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The Plymouth Laryngectomy Club (PLC)
  A Charitable Support Group for Plymouth Cancer Laryngectomees



 The Voice of PLC
 September – October 2011
 Address: c/o 80 Warleigh Avenue, PLYMOUTH, PL2 1DH, Devon, UK
 Mobile: 07745819828 (text only) Email: saudigeoff@yahoo.co.uk          Website: http://plymouthlc.webs.com


            FOREWORD BY THE CHAIR                                                                         GREETINGS!
              Written by Edward (Ted) BURNETT

Welcome Members and Friends!
                                                                                 B   EST WISHES TO Susan STEPHENSON for her birthday
                                                                                                  th
                                                                                     on Sunday, 25 September 2011. Susan is staunch
                                                                                 and loyal member of PLC. Have a lovely day Susan!

Well, our first year of PLC has passed! In fact, it's
been more than a year, and I think it’s been quite an
interesting time for us all.
                                                                                 H    APPY BIRTHDAY TO Alan Derek PEACEY for Wednesday,
                                                                                         th
                                                                                      28 September 2011. Alan is a Friend of PLC although
                                                                                 he resides in Norway!
We’ve had a wide range of guest speakers and
managed a few outside trips and events.
I should like to thank everyone for their help and
                                                                                 C   ONGRATULATIONS TO Ted & Liz BURNETT for Friday,
                                                                                       st
                                                                                     21 October 2011 on the occasion of their anniversary.
                                                                                 Ted was the Chair of PLC for 2010 – 11. And we all know that
support during our first year... to name just a few:                             behind any good man is a good woman! Well done Liz!
The Staff of the Mustard Tree Cancer Support Centre
who have been excellent hosts and have always
made us all very welcome!
Maggie, Emer and Julia for their part in giving us the
                                                                                 D     EVOTED HUSBAND. This is for all women who think
                                                                                       men are heartless!

help, support and advice any time we needed it.
Geoff, who as I think you will all agree, has worked
tirelessly as our Club’s Secretary.
Jean, for all her hard work as Treasurer in sorting out
the finances for our Club.
And finally I should like to thank all our Members and
Friends for showing their support.
Because without you we would not have a club!
Many thanks!

Ted
Chair, PLC

                EDITORIAL COMMENT
I  NTERNET Links. If you’re reading this on-line and come
   across words with blue lettering that are underlined, then
you can click on these links and be taken directly to another
site for more information on that particular topic.
If you read this on Microsoft Word, you can put your cursor
over the link, hold down the Control (Ctrl) Key and click! Ed.


    The Plymouth Laryngectomy Club (PLC) is an Affiliated Member of: The National Association of Laryngectomy Clubs (NALC)
    In Association with Macmillan Cancer Support
    Registered Charity Number: 273635
    Our Funder: Macmillan Cancer Support

    A Member of The Plymouth Third Sector Consortium (PTSC)

    Patrons & Medical Advisors : Mr. W.M. BRIDGER, FRCS - Consultant ENT Surgeon,
    Mr. Tass MALIK, BSc FRCS (Gen), FRCS (ORL H&N) - Consultant Otolaryngologist, Head & Neck / Thyroid Surgeon, Derriford Hospital, Plymouth.
THE PLC SEPTEMBER 2011 MEETING                                              R   AFFLE. Because of the few numbers attending the
                                                                                    September 2011 Meeting it was decided to dispense
O    UR SEPTEMBER 2011 Meeting took place at the
     Mustard Tree Cancer Support Center at Derriford
                                                                                with the monthly raffle this time.


                                                                                S
                      th
Hospital on Monday, 5 September 2011 at 11 a.m. There                               UBSCRIPTIONS. Because of the few numbers attending
were only seven of us in attendance including three Friends.                        the September 2011 Meeting it was decided not to
Another member joined us later. The business side of the                        collect any subs this month.
meeting was kept very brief with Ted simply giving an
overview on forthcoming events.
         Mr. Charles HANDLEY of Countrywide Supplies Ltd.
                                                                                T  REASURER’S REPORT. Because of the few numbers
                                                                                   attending the September 2011 Meeting it was decided
                                                                                hold over the report until the October 2011 Meeting.
          gave us an informative talk regarding his products.
          He reminded us once again that before ordering                                     THE PLC CHARABANC TRIP
          something new from his catalogue we should
          always remember to first seek approval from
          Maggie or Julia. As all Members attending were
                                                                                S   EVEN INTREPID PLC MEMBERS met at the Roborough
                                                                                                                              th
                                                                                    Tesco’s Car Park at 2 p.m. on Saturday, 10 September
                                                                                2011 to go on a Coach Trip to Dartmeet to enjoy a real
          alrerady customers of Countrywide it was difficult to
                                                                                Devon Cream Tea. Dartmeet is set in a particularly
          judge whether Charles was content or frustrated!
                                                                                beautiful part of Dartmoor with rolling tors (hills) and a
          Ted presented Charrles with a Plymouth Tie Pin /
                                                                                fast-flowing running river.
          Lapel Badge and a Thank You Card on behalf of all
                                                                                The sun even managed to
          Members.
                                                                                shine for us! The journey
         Mr. Michael W.M. BRIDGER, a Consultant Surgeon                        to and from Dartmeet
          at ENT Derriford Hospital will be retiring fairly soon                meanders through some
          He is widely respected amongst medical staff and                      lovely scenery and it was
          patients alike, and will be missed. We were so                        a rare treat for the drivers
          grateful to him for giving up some of his valuable                    amongst us to be able to
          time to give us an extremely informative talk about                   take in those views...
          his lifetime’s work on head-and-neck cancers and                      rather than concentrating on the road! We held a raffle
          how treatments have changed over the years. He                        during our Cream Tea that realised £8 which we promptly
          was a pioneer in his field in his day! Mr. BRIDGER                    handed over to Patrick, our driver, as his tip for the day!
          also gave an update on which direction he thought                     Fiona won the prize so she’ll be supplying the prize for our
          treatments might go in the future, touching upon                      October 2011 Meeting.
          laser and transplants. All very interesting! Ted then
          presented Mr. BRIDGER with a Certificate of
          Appreciation on behalf of all Club Members.
In the picture: Ted BURNETT presenting a Certificate of
Appreciation to Mr. Michael W.M. BRIDGER.




Photograph courtesy of Liz BURNETT

More photographs at: Photobucket.com (fullscreen slideshow),
and PLC Facebook page (smaller but faster).




                                                                                Photographs courtesy of Liz BURNETT            →   View Slideshow

                           Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
                                 or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com
                                                                                                                                                    2
N
                                                                                                                          th
Charabanc                                                                            OVEMBER 2011. Monday, 7 November 2011:
From Wikipedia, the free encyclopedia                                                John MCKENNA of ColeBROOK Housing Carers has kindly
                                                                                accepted our invitation to be our Guest Speaker.
  This 1920 Punch cartoon shows UK government
  ministers in a charabanc.
                                                                                D
                                                                                                                     th
                                                                                     ECEMBER 2011. Monday, 5 December 2011:
  A charabanc or "char-à-                                                            Members agreed at the August
  banc" is a type of horse-                                                     2011 Meeting that Ted should book a
  drawn vehicle or early                                                        Christmas Dinner to be held at the
  motor coach, usually                                                          Acropolis Restaurant in Plymouth City
  open-topped, common                                                           Centre at 7 p.m. Members also agreed
  in Britain during the                                                         that the cost of this event should be
                          th
  early part of the 20                                                          offset by Club Funds.
  century. It was especially popular for sight-seeing or
  works outings to the country or the seaside, organised                         DERRIFORD HOSPITAL CANCER SERVICES
  by businesses once a year. The name derives from the
                                                                                GEOFF ATTENDED AN Internal Head & Neck Validation Panel
  French char à bancs (carriage with wooden benches),                                                                        th
                                                          th                    Meeting at Derriford Hospital on Monday, 15 August 2011.
  the vehicle having originated in France in the early 19
                                                                                Geoff was in attendance as an observer in an attempt to gain
  century.
                                                                                a continuing insight into the Peer Review Process. Should
  Although the vehicle has not been common on the
                                                                                anyone wish to have further information, please don’t
  roads since the 1920s, a few signs survive from the era;
                                                                                hesitate to contact Geoff.
  a notable example at Wookey Hole in Somerset warns
  that the road to the neighbouring village of Easton is
  unsuitable for charabancs.                                                           THE NATIONAL ASSOCIATION OF
                                                                                          LARYNGTECTOMY CLUBS
                                                                                                 (NALC)
         THE PLC FORECAST OF EVENTS
C  ALENDAR of EVENTS. A copy of the Club’s Calendar of
   Events, including Future Entertainments for the next 12
                                                                                P   LC RECEIVED A COPY of the minutes of the meeting of
                                                                                                                                    th
                                                                                    the NALC General Committee held on Monday, 4 July
                                                                                2011. NALC only ever send the one copy so if anyone wishes
months or so, is available on our Club’s website. Please keep                   to see a copy then do please let Geoff know. PLC was not
yourselves up-to-date by taking an occasional peek!                             represented. Just for interest, these are the main points
                                                                                covered:

