion CAD for people who contracted Hepatitis-C between

the years 1986 and 1990. (CBC News, 2006) Their reasoning was that there was no valid test

before 1986 and that full scale tests began in 1990. Unfortunately, this excluded another

Leo de Sousa                                                                                  5
SOC 600                      Sociology of Disasters – Research Paper               Aug 12, 2011


20,000 Canadians who were infected outside that four year window. Due to the outrage,

British Columbia, Ontario and Quebec petitioned the Federal government to compensate all

victims who received tainted blood. The federal government voted down the motion on April

28, 1998 and stated that the file was closed. Ontario unilaterally provides an additional $200

million CAD for their impacted residents which has been estimated at 20,000 people. (CBC

News, 2006) So far the victims of the tainted blood scandal had not received any compensation

and many hundreds died waiting. Ontario and Quebec finally approve the March 1998

compensation deal in September 1999 – 18 months after it was announced. In the meantime,

the Canadian Red Cross announces $60 million CAD compensation for people infected before

1986 and after 1990. The Federal government decides to look at how to compensate victims

who were excluded in the 1998 compensation package. The Canadian House of Commons

unanimously passes a bill to add another 5000 people to the compensation package. In July

2006, a $1 billion CAD compensation package is announced by the Federal government to

address the 5,500 people infected with Hepatitis-C before 1986 and after 1990. Checks were

expected to be finally distributed to the victims in 2007.


Federal Commission of Inquiry


The Federal Government authorized a Commission of Inquiry in October of 1993 and appointed

Justice Horace Krever from the Ontario Court of Appeal to be the commissioner. The original

mission of the commission was to “review and report on the mandate, organization,

management, operations, financing and regulation of all activities of the blood system in

Canada, including the events surrounding the contamination of the blood system in Canada in



Leo de Sousa                                                                                     6
SOC 600                      Sociology of Disasters – Research Paper                  Aug 12, 2011


the early 1980s.” (Krever, 1997, p. Appendix A 1081) Further, Justice Krever states in his report

that the commission would “examining, without limiting the generality of the inquiry:


   •   The organization and effectiveness of past and current systems designed to supply

       blood and blood products in Canada

   •   The roles, views and ideas of relevant interest groups; and

   •   The structures and experiences of other countries, especially those with comparable

       federal systems.” (Krever, 1997, p. 5)


Note, nothing was said about finding blame or bringing charges forward as part of the original

mandate of the commission. The commission had its deadlines extended twice and cost

taxpayers over $16 million CAD from an original budget of $2.5 million CAD. “As the inquiry got

to work on Nov. 22, 1993, Krever promised that he would not be concerned with criminal or

civil liability — but by November 1995, he said charges of misconduct might be brought forward

at some point and that he had an obligation to warn people they might be accused of

wrongdoing.” (CBC News, 2006)


Criminal Negligence and Responsibility


It was only as the Justice drafted his report that he was obliged to give notice to parties that

were mentioned in the report with comments that could be interpreted as misconduct. Justice

Krever notified a total of 95 people, corporations and governments on December 21, 1995.

Some of the organizations notified began legal proceedings in the Federal Court of Canada to

challenge the Commission’s jurisdiction and Justice Krever’s mandate in January 1996.

(Canadian Federal Court of Appeal, 1997) This action delays the release of the report until

Leo de Sousa                                                                                       7
SOC 600                     Sociology of Disasters – Research Paper                 Aug 12, 2011


November 1997. In the end, 14 Red Cross officials and three federal officials are specifically

named for misconduct. (CBC News, 2007) In December 1997, the Royal Canadian Mounted

Police (RCMP) announces they are conducting a review of the report to see if a criminal

investigation is required. By February 1998, the RCMP launches a criminal investigation and

solicits help from the Canadian public.


In January 1999, a group of over 1000 hemophiliacs launch a $1 billion CAD lawsuit against the

Canadian Federal Government specifically for using blood purchased from United States jails.

On April 19, 2001, The Supreme Court of Canada delivers a negligence ruling against the

Canadian Red Cross. The Canadian Red Cross, four physicians and a US based pharmaceutical

company are charged criminally by the RCMP in November 2002. In a plea bargain, the

Canadian Red Cross pleads guilty to “distributing a contaminated drug” (CBC News, 2007) and is

fined a total of $5,000 CAD. (BBC News, 2005) All other six criminal charges are dropped. Dr.

Pierre Duplessis, CEO of the Canadian Red Cross Society issued a public apology on May 30,

2005 to the Canadian public. “We profoundly regret that the Canadian Red Cross Society did

not develop and adopt more quickly measures to reduce the risks of infection, and we accept

responsibility …” (Canadian Red Cross, 2005)


The four doctors, (Dr. Roger Perrault, the head of the Canadian Red Cross, Dr. John Furesz and

Dr. Donald Wark Boucher, both of Canada’s Health Protection Branch and Dr. Michael Rodell,

former Vice President of a New Jersey based pharmaceutical company were all acquitted for

their roles in the tainted blood scandal. (CBC News, 2007)




Leo de Sousa                                                                                     8
SOC 600                        Sociology of Disasters – Research Paper                     Aug 12, 2011


                                 Sociological Analysis

Disaster Categorization and Typology

In SOC 600 Module 1a, I proposed a structure to categorize the type of crisis. Using the three

words, Tragedy, Disaster and Catastrophe, I proposed an escalating continuum. When I think

about Tragedy, Disaster and Catastrophe, I think about differences of impact and scale for each

in a continuum of increasing magnitude. Tragedy has less impact and scale than Disaster which

in turn has less impact and scale than Catastrophe. Tragedy brings images of personal impact

and loss that begins on a small scale. Disaster evokes images of human as well as natural causes

that impact a group of people on a larger scale. Catastrophe implies a large number of people

or things impacted on a national level scale. Another categorization that we could apply to

these descriptions are: loss of life (human and natural) and loss of finances. There are times

when financial loss is not directly related to loss of life but inevitably loss of life is directly tied

to financial loss. (de Sousa, 2011)

Several weeks later in SOC 600 Module 2b, I incorporated Kai Erikson’s concept of collective

trauma and Pierre Bourdieu’s concept of “habitus”. (Britton, 2011) I added a further scale to

the definition “loss of habitus”. Habitus is “the set of socially learnt dispositions, skills and ways

of acting, that are often taken for granted, and which are acquired through the activities and

experiences of everyday life.” (Wikipedia, 2011) If an event has all 3 attributes of loss of life,

loss of finances and loss of habitus, it must be categorized as a catastrophe. (de Sousa, 2011)

The Canadian Red Cross Blood Scandal is a catastrophe base on the scales I defined. There was




Leo de Sousa                                                                                           9
SOC 600                      Sociology of Disasters – Research Paper                   Aug 12, 2011


loss of life, finances and destruction of habitus particularly for the people (especially

hemophiliacs and their families) who trusted the blood system to be safe.

