1. 1-800-992-9392
www.stutteringhelp.org • www.tartamudez.org
T HE S TUTTERING F OUNDATION
A Nonprofit Organization SUMMER 2005 Since 1947... Helping Those Who Stutter
Ehud Yairi on Incidence Wall Street Journal
and Prevalence, page 3 headlines stuttering, page 3
Speaking is NBA star joins
no small task
By Anne Smith, Ph.D.,
Purdue University
SFA lineup
Speaking is many things — it is
thinking of what one wishes to say,
choosing the right words from our vo-
cabulary, putting the words in the prop-
er grammatical framework, communi-
cating the feelings we have, and so on.
At one level though, speaking is
producing move-
ments: move-
ments of the rib
cage, the vocal
cords, and the
mouth. To make
these movements,
we must control
the activity of
about 100 mus-
Anne Smith, Ph.D.
cles. One thing
about stuttering is
K
very clear: when disfluency occurs, enyon Martin, the Denver Nuggets bas-
the individual who stutters is not ketball sensation who was named to the
able to appropriately control the ac- NBA’s All Star Team in 2004, joins other
tivity of the many muscles involved famous people who stutter on a brochure —
in speech. Why is it that some chil- which unfolds into a small poster — distributed
dren do not develop the ability to by The Stuttering Foundation.
control the activity of speech mus- The poster is intended to give children and
cles, and this becomes a lifelong adults who stutter inspiration as they grapple
problem for the chronic stutterer? with their speech disorder.
At Purdue, we have been work- Martin is featured alongside other sports leg-
ing on the answer to that question. ends who stutter: Bill Walton, Ken Venturi and
Clearly we want to know what Bob Love. He is the 16th famous person added
happens when the individual is dis- to the poster. Others featured include actors
fluent. Many of our studies in James Earl Jones and Marilyn Monroe, Winston
adults who stutter have shown that Churchill and 20/20 co-anchor John Stossel.
muscle activity during stuttering is
highly variable among different in- Continued on page 4
dividuals, but highly consistent
Photo by Fernando Medina/NBAE via Getty Images. Copyright 2004 NBAE. Used with permission.
within a single individual over
many different types of disfluen-
cies. The only truly abnormal sign FACTS ABOUT KENYON MARTIN
of muscle activity we have found Team: Denver Nuggets Career Highlights: 2004 NBA All-
during stuttering is tremor. This is Postion: Forward Star, 2003 USA Basketball Men’s
an exaggerated rhythmic activity Born: Dec. 30, 1977 Senior National Team, 16th in NBA in
of muscles happening around 5 to Height: 6 feet, 9 inches 2002-03 in rebounding, named to the
15 times per second. Sometimes College: Graduated from the NBA All-Rookie First Team in 2000-01
Continued on page 9 University of Cincinnati in 2000 Source: www.nuggets.com
2. 2 www.stutteringhelp.org 1-800-992-9392
ADHD Brochure Hot off the Press
Attention-Deficit/Hyperactivity because stuttering and ADHD
Disorder (ADHD) affects nearly 3 often overlap.
to 7 percent of American “Recent studies have suggested
children. To assist speech- as many as 26 percent
language pathologists, par- of children with
ents and classroom teachers ADHD also stutter,”
in reaching these young Donaher explained.
people, The Stuttering “This number may be
Foundation has published significantly higher if
a new brochure. one considers the lan-
In March, the SFA guage-based disfluencies
printed ADHD and secondary to speech and
Stuttering, which is a col- language impairments.”
laboration between E. ADHD isn’t
Charles Healey, Ph.D., unique to children. “Adults
of the University of
Nebraska-Lincoln and
Joseph Donaher, M.A.,
also exhibit many of the
same symptoms as children.
However, adults can learn to
Media can’t
and Stephen Soffer,
M.D., both of the
manage the problem more ef-
fectively than children,” get enough
Children’s Hospital of
Philadelphia.
“The biggest misconceptions
Healey said. “They have
many options including: med-
ication aimed at specific
of Swish
Appearing on the pages of Woman’s
regarding children with ADHD are symptoms, modifications to the Day with 4,239,930 readers, Swish is
that they lack intelligence or that work and home environments to making his debut on the national stage!
they are doing things on purpose,” eliminate distractions and seeking Writes therapist Sal Pace from
Donaher said. counseling.” Massachusetts,
Quoting the book Taking The new brochure defines “my kids, teach-
Charge of ADHD, Revised ADHD and covers Treatment for ers, and parents
Edition: The Complete, Symptoms, Speech and Language are all in love
Authoritative Guide for Parents by Characteristics and Stuttering with Swish! It
R.A. Barkley, Donaher said, and ADHD. The authors also pro- has proven to be
“ADHD is not a problem with the vide guidelines for treating chil- a non-threaten-
child’s knowing what to do; it is a dren and list several resources ing door-opener
problem with the child’s doing that offer more information. for classroom
what he knows.” ADHD and Stuttering is avail- discussion.”
This new brochure is certainly able online at www.stutter- “I’ve been
valuable to those working in the inghelp.org or by calling the SFA using it with success in my fluency
area of speech-language pathology at (800) 992-9392. ❑ groups,” adds Nancy Ribbler, a speech-
language pathologist from Florida.
Articles about this little fellow ap-
peared in hundreds of newspapers and
Dr. Hugo Gregory Remembered magazines during the past months.
