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                                      www.stutteringhelp.org • www.tartamudez.org


         T HE S TUTTERING F OUNDATION
A Nonprofit Organization                              SUMMER 2005                                      Since 1947... Helping Those Who Stutter

  Ehud Yairi on Incidence                                                                                        Wall Street Journal
and Prevalence, page 3                                                                                         headlines stuttering, page 3

Speaking is                                                                                 NBA star joins
no small task
        By Anne Smith, Ph.D.,
           Purdue University
                                                                                               SFA lineup
    Speaking is many things — it is
thinking of what one wishes to say,
choosing the right words from our vo-
cabulary, putting the words in the prop-
er grammatical framework, communi-
cating the feelings we have, and so on.
   At one level though, speaking is
                    producing move-
                    ments:       move-
                    ments of the rib
                    cage, the vocal
                    cords, and the
                    mouth. To make
                    these movements,
                    we must control
                    the activity of
                    about 100 mus-
  Anne Smith, Ph.D.
                    cles. One thing
                    about stuttering is


                                                 K
very clear: when disfluency occurs,                     enyon Martin, the Denver Nuggets bas-
the individual who stutters is not                      ketball sensation who was named to the
able to appropriately control the ac-                   NBA’s All Star Team in 2004, joins other
tivity of the many muscles involved              famous people who stutter on a brochure —
in speech. Why is it that some chil-             which unfolds into a small poster — distributed
dren do not develop the ability to               by The Stuttering Foundation.
control the activity of speech mus-                  The poster is intended to give children and
cles, and this becomes a lifelong                adults who stutter inspiration as they grapple
problem for the chronic stutterer?               with their speech disorder.
    At Purdue, we have been work-                    Martin is featured alongside other sports leg-
ing on the answer to that question.              ends who stutter: Bill Walton, Ken Venturi and
Clearly we want to know what                     Bob Love. He is the 16th famous person added
happens when the individual is dis-              to the poster. Others featured include actors
fluent. Many of our studies in                   James Earl Jones and Marilyn Monroe, Winston
adults who stutter have shown that               Churchill and 20/20 co-anchor John Stossel.
muscle activity during stuttering is
highly variable among different in-                                                           Continued on page 4
dividuals, but highly consistent
                                            Photo by Fernando Medina/NBAE via Getty Images. Copyright 2004 NBAE. Used with permission.
within a single individual over
many different types of disfluen-
cies. The only truly abnormal sign                           FACTS ABOUT KENYON MARTIN
of muscle activity we have found              Team: Denver Nuggets                                      Career Highlights: 2004 NBA All-
during stuttering is tremor. This is          Postion: Forward                                        Star, 2003 USA Basketball Men’s
an exaggerated rhythmic activity              Born: Dec. 30, 1977                                     Senior National Team, 16th in NBA in
of muscles happening around 5 to              Height: 6 feet, 9 inches                                2002-03 in rebounding, named to the
15 times per second. Sometimes               College: Graduated from the                              NBA All-Rookie First Team in 2000-01
                      Continued on page 9   University of Cincinnati in 2000                                                Source: www.nuggets.com
2        www.stutteringhelp.org                                                                             1-800-992-9392



    ADHD Brochure Hot off the Press
        Attention-Deficit/Hyperactivity    because stuttering and ADHD
    Disorder (ADHD) affects nearly 3       often overlap.
    to 7 percent of American                  “Recent studies have suggested
    children. To assist speech-                          as many as 26 percent
    language pathologists, par-                          of    children    with
    ents and classroom teachers                          ADHD also stutter,”
    in reaching these young                             Donaher      explained.
    people, The Stuttering                              “This number may be
    Foundation has published                           significantly higher if
    a new brochure.                                    one considers the lan-
        In March, the SFA                             guage-based disfluencies
    printed ADHD and                                  secondary to speech and
    Stuttering, which is a col-                      language impairments.”
    laboration between E.                                     ADHD         isn’t
    Charles Healey, Ph.D.,                          unique to children. “Adults
    of the University of
    Nebraska-Lincoln and
    Joseph Donaher, M.A.,
                                                   also exhibit many of the
                                                   same symptoms as children.
                                                  However, adults can learn to
                                                                                   Media can’t
    and Stephen Soffer,
    M.D., both of the
                                                  manage the problem more ef-
                                                 fectively than children,”         get enough
    Children’s Hospital of
    Philadelphia.
        “The biggest misconceptions
                                                 Healey said. “They have
                                                 many options including: med-
                                                ication aimed at specific
                                                                                   of Swish
                                                                                      Appearing on the pages of Woman’s
    regarding children with ADHD are       symptoms, modifications to the          Day with 4,239,930 readers, Swish is
    that they lack intelligence or that    work and home environments to           making his debut on the national stage!
    they are doing things on purpose,”     eliminate distractions and seeking         Writes therapist Sal Pace from
    Donaher said.                          counseling.”                            Massachusetts,
        Quoting the book Taking                The new brochure defines            “my kids, teach-
    Charge of ADHD, Revised                ADHD and covers Treatment for           ers, and parents
    Edition:       The         Complete,   Symptoms, Speech and Language           are all in love
    Authoritative Guide for Parents by     Characteristics and Stuttering          with Swish! It
    R.A. Barkley, Donaher said,            and ADHD. The authors also pro-         has proven to be
    “ADHD is not a problem with the        vide guidelines for treating chil-      a non-threaten-
    child’s knowing what to do; it is a    dren and list several resources         ing door-opener
    problem with the child’s doing         that offer more information.            for classroom
    what he knows.”                            ADHD and Stuttering is avail-       discussion.”
        This new brochure is certainly     able online at www.stutter-                “I’ve been
    valuable to those working in the       inghelp.org or by calling the SFA       using it with success in my fluency
    area of speech-language pathology      at (800) 992-9392. ❑                    groups,” adds Nancy Ribbler, a speech-
                                                                                   language pathologist from Florida.
                                                                                      Articles about this little fellow ap-
                                                                                   peared in hundreds of newspapers and
Dr. Hugo Gregory Remembered                                                        magazines during the past months.
  A memorial gathering for Dr.             Church, Portland, Ark., shared          School Nurse News featured his pic-
Hugo H. Gregory was held in Paris,         Carolyn Gregory, who added the ser-     ture as did Grand Rapids Family mag-
France, on Jan. 22.                        vice was followed by a reception at     azine, Queens Family, Virginia
  Many Northwestern/SFA Workshop           the home of Hugo’s childhood friends,   Journal of Education, Today’s
                     graduates     from    Mr. and Mrs. Robert Dean Pugh.          Catholic Teacher, and Metro Kids
                     France          and      Last fall, several memorial ser-     Philadelphia to name a few.
                     Belgium attended      vices were held. One was in the            Kim Brown, staff writer for the Tulsa
                     the gathering orga-   Alice        Millar      Chapel    at   World, did a feature article about the
                     nized by Dr. Marie-   Northwestern University, which          new video/DVD. She notes the kids on
                     Claude Pfauwadel.     was attended by colleagues and          the video are talking directly into the
                       They shared pro-    friends. Another took place at First    camera in order to communicate with
                     fessional and per-    Methodist Church in Gregory’s           the children watching.
                     sonal      remem-     hometown of Baraboo, Wis.                  She quotes local librarian, Myles
 Dr. Hugo H. Gregory
                     brances of their         Many memorial gifts have been re-    Jaeschke of the Tulsa City-County
                     time with Hugo.       ceived by the foundation in memory      Library, “The Stuttering Foundation
                        Another service    and in honor of Dr. Gregory. See page   makes obtaining the films easy because it
was held at the Portland Methodist         11 for a listing of these gifts.   ❑                          Continued on page 6
SUMMER 2005                                                                                                                       1-800-992-9392                     3



Research on Incidence &
Prevalence of Stuttering
          By Ehud Yairi, Ph.D.,                      “knowledge” that “only” 1% of the
           University of Illinois                    population stutters has created for us
    In a recent conference on stuttering             noticeable public perception prob-
sponsored by the National Institute on               lems as well as unwarranted attitude                The complete article can be downloaded at:
                                                                                                         www.stutteringhelp.org/download/wsjstory.pdf
Deafness and Other Communication                     in the field of communication disor-
Disorders (NIDCD), I discussed several               ders. Specifically, the 1% figure has
                     factors related to pre-         produced an incorrect impression that
                     disposition to stutter-         stuttering is a “small” problem. It has
                     ing. These include
                     (a) occurrence, (b)
                                                     been an important reason why, for a                          HEADLINES
                                                     long period, the American Speech-
                     age, (c) gender, (d)            Language-Hearing Association                                STUTTERING
                     genetics, (e) stres-            (ASHA) and many universities de-
                     sors, (f) concomitant                                                                    For the first time in several years,
                                                     emphasized academic and clinical                    the topic of stuttering has made the
                     disorders, (g) persis-          training in fluency disorders required              pages of The Wall Street Journal.
                     tency-recovery, and             of students specializing in speech-                      The interest of the nation’s sec-
  Ehud Yairi, Ph.D.
                     (h) subtypes.                   language pathology.                                 ond largest newspaper* was most
                        Of these, I would                Although the prevalence of stutter-             likely piqued by press releases sent to
                     like to summarize               ing (how many people stutter at a                   the newspaper touting auditory-feed-
here a few observations pertaining to the                                                                back devices that pick up the voice
                                                     given point in time) appears to be
issue of occurrence, that is, how many                                                                   and play it back into the ear, in the
people stutter.                                      somewhat lower than 1% (about .73%
                                                     according to Craig et al., 2002), the               hopes of helping those who stutter
    Whereas dry statistical data do                                                                      smooth their speech.
not commonly excite the imagination                  actual incidence (how many people
                                                     have ever stuttered in their life) is                    The newspaper explains that
of either researchers or clinicians,                                                                     while this technology has been used
such information tells a whole lot                   approximately 5%, with onsets occur-                for some 50 years in speech labs, it is
about a particular disorder and often                ring mainly at the preschool age                    now growing in popularity as a small,
has significant influences on public                 (Andrews & Harris, 1964; Manson,                    inconspicuous device in the ear.
interest, budgetary decisions for                    2000). Furthermore, it is important to                   The Stuttering Foundation’s Web
research and services, and profes-                   realize that the 1% prevalence is an                site was cited as a source of informa-
sional training.                                     average for the population at large.                tion in the Jan. 25, 2005, article titled
    Thus, in my view, the prevailing                                             Continued on page 9     Auditory-Feedback Device May Help
                                                                                                         Stutterers by Reed Albergotti.
                                                                                                              The foundation believes it was in-
                                                                                                         cluded in the article because it provides
                                                                                                         unbiased information about these prod-
             Annual Audit of Foundation by KPMG                                                          ucts on its Web site (www.stutter-
       The annual audit of The Stuttering             tion and general expenses and the 6/10 of 1%       inghelp.org/electdev.htm). And, in fact,
   Foundation financial reports for 2004 was          for fund raising are very low, and since we are    it received hundreds of hits in the days,
   recently completed by the accounting firm          fortunate to have an endowment which more          weeks, and even months following the
   of KPMG. Following is a recap of funds             than covers our overhead expenses, donors          January article.
   and expenditures for the year.                     can be assured that their gifts will go directly      While these devices aren’t for every-
       The 3.9% of expenditures for administra-       to support our program services.                   one and The Stuttering Foundation
                                                                                                         doesn’t endorse any one product, some
  Funds expended for:                                                                                    research suggests this technology may
  Creation, production, printing and distribution                                                        help a subgroup of people who stutter –
         of educational materials . . . . . . . . . . . . . . . . . $623,838 . . . . .53.3%              possibly as many as 30 percent.        ❑
  Public information and education . . . . . . . . . . . . . . . 242,503 . . . . . 20.7%                         * The Wall Street Journal has a combined Internet and
                                                                                                         print circulation of more than 2,600,000 worldwide, according to
  Educational symposia for professionals and                                                             the Audit Bureau of Circulations.
         research . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .136,634 . . . . . 11.7%
  Maintain Web site and toll-free stuttering
         information hotline. . . . . . . . . . . . . . . . . . . . . . 114,440 . . . . . . 9.8%
  Total for Program Services: . . . . . . . . . . . . . . . . $1,117,415 . . . . .95.5%                     Give the United Way
  Other expenditures:
         Administration and general . . . . . . . . . . . . . . . . 45,380 . . . . . . 3.9%                Do you give through United Way?
         Fund raising expense . . . . . . . . . . . . . . . . . . . . . 6,979 . . . . . . 0.6%               You can still directly designate
  Total Expenditures: . . . . . . . . . . . . . . . . . . . . . . .$1,169,774 . . . . . .100%              your gift to the SFA! Proof of non-
  The Stuttering Foundation of America is a private operating foundation which expends                      profit status can be sent to your
  its funds on its own programs and does not make grants to other institutions.
                                                                                                            employer by fax, mail or e-mail.
4       www.stutteringhelp.org                                                                                    1-800-992-9392