Using Barton’s Collective Stress Situation Typology, this disaster is classified as a national scope

of impact, gradual onset with long duration impact and low social preparedness. In fact, this

was a global catastrophe as every country that provided blood transfusions had the same

challenges. The difference was that most other countries acted sooner and erred on the side of

caution. The failure of the Canadian Red Cross and government health authorities (federal and

provincial) radically shook the confidence of the Canadian public. Donating and receiving

blood is considered a critical medical service by all Canadians but was not treated as such by

the Federal and Provincial governments. From underfunding to disconnected policies, the

governments put the Red Cross in a no win situation that was at odds with the mores of

Canadian culture. With the revelations of the Krever Inquiry, the habitus of trusting medical

authorities was severely damaged. This lack of trust remains today even though a new

organization has been responsible for the blood system for over 10 years. All levels of social

structures in Canada were impacted by the negligent actions of the Red Cross and the

governments in Canada. Hemophiliacs were particularly devastated as their disease requires

regular blood transfusions to help with bleeding. The damage to these individuals and their

families can never be compensated for. Dombrowsky’s quote “Disasters do not cause effects.

The effects are what we call a disaster” is very appropriate for what happened to the people

impacted by the Canadian Tainted Blood disaster. (Britton, 2011) The effects of delaying to test

donated blood and blood products caused untold damage and death to the lives of innocent




Leo de Sousa                                                                                    10
SOC 600                      Sociology of Disasters – Research Paper                 Aug 12, 2011


people who sought out medical assistance and damaged the confidence in the medical system

in Canada.


A federal commission of inquiry was ordered in Sept 1993 headed by Justice Horace Krever to

investigate the Canadian Blood System. Early in 1994, the Inquiry learns that 95% of

hemophiliacs who used blood products before 1900 contracted Hepatitis-C virus. In November

1997, the Krever Inquiry releases its report condemning the Red Cross, and Federal and

Provincial governments for ignoring warnings and acting irresponsibly. The report estimates

that 85% of the 28,600 people infected with Hepatitis-C between 1986 and 1990 could have

been avoided. The result of the report was the creation of Canadian Blood Services to ensure

that the blood supply in Canada was treated as a national asset and that the organization had

all the authority to protect the safety of the blood supply.


Memory and Trauma


Kenneth Foote (2003), a cultural geographer, has examined how physical space is impacted by

tragic and violent American events. He states that there are four possible ways that societies

alter landscapes that are sites of violence and/or tragedy: sanctification, designation,

rectification and obliteration (Foote 1993: 7-16). (Britton, 2008, p. 10)

The Canadian Red Cross Tainted Blood Scandal, the landscape was altered in multiple ways.

The first was obliteration; the Canadian Red Cross was removed from managing the Blood

Supply in Canada and the provincial governments were also removed from funding. The

second action was rectification; the federal government created a national agency, Canadian

Blood Services, to be fully empowered to manage and protect the blood supply in Canada. The


Leo de Sousa                                                                                 11
SOC 600                        Sociology of Disasters – Research Paper                  Aug 12, 2011


compensation to the victims, even though it was long delayed and took many court cases

eventually provided some rectification to the victims and their families. We could also argue

that designation also played a role in shaping the new Canadian Blood Services. Looking at the

Canadian Blood Services website we can see this by the statement on their About page:


          “Canadian Blood Services is committed to blood safety. In addition to the effective

          screening and testing processes, this pursuit of safety is reflected in every branch of its

          organizational structure and in each management and operational decision that is

          made.” (Canadian Blood Services, 1998)


This statement clearly reflects the need to ensure Canada’s blood supply is never put in

jeopardy again. Justice Krever’s report was the blueprint for the creation of the Canadian Blood

Services. In this way, we have learned from our mistakes in the past and planned for a better

future.


Finally, there is sanctification of the tragedy. On November 26, 2007, the Canadian Hemophilia

Society (CHS) launched a Commemoration of the Tainted Blood Tragedy, now an annual event.

They began a memorial forest by planting the first tree at the Canadian Blood Services (CBS)

office in Ottawa. Pam Wilton’s RN (President of CHS) speech on that day fits the Foote’s

sanctification model of altering our environment.


          “The tree is a powerful symbol. Those who see it in this public place will recognize it as

          a symbol of hope. Hope for those Canadians living with HIV and Hepatitis-C. And hope

          for those needing a blood transfusion. Those who pass by it on their way into work at

          CBS will be reminded of the vital work they do each and every day, and of the trust

Leo de Sousa                                                                                      12
SOC 600                     Sociology of Disasters – Research Paper                 Aug 12, 2011


       Canadians place in them to keep our blood system safe and secure.” (Canadian

       Hemophilia Society, 2008)


Toxic and Non Toxic Threats


Erikson suggests that hazards can be categorized as toxic and non-toxic threats. Toxic threats

involve many involving technology results in contamination that impacts air, water, sea and

land in a negative way. Toxic threats involve more uncertain impacts compared to non-toxic

threats which are typically natural disasters. The Tainted Blood Scandal fits with Erikson’s Toxic

threats that “render innocuous or beneficial things dangerous” (Clarke & Short, 1993, p. 378)

There can be no doubt that the negligence of allowing the national blood supply to be

contaminated with HIV and Hepatitis-C viruses rendered “lifesaving” blood donations

dangerous. The Red Cross leadership decided to put more emphasis on ensuring there were

sufficient donors and protecting strained budgets than protecting the safety of the blood

supply. Krever called this a “delay in adopting preventative measures”. (Krever, 1997, p. 989)

“If the Red Cross had introduced appropriate risk-reduction measures promptly, without

awaiting full scientific proof, fewer persons would have been infected with HIV and hepatitis.”

(Krever, 1997, p. 990)


Clarke and Short reference four social science responses (Clarke & Short, 1993, p. 383):


   •   Social constructionism – the notion of objective risk is fundamentally flawed to begin

       with

   •   Normalize the irrationality by showing that hardly anyone makes decisions rationally



Leo de Sousa                                                                                  13
SOC 600                     Sociology of Disasters – Research Paper                 Aug 12, 2011


   •   Non experts are fact rational but in nonobvious ways that are neglected by traditional

       approaches of probability theory and benefit/cost logic

   •   Fairness, competence and responsibility about how decisions are made concern people


Considering these responses, we can see how the Red Cross’s actions amplified the risk to the

blood supply. While the Red Cross was aware of blood testing, they were more focused on

financial stability (primarily due to the decentralized nature of funding from each province),

undue political influence by provincial authorities who insisted on keeping donations in each

province and a focus on keeping a strong blood donor turnout. Even in the face of strong

scientific evidence that restrictions on high risk donors and blood donation screening needed to

be implemented, the Red Cross ignored the information. This fits with the concept of

“normalizing the irrationality” by diverting focus away from the safety of the blood supply.


Another component was the dysfunctional relationship between the Red Cross and the

governments that funded them. “The relationship between the Red Cross and the

governments, and their committees, was poorly defined and was often dysfunctional.” (Krever,

1997, p. 989) This issue relates to Clarke and Short’s social science response “Fairness,

competence and responsibility about how decisions are made concern people”. Some of the

issues Justice Krever uncovered were:


   •   Defining the roles in the blood supply system

   •   Blood donations as a national resource

   •   Financing the blood supply system

   •   Operational independence

Leo de Sousa                                                                                     14
SOC 600                      Sociology of Disasters – Research Paper                  Aug 12, 2011


Issues of provincial jurisdiction took over the management of the Canadian blood supply

causing shortages in certain urban areas. The provinces assumed funding for the blood supply

in each of their jurisdictions and then were reluctant to share excess due more to politics than

patient need. The Canadian Blood Committee which was made up of representatives of the

federal and provincial health ministries dictated policy to the Red Cross that caused shortages

in blood factor production and allowed for unsafe blood products to remain in the blood

system longer, causing more infections of HIV and Hepatitis-C in Canadians.