A memorial gathering for Dr. Church, Portland, Ark., shared School Nurse News featured his pic-
Hugo H. Gregory was held in Paris, Carolyn Gregory, who added the ser- ture as did Grand Rapids Family mag-
France, on Jan. 22. vice was followed by a reception at azine, Queens Family, Virginia
Many Northwestern/SFA Workshop the home of Hugo’s childhood friends, Journal of Education, Today’s
graduates from Mr. and Mrs. Robert Dean Pugh. Catholic Teacher, and Metro Kids
France and Last fall, several memorial ser- Philadelphia to name a few.
Belgium attended vices were held. One was in the Kim Brown, staff writer for the Tulsa
the gathering orga- Alice Millar Chapel at World, did a feature article about the
nized by Dr. Marie- Northwestern University, which new video/DVD. She notes the kids on
Claude Pfauwadel. was attended by colleagues and the video are talking directly into the
They shared pro- friends. Another took place at First camera in order to communicate with
fessional and per- Methodist Church in Gregory’s the children watching.
sonal remem- hometown of Baraboo, Wis. She quotes local librarian, Myles
Dr. Hugo H. Gregory
brances of their Many memorial gifts have been re- Jaeschke of the Tulsa City-County
time with Hugo. ceived by the foundation in memory Library, “The Stuttering Foundation
Another service and in honor of Dr. Gregory. See page makes obtaining the films easy because it
was held at the Portland Methodist 11 for a listing of these gifts. ❑ Continued on page 6
3. SUMMER 2005 1-800-992-9392 3
Research on Incidence &
Prevalence of Stuttering
By Ehud Yairi, Ph.D., “knowledge” that “only” 1% of the
University of Illinois population stutters has created for us
In a recent conference on stuttering noticeable public perception prob-
sponsored by the National Institute on lems as well as unwarranted attitude The complete article can be downloaded at:
www.stutteringhelp.org/download/wsjstory.pdf
Deafness and Other Communication in the field of communication disor-
Disorders (NIDCD), I discussed several ders. Specifically, the 1% figure has
factors related to pre- produced an incorrect impression that
disposition to stutter- stuttering is a “small” problem. It has
ing. These include
(a) occurrence, (b)
been an important reason why, for a HEADLINES
long period, the American Speech-
age, (c) gender, (d) Language-Hearing Association STUTTERING
genetics, (e) stres- (ASHA) and many universities de-
sors, (f) concomitant For the first time in several years,
emphasized academic and clinical the topic of stuttering has made the
disorders, (g) persis- training in fluency disorders required pages of The Wall Street Journal.
tency-recovery, and of students specializing in speech- The interest of the nation’s sec-
Ehud Yairi, Ph.D.
(h) subtypes. language pathology. ond largest newspaper* was most
Of these, I would Although the prevalence of stutter- likely piqued by press releases sent to
like to summarize ing (how many people stutter at a the newspaper touting auditory-feed-
here a few observations pertaining to the back devices that pick up the voice
given point in time) appears to be
issue of occurrence, that is, how many and play it back into the ear, in the
people stutter. somewhat lower than 1% (about .73%
according to Craig et al., 2002), the hopes of helping those who stutter
Whereas dry statistical data do smooth their speech.
not commonly excite the imagination actual incidence (how many people
have ever stuttered in their life) is The newspaper explains that
of either researchers or clinicians, while this technology has been used
such information tells a whole lot approximately 5%, with onsets occur- for some 50 years in speech labs, it is
about a particular disorder and often ring mainly at the preschool age now growing in popularity as a small,
has significant influences on public (Andrews & Harris, 1964; Manson, inconspicuous device in the ear.
interest, budgetary decisions for 2000). Furthermore, it is important to The Stuttering Foundation’s Web
research and services, and profes- realize that the 1% prevalence is an site was cited as a source of informa-
sional training. average for the population at large. tion in the Jan. 25, 2005, article titled
Thus, in my view, the prevailing Continued on page 9 Auditory-Feedback Device May Help
Stutterers by Reed Albergotti.
The foundation believes it was in-
cluded in the article because it provides
unbiased information about these prod-
Annual Audit of Foundation by KPMG ucts on its Web site (www.stutter-
The annual audit of The Stuttering tion and general expenses and the 6/10 of 1% inghelp.org/electdev.htm). And, in fact,
Foundation financial reports for 2004 was for fund raising are very low, and since we are it received hundreds of hits in the days,
recently completed by the accounting firm fortunate to have an endowment which more weeks, and even months following the
of KPMG. Following is a recap of funds than covers our overhead expenses, donors January article.
and expenditures for the year. can be assured that their gifts will go directly While these devices aren’t for every-
The 3.9% of expenditures for administra- to support our program services. one and The Stuttering Foundation
doesn’t endorse any one product, some
Funds expended for: research suggests this technology may
Creation, production, printing and distribution help a subgroup of people who stutter –
of educational materials . . . . . . . . . . . . . . . . . $623,838 . . . . .53.3% possibly as many as 30 percent. ❑
Public information and education . . . . . . . . . . . . . . . 242,503 . . . . . 20.7% * The Wall Street Journal has a combined Internet and
print circulation of more than 2,600,000 worldwide, according to
Educational symposia for professionals and the Audit Bureau of Circulations.
research . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .136,634 . . . . . 11.7%
Maintain Web site and toll-free stuttering
information hotline. . . . . . . . . . . . . . . . . . . . . . 114,440 . . . . . . 9.8%
Total for Program Services: . . . . . . . . . . . . . . . . $1,117,415 . . . . .95.5% Give the United Way
Other expenditures:
Administration and general . . . . . . . . . . . . . . . . 45,380 . . . . . . 3.9% Do you give through United Way?
