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‘My home is my castle’
   It is about status, ownership,
   privacy and identity


www.institute.nhs.uk | Assisting the NHS in transforming healthcare
”Our home has become a way
                                         of signalling who we are. The
                                         symbolic value of how we live
                                         has detached itself from the
                                         utility value of the past
                                         decades.” - Siv Raun Andersen,
                                         Anthropologist, 2004




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Why is it, then, that when
    people move into a care
    home such considerations no
    longer seem to apply?
www.institute.nhs.uk | Assisting the NHS in transforming healthcare
We are ambivalent about old age.
            People are living longer
            Number of older people is increasing
            Society has the means to prolong life




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Culture of Care
   A reflection on how care
   homes need to shift their
   culture...from patronage to
   engagement
www.institute.nhs.uk | Assisting the NHS in transforming healthcare
www.institute.nhs.uk | Assisting the NHS in transforming healthcare
The next 30 minutes
             Background on care homes
             Insights & Creating change that sticks
             Example of what we are working on




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
When you hear ‘care homes’
     Scandals
     Poor quality
     Money grabbing
     Less relevant
     In decline
     Is there a viable future?

www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Speaking to someone
                                                                      who considered whether
                                                                      they would want to live in
                                                                      a care home: “I have a
                                                                      fear of living like this
                                                                      when I am old”




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Future projections of our ageing population
       predict that older age groups are growing
       much faster than the rest of the population:
       By 2050, twice as many people aged over 85
       and overall costs will increase fourfold.

       Future demand for long-term care
       services will grow rapidly:
       There are 400.000 residents in approx. 18.500
       care homes now.
       By 2050, no of beds needed for elderly care is
       expected to double to just over a million.

www.institute.nhs.uk | Assisting the NHS in transforming healthcare   Source : National Care Association
How will the country care
      for the growing amount of
      older people?
      Who will provide it?
      Who will pay for it?
www.institute.nhs.uk | Assisting the NHS in transforming healthcare
8 % of care is funded by the NHS
                   41% privately by the individual
                   51% by local Authorities

                   UK Councils are tightening their eligibility
                   criteria and rationing social services to
                   make ends meet. The great majority of
                   people with low or moderate needs
                   receive no support from Councils.



www.institute.nhs.uk | Assisting the NHS in transforming healthcare   Source : Laing & Buisson UK 2011
Residents who will use care homes more
                                                         in the future are said to have ‘high levels
                                                         of needs’:

                                                         The average age of a resident is 85 years
                                                         75% are classified as “severely disabled”
                                                         70% have dementia
                                                         40 % are said to have depressions
                                                         66% have cognitive impairments

                                                         They are a much older and frailer
                                                         population than they were in the past




www.institute.nhs.uk | Assisting the NHS in transforming healthcare                     Source : My Home Life
The care home of the future
        will need to become a central
        part care solutions. It must be
        radically different from
        current propositions and offer:
        Flexible care packages
        responding to personal needs;
        Affordable solutions to
        citizens and the state;
        Flexible use at the point of
        need.




www.institute.nhs.uk | Assisting the NHS in transforming healthcare   Image source : Hogewey
Although there is a sense of crisis
   that care service are reaching
   breaking point, ageing presents
   huge opportunities to develop
   new models of care outside of
   care homes (for people with low
   to moderate needs) which:
   Harness increased willingness
   of families & friends to provide
   informal care;
   Recognise that people due to
   medical advances can stay
   at home for longer.


www.institute.nhs.uk | Assisting the NHS in transforming healthcare
From flexible care in your home to
         the flexible use of a care home we
         will need a variety of future scenarios...