Individual and Collective Trauma


One particular group of Canadians were extremely sensitive to the tainted blood supply. These

were hemophiliacs who regularly relied on blood transfusions and supplies of blood factors

(especially blood factor VIII) to treat their disease and to stay alive. To get a perspective, over

1100 people were infected with HIV from blood transfusions; of which 700 of these people

were hemophiliacs or had other bleeding diseases. Approximately 700 to 800 people infected

with HIV from blood transfusions have passed away. Nearly 20,000 Canadians were infected

with Hepatitis-C with the majority being hemophiliacs (over 95%). (CBC News, 2007)


Clarke and Short provided quotes from Tierney and Bolton et al in their paper implying that the

poor suffer disproportionately during disasters. (Clarke & Short, 1993, p. 378) Erikson also

describes a similar understanding “But when one looks in on such scenes from a reflective

distance, it is obvious that human populations are spread out across the earth in such a way

that the most disadvantaged of them are the most likely to be located in harm’s way. So we are

not speaking here of a situation in which disasters seek out the vulnerable but a situation in


Leo de Sousa                                                                                     15
SOC 600                      Sociology of Disasters – Research Paper                   Aug 12, 2011


which the vulnerable have already been herded into places where disasters are most likely to

take place.” (Erikson, 1976) There is a parallel here with hemophiliacs in Canada. They have a

rare disease that makes them reliant on the blood system to keep them alive. In many ways,

this dependence is like the “herding into places” that Erikson speaks of. When the one thing

that these people depended upon proved to be unsafe and deadly, their habitus was destroyed.

Think about how you would feel – betrayed, scared and vulnerable because the one thing you

depend on to stay alive is not safe. Imagine the horror of a hemophiliac patient each time they

receive a blood factors not knowing if it will infect them with a harmful virus or not. This level

of individual and collective trauma is extremely damaging. “Individual trauma results from

intense blows to an individual’s psyche that s/he is not equipped to react.” (Britton, 2008, p. 56)


Risk Amplification


Risk amplification refers to actions that increase the likelihood of a risk to occur and also

increase the level of damage inflicted. Risk attenuation refers to actions that decrease the

likelihood of a risk to occur and also decrease the level of damage inflicted. “If potential risks

are maximized, this process is called “risk amplification”; if they are minimized, there is “risk

attenuation” (Lombardi:253-253). A variety of social groups participate in risk amplification and

attenuation.” (Britton, 2011)


Kasperson et al wrote about a Conceptual Framework for Social Amplification of Risk. In their

work, the group identified that “hazards interact with psychological, social, institutional and

cultural processes in ways that may amplify or attenuate public responses to the risk or risk

event.” (Kasperson, et al., 1988, p. 177) Kasperson et al continue by describing the structure of


Leo de Sousa                                                                                      16
SOC 600                       Sociology of Disasters – Research Paper                    Aug 12, 2011


the social amplification of risk. Amplification can occur in two stages; the transfer of risk

information and the society’s response mechanisms. Risk signals can be processed by

“individuals … the scientists who communicate the risk, the news media, cultural groups,

interpersonal networks and others.” (Kasperson, et al., 1988, p. 177)


As with any complex disaster, there were many messengers sending risk communications and

many receivers who interpreted them in various ways. The table in Appendix 1 provides a high

level summary of the risk amplification in this crisis. The publishing of the Krever report and the

creation of the Canadian Blood Services agency introduced risk attenuation strategies. Krever

Inquiry Recommendations: (Canadian Blood Services, 1998)


   •   donated blood is a public resource-Canadian Blood Services must act as a trustee of this public
       resource for the benefit of all persons in Canada;

   •   safety of the blood supply system is paramount-the principle of safety must transcend other
       principles and policies;

   •   the blood supply system should be operated in an open and accessible manner;

   •   the operator of the blood supply system should be independent and able to make decisions
       solely in the best interests of the system;

   •   the provincial and territorial Ministers of Health should be the members of the corporation;

   •   the members of Canadian Blood Services should appoint an independent board of directors to

       supervise the management of Canadian Blood Services and the members of the board shall

       carry out their duties at arm's length from government; and


   •   the operation of Canadian Blood Services should be managed by both administrative and

       medical personnel.



Leo de Sousa                                                                                          17
SOC 600                     Sociology of Disasters – Research Paper                 Aug 12, 2011


                                      Conclusions

The Canadian Red Cross Tainted Blood Scandal was the worst medical disaster in Canadian

history. This tragedy was national in scope and impact. Its gradual onset was due to many risk

amplification factors embedded in the Canadian Blood Supply System and the conflict between

federal and provincial politics. As a result almost 20,000 Canadians who received blood or

blood products were infected and so were some of their loved ones. The individual and cultural

impacts continue to influence our society. Due to a dysfunctional management structure,

conflicting value systems, insufficient funding, poor risk estimation and communication of risk,

thousands of innocent Canadians were infected with HIV and Hepatitis-C viruses. Most of the

people infected with HIV died and many of the Hepatitis-C victims are now suffering liver

damage and liver failure. Trust in the Canadian Blood Supply was destroyed as was the habitus

of Canadian hemophiliacs who rely on blood products to live. The Canadian Red Cross Society

was removed from managing the national blood supply system. A new federal agency,

Canadian Blood Services was created based on the findings of the Krever Inquiry.


Are we safe now? I leave the final words to Justice Krever from the Afterword of his report.


       “Low as the risk may be of infection with HIV and the Hepatitis-C virus from today’s

       blood supply, it is almost certain that infection will occur. When it does, the few

       members of our society to whom the risk accrues and to whom the harm results must

       be treated more compassionately than their predecessors were, and they must be given

       suitable compensation without the necessity of proving fault.” (Krever, 1997, p. 1074)


Leo de Sousa                                                                                   18
SOC 600                     Sociology of Disasters – Research Paper               Aug 12, 2011


                                        Appendix 1

Risk Amplification Matrix – Canadian Red Cross Tainted Blood Scandal


Risk Item           Messenger           Receiver          Risk                Impact
Description                                               Amplification

Failure to create   Canadian Blood      Canadian Red      Amplification –     No one was
a national blood    Committee           Cross             delays in           clearly in charge
policy with no                                            addressing safety   or accountable
clearly defined                                           issues              for the safety of
roles                                                                         the blood supply

Provincially      Provincial Health     Canadian Red      Amplification –     Provincial
funded blood      Ministries            Cross             increased blood     boundaries acted
supply systems                                            shortages and       as barriers so
discouraged                                               disincentive to     that blood
interprovincial                                           implement risk      donations were
transfers to meet                                         reduction           not treated as a
shortages                                                 strategies          natural resource

Insufficient        Canadian Blood      Canadian Red      Amplification –     Red Cross was
funding of the      Committee           Cross             provincial          unable to
blood supply                                              budgetary limits    improve blood
system                                                    avoided allowing    supply safety
                                                          for investments     due to lack of
                                                          in blood safety     funds

Provincial politics Provincial Health   Canadian Red      Amplification –     Red Cross was
dictate suppliers Ministries            Cross             provincial          unable to supply
of blood                                                  industrial policy   safe factor VIII
fractionation                                             forced the use of   resulting in
particularly                                              substandard         infections of
factor VIII                                               contractors         hemophiliacs

Waiting for full    Red Cross           Transfusion       Amplification –     Thousands of
scientific proof                        Patients          insistence by Red   patients received
that HIV and                                              Cross on full       tainted blood
Hep-C were                                                scientific proof    products from
spread by blood                                           delayed blood       transfusions
transfusions                                              testing



Leo de Sousa                                                                               19
SOC 600                      Sociology of Disasters – Research Paper               Aug 12, 2011


Risk Amplification Matrix – Canadian Red Cross Tainted Blood Scandal (cont.)