Fund raising expense . . . . . . . . . . . . . . . . . . . . . 6,979 . . . . . . 0.6% You can still directly designate
Total Expenditures: . . . . . . . . . . . . . . . . . . . . . . .$1,169,774 . . . . . .100% your gift to the SFA! Proof of non-
The Stuttering Foundation of America is a private operating foundation which expends profit status can be sent to your
its funds on its own programs and does not make grants to other institutions.
employer by fax, mail or e-mail.
4. 4 www.stutteringhelp.org 1-800-992-9392
Kenyon Continued from page 1 Then, when he was named Player
Videotapes
of the Year and became the No. 1
college player in the NBA draft in
Martin, who has struggled with
stuttering since he was a child in 2000, Martin resolved not to let stut- Make Comeback
tering get in the way
school, says the
speech disorder was a of his success. He Dressed as DVDs
catalyst that propelled confronts his stutter- Even best-selling videotapes need
him to the highest lev- ing head-on and he to update their wardrobe.
els of basketball. He doesn’t worry what To perform this extreme makeover,
was named National others think. The Stuttering Foundation asked retired
Player of the Year in “Knowing that videographer
his senior year play- Kenyon also stutters Buddy Morgan to
ing for the University helps me,” said one return and trans-
of Cincinnati young boy who lives form Stuttering:
Bearcats. just south of Denver. Straight Talk for
As a 6-foot, 9-inch The 16 Famous People Who Stutter “I think he is great.” Teachers and
power forward with poster is available online at His mother agreed. Therapy in
www.stutteringhelp.org or call “Kids look up to
the Denver Nuggets, 1-800-992-9392. Action: The
he averages just over sports stars. They School-Aged
15 points per game. can relate to these Child Who
In a recent interview, Martin athletes,” she said. Stutters into
said stuttering has haunted him “Kenyon Martin will be a great DVDs.
since his childhood in South Dallas. source of inspiration to young peo- After the
He endured teasing from classmates ple who struggle with stuttering,” wave of his magic
and refused to speak in class. says Jane Fraser, president of The wand (and some video editing equip-
Later, as a basketball star in Stuttering Foundation. She notes ment), the popular videos will soon
Cincinnati, his fear of being teased that speech therapists, school clini- be available dressed in the contem-
was replaced by the fear of speak- cians, teachers and others often dis- porary style of DVD.
ing to reporters and he tried his play the posters in a prominent Morgan had a few tricks up his
best to avoid interviews. place in their office. ❑ sleeve. Additional footage has been
added to Straight Talk for Teachers.
And both DVDs will be decked out
in redesigned cases.
New Self-study CEUs Announced Interested in adding these DVDs
to your video closet? Information will
By Lisa Scott, Ph.D. Any clinician interested in learning soon be available online at www.stut-
Florida State University more about stuttering should consider teringhelp.org. ❑
Several new self-study continuing book # 0016 Stuttering: An Integration
education products for speech-lan- of Contemporary Therapies, 3rd ed. by
guage pathologists are now available. Barry Guitar. This recently updated clas-
Self-study products allow you to sic provides essential information on the
complete your continuing education on differences between fluency shaping,
your own schedule at your stuttering modification,
own pace without ever and how to incorpo-
having to leave your rate both approaches
home or work setting. into your work with
For SLPs working clients who stutter. It
with young children, 3 now includes the op-
continuing education portunity to earn 3 con-
contact hours (or 0.3 tact hours (0.3 CEUs,
CEUs) are now avail- product #9016).
able for Working With If you have already
Preschoolers: Successful purchased the Chmela
Intervention Strategies VHS/DVD or either of the
by Kristin Chmela.
books prior to the associ-
If your caseload in-
cludes school-age chil- ated continuing education
dren who stutter, you materials becoming avail- La Gaceta de Guinea Ecuatorial, Equatorial
may be interested in the self-study ac- able, you can simply order the CEU ma- Guinea’s largest magazine, touted the SFA
terials for $25 and earn credits for the Spanish-language Web site, www.tarta-
tivity Treating the School-Age Child mudez.org, in its March 2005 issue.
Who Stutters: A Guide for Clinicians products you already have. Equatorial Guinea is the only country in
(2nd ed.). This book by Carl Dell was Call 1-800-992-9392, or visit the on- Africa where Spanish is the principal lan-
recently revised and now has 3 contact line store at www.stutteringhelp.org. guage. It is situated on the west coast of
hours (0.3 CEUs) available. ❑ Africa, between Cameroon and Gabon.
5. SUMMER 2005 1-800-992-9392 5
“Mr. 59” Golf
Invitational
Benefits SFA
When golf great Al Geiberger
shot a 59 in the Danny Thomas-
Memphis Golf Classic in June 1977
it was a “remarkable achievement,”
in the words of Bob Foote.
That score, at that time the lowest
ever in a PGA event, inspired
Geiberger’s nickname and the tour-
nament that, for the past 21 years, has
helped raised some large donations
for charity.
The Stuttering Foundation was
again a beneficiary of
the “Mr. 59” Golf
Invitational held
April 14-16 in Palm Magazines Make Room
Springs, Calif.