S
                                           th
    EPTEMBER 2011. Wednesday, 14 September 2011:
                                                                                      Attendance. 18 representatives from across the UK
    The Speak Easy Club in Cornwall has invited Members of
                                                                                       were in attendance.
PLC for a trip to Devoran, near Truro, for a Soup & Sandwich
lunch. Members of the Recovery Club from Cornwall have                                Finance.     Current Account:           £65,235.54
also been invited. Those who have given their names to                                              Business Account :         £34,818.63
Geoff so far have a car seat reserved. Anyone else wishing to                         AGM. The AGM was held in London but the turnout
attend should notify Geoff as soon as possible so as to avoid                          was poor. Geoff and Jean represented PLC.
disappointment. We aim to meet up at Devoran Church at
12 noon.                                                                              Annual Luncheon. The Annual Lunch was held on
                                                                                                  th
                                                                                       Sunday, 4 September 2011 at Penrith. Although

O
                                  th
      CTOBER 2011. Friday, 7 October 2011:                                             invited, none of our Members attended.
      A Laryngectomee Study Day is being organised by                                 Larynx Transplants. An article will be published soon
Julia and Maggie. It will be held at the Mustard Tree                                  in the CLAN Magazine.
Cancer Support Centre. Please make a note of this date in
your diaries as we have cancelled our normal Club Meeting                             Next Transplants. An article will be published soon
               rd
for Monday, 3 October 2011! Our Club Meeting will take                                 in the CLAN Magazine.
place in the Double Room of the Mustard Tree between 11
                        th
and 12 noon on the 7 ... just prior to lunch. Members                                              PLC ON FACEBOOK
should note that we have been invited to attend both
morning and afternoon sessions, as well as lunch, which
has kindly been provided by our Medical Equipment
                                                                                K    ANDA, OUR WEBMASTER, has now put our Club on
                                                                                     Facebook. Please do go online and take a look. Go to
                                                                                Facebook and then put                   Plymouth
Suppliers. So do please come prepared for a longer stay                         Laryngectomy Club into the Search Box!
than normal! Click THIS to view the full programme. A hard                      Alternatively, just click on this link. When you
copy of the programme is attached for those not on-line.                        get there, please show us your support by
                                                                                clicking on the LIKE button. And do please
                                                                                leave a comment... this is YOUR Facebook Page!




                           Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
                                 or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com
                                                                                                                                            3
THE RECOVERY CLUB, CORNWALL                                                        NEWS & CURRENT EVENTS
G    EOFF EMAILED A copy of the August 2011 Newsletter to
     those of our members on-line. Those not on-line should
contact Geoff for a hard copy. Some of us will have the
                                                                                                           DISCLAIMER
                                                                               Please note that the views and opinions expressed in this section are
                                                                                not necessarily those held by the PLC Committee nor its Members.
opportunity of meeting up with members of The Recovery
Club on our trip to Devoran in September 2011. The Recovery
Club and the Speak Easy Club will both be in attendance!
                                                                              A    GIFT OF a Voice. I wanted to share with you the story A
                                                                                   Gift of a Voice which is about my efforts to speak again.
                                                                              It was posted in the Georgetown University Homepage as a
That's good news!
                                                                              feature story and can be seen on-line at:
                                                                              http://gumc.georgetown.edu/news/stories/230883.html
             LETTERS TO THE EDITOR                                            For those not on-line, it’s repeated below... I do hope that
                                                                              you will find it inspirational!
From: THOMAS Nicola (TORBAY CARE TRUST)                                       Thanks!
To: Geoffrey READ saudigeoff@yahoo.co.uk
                                                                              Itzhak BROOK, MD, MSc
Sent: Thu, 11 August, 2011 9:27:01
Subject: RE: PLC NEWSLETTER                                                   Professor of Medicine
                                                                              Georgetown University
Geoff,                                                                        Washington DC, USA
                                                                              Blog site: driBROOK.blogspot.com
Thanks for your newsletter.      I’ve added your website                      Email:     ib6@georgetown.edu
address on our website, on the support page. The link is:
http://www.peninsulacancernetwork.org.uk/public/others                                          THE GIFT OF A VOICE
upport/Pages/HeadNeck.aspx
                                                                              STARING AT THE AUDIENCE, Dr. Itzhak BROOK was nervous.
Hope this is OK!                                                              In front of him were doctors and cancer survivors. He thought
Nikki                                                                         about surviving Israeli wars and the time he lost a patient, but
                                                                              nothing would prepare him for his first speech after losing his
Nikki THOMAS                                                                  vocal cords to cancer.
Network Nurse Director
Peninsula Cancer Network
                                                                              Outfitted with a prosthesis to help him speak, BROOK faced a
www.peninsulacancernetwork.org.uk                                             challenging audience: would they stay or would they go?
www.facebook.com/peninsulacancernetwork                                       What BROOK learned after his speech would help him realise
Editorial Comment: Thanks Nicola! I hope other organisations                  the power and gift of his voice.
will follow your lead! Ed.                                                    As a professor at Georgetown University Medical Center,
                                                                              BROOK is revered for his professionalism and ability to teach
              THE SOUTH WESTERN                                               medical students the art and science of medicine. A natural at
                                                                              the sciences, BROOK discovered his affinity for medicine as a
              AMBULANCE SERVICE                                               young child.

G     EOFF RECENTLY VISITED the South Western Ambulance
      Services Training College recently where he met up with
Lizzie RYAN, the Education
                                                                              “Growing up my parents believed in a solid education,” says
                                                                              BROOK. “I felt an obligation to make something of my life and
                                                                              my passion for medicine evolved throughout high school.”
Business Manager. It was agreed                                               BROOK finished medical school in Jerusalem, Israel and
that the Ambulance Service                                                    completed fellowships at Ivy League universities in the United
Emergency Control Room for our                                                States, publishing research on anaerobic microbes and head
region could flag-up the names                                                and neck infections. He says it was in paediatric infectious
and details of our Club Members                                               diseases where he felt most at home.
so, in the event of a medical emergency, the Service could                    “When I was a doctor of internal medicine, I lost a couple of
ensure that their paramedics could be properly briefed that the               patients and that was hard for me,” says BROOK. “But when I
patient was a Laryngectomee so they would know what to do,                    went [in]to paediatrics and infectious diseases, I felt I could
and more importantly, what not to do! The Service could also                  fight and win on behalf of my patients... it was so rewarding
ensure their ambulances would be kitted out with any special                  for me.”
neck-breathing equipment that may be necessary.                               Along the way BROOK lectured medical students and
The Data Protection Act forbids me passing anyone’s personal                  physicians and treated patients using his voice as an
details to anyone else without that individual’s authority. So if             instrument to share his love and passion for medicine.
you wish to take part in this scheme, would you please                        That all changed in 2006 when BROOK was diagnosed with
complete the attached form and email it, or pass it back to me?               cancer.
I will then ensure that your details are passed on to our local               After learning he had throat cancer, BROOK explains he was
Ambulance Service.                                                            “shaken to the core” and did not share it with his friends or
This authorisation will need to be renewed every six months                   colleagues.
but don’t worry... the Club will send out reminders. One last                 “It felt like a death sentence,” says BROOK. “I asked my
point: Laryngectomees do not have to be Club Members to                       children and wife to keep the news private because I did not
participate in this Scheme and we have passed blank forms to                  want to feel stigmatized as a cancer patient for fear of looking
Julia and Maggie to dish out to their patients as required.                   weak and vulnerable.”

