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Patients Like Me:
Building Online Communities for Healthcare
Kelli Matthews, Verve Northwest Communications
kelli@vervenorthwest.com
Why it matters   Your audience is online
Social
Technographics




                 Li & Bernoff’s Groundswell
Li & Bernoff’s Groundswell
88%                                                                       88%
I usually turn to my                                                         I usually turn to
    physician to                                                            other sources to
  validate info I get                                                       validate info I get
        online                                                               from my doctor
                        Edelman Health Engagement Barometer, October 2008
I am becoming more actively engaged in
health issues.



I am becoming more actively engaged
with Companies & Organizations involved
in health


It’s increasingly important that Companies
& Organizations involved in health engage
with me


                  Edelman Health Engagement Barometer, October 2008
Platform                          Examples

     Wikis                  Wikipedia, FluWiki, WiserWiki

                  DiabetesMine, HealthMatters, WebMD, Paul Levy
    Blogs
                  OrganizedWisdom, PatientsLikeMe, Daily Strength,
                   Sermo, ReliefInSite, NursesRecommendDoctors,
Social Networks
                     TheHealthCareScoop, MySpace, Facebook

                                   ICYou, YouTube
Video-Sharing
               Yahoo! Groups, Revolution Health Groups, Google
              Health Groups, UCompareHealthCare, About Groups,
Online Forums
                                   iVillage

                  Johns Hopkins Medical Podcasts, NIH Podcasts,
   Podcasts       CDC Traveler’s Health, dLife podcasts for diabetes
Do you
need to
listen?


Gaining New Insights From the Clues Your Customers Leave Online
What it means to you

• Find out what your brand stands
  for

• Understand how buzz is shifting

• Increase research responsiveness

• Find sources of influence

• Manage a crisis

• Generate new marketing ideas
www.google.com/alerts
RSS in Plain English




          Google Reader in Plain English




             Social Media in Plain English


Three helpful videos - from Common Craft’s “in plain english” series.
Do you
need to
talk?


 Not Screaming & Shouting at Your Customers, But Having
                    a Conversation
Blogging & Social
Networks

• Depth to complement reach

• Two-way communication
  realized

• It’s a small world, join the
  conversation

• Be human!

• SEO, baby

• Meet your objectives
The Value of Online
Communities

• Wisdom of Crowds


• Empowerment


• Positive feelings


• Increased Trust/Credibility
Make it Local

• Your patients are already
  searching

• Build relationships online
Allow Patients to Seek Support & Connect
with Family & Friends
•   CarePages
•   CaringBridge
Mayo Clinic on Facebook
 online community & social network



Palo Alto Health Foundation
   education: podcasts & videos



Johns Hopkins Podcasts
       education: podcasts
Medical University of S. Carolina
   education: podcasts & videos



myMDAnderson
 online community & interactive planner




University of Wisconsin Health
   education: podcasts & videos
     community: CarePages
Do you
need to
energize?


   Create Word of Mouth Evangelists With Social Media
Give people the tools

• Create ambassadors
The New Patient Influentials:
•   More likely to work in health
    field
•   More likely to have chronic or
    severe health conditions
•   More likely to be a caregiver
•   More likely to take prescription
    medications




                        Edelman Health Engagement Barometer, October 2008
How can
you
embrace?
Start With Baby Steps
Get Knowledgeable
Make Your Department Knowledgeable
Help Management be Knowledgeable

Then...

Find a product or service to test the
waters
Oregon Heart & Vascular Institute at
Riverbend

• A group blog written by: doctors, nurses,
  dieticians, trainers, wellness managers

• Video sharing with cooking classes,
  exercises, animations and explanations of
  surgeries, interviews with doctors

• Networking to allow patients to connect
  with providers and other heart patients;
  share experiences and ask advice

• Online journal of food, exercise, recovery,
  symptoms, etc. that could be shared with
  other patients and their physicians.
If you don’t, others
will...

• Patients will share their
  experiences on blogs, in
  chatrooms, forums and social
  networks.