Foote, assistant
tournament organizer and
for Public Service Ads
longtime friend of Geiberger’s, was Two new public service ads (PSAs) reached nearly a million readers in the
instrumental in adding the SFA to the from The Stuttering Foundation are April issue!
short list of charities that benefit enjoying success this spring. Forbes started this year’s aware-
from the prestigious three-day tour- The first, an all-print ad, stresses ness campaign off with a bang by plac-
nament that draws 130 participants the fact that there are many new op- ing a one-fourth page PSA featuring
from across the U.S. to this golfers’ tions for people who stutter. Winston Churchill. Memphis maga-
paradise. The second, featuring Buffy the zine chose the John Stossel PSA and
Last year, the tournament’s spe- Vampire Slayer star Nick Brendon, is a Modern Healthcare donated a full
cial guest was Ken Venturi, past play on words and uses a typeface that page ad with Alan Rabinowitz! Golf
chairman of National Stuttering conjures up vampires. preferred the all print ad stating “doing
Awareness Week. All PSAs are now in color be- nothing is not an option.”
Foote, who has also long strug- cause many large circulation maga- Smaller — but just as effective PSAs
gled with stuttering, met with zines run all their pages in color. — ran in Prevention, Seventeen, and
Venturi, who talked about his own In the past, many pages were in Penthouse. In addition, People, Time,
stuttering and how he overcame it to black and white and advertisers had and Newsweek have long been support-
become a CBS commentator. to pay extra for color. Back then, ers of the SFA.
This year, Geiberger was joined PSAs were expected to be submitted This is looking like another record
by Bob Rosburg for clinics and in black and white. year for the foundation’s annual
demonstrations at the Avondale A first for the foundation was a awareness campaign — a campaign
Country Club and the Desert Island PSA in House Beautiful, which that often runs for all 12 months. ❑
Country Club, which was capped by a
gala awards dinner and auction at the
Indian Wells Country Club that raised
about $20,000 for three charities. ❑ Faster Than a Speeding Bullet
That’s the word out about the new piece of mail, increasing awareness
digital postage meter about stuttering far and
now to be found at the wide.
Stuttering Foundation In fact, during the
Memphis office. The past 12 months, SFA
Postalia meter process- mailed information to
es up to 90 letters a people in 69 countries
minute – and at brisk around the world, a new
times of year, that speed record. Far flung loca-
is a big time saver for tions like Mali,
all the staff. Mongolia, Sri Lanka,
Bob Foote, left, and Al Geiberger help raise The new meter also prints the and Malta were destinations of SFA
money for charities, including the SFA. Stuttering Foundation logo on every materials on stuttering. ❑
6. 6 www.stutteringhelp.org 1-800-992-9392
Lena Rustin Remembered 4 Workshops
Dr. Lena Rustin died on
December 26, 2004. As in life, she
their families. She was a co-founder of
the Michael Palin Centre for Help SLPs Be
showed her tremendous courage and Stammering Children.
determination as she struggled with Throughout her distinguished career, All They Can Be
cancer. The words “I’m she worked both in the While it was winter on Dec.
hanging on in there!” National Health Service 10th in Cleveland, Kristin
were a constant refrain. and in the charitable sector. Chmela’s humor warmed the
Rustin gained a repu- She co-authored and hearts of those attending her
tation that was both na- edited a number of well- workshop, “Working with
tional and international respected books and con- Children Who Stutter: Becoming
for the outstanding con- tributed a range of chap- the Best Clinician You Can Be.”
tribution she made to the ters to important texts. The event was co-sponsored by
speech and language In 1988, Lena was SFA and The Cleveland Hearing
therapy profession, par- honored by RCSLT for and Speech Center.
ticularly in the field of stammering. her exceptional work in the field of One participant noted, “Kristin’s
Diminutive in stature, her dynamic stammering and awarded an honorary presentation empowers me as a clini-
personality profoundly influenced the fellowship. In, 1990, she received cian to meaningfully help my stu-
profile of the profession and her dedi- the North East Thames Regional dents who stutter.”
cation to her clinical work was inspira- Award. Thanks to Kristin’s husband, Tom
tional. She demonstrated a passionate Special thanks to The Michael Palin
determination to provide a first class Centre for Stammering Children for
service for children who stammer and this article.
Swish Continued from page 2 identify with the children on the video
when they discussed teasing.
mails postcards directly to librarians and “It seemed like the kids on the video
ships the DVDs or videotapes at no cost.” validated what she was thinking and feel-
Jaeschke added that when patrons dis- ing,” Ribbler explained.
cover the series, they usually check out Speech-language pathologists have
all the films. “They want to get as much used the Swish video in many ways with
information as kids. A few ex-
they can. Even if amples from Dr.
Kristin Chmela presenting at a work-
it’s an adult, they Lisa Scott are: shop Dec. 10 in Cleveland. The event
check out the • Identifying was sponsored by the SFA and The
one for chil- moments of Cleveland Hearing and Speech Center.
dren,” he said. stuttering. The
La Voz de students point
Houston, a out moments of Chmela, SFA materials were available
Spanish language stuttering and during the workshop.
magazine pub- label them ac- Certainly the weather was
lished in Texas, cording to the warmer for Peter Ramig’s in-service
ran an article on A few of the headlines from around the country. type they think in Miami, which was sponsored by
Swish. they see. the Dade County Schools. Lisa
Tamara Jones of King Features in the • Ask children to watch for a specific Scott and local resident Lisette
Asbury Park Press notes that the DVD lets topic (teasing, etc.). Take notes on what Betancourt were on hand and
parents know that their child needs en- the children on the video say and brain- helped at the SFA booth.
couragement and acceptance. The same is storm for more ideas about how to han- Bill Murphy headed south to Waco,
true of teachers, she stresses. Teachers dle the problem. Texas. While he was speaking in the
should be firm and disapproving at the • Ask kids to write their reaction to the Lone Star State, Mary Ann Moore and
first sign of teasing and bullying in the video. Kathy Swiney made sure everything
classroom. • Ask children to try to stutter like the went smoothly at the SFA booth.