                         Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
                               or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com
                                                                                                                                                  4
BROOK felt as if his lucky star was gone.                                     So when he was asked to give a lecture to a large group
But, with the love and support of his family guiding him,                     following his treatment, BROOK hesitated, but after much
BROOK made it through the gruelling radiation appointments                    thought he accepted the invitation.
that required a leave of absence from work and teaching.                      Although he feared people would walk out of the room,
While recovering from the first round of treatment, BROOK                     unable to understand or cringe at his airy, soft whisper, he
received some unexpected news from his doctor.                                began to speak. “I am Dr. Itzhak BROOK,” he said. “I am a
His cancer was back with a vengeance. This time, BROOK did                    cancer survivor.”
not have a choice except to tell his friends and family his                   To his surprise, no one left the room. Instead, all remained
diagnosis was bleak.                                                          silent as he recounted the story of his amazing fight with an
BROOK and his wife felt it best to tell their children in person,             eventual victory.
not over the phone. He met with them face-to-face so that he                  This first public speech after cancer awakened a new passion
could answer their questions.                                                 in him... to share his story with patients and doctors,
“Each one of my five children is special and we took a lot of                 encouraging patient-doctor communication and active
time deciding how to tell them my cancer had returned,” says                  patient participation.
BROOK.                                                                        He now tours the country giving lectures and presentations,
His daughter, Sara BROOK, was devastated. “My dad had                         no longer the hesitant individual afraid to share his voice, but
always been a symbol of strength in my life and his sickness                  a man who has learned that his soft whisper has the impact
forced me to accept that he was vulnerable,” she says.                        of a shout.
“Although he has approached his sickness with the same                        By Tressa KIRBY, GUMC Communications
persistence he's exhibited during previous challenges, cancer                 Published July 20, 2011
is such an unknown and powerful force. It's a scary fight.”
After revealing the news to his family and friends he was
surprised at the outpouring of emotional support. People did
not stigmatise him or turn their backs, instead they embraced
                                                                              C   ANCER LARYNGECTOMEE TRUST. Geoff has received a
                                                                                  hard copy of the September 2011 edition of their
                                                                              Newsletter. Please contact Geoff if you wish to see a copy.
him.                                                                          Alternatively, you can contact the Trust at:
BROOK found an otolaryngologist who would see him
through his darkest days. The doctor informed BROOK that                      Cancer Laryngectomee Trust,
his only hope for a cure was to remove his larynx... a                        National Association of Neck Breathers,
procedure that would leave him voiceless.                                     P.O. Box 618,
“All of my life I have used my voice to teach and to                          Halifax HX3 8WX
communicate with patients,” says BROOK. “The thought of                       Telephone:        (01422) 205 522
losing my voice was terrifying but I didn’t have a choice... it               Website:           www.cancerlt.org
                                                                              Email:            info@cancerlt.org
was lose my life to cancer or lose my voice... I chose losing my
voice.”
BROOK did receive some good news prior to surgery. His
doctors told him a voice prosthesis might allow him to speak
                                                                              C    ARE QUALITY COMMISSION (CQC): The CQC has now
                                                                                   published its Annual Report & Accounts for 2010/11. This
                                                                              shows that they have now completed the task of registering
again one day in the future, but it would be a slow and
tedious process. This hopeful possibility that would help get                 all adult social care and independent
BROOK through surgery.                                                        healthcare services, as well as private
After the surgery, BROOK fought frustration and depression                    ambulances and dentists... almost
and faced additional health issues as a result of surgery.                    30,000 services in total... to the timescales set in legislation.
Then there were the uncertainties of the voice prosthesis...                  They say that this meant diverting resources away from core
how would his voice sound? What if the prosthesis failed to                   inspection functions for a time, leading to a temporary drop
work?                                                                         in the numbers of inspections. Inspections will now become
The surgery to insert the voice prosthesis was successful, but                the top priority. An electronic copy of the report is available
speaking again did not come easily. Learning to speak                         at: http://www.cqc.org.uk/publications.cfm?fde_id=18566.
included additional speech pathology visits and, as BROOK                     The report is 100 pages in length so Geoff cannot help out
feared, he was not immediately comfortable with the sound                     those not on-line!
of his new voice.
“Imagine not sounding like yourself,” says BROOK. “I spoke
with a soft whisper... I had no idea how people might react.”
                                                                              C    LAN NEWSLETTER. CLAN is the official magazine of the
                                                                                   National Association of Laryngectomee Clubs (NALC). The
                                                                              Plymouth Laryngectomy Club is affiliated to NALC.
Following physical therapy and learning to use his prosthesis,
BROOK rebounded. He returned to teaching and the medical                      The September 2011 edition of CLAN is online now!
profession. But, this time, he was going to do it differently.                Click to view it fullscreen
He no longer remains distant from his patients.                               Download the pdf (825.82 KB)
Now he hugs them, he comforts them. He encourages them                        I have received some hard copies
to use their voices and to speak up when something is wrong.                  which I will be redistributing to
He knows what it’s like to be in their shoes.                                 members who are not on-line.
“Our voice is our most powerful tool. It’s our biggest                         I do hope you all get the time to
advocate for our health and wellness,” he says.                               read this edition as there are
                                                                              some insteresting snippets inside it.

                         Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
                               or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com
                                                                                                                                             5
E   XERCISE, NOT REST, is Important After Ops. This article
                                               th
    was published in The Herald on Thursday, 11 August 2011.
                                                                              ROBSON, who was the Thailand national coach at the time,
                                                                              went to doctors after having difficulty swallowing and feeling a
                                                                              lump on his throat. He underwent surgery and radiotherapy.
MACMILLAN Cancer Support has launched a campaign to
                                                                              ROBSON said yesterday: ‘It was great news that I had in the
encourage people in Plymouth affected by cancer to exercise
                                                                              letter. Things seem to be going well for me.’
more.
                                                                              He said he was overwhelmed by the level of support from the
The Move More campaign follows a report that showed the
                                                                              public.
importance of physical activity in the recovery and long-term
                                                                              'I’ve been getting messages all the time and I have had great
health of cancer patients. Patients have long been
                                                                              support from fans throughout the world and at West Brom,
encouraged to rest after treatment, something which Move
                                                                              Middlesbrough, Thailand and obviously United.
More shows puts cancer patients at risk.
                                                                              'I’d like to thank everyone for that.'
Macmillan Cancer Support has estimated that at least 1.6
                                                                              ROBSON joined the Reds in 1981 for a then British record of
million cancer survivors are at risk of long-term health
                                                                              £1.8m.
problems and the recurrence of some cancers because they
                                                                              In what was a barren decade by their standards his all-action
are not exercising enough. The report found that 150
                                                                              performances helped them lift the FA Cup in 1983. ROBSON
minutes of exercise a week can cut the risk of breast cancer
                                                                              also lifted the Cup Winners Cup in 1991, the Premier League in
recurring by 40%, compared to those doing less than an hour.
                                                                              1993 and 1994 - the same year the Red Devils also won the FA
Similarly, the risk of bowel cancer returning can be reduced
                                                                              Cup.
by roughly half by doing six hours of moderate physical
                                                                              He won 90 England caps and scored 26 goals.
activity per week and the risk of dying from prostate cancer
can be reduced by up to 30% with 150 minutes of moderate                      To read more please click on this link.
exercise a week.
The survey found that many health professionals are not
aware of emerging evidence that exercise could improve
recovery and long-term health. The survey showed that 72
                                                                              T  HE MONKEE WHO Sings Better Than Ever Because He
                                                                                 Had Throat Cancer. This article was published in the Daily
                                                                                                 th
                                                                              Mail on Tuesday, 16 August 2011.
per cent of GPs and 60% of oncologists do not discuss the
                                                                              Having long ago turned his back on his wild rock past, Peter
possible benefits of exercise with their patients.
                                                                                                                  TORK had every reason to
David CROSBY, from Macmillan Cancer Support, said: "There
                                                                                                                  think     he      was    in
really needs to be a cultural change, so that health
                                                                                                                  reasonably good health.
professionals see physical activity as an integral part of cancer
                                                                                                                  But two years ago, The
after care, not just an optional add on."
                                                                                                                  Monkees star received
He added: "It doesn't need to be anything too strenuous...
                                                                                                                  terrifying news... the dry
doing the gardening, going for a brisk walk or swim all count.
                                                                                                                  throat and husky voice
Health professionals can refer patients to a variety of services."
                                                                                                                  he’d developed were
                                                                                                                  signs of cancer of the
                                                                                                                  neck. The diagnosis was
                                                                                                                  ‘a real jolt’, says the 69-
                                                                                                                  year-old.
                                                                              His symptoms first appeared in the autumn of late 2008.
                                                                              If you wish to read more, then please click on this link.
I 'VE BEATEN CANCER, says Ex-England Star Bryan ROBSON
  after being given the All Clear. This article was published
                                th
in the Daily Mail on Friday, 26 August 2011.
All clear: Bryan ROBSON has
                                                                              N     EW PATIENT TRANSPORT Policy for Plymouth. NHS
                                                                                    Plymouth is carrying out a piece of work about the
                                                                              production and implementation of a Patient Transport Policy,
beaten throat cancer after he
                                                                              the purpose of which is to make sure that they are in line with
received a letter from a doctor
that treated him.
                                                                              national practice and that they have clear guidance on the
                                                                              management of patient transport. Additionally, the policy
Former England football captain                                               hopes to ensure that resources are targeted to the right
Bryan ROBSON has declared                                                     people at the right time, with the appropriate level of
that he has beaten throat                                                     support. This policy has been developed in conjunction with
cancer.                                                                       both NHS Devon & Cornwall & Isles of Scilly NHS Trust, to
The 54-year-old said he was                                                   ensure a standardised approach for all patients across the
given the news in a letter from                                               South West Peninsula.
the specialist who treated him.                                               They would welcome any feedback that people might be able
ROBSON will now have another                                                  to give. If any groups feel it would be useful for NHS Plymouth
check-up to make sure the rest of his body is clear but says                  to come out and discuss it with them they would be happy to
medics are confident that will be the case.                                   do this.
It was revealed in March that the former Manchester United                    The national policies which have been used to inform the
star, nicknamed ‘Captain Marvel’, had been diagnosed with the                 production of local policy are as follows:
disease.


