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www.stutteringhelp.org • 800-992-9392 • www.tartamudez.org

         T HE S TUTTERING F OUNDATION
            A Nonprofit Organization             SUMMER 2008                       Since 1947... Helping Those Who Stutter



New Research
 from Purdue
By Anne Smith, Ph.D.
Purdue University

  I am pleased to have this opportu-
nity to update you on the progress
over the past year from the Purdue
                                                                                                      Sproles
                    Stuttering Project.
                      You may recall
                                                                                                      Joins
                    from our earlier                                                                  Sports
                    articles that we
                    are engaged in a
                                          The                                                         Legends
                    longitudinal study
                    of young children
                    who stutter and
                                          great                                                         Darren Sproles, of
                                                                                                      the San Diego
  Anne Smith, Ph.D.
                    their normally
                    fluent controls.
                       With funding
                                          play                                                        Chargers who made
                                                                                                      history last season
                                                                                                      by returning a kick-
from the NIH's National Institute                                                                     off and a punt for his
on      Deafness        and
Communication Disorders, we
                                Other

have been recruiting 4 and 5-year-
                                          for SFA                                                     first two NFL touch-
                                                                                                      downs in the same
                                                                                                      game, joins other fa-
olds, and we will be following                                                                        mous people who
them yearly for a period of 5                                                                         stutter in a new
years. In fact, we have just re-           National Stuttering                                        brochure celebrating
ceived notice from the NIH that            Awareness Week
                                           is May 12-18                                                   Continued on page 13
our project will be funded for an                                            Photos courtesy of NFL
additional five years.
  After the five years of testing, the                      Facts about Darren Sproles
children will be 9 or 10 years old,
and approximately half of them               Team: San Diego Chargers                Born: Waterloo, Iowa
will have recovered from stutter-            Position: Running back                  Career Highlights: Twice
ing, while half will persist. In each        and return specialist                   named The Kansas City
yearly visit to our laboratories, the        College: Kansas State                   Star Player of the Year
children participate in an extensive         University                                                  Source: www.wikipedia.com

set of experiments, including those
that test basic motor timing ability,
                    Continued on page 8         Frances Cook Joins SFA Board
                                            Frances Cook, who            in 2005, and has been head
Inside...                                 joined the SFA Board of        of Speciality at the Michael
                                          Directors in January, has      Palin Centre in London
   Exciting new DVD . . . . . . . 2       specialized in stuttering      since 1995.
   Fraser earns national award . 3        since the early 1970s.           She has authored numer-
   Remembering Richard Curlee               In 2005, she earned          ous papers, chapters and
                                          Honours of the Royal           texts in relation to stuttering
   and Vivian Sheehan . . . . . . 4       College of Speech and          therapy and research, and
   Letters from young readers. 6          Language Therapists, be-       contributed to the Stuttering
   A recipe for confidence . . . 9        came Honorary Research         Foundation’s recently re-
                                                                                                                      Frances
                                          Fellow of University College   leased DVD Stuttering:                        Cook
   Celebrate Awareness Week . 16          London (Psychology Dept)       Basic Clinical Skills.        K
THE
                                                          STUTTERING
2        www.stutteringhelp.org                           FOUNDATION                                 800-992-9392



    Luterman’s Expertise Sharpens Skills
    By Diane Parris, M.S.
    Boston University