Kenyon             Continued from page 1      Then, when he was named Player
                                                                                        Videotapes
                                           of the Year and became the No. 1
                                           college player in the NBA draft in
    Martin, who has struggled with
stuttering since he was a child in         2000, Martin resolved not to let stut-       Make Comeback
                                                            tering get in the way
school, says the
speech disorder was a                                       of his success. He          Dressed as DVDs
catalyst that propelled                                     confronts his stutter-          Even best-selling videotapes need
him to the highest lev-                                     ing head-on and he          to update their wardrobe.
els of basketball. He                                       doesn’t worry what              To perform this extreme makeover,
was named National                                          others think.               The Stuttering Foundation asked retired
Player of the Year in                                           “Knowing that           videographer
his senior year play-                                       Kenyon also stutters        Buddy Morgan to
ing for the University                                      helps me,” said one         return and trans-
of          Cincinnati                                      young boy who lives         form Stuttering:
Bearcats.                                                   just south of Denver.       Straight Talk for
    As a 6-foot, 9-inch The 16 Famous People Who Stutter “I think he is great.”         Teachers and
power forward with poster is available online at              His mother agreed.        Therapy       in
                        www.stutteringhelp.org or call      “Kids look up to
the Denver Nuggets, 1-800-992-9392.                                                     Action: The
he averages just over                                       sports stars. They          School-Aged
15 points per game.                                         can relate to these         Child Who
    In a recent interview, Martin          athletes,” she said.                         Stutters into
said stuttering has haunted him                “Kenyon Martin will be a great           DVDs.
since his childhood in South Dallas.       source of inspiration to young peo-              After the
He endured teasing from classmates         ple who struggle with stuttering,”           wave of his magic
and refused to speak in class.             says Jane Fraser, president of The           wand (and some video editing equip-
    Later, as a basketball star in         Stuttering Foundation. She notes             ment), the popular videos will soon
Cincinnati, his fear of being teased       that speech therapists, school clini-        be available dressed in the contem-
was replaced by the fear of speak-         cians, teachers and others often dis-        porary style of DVD.
ing to reporters and he tried his          play the posters in a prominent                  Morgan had a few tricks up his
best to avoid interviews.                  place in their office.               ❑       sleeve. Additional footage has been
                                                                                        added to Straight Talk for Teachers.
                                                                                        And both DVDs will be decked out
                                                                                        in redesigned cases.
New Self-study CEUs Announced                                                               Interested in adding these DVDs
                                                                                        to your video closet? Information will
          By Lisa Scott, Ph.D.                 Any clinician interested in learning     soon be available online at www.stut-
       Florida State University            more about stuttering should consider        teringhelp.org.                      ❑
    Several new self-study continuing      book # 0016 Stuttering: An Integration
education products for speech-lan-         of Contemporary Therapies, 3rd ed. by
guage pathologists are now available.      Barry Guitar. This recently updated clas-
    Self-study products allow you to       sic provides essential information on the
complete your continuing education on      differences between fluency shaping,
your own schedule at your                                 stuttering modification,
own pace without ever                                         and how to incorpo-
having to leave your                                            rate both approaches
home or work setting.                                          into your work with
    For SLPs working                                          clients who stutter. It
with young children, 3                                       now includes the op-
continuing education                                         portunity to earn 3 con-
contact hours (or 0.3                                       tact hours (0.3 CEUs,
CEUs) are now avail-                                        product #9016).
able for Working With                                         If you have already
Preschoolers: Successful                                   purchased the Chmela
Intervention Strategies                                   VHS/DVD or either of the
by Kristin Chmela.
                                                          books prior to the associ-
    If your caseload in-
cludes school-age chil-                                   ated continuing education
dren who stutter, you                                     materials becoming avail-     La Gaceta de Guinea Ecuatorial, Equatorial
may be interested in the self-study ac-    able, you can simply order the CEU ma-       Guinea’s largest magazine, touted the SFA
                                           terials for $25 and earn credits for the     Spanish-language Web site, www.tarta-
tivity Treating the School-Age Child                                                    mudez.org, in its March 2005 issue.
Who Stutters: A Guide for Clinicians       products you already have.                   Equatorial Guinea is the only country in
(2nd ed.). This book by Carl Dell was          Call 1-800-992-9392, or visit the on-    Africa where Spanish is the principal lan-
recently revised and now has 3 contact     line store at www.stutteringhelp.org.        guage. It is situated on the west coast of
hours (0.3 CEUs) available.                                                        ❑    Africa, between Cameroon and Gabon.
SUMMER 2005                                                                                              1-800-992-9392          5



“Mr. 59” Golf
Invitational
Benefits SFA
    When golf great Al Geiberger
shot a 59 in the Danny Thomas-
Memphis Golf Classic in June 1977
it was a “remarkable achievement,”
in the words of Bob Foote.
    That score, at that time the lowest
ever in a PGA event, inspired
Geiberger’s nickname and the tour-
nament that, for the past 21 years, has
helped raised some large donations
for charity.
    The Stuttering Foundation was
again a beneficiary of
the “Mr. 59” Golf
Invitational      held
April 14-16 in Palm                                    Magazines Make Room
Springs, Calif.
    Foote,     assistant
tournament organizer and
                                                       for Public Service Ads
longtime friend of Geiberger’s, was                Two new public service ads (PSAs)      reached nearly a million readers in the
instrumental in adding the SFA to the          from The Stuttering Foundation are         April issue!
short list of charities that benefit           enjoying success this spring.                  Forbes started this year’s aware-
from the prestigious three-day tour-               The first, an all-print ad, stresses   ness campaign off with a bang by plac-
nament that draws 130 participants             the fact that there are many new op-       ing a one-fourth page PSA featuring
from across the U.S. to this golfers’          tions for people who stutter.              Winston Churchill. Memphis maga-
paradise.                                          The second, featuring Buffy the        zine chose the John Stossel PSA and
    Last year, the tournament’s spe-           Vampire Slayer star Nick Brendon, is a     Modern Healthcare donated a full
cial guest was Ken Venturi, past               play on words and uses a typeface that     page ad with Alan Rabinowitz! Golf
chairman of National Stuttering                conjures up vampires.                      preferred the all print ad stating “doing
Awareness Week.                                    All PSAs are now in color be-          nothing is not an option.”
    Foote, who has also long strug-            cause many large circulation maga-           Smaller — but just as effective PSAs
gled with stuttering, met with                 zines run all their pages in color.        — ran in Prevention, Seventeen, and
Venturi, who talked about his own                  In the past, many pages were in        Penthouse. In addition, People, Time,
stuttering and how he overcame it to           black and white and advertisers had        and Newsweek have long been support-
become a CBS commentator.                      to pay extra for color. Back then,         ers of the SFA.
    This year, Geiberger was joined            PSAs were expected to be submitted           This is looking like another record
by Bob Rosburg for clinics and                 in black and white.                        year for the foundation’s annual
demonstrations at the Avondale                     A first for the foundation was a       awareness campaign — a campaign
Country Club and the Desert Island             PSA in House Beautiful, which              that often runs for all 12 months. ❑
Country Club, which was capped by a
gala awards dinner and auction at the
Indian Wells Country Club that raised
about $20,000 for three charities. ❑           Faster Than a Speeding Bullet
                                                    That’s the word out about the new     piece of mail, increasing awareness
                                               digital postage meter                                     about stuttering far and
                                               now to be found at the                                    wide.
                                               Stuttering Foundation                                        In fact, during the
                                               Memphis office. The                                       past 12 months, SFA
                                               Postalia meter process-                                   mailed information to
                                               es up to 90 letters a                                     people in 69 countries
                                               minute – and at brisk                                     around the world, a new
                                               times of year, that speed                                 record. Far flung loca-
                                               is a big time saver for                                   tions     like     Mali,
                                               all the staff.                                            Mongolia, Sri Lanka,
Bob Foote, left, and Al Geiberger help raise        The new meter also prints the         and Malta were destinations of SFA
money for charities, including the SFA.        Stuttering Foundation logo on every        materials on stuttering.             ❑
6        www.stutteringhelp.org                                                                                          1-800-992-9392


    Lena Rustin Remembered                                                                        4 Workshops
   Dr. Lena Rustin died on
December 26, 2004. As in life, she
                                                 their families. She was a co-founder of
                                                 the Michael Palin Centre for                     Help SLPs Be
showed her tremendous courage and                Stammering Children.
determination as she struggled with                Throughout her distinguished career,          All They Can Be
cancer. The words “I’m                                         she worked both in the               While it was winter on Dec.
hanging on in there!”                                          National Health Service           10th in Cleveland, Kristin
were a constant refrain.                                       and in the charitable sector.     Chmela’s humor warmed the
   Rustin gained a repu-                                             She co-authored and         hearts of those attending her
tation that was both na-                                       edited a number of well-          workshop,       “Working        with
tional and international                                       respected books and con-          Children Who Stutter: Becoming
for the outstanding con-                                       tributed a range of chap-         the Best Clinician You Can Be.”
tribution she made to the                                      ters to important texts.          The event was co-sponsored by
speech and language                                                  In 1988, Lena was           SFA and The Cleveland Hearing
therapy profession, par-                                       honored by RCSLT for              and Speech Center.
ticularly in the field of stammering.            her exceptional work in the field of               One participant noted, “Kristin’s
   Diminutive in stature, her dynamic            stammering and awarded an honorary              presentation empowers me as a clini-
personality profoundly influenced the            fellowship. In, 1990, she received              cian to meaningfully help my stu-
profile of the profession and her dedi-          the North East Thames Regional                  dents who stutter.”
cation to her clinical work was inspira-         Award.                                             Thanks to Kristin’s husband, Tom
tional. She demonstrated a passionate               Special thanks to The Michael Palin
determination to provide a first class           Centre for Stammering Children for
service for children who stammer and             this article.