                         Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
                               or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com
                                                                                                                                            6
• Health Care Travel Costs Scheme
• Patient Transport Service

Further supporting information is available on the NHS
Plymouth Website.
                                                                              Editorial Comment: Geoff applied to have PLC included in
Let us know what you think about patient transport and
                                                                              the POD and we have since been added.
how it could be improved... we need to hear from you by
  th
12 September 2011. Please contact the Plymouth LINk
Support Team:
Freepost RRZE-AGZT-EXRS
                                                                              T RIO APPOINTED TO Help Run New Health Company.
                                                                                This article was published in The Plymouth Herald on
                                                                                            st
                                                                              Wednesday, 31 August 2011:
LINk Support Team
Unit 15, HQ Building,                                                         TWO former police chiefs and a banker will help run a new
237 Union Street,                                                             company set to take over Plymouth's Community Health
PLYMOUTH, PL1 3HQ, Devon.
Telephone: (01752) 202407
                                                                              Services.
Mobile:     07533 432200                                                      Morris WATTS, Jim WEBSTER and Marie KERR have been
Website: www.plymouth-link.co.uk                                              appointed as non-executive directors of Plymouth
Email:      info@plymouth-link.co.uk                                          Community Healthcare.
                                                                              The social enterprise will take control of community health

P   LYMOUTH HEALTHWATCH Information Event. This event
                                     nd
    will take place on Thursday, 22 September 2011 from 9
a.m. until 1 p.m. in the Charter Room of Plymouth Guildhall.
                                                                              services, 2,200 staff and a £90million budget from NHS
                                                                              Plymouth, the city's Primary Care Trust (PCT).
                                                                              The shift is part of nationwide changes, started under Labour
   Discuss how HealthWatch can represent local views                         and being taken on by the coalition. It is taking shape
   Find out about the Government’s plans for HealthWatch                     alongside other NHS reforms including giving GPs wider
   Share your ideas about how it could work                                  funding powers when PCTs are abolished. Duncan CURRALL,
Please contact Plymouth LINk to let them know if you would                    Plymouth Community Healthcare chair designate, said he was
like to attend and give your preferred date at:                               delighted to announce the three appointments.
Plymouth LINk Support Team                                                    The new organisation, which will provide community and
                                                                              mental health services for the people of Plymouth, is due to
Freepost RRZE-AGZT-EXRS,                                                                                  st
Unit 15, HQ Building,                                                         be launched on Saturday, 1 October 2011.
237 Union Street,                                                             Please click on this link to read more.
Plymouth, PL2 3HQ, Devon.
Telephone: (01752) 202407
Email: info@plymouth-link.co.uk
                                                                              T    RIPS & DAYS Out on Offer to Care for Carers. This article
                                                                                                                            th
                                                                                   was published in The Herald on Friday, 12 August 2011:

S  OCIAL CARE DIRECTORY Launched. This article was
   published in The Plymouth Herald on Wednesday, 17
August 2011.
                                                     th                       CARERS are invited to take part in free summer activities.
                                                                              Carers Champions are working with other organisations to put
                                                                                              on a range of events in coming months... for
PLYMOUTH City Council has launched a new                                                      carers and the people they support.
online directory of Social Care & Health                                                      Options include massage treatments, meal
Services.                                                                                     out, trips to Paignton Zoo, a backstage tour
The Plymouth Online Directory (POD) has been                                  of the Theatre Royal with lunch, and a trip to Buckfast Abbey.
designed to make information more accessible                                  There will also be a course on Assertiveness & Confidence
and give people greater choice and control                                    Building. Some activities require a £2 deposit.
over the services they want to use.                                           For more details and to secure a place call Carers Champions
The website draws together information about health and                       team on (01752) 211348.
wellbeing, highlighting services and organisations to help
people maintain their independence in their own homes.
It contains information on local and national charities,
community groups and organisations offering advocacy
                                                                              W       HAT IS THE Equality Delivery System (EDS)? The
                                                                                      EDS has been designed to support NHS organisations
                                                                              to deliver better services for patients and communities which
services, money advice and training, employment and                           are personal, fair and diverse. It will help organisations meet
volunteering opportunities                                                    the requirements of the Equality Duty which include having
Councillor Grant MONAHAN, Cabinet member for Adult                            due regard for the need to:
Health & Social Care, said: "People are increasingly choosing                     Eliminate unlawful discrimination, harassment & victimisation.
to organise their own services and POD will help by bringing                      Advance equality of opportunity between different groups.
the information together into one place and making it easier                      Foster good relations between different groups.
to understand and navigate."
                                                                              The primary purpose of the EDS is to create conversations
Dr. Peter RUDGE, Chairman of the Plymouth Health service's
                                                                              between NHS organisations and their patients, the public and
Commissioning Group, added: "The council's development of
                                                                              stakeholders. These conversations will help us to assess our
the POD is a wonderful step forward in our efforts to help
                                                                              performance, and with your help enable us to agree what
patients, clients and professionals navigate their way to
                                                                              equality objectives should be prioritised and the actions
everyday solutions to meet their needs."
                                                                              required.