Speech-language pathologist Nancy kids on the video in order to explore all the In Tacoma, Wash., Vivian
Ribbler, M.A., says Swish has been excit- different ways there are to stutter. This is Sisskin was a dynamic speaker
ing for her students to watch. not to imitate or make fun of those who while Rick Burleigh and Susan
“I worked with a little girl in kinder- stutter, but for desensitization. Hamilton of Seattle did a superb job
garten who stutters ... Every time Swish • Children can offer “tips” to those on running the booth.
came on, she giggled,” Ribbler said. the video. If a child knows how to use par- Because of the hard work of those
This child said she liked Swish because ticular speech management skills, he or who staffed the SFA booths, hundreds
“he’s funny.” she can write a letter making suggestions of SLPs were exposed to new and tradi-
Ribbler said the kindergartner could to the kids on the video. ❑ tional materials on stuttering. ❑
7. SUMMER 2005 1-800-992-9392 7
Booths Draw Crowds at State Conventions
LONE STAR STATE
Keynote speaker and Chicago Bulls’ leg-
end Bob Love made sure to sign posters at
the SFA booth during the Texas Speech-
Language-Hearing convention in April.
On hand during the former basketball
player’s appearance were Susan Hamilton,
who also “keynoted” during the convention,
and Carol Ecke, who traveled from
Montana to manage the booth.
Ecke explained, “Many people who
stopped at the booth were already familiar
with SFA material. SLPs noted it is high
quality material and there is so much great
information. The materials sell themselves.”
Joining Ecke at the booth were Dr.
Jennifer Watson and her graduate students,
Kristi Hammond, Lucey Jones, Kadi Kirland
and Janis Wegner. Also lending a hand were
Dr. Courtney Byrd, who teaches at the
University of Texas in Austin, Kathy Swiney
Garden State Carol Ecke (left) and Susan Hamilton
As we go to press, Carol Ecke heads watch as Bob Love, legendary star of the
of Houston and Susan Hamilton of Seattle.
from her home in Great Falls, Mont., to the Chicago Bulls, autographs posters at the
East Coast to join featured speakers SFA booth during the 49th Annual
Land of Lincoln TSHA convention in Austin, Texas.
Kathleen Scaler-Scott of Flemington, N.J.,
The Illinois Speech-Language-Hearing Copies of his signed poster are available
and Vivian Sisskin of the Washington, D.C.
Association’s annual convention just outside for $5 as a special fund-raiser for
area. The convention is in Atlantic City,
the Windy City had record attendance, re- National Stuttering Awareness Week.
which always draws a large crowd. ❑
ports Dr. Patricia Zebrowski of the Call 1-800-992-9392 to order.
University of Iowa.
Zebrowski noted, “People were thrilled to
see our booth at ISHA. We ran out of the new
Swish tapes on the very first day and had to re-
stock several other items, too.”
She, along with Tom and Kristin Chmela
and Dr. Linda Louko of the University of
Iowa, made sure everything ran smoothly at
the booth during the February convention.
“Many speech-language pathologists
were looking for materials that could pro- Sales are hot for Tom and Kristin Kristin Chmela (from left), Patricia
vide continuing education credits, and one Chmela at the ISHA convention. Zebrowski, and Linda Louko stand ready
to help customers at the ISHA conference.
and all liked the SFA’s low prices,”
Zebrowski added.
Courtney
Byrd answers
Empire State questions
Opening night at the New York State during the
Speech-Language-Hearing Association con- TSHA
vention got off to a great start, according to Bill conference
Shannon, who did a fantastic job of organizing in Austin.
the posters, banners and other materials.
NYSSLHA volunteers were led by
In addition to Shannon, Tom and Lee Lee Caggiano (second from left).
Caggiano, Jeff Shames, Heather Grossman,
Steffi Schopick, Joy Kling, Steven Bender,
Joanna Moskeland and graduate students
from Hofstra University all played a huge part
in this year’s success.
Courtney
“SFA was the first booth every SLP saw Byrd (from
as they walked into the hall,” Lee Caggiano left), Kathy
said. Swiney,
Shannon added, “The booth and this year’s and Carol
NYSSLHA convention went very well. We Jennifer Watson (left) and Courtney Ecke in
Byrd in the SFA booth in Austin, Texas. Austin.
had quite a few helpful volunteers.”
8. 8 www.stutteringhelp.org 1-800-992-9392
Dear SFA: Reader Response
Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or email info@stutteringhelp.org.
Fan mail for Swish laughs at me. I feel ashamed, scared, and acting business would be wise to do?
Dear SFA: disrespected at times like this. I don’t Due to the fact that I stutter, I am
Brief note to let you know that “my know if I should faint, flee, laugh or what. afraid that will be a wall for me to try to
kids” and parents are in love with Swish. It But when I read your article in Seventeen get into the acting business. Is there any
has proven to be a relaxing, non-threaten- magazine, I knew I finally found the right information that you can give me?
ing door-opener for classroom discussion. help. Please help me in all the ways possi- Patricia
This winner should be in the hands of ble with my speech impediment. E-mail
every SLP. Please keep up the great work. If it’s not a problem, could you send
Sal Pace me some informative brochures on pre- Editor: There are people in every
Lexington, Massachusetts venting and treatment of stuttering. profession who stutter, including
Thanks, many actors, singers, sports stars
P.S. One of my third-graders wished Jeremy and political leaders. Nicholas
he had Swish stickers to pass out to his Atlanta, Georgia Brendon from the popular TV se-
classmates. May I suggest that you keep ries “Buffy the Vampire Slayer,”
the power of stickers in mind for your John Stossel from “20/20” and
next animated followup. actor James Earl Jones — the voice
of “Darth Vader” in “Star Wars” — are
Editor: Based on this recommenda- just a few.