Swish                 Continued from page 2      identify with the children on the video
                                                 when they discussed teasing.
mails postcards directly to librarians and           “It seemed like the kids on the video
ships the DVDs or videotapes at no cost.”        validated what she was thinking and feel-
    Jaeschke added that when patrons dis-        ing,” Ribbler explained.
cover the series, they usually check out             Speech-language pathologists have
all the films. “They want to get as much         used the Swish video in many ways with
information as                                                              kids. A few ex-
they can. Even if                                                           amples from Dr.
                                                                                                   Kristin Chmela presenting at a work-
it’s an adult, they                                                         Lisa Scott are:        shop Dec. 10 in Cleveland. The event
check out the                                                                   • Identifying      was sponsored by the SFA and The
one for chil-                                                               moments         of     Cleveland Hearing and Speech Center.
dren,” he said.                                                             stuttering. The
    La Voz de                                                               students point
Houston,          a                                                         out moments of       Chmela, SFA materials were available
Spanish language                                                            stuttering and       during the workshop.
magazine pub-                                                               label them ac-           Certainly the weather was
lished in Texas,                                                            cording to the       warmer for Peter Ramig’s in-service
ran an article on     A few of the headlines from around the country. type they think            in Miami, which was sponsored by
Swish.                                                                      they see.            the Dade County Schools. Lisa
    Tamara Jones of King Features in the             • Ask children to watch for a specific      Scott and local resident Lisette
Asbury Park Press notes that the DVD lets        topic (teasing, etc.). Take notes on what       Betancourt were on hand and
parents know that their child needs en-          the children on the video say and brain-        helped at the SFA booth.
couragement and acceptance. The same is          storm for more ideas about how to han-              Bill Murphy headed south to Waco,
true of teachers, she stresses. Teachers         dle the problem.                                Texas. While he was speaking in the
should be firm and disapproving at the               • Ask kids to write their reaction to the   Lone Star State, Mary Ann Moore and
first sign of teasing and bullying in the        video.                                          Kathy Swiney made sure everything
classroom.                                           • Ask children to try to stutter like the   went smoothly at the SFA booth.
    Speech-language pathologist Nancy            kids on the video in order to explore all the       In Tacoma, Wash., Vivian
Ribbler, M.A., says Swish has been excit-        different ways there are to stutter. This is    Sisskin was a dynamic speaker
ing for her students to watch.                   not to imitate or make fun of those who         while Rick Burleigh and Susan
    “I worked with a little girl in kinder-      stutter, but for desensitization.               Hamilton of Seattle did a superb job
garten who stutters ... Every time Swish             • Children can offer “tips” to those on     running the booth.
came on, she giggled,” Ribbler said.             the video. If a child knows how to use par-         Because of the hard work of those
    This child said she liked Swish because      ticular speech management skills, he or         who staffed the SFA booths, hundreds
“he’s funny.”                                    she can write a letter making suggestions       of SLPs were exposed to new and tradi-
    Ribbler said the kindergartner could         to the kids on the video.                  ❑    tional materials on stuttering. ❑
SUMMER 2005                                                                                                              1-800-992-9392             7



Booths Draw Crowds at State Conventions
   LONE STAR STATE
   Keynote speaker and Chicago Bulls’ leg-
end Bob Love made sure to sign posters at
the SFA booth during the Texas Speech-
Language-Hearing convention in April.
   On hand during the former basketball
player’s appearance were Susan Hamilton,
who also “keynoted” during the convention,
and Carol Ecke, who traveled from
Montana to manage the booth.
   Ecke explained, “Many people who
stopped at the booth were already familiar
with SFA material. SLPs noted it is high
quality material and there is so much great
information. The materials sell themselves.”
   Joining Ecke at the booth were Dr.
Jennifer Watson and her graduate students,
Kristi Hammond, Lucey Jones, Kadi Kirland
and Janis Wegner. Also lending a hand were
Dr. Courtney Byrd, who teaches at the
University of Texas in Austin, Kathy Swiney
                                                         Garden State                                     Carol Ecke (left) and Susan Hamilton
                                                         As we go to press, Carol Ecke heads            watch as Bob Love, legendary star of the
of Houston and Susan Hamilton of Seattle.
                                                      from her home in Great Falls, Mont., to the       Chicago Bulls, autographs posters at the
                                                      East Coast to join featured speakers              SFA booth during the 49th Annual
   Land of Lincoln                                                                                      TSHA convention in Austin, Texas.
                                                      Kathleen Scaler-Scott of Flemington, N.J.,
   The Illinois Speech-Language-Hearing                                                                 Copies of his signed poster are available
                                                      and Vivian Sisskin of the Washington, D.C.
Association’s annual convention just outside                                                            for $5 as a special fund-raiser for
                                                      area. The convention is in Atlantic City,
the Windy City had record attendance, re-                                                               National Stuttering Awareness Week.
                                                      which always draws a large crowd. ❑
ports Dr. Patricia Zebrowski of the                                                                     Call 1-800-992-9392 to order.
University of Iowa.
   Zebrowski noted, “People were thrilled to
see our booth at ISHA. We ran out of the new
Swish tapes on the very first day and had to re-
stock several other items, too.”
   She, along with Tom and Kristin Chmela
and Dr. Linda Louko of the University of
Iowa, made sure everything ran smoothly at
the booth during the February convention.
   “Many speech-language pathologists
were looking for materials that could pro-                Sales are hot for Tom and Kristin                Kristin Chmela (from left), Patricia
vide continuing education credits, and one              Chmela at the ISHA convention.                  Zebrowski, and Linda Louko stand ready
                                                                                                        to help customers at the ISHA conference.
and all liked the SFA’s low prices,”
Zebrowski added.
                                                                                                                                      Courtney
                                                                                                                                   Byrd answers
   Empire State                                                                                                                    questions
    Opening night at the New York State                                                                                            during the
Speech-Language-Hearing Association con-                                                                                           TSHA
vention got off to a great start, according to Bill                                                                                conference
Shannon, who did a fantastic job of organizing                                                                                     in Austin.
the posters, banners and other materials.
                                                           NYSSLHA volunteers were led by
    In addition to Shannon, Tom and Lee                  Lee Caggiano (second from left).
Caggiano, Jeff Shames, Heather Grossman,
Steffi Schopick, Joy Kling, Steven Bender,
Joanna Moskeland and graduate students
from Hofstra University all played a huge part
in this year’s success.
                                                                                                             Courtney
    “SFA was the first booth every SLP saw                                                                Byrd (from
as they walked into the hall,” Lee Caggiano                                                               left), Kathy
said.                                                                                                         Swiney,
    Shannon added, “The booth and this year’s                                                               and Carol
NYSSLHA convention went very well. We                           Jennifer Watson (left) and Courtney            Ecke in
                                                              Byrd in the SFA booth in Austin, Texas.          Austin.
had quite a few helpful volunteers.”
8        www.stutteringhelp.org                                                                                          1-800-992-9392



                          Dear SFA: Reader Response
                          Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or email info@stutteringhelp.org.
    Fan mail for Swish                         laughs at me. I feel ashamed, scared, and       acting business would be wise to do?
   Dear SFA:                                   disrespected at times like this. I don’t           Due to the fact that I stutter, I am
   Brief note to let you know that “my         know if I should faint, flee, laugh or what.    afraid that will be a wall for me to try to
kids” and parents are in love with Swish. It      But when I read your article in Seventeen    get into the acting business. Is there any
has proven to be a relaxing, non-threaten-     magazine, I knew I finally found the right      information that you can give me?
ing door-opener for classroom discussion.      help. Please help me in all the ways possi-         Patricia
   This winner should be in the hands of       ble with my speech impediment.                       E-mail
every SLP. Please keep up the great work.         If it’s not a problem, could you send
   Sal Pace                                    me some informative brochures on pre-              Editor: There are people in every
   Lexington, Massachusetts                    venting and treatment of stuttering.                 profession who stutter, including
                                                  Thanks,                                            many actors, singers, sports stars
   P.S. One of my third-graders wished            Jeremy                                             and political leaders. Nicholas
he had Swish stickers to pass out to his          Atlanta, Georgia                                   Brendon from the popular TV se-
classmates. May I suggest that you keep                                                             ries “Buffy the Vampire Slayer,”
the power of stickers in mind for your                                                             John Stossel from “20/20” and
next animated followup.                                                                          actor James Earl Jones — the voice
                                                                                               of “Darth Vader” in “Star Wars” — are
    Editor: Based on this recommenda-                                                          just a few.
tion, The Stuttering Foundation is ex-
ploring the idea of producing Swish                                                               Teacher seeks advice
stickers. Stay tuned!                                                                             Dear SFA:
                                                                                                  I am a kindergarten teacher. I will
    Students enjoy newsletter                                                                  have a student in my classroom next
   Dear Sir or Madam:                                                                          school year who stutters (severe). The
   My name is Joshuah. I go to school at                                                       child is going to be evaluated by our
Dennis Elementary. I am 7 years old.                                                           speech pathologist in May. However, I
I go to speech therapy to work on my                                                           want to be knowledgeable about what I
fluency. I am interested in your                                                               can do for him in the classroom.
newsletter.                                                                                       Lisa
   Joshuah                                                                                        Chicago, Illinois
   Oklahoma
                                                                                                  Bunny’s story
   Dear Sir or Madam:                                                                              When I slow down, it does not work.
   My name is Tom. I am 9 years old. I                                                         I do not like it when I stutter. When I was
go to speech therapy. I am in 3rd grade. I                                                     little I really did not like to stutter, but
have been learning about all of the types                                                      now I do not care. Now, I have a speech
of disfluencies. I would be interested in                                                      teacher and she helps me when I stutter.
                                               Swish has become a celebrity since his
receiving your newsletter. Thank you.          debut in Stuttering: For Kids, By Kids. Now,    I do not stutter a lot any more, but when
   Tom                                         at the suggestion of a third-grader, The        I do, I do not care.
   Denver, Colorado                            Stuttering Foundation is exploring the idea         These are some things that help me
                                               of producing Swish stickers.
                                                                                               not to stutter:
    Please send help                                                                               1. I can whisper.
    To Whomever This May Concern:                                                                  2. Stretch out my words.
    My name is Jeremy. I’m a 15-year-old          Is acting a good idea?
                                                  Hi:                                              3. Take a 5-second break.
and I have been stuttering ever since I
can remember.                                     I am 17 years old and I have been stut-          4. Find a different way to say it.
    I had therapy once in the 7th grade at     tering since I was in first grade.                  Bunny
school for about 4 months. Recently, it           It was really a struggle as I was growing        New Jersey
seems like it has gotten worse. Now that       up; I felt isolated from people because I
I’m in the 10th grade, my speech im-           knew there was something wrong with me.            11-year-old speaks up
pediment has stopped me from doing                I have seen many speech therapists              Dear Stuttering Foundation,
many activities that involve talking           throughout my life so far, and it has helped.      My name is Taylor. I am 11 years old.
(like giving feedback in groups and               I am in choir, so the singing does           I am fine with stuttering. When people
things of that nature).                        help my communication skills usually,           talk about me, I just laugh. I know that
    I have a fear of talking because I don’t   but other times it is a real struggle to        everyone has something.
know when I will get stuck on a word and       talk to other people.                              Taylor
say it over and over again. And everybody         I wanted to know if getting into the            New York City
SUMMER 2005                                                                                                 1-800-992-9392           9