                         Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
                               or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com
                                                                                                                                               7
Getting involved
The first step for Plymouth Hospitals NHS Trust and NHS
Plymouth (provider and commissioner) is to migrate from our
                                                                                A    LTERNATE MEANINGS FOR Common Words. A
                                                                                     newspaper has published the winning submissions to its
                                                                                yearly contest, in which readers are asked to supply alternate
existing Equality Schemes (strategy and action plan) to the                     meanings for common words. And the winners are:
new EDS. This will need to be in place by April 2012 and to                     1.         Coffee, n.
help us do this we are running various engagement activities                               The person upon whom one coughs.
which aim to:
                                                                                2.         Flabbergasted, adj.
   Ensure you know what is happening, when it will happen and
    how it will affect you.                                                                Appalled by discovering how much weight one
                                                                                           has gained.
   Increase the opportunity for feedback and input into the EDS and
    develop partnerships to help assist with the delivery of the EDS.           3.         Abdicate, v.
   Work with you, in particular diverse communities to understand                         To give up all hope of ever having a flat stomach.
    what the priorities are.
                                                                                4.         Esplanade, v.
   Achieve a shared understanding of the EDS.                                             To attempt an explanation while drunk.
   Explain why we are taking a particular action.
                                                                                5.          Willy-nilly, adj.
                                                     th
We are holding an event on Wednesday, 26 October, from                                     Impotent.
9.15 a.m. to 12.30 p.m., at the Welcome Hall, 4 Fore Street,
                                                                                6.         Negligent, adj.
Devonport to start this conversation (lunch provided). The
                                                                                           Absentmindedly answering the door when
aim of the session is to:
                                                                                           wearing only a nightgown.
   Inform you of the EDS and how your input can help shape and
    deliver the best solutions to meet the needs of the people of               7.         Lymph, v.
    Plymouth.                                                                              To walk with a lisp.
   Involve you in the development of the EDS objectives and an                 8.         Gargoyle, n.
    opportunity to comment on the EDS.
                                                                                           Olive-flavoured mouthwash.
   Help us assess where we are as an organisation (analysing and
    grading performance).                                                       9.         Flatulence, n.
                                                                                           Emergency vehicle that picks up someone who
At the end of the session you will receive an Equality
                                                                                           has been run over by a steamroller.
Champion pack which can be shared with others to help start
the assessment process. We are also committed to ensuring                       10.        Balderdash, n.
the conversation continues after the grading process so that                               A rapidly receding hairline.
together we can identify objectives that will benefit                           11.        Testicle, n.
communities and deliver better outcomes.                                                   A humorous question on an exam.
We hope that you are able to attend and please let know by                      12.        Rectitude, n.
            th
Thursday, 15 September 2011 via the contact details below.                                 The formal, dignified bearing adopted by
Further details will be forwarded nearer the time. If you are                              proctologists.
unable to make this date we would still like to hear from you.
                                                                                13.        Frisbeetarianism, n.
Email:          plh-tr.Equality-Diversity@nhs.net                                          The belief that, after death, the soul flies up onto
Post:           Equality & Diversity Organisational Development                            the roof and gets stuck there.
                Building 4
                Derriford Business Park                                         14.        Circumvent, n.
                Derriford,                                                                 An opening in the front of boxer shorts worn by
                Plymouth PL6 5XN                                                           Jewish men.
Telephone:      (01752) 437251 or (01752) 437610.



P   ENINSULA HEAD & NECK CANCER SUPPORT GROUP
    (PHANCS)                                                                                      ACKNOWLEDGMENT
Are you interested in a support group for head and neck
cancer patients and carers?                                                                    Our grateful thanks to :
This could take the form of:
Group meetings, One to One meetings,
Information / advice by post or E mail
An on line web site, Telephone help line,
Or a combination of the above.                                                                THE PLYMOUTH DIOCESE
We have established that there is a need for such a group                                    http://www.plymouth-diocese.org.uk/
and are in the early planning stage.
If you would be interested in helping with setting up the                            for their assistance in reproducing copies of
group please contact Mac Merrett.                                                                    this newsletter
Email phancs@btinternet.com Tel. 01392 8412490

                           Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
                                 or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com
                                                                                                                                              8

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The Voice of PLC September - October 2011 Newsletter

