1. Growing up
meaning
deaf, meaning
blind, &
disconnected
from body
by
Donna
Williams
www.donnawilliams.net
2. Sensory & perceptual disorders in the context of
Donna Williams ‘Fruit Salad’ model of ‘Autism’
Psychiatric Info Processing:
Co Morbids Health Issues
Dyspraxias Personality traits
Mood Aphasias
Agnosias and their associated
Emotional dysregulation disorder extremes
Psychosis Anxiety
Impulse Environment
Attention
Control Deficits Learned Helplessness
Cat vs Dog
Mourning
Social Isolation
Attachment
Disorders
3. Sensory versus Sensory Perceptual
(not always even related)
SENSORY SENSORY
PERCEPTUAL
Sensory integration
(incl Dyspraxia) Agnosias (meaning
Hypersensitivities deafness, meaning
blindness, body
Nutrition & sensitivity disconnectedness
Personality &traits Gut/immune/metabolic
sensitivity disorders
4. • People are
Faceblindness interchangeable
• People known by
situation/placement
• People known by
hair, clothes or objects
• People known by smell
• Difficulty in the
playground
• Lost in groups
• Bonds with
wallpaper, objects, textur
es
• Happier with
objects/textures etc
• May avoid faces or
deeply study own face
• Mirror may be best friend
5. • Get yourself a 'signature' – a hat, jacket, song, name
tag.
• Name yourself upon arrival and when you might be
out of your usual place.
• Show your 'signature' object (ie keyring, watch).
• Offer to be smelled
• Find ways of bonding unrelated to facial recogniation
• Don't take lack of recognition personally.
• Don't take face recognition as a reflection of
inteligence or empathy.
• Teach self advocacy re faceblindness instructions
(even if on a card).
• Find the person a playground buddy who'll find them.
• Create activities where friends are easier to visually
keep recognisable.
• Be aware people may become strangers when in
bathing costumes, when wet etc.
6. • Language sounds like blah Meaning
(people sharing sound
patterns). Deafness
• Often worse with other
external sounds (ie fans).
• Common in those with
Semantic Pragmatic
Language Disorder
• Echolalia is common
• Tendency to play with
sounds/words, later
avoidance of verbal
situations
• Make cover
ears/hum/run/spin to tune
out blah
• Preferance for
objects, nature, animals, mir
ror (non-verbal things)
7. • Use slowed, bullet point, telegraphic speech with
processing breaks.
• Gestural signing (showing the use/movements/3D
form associated with words).
• Use representational objects to track speech and
context shifts.
• Provide social opportunities which don't rely on
conversing.
• Provide means of self advocacy about percentages
and fluctuations in meaning deafness.
• Provide learning opportunities through:
maps/lists/categories/systems, music/rhythm.pattern
s, movement/hands on learning.
• Many with meaning deafness are also meaning blind
so DO NOT assume picture thinking or learning by
pictures.
• Ensure visuals involve observable movement/action.
• Use means other than speech to bond.
8. Meaning • Sees the part, loses the whole.
• Plays with parts of things.
Blindness • Struggles to learn board, group or
interpersonal games.
• Appears to only recognise specific
attachment objects.
• Smells, rubs, taps, flicks, mouths
objects.
• Will go without until seeing
someone else use an item.
• Can't imagine others recognise
things/may not seek help.
• Can't process visual context.
• May fear being taught visually or
flap/chew/tear pictures.
• Hands on learner. Must DO in
order to learn.
• May have serial memory but can't
visualise something novel.
• Struggles to learn flexible word-
meaning through looking.
9. • Hands on, discovery learning
• Hand over hand learning ideas
• Rote learning still intact
• Recognition through tapping/smelling/handling.
• Categorise parts
• Choose games/activities which don't rest on visual
processing
• Provide means of self advocacy about meaning blindness.
• Use physical tracing to link visual parts to a 'whole'.
• Tinted lenses or peripheral vision may be employed to filter
incoming information leaving more time to process what's
left.
• Flitting glances and finger movement at the side of the
eyes may each be used to re-set visual processing.
• Ensure inteligence/empathy is not judged by meaning
blindness.
• Use music, systems, movement for bonding
10. Social Emotional
• May have little use of Agnosia
facial expression/body
language or as
characatures.
• May not respond to
non-verbal
communications.
• May stick to non-
human interactions.
• May be more likely to
be bullied/left out.
• May not know how to
initiate or continue
friendships.
11. ideas
• You Tube, DVD clips, drama classes to formally
teach facial expression/body
language/intonation.
• Provide social and employment opportunities not
dependant on reading facial expression/body
language/intonation.
• Provide means of self advocating about Social
Emotional Agnosia.
• Don't take Social Emotional Agnosia as
representative of disinterest or lack of empathy.
• Work with social anxiety associated with
isolation/fear in not being able to process non-
verbal messages.
12. Visual Verbal Agnosia
• May chew, flick, rip
books.