Contestant Spreads the Word on Stuttering
E
       va Woolwine of Ashland, Kan., is                                                       many kids as possible with her story,
       a busy 18 year old on a mission.                                                       combined with a viewing of Stuttering:
       She is the reigning Miss Garden                                                        For Kids by Kids, she can make a dif-
City, and is on her way to the Miss                                                           ference.
Kansas pageant (June 5-12), which is a                                                           Eva is a senior at 21st Century
preliminary for Miss America.                                                                 Learning Academy Virtual School.
   Her platform? Stuttering awareness                                                         She is looking forward to attending
and education.                                                                                college in the fall and majoring in
   “I have stuttered since early child-                                                       Early Childhood Development. As a
hood and am passionate about clear-                                                           practicing magician, she enjoys per-
ing up misconceptions regarding                                                               forming for audiences of all ages as
stuttering and the people who stut-                                                           well as for the talent portion of
ter,” Eva explained. “I know first                                                            pageants.
hand that people who stutter are just                                                            In the summer of 2000, Eva attended
as intelligent and well adjusted as                                                           an intensive therapy program in
non-stutterers.”                                                                              Roanoke, Va.
   National Stuttering Awareness Week                                                            “I sometimes wear a SpeechEasy,”
is May 9-15 this year and Eva wants                                                           Eva said. “That, combined with therapy,
people to know about the many re-                                                             has helped me tremendously.”
sources and services provided by The                                                             She will be the first to tell you her
Stuttering Foundation.                                                                        speech is not perfect and that she must
   She intends to help spread the word                                                        work at it daily.
by making presentations to classrooms       Miss Kansas contestant Eva Woolwine is ed-
                                                                                                 “The message I want to send is there
at various schools.                         ucating the public about the resources avail-     is help and much hope for those of us
   Eva feels that if she can reach as       able for those who stutter.                       who stutter,” Eva explained. ❑



Incidence & Prevalence                      scientists, clinicians, consumers of
                    Continued from page 3   services, and private organizations,               No Small Task
                                            such as The Stuttering Foundation,                                    Continued from page 1
   Therefore, it is equally important
                                            should strive to alter the perception               you can see this tremor as a
to understand that the prevalence
                                            that stuttering is a “small” problem.               trembling of the lips when the
varies greatly according to age
groups. A recent individual screen-         Using various public and private                    individual is trying to speak.
ing study we conducted with more            resources, this message should be                       Another important way to start
than 3,000 preschool children               taken to Congress, NIDCD, ASHA,                     to address the question we posed
revealed a 2.43% stuttering preva-          and educational programs in speech-                 above is to look at young children
lence with no racial or ethnic differ-      language pathology.                ❑                when they are just starting to stut-
ences (Proctor et al., 2002; Yairi &                                                            ter. We now have a large project
Ambrose, 2005 ).                            References:                                         under way to do just that.
   If the findings are valid, they mean         Andrews, G., & Harris, M. (1964). The               We will be studying speech
that at any point in time up to almost      syndrome of stuttering, Clinics in develop-         coordination processes in
2.5% percent of children under age 5        mental medicine, No. 17. London: William            groups of 4- to 5- year old chil-
stutter. In other words, at any time, in    Heineman Medical Books Ltd.                         dren who are developing typi-
spite of a high level of natural recov-         Craig. A, Hancock K, Tran. Y, Craig. M,         cally and children who are
ery, a substantial number of preschool-     & Peters, K. (2002). Epidemiology of stutter-       stuttering. We hope to follow
ers and their parents may be needing        ing in the communication across the entire life     them over a five-year period
                                            span. Journal of Speech Language Hearing            (at present we only have three
professional evaluation, counseling,
                                            Research, 45:1097-1105.                             years of funding for the pro-
and, sometimes, also therapy.
                                                Mansson, H. (2000). Childhood stutter-          ject!) to see if early speech
   An important conclusion is that
                                            ing: Incidence and development. Journal of
more resources should be directed to                                                            motor control characteristics
                                            Fluency Disorders, 25, 47-57.
research concerning this sub-popula-            Proctor A., Duff, M.. and Yairi, E. (2002).
                                                                                                during fluent and stuttered
tion. Another lesson is that better         Early childhood stuttering: African
                                                                                                speech predict who will and
preparation of speech-language clini-       Americans and European Americans. ASHA              will not develop a chronic stut-
cians for dealing with this substantial     Leader, Vol. 4, # 15, 102.                          tering problem. We look for-
group of speech handicapped children            Yairi, E., & Ambrose, N. (2005).                ward to keeping you informed
should receive a higher priority.           Early childhood stuttering. Austin, TX:             about our progress!               ❑
   To this end, all interested parties:     Pro-Ed, Inc.
12           www.stutteringhelp.org                                                                                                                        1-800-992-9392

                                                      Begues du Canada, 2596 A rue Chapleau,                           Stuttering: An Integrated Approach to Its Nature and
NEWSBRIEFS   The Stuttering Foundation two-day
         conference for speech-language               Montreal, Quebec, Canada, H2K 3H6; 1-877-                      Treatment by Barry Guitar, Ph.D., published by
                                                                                                                     Lippincott, Williams, and Wilkins, Baltimore, MD.
         pathologists working with school-age         353-1042. Please enclose $20.00 Canadian to
                                                                                                                     (800) 638-3030.
         children who stutter, Practical Ideas        cover printing, postage, and handling costs.
                                                                                                                       Successful Stuttering Management Program, Second
         for the School Clinician, will be held          For those wanting to obtain a copy of                       Edition, by Dorvan Breitenfeldt, Ph.D., published by
         in June, 2005. For dates, place, and an      Stuttering and Your Child: Questions and                       EWU Press, Cheney, WA, (509) 235-6453.
         application form, call the Stuttering        Answers in Hindi, write to: Dr. Sajiv Adlakha,                   Synergistic Stuttering Therapy: A Holistic Approach by
         Foundation at 1-800-992-9392 or              Adlakha Speech and Hearing Clinic, A67                         Sister Charleen Bloom and Donna K. Cooperman.
         check www.stutteringhelp.org.                Dayanand Colony, Lajpat Nagar - 4, New                         Published by Butterworth Heineman, Woburn, MA.
            The Stuttering Foundation Eastern         Dehli-110024, India, or e-mail: adlakhas@hot-                    Stuttering Intervention: A Collaborative Journey to
         Workshop, Treating Children and              mail.com Those interested in joining a fluency                 Fluency Freedom by David Allen Shapiro, published by
         Adolescents Who Stutter: Practical           and public speaking skills group should also                   Pro-Ed, Austin, Texas.
         Strategies, directed by Susan Dietrich,      contact Dr. Adlakha at the above address.                        Tongue Wars by William H. Perkins, Ph.D., Athens
         Ph.D., Sheryl Gottwald, Ph.D.,                                                                              Press, Los Angeles, CA, 800-551-2959.
                                                        Book on Stuttering or Related                                  The Bob Love Story: If It's Gonna Be, It's Up to Me by Bob
         Edward G. Conture, Ph.D. in collabo-
                                                        Topics Available from Bookstores:                            Love with Mel Watkins, available through bookstores or call
         ration with Diane Parris, M.A., will be
                                                                                                                     NTC Contemporary Publishing Group, 1-800-323-4900.
held at Boston University, June 22-26, 2005.             Early Childhood Stuttering: For Clinicians by
                                                                                                                       Paroles de parents by Anne-Marie Simon, L’Ortho-
   The Stuttering Foundation two-week Workshop        Clinicians by Ehud Yairi and Nicoline Ambrose. 2004.
                                                                                                                     Edition, 76, rue Jean Jaures, 62330 Isbergues, France.
for Specialists will be held at the University of     Available from ProEd, Austin, TX.
                                                                                                                       Clinical Decision Making in Fluency Disorders by
Iowa, Iowa City, Iowa, in June 20-July 2, 2005,         The Child and Adolescent Stuttering Treatment and Activity
                                                                                                                     Walter H. Manning, Ph.D., published by
directed by Patricia Zebrowski, Ph.D. and Toni        Resource Guide by Peter Ramig and Darrell Dodge. 2005.
                                                                                                                     Singular/Thomson Learning.
Cilek, M.A. Guest speakers are Peter Ramig,           Available from Thomson Delmar Learning, Clifton Park, NY.
                                                                                                                       Nature and Treatment of Stuttering : New Directions
Ph.D. and Edward G. Conture, Ph.D. This unique          Troy’s Amazing Universe, by S. Kennedy Tosten. 2002.
                                                                                                                     by Richard F. Curlee, Ph.D. and Gerald M. Siegel, Ph.D.,
workshop brings together speech-language pathol-      Published      by      Brite     Press. Order    from
                                                                                                                     published by Allyn and Bacon, Needham Heights, MA.
                                                      www.TroysAmazingUniverse.com or amazon.com. A story
ogists from all over the world.                                                                                         The Classroom Teacher’s Inclusion Handbook by
                                                      about a seven year old who stutters.
   8th Annual Convention of Friends Who                                                                              Jerome C. Yanoff, Arthur Coyle Press, Chicago.
                                                        Experiencias para compatir entre padres e hijos by
Stutter will be held in Cleveland, OH, July 28-       Karina Couselo Rios, Maria Marta Gebara and Mariela
                                                                                                                       Straight Talk on Stuttering, Information, Encouragement,
30, 2005. Visit www.friendswhostutter.org or e-                                                                      and Counsel for Stutterers, Caregivers, and Speech-
                                                      Ginhson. Order from equipfono_gcg@yahoo.com.
mail LCaggiano@aol.com.                                                                                              Language Clinicians, 2nd edition by Lloyd M. Hulit, Ph.D.
                                                        Stuttering Therapy: Rationale and Procedures by Hugo
                                                                                                                     The publisher is Charles C. Thomas, Springfield, Illinois.
   Annual NSA Convention will be held in              H. Gregory, June H. Campbell, Diane G. Hill, and Carolyn
                                                                                                                       Le begaiement, option guerison by Francois Le Huche,
Chicago July 13-17, 2005. For more informa-           B. Gregory. Available from Allyn and Bacon, Boston,
                                                                                                                     M.D., Albin Michel, Paris, France, 1998. Order from
tion, visit www.westutter.org.                        MA; www.ablongman.com. 2003.
                                                                                                                     Albin Michel, 22, rue Huyghens, 75014 Paris.
                                                         Les begaiements: Histoire, psychologie, evaluation, vari-
   Annual CAPS Convention will be held in                                                                              Stuttering: A Life Bound Up in Words by Marty Jezer.
                                                      etes, traitements by Anne Van Hout and Francoise Estienne.
Edmondton, Alberta, Canada August 18-21,                                                                             Published by Basic Books, 1997.
                                                      Published by Masson, S.A., 120 boulevard Saint Germain,
2005. Visit www.stutter.caCAPS2005.                  75280 Paris Cedex 06, France.                                     You Will Dream New Dreams: Inspiring Personal
   For those wanting to purchase a poster entitled      Forty Years After Therapy: One Man’s Story by George
                                                                                                                     Stories by Parents of Children With Disabilities by
The Bill of Rights and Responsibilities of PWS,                                                                      Stanley D. Klein, Ph.D., Published by Kensington Books,
                                                      Helliesen, M.A. Available from Apollo Press, Inc., 1-800-
                                                                                                                     New York, New York. 1-800-221-2647.
contact        Michael         Sugarman          at   683-9713 or www.apollopress.com.
MSugarman1@aol.com. It represents the com-                                                                             Stuttering and Science by William H. Perkins, Ph.D.
                                                        Understanding Stuttering by Nathan Lavid. 2003.
                                                                                                                     and published by Singular Publishing Group, Inc., in San
bined effort of the IFA and ISA.                      University Press of Mississippi, Jackson, MS. Order from
                                                                                                                     Diego, California.
                                                      bookstores or amazon.com.
    LISTSERV is for doctoral students spe-
                                                        Programmed Stuttering Therapy for Children and Adults          Elements of Stuttering by Courtney Stromsta, Ph.D.
cializing in stuttering. The intent of this list is                                                                  Available from Stuttering Foundation, 800-992-9392.
                                                      by Bruce Ryan, Ph.D. Available through publisher Charles C.
to serve as an open forum for doctoral stu-                                                                                                                                   ❑
                                                      Thomas or online at www.amazon.com
dents. Membership is limited to doctoral stu-
                                                        Making a Difference for America’s Children: SLPs in the
dents only. To subscribe, send the following
                                                      Public Schools by Barbara Moore-Brown and Judy
message to “listserv@listserv.temple.edu:             Montgomery. Available from Thinking Publications, Eau
                                                                                                                     The Stuttering Foundation of America is a tax-ex-
subscribe stutterdoc firstname lastname” or                                                                          empt organization under section 501(c)(3) of the
                                                      Claire, WI. 715-832-2488.
                                                                                                                     Internal Revenue Code and is classified as a pri-
contact Joe Donaher at turtlecraw@aol.com.              Ben Has Something To Say by Laurie Lears, illustrations      vate operating foundation as defined in section
   For those interested in joining Toastmasters       by Karen Ritz. A book for children ages 5-9. Albert            4942(j)(3). Charitable contributions and be-
International as a way to improve fluency,            Whitman & Co., Morton Grove, IL. 800-255-7675.                 quests to the Foundation are tax-
communication or public speaking skills, their          Sharing the Journey: Lessons from my Students and            deductible, subject to limitations under the Code.
address is: Toastmasters International, Inc.,         Clients with Tangled Tongues by Lon Emerick, Ph.D.,
Attention: Membership Department, P.O. Box            available from North Country Publishing, 355 Heidtman
                                                      Road, Skandia, MI 49885, for $13.95 plus $2. postage and              THE
9052, Mission Viejo, CA 92690, Telephone:
(714) 858-8255; Fax: (714) 858-1207.
                                                      handling, call toll-free 1-866-942-7898; or from the                  STUTTERING
    For those wanting to obtain a copy of Self-
                                                      Stuttering Foundation at 800-992-9392.
                                                        Living With Stuttering by Kenneth St. Louis, Ph.D.
                                                                                                                            FOUNDATION
Therapy for the Stutterer in Japanese, write to       Available from Populore Publishing Company, P.O. Box           A Nonprofit Organization
Dr. Shokichi Nakajima, 2-21-1 Ogawa                   4382, Morgantown, WV 26504, 304-599-3830.                      Since 1947 — Helping Those Who Stutter
Machida-shi, Tokyo 194, Japan,                          Jason’s Secret by Ellen Marie Silverman, Ph.D.               3100 Walnut Grove Road, Suite 603
telephone/fax: 0427 (96) 5092.                        Published by 1st Books Library. www.1stbooks.com.              P.O. Box 11749 ● Memphis, TN 38111-0749
    Self-Therapy for the Stutterer is available         Stuttering: Its Nature, Diagnosis, and Treatment by
                                                                                                                     1-800-992-9392               ●   1-800-967-7700
in French. Write to the Association des               Edward G. Conture, Ph.D., published by Allyn & Bacon,
                                                                                                                     www.stutteringhelp.org     www.tartamudez.org
                                                      Needham Heights, MA. (781) 433-8410.                                       info@stutteringhelp.org