tion, The Stuttering Foundation is ex-
ploring the idea of producing Swish Teacher seeks advice
stickers. Stay tuned! Dear SFA:
I am a kindergarten teacher. I will
Students enjoy newsletter have a student in my classroom next
Dear Sir or Madam: school year who stutters (severe). The
My name is Joshuah. I go to school at child is going to be evaluated by our
Dennis Elementary. I am 7 years old. speech pathologist in May. However, I
I go to speech therapy to work on my want to be knowledgeable about what I
fluency. I am interested in your can do for him in the classroom.
newsletter. Lisa
Joshuah Chicago, Illinois
Oklahoma
Bunny’s story
Dear Sir or Madam: When I slow down, it does not work.
My name is Tom. I am 9 years old. I I do not like it when I stutter. When I was
go to speech therapy. I am in 3rd grade. I little I really did not like to stutter, but
have been learning about all of the types now I do not care. Now, I have a speech
of disfluencies. I would be interested in teacher and she helps me when I stutter.
Swish has become a celebrity since his
receiving your newsletter. Thank you. debut in Stuttering: For Kids, By Kids. Now, I do not stutter a lot any more, but when
Tom at the suggestion of a third-grader, The I do, I do not care.
Denver, Colorado Stuttering Foundation is exploring the idea These are some things that help me
of producing Swish stickers.
not to stutter:
Please send help 1. I can whisper.
To Whomever This May Concern: 2. Stretch out my words.
My name is Jeremy. I’m a 15-year-old Is acting a good idea?
Hi: 3. Take a 5-second break.
and I have been stuttering ever since I
can remember. I am 17 years old and I have been stut- 4. Find a different way to say it.
I had therapy once in the 7th grade at tering since I was in first grade. Bunny
school for about 4 months. Recently, it It was really a struggle as I was growing New Jersey
seems like it has gotten worse. Now that up; I felt isolated from people because I
I’m in the 10th grade, my speech im- knew there was something wrong with me. 11-year-old speaks up
pediment has stopped me from doing I have seen many speech therapists Dear Stuttering Foundation,
many activities that involve talking throughout my life so far, and it has helped. My name is Taylor. I am 11 years old.
(like giving feedback in groups and I am in choir, so the singing does I am fine with stuttering. When people
things of that nature). help my communication skills usually, talk about me, I just laugh. I know that
I have a fear of talking because I don’t but other times it is a real struggle to everyone has something.
know when I will get stuck on a word and talk to other people. Taylor
say it over and over again. And everybody I wanted to know if getting into the New York City
9. SUMMER 2005 1-800-992-9392 9
Contestant Spreads the Word on Stuttering
E
va Woolwine of Ashland, Kan., is many kids as possible with her story,
a busy 18 year old on a mission. combined with a viewing of Stuttering:
She is the reigning Miss Garden For Kids by Kids, she can make a dif-
City, and is on her way to the Miss ference.
Kansas pageant (June 5-12), which is a Eva is a senior at 21st Century
preliminary for Miss America. Learning Academy Virtual School.
Her platform? Stuttering awareness She is looking forward to attending
and education. college in the fall and majoring in
“I have stuttered since early child- Early Childhood Development. As a
hood and am passionate about clear- practicing magician, she enjoys per-
ing up misconceptions regarding forming for audiences of all ages as
stuttering and the people who stut- well as for the talent portion of
ter,” Eva explained. “I know first pageants.
hand that people who stutter are just In the summer of 2000, Eva attended
as intelligent and well adjusted as an intensive therapy program in
non-stutterers.” Roanoke, Va.
National Stuttering Awareness Week “I sometimes wear a SpeechEasy,”
is May 9-15 this year and Eva wants Eva said. “That, combined with therapy,
people to know about the many re- has helped me tremendously.”
sources and services provided by The She will be the first to tell you her
Stuttering Foundation. speech is not perfect and that she must
She intends to help spread the word work at it daily.
by making presentations to classrooms Miss Kansas contestant Eva Woolwine is ed-
“The message I want to send is there
at various schools. ucating the public about the resources avail- is help and much hope for those of us
Eva feels that if she can reach as able for those who stutter. who stutter,” Eva explained. ❑
Incidence & Prevalence scientists, clinicians, consumers of
Continued from page 3 services, and private organizations, No Small Task
such as The Stuttering Foundation, Continued from page 1
Therefore, it is equally important
should strive to alter the perception you can see this tremor as a
to understand that the prevalence
that stuttering is a “small” problem. trembling of the lips when the
varies greatly according to age
groups. A recent individual screen- Using various public and private individual is trying to speak.
ing study we conducted with more resources, this message should be Another important way to start
than 3,000 preschool children taken to Congress, NIDCD, ASHA, to address the question we posed
revealed a 2.43% stuttering preva- and educational programs in speech- above is to look at young children
lence with no racial or ethnic differ- language pathology. ❑ when they are just starting to stut-
ences (Proctor et al., 2002; Yairi & ter. We now have a large project
Ambrose, 2005 ). References: under way to do just that.
