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Genetic alliance
- 2. About Us Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. Genetic Alliance’s network includes more than 1,000 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations. The network is a dynamic and growing open space for shared resources, creative tools, and innovative programs. Over the past 25 years, Genetic Alliance has been the voice of advocacy in genetics. Advocacy in the 21st century, however, requires new definitions and new focus. We dissolve boundaries to foster dialogue that includes the perspectives of all stakeholders: from industry professionals, researchers, healthcare providers, and public policy leaders to individuals, families, and communities. In a rapidly changing world, Genetic Alliance understands that nothing short of the transformation of our mission, goals, and even our Board of Directors will suffice to transform health.
- 3. Programs Genetic Alliance has developed a series of programs designed to increase the visibility of genetics and advocacy, establish strong networks and advance important campaigns, including community based family history. Our current programs include : Access to Credible Genetics Resources Network Consumer Focused Newborn Screening Initiatives Family Health History Programs Congenital Conditions Program Genetics for Early Disease Detection and Intervention
- 4. Resources and Services Genetic Alliance provides a range of resources and services that benefit both individuals and organizations. We welcome and encourage your involvement: listen to webinars, create and edit entries in WikiGenetics and WikiAdvocacy, participate in the Advocates Partnership Program, add your organization to Disease Info Search, and more. Individuals and organizations can utilize our resources to: Stay Informed Engage and Participate Some of our resources are tailored specifically for organizations. We also have a Community Job Board where organizations can post job openings and individuals can find new and exciting opportunities for employment.
- 5. Resource Repository Genetic Alliance Resource Repository is a robust document repository service that aggregates the combined resources of advocates, healthcare professionals, government agencies, think tanks, and other contributors. These resources cover a wide range of topics such as: Fundraising FDA genetic testing guidance Advocacy at the state and federal level Media strategies You can visit the Resource Repository at www.resourcerepository.org Resource Repository Search The Resource Repository is a digital commons for the global health community. This electronic collection of documents, links, audio, and video files, relies on contributions from the community in topic areas such as newborn screening, family health history, genetic testing, reimbursement, research, drug development, community engagement, and organizational development.
- 6. Publications Genetic Alliance publications are aimed at emerging and experienced advocacy leaders, researchers, healthcare providers, and policymakers. All of our publications are available for free downloading and posting, as long as Genetic Alliance is credited as the author and the content is not modified in any way. Printing of publications is allowable for individual use only. Genetic Testing and Molecular Biomarkers Advocacy in Genetics Genetic Testing and Molecular Biomarkers "Does It Run In the Family?" Toolkit How Do I Talk to My Family About My Genetic Condition? How-to Guides Making Sense of Your Genes: A Guide to Genetic Counseling Genetic Alliance Monographs Newborn Screening Newsletter Policy Bulletin Registry and Biorepository Bulletin Understanding Genetics: A Guide for Patients and Health Professionals Weekly Bulletin
- 7. Upcoming Events Registry and Bio bank Registries and Natural Boot Camp History Studies Salon May 15, 2012, 9:00 a.m. - 4:00 May 17, 2012, 4:00 p.m. - 6:00 p.m. p.m. EDT EDT Genetic Alliance Genetic Alliance 4301 Connecticut Avenue, NW 4301 Connecticut Avenue, NW Suite Suite 404 404 Washington, DC 20008 Washington, DC 20008
Notas do Editor
- Calling population – customers seeking to obtain a service / people in line for serviceArrival process – calculating the arrival time, and the interval between arrivals (Poisson distribution) variation in demand intensity affects the requirements for service capacity service capacity should be adjusted to meet demand when possible this can be made possible through cross training employees or having the customers serve themselves (grocery store)Queuing configuration – number of servers, their location, spatial requirements and their effects on customer behavior virtual queue – no visual indication of your place in line finite queue – not enough space to accommodate all customersService process – overall service performanceMost queuing models assume that customers stay in the line once they join it. In other words, customers do not exhibit balking ( refusing to join the queue once they see how long it is) or reneging ( leaving the line before completing the service).
- Calling population – customers seeking to obtain a service / people in line for serviceArrival process – calculating the arrival time, and the interval between arrivals (Poisson distribution) variation in demand intensity affects the requirements for service capacity service capacity should be adjusted to meet demand when possible this can be made possible through cross training employees or having the customers serve themselves (grocery store)Queuing configuration – number of servers, their location, spatial requirements and their effects on customer behavior virtual queue – no visual indication of your place in line finite queue – not enough space to accommodate all customersService process – overall service performanceMost queuing models assume that customers stay in the line once they join it. In other words, customers do not exhibit balking ( refusing to join the queue once they see how long it is) or reneging ( leaving the line before completing the service).
- Calling population – customers seeking to obtain a service / people in line for serviceArrival process – calculating the arrival time, and the interval between arrivals (Poisson distribution) variation in demand intensity affects the requirements for service capacity service capacity should be adjusted to meet demand when possible this can be made possible through cross training employees or having the customers serve themselves (grocery store)Queuing configuration – number of servers, their location, spatial requirements and their effects on customer behavior virtual queue – no visual indication of your place in line finite queue – not enough space to accommodate all customersService process – overall service performanceMost queuing models assume that customers stay in the line once they join it. In other words, customers do not exhibit balking ( refusing to join the queue once they see how long it is) or reneging ( leaving the line before completing the service).
- Calling population – customers seeking to obtain a service / people in line for serviceArrival process – calculating the arrival time, and the interval between arrivals (Poisson distribution) variation in demand intensity affects the requirements for service capacity service capacity should be adjusted to meet demand when possible this can be made possible through cross training employees or having the customers serve themselves (grocery store)Queuing configuration – number of servers, their location, spatial requirements and their effects on customer behavior virtual queue – no visual indication of your place in line finite queue – not enough space to accommodate all customersService process – overall service performanceMost queuing models assume that customers stay in the line once they join it. In other words, customers do not exhibit balking ( refusing to join the queue once they see how long it is) or reneging ( leaving the line before completing the service).
- Calling population – customers seeking to obtain a service / people in line for serviceArrival process – calculating the arrival time, and the interval between arrivals (Poisson distribution) variation in demand intensity affects the requirements for service capacity service capacity should be adjusted to meet demand when possible this can be made possible through cross training employees or having the customers serve themselves (grocery store)Queuing configuration – number of servers, their location, spatial requirements and their effects on customer behavior virtual queue – no visual indication of your place in line finite queue – not enough space to accommodate all customersService process – overall service performanceMost queuing models assume that customers stay in the line once they join it. In other words, customers do not exhibit balking ( refusing to join the queue once they see how long it is) or reneging ( leaving the line before completing the service).