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Summer2005

  • 1. 1-800-992-9392 www.stutteringhelp.org • www.tartamudez.org T HE S TUTTERING F OUNDATION A Nonprofit Organization SUMMER 2005 Since 1947... Helping Those Who Stutter Ehud Yairi on Incidence Wall Street Journal and Prevalence, page 3 headlines stuttering, page 3 Speaking is NBA star joins no small task By Anne Smith, Ph.D., Purdue University SFA lineup Speaking is many things — it is thinking of what one wishes to say, choosing the right words from our vo- cabulary, putting the words in the prop- er grammatical framework, communi- cating the feelings we have, and so on. At one level though, speaking is producing move- ments: move- ments of the rib cage, the vocal cords, and the mouth. To make these movements, we must control the activity of about 100 mus- Anne Smith, Ph.D. cles. One thing about stuttering is K very clear: when disfluency occurs, enyon Martin, the Denver Nuggets bas- the individual who stutters is not ketball sensation who was named to the able to appropriately control the ac- NBA’s All Star Team in 2004, joins other tivity of the many muscles involved famous people who stutter on a brochure — in speech. Why is it that some chil- which unfolds into a small poster — distributed dren do not develop the ability to by The Stuttering Foundation. control the activity of speech mus- The poster is intended to give children and cles, and this becomes a lifelong adults who stutter inspiration as they grapple problem for the chronic stutterer? with their speech disorder. At Purdue, we have been work- Martin is featured alongside other sports leg- ing on the answer to that question. ends who stutter: Bill Walton, Ken Venturi and Clearly we want to know what Bob Love. He is the 16th famous person added happens when the individual is dis- to the poster. Others featured include actors fluent. Many of our studies in James Earl Jones and Marilyn Monroe, Winston adults who stutter have shown that Churchill and 20/20 co-anchor John Stossel. muscle activity during stuttering is highly variable among different in- Continued on page 4 dividuals, but highly consistent Photo by Fernando Medina/NBAE via Getty Images. Copyright 2004 NBAE. Used with permission. within a single individual over many different types of disfluen- cies. The only truly abnormal sign FACTS ABOUT KENYON MARTIN of muscle activity we have found Team: Denver Nuggets Career Highlights: 2004 NBA All- during stuttering is tremor. This is Postion: Forward Star, 2003 USA Basketball Men’s an exaggerated rhythmic activity Born: Dec. 30, 1977 Senior National Team, 16th in NBA in of muscles happening around 5 to Height: 6 feet, 9 inches 2002-03 in rebounding, named to the 15 times per second. Sometimes College: Graduated from the NBA All-Rookie First Team in 2000-01 Continued on page 9 University of Cincinnati in 2000 Source: www.nuggets.com
  • 2. 2 www.stutteringhelp.org 1-800-992-9392 ADHD Brochure Hot off the Press Attention-Deficit/Hyperactivity because stuttering and ADHD Disorder (ADHD) affects nearly 3 often overlap. to 7 percent of American “Recent studies have suggested children. To assist speech- as many as 26 percent language pathologists, par- of children with ents and classroom teachers ADHD also stutter,” in reaching these young Donaher explained. people, The Stuttering “This number may be Foundation has published significantly higher if a new brochure. one considers the lan- In March, the SFA guage-based disfluencies printed ADHD and secondary to speech and Stuttering, which is a col- language impairments.” laboration between E. ADHD isn’t Charles Healey, Ph.D., unique to children. “Adults of the University of Nebraska-Lincoln and Joseph Donaher, M.A., also exhibit many of the same symptoms as children. However, adults can learn to Media can’t and Stephen Soffer, M.D., both of the manage the problem more ef- fectively than children,” get enough Children’s Hospital of Philadelphia. “The biggest misconceptions Healey said. “They have many options including: med- ication aimed at specific of Swish Appearing on the pages of Woman’s regarding children with ADHD are symptoms, modifications to the Day with 4,239,930 readers, Swish is that they lack intelligence or that work and home environments to making his debut on the national stage! they are doing things on purpose,” eliminate distractions and seeking Writes therapist Sal Pace from Donaher said. counseling.” Massachusetts, Quoting the book Taking The new brochure defines “my kids, teach- Charge of ADHD, Revised ADHD and covers Treatment for ers, and parents Edition: The Complete, Symptoms, Speech and Language are all in love Authoritative Guide for Parents by Characteristics and Stuttering with Swish! It R.A. Barkley, Donaher said, and ADHD. The authors also pro- has proven to be “ADHD is not a problem with the vide guidelines for treating chil- a non-threaten- child’s knowing what to do; it is a dren and list several resources ing door-opener problem with the child’s doing that offer more information. for classroom what he knows.” ADHD and Stuttering is avail- discussion.” This new brochure is certainly able online at www.stutter- “I’ve been valuable to those working in the inghelp.org or by calling the SFA using it with success in my fluency area of speech-language pathology at (800) 992-9392. ❑ groups,” adds Nancy Ribbler, a speech- language pathologist from Florida. Articles about this little fellow ap- peared in hundreds of newspapers and Dr. Hugo Gregory Remembered magazines during the past months. A memorial gathering for Dr. Church, Portland, Ark., shared School Nurse News featured his pic- Hugo H. Gregory was held in Paris, Carolyn Gregory, who added the ser- ture as did Grand Rapids Family mag- France, on Jan. 22. vice was followed by a reception at azine, Queens Family, Virginia Many Northwestern/SFA Workshop the home of Hugo’s childhood friends, Journal of Education, Today’s graduates from Mr. and Mrs. Robert Dean Pugh. Catholic Teacher, and Metro Kids France and Last fall, several memorial ser- Philadelphia to name a few. Belgium attended vices were held. One was in the Kim Brown, staff writer for the Tulsa the gathering orga- Alice Millar Chapel at World, did a feature article about the nized by Dr. Marie- Northwestern University, which new video/DVD. She notes the kids on Claude Pfauwadel. was attended by colleagues and the video are talking directly into the They shared pro- friends. Another took place at First camera in order to communicate with fessional and per- Methodist Church in Gregory’s the children watching. sonal remem- hometown of Baraboo, Wis. She quotes local librarian, Myles Dr. Hugo H. Gregory brances of their Many memorial gifts have been re- Jaeschke of the Tulsa City-County time with Hugo. ceived by the foundation in memory Library, “The Stuttering Foundation Another service and in honor of Dr. Gregory. See page makes obtaining the films easy because it was held at the Portland Methodist 11 for a listing of these gifts. ❑ Continued on page 6
  • 3. SUMMER 2005 1-800-992-9392 3 Research on Incidence & Prevalence of Stuttering By Ehud Yairi, Ph.D., “knowledge” that “only” 1% of the University of Illinois population stutters has created for us In a recent conference on stuttering noticeable public perception prob- sponsored by the National Institute on lems as well as unwarranted attitude The complete article can be downloaded at: www.stutteringhelp.org/download/wsjstory.pdf Deafness and Other Communication in the field of communication disor- Disorders (NIDCD), I discussed several ders. Specifically, the 1% figure has factors related to pre- produced an incorrect impression that disposition to stutter- stuttering is a “small” problem. It has ing. These include (a) occurrence, (b) been an important reason why, for a HEADLINES long period, the American Speech- age, (c) gender, (d) Language-Hearing Association STUTTERING genetics, (e) stres- (ASHA) and many universities de- sors, (f) concomitant For the first time in several years, emphasized academic and clinical the topic of stuttering has made the disorders, (g) persis- training in fluency disorders required pages of The Wall Street Journal. tency-recovery, and of students specializing in speech- The interest of the nation’s sec- Ehud Yairi, Ph.D. (h) subtypes. language pathology. ond largest newspaper* was most Of these, I would Although the prevalence of stutter- likely piqued by press releases sent to like to summarize ing (how many people stutter at a the newspaper touting auditory-feed- here a few observations pertaining to the back devices that pick up the voice given point in time) appears to be issue of occurrence, that is, how many and play it back into the ear, in the people stutter. somewhat lower than 1% (about .73% according to Craig et al., 2002), the hopes of helping those who stutter Whereas dry statistical data do smooth their speech. not commonly excite the imagination actual incidence (how many people have ever stuttered in their life) is The newspaper explains that of either researchers or clinicians, while this technology has been used such information tells a whole lot approximately 5%, with onsets occur- for some 50 years in speech labs, it is about a particular disorder and often ring mainly at the preschool age now growing in popularity as a small, has significant influences on public (Andrews & Harris, 1964; Manson, inconspicuous device in the ear. interest, budgetary decisions for 2000). Furthermore, it is important to The Stuttering Foundation’s Web research and services, and profes- realize that the 1% prevalence is an site was cited as a source of informa- sional training. average for the population at large. tion in the Jan. 25, 2005, article titled Thus, in my view, the prevailing Continued on page 9 Auditory-Feedback Device May Help Stutterers by Reed Albergotti. The foundation believes it was in- cluded in the article because it provides unbiased information about these prod- Annual Audit of Foundation by KPMG ucts on its Web site (www.stutter- The annual audit of The Stuttering tion and general expenses and the 6/10 of 1% inghelp.org/electdev.htm). And, in fact, Foundation financial reports for 2004 was for fund raising are very low, and since we are it received hundreds of hits in the days, recently completed by the accounting firm fortunate to have an endowment which more weeks, and even months following the of KPMG. Following is a recap of funds than covers our overhead expenses, donors January article. and expenditures for the year. can be assured that their gifts will go directly While these devices aren’t for every- The 3.9% of expenditures for administra- to support our program services. one and The Stuttering Foundation doesn’t endorse any one product, some Funds expended for: research suggests this technology may Creation, production, printing and distribution help a subgroup of people who stutter – of educational materials . . . . . . . . . . . . . . . . . $623,838 . . . . .53.3% possibly as many as 30 percent. ❑ Public information and education . . . . . . . . . . . . . . . 242,503 . . . . . 20.7% * The Wall Street Journal has a combined Internet and print circulation of more than 2,600,000 worldwide, according to Educational symposia for professionals and the Audit Bureau of Circulations. research . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .136,634 . . . . . 11.7% Maintain Web site and toll-free stuttering information hotline. . . . . . . . . . . . . . . . . . . . . . 114,440 . . . . . . 9.8% Total for Program Services: . . . . . . . . . . . . . . . . $1,117,415 . . . . .95.5% Give the United Way Other expenditures: Administration and general . . . . . . . . . . . . . . . . 45,380 . . . . . . 3.9% Do you give through United Way? Fund raising expense . . . . . . . . . . . . . . . . . . . . . 6,979 . . . . . . 0.6% You can still directly designate Total Expenditures: . . . . . . . . . . . . . . . . . . . . . . .$1,169,774 . . . . . .100% your gift to the SFA! Proof of non- The Stuttering Foundation of America is a private operating foundation which expends profit status can be sent to your its funds on its own programs and does not make grants to other institutions. employer by fax, mail or e-mail.