Risk Item            Messenger         Receiver            Risk                Impact
Description                                                Amplification

Underestimate        Red Cross         Canadian Public     Amplification –     Estimates of risk
actual risk values                                         inaccurate          vastly
and                                                        statement of risk   understated the
communicated                                               delayed risk        true risk to the
that risk was                                              reduction           public
minimal for AIDS

Lack of funding      Provincial        Canadian Public     Amplification –     Recognition that
to monitor           Ministries of                         no monitoring of    patients were
disease              Health                                transfused          being infected
outbreaks                                                  patients            was delayed
                                                           occurred            significantly

Failure to           Bureau of         Red Cross           Amplification –     Unsafe blood
remove unsafe        Biologics, Red                        Red Cross failed    products were
products             Cross                                 to remove           administered to
                                                           products and        patients
                                                           were told to        resulting in more
                                                           keep unsafe         infections
                                                           products

Red Cross did        Canadian Press    Red Cross           Amplification –     Red Cross did
not promote                                                Red Cross held to   not educate the
restrictions for                                           principles of       public about the
HIV risk donors                                            impartiality and    groups that were
as it conflicted                                           neutrality          high risk for
with their                                                                     contracting AIDS
principles

Red Cross Board      Red Cross         Canadian Public     Amplification –     Lack of medical
of Governors                                               the board was       expertise
lacked medical                                             unqualified to      introduced more
expertise                                                  run the blood       risk into the
                                                           supply system       blood system




Leo de Sousa                                                                                20
SOC 600                     Sociology of Disasters – Research Paper               Aug 12, 2011


                                      References

BBC News. (2005, May 31). Canada Red Cross used HIV blood. Retrieved Jun 25, 2011, from
        BBC News: http://news.bbc.co.uk/2/hi/americas/4595039.stm
Britton, D. (2008). Elegies of Darkness: Commemorations of the Bombing of Pan Am 103.
        Retrieved Jun 18, 2011, from Syaracuse University, In Dissertations & Theses:
        http://www.proquest.com.libezproxy2.syr.edu
Britton, D. (2011, May). SOC 600 Lecture 1 - What is a disaster? Syracuse, NY.
Britton, D. (2011, Jun 12). SOC 600 Lecture 3- Culture, Society and Disaster. Syracuse, NY,
        USA.
Britton, D. (2011, Jul 13). SOC 600 Lecture 4b Determination of Risk and Risk Communication.
        Syrucuse, NY.
Canadian Blood Services. (1998). About Us. Retrieved Jul 25, 2011, from Canadian Blood
        Services:
        http://www.bloodservices.ca/CentreApps/Internet/UW_V502_MainEngine.nsf/page/Abo
        ut%20Us?OpenDocument&CloseMenu
Canadian Blood Services. (1998, Jan 1). Krever Report. Retrieved Jun 25, 2011, from Canadian
        Blood Services:
        http://www.bloodservices.ca/CentreApps/Internet/UW_V502_MainEngine.nsf/page/FAQ
        Krever?OpenDocument
Canadian Federal Court of Appeal. (1997, Sep 26). Canada (Attorney General) v. Canada
        (Commission of Inquiry on the Blood System). Ottawa, ON, Canada.
Canadian Hemophilia Society. (2008). Winter 2008 Vol 43 No 1. Hemophilia Today, 4.
Canadian Red Cross. (2005, May 30). Public Statement Transcript. Retrieved Jun 22, 2011, from
        Canadian Red Cross: http://www.redcross.ca/article.asp?id=13578&tid=001
CBC News. (2006, Jul 25). Tainted Blood Scandal. Retrieved Jun 25, 2011, from CBC News:
        http://www.cbc.ca/news/background/taintedblood/index.html
CBC News. (2007, Oct 1). Canada's tainted blood scandal: A timeline. Retrieved Jun 25, 2011,
        from CBC News In Depth:
        http://www.cbc.ca/news/background/taintedblood/bloodscandal_timeline.html
Clarke, L., & Short, J. F. (1993). SOCIAL ORGANIZATION AND RISK: Some Current
        Controversies. Annual Review of Sociology, pp. 375-99.
de Sousa, L. (2011, Jun 18). Comparing Buffalo Creek and Pan Am 103 - Catastrophe and
        Disaster. Vancouver, BC, Canada.
de Sousa, L. (2011, May 29). Is there a difference between disaster, tragedy and catastrophe?
        Vancovuer, BC, Canada.
Erikson, K. T. (1976). Everything in its Path. New York: Simon and Schuster Paperbacks.
Kasperson, R. E., Renn, O., Slovic, P., Brown, H. S., Emel, J., Goble, R., et al. (1988, Jan 8).
        The Social Amplification of Risk: A Conceptual Framework. Risk Analysis, 8(2), 177-
        187.
Krever, H. (1997). Commision of Inquiry on the Blood System in Canada: Final Report 3 vols.
        Ottawa: Miinster of Supply and Services.
Wikipedia. (2011, Jun 3). Habitus (sociology). Retrieved Jun 11, 2011, from Wikipedia:
        http://en.wikipedia.org/wiki/Habitus_(sociology)

Leo de Sousa                                                                                21

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Canadian Red Cross Tainted Blood Scandal