       “In order to be a growing professional, we need to
    be always on the fringe of our incompetency,” that is
    to say we always need to be pushing ourselves to our
    limits of competence in order to learn new
    skills at higher levels.
       This was the invitation offered                                                                Bob
    by David Luterman, D.Ed. as he                                                                 O’Brien
    began training ten participants in                                                             prepares
    counseling skills for the latest                                                               the video
    Stuttering Foundation production                                                               equipment.
    Sharpening Counseling Skills.
       Based on forty years of experience
    and as Director of the Thayer Lindsey
    Family-Centered Nursery for Hearing
    Impaired Children at Emerson College
    in Boston, and on his seminal book,
    Counseling Persons with Communication Disorders                       David Luterman puts on
    and Their Families, Dr. Luterman describes the coun-               his microphone before the
    seling relationship as an unconventional one.                      filming begins.
       “It is a relationship that necessitates deep, self-
    less listening.”
       It requires the professional to put aside his or her
                                                                Behind the scenes
    point of view in order to fully understand the
    client’s point of view and to put themselves in the
    role of “coach, not fixer.”
       This three-hour DVD captures the unique process
    that a clinician goes through in learning how to lis-
    ten deeply and to provide counseling with inner wis-
    dom. As a viewer, you will join the ten participants
    — a graduate student, beginning and experienced
    clinicians, and researchers — as they transform their
    thinking about being in the role of counselor and
    practice the skill of nonjudgmental listening.
       You will hear their personal stories and concerns
    when an environment of emotional safety is created.
    When understanding and acceptance are provided, they
    begin the process of resolving problems on their own.       “Getting Wired”
       Counseling from this perspective means the clin-
    ician must overcome the discomfort associated               Participants put on
    with silence, an essential tool in deep listening. He       their microphones.
    or she must resist the tendency to provide immedi-
    ate information and advice to clients and instead
    listen to the messages that lie beneath their words.
       “And also, sometimes, we have to be willing to take a
    few leaps into the void” of vulnerability that comes with
    not relying on being the expert with all the answers. The
    kinds of counseling techniques that emerge from estab-
    lishing this type of genuine therapeutic relationship are
    masterfully demonstrated by Dr. Luterman.
       He makes evident the power and opportunity that
    stillness and silent witnessing create, and he teach-
    es us to open up to others and to ourselves.
       Editor: This DVD should be an essential training
    tool for all those in the helping professions.          K
THE
                                                             STUTTERING
SUMMER 2008                                                  FOUNDATION                                 800-992-9392       3


  Temperament Can Underlie “Signature
    Strengths” in Children Who Stutter
By Patricia M. Zebrowski, Ph.D.                positive outcome in therapy? For
University of Iowa                             example, preliminary research has
                                               shown that children who stutter             Fraser Earns
   A number of years ago, I became
interested in the study of “Positive
                                               who exhibit the temperamental
                                               substrate of rhythmicity, or tem-
                                                                                           National Award
Psychology” (Seligman, 2002 ) as it            poral regularity in eating, sleep-          With 1.4 million nonprofits
may be applied to helping children             ing, and elimination, may be more          in this country to choose from,
who stutter and their parents uncov-           likely to benefit from the practice        the NonProfit Times named
er and appreciate                              effects associated with picture            Jane Fraser,
the strengths they                             naming (which might be associat-           the presi-
bring to the thera-                            ed with the practice effect of ther-       dent of the
py experience,                                 apy) than do children with less            Stuttering
strengths that like-                           rhythmic       biological      cycles      Foundation,
ly play a major                                (Arnold, Conture & Walden,                 Executive
role in treatment                              2004). As such, there may be in-           of the Year
outcome.                                       creased likelihood of transfer and         for 2007.
   As Wampold                                  maintenance of speech modifica-             In a front-
and his colleagues Patricia Zebrowski, Ph.D.   tion skills presented in therapy, re-      page story,
(1997) in the areas                            gardless of what those strategies          the national
of psychotherapy and counseling                might be. As another example,              publication
psychology have long argued, I                 consider the child who experi-             recognized Fraser for her long-
have come to believe that the at-              ences a strong degree of reactivity        time work with the 60-year-old
tributes of both the client and the            and subsequent negative emotion-           Foundation.
clinician that matter most in therapy          al response to either his stuttering,       “In choosing our Executive
success, and while fluency and stut-           or the reaction of others to his           of the Year, we consider ex-
tering management techniques are               stuttered speech. If the child has         ecutives who have made a
essential to any kind of speech                developed the ability to regulate          difference not just for their
change, they make a relatively small           his reactions to his own behavior          own organizations but more
contribution to the overall experi-            (stuttering) or environmental reac-        broadly as well, on behalf of
ence. As an example, consider the              tion (e.g., routinely shift his atten-     other nonprofits,” said Mark
current clinical and research interest         tion onto more pleasant, positive          Hrywna, the publication’s se-
in child temperament and how it                or facilitating stimuli, events or         nior editor.
may relate to either stuttering devel-         people), he may fail to develop ha-         “We also examine the impact
opment or recovery, or to treatment            bituated avoidant speech or inter-         that organizations of all sizes
success. Our focus in considering              action strategies that have long           had on the nonprofit sector
temperament is frequently on how it            been thought to characterize, and          during the previous year and
may be causal or related to the per-           perhaps contribute to, chronic             it was clear that Jane Fraser
petuation of stuttering and an obsta-          stuttering. In such cases, the child       met that qualification in
cle to therapy. This is certainly a            can be described as resilient, in          2007,” he said.               K
valid assumption, and clinical expe-           that his temperament and related
rience suggests that it can be the             adaptive skills facilitate the ability
case. However, looking for “what’s             to ‘bounce back’ or take relatively
wrong” with the child with regard to           negative stuttering related experi-
temperament may prevent us from                ences in stride. Further, a child
considering how temperament may                whose levels of reactivity, emo-             Donors may now make gifts
also represent a ‘strength” for the            tional response, and ability to self-     through the Network for Good Web
child, something that we should                regulate contribute to a more dom-        site, www.networkforgood.org.
point out, nurture, and discuss with           inant, extraverted and sociable              This excellent organization, as
the parents as a way to highlight for          personality might be inclined to          part of Guidestar, works to make
them “what’s right” with the child.            readily and positively approach           the work of nonprofits more effec-
   Regardless of their similarities            various social and communication          tive and efficient as well as pro-
or differences, how can the tem-               situations, including therapy (as         motes transparency and account-
perament and personality of a                  opposed to reluctantly and nega-          ability throughout the sector.
child who stutters represent a                 tively approaching same). In ad-             Greater transparency means you
“signature strength” (Seligman,                dition, such a child might display        as a donor know where and how
2002), and thus contribute to a                                    Continued on page 9   your donor dollars are being used. K
THE
                                                    STUTTERING
4        www.stutteringhelp.org                     FOUNDATION                                        800-992-9392