If the findings are valid, they mean Andrews, G., & Harris, M. (1964). The We will be studying speech
that at any point in time up to almost syndrome of stuttering, Clinics in develop- coordination processes in
2.5% percent of children under age 5 mental medicine, No. 17. London: William groups of 4- to 5- year old chil-
stutter. In other words, at any time, in Heineman Medical Books Ltd. dren who are developing typi-
spite of a high level of natural recov- Craig. A, Hancock K, Tran. Y, Craig. M, cally and children who are
ery, a substantial number of preschool- & Peters, K. (2002). Epidemiology of stutter- stuttering. We hope to follow
ers and their parents may be needing ing in the communication across the entire life them over a five-year period
span. Journal of Speech Language Hearing (at present we only have three
professional evaluation, counseling,
Research, 45:1097-1105. years of funding for the pro-
and, sometimes, also therapy.
Mansson, H. (2000). Childhood stutter- ject!) to see if early speech
An important conclusion is that
ing: Incidence and development. Journal of
more resources should be directed to motor control characteristics
Fluency Disorders, 25, 47-57.
research concerning this sub-popula- Proctor A., Duff, M.. and Yairi, E. (2002).
during fluent and stuttered
tion. Another lesson is that better Early childhood stuttering: African
speech predict who will and
preparation of speech-language clini- Americans and European Americans. ASHA will not develop a chronic stut-
cians for dealing with this substantial Leader, Vol. 4, # 15, 102. tering problem. We look for-
group of speech handicapped children Yairi, E., & Ambrose, N. (2005). ward to keeping you informed
should receive a higher priority. Early childhood stuttering. Austin, TX: about our progress! ❑
To this end, all interested parties: Pro-Ed, Inc.
10. 12 www.stutteringhelp.org 1-800-992-9392
Begues du Canada, 2596 A rue Chapleau, Stuttering: An Integrated Approach to Its Nature and
NEWSBRIEFS The Stuttering Foundation two-day
conference for speech-language Montreal, Quebec, Canada, H2K 3H6; 1-877- Treatment by Barry Guitar, Ph.D., published by
Lippincott, Williams, and Wilkins, Baltimore, MD.
pathologists working with school-age 353-1042. Please enclose $20.00 Canadian to
(800) 638-3030.
children who stutter, Practical Ideas cover printing, postage, and handling costs.
Successful Stuttering Management Program, Second
for the School Clinician, will be held For those wanting to obtain a copy of Edition, by Dorvan Breitenfeldt, Ph.D., published by
in June, 2005. For dates, place, and an Stuttering and Your Child: Questions and EWU Press, Cheney, WA, (509) 235-6453.
application form, call the Stuttering Answers in Hindi, write to: Dr. Sajiv Adlakha, Synergistic Stuttering Therapy: A Holistic Approach by
Foundation at 1-800-992-9392 or Adlakha Speech and Hearing Clinic, A67 Sister Charleen Bloom and Donna K. Cooperman.
check www.stutteringhelp.org. Dayanand Colony, Lajpat Nagar - 4, New Published by Butterworth Heineman, Woburn, MA.
The Stuttering Foundation Eastern Dehli-110024, India, or e-mail: adlakhas@hot- Stuttering Intervention: A Collaborative Journey to
Workshop, Treating Children and mail.com Those interested in joining a fluency Fluency Freedom by David Allen Shapiro, published by
Adolescents Who Stutter: Practical and public speaking skills group should also Pro-Ed, Austin, Texas.
Strategies, directed by Susan Dietrich, contact Dr. Adlakha at the above address. Tongue Wars by William H. Perkins, Ph.D., Athens
Ph.D., Sheryl Gottwald, Ph.D., Press, Los Angeles, CA, 800-551-2959.
Book on Stuttering or Related The Bob Love Story: If It's Gonna Be, It's Up to Me by Bob
Edward G. Conture, Ph.D. in collabo-
Topics Available from Bookstores: Love with Mel Watkins, available through bookstores or call
ration with Diane Parris, M.A., will be
NTC Contemporary Publishing Group, 1-800-323-4900.
held at Boston University, June 22-26, 2005. Early Childhood Stuttering: For Clinicians by
Paroles de parents by Anne-Marie Simon, L’Ortho-
The Stuttering Foundation two-week Workshop Clinicians by Ehud Yairi and Nicoline Ambrose. 2004.
Edition, 76, rue Jean Jaures, 62330 Isbergues, France.
for Specialists will be held at the University of Available from ProEd, Austin, TX.
Clinical Decision Making in Fluency Disorders by
Iowa, Iowa City, Iowa, in June 20-July 2, 2005, The Child and Adolescent Stuttering Treatment and Activity
Walter H. Manning, Ph.D., published by
directed by Patricia Zebrowski, Ph.D. and Toni Resource Guide by Peter Ramig and Darrell Dodge. 2005.
Singular/Thomson Learning.
Cilek, M.A. Guest speakers are Peter Ramig, Available from Thomson Delmar Learning, Clifton Park, NY.
Nature and Treatment of Stuttering : New Directions
Ph.D. and Edward G. Conture, Ph.D. This unique Troy’s Amazing Universe, by S. Kennedy Tosten. 2002.
by Richard F. Curlee, Ph.D. and Gerald M. Siegel, Ph.D.,
workshop brings together speech-language pathol- Published by Brite Press. Order from
published by Allyn and Bacon, Needham Heights, MA.
www.TroysAmazingUniverse.com or amazon.com. A story
ogists from all over the world. The Classroom Teacher’s Inclusion Handbook by
about a seven year old who stutters.
8th Annual Convention of Friends Who Jerome C. Yanoff, Arthur Coyle Press, Chicago.