  • 1. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 The Canadian Red Cross Tainted Blood Scandal a sociological analysis Leo de Sousa Leo de Sousa 1
  • 2. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 Abstract The Canadian Red Cross Tainted Blood Scandal spanned decades and to this day, individuals, families, groups and the nation feel its deadly impacts. The Canadian national blood supply was contaminated with two infectious viruses, Hepatitis-C and HIV during the late 1970s, 1980s and the early 1990s. This was the worst tragedy in Canadian medical history with over 20,000 Canadians infected after receiving blood or blood factors to treat their illnesses or during surgery. Most of the people infected with HIV died. The Canadian Federal government commissioned an Inquiry into the Blood System in Canada headed by Justice Horace Krever on October 4, 1993. The report places blame on the Canadian Red Cross, the Federal government and the Provincial governments for dysfunctional management, inadequate funding and failing to act in a responsible manner. The Krever Commission report triggered sweeping changes including the establishing the Canadian Blood Services agency to replace the Canadian Red Cross Society to manage the blood supply system in Canada. This paper provides a sociological analysis of the Canadian Red Cross Tainted Blood Disaster. The paper covers the following topics (a) Background – the State of the Canadian Blood System, Methods of Transmission and Infection, Detecting and Testing Blood Donations, Compensation for Victims, Federal Commission of Inquiry, and Criminal Negligence and Responsibility (b) Sociological Analysis – Disaster Categorization and Typology, Memory and Trauma, Toxic and Non Toxic Threats, Individual and Collective Trauma, and Risk Amplification and (c) Conclusions and (d) Appendix 1. Leo de Sousa 2
  • 3. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 Background The State of the Canadian Blood System The Canadian national blood supply managed by the Canadian Red Cross Society was contaminated with two infectious viruses, Hepatitis-C and HIV during the late 1970s, 1980s and into the early 1990s. The Canadian Red Cross ran the blood supply system since 1947. They started out as a self-funded organization but over time began to rely more on government subsidies. This was due to the increased demand for blood products in the Canadian Health Care system. By 1974, the governments (federal and provincial) fully funded the blood service. Justice Krever stated “The relationship between the Red Cross and the governments, and their committees, was poorly defined and was often dysfunctional.” (Krever, 1997, p. 986) By the 1970s, Hepatitis was a known disease but only in its Hepatitis-A and Hepatitis-B forms. By the end of this calamity, Hepatitis-C was identified and could be precisely tested for but not before many people were infected with it by receiving blood transfusions and blood products. The longer term impacts of Hepatitis-C are not fully understood but most patients develop ongoing hepatitis as well as liver damage or liver cancer. While investigations into Hepatitis continued, a new disease began to emerge. This turned out to be HIV and again the blood system proved to be the infection media for AIDS. Infection with HIV inevitably leads to AIDS and eventually is fatal. Justice Horace Krever specifically stated that “It is necessary to understand the historical and institutional context in which those efforts were made. The description of that context is focused, although not exclusively, on 1982, the year in which a relationship first was recognized between infection with AIDS and the use of blood components and blood products. The most Leo de Sousa 3
  • 4. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 important measures to prevent or to minimize the risk of AIDS and Hepatitis-C were taken after that year.” (Krever, 1997, p. 43) Methods of Transmission and Infection There were two main ways that people became infected with one or both viruses. The first method was via blood transfusion usually in a hospital environment. The transfusions provided patients with red blood cells, platelets and plasma and were usually given to surgery patients. The second infection method occurred with patients receiving blood factor concentrates. The main patients requiring these blood products were hemophiliacs. Once a test was created to detect the HIV virus, and the symptoms of AIDS were showing up in homosexual men and hemophiliacs with no history of homosexual behavior, the common factor became the blood supply. By 1993, over 700 Canadian hemophiliacs were infected with HIV via blood transfusions and receiving blood factors. Secondary infections occurred in some partners of the people who unknowingly were infected by tainted blood products in both the United States and Canada. Detecting and Testing Blood Donations In March 1985, the US Food and Drug Administration (USFDA) approved and licensed companies to distribute HIV-antibody testing kits. By May 1985, all US blood and plasma collection centers were testing donations for the presence of HIV. In August 1985, the Canadian Blood Committee approved funding for testing of blood donations for the presence of HIV-antibodies. It took until Nov 1985, for the Canadian Red Cross began testing all blood donations for HIV. The USFDA recommended a dual test for Hepatitis-C in February 1986. Some US blood fractionators actually start testing for Hepatitis-C in November 1985. In April Leo de Sousa 4
  • 5. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 1986, the American Association of Blood Banks decides to implement Hepatitis-C testing. In the same month, the Canadian Red Cross rejects testing for Hepatitis-C pending more testing. “The Canadian Red Cross decides tests might prevent a small number of cases at a cost of $20 million.” (CBC News, 2007) This is a key difference in the two blood systems response to Hepatitis-C tainted blood supplies. It took 4 more years, June 1990, for the Canadian Red Cross to begin testing for the Hepatitis-C HCV-antibody in blood products. But unscreened plasma continued to be used for up to 2 more years before all blood products were tested. (CBC News, 2007) The Krever Commission reported that 95% of hemophiliacs who received blood products before 1990 were infected with Hepatitis-C. (CBC News, 2007) Detailed time lines for both HIV and AIDS from 1981 to 1994 (Krever, 1997, pp. xxi - xxviii) and Hepatitis from 1965 to 1995 (Krever, 1997, pp. xxix - xxxii) can be found in Volume 1 of the Krever Commission Report. The CBC News site also provides a timeline from 1971 to 2007 explaining the milestones of virus detection, blood services actions, government responses and the final outcome of criminal negligence trials for Red Cross and government officials. (CBC News, 2007) Compensation for Victims The victims of the Canadian Tainted Blood Scandal have had a long road to seek compensation. The Canadian Federal government announced a compensation package for 1,250 Canadians who contracted HIV from tainted blood for a total amount on $150 million CAD on December 14, 1989. On March 27, 1998, Federal and Provincial Ministers of Health announced a new compensation package worth $1.2 billion CAD for people who contracted Hepatitis-C between the years 1986 and 1990. (CBC News, 2006) Their reasoning was that there was no valid test before 1986 and that full scale tests began in 1990. Unfortunately, this excluded another Leo de Sousa 5
  • 6. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 20,000 Canadians who were infected outside that four year window. Due to the outrage, British Columbia, Ontario and Quebec petitioned the Federal government to compensate all victims who received tainted blood. The federal government voted down the motion on April 28, 1998 and stated that the file was closed. Ontario unilaterally provides an additional $200 million CAD for their impacted residents which has been estimated at 20,000 people. (CBC News, 2006) So far the victims of the tainted blood scandal had not received any compensation and many hundreds died waiting. Ontario and Quebec finally approve the March 1998 compensation deal in September 1999 – 18 months after it was announced. In the meantime, the Canadian Red Cross announces $60 million CAD compensation for people infected before 1986 and after 1990. The Federal government decides to look at how to compensate victims who were excluded in the 1998 compensation package. The Canadian House of Commons unanimously passes a bill to add another 5000 people to the compensation package. In July 2006, a $1 billion CAD compensation package is announced by the Federal government to address the 5,500 people infected with Hepatitis-C before 1986 and after 1990. Checks were expected to be finally distributed to the victims in 2007. Federal Commission of Inquiry The Federal Government authorized a Commission of Inquiry in October of 1993 and appointed Justice Horace Krever from the Ontario Court of Appeal to be the commissioner. The original mission of the commission was to “review and report on the mandate, organization, management, operations, financing and regulation of all activities of the blood system in Canada, including the events surrounding the contamination of the blood system in Canada in Leo de Sousa 6
