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Storytelling as a Revolutionary Act: Healing Ourselves, Healing Our Communities,[object Object],Presentation by Leah Harris,[object Object],August 18-19, 2010 Annual Statewide PNG Meeting,[object Object]
The Power of Story,[object Object],“There is no greater agony than bearing an untold story inside you.” Maya Angelou ,[object Object],“During times of universal deceit, telling the truth becomes a revolutionary act.” – George Orwell,[object Object],“All sorrows can be borne if you put them into a story or tell a story about them.” Isak Dinesen ,[object Object]
"We have to be witnesses for those millions who are not speaking up now for whatever reason. That’s the role that I feel our movement needs to play right now in society--to speak up, tell the truth about what we have known, what we have experienced in our own lives.”  - Leonard Roy Frank,[object Object]
Some themes that emerge through our stories of struggle and survival,[object Object],Loss of voice and choice in mental health systems,[object Object],Trauma and loss pathologized as “illness”,[object Object],Rights violations: forced drugging, seclusion and restraint, involuntary commitment, abuse,[object Object],Losing connections with our loved ones, children and friends; isolation from community,[object Object],Loss of sense of self; we are no longer seen as people but as patients,[object Object],Loss of human dignity; humiliation and torture,[object Object],Others?,[object Object]
Esmin Green,[object Object]
Common themes: how we heal,[object Object],Regaining our freedom and rights,[object Object],Someone believes in us and our capacity to survive (and even thrive) despite what happened to us; trauma is acknowledged and released over time,[object Object],We have a decent place to live, work that means something to us, creative outlets, access to good food and fresh air,[object Object],Friends, relationships, connections – (or being left alone when we want that),[object Object],Natural, holistic supports and alternatives,[object Object],Activism/engagement in the community,[object Object],Others?,[object Object]
Storytelling for Advocacy Purposes
What Storytelling Does,[object Object],The shift: from patienthood to personhood,[object Object],As patients the “professionals” narrated their version of our story,[object Object],Today, we reclaim the essence of our story; a way of claiming our power and our humanity,[object Object],Commonalities in our stories point to a collective struggle but also a collective path to liberation,[object Object],When we have the courage to tell our story, it allows others the space to tell theirs,[object Object],The importance of speak-outs, speakers’ bureaus, oral history projects,[object Object]
The Personal is the Political: Human Rights,[object Object],I was able to let go of my private shame when I realized that I was not “defective” or “disordered” but the victim of human rights abuses in the name of “help”,[object Object],I connected with the stories of others and saw that I was not alone,[object Object],Like millions of oppressed peoples around the world, I can be part of an international movement to promote human rights and social justice,[object Object]
Storytelling for Advocacy Purposes
Our Human RightsPrinciples of the Convention on the Rights of Persons with Disabilities (Article 3),[object Object],Respect for inherent dignity, individual autonomy including the freedom to make one’s own choices, and independence of persons;,[object Object],Non-discrimination;,[object Object],Full and effective participation and inclusion in society;,[object Object],Respect for difference and acceptance of persons with disabilities as part of human diversity and humanity;,[object Object],Equality of opportunity;,[object Object],Accessibility;,[object Object],Equality between men and women;,[object Object],Respect for the evolving capacities of children with disabilities and respect for the right of children with disabilities to preserve their identities.,[object Object]
Our Human Rights (CRPD),[object Object],Persons with disabilities have the right to liberty on an equal basis with others. Deprivation of liberty cannot be justified on the basis of disability. ,[object Object],People with disabilities also have the right to live independently in the community (Article 19) on an equal basis with others.,[object Object]
Some Key Themes in the CRPD,[object Object],Article 12 of the CRPD confers personhood to all persons with disabilities and by recognizing that we have the legal capacity to run our own lives. Also if we so desire, we can seek support to exercise our legal capacity. ,[object Object],Article 25 obliges health care professionals to provide treatment only on the basis of free and informed consent. Free and informed consent can only be given by the person concerned, and not by family members, courts or others. ,[object Object],Article 15 of the Convention protects the right to freedom from torture and cruel, inhuman or degrading treatment or punishment, which includes medical or scientific experimentation without consent.,[object Object]
Policy and Societal Implications of our Stories,[object Object],[object Object]
Non-coercive, holistic, community choices, such as peer-run crisis respites
End to mental health courts, guardianship, etc.
Informed consent about “treatments” and medications
Natural community supports; housing, meaningful work, relationships, mutual support/mutual aid
Children’s rights
Care for each other and for our world
Others?,[object Object]

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Storytelling for Advocacy Purposes

Notas do Editor

  1. “Dear Dr.” – a way for me to make sense of what happened to me and to speak truth to power.
  2. Mindfreedom Oral History Project
  3. “Dear Dr.”