• May read fluently
without intonation or
use it randomly.
• Learns from doing, not
from reading.
• Prefers letters, lists or
interesting sounding
words (when read).
• Loses interest when
pictures are absent.
13. ideas
• Gestural signing, representational objects and
characterisations to bring written words to life
with meaning.
• Lists rather than long strings of 'embedded text'.
• Tinted lenses or muted colored background
may improve processing time.
• Small encyclopedic entries.
• One idea per sentence and one sentence per
line.
• Consider activities/jobs requiring limited ability
to understand contracts, forms or written
instructions.
• Hands on experience or films rather than books.
14. Simultagnosia
• May appear to ignore
that others are and self-other
speaking.
• Appears to have little
self consciousness.
• Appears to go blank
when others are
expressive/active.
• Difficulty learning from
being lectured.
• Feels ignored (actually
can't experience
feedback whilst
expressing).
15. • Representational objects to track self/other and
topic without losing any of these three.
• Parallel interactions for social success.
• Sit alongside or to the side, not opposite.
• Focus on the object/issue, not the person.
• Advocacy skills re issue.
• Hand over hand teaching and rote physical
patterning.
• Teaching may have to be sink or swim as may
otherwise not learn actions through modelling.
• Singing, dance, music, arts, sharing nature, to
improve sense of being in company.
16. Disconnected from Body (body agnosias)
• Late with
toiletting, washing, groomi
ng.
• More likely to self injure
and stim.
• May appear indifferent to
pain.
• May have poor sense of
tiredness, need for the
toilet, clothing, hunger, thir
st or comfort from others.
• May behave puppet like or
distressed at being
handled.
• Exposure Anxiety may be
more likely.
17. • Brain Gym.
• Body brushing, spinning, rolling, massage, tickling.
• Hand over hand rote learning for self
help, toiletting, feeding etc.
• Visible times/lists of routines to replace dysfunctional body
feedback.
• Rote hand over hand learning for sequencing actions.
• Don't expect self to be identified with/through the body.
• Physical patterning for skills and in following directions.
• An Indirectly Confrontational approach (for Exposure
Anxiety) may be essential.
• Use hand over hand physical tracing and reflection to
experience body as a whole.
• Tapping, rocking and vibration to re-ground in the body.
• Teach rote caretaking of plants/animals and transfer this
to own body.
• O.T exercises for finding toiletting related pushing and
holding muscles.
18. • Difficulty telling body Alexithymia
messages from emotions.
• Difficulty telling one body
message or emotion from
another.
• Difficulty guaging the
degree/volume of a
sensation or feeling and
how to react to it.
• A detached relationship
to body and emotions.
• Poor ability to respond to
the emotional needs of
others in spite of
empathy.
• Alienation from the
social-emotional world of
others.
• Preference for non-
human company.
• Emotional dysregulation
19. • Modulation games – strong, gentle, scratchy, smooth etc
• A visible scale to assess the 'volume levels' of a feeling.
• Use of representational objects to track competing/contrasting
sensations/feelings and their contributing causes.
• Statements to trigger give away reactions instead of
questions which draw a blank.
• Don't confuse Alexithymia for inability to love or empathise.
• Use real objects to assist in making felt (not rote learned)
choices.
• Define differences of fear vs excitement, tiredness vs
anger, happy vs scared, need for the toilet vs feeling cold etc.
• Advocate for the bluntness of those with Alexithymia
particularly re their own feelings (these will commonly be
dismissed if the person appears unemotional in expressing
them).
• Create opportunities which play to the person's strengths.
20. • Visual thinkers will not have Learning Styles
significant visual perceptual
disorders.
• Those who can fluently
visualise speech will not have
significant visual and verbal
processing disorders.
• Those with visual or verbal
processing disorders may be
unable to internally mentalise
so this will need to be done
externally – hands
on, representational
objects, gestures, characteris
ations, mind
maps, lists, rote, hand over
hand patterning etc.
• Those with body agnosias
may be unable to transfer the
visual to the physical and
need to physically pattern
new activities.
21. • Addressing
gut, immune, metabolic Environmental
disorders, poor nutrition, toxicity
(ie eating fluoride toothpaste) strategies
may improve processing.
• Reduce unnecessary sensory
bombardment but don't pander.
• Work to the person's strengths.
• Don't take their perceptual
deficits personally.
• Use respectful strategies aimed
specifically at each issue not
one-size-fits all approaches
thrown at 'the autism'.
• Respectfully help them with self
advocacy and build their sense
of equality.
• No matter how disabling the
challenges appear, always see
the person, not just the
disability. Then they might too.
22. For more information
see the books
Autism; An Inside Out Approach
or
The Jumbled Jigsaw
and visit
www.donnawilliams.net
also more info at
http://www.autismhangout.com/e
ducation/details.asp?id=32
http://en.wikipedia.org/wiki/Agnosia