  • 7. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 the early 1980s.” (Krever, 1997, p. Appendix A 1081) Further, Justice Krever states in his report that the commission would “examining, without limiting the generality of the inquiry: • The organization and effectiveness of past and current systems designed to supply blood and blood products in Canada • The roles, views and ideas of relevant interest groups; and • The structures and experiences of other countries, especially those with comparable federal systems.” (Krever, 1997, p. 5) Note, nothing was said about finding blame or bringing charges forward as part of the original mandate of the commission. The commission had its deadlines extended twice and cost taxpayers over $16 million CAD from an original budget of $2.5 million CAD. “As the inquiry got to work on Nov. 22, 1993, Krever promised that he would not be concerned with criminal or civil liability — but by November 1995, he said charges of misconduct might be brought forward at some point and that he had an obligation to warn people they might be accused of wrongdoing.” (CBC News, 2006) Criminal Negligence and Responsibility It was only as the Justice drafted his report that he was obliged to give notice to parties that were mentioned in the report with comments that could be interpreted as misconduct. Justice Krever notified a total of 95 people, corporations and governments on December 21, 1995. Some of the organizations notified began legal proceedings in the Federal Court of Canada to challenge the Commission’s jurisdiction and Justice Krever’s mandate in January 1996. (Canadian Federal Court of Appeal, 1997) This action delays the release of the report until Leo de Sousa 7
  • 8. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 November 1997. In the end, 14 Red Cross officials and three federal officials are specifically named for misconduct. (CBC News, 2007) In December 1997, the Royal Canadian Mounted Police (RCMP) announces they are conducting a review of the report to see if a criminal investigation is required. By February 1998, the RCMP launches a criminal investigation and solicits help from the Canadian public. In January 1999, a group of over 1000 hemophiliacs launch a $1 billion CAD lawsuit against the Canadian Federal Government specifically for using blood purchased from United States jails. On April 19, 2001, The Supreme Court of Canada delivers a negligence ruling against the Canadian Red Cross. The Canadian Red Cross, four physicians and a US based pharmaceutical company are charged criminally by the RCMP in November 2002. In a plea bargain, the Canadian Red Cross pleads guilty to “distributing a contaminated drug” (CBC News, 2007) and is fined a total of $5,000 CAD. (BBC News, 2005) All other six criminal charges are dropped. Dr. Pierre Duplessis, CEO of the Canadian Red Cross Society issued a public apology on May 30, 2005 to the Canadian public. “We profoundly regret that the Canadian Red Cross Society did not develop and adopt more quickly measures to reduce the risks of infection, and we accept responsibility …” (Canadian Red Cross, 2005) The four doctors, (Dr. Roger Perrault, the head of the Canadian Red Cross, Dr. John Furesz and Dr. Donald Wark Boucher, both of Canada’s Health Protection Branch and Dr. Michael Rodell, former Vice President of a New Jersey based pharmaceutical company were all acquitted for their roles in the tainted blood scandal. (CBC News, 2007) Leo de Sousa 8
  • 9. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 Sociological Analysis Disaster Categorization and Typology In SOC 600 Module 1a, I proposed a structure to categorize the type of crisis. Using the three words, Tragedy, Disaster and Catastrophe, I proposed an escalating continuum. When I think about Tragedy, Disaster and Catastrophe, I think about differences of impact and scale for each in a continuum of increasing magnitude. Tragedy has less impact and scale than Disaster which in turn has less impact and scale than Catastrophe. Tragedy brings images of personal impact and loss that begins on a small scale. Disaster evokes images of human as well as natural causes that impact a group of people on a larger scale. Catastrophe implies a large number of people or things impacted on a national level scale. Another categorization that we could apply to these descriptions are: loss of life (human and natural) and loss of finances. There are times when financial loss is not directly related to loss of life but inevitably loss of life is directly tied to financial loss. (de Sousa, 2011) Several weeks later in SOC 600 Module 2b, I incorporated Kai Erikson’s concept of collective trauma and Pierre Bourdieu’s concept of “habitus”. (Britton, 2011) I added a further scale to the definition “loss of habitus”. Habitus is “the set of socially learnt dispositions, skills and ways of acting, that are often taken for granted, and which are acquired through the activities and experiences of everyday life.” (Wikipedia, 2011) If an event has all 3 attributes of loss of life, loss of finances and loss of habitus, it must be categorized as a catastrophe. (de Sousa, 2011) The Canadian Red Cross Blood Scandal is a catastrophe base on the scales I defined. There was Leo de Sousa 9
  • 10. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 loss of life, finances and destruction of habitus particularly for the people (especially hemophiliacs and their families) who trusted the blood system to be safe. Using Barton’s Collective Stress Situation Typology, this disaster is classified as a national scope of impact, gradual onset with long duration impact and low social preparedness. In fact, this was a global catastrophe as every country that provided blood transfusions had the same challenges. The difference was that most other countries acted sooner and erred on the side of caution. The failure of the Canadian Red Cross and government health authorities (federal and provincial) radically shook the confidence of the Canadian public. Donating and receiving blood is considered a critical medical service by all Canadians but was not treated as such by the Federal and Provincial governments. From underfunding to disconnected policies, the governments put the Red Cross in a no win situation that was at odds with the mores of Canadian culture. With the revelations of the Krever Inquiry, the habitus of trusting medical authorities was severely damaged. This lack of trust remains today even though a new organization has been responsible for the blood system for over 10 years. All levels of social structures in Canada were impacted by the negligent actions of the Red Cross and the governments in Canada. Hemophiliacs were particularly devastated as their disease requires regular blood transfusions to help with bleeding. The damage to these individuals and their families can never be compensated for. Dombrowsky’s quote “Disasters do not cause effects. The effects are what we call a disaster” is very appropriate for what happened to the people impacted by the Canadian Tainted Blood disaster. (Britton, 2011) The effects of delaying to test donated blood and blood products caused untold damage and death to the lives of innocent Leo de Sousa 10
  • 11. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 people who sought out medical assistance and damaged the confidence in the medical system in Canada. A federal commission of inquiry was ordered in Sept 1993 headed by Justice Horace Krever to investigate the Canadian Blood System. Early in 1994, the Inquiry learns that 95% of hemophiliacs who used blood products before 1900 contracted Hepatitis-C virus. In November 1997, the Krever Inquiry releases its report condemning the Red Cross, and Federal and Provincial governments for ignoring warnings and acting irresponsibly. The report estimates that 85% of the 28,600 people infected with Hepatitis-C between 1986 and 1990 could have been avoided. The result of the report was the creation of Canadian Blood Services to ensure that the blood supply in Canada was treated as a national asset and that the organization had all the authority to protect the safety of the blood supply. Memory and Trauma Kenneth Foote (2003), a cultural geographer, has examined how physical space is impacted by tragic and violent American events. He states that there are four possible ways that societies alter landscapes that are sites of violence and/or tragedy: sanctification, designation, rectification and obliteration (Foote 1993: 7-16). (Britton, 2008, p. 10) The Canadian Red Cross Tainted Blood Scandal, the landscape was altered in multiple ways. The first was obliteration; the Canadian Red Cross was removed from managing the Blood Supply in Canada and the provincial governments were also removed from funding. The second action was rectification; the federal government created a national agency, Canadian Blood Services, to be fully empowered to manage and protect the blood supply in Canada. The Leo de Sousa 11
