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CHILDREN  WITH  PWS MEDICAL  CARE Susanne Blichfeldt MD  Denmark April, 2009
Prader-Willi Syndrome ,[object Object],[object Object],[object Object],[object Object],[object Object]
PWS  daily  care ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
PWS : what is our goal ,[object Object],[object Object],[object Object],[object Object]
PWS is a genetic condition  The  genes ``missing´´ seems to cause  DYSFUNCTION OF THE  HYPOTHALAMUS ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
FLOPPY  INFANT
The newborn with PWS ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
THE FLOPPY BABY WITH  PWS  ,[object Object]
HOW to treat the child with PWS the first weeks ,[object Object],[object Object],[object Object],[object Object],[object Object]
First year of life with PWS ,[object Object],[object Object],[object Object],[object Object],[object Object]
FOOD?   FOR SMALL CHILDREN WITH PWS ,[object Object],[object Object],[object Object],[object Object],[object Object]
Medical questions..small children ,[object Object],[object Object],[object Object],[object Object],[object Object]
PWS:  growth and weight the first years ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
GROWTH HORMONE TREATMENT  recommended for most children with PWS ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
What more to check ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
The child with PWS after 2-3 years ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
The child after 2-3 years with PWS ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
THE  CHILD AND THE WEIGHT ,[object Object],[object Object],[object Object],[object Object],[object Object]
HOW to help the child ? ,[object Object],[object Object],[object Object],[object Object]
What is most important? ,[object Object],[object Object],[object Object],[object Object],[object Object]
A  HAPPY CHILD WITH PWS. Walks with support ,[object Object]
Early intervention  is needed  to prevent obesity for that  reason! have a daily program
[object Object],[object Object],[object Object]
Bed  Wetting and  Water Intoxication ,[object Object],[object Object],[object Object],[object Object],[object Object]
WARNING!! Abnormal pain threshold ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Most asked questions ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
The answers ,[object Object],[object Object]
Behavioural management ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
THE CHILD WITH PWS IN THE SCHOOL ,[object Object]

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Children Health Pws,Romania,09,Blichfeldt,24.4

  • 1. CHILDREN WITH PWS MEDICAL CARE Susanne Blichfeldt MD Denmark April, 2009
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