  • 4. 4 www.stutteringhelp.org 1-800-992-9392 Kenyon Continued from page 1 Then, when he was named Player Videotapes of the Year and became the No. 1 college player in the NBA draft in Martin, who has struggled with stuttering since he was a child in 2000, Martin resolved not to let stut- Make Comeback tering get in the way school, says the speech disorder was a of his success. He Dressed as DVDs catalyst that propelled confronts his stutter- Even best-selling videotapes need him to the highest lev- ing head-on and he to update their wardrobe. els of basketball. He doesn’t worry what To perform this extreme makeover, was named National others think. The Stuttering Foundation asked retired Player of the Year in “Knowing that videographer his senior year play- Kenyon also stutters Buddy Morgan to ing for the University helps me,” said one return and trans- of Cincinnati young boy who lives form Stuttering: Bearcats. just south of Denver. Straight Talk for As a 6-foot, 9-inch The 16 Famous People Who Stutter “I think he is great.” Teachers and power forward with poster is available online at His mother agreed. Therapy in www.stutteringhelp.org or call “Kids look up to the Denver Nuggets, 1-800-992-9392. Action: The he averages just over sports stars. They School-Aged 15 points per game. can relate to these Child Who In a recent interview, Martin athletes,” she said. Stutters into said stuttering has haunted him “Kenyon Martin will be a great DVDs. since his childhood in South Dallas. source of inspiration to young peo- After the He endured teasing from classmates ple who struggle with stuttering,” wave of his magic and refused to speak in class. says Jane Fraser, president of The wand (and some video editing equip- Later, as a basketball star in Stuttering Foundation. She notes ment), the popular videos will soon Cincinnati, his fear of being teased that speech therapists, school clini- be available dressed in the contem- was replaced by the fear of speak- cians, teachers and others often dis- porary style of DVD. ing to reporters and he tried his play the posters in a prominent Morgan had a few tricks up his best to avoid interviews. place in their office. ❑ sleeve. Additional footage has been added to Straight Talk for Teachers. And both DVDs will be decked out in redesigned cases. New Self-study CEUs Announced Interested in adding these DVDs to your video closet? Information will By Lisa Scott, Ph.D. Any clinician interested in learning soon be available online at www.stut- Florida State University more about stuttering should consider teringhelp.org. ❑ Several new self-study continuing book # 0016 Stuttering: An Integration education products for speech-lan- of Contemporary Therapies, 3rd ed. by guage pathologists are now available. Barry Guitar. This recently updated clas- Self-study products allow you to sic provides essential information on the complete your continuing education on differences between fluency shaping, your own schedule at your stuttering modification, own pace without ever and how to incorpo- having to leave your rate both approaches home or work setting. into your work with For SLPs working clients who stutter. It with young children, 3 now includes the op- continuing education portunity to earn 3 con- contact hours (or 0.3 tact hours (0.3 CEUs, CEUs) are now avail- product #9016). able for Working With If you have already Preschoolers: Successful purchased the Chmela Intervention Strategies VHS/DVD or either of the by Kristin Chmela. books prior to the associ- If your caseload in- cludes school-age chil- ated continuing education dren who stutter, you materials becoming avail- La Gaceta de Guinea Ecuatorial, Equatorial may be interested in the self-study ac- able, you can simply order the CEU ma- Guinea’s largest magazine, touted the SFA terials for $25 and earn credits for the Spanish-language Web site, www.tarta- tivity Treating the School-Age Child mudez.org, in its March 2005 issue. Who Stutters: A Guide for Clinicians products you already have. Equatorial Guinea is the only country in (2nd ed.). This book by Carl Dell was Call 1-800-992-9392, or visit the on- Africa where Spanish is the principal lan- recently revised and now has 3 contact line store at www.stutteringhelp.org. guage. It is situated on the west coast of hours (0.3 CEUs) available. ❑ Africa, between Cameroon and Gabon.
  • 5. SUMMER 2005 1-800-992-9392 5 “Mr. 59” Golf Invitational Benefits SFA When golf great Al Geiberger shot a 59 in the Danny Thomas- Memphis Golf Classic in June 1977 it was a “remarkable achievement,” in the words of Bob Foote. That score, at that time the lowest ever in a PGA event, inspired Geiberger’s nickname and the tour- nament that, for the past 21 years, has helped raised some large donations for charity. The Stuttering Foundation was again a beneficiary of the “Mr. 59” Golf Invitational held April 14-16 in Palm Magazines Make Room Springs, Calif. Foote, assistant tournament organizer and for Public Service Ads longtime friend of Geiberger’s, was Two new public service ads (PSAs) reached nearly a million readers in the instrumental in adding the SFA to the from The Stuttering Foundation are April issue! short list of charities that benefit enjoying success this spring. Forbes started this year’s aware- from the prestigious three-day tour- The first, an all-print ad, stresses ness campaign off with a bang by plac- nament that draws 130 participants the fact that there are many new op- ing a one-fourth page PSA featuring from across the U.S. to this golfers’ tions for people who stutter. Winston Churchill. Memphis maga- paradise. The second, featuring Buffy the zine chose the John Stossel PSA and Last year, the tournament’s spe- Vampire Slayer star Nick Brendon, is a Modern Healthcare donated a full cial guest was Ken Venturi, past play on words and uses a typeface that page ad with Alan Rabinowitz! Golf chairman of National Stuttering conjures up vampires. preferred the all print ad stating “doing Awareness Week. All PSAs are now in color be- nothing is not an option.” Foote, who has also long strug- cause many large circulation maga- Smaller — but just as effective PSAs gled with stuttering, met with zines run all their pages in color. — ran in Prevention, Seventeen, and Venturi, who talked about his own In the past, many pages were in Penthouse. In addition, People, Time, stuttering and how he overcame it to black and white and advertisers had and Newsweek have long been support- become a CBS commentator. to pay extra for color. Back then, ers of the SFA. This year, Geiberger was joined PSAs were expected to be submitted This is looking like another record by Bob Rosburg for clinics and in black and white. year for the foundation’s annual demonstrations at the Avondale A first for the foundation was a awareness campaign — a campaign Country Club and the Desert Island PSA in House Beautiful, which that often runs for all 12 months. ❑ Country Club, which was capped by a gala awards dinner and auction at the Indian Wells Country Club that raised about $20,000 for three charities. ❑ Faster Than a Speeding Bullet That’s the word out about the new piece of mail, increasing awareness digital postage meter about stuttering far and now to be found at the wide. Stuttering Foundation In fact, during the Memphis office. The past 12 months, SFA Postalia meter process- mailed information to es up to 90 letters a people in 69 countries minute – and at brisk around the world, a new times of year, that speed record. Far flung loca- is a big time saver for tions like Mali, all the staff. Mongolia, Sri Lanka, Bob Foote, left, and Al Geiberger help raise The new meter also prints the and Malta were destinations of SFA money for charities, including the SFA. Stuttering Foundation logo on every materials on stuttering. ❑
  • 6. 6 www.stutteringhelp.org 1-800-992-9392 Lena Rustin Remembered 4 Workshops Dr. Lena Rustin died on December 26, 2004. As in life, she their families. She was a co-founder of the Michael Palin Centre for Help SLPs Be showed her tremendous courage and Stammering Children. determination as she struggled with Throughout her distinguished career, All They Can Be cancer. The words “I’m she worked both in the While it was winter on Dec. hanging on in there!” National Health Service 10th in Cleveland, Kristin were a constant refrain. and in the charitable sector. Chmela’s humor warmed the Rustin gained a repu- She co-authored and hearts of those attending her tation that was both na- edited a number of well- workshop, “Working with tional and international respected books and con- Children Who Stutter: Becoming for the outstanding con- tributed a range of chap- the Best Clinician You Can Be.” tribution she made to the ters to important texts. The event was co-sponsored by speech and language In 1988, Lena was SFA and The Cleveland Hearing therapy profession, par- honored by RCSLT for and Speech Center. ticularly in the field of stammering. her exceptional work in the field of One participant noted, “Kristin’s Diminutive in stature, her dynamic stammering and awarded an honorary presentation empowers me as a clini- personality profoundly influenced the fellowship. In, 1990, she received cian to meaningfully help my stu- profile of the profession and her dedi- the North East Thames Regional dents who stutter.” cation to her clinical work was inspira- Award. Thanks to Kristin’s husband, Tom tional. She demonstrated a passionate Special thanks to The Michael Palin determination to provide a first class Centre for Stammering Children for service for children who stammer and this article. Swish Continued from page 2 identify with the children on the video when they discussed teasing. mails postcards directly to librarians and “It seemed like the kids on the video ships the DVDs or videotapes at no cost.” validated what she was thinking and feel- Jaeschke added that when patrons dis- ing,” Ribbler explained. cover the series, they usually check out Speech-language pathologists have all the films. “They want to get as much used the Swish video in many ways with information as kids. A few ex- they can. Even if amples from Dr. Kristin Chmela presenting at a work- it’s an adult, they Lisa Scott are: shop Dec. 10 in Cleveland. The event check out the • Identifying was sponsored by the SFA and The one for chil- moments of Cleveland Hearing and Speech Center. dren,” he said. stuttering. The La Voz de students point Houston, a out moments of Chmela, SFA materials were available Spanish language stuttering and during the workshop. magazine