  • 12. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 compensation to the victims, even though it was long delayed and took many court cases eventually provided some rectification to the victims and their families. We could also argue that designation also played a role in shaping the new Canadian Blood Services. Looking at the Canadian Blood Services website we can see this by the statement on their About page: “Canadian Blood Services is committed to blood safety. In addition to the effective screening and testing processes, this pursuit of safety is reflected in every branch of its organizational structure and in each management and operational decision that is made.” (Canadian Blood Services, 1998) This statement clearly reflects the need to ensure Canada’s blood supply is never put in jeopardy again. Justice Krever’s report was the blueprint for the creation of the Canadian Blood Services. In this way, we have learned from our mistakes in the past and planned for a better future. Finally, there is sanctification of the tragedy. On November 26, 2007, the Canadian Hemophilia Society (CHS) launched a Commemoration of the Tainted Blood Tragedy, now an annual event. They began a memorial forest by planting the first tree at the Canadian Blood Services (CBS) office in Ottawa. Pam Wilton’s RN (President of CHS) speech on that day fits the Foote’s sanctification model of altering our environment. “The tree is a powerful symbol. Those who see it in this public place will recognize it as a symbol of hope. Hope for those Canadians living with HIV and Hepatitis-C. And hope for those needing a blood transfusion. Those who pass by it on their way into work at CBS will be reminded of the vital work they do each and every day, and of the trust Leo de Sousa 12
  • 13. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 Canadians place in them to keep our blood system safe and secure.” (Canadian Hemophilia Society, 2008) Toxic and Non Toxic Threats Erikson suggests that hazards can be categorized as toxic and non-toxic threats. Toxic threats involve many involving technology results in contamination that impacts air, water, sea and land in a negative way. Toxic threats involve more uncertain impacts compared to non-toxic threats which are typically natural disasters. The Tainted Blood Scandal fits with Erikson’s Toxic threats that “render innocuous or beneficial things dangerous” (Clarke & Short, 1993, p. 378) There can be no doubt that the negligence of allowing the national blood supply to be contaminated with HIV and Hepatitis-C viruses rendered “lifesaving” blood donations dangerous. The Red Cross leadership decided to put more emphasis on ensuring there were sufficient donors and protecting strained budgets than protecting the safety of the blood supply. Krever called this a “delay in adopting preventative measures”. (Krever, 1997, p. 989) “If the Red Cross had introduced appropriate risk-reduction measures promptly, without awaiting full scientific proof, fewer persons would have been infected with HIV and hepatitis.” (Krever, 1997, p. 990) Clarke and Short reference four social science responses (Clarke & Short, 1993, p. 383): • Social constructionism – the notion of objective risk is fundamentally flawed to begin with • Normalize the irrationality by showing that hardly anyone makes decisions rationally Leo de Sousa 13
  • 14. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 • Non experts are fact rational but in nonobvious ways that are neglected by traditional approaches of probability theory and benefit/cost logic • Fairness, competence and responsibility about how decisions are made concern people Considering these responses, we can see how the Red Cross’s actions amplified the risk to the blood supply. While the Red Cross was aware of blood testing, they were more focused on financial stability (primarily due to the decentralized nature of funding from each province), undue political influence by provincial authorities who insisted on keeping donations in each province and a focus on keeping a strong blood donor turnout. Even in the face of strong scientific evidence that restrictions on high risk donors and blood donation screening needed to be implemented, the Red Cross ignored the information. This fits with the concept of “normalizing the irrationality” by diverting focus away from the safety of the blood supply. Another component was the dysfunctional relationship between the Red Cross and the governments that funded them. “The relationship between the Red Cross and the governments, and their committees, was poorly defined and was often dysfunctional.” (Krever, 1997, p. 989) This issue relates to Clarke and Short’s social science response “Fairness, competence and responsibility about how decisions are made concern people”. Some of the issues Justice Krever uncovered were: • Defining the roles in the blood supply system • Blood donations as a national resource • Financing the blood supply system • Operational independence Leo de Sousa 14
  • 15. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 Issues of provincial jurisdiction took over the management of the Canadian blood supply causing shortages in certain urban areas. The provinces assumed funding for the blood supply in each of their jurisdictions and then were reluctant to share excess due more to politics than patient need. The Canadian Blood Committee which was made up of representatives of the federal and provincial health ministries dictated policy to the Red Cross that caused shortages in blood factor production and allowed for unsafe blood products to remain in the blood system longer, causing more infections of HIV and Hepatitis-C in Canadians. Individual and Collective Trauma One particular group of Canadians were extremely sensitive to the tainted blood supply. These were hemophiliacs who regularly relied on blood transfusions and supplies of blood factors (especially blood factor VIII) to treat their disease and to stay alive. To get a perspective, over 1100 people were infected with HIV from blood transfusions; of which 700 of these people were hemophiliacs or had other bleeding diseases. Approximately 700 to 800 people infected with HIV from blood transfusions have passed away. Nearly 20,000 Canadians were infected with Hepatitis-C with the majority being hemophiliacs (over 95%). (CBC News, 2007) Clarke and Short provided quotes from Tierney and Bolton et al in their paper implying that the poor suffer disproportionately during disasters. (Clarke & Short, 1993, p. 378) Erikson also describes a similar understanding “But when one looks in on such scenes from a reflective distance, it is obvious that human populations are spread out across the earth in such a way that the most disadvantaged of them are the most likely to be located in harm’s way. So we are not speaking here of a situation in which disasters seek out the vulnerable but a situation in Leo de Sousa 15
  • 16. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 which the vulnerable have already been herded into places where disasters are most likely to take place.” (Erikson, 1976) There is a parallel here with hemophiliacs in Canada. They have a rare disease that makes them reliant on the blood system to keep them alive. In many ways, this dependence is like the “herding into places” that Erikson speaks of. When the one thing that these people depended upon proved to be unsafe and deadly, their habitus was destroyed. Think about how you would feel – betrayed, scared and vulnerable because the one thing you depend on to stay alive is not safe. Imagine the horror of a hemophiliac patient each time they receive a blood factors not knowing if it will infect them with a harmful virus or not. This level of individual and collective trauma is extremely damaging. “Individual trauma results from intense blows to an individual’s psyche that s/he is not equipped to react.” (Britton, 2008, p. 56) Risk Amplification Risk amplification refers to actions that increase the likelihood of a risk to occur and also increase the level of damage inflicted. Risk attenuation refers to actions that decrease the likelihood of a risk to occur and also decrease the level of damage inflicted. “If potential risks are maximized, this process is called “risk amplification”; if they are minimized, there is “risk attenuation” (Lombardi:253-253). A variety of social groups participate in risk amplification and attenuation.” (Britton, 2011) Kasperson et al wrote about a Conceptual Framework for Social Amplification of Risk. In their work, the group identified that “hazards interact with psychological, social, institutional and cultural processes in ways that may amplify or attenuate public responses to the risk or risk event.” (Kasperson, et al., 1988, p. 177) Kasperson et al continue by describing the structure of Leo de Sousa 16