                                       Richard Curlee: Remembered as a Gentleman,
     The Malcolm                           Scholar and for His Acts of Kindness
    Fraser Society                    By Edward G. Conture                    ment, “Of my several dozen doc-
                                      Vanderbilt University                   toral students, Dr. Curlee was eas-
    By Don Lineback                                                           ily the most tal-
    Furman University                   “Quality is not an act. It is a       ented. He was a
    and SFA Board Member              habit,” said Aristotle. No truer        natural leader.
                                      words could be spoken about the         Fellow students
       Malcolm Fraser led by ex-      late Dr. Richard F. Curlee, who         flocked to him
    ample. He founded the             died January 29, 2008 in Tucson,        for guidance.”
    Stuttering                        AZ. Dr. Curlee’s habit of high-           A recipient of
    Foundation,                       quality personal and professional       the     Malcolm
    sustained it                      contributions was not happen-           Fraser Award
    with his gen-                     stance; it was a choice that he         from the Stuttering
    erous gifts,                      made as a student as well as dur-       Foundation of           Richard
    and perpetuat-                    ing his long tenure as professor,       America,        Dr.      Curlee
    ed it through a                   interim Head and Associate Dean         Curlee was a Fellow of the
    magnanimous                       at his beloved University of Arizona.   American         Speech-Language-
    bequest. It is                      Dr. Curlee went to high school        Hearing Association, from which
    altogether fit-                   in North Carolina and received          he had also received its highest
    ting that the      Malcolm        his Bachelor of Arts at Wake            award, Honors of the Association.
    Stuttering           Fraser       Forest University. Subsequently,          His memorial service took place
    Foundation                        he received his M.A. and Ph.D. at       on March 2, 2008, in Tucson, AZ,
    Gift Society be named for him.    the University of Southern              and at that service his friends Drs.
       The Malcolm Fraser Society     California where he studied with        Anthony DeFeo, Roger Ingham
    seeks to honor those who in-      Dr. William Perkins, himself a pi-      and Frederick Spahr spoke in
    clude the Stuttering Foundation   oneer in the scientific investiga-      Dick’s honor about his many ac-
    in their estate plans, and who    tion of stuttering. Even in these       complishments, contributions as
    agree to be listed annually in    early days, there were harbingers       well as their personal and profes-
    the newsletter as members of      of Dick Curlee’s future success as      sional remembrances. A Stuttering
    the Society. The amount will      Dr. Perkins noted at Dick’s retire-
    not be listed.                                                                              Continued on page 10

      Such gifts may include:
    • Bequests;                          Vivian Sheehan: Pioneering Speech-Language
    • Trusts paying the donor in-
                                        Pathologist and Advocate for People Who Stutter
    come for life;                    By Vivian Sisskin,                      apy was nothing less than conta-
                                      University of Maryland,                 gious. As a young undergraduate
    • Income-producing annuities;     College Park                            student at U.C.L.A., I watched
    • Life insurance;                                                         her perform what seemed to be
    • IRAs or other pension plans.      Vivian Sheehan was a talented,        “magic”        in
                                      innovative and powerful force in        group therapy. I
      Suggested phrasing for a        the field