  • 1. The Plymouth Laryngectomy Club (PLC) A Charitable Support Group for Plymouth Cancer Laryngectomees The Voice of PLC September – October 2011 Address: c/o 80 Warleigh Avenue, PLYMOUTH, PL2 1DH, Devon, UK Mobile: 07745819828 (text only) Email: saudigeoff@yahoo.co.uk Website: http://plymouthlc.webs.com FOREWORD BY THE CHAIR GREETINGS! Written by Edward (Ted) BURNETT Welcome Members and Friends! B EST WISHES TO Susan STEPHENSON for her birthday th on Sunday, 25 September 2011. Susan is staunch and loyal member of PLC. Have a lovely day Susan! Well, our first year of PLC has passed! In fact, it's been more than a year, and I think it’s been quite an interesting time for us all. H APPY BIRTHDAY TO Alan Derek PEACEY for Wednesday, th 28 September 2011. Alan is a Friend of PLC although he resides in Norway! We’ve had a wide range of guest speakers and managed a few outside trips and events. I should like to thank everyone for their help and C ONGRATULATIONS TO Ted & Liz BURNETT for Friday, st 21 October 2011 on the occasion of their anniversary. Ted was the Chair of PLC for 2010 – 11. And we all know that support during our first year... to name just a few: behind any good man is a good woman! Well done Liz! The Staff of the Mustard Tree Cancer Support Centre who have been excellent hosts and have always made us all very welcome! Maggie, Emer and Julia for their part in giving us the D EVOTED HUSBAND. This is for all women who think men are heartless! help, support and advice any time we needed it. Geoff, who as I think you will all agree, has worked tirelessly as our Club’s Secretary. Jean, for all her hard work as Treasurer in sorting out the finances for our Club. And finally I should like to thank all our Members and Friends for showing their support. Because without you we would not have a club! Many thanks! Ted Chair, PLC EDITORIAL COMMENT I NTERNET Links. If you’re reading this on-line and come across words with blue lettering that are underlined, then you can click on these links and be taken directly to another site for more information on that particular topic. If you read this on Microsoft Word, you can put your cursor over the link, hold down the Control (Ctrl) Key and click! Ed. The Plymouth Laryngectomy Club (PLC) is an Affiliated Member of: The National Association of Laryngectomy Clubs (NALC) In Association with Macmillan Cancer Support Registered Charity Number: 273635 Our Funder: Macmillan Cancer Support A Member of The Plymouth Third Sector Consortium (PTSC) Patrons & Medical Advisors : Mr. W.M. BRIDGER, FRCS - Consultant ENT Surgeon, Mr. Tass MALIK, BSc FRCS (Gen), FRCS (ORL H&N) - Consultant Otolaryngologist, Head & Neck / Thyroid Surgeon, Derriford Hospital, Plymouth.
  • 2. THE PLC SEPTEMBER 2011 MEETING R AFFLE. Because of the few numbers attending the September 2011 Meeting it was decided to dispense O UR SEPTEMBER 2011 Meeting took place at the Mustard Tree Cancer Support Center at Derriford with the monthly raffle this time. S th Hospital on Monday, 5 September 2011 at 11 a.m. There UBSCRIPTIONS. Because of the few numbers attending were only seven of us in attendance including three Friends. the September 2011 Meeting it was decided not to Another member joined us later. The business side of the collect any subs this month. meeting was kept very brief with Ted simply giving an overview on forthcoming events.  Mr. Charles HANDLEY of Countrywide Supplies Ltd. T REASURER’S REPORT. Because of the few numbers attending the September 2011 Meeting it was decided hold over the report until the October 2011 Meeting. gave us an informative talk regarding his products. He reminded us once again that before ordering THE PLC CHARABANC TRIP something new from his catalogue we should always remember to first seek approval from Maggie or Julia. As all Members attending were S EVEN INTREPID PLC MEMBERS met at the Roborough th Tesco’s Car Park at 2 p.m. on Saturday, 10 September 2011 to go on a Coach Trip to Dartmeet to enjoy a real alrerady customers of Countrywide it was difficult to Devon Cream Tea. Dartmeet is set in a particularly judge whether Charles was content or frustrated! beautiful part of Dartmoor with rolling tors (hills) and a Ted presented Charrles with a Plymouth Tie Pin / fast-flowing running river. Lapel Badge and a Thank You Card on behalf of all The sun even managed to Members. shine for us! The journey  Mr. Michael W.M. BRIDGER, a Consultant Surgeon to and from Dartmeet at ENT Derriford Hospital will be retiring fairly soon meanders through some He is widely respected amongst medical staff and lovely scenery and it was patients alike, and will be missed. We were so a rare treat for the drivers grateful to him for giving up some of his valuable amongst us to be able to time to give us an extremely informative talk about take in those views... his lifetime’s work on head-and-neck cancers and rather than concentrating on the road! We held a raffle how treatments have changed over the years. He during our Cream Tea that realised £8 which we promptly was a pioneer in his field in his day! Mr. BRIDGER handed over to Patrick, our driver, as his tip for the day! also gave an update on which direction he thought Fiona won the prize so she’ll be supplying the prize for our treatments might go in the future, touching upon October 2011 Meeting. laser and transplants. All very interesting! Ted then presented Mr. BRIDGER with a Certificate of Appreciation on behalf of all Club Members. In the picture: Ted BURNETT presenting a Certificate of Appreciation to Mr. Michael W.M. BRIDGER. Photograph courtesy of Liz BURNETT More photographs at: Photobucket.com (fullscreen slideshow), and PLC Facebook page (smaller but faster). Photographs courtesy of Liz BURNETT → View Slideshow Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only) or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com 2
  • 3. N th Charabanc OVEMBER 2011. Monday, 7 November 2011: From Wikipedia, the free encyclopedia John MCKENNA of ColeBROOK Housing Carers has kindly accepted our invitation to be our Guest Speaker. This 1920 Punch cartoon shows UK government ministers in a charabanc. D th ECEMBER 2011. Monday, 5 December 2011: A charabanc or "char-à- Members agreed at the August banc" is a type of horse- 2011 Meeting that Ted should book a drawn vehicle or early Christmas Dinner to be held at the motor coach, usually Acropolis Restaurant in Plymouth City open-topped, common Centre at 7 p.m. Members also agreed in Britain during the that the cost of this event should be th early part of the 20 offset by Club Funds. century. It was especially popular for sight-seeing or works outings to the country or the seaside, organised DERRIFORD HOSPITAL CANCER SERVICES by businesses once a year. The name derives from the GEOFF ATTENDED AN Internal Head & Neck Validation Panel French char à bancs (carriage with wooden benches), th th Meeting at Derriford Hospital on Monday, 15 August 2011. the vehicle having originated in France in the early 19 Geoff was in attendance as an observer in an attempt to gain century. a continuing insight into the Peer Review Process. Should Although the vehicle has not been common on the anyone wish to have further information, please don’t roads since the 1920s, a few signs survive from the era; hesitate to contact Geoff. a notable example at Wookey Hole in Somerset warns that the road to the neighbouring village of Easton is unsuitable for charabancs. THE NATIONAL ASSOCIATION OF LARYNGTECTOMY CLUBS (NALC) THE PLC FORECAST OF EVENTS C ALENDAR of EVENTS. A copy of the Club’s Calendar of Events, including Future Entertainments for the next 12 P LC RECEIVED A COPY of the minutes of the meeting of th the NALC General Committee held on Monday, 4 July 2011. NALC only ever send the one copy so if anyone wishes months or so, is available on our Club’s website. Please keep to see a copy then do please let Geoff know. PLC was not yourselves up-to-date by taking an occasional peek! represented. Just for interest, these are the main points covered: S th EPTEMBER 2011. Wednesday, 14 September 2011:  Attendance. 18 representatives from across the UK The Speak Easy Club in Cornwall has invited Members of were in attendance. PLC for a trip to Devoran, near Truro, for a Soup & Sandwich lunch. Members of the Recovery Club from Cornwall have  Finance. Current Account: £65,235.54 also been invited. Those who have given their names to Business Account : £34,818.63 Geoff so far have a car seat reserved. Anyone else wishing to  AGM. The AGM was held in London but the turnout attend should notify Geoff as soon as possible so as to avoid was poor. Geoff and Jean represented PLC. disappointment. We aim to meet up at Devoran Church at 12 noon.  Annual Luncheon. The Annual Lunch was held on th Sunday, 4 September 2011 at Penrith. Although O th CTOBER 2011. Friday, 7 October 2011: invited, none of our Members attended. A Laryngectomee Study Day is being organised by  Larynx Transplants. An article will be published soon Julia and Maggie. It will be held at the Mustard Tree in the CLAN Magazine. Cancer Support Centre. Please make a note of this date in your diaries as we have cancelled our normal Club Meeting  Next Transplants. An article will be published soon rd for Monday, 3 October 2011! Our Club Meeting will take in the CLAN Magazine. place in the Double Room of the Mustard Tree between 11 th and 12 noon on the 7 ... just prior to lunch. Members PLC ON FACEBOOK should note that we have been invited to attend both morning and afternoon sessions, as well as lunch, which has kindly been provided by our Medical Equipment K ANDA, OUR WEBMASTER, has now put our Club on Facebook. Please do go online and take a look. Go to Facebook and then put Plymouth Suppliers. So do please come prepared for a longer stay Laryngectomy Club into the Search Box! than normal! Click THIS to view the full programme. A hard Alternatively, just click on this link. When you copy of the programme is attached for those not on-line. get there, please show us your support by clicking on the LIKE button. And do please leave a comment... this is YOUR Facebook Page! Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only) or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com 3
  • 4. THE RECOVERY CLUB, CORNWALL NEWS & CURRENT EVENTS G EOFF EMAILED A copy of the August 2011 Newsletter to those of our members on-line. Those not on-line should contact Geoff for a hard copy. Some of us will have the DISCLAIMER Please note that the views and opinions expressed in this section are not necessarily those held by the PLC Committee nor its Members. opportunity of meeting up with members of The Recovery Club on our trip to Devoran in September 2011. The Recovery Club and the Speak Easy Club will both be in attendance! A GIFT OF a Voice. I wanted to share with you the story A Gift of a Voice which is about my efforts to speak again. It was posted in the Georgetown University Homepage as a That's good news! feature story and can be seen on-line at: http://gumc.georgetown.edu/news/stories/230883.html LETTERS TO THE EDITOR For those not on-line, it’s repeated below... I do hope that you will find it inspirational! From: THOMAS Nicola (TORBAY CARE TRUST) Thanks! To: Geoffrey READ saudigeoff@yahoo.co.uk Itzhak BROOK, MD, MSc Sent: Thu, 11 August, 2011 9:27:01 Subject: RE: PLC NEWSLETTER Professor of Medicine Georgetown University Geoff, Washington DC, USA Blog site: driBROOK.blogspot.com Thanks for your newsletter. I’ve added your website Email: ib6@georgetown.edu address on our website, on the support page. The link is: http://www.peninsulacancernetwork.org.uk/public/others THE GIFT OF A VOICE upport/Pages/HeadNeck.aspx STARING AT THE AUDIENCE, Dr. Itzhak BROOK was nervous. Hope this is OK! In front of him were doctors and cancer survivors. He thought Nikki about surviving Israeli wars and the time he lost a patient, but nothing would prepare him for his first speech after losing his Nikki THOMAS vocal cords to cancer. Network Nurse Director Peninsula Cancer Network Outfitted with a prosthesis to help him speak, BROOK faced a www.peninsulacancernetwork.org.uk challenging audience: would they stay or would they go? www.facebook.com/peninsulacancernetwork What BROOK learned after his speech would help him realise Editorial Comment: Thanks Nicola! I hope other organisations the power and gift of his voice. will follow your lead! Ed. As a professor at Georgetown University Medical Center, BROOK is revered for his professionalism and ability to teach THE SOUTH WESTERN medical students the art and science of medicine. A natural at the sciences, BROOK discovered his affinity for medicine as a AMBULANCE SERVICE young child. G EOFF RECENTLY VISITED the South Western Ambulance Services Training College recently where he met up with Lizzie RYAN, the Education “Growing up my parents believed in a solid education,” says BROOK. “I felt an obligation to make something of my life and my passion for medicine evolved throughout high school.” Business Manager. It was agreed BROOK finished medical school in Jerusalem, Israel and that the Ambulance Service completed fellowships at Ivy League universities in the United Emergency Control Room for our States, publishing research on anaerobic microbes and head region could flag-up the names and neck infections. He says it was in paediatric infectious and details of our Club Members diseases where he felt most at home. so, in the event of a medical emergency, the Service could “When I was a doctor of internal medicine, I lost a couple of ensure that their paramedics could be properly briefed that the patients and that was hard for me,” says BROOK. “But when I patient was a Laryngectomee so they would know what to do, went [in]to paediatrics and infectious diseases, I felt I could and more importantly, what not to do! The Service could also fight and win on behalf of my patients... it was so rewarding ensure their ambulances would be kitted out with any special for me.” neck-breathing equipment that may be necessary. Along the way BROOK lectured medical students and The Data Protection Act forbids me passing anyone’s personal physicians and treated patients using his voice as an details to anyone else without that individual’s authority. So if instrument to share his love and passion for medicine. you wish to take part in this scheme, would you please That all changed in 2006 when BROOK was diagnosed with complete the attached form and email it, or pass it back to me? cancer. I will then ensure that your details are passed on to our local After learning he had throat cancer, BROOK explains he was Ambulance Service. “shaken to the core” and did not share it with his friends or This authorisation will need to be renewed every six months colleagues. but don’t worry... the Club will send out reminders. One last “It felt like a death sentence,” says BROOK. “I asked my point: Laryngectomees do not have to be Club Members to children and wife to keep the news private because I did not participate in this Scheme and we have passed blank forms to want to feel stigmatized as a cancer patient for fear of looking Julia and Maggie to dish out to their patients as required. weak and vulnerable.” Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only) or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com 4
  • 5. BROOK felt as if his lucky star was gone. So when he was asked to give a lecture to a large group But, with the love and support of his family guiding him, following his treatment, BROOK hesitated, but after much BROOK made it through the gruelling radiation appointments thought he accepted the invitation. that required a leave of absence from work and teaching. Although he feared people would walk out of the room, While recovering from the first round of treatment, BROOK unable to understand or cringe at his airy, soft whisper, he received some unexpected news from his doctor. began to speak. “I am Dr. Itzhak BROOK,” he said. “I am a His cancer was back with a vengeance. This time, BROOK did cancer survivor.” not have a choice except to tell his friends and family his To his surprise, no one left the room. Instead, all remained diagnosis was bleak. silent as he recounted the story of his amazing fight with an BROOK and his wife felt it best to tell their children in person, eventual victory. not over the phone. He met with them face-to-face so that he This first public speech after cancer awakened a new passion could answer their questions. in him... to share his story with patients and doctors, “Each one of my five children is special and we took a lot of encouraging patient-doctor communication and active time deciding how to tell them my cancer had returned,” says patient participation. BROOK. He now tours the country giving lectures and presentations, His daughter, Sara BROOK, was devastated. “My dad had no longer the hesitant individual afraid to share his voice, but always been a symbol of strength in my life and his sickness a man who has learned that his soft whisper has the impact forced me to accept that he was vulnerable,” she says. of a shout. “Although he has approached his sickness with the same By Tressa KIRBY, GUMC Communications persistence he's exhibited during previous challenges, cancer Published July 20, 2011 is such an unknown and powerful force. It's a scary fight.” After revealing the news to his family and friends he was surprised at the outpouring of emotional support. People did not stigmatise him or turn their backs, instead they embraced C ANCER LARYNGECTOMEE TRUST. Geoff has received a hard copy of the September 2011 edition of their Newsletter. Please contact Geoff if you wish to see a copy. him. Alternatively, you can contact the Trust at: BROOK found an otolaryngologist who would see him through his darkest days. The doctor informed BROOK that Cancer Laryngectomee Trust, his only hope for a cure was to remove his larynx... a National Association of Neck Breathers, procedure that would leave him voiceless. P.O. Box 618, “All of my life I have used my voice to teach and to Halifax HX3 8WX communicate with patients,” says BROOK. “The thought of Telephone: (01422) 205 522 losing my voice was terrifying but I didn’t have a choice... it Website: www.cancerlt.org Email: info@cancerlt.org was lose my life to cancer or lose my voice... I chose losing my voice.” BROOK did receive some good news prior to surgery. His doctors told him a voice prosthesis might allow him to speak C ARE QUALITY COMMISSION (CQC): The CQC has now published its Annual Report & Accounts for 2010/11. This shows that they have now completed the task of registering again one day in the future, but it would be a slow and tedious process. This hopeful possibility that would help get all adult social care and independent BROOK through surgery. healthcare services, as well as private After the surgery, BROOK fought frustration and depression ambulances and dentists... almost and faced additional health issues as a result of surgery. 30,000 services in total... to the timescales set in legislation. Then there were the uncertainties of the voice prosthesis... They say that this meant diverting resources away from core how would his voice sound? What if the prosthesis failed to inspection functions for a time, leading to a temporary drop work? in the numbers of inspections. Inspections will now become The surgery to insert the voice prosthesis was successful, but the top priority. An electronic copy of the report is available speaking again did not come easily. Learning to speak at: http://www.cqc.org.uk/publications.cfm?fde_id=18566. included additional speech pathology visits and, as BROOK The report is 100 pages in length so Geoff cannot help out feared, he was not immediately comfortable with the sound those not on-line! of his new voice. “Imagine not sounding like yourself,” says BROOK. “I spoke with a soft whisper... I had no idea how people might react.” C LAN NEWSLETTER. CLAN is the official magazine of the National Association of Laryngectomee Clubs (NALC). The Plymouth Laryngectomy Club is affiliated to NALC. Following physical therapy and learning to use his prosthesis, BROOK rebounded. He returned to teaching and the medical The September 2011 edition of CLAN is online now! profession. But, this time, he was going to do it differently. Click to view it fullscreen He no longer remains distant from his patients. Download the pdf (825.82 KB) Now he hugs them, he comforts them. He encourages them I have received some hard copies to use their voices and to speak up when something is wrong. which I will be redistributing to He knows what it’s like to be in their shoes. members who are not on-line. “Our voice is our most powerful tool. It’s our biggest I do hope you all get the time to advocate for our health and wellness,” he says. read this edition as there are some insteresting snippets inside it. Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only) or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com 5
  • 6. E XERCISE, NOT REST, is Important After Ops. This article th was published in The Herald on Thursday, 11 August 2011. ROBSON, who was the Thailand national coach at the time, went to doctors after having difficulty swallowing and feeling a lump on his throat. He underwent surgery and radiotherapy. MACMILLAN Cancer Support has launched a campaign to ROBSON said yesterday: ‘It was great news that I had in the encourage people in Plymouth affected by cancer to exercise letter. Things seem to be going well for me.’ more. He said he was overwhelmed by the level of support from the The Move More campaign follows a report that showed the public. importance of physical activity in the recovery and long-term 'I’ve been getting messages all the time and I have had great health of cancer patients. Patients have long been support from fans throughout the world and at West Brom, encouraged to rest after treatment, something which Move Middlesbrough, Thailand and obviously United. More shows puts cancer patients at risk. 'I’d like to thank everyone for that.' Macmillan Cancer Support has estimated that at least 1.6 ROBSON joined the Reds in 1981 for a then British record of million cancer survivors are at risk of long-term health £1.8m. problems and the recurrence of some cancers because they In what was a barren decade by their standards his all-action are not exercising enough. The report found that 150 performances helped them lift the FA Cup in 1983. ROBSON minutes of exercise a week can cut the risk of breast cancer also lifted the Cup Winners Cup in 1991, the Premier League in recurring by 40%, compared to those doing less than an hour. 1993 and 1994 - the same year the Red Devils also won the FA Similarly, the risk of bowel cancer returning can be reduced Cup. by roughly half by doing six hours of moderate physical He won 90 England caps and scored 26 goals. activity per week and the risk of dying from prostate cancer can be reduced by up to 30% with 150 minutes of moderate To read more please click on this link. exercise a week. The survey found that many health professionals are not aware of emerging evidence that exercise could improve recovery and long-term health. The survey showed that 72 T HE MONKEE WHO Sings Better Than Ever Because He Had Throat Cancer. This article was published in the Daily th Mail on Tuesday, 16 August 2011. per cent of GPs and 60% of oncologists do not discuss the Having long ago turned his back on his wild rock past, Peter possible benefits of exercise with their patients. TORK had every reason to David CROSBY, from Macmillan Cancer Support, said: "There think he was in really needs to be a cultural change, so that health reasonably good health. professionals see physical activity as an integral part of cancer But two years ago, The after care, not just an optional add on." Monkees star received He added: "It doesn't need to be anything too strenuous... terrifying news... the dry doing the gardening, going for a brisk walk or swim all count. throat and husky voice Health professionals can refer patients to a variety of services." he’d developed were signs of cancer of the neck. The diagnosis was ‘a real jolt’, says the 69- year-old. His symptoms first appeared in the autumn of late 2008. If you wish to read more, then please click on this link. I 'VE BEATEN CANCER, says Ex-England Star Bryan ROBSON after being given the All Clear. This article was published th in the Daily Mail on Friday, 26 August 2011. All clear: Bryan ROBSON has N EW PATIENT TRANSPORT Policy for Plymouth. NHS Plymouth is carrying out a piece of work about the production and implementation of a Patient Transport Policy, beaten throat cancer after he the purpose of which is to make sure that they are in line with received a letter from a doctor that treated him. national practice and that they have clear guidance on the management of patient transport. Additionally, the policy Former England football captain hopes to ensure that resources are targeted to the right Bryan ROBSON has declared people at the right time, with the appropriate level of that he has beaten throat support. This policy has been developed in conjunction with cancer. both NHS Devon & Cornwall & Isles of Scilly NHS Trust, to The 54-year-old said he was ensure a standardised approach for all patients across the given the news in a letter from South West Peninsula. the specialist who treated him. They would welcome any feedback that people might be able ROBSON will now have another to give. If any groups feel it would be useful for NHS Plymouth check-up to make sure the rest of his body is clear but says to come out and discuss it with them they would be happy to medics are confident that will be the case. do this. It was revealed in March that the former Manchester United The national policies which have been used to inform the star, nicknamed ‘Captain Marvel’, had been diagnosed with the production of local policy are as follows: disease. Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only) or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com 6
  • 7. • Health Care Travel Costs Scheme • Patient Transport Service Further supporting information is available on the NHS Plymouth Website. Editorial Comment: Geoff applied to have PLC included in Let us know what you think about patient transport and the POD and we have since been added. how it could be improved... we need to hear from you by th 12 September 2011. Please contact the Plymouth LINk Support Team: Freepost RRZE-AGZT-EXRS T RIO APPOINTED TO Help Run New Health Company. This article was published in The Plymouth Herald on st Wednesday, 31 August 2011: LINk Support Team Unit 15, HQ Building, TWO former police chiefs and a banker will help run a new 237 Union Street, company set to take over Plymouth's Community Health PLYMOUTH, PL1 3HQ, Devon. Telephone: (01752) 202407 Services. Mobile: 07533 432200 Morris WATTS, Jim WEBSTER and Marie KERR have been Website: www.plymouth-link.co.uk appointed as non-executive directors of Plymouth Email: info@plymouth-link.co.uk Community Healthcare. The social enterprise will take control of community health P LYMOUTH HEALTHWATCH Information Event. This event nd will take place on Thursday, 22 September 2011 from 9 a.m. until 1 p.m. in the Charter Room of Plymouth Guildhall. services, 2,200 staff and a £90million budget from NHS Plymouth, the city's Primary Care Trust (PCT). The shift is part of nationwide changes, started under Labour  Discuss how HealthWatch can represent local views and being taken on by the coalition. It is taking shape  Find out about the Government’s plans for HealthWatch alongside other NHS reforms including giving GPs wider  Share your ideas about how it could work funding powers when PCTs are abolished. Duncan CURRALL, Please contact Plymouth LINk to let them know if you would Plymouth Community Healthcare chair designate, said he was like to attend and give your preferred date at: delighted to announce the three appointments. Plymouth LINk Support Team The new organisation, which will provide community and mental health services for the people of Plymouth, is due to Freepost RRZE-AGZT-EXRS, st Unit 15, HQ Building, be launched on Saturday, 1 October 2011. 237 Union Street, Please click on this link to read more. Plymouth, PL2 3HQ, Devon. Telephone: (01752) 202407 Email: info@plymouth-link.co.uk T RIPS & DAYS Out on Offer to Care for Carers. This article th was published in The Herald on Friday, 12 August 2011: S OCIAL CARE DIRECTORY Launched. This article was published in The Plymouth Herald on Wednesday, 17 August 2011. th CARERS are invited to take part in free summer activities. Carers Champions are working with other organisations to put on a range of events in coming months... for PLYMOUTH City Council has launched a new carers and the people they support. online directory of Social Care & Health Options include massage treatments, meal Services. out, trips to Paignton Zoo, a backstage tour The Plymouth Online Directory (POD) has been of the Theatre Royal with lunch, and a trip to Buckfast Abbey. designed to make information more accessible There will also be a course on Assertiveness & Confidence and give people greater choice and control Building. Some activities require a £2 deposit. over the services they want to use. For more details and to secure a place call Carers Champions The website draws together information about health and team on (01752) 211348. wellbeing, highlighting services and organisations to help people maintain their independence in their own homes. It contains information on local and national charities, community groups and organisations offering advocacy W HAT IS THE Equality Delivery System (EDS)? The EDS has been designed to support NHS organisations to deliver better services for patients and communities which services, money advice and training, employment and are personal, fair and diverse. It will help organisations meet volunteering opportunities the requirements of the Equality Duty which include having Councillor Grant MONAHAN, Cabinet member for Adult due regard for the need to: Health & Social Care, said: "People are increasingly choosing  Eliminate unlawful discrimination, harassment & victimisation. to organise their own services and POD will help by bringing  Advance equality of opportunity between different groups. the information together into one place and making it easier  Foster good relations between different groups. to understand and navigate." The primary purpose of the EDS is to create conversations Dr. Peter RUDGE, Chairman of the Plymouth Health service's between NHS organisations and their patients, the public and Commissioning Group, added: "The council's development of stakeholders. These conversations will help us to assess our the POD is a wonderful step forward in our efforts to help performance, and with your help enable us to agree what patients, clients and professionals navigate their way to equality objectives should be prioritised and the actions everyday solutions to meet their needs." required. Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only) or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com 7
  • 8. Getting involved The first step for Plymouth Hospitals NHS Trust and NHS Plymouth (provider and commissioner) is to migrate from our A LTERNATE MEANINGS FOR Common Words. A newspaper has published the winning submissions to its yearly contest, in which readers are asked to supply alternate existing Equality Schemes (strategy and action plan) to the meanings for common words. And the winners are: new EDS. This will need to be in place by April 2012 and to 1. Coffee, n. help us do this we are running various engagement activities The person upon whom one coughs. which aim to: 2. Flabbergasted, adj.  Ensure you know what is happening, when it will happen and how it will affect you. Appalled by discovering how much weight one has gained.  Increase the opportunity for feedback and input into the EDS and develop partnerships to help assist with the delivery of the EDS. 3. Abdicate, v.  Work with you, in particular diverse communities to understand To give up all hope of ever having a flat stomach. what the priorities are. 4. Esplanade, v.  Achieve a shared understanding of the EDS. To attempt an explanation while drunk.  Explain why we are taking a particular action. 5. Willy-nilly, adj. th We are holding an event on Wednesday, 26 October, from Impotent. 9.15 a.m. to 12.30 p.m., at the Welcome Hall, 4 Fore Street, 6. Negligent, adj. Devonport to start this conversation (lunch provided). The Absentmindedly answering the door when aim of the session is to: wearing only a nightgown.  Inform you of the EDS and how your input can help shape and deliver the best solutions to meet the needs of the people of 7. Lymph, v. Plymouth. To walk with a lisp.  Involve you in the development of the EDS objectives and an 8. Gargoyle, n. opportunity to comment on the EDS. Olive-flavoured mouthwash.  Help us assess where we are as an organisation (analysing and grading performance). 9. Flatulence, n. Emergency vehicle that picks up someone who At the end of the session you will receive an Equality has been run over by a steamroller. Champion pack which can be shared with others to help start the assessment process. We are also committed to ensuring 10. Balderdash, n. the conversation continues after the grading process so that A rapidly receding hairline. together we can identify objectives that will benefit 11. Testicle, n. communities and deliver better outcomes. A humorous question on an exam. We hope that you are able to attend and please let know by 12. Rectitude, n. th Thursday, 15 September 2011 via the contact details below. The formal, dignified bearing adopted by Further details will be forwarded nearer the time. If you are proctologists. unable to make this date we would still like to hear from you. 13. Frisbeetarianism, n. Email: plh-tr.Equality-Diversity@nhs.net The belief that, after death, the soul flies up onto Post: Equality & Diversity Organisational Development the roof and gets stuck there. Building 4 Derriford Business Park 14. Circumvent, n. Derriford, An opening in the front of boxer shorts worn by Plymouth PL6 5XN Jewish men. Telephone: (01752) 437251 or (01752) 437610. P ENINSULA HEAD & NECK CANCER SUPPORT GROUP (PHANCS) ACKNOWLEDGMENT Are you interested in a support group for head and neck cancer patients and carers? Our grateful thanks to : This could take the form of: Group meetings, One to One meetings, Information / advice by post or E mail An on line web site, Telephone help line, Or a combination of the above. THE PLYMOUTH DIOCESE We have established that there is a need for such a group http://www.plymouth-diocese.org.uk/ and are in the early planning stage. If you would be interested in helping with setting up the for their assistance in reproducing copies of group please contact Mac Merrett. this newsletter Email phancs@btinternet.com Tel. 01392 8412490 Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only) or email: saudigeoff@yahoo.co.uk, or go to PLC website at http://plymouthlc.webs.com 8