  • 17. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 the social amplification of risk. Amplification can occur in two stages; the transfer of risk information and the society’s response mechanisms. Risk signals can be processed by “individuals … the scientists who communicate the risk, the news media, cultural groups, interpersonal networks and others.” (Kasperson, et al., 1988, p. 177) As with any complex disaster, there were many messengers sending risk communications and many receivers who interpreted them in various ways. The table in Appendix 1 provides a high level summary of the risk amplification in this crisis. The publishing of the Krever report and the creation of the Canadian Blood Services agency introduced risk attenuation strategies. Krever Inquiry Recommendations: (Canadian Blood Services, 1998) • donated blood is a public resource-Canadian Blood Services must act as a trustee of this public resource for the benefit of all persons in Canada; • safety of the blood supply system is paramount-the principle of safety must transcend other principles and policies; • the blood supply system should be operated in an open and accessible manner; • the operator of the blood supply system should be independent and able to make decisions solely in the best interests of the system; • the provincial and territorial Ministers of Health should be the members of the corporation; • the members of Canadian Blood Services should appoint an independent board of directors to supervise the management of Canadian Blood Services and the members of the board shall carry out their duties at arm's length from government; and • the operation of Canadian Blood Services should be managed by both administrative and medical personnel. Leo de Sousa 17
  • 18. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 Conclusions The Canadian Red Cross Tainted Blood Scandal was the worst medical disaster in Canadian history. This tragedy was national in scope and impact. Its gradual onset was due to many risk amplification factors embedded in the Canadian Blood Supply System and the conflict between federal and provincial politics. As a result almost 20,000 Canadians who received blood or blood products were infected and so were some of their loved ones. The individual and cultural impacts continue to influence our society. Due to a dysfunctional management structure, conflicting value systems, insufficient funding, poor risk estimation and communication of risk, thousands of innocent Canadians were infected with HIV and Hepatitis-C viruses. Most of the people infected with HIV died and many of the Hepatitis-C victims are now suffering liver damage and liver failure. Trust in the Canadian Blood Supply was destroyed as was the habitus of Canadian hemophiliacs who rely on blood products to live. The Canadian Red Cross Society was removed from managing the national blood supply system. A new federal agency, Canadian Blood Services was created based on the findings of the Krever Inquiry. Are we safe now? I leave the final words to Justice Krever from the Afterword of his report. “Low as the risk may be of infection with HIV and the Hepatitis-C virus from today’s blood supply, it is almost certain that infection will occur. When it does, the few members of our society to whom the risk accrues and to whom the harm results must be treated more compassionately than their predecessors were, and they must be given suitable compensation without the necessity of proving fault.” (Krever, 1997, p. 1074) Leo de Sousa 18
  • 19. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 Appendix 1 Risk Amplification Matrix – Canadian Red Cross Tainted Blood Scandal Risk Item Messenger Receiver Risk Impact Description Amplification Failure to create Canadian Blood Canadian Red Amplification – No one was a national blood Committee Cross delays in clearly in charge policy with no addressing safety or accountable clearly defined issues for the safety of roles the blood supply Provincially Provincial Health Canadian Red Amplification – Provincial funded blood Ministries Cross increased blood boundaries acted supply systems shortages and as barriers so discouraged disincentive to that blood interprovincial implement risk donations were transfers to meet reduction not treated as a shortages strategies natural resource Insufficient Canadian Blood Canadian Red Amplification – Red Cross was funding of the Committee Cross provincial unable to blood supply budgetary limits improve blood system avoided allowing supply safety for investments due to lack of in blood safety funds Provincial politics Provincial Health Canadian Red Amplification – Red Cross was dictate suppliers Ministries Cross provincial unable to supply of blood industrial policy safe factor VIII fractionation forced the use of resulting in particularly substandard infections of factor VIII contractors hemophiliacs Waiting for full Red Cross Transfusion Amplification – Thousands of scientific proof Patients insistence by Red patients received that HIV and Cross on full tainted blood Hep-C were scientific proof products from spread by blood delayed blood transfusions transfusions testing Leo de Sousa 19
  • 20. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 Risk Amplification Matrix – Canadian Red Cross Tainted Blood Scandal (cont.) Risk Item Messenger Receiver Risk Impact Description Amplification Underestimate Red Cross Canadian Public Amplification – Estimates of risk actual risk values inaccurate vastly and statement of risk understated the communicated delayed risk true risk to the that risk was reduction public minimal for AIDS Lack of funding Provincial Canadian Public Amplification – Recognition that to monitor Ministries of no monitoring of patients were disease Health transfused being infected outbreaks patients was delayed occurred significantly Failure to Bureau of Red Cross Amplification – Unsafe blood remove unsafe Biologics, Red Red Cross failed products were products Cross to remove administered to products and patients were told to resulting in more keep unsafe infections products Red Cross did Canadian Press Red Cross Amplification – Red Cross did not promote Red Cross held to not educate the restrictions for principles of public about the HIV risk donors impartiality and groups that were as it conflicted neutrality high risk for with their contracting AIDS principles Red Cross Board Red Cross Canadian Public Amplification – Lack of medical of Governors the board was expertise lacked medical unqualified to introduced more expertise run the blood risk into the supply system blood system Leo de Sousa 20
  • 21. SOC 600 Sociology of Disasters – Research Paper Aug 12, 2011 References BBC News. (2005, May 31). Canada Red Cross used HIV blood. Retrieved Jun 25, 2011, from BBC News: http://news.bbc.co.uk/2/hi/americas/4595039.stm Britton, D. (2008). Elegies of Darkness: Commemorations of the Bombing of Pan Am 103. Retrieved Jun 18, 2011, from Syaracuse University, In Dissertations & Theses: http://www.proquest.com.libezproxy2.syr.edu Britton, D. (2011, May). SOC 600 Lecture 1 - What is a disaster? Syracuse, NY. Britton, D. (2011, Jun 12). SOC 600 Lecture 3- Culture, Society and Disaster. Syracuse, NY, USA. Britton, D. (2011, Jul 13). SOC 600 Lecture 4b Determination of Risk and Risk Communication. Syrucuse, NY. Canadian Blood Services. (1998). About Us. Retrieved Jul 25, 2011, from Canadian Blood Services: http://www.bloodservices.ca/CentreApps/Internet/UW_V502_MainEngine.nsf/page/Abo ut%20Us?OpenDocument&CloseMenu Canadian Blood Services. (1998, Jan 1). Krever Report. Retrieved Jun 25, 2011, from Canadian Blood Services: http://www.bloodservices.ca/CentreApps/Internet/UW_V502_MainEngine.nsf/page/FAQ Krever?OpenDocument Canadian Federal Court of Appeal. (1997, Sep 26). Canada (Attorney General) v. Canada (Commission of Inquiry on the Blood System). Ottawa, ON, Canada. Canadian Hemophilia Society. (2008). Winter 2008 Vol 43 No 1. Hemophilia Today, 4. Canadian Red Cross. (2005, May 30). Public Statement Transcript. Retrieved Jun 22, 2011, from Canadian Red Cross: http://www.redcross.ca/article.asp?id=13578&tid=001 CBC News. (2006, Jul 25). Tainted Blood Scandal. Retrieved Jun 25, 2011, from CBC News: http://www.cbc.ca/news/background/taintedblood/index.html CBC News. (2007, Oct 1). Canada's tainted blood scandal: A timeline. Retrieved Jun 25, 2011, from CBC News In Depth: http://www.cbc.ca/news/background/taintedblood/bloodscandal_timeline.html Clarke, L., & Short, J. F. (1993). SOCIAL ORGANIZATION AND RISK: Some Current Controversies. Annual Review of Sociology, pp. 375-99. de Sousa, L. (2011, Jun 18). Comparing Buffalo Creek and Pan Am 103 - Catastrophe and Disaster. Vancouver, BC, Canada. de Sousa, L. (2011, May 29). Is there a difference between disaster, tragedy and catastrophe? Vancovuer, BC, Canada. Erikson, K. T. (1976). Everything in its Path. New York: Simon and Schuster Paperbacks. Kasperson, R. E., Renn, O., Slovic, P., Brown, H. S., Emel, J., Goble, R., et al. (1988, Jan 8). The Social Amplification of Risk: A Conceptual Framework. Risk Analysis, 8(2), 177- 187. Krever, H. (1997). Commision of Inquiry on the Blood System in Canada: Final Report 3 vols. Ottawa: Miinster of Supply and Services. Wikipedia. (2011, Jun 3). Habitus (sociology). Retrieved Jun 11, 2011, from Wikipedia: http://en.wikipedia.org/wiki/Habitus_(sociology) Leo de Sousa 21