pub- label them ac- Certainly the weather was lished in Texas, cording to the warmer for Peter Ramig’s in-service ran an article on A few of the headlines from around the country. type they think in Miami, which was sponsored by Swish. they see. the Dade County Schools. Lisa Tamara Jones of King Features in the • Ask children to watch for a specific Scott and local resident Lisette Asbury Park Press notes that the DVD lets topic (teasing, etc.). Take notes on what Betancourt were on hand and parents know that their child needs en- the children on the video say and brain- helped at the SFA booth. couragement and acceptance. The same is storm for more ideas about how to han- Bill Murphy headed south to Waco, true of teachers, she stresses. Teachers dle the problem. Texas. While he was speaking in the should be firm and disapproving at the • Ask kids to write their reaction to the Lone Star State, Mary Ann Moore and first sign of teasing and bullying in the video. Kathy Swiney made sure everything classroom. • Ask children to try to stutter like the went smoothly at the SFA booth. Speech-language pathologist Nancy kids on the video in order to explore all the In Tacoma, Wash., Vivian Ribbler, M.A., says Swish has been excit- different ways there are to stutter. This is Sisskin was a dynamic speaker ing for her students to watch. not to imitate or make fun of those who while Rick Burleigh and Susan “I worked with a little girl in kinder- stutter, but for desensitization. Hamilton of Seattle did a superb job garten who stutters ... Every time Swish • Children can offer “tips” to those on running the booth. came on, she giggled,” Ribbler said. the video. If a child knows how to use par- Because of the hard work of those This child said she liked Swish because ticular speech management skills, he or who staffed the SFA booths, hundreds “he’s funny.” she can write a letter making suggestions of SLPs were exposed to new and tradi- Ribbler said the kindergartner could to the kids on the video. ❑ tional materials on stuttering. ❑
  • 7. SUMMER 2005 1-800-992-9392 7 Booths Draw Crowds at State Conventions LONE STAR STATE Keynote speaker and Chicago Bulls’ leg- end Bob Love made sure to sign posters at the SFA booth during the Texas Speech- Language-Hearing convention in April. On hand during the former basketball player’s appearance were Susan Hamilton, who also “keynoted” during the convention, and Carol Ecke, who traveled from Montana to manage the booth. Ecke explained, “Many people who stopped at the booth were already familiar with SFA material. SLPs noted it is high quality material and there is so much great information. The materials sell themselves.” Joining Ecke at the booth were Dr. Jennifer Watson and her graduate students, Kristi Hammond, Lucey Jones, Kadi Kirland and Janis Wegner. Also lending a hand were Dr. Courtney Byrd, who teaches at the University of Texas in Austin, Kathy Swiney Garden State Carol Ecke (left) and Susan Hamilton As we go to press, Carol Ecke heads watch as Bob Love, legendary star of the of Houston and Susan Hamilton of Seattle. from her home in Great Falls, Mont., to the Chicago Bulls, autographs posters at the East Coast to join featured speakers SFA booth during the 49th Annual Land of Lincoln TSHA convention in Austin, Texas. Kathleen Scaler-Scott of Flemington, N.J., The Illinois Speech-Language-Hearing Copies of his signed poster are available and Vivian Sisskin of the Washington, D.C. Association’s annual convention just outside for $5 as a special fund-raiser for area. The convention is in Atlantic City, the Windy City had record attendance, re- National Stuttering Awareness Week. which always draws a large crowd. ❑ ports Dr. Patricia Zebrowski of the Call 1-800-992-9392 to order. University of Iowa. Zebrowski noted, “People were thrilled to see our booth at ISHA. We ran out of the new Swish tapes on the very first day and had to re- stock several other items, too.” She, along with Tom and Kristin Chmela and Dr. Linda Louko of the University of Iowa, made sure everything ran smoothly at the booth during the February convention. “Many speech-language pathologists were looking for materials that could pro- Sales are hot for Tom and Kristin Kristin Chmela (from left), Patricia vide continuing education credits, and one Chmela at the ISHA convention. Zebrowski, and Linda Louko stand ready to help customers at the ISHA conference. and all liked the SFA’s low prices,” Zebrowski added. Courtney Byrd answers Empire State questions Opening night at the New York State during the Speech-Language-Hearing Association con- TSHA vention got off to a great start, according to Bill conference Shannon, who did a fantastic job of organizing in Austin. the posters, banners and other materials. NYSSLHA volunteers were led by In addition to Shannon, Tom and Lee Lee Caggiano (second from left). Caggiano, Jeff Shames, Heather Grossman, Steffi Schopick, Joy Kling, Steven Bender, Joanna Moskeland and graduate students from Hofstra University all played a huge part in this year’s success. Courtney “SFA was the first booth every SLP saw Byrd (from as they walked into the hall,” Lee Caggiano left), Kathy said. Swiney, Shannon added, “The booth and this year’s and Carol NYSSLHA convention went very well. We Jennifer Watson (left) and Courtney Ecke in Byrd in the SFA booth in Austin, Texas. Austin. had quite a few helpful volunteers.”
  • 8. 8 www.stutteringhelp.org 1-800-992-9392 Dear SFA: Reader Response Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or email info@stutteringhelp.org. Fan mail for Swish laughs at me. I feel ashamed, scared, and acting business would be wise to do? Dear SFA: disrespected at times like this. I don’t Due to the fact that I stutter, I am Brief note to let you know that “my know if I should faint, flee, laugh or what. afraid that will be a wall for me to try to kids” and parents are in love with Swish. It But when I read your article in Seventeen get into the acting business. Is there any has proven to be a relaxing, non-threaten- magazine, I knew I finally found the right information that you can give me? ing door-opener for classroom discussion. help. Please help me in all the ways possi- Patricia This winner should be in the hands of ble with my speech impediment. E-mail every SLP. Please keep up the great work. If it’s not a problem, could you send Sal Pace me some informative brochures on pre- Editor: There are people in every Lexington, Massachusetts venting and treatment of stuttering. profession who stutter, including Thanks, many actors, singers, sports stars P.S. One of my third-graders wished Jeremy and political leaders. Nicholas he had Swish stickers to pass out to his Atlanta, Georgia Brendon from the popular TV se- classmates. May I suggest that you keep ries “Buffy the Vampire Slayer,” the power of stickers in mind for your John Stossel from “20/20” and next animated followup. actor James Earl Jones — the voice of “Darth Vader” in “Star Wars” — are Editor: Based on this recommenda- just a few. tion, The Stuttering Foundation is ex- ploring the idea of producing Swish Teacher seeks advice stickers. Stay tuned! Dear SFA: I am a kindergarten teacher. I will Students enjoy newsletter have a student in my classroom next Dear Sir or Madam: school year who stutters (severe). The My name is Joshuah. I go to school at child is going to be evaluated by our Dennis Elementary. I am 7 years old. speech pathologist in May. However, I I go to speech therapy to work on my want to be knowledgeable about what I fluency. I am interested in your can do for him in the classroom. newsletter. Lisa Joshuah Chicago, Illinois Oklahoma Bunny’s story Dear Sir or Madam: When I slow down, it does not work. My name is Tom. I am 9 years old. I I do not like it when I stutter. When I was go to speech therapy. I am in 3rd grade. I little I really did not like to stutter, but have been learning about all of the types now I do not care. Now, I have a speech of disfluencies. I would be interested in teacher and she helps me when I stutter. Swish has become a celebrity since his receiving your newsletter. Thank you. debut in Stuttering: For Kids, By Kids. Now, I do not stutter a lot any more, but when Tom at the suggestion of a third-grader, The I do, I do not care. Denver, Colorado Stuttering Foundation is exploring the idea These are some things that help me of producing Swish stickers. not to stutter: Please send help 1. I can whisper. To Whomever This May Concern: 2. Stretch out my words. My name is Jeremy. I’m a 15-year-old Is acting a good idea? Hi: 3. Take a 5-second break. and I have been stuttering ever since I can remember. I am 17 years old and I have been stut- 4. Find a different way to say it. I had therapy once in the 7th grade at tering since I was in first grade. Bunny school for about 4 months. Recently, it It was really a struggle as I was growing New Jersey seems like it has gotten worse. Now that up; I felt isolated from people because I I’m in the 10th grade, my speech im- knew there was something wrong with me. 11-year-old speaks up pediment has stopped me from doing I have seen many speech therapists Dear Stuttering Foundation, many activities that involve talking throughout my life so far, and it has helped. My name is Taylor. I am 11 years old. (like giving feedback in groups and I am in choir, so the singing does I am fine with stuttering. When people things of that nature). help my communication skills usually, talk about me, I just laugh. I know that I have a fear of talking because I don’t but other times it is a real struggle to everyone has something. know when I will get stuck on a word and talk to other people. Taylor say it over and over again. And everybody I wanted to know if getting into the New York City