• Employees will blog, chat and
  connect.
• Privacy
• Misinformation
• Authenticity
• Commitment




           The Risks of Participation
First Steps:
•   Look at your budget
•   Understand your audience
•   Listen! & Monitor
•   Create an internal blog or social
    network
Kelli Matthews
kelli@vervenorthwest.com
(541) 579-5888

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Building Online Communities for Healthcare Engagement

  • 1. Patients Like Me: Building Online Communities for Healthcare Kelli Matthews, Verve Northwest Communications kelli@vervenorthwest.com
  • 2. Why it matters Your audience is online
  • 3. Social Technographics Li & Bernoff’s Groundswell
  • 4. Li & Bernoff’s Groundswell
  • 5.
  • 6. 88% 88% I usually turn to my I usually turn to physician to other sources to validate info I get validate info I get online from my doctor Edelman Health Engagement Barometer, October 2008
  • 7.
  • 8. I am becoming more actively engaged in health issues. I am becoming more actively engaged with Companies & Organizations involved in health It’s increasingly important that Companies & Organizations involved in health engage with me Edelman Health Engagement Barometer, October 2008
  • 9.
  • 10. Platform Examples Wikis Wikipedia, FluWiki, WiserWiki DiabetesMine, HealthMatters, WebMD, Paul Levy Blogs OrganizedWisdom, PatientsLikeMe, Daily Strength, Sermo, ReliefInSite, NursesRecommendDoctors, Social Networks TheHealthCareScoop, MySpace, Facebook ICYou, YouTube Video-Sharing Yahoo! Groups, Revolution Health Groups, Google Health Groups, UCompareHealthCare, About Groups, Online Forums iVillage Johns Hopkins Medical Podcasts, NIH Podcasts, Podcasts CDC Traveler’s Health, dLife podcasts for diabetes
  • 11. Do you need to listen? Gaining New Insights From the Clues Your Customers Leave Online
  • 12. What it means to you • Find out what your brand stands for • Understand how buzz is shifting • Increase research responsiveness • Find sources of influence • Manage a crisis • Generate new marketing ideas
  • 14. RSS in Plain English Google Reader in Plain English Social Media in Plain English Three helpful videos - from Common Craft’s “in plain english” series.
  • 15. Do you need to talk? Not Screaming & Shouting at Your Customers, But Having a Conversation
  • 16. Blogging & Social Networks • Depth to complement reach • Two-way communication realized • It’s a small world, join the conversation • Be human! • SEO, baby • Meet your objectives
  • 17. The Value of Online Communities • Wisdom of Crowds • Empowerment • Positive feelings • Increased Trust/Credibility
  • 18. Make it Local • Your patients are already searching • Build relationships online
  • 19. Allow Patients to Seek Support & Connect with Family & Friends • CarePages • CaringBridge
  • 20. Mayo Clinic on Facebook online community & social network Palo Alto Health Foundation education: podcasts & videos Johns Hopkins Podcasts education: podcasts
  • 21. Medical University of S. Carolina education: podcasts & videos myMDAnderson online community & interactive planner University of Wisconsin Health education: podcasts & videos community: CarePages
  • 22. Do you need to energize? Create Word of Mouth Evangelists With Social Media
  • 23. Give people the tools • Create ambassadors
  • 24. The New Patient Influentials: • More likely to work in health field • More likely to have chronic or severe health conditions • More likely to be a caregiver • More likely to take prescription medications Edelman Health Engagement Barometer, October 2008
  • 26. Start With Baby Steps Get Knowledgeable Make Your Department Knowledgeable Help Management be Knowledgeable Then... Find a product or service to test the waters
  • 27. Oregon Heart & Vascular Institute at Riverbend • A group blog written by: doctors, nurses, dieticians, trainers, wellness managers • Video sharing with cooking classes, exercises, animations and explanations of surgeries, interviews with doctors • Networking to allow patients to connect with providers and other heart patients; share experiences and ask advice • Online journal of food, exercise, recovery, symptoms, etc. that could be shared with other patients and their physicians.
  • 28. If you don’t, others will... • Patients will share their experiences on blogs, in chatrooms, forums and social networks. • Employees will blog, chat and connect.
  • 29. • Privacy • Misinformation • Authenticity • Commitment The Risks of Participation
  • 30. First Steps: • Look at your budget • Understand your audience • Listen! & Monitor • Create an internal blog or social network