Experiencias para compatir entre padres e hijos by
Stutter will be held in Cleveland, OH, July 28- Karina Couselo Rios, Maria Marta Gebara and Mariela
Straight Talk on Stuttering, Information, Encouragement,
30, 2005. Visit www.friendswhostutter.org or e- and Counsel for Stutterers, Caregivers, and Speech-
Ginhson. Order from equipfono_gcg@yahoo.com.
mail LCaggiano@aol.com. Language Clinicians, 2nd edition by Lloyd M. Hulit, Ph.D.
Stuttering Therapy: Rationale and Procedures by Hugo
The publisher is Charles C. Thomas, Springfield, Illinois.
Annual NSA Convention will be held in H. Gregory, June H. Campbell, Diane G. Hill, and Carolyn
Le begaiement, option guerison by Francois Le Huche,
Chicago July 13-17, 2005. For more informa- B. Gregory. Available from Allyn and Bacon, Boston,
M.D., Albin Michel, Paris, France, 1998. Order from
tion, visit www.westutter.org. MA; www.ablongman.com. 2003.
Albin Michel, 22, rue Huyghens, 75014 Paris.
Les begaiements: Histoire, psychologie, evaluation, vari-
Annual CAPS Convention will be held in Stuttering: A Life Bound Up in Words by Marty Jezer.
etes, traitements by Anne Van Hout and Francoise Estienne.
Edmondton, Alberta, Canada August 18-21, Published by Basic Books, 1997.
Published by Masson, S.A., 120 boulevard Saint Germain,
2005. Visit www.stutter.caCAPS2005. 75280 Paris Cedex 06, France. You Will Dream New Dreams: Inspiring Personal
For those wanting to purchase a poster entitled Forty Years After Therapy: One Man’s Story by George
Stories by Parents of Children With Disabilities by
The Bill of Rights and Responsibilities of PWS, Stanley D. Klein, Ph.D., Published by Kensington Books,
Helliesen, M.A. Available from Apollo Press, Inc., 1-800-
New York, New York. 1-800-221-2647.
contact Michael Sugarman at 683-9713 or www.apollopress.com.
MSugarman1@aol.com. It represents the com- Stuttering and Science by William H. Perkins, Ph.D.
Understanding Stuttering by Nathan Lavid. 2003.
and published by Singular Publishing Group, Inc., in San
bined effort of the IFA and ISA. University Press of Mississippi, Jackson, MS. Order from
Diego, California.
bookstores or amazon.com.
LISTSERV is for doctoral students spe-
Programmed Stuttering Therapy for Children and Adults Elements of Stuttering by Courtney Stromsta, Ph.D.
cializing in stuttering. The intent of this list is Available from Stuttering Foundation, 800-992-9392.
by Bruce Ryan, Ph.D. Available through publisher Charles C.
to serve as an open forum for doctoral stu- ❑
Thomas or online at www.amazon.com
dents. Membership is limited to doctoral stu-
Making a Difference for America’s Children: SLPs in the
dents only. To subscribe, send the following
Public Schools by Barbara Moore-Brown and Judy
message to “listserv@listserv.temple.edu: Montgomery. Available from Thinking Publications, Eau
The Stuttering Foundation of America is a tax-ex-
subscribe stutterdoc firstname lastname” or empt organization under section 501(c)(3) of the
Claire, WI. 715-832-2488.
Internal Revenue Code and is classified as a pri-
contact Joe Donaher at turtlecraw@aol.com. Ben Has Something To Say by Laurie Lears, illustrations vate operating foundation as defined in section
For those interested in joining Toastmasters by Karen Ritz. A book for children ages 5-9. Albert 4942(j)(3). Charitable contributions and be-
International as a way to improve fluency, Whitman & Co., Morton Grove, IL. 800-255-7675. quests to the Foundation are tax-
communication or public speaking skills, their Sharing the Journey: Lessons from my Students and deductible, subject to limitations under the Code.
address is: Toastmasters International, Inc., Clients with Tangled Tongues by Lon Emerick, Ph.D.,
Attention: Membership Department, P.O. Box available from North Country Publishing, 355 Heidtman
Road, Skandia, MI 49885, for $13.95 plus $2. postage and THE
9052, Mission Viejo, CA 92690, Telephone:
(714) 858-8255; Fax: (714) 858-1207.
handling, call toll-free 1-866-942-7898; or from the STUTTERING
For those wanting to obtain a copy of Self-
Stuttering Foundation at 800-992-9392.
Living With Stuttering by Kenneth St. Louis, Ph.D.
FOUNDATION
Therapy for the Stutterer in Japanese, write to Available from Populore Publishing Company, P.O. Box A Nonprofit Organization
Dr. Shokichi Nakajima, 2-21-1 Ogawa 4382, Morgantown, WV 26504, 304-599-3830. Since 1947 — Helping Those Who Stutter
Machida-shi, Tokyo 194, Japan, Jason’s Secret by Ellen Marie Silverman, Ph.D. 3100 Walnut Grove Road, Suite 603
telephone/fax: 0427 (96) 5092. Published by 1st Books Library. www.1stbooks.com. P.O. Box 11749 ● Memphis, TN 38111-0749
Self-Therapy for the Stutterer is available Stuttering: Its Nature, Diagnosis, and Treatment by
1-800-992-9392 ● 1-800-967-7700
in French. Write to the Association des Edward G. Conture, Ph.D., published by Allyn & Bacon,
www.stutteringhelp.org www.tartamudez.org
Needham Heights, MA. (781) 433-8410. info@stutteringhelp.org