  • 9. SUMMER 2005 1-800-992-9392 9 Contestant Spreads the Word on Stuttering E va Woolwine of Ashland, Kan., is many kids as possible with her story, a busy 18 year old on a mission. combined with a viewing of Stuttering: She is the reigning Miss Garden For Kids by Kids, she can make a dif- City, and is on her way to the Miss ference. Kansas pageant (June 5-12), which is a Eva is a senior at 21st Century preliminary for Miss America. Learning Academy Virtual School. Her platform? Stuttering awareness She is looking forward to attending and education. college in the fall and majoring in “I have stuttered since early child- Early Childhood Development. As a hood and am passionate about clear- practicing magician, she enjoys per- ing up misconceptions regarding forming for audiences of all ages as stuttering and the people who stut- well as for the talent portion of ter,” Eva explained. “I know first pageants. hand that people who stutter are just In the summer of 2000, Eva attended as intelligent and well adjusted as an intensive therapy program in non-stutterers.” Roanoke, Va. National Stuttering Awareness Week “I sometimes wear a SpeechEasy,” is May 9-15 this year and Eva wants Eva said. “That, combined with therapy, people to know about the many re- has helped me tremendously.” sources and services provided by The She will be the first to tell you her Stuttering Foundation. speech is not perfect and that she must She intends to help spread the word work at it daily. by making presentations to classrooms Miss Kansas contestant Eva Woolwine is ed- “The message I want to send is there at various schools. ucating the public about the resources avail- is help and much hope for those of us Eva feels that if she can reach as able for those who stutter. who stutter,” Eva explained. ❑ Incidence & Prevalence scientists, clinicians, consumers of Continued from page 3 services, and private organizations, No Small Task such as The Stuttering Foundation, Continued from page 1 Therefore, it is equally important should strive to alter the perception you can see this tremor as a to understand that the prevalence that stuttering is a “small” problem. trembling of the lips when the varies greatly according to age groups. A recent individual screen- Using various public and private individual is trying to speak. ing study we conducted with more resources, this message should be Another important way to start than 3,000 preschool children taken to Congress, NIDCD, ASHA, to address the question we posed revealed a 2.43% stuttering preva- and educational programs in speech- above is to look at young children lence with no racial or ethnic differ- language pathology. ❑ when they are just starting to stut- ences (Proctor et al., 2002; Yairi & ter. We now have a large project Ambrose, 2005 ). References: under way to do just that. If the findings are valid, they mean Andrews, G., & Harris, M. (1964). The We will be studying speech that at any point in time up to almost syndrome of stuttering, Clinics in develop- coordination processes in 2.5% percent of children under age 5 mental medicine, No. 17. London: William groups of 4- to 5- year old chil- stutter. In other words, at any time, in Heineman Medical Books Ltd. dren who are developing typi- spite of a high level of natural recov- Craig. A, Hancock K, Tran. Y, Craig. M, cally and children who are ery, a substantial number of preschool- & Peters, K. (2002). Epidemiology of stutter- stuttering. We hope to follow ers and their parents may be needing ing in the communication across the entire life them over a five-year period span. Journal of Speech Language Hearing (at present we only have three professional evaluation, counseling, Research, 45:1097-1105. years of funding for the pro- and, sometimes, also therapy. Mansson, H. (2000). Childhood stutter- ject!) to see if early speech An important conclusion is that ing: Incidence and development. Journal of more resources should be directed to motor control characteristics Fluency Disorders, 25, 47-57. research concerning this sub-popula- Proctor A., Duff, M.. and Yairi, E. (2002). during fluent and stuttered tion. Another lesson is that better Early childhood stuttering: African speech predict who will and preparation of speech-language clini- Americans and European Americans. ASHA will not develop a chronic stut- cians for dealing with this substantial Leader, Vol. 4, # 15, 102. tering problem. We look for- group of speech handicapped children Yairi, E., & Ambrose, N. (2005). ward to keeping you informed should receive a higher priority. Early childhood stuttering. Austin, TX: about our progress! ❑ To this end, all interested parties: Pro-Ed, Inc.
  • 10. 12 www.stutteringhelp.org 1-800-992-9392 Begues du Canada, 2596 A rue Chapleau, Stuttering: An Integrated Approach to Its Nature and NEWSBRIEFS The Stuttering Foundation two-day conference for speech-language Montreal, Quebec, Canada, H2K 3H6; 1-877- Treatment by Barry Guitar, Ph.D., published by Lippincott, Williams, and Wilkins, Baltimore, MD. pathologists working with school-age 353-1042. Please enclose $20.00 Canadian to (800) 638-3030. children who stutter, Practical Ideas cover printing, postage, and handling costs. Successful Stuttering Management Program, Second for the School Clinician, will be held For those wanting to obtain a copy of Edition, by Dorvan Breitenfeldt, Ph.D., published by in June, 2005. For dates, place, and an Stuttering and Your Child: Questions and EWU Press, Cheney, WA, (509) 235-6453. application form, call the Stuttering Answers in Hindi, write to: Dr. Sajiv Adlakha, Synergistic Stuttering Therapy: A Holistic Approach by Foundation at 1-800-992-9392 or Adlakha Speech and Hearing Clinic, A67 Sister Charleen Bloom and Donna K. Cooperman. check www.stutteringhelp.org. Dayanand Colony, Lajpat Nagar - 4, New Published by Butterworth Heineman, Woburn, MA. The Stuttering Foundation Eastern Dehli-110024, India, or e-mail: adlakhas@hot- Stuttering Intervention: A Collaborative Journey to Workshop, Treating Children and mail.com Those interested in joining a fluency Fluency Freedom by David Allen Shapiro, published by Adolescents Who Stutter: Practical and public speaking skills group should also Pro-Ed, Austin, Texas. Strategies, directed by Susan Dietrich, contact Dr. Adlakha at the above address. Tongue Wars by William H. Perkins, Ph.D., Athens Ph.D., Sheryl Gottwald, Ph.D., Press, Los Angeles, CA, 800-551-2959. Book on Stuttering or Related The Bob Love Story: If It's Gonna Be, It's Up to Me by Bob Edward G. Conture, Ph.D. in collabo- Topics Available from Bookstores: Love with Mel Watkins, available through bookstores or call ration with Diane Parris, M.A., will be NTC Contemporary Publishing Group, 1-800-323-4900. held at Boston University, June 22-26, 2005. Early Childhood Stuttering: For Clinicians by Paroles de parents by Anne-Marie Simon, L’Ortho- The Stuttering Foundation two-week Workshop Clinicians by Ehud Yairi and Nicoline Ambrose. 2004. Edition, 76, rue Jean Jaures, 62330 Isbergues, France. for Specialists will be held at the University of Available from ProEd, Austin, TX. Clinical Decision Making in Fluency Disorders by Iowa, Iowa City, Iowa, in June 20-July 2, 2005, The Child and Adolescent Stuttering Treatment and Activity Walter H. Manning, Ph.D., published by directed by Patricia Zebrowski, Ph.D. and Toni Resource Guide by Peter Ramig and Darrell Dodge. 2005. Singular/Thomson Learning. Cilek, M.A. Guest speakers are Peter Ramig, Available from Thomson Delmar Learning, Clifton Park, NY. Nature and Treatment of Stuttering : New Directions Ph.D. and Edward G. Conture, Ph.D. This unique Troy’s Amazing Universe, by S. Kennedy Tosten. 2002. by Richard F. Curlee, Ph.D. and Gerald M. Siegel, Ph.D., workshop brings together speech-language pathol- Published by Brite Press. Order from published by Allyn and Bacon, Needham Heights, MA. www.TroysAmazingUniverse.com or amazon.com. A story ogists from all over the world. The Classroom Teacher’s Inclusion Handbook by about a seven year old who stutters. 8th Annual Convention of Friends Who Jerome C. Yanoff, Arthur Coyle Press, Chicago. Experiencias para compatir entre padres e hijos by Stutter will be held in Cleveland, OH, July 28- Karina Couselo Rios, Maria Marta Gebara and Mariela Straight Talk on Stuttering, Information, Encouragement, 30, 2005. Visit www.friendswhostutter.org or e- and Counsel for Stutterers, Caregivers, and Speech- Ginhson. Order from equipfono_gcg@yahoo.com. mail LCaggiano@aol.com. Language Clinicians, 2nd edition by Lloyd M. Hulit, Ph.D. Stuttering Therapy: Rationale and Procedures by Hugo The publisher is Charles C. Thomas, Springfield, Illinois. Annual NSA Convention will be held in H. Gregory, June H. Campbell, Diane G. Hill, and Carolyn Le begaiement, option guerison by Francois Le Huche, Chicago July 13-17, 2005. For more informa- B. Gregory. Available from Allyn and Bacon, Boston, M.D., Albin Michel, Paris, France, 1998. Order from tion, visit www.westutter.org. MA; www.ablongman.com. 2003. Albin Michel, 22, rue Huyghens, 75014 Paris. Les begaiements: Histoire, psychologie, evaluation, vari- Annual CAPS Convention will be held in Stuttering: A Life Bound Up in Words by Marty Jezer. etes, traitements by Anne Van Hout and Francoise Estienne. Edmondton, Alberta, Canada August 18-21, Published by Basic Books, 1997. Published by Masson, S.A., 120 boulevard Saint Germain, 2005. Visit www.stutter.caCAPS2005. 75280 Paris Cedex 06, France. You Will Dream New Dreams: Inspiring Personal For those wanting to purchase a poster entitled Forty Years After Therapy: One Man’s Story by George Stories by Parents of Children With Disabilities by The Bill of Rights and Responsibilities of PWS, Stanley D. Klein, Ph.D., Published by Kensington Books, Helliesen, M.A. Available from Apollo Press, Inc., 1-800- New York, New York. 1-800-221-2647. contact Michael Sugarman at 683-9713 or www.apollopress.com. MSugarman1@aol.com. It represents the com- Stuttering and Science by William H. Perkins, Ph.D. Understanding Stuttering by Nathan Lavid. 2003. and published by Singular Publishing Group, Inc., in San bined effort of the IFA and ISA. University Press of Mississippi, Jackson, MS. Order from Diego, California. bookstores or amazon.com. LISTSERV is for doctoral students spe- Programmed Stuttering Therapy for Children and Adults Elements of Stuttering by Courtney Stromsta, Ph.D. cializing in stuttering. The intent of this list is Available from Stuttering Foundation, 800-992-9392. by Bruce Ryan, Ph.D. Available through publisher Charles C. to serve as an open forum for doctoral stu- ❑ Thomas or online at www.amazon.com dents. Membership is limited to doctoral stu- Making a Difference for America’s Children: SLPs in the dents only. To subscribe, send the following Public Schools by Barbara Moore-Brown and Judy message to “listserv@listserv.temple.edu: Montgomery. Available from Thinking Publications, Eau The Stuttering Foundation of America is a tax-ex- subscribe stutterdoc firstname lastname” or empt organization under section 501(c)(3) of the Claire, WI. 715-832-2488. Internal Revenue Code and is classified as a pri- contact Joe Donaher at turtlecraw@aol.com. Ben Has Something To Say by Laurie Lears, illustrations vate operating foundation as defined in section For those interested in joining Toastmasters by Karen Ritz. A book for children ages 5-9. Albert 4942(j)(3). Charitable contributions and be- International as a way to improve fluency, Whitman & Co., Morton Grove, IL. 800-255-7675. quests to the Foundation are tax- communication or public speaking skills, their Sharing the Journey: Lessons from my Students and deductible, subject to limitations under the Code. address is: Toastmasters International, Inc., Clients with Tangled Tongues by Lon Emerick, Ph.D., Attention: Membership Department, P.O. Box available from North Country Publishing, 355 Heidtman Road, Skandia, MI 49885, for $13.95 plus $2. postage and THE 9052, Mission Viejo, CA 92690, Telephone: (714) 858-8255; Fax: (714) 858-1207. handling, call toll-free 1-866-942-7898; or from the STUTTERING For those wanting to obtain a copy of Self- Stuttering Foundation at 800-992-9392. Living With Stuttering by Kenneth St. Louis, Ph.D. FOUNDATION Therapy for the Stutterer in Japanese, write to Available from Populore Publishing Company, P.O. Box A Nonprofit Organization Dr. Shokichi Nakajima, 2-21-1 Ogawa 4382, Morgantown, WV 26504, 304-599-3830. Since 1947 — Helping Those Who Stutter Machida-shi, Tokyo 194, Japan, Jason’s Secret by Ellen Marie Silverman, Ph.D. 3100 Walnut Grove Road, Suite 603 telephone/fax: 0427 (96) 5092. Published by 1st Books Library. www.1stbooks.com. P.O. Box 11749 ● Memphis, TN 38111-0749 Self-Therapy for the Stutterer is available Stuttering: Its Nature, Diagnosis, and Treatment by 1-800-992-9392 ● 1-800-967-7700 in French. Write to the Association des Edward G. Conture, Ph.D., published by Allyn & Bacon, www.stutteringhelp.org www.tartamudez.org Needham Heights, MA. (781) 433-8410. info@stutteringhelp.org