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
But, we will also need to
                 mobilise existing resources.
                 “We have recognised the need to
                 make improvements in our care
                 home for a very long time but we
                 have never been sure where to
                 start and how to do it.” - Care
                 Home Manager


www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Evidence suggests that the
     culture of a care home
     Evidence suggests that the culture of a care home directly
     directly affects the quality
     affectsof those who live of those who live and work there
     of life the quality of life
     (Reed et al, 1997). A positive culture is characterised as one
     and work there. A positive
     where is characterised as one
     culture  the ethos of care is centred on the individual, based on
     evidence of what care is for good care and continually
     where the ethos of   makes
     effective within a changing health and social care context
     centred on the individual and
     (Manley et al, 2004).
     their relationships.




www.institute.nhs.uk | Assisting the NHS in transforming healthcare   Source : Reed et al, 1997 and Manley et al, 2004
Evidence suggests that the culture of a care home directly
     affects the quality of life of those who live and work there
     (Reed et al, 1997). A positive culture is characterised as one
     where the ethos of care is centred on the individual, based on
     evidence of what makes for good care and continually
     effective within a changing health and social care context
     (Manley et al, 2004).




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Creating small interventions which
     Evidence suggests that the culture of a care home directly a
                                   help to build relationships and
     affects the quality of life ofcaring who liveMobilise existing
                                    those culture. and work there
                                   resources by valuing different
     (Reed et al, 1997). A positive culture is characterised as one
                                   perspectives and fostering creativity,
     where the ethos of care is centred on the individual, based on
     evidence of what makes for good care and continually within.
                                   learning and innovation from
     effective within a changing health and social care context
     (Manley et al, 2004).




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Froma‘patronage’
     Evidence suggests that the culture of care home directly
                                   to engagement.
     affects the quality of life of those who live and work there
     (Reed et al, 1997). A positive culture is characterised as one
     where the ethos of care is centred on the individual, based on
     evidence of what makes for good care and continually
     effective within a changing health and social care context
     (Manley et al, 2004).




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
What is important to
   people in care homes?
   Some key insights
www.institute.nhs.uk | Assisting the NHS in transforming healthcare
# 1 Feel safe and secure
    Residents: safe and free from harm, pain and
    discomfort, and know they receive competent and
    sensitive care.
    Staff: free from physical threat, abuse and criticism,
    and work in secure conditions of employment.
    Relatives: confident in care home staff’s ability to
    provide good care, and have access to support
    networks when required.
www.institute.nhs.uk | Assisting the NHS in transforming healthcare
# 2 Have a sense of continuity
    Residents: consistent care from the moment
    they come into the care home, people to
    understand them as a person
    Staff: time and access to the stories &
    information that lies in people’s past, exposure
    to good role models and environments of care.
    Relatives: be able to maintain involved in the
    life of their relative
www.institute.nhs.uk | Assisting the NHS in transforming healthcare
# 3 Feel like they belong
    Residents: be able to form or maintain
    meaningful relationships, be part of a
    community or group, as desired.
    Staff: feel part of a team and recognised in
    their contributions.
    Relatives: be able to confide in trusted
    individuals to feel that you are not in this
    alone.
www.institute.nhs.uk | Assisting the NHS in transforming healthcare
# 4 Have a purpose
    Residents: opportunities to engage in
    purposeful activities which facilitate the
    passing of time, and tie in with their
    personal interests and past.
    Staff: clear set of goals to which to aspire –
    individually and as a team.
    Relatives: feel involved and that that they
    are still part of the resident’s care
www.institute.nhs.uk | Assisting the NHS in transforming healthcare
# 5 Sense of achievement
    Residents: feel they can make a
    contribution and can meet meaningful
    and valued goals.
    Staff: be able to provide good care, feel
    satisfied with one’s efforts
    Relatives: need to know the care home
    ‘has done its best’ to provide the best
    possible care to their loved one.
www.institute.nhs.uk | Assisting the NHS in transforming healthcare
# 6 Feel valued & important
    Residents: feel significant and valued
    as a person. Feel like they matter.
    Staff: feel like their efforts are valued
    and significant in the wider context.
    Relatives: need to feel that one’s
    caring efforts are welcome and
    appreciated.

www.institute.nhs.uk | Assisting the NHS in transforming healthcare
As we continued our work to help
         design for these needs, we learned
         some important lessons about how
         to create cultural change that sticks:




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Don’t try and force
   cultural shift. Start small.


www.institute.nhs.uk | Assisting the NHS in transforming healthcare
“One member of staff had
                                                                      written that she likes line
                                                                      dancing, and one of the
                                                                      relatives came and asked her if
                                                                      she wanted to go with them!”

                                                                      Small interventions started
                                                                      to trigger significant
                                                                      behavioural changes -
                                                                      improved communications
                                                                      and increased confidence
                                                                      that making changes is not
                                                                      that difficult and that it can
                                                                      be fun too




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Draw on the positive
   aspects of culture.


www.institute.nhs.uk | Assisting the NHS in transforming healthcare
By drawing on cultural
                                                                      strengths we tapped into
                                                                      the deep rooted concern
                                                                      about residents and
                                                                      their wellbeing and the
                                                                      desire from staff and
                                                                      relatives to get more
                                                                      involved in making
                                                                      improvements.




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Involve people at all
   levels. Work with and
   within their cultures.


www.institute.nhs.uk | Assisting the NHS in transforming healthcare
We learned taking that
                                                                 time to listen to people’s
                                                                 stories, opinions and
                                                                 experiences is what
                                                                 people found most
                                                                 helpful in order to
                                                                 create a more positive
                                                                 culture. It made them
                                                                 feel valued and
                                                                 important.




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
We developed a tool called
                                                                      ‘My Story’ which gives care
                                                                      home staff the time and
                                                                      encouragement they need
                                                                      to listen to someone’s
                                                                      stories and draw insights
                                                                      for making improvements.




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Clear info
                                                          ‘Expert’
                               al                                      relative                    package. On
                      Emotion                              Pro vi din           s
                                n                                     g a dvice                 services provided,
                      transitio                           on what
                                                                      to think                      who works
                       support.                            abo ut, w
                                                                      hat to                     there,who lives
                                    ives
                   Assisting relat                             expect                             there, what to
                                  ition
                    in t he trans                                                                 bring, prices...
                          process                                              ‘Jo urney I
                                                                                           nto
                                                                                            ation
                                                                             Ca re’ convers
                                                                                               ch
                                           Transition days.
                                                                             gath ering as mu
                                         Days where future                                    as
                                                                                infor mation
                                          residents can get                                  the
                                                                                possible on
                                             to know the                                     care d
                                                                              p erson to be            Flexible hours.
                                             surroundings                              for
                                                                                                        Where some
                                                                                                         people join
                                                              Reintroduce daily                       activities before
                                                              routines (washing,                        they become
                                                              gardening - things                          residents?
                                                              people used to do
                                                               before coming to
                                                                the care home)


www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Bob.
             It was through the simple activity of listening to
             relatives that staff was able to find out about Bob’s past
             routines. Bob wouldn’t stop his night time wanderings
             and eventually a member of staff came up with the idea
             to manage his behaviour by giving him a torch and clip
             board and getting him to come along on night time
             rounds, to check the security of windows and so on.




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
My Story




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Improved communications during shift and handovers
          Better relationships between staff, residents and relatives
          Increased confidence and ownership in making changes
          Sense of involvement
          Reduced ‘back-end’ work and increased time spent with residents




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
The framework

                Measure                              Capture          Understand   Improve




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Getting Started




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Small change is ok.
   But we need lots more of it.




www.institute.nhs.uk | Assisting the NHS in transforming healthcare
Thanks.
   julia.schaeper@institute.nhs.uk
   @juliaschaeper
www.institute.nhs.uk | Assisting the NHS in transforming healthcare

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Culture of Care

  • 1. ‘My home is my castle’ It is about status, ownership, privacy and identity www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 2. ”Our home has become a way of signalling who we are. The symbolic value of how we live has detached itself from the utility value of the past decades.” - Siv Raun Andersen, Anthropologist, 2004 www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 3. Why is it, then, that when people move into a care home such considerations no longer seem to apply? www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 4. We are ambivalent about old age. People are living longer Number of older people is increasing Society has the means to prolong life www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 5. Culture of Care A reflection on how care homes need to shift their culture...from patronage to engagement www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 6. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 7. The next 30 minutes Background on care homes Insights & Creating change that sticks Example of what we are working on www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 8. When you hear ‘care homes’ Scandals Poor quality Money grabbing Less relevant In decline Is there a viable future? www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 9. Speaking to someone who considered whether they would want to live in a care home: “I have a fear of living like this when I am old” www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 10. Future projections of our ageing population predict that older age groups are growing much faster than the rest of the population: By 2050, twice as many people aged over 85 and overall costs will increase fourfold. Future demand for long-term care services will grow rapidly: There are 400.000 residents in approx. 18.500 care homes now. By 2050, no of beds needed for elderly care is expected to double to just over a million. www.institute.nhs.uk | Assisting the NHS in transforming healthcare Source : National Care Association
  • 11. How will the country care for the growing amount of older people? Who will provide it? Who will pay for it? www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 12. 8 % of care is funded by the NHS 41% privately by the individual 51% by local Authorities UK Councils are tightening their eligibility criteria and rationing social services to make ends meet. The great majority of people with low or moderate needs receive no support from Councils. www.institute.nhs.uk | Assisting the NHS in transforming healthcare Source : Laing & Buisson UK 2011
  • 13. Residents who will use care homes more in the future are said to have ‘high levels of needs’: The average age of a resident is 85 years 75% are classified as “severely disabled” 70% have dementia 40 % are said to have depressions 66% have cognitive impairments They are a much older and frailer population than they were in the past www.institute.nhs.uk | Assisting the NHS in transforming healthcare Source : My Home Life
  • 14. The care home of the future will need to become a central part care solutions. It must be radically different from current propositions and offer: Flexible care packages responding to personal needs; Affordable solutions to citizens and the state; Flexible use at the point of need. www.institute.nhs.uk | Assisting the NHS in transforming healthcare Image source : Hogewey
  • 15. Although there is a sense of crisis that care service are reaching breaking point, ageing presents huge opportunities to develop new models of care outside of care homes (for people with low to moderate needs) which: Harness increased willingness of families & friends to provide informal care; Recognise that people due to medical advances can stay at home for longer. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 16. From flexible care in your home to the flexible use of a care home we will need a variety of future scenarios... www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 17. But, we will also need to mobilise existing resources. “We have recognised the need to make improvements in our care home for a very long time but we have never been sure where to start and how to do it.” - Care Home Manager www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 18. Evidence suggests that the culture of a care home Evidence suggests that the culture of a care home directly directly affects the quality affectsof those who live of those who live and work there of life the quality of life (Reed et al, 1997). A positive culture is characterised as one and work there. A positive where is characterised as one culture the ethos of care is centred on the individual, based on evidence of what care is for good care and continually where the ethos of makes effective within a changing health and social care context centred on the individual and (Manley et al, 2004). their relationships. www.institute.nhs.uk | Assisting the NHS in transforming healthcare Source : Reed et al, 1997 and Manley et al, 2004
  • 19. Evidence suggests that the culture of a care home directly affects the quality of life of those who live and work there (Reed et al, 1997). A positive culture is characterised as one where the ethos of care is centred on the individual, based on evidence of what makes for good care and continually effective within a changing health and social care context (Manley et al, 2004). www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 20. Creating small interventions which Evidence suggests that the culture of a care home directly a help to build relationships and affects the quality of life ofcaring who liveMobilise existing those culture. and work there resources by valuing different (Reed et al, 1997). A positive culture is characterised as one perspectives and fostering creativity, where the ethos of care is centred on the individual, based on evidence of what makes for good care and continually within. learning and innovation from effective within a changing health and social care context (Manley et al, 2004). www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 21. Froma‘patronage’ Evidence suggests that the culture of care home directly to engagement. affects the quality of life of those who live and work there (Reed et al, 1997). A positive culture is characterised as one where the ethos of care is centred on the individual, based on evidence of what makes for good care and continually effective within a changing health and social care context (Manley et al, 2004). www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 22. What is important to people in care homes? Some key insights www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 23. # 1 Feel safe and secure Residents: safe and free from harm, pain and discomfort, and know they receive competent and sensitive care. Staff: free from physical threat, abuse and criticism, and work in secure conditions of employment. Relatives: confident in care home staff’s ability to provide good care, and have access to support networks when required. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 24. # 2 Have a sense of continuity Residents: consistent care from the moment they come into the care home, people to understand them as a person Staff: time and access to the stories & information that lies in people’s past, exposure to good role models and environments of care. Relatives: be able to maintain involved in the life of their relative www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 25. # 3 Feel like they belong Residents: be able to form or maintain meaningful relationships, be part of a community or group, as desired. Staff: feel part of a team and recognised in their contributions. Relatives: be able to confide in trusted individuals to feel that you are not in this alone. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 26. # 4 Have a purpose Residents: opportunities to engage in purposeful activities which facilitate the passing of time, and tie in with their personal interests and past. Staff: clear set of goals to which to aspire – individually and as a team. Relatives: feel involved and that that they are still part of the resident’s care www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 27. # 5 Sense of achievement Residents: feel they can make a contribution and can meet meaningful and valued goals. Staff: be able to provide good care, feel satisfied with one’s efforts Relatives: need to know the care home ‘has done its best’ to provide the best possible care to their loved one. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 28. # 6 Feel valued & important Residents: feel significant and valued as a person. Feel like they matter. Staff: feel like their efforts are valued and significant in the wider context. Relatives: need to feel that one’s caring efforts are welcome and appreciated. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 29. As we continued our work to help design for these needs, we learned some important lessons about how to create cultural change that sticks: www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 30. Don’t try and force cultural shift. Start small. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 31. “One member of staff had written that she likes line dancing, and one of the relatives came and asked her if she wanted to go with them!” Small interventions started to trigger significant behavioural changes - improved communications and increased confidence that making changes is not that difficult and that it can be fun too www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 32. Draw on the positive aspects of culture. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 33. By drawing on cultural strengths we tapped into the deep rooted concern about residents and their wellbeing and the desire from staff and relatives to get more involved in making improvements. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 34. Involve people at all levels. Work with and within their cultures. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 35. We learned taking that time to listen to people’s stories, opinions and experiences is what people found most helpful in order to create a more positive culture. It made them feel valued and important. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 36. We developed a tool called ‘My Story’ which gives care home staff the time and encouragement they need to listen to someone’s stories and draw insights for making improvements. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 37. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 38. Clear info ‘Expert’ al relative package. On Emotion Pro vi din s n g a dvice services provided, transitio on what to think who works support. abo ut, w hat to there,who lives ives Assisting relat expect there, what to ition in t he trans bring, prices... process ‘Jo urney I nto ation Ca re’ convers ch Transition days. gath ering as mu Days where future as infor mation residents can get the possible on to know the care d p erson to be Flexible hours. surroundings for Where some people join Reintroduce daily activities before routines (washing, they become gardening - things residents? people used to do before coming to the care home) www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 39. Bob. It was through the simple activity of listening to relatives that staff was able to find out about Bob’s past routines. Bob wouldn’t stop his night time wanderings and eventually a member of staff came up with the idea to manage his behaviour by giving him a torch and clip board and getting him to come along on night time rounds, to check the security of windows and so on. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 40. My Story www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 41. Improved communications during shift and handovers Better relationships between staff, residents and relatives Increased confidence and ownership in making changes Sense of involvement Reduced ‘back-end’ work and increased time spent with residents www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 42. The framework Measure Capture Understand Improve www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 43. Getting Started www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 44. Small change is ok. But we need lots more of it. www.institute.nhs.uk | Assisting the NHS in transforming healthcare
  • 45. Thanks. julia.schaeper@institute.nhs.uk @juliaschaeper www.institute.nhs.uk | Assisting the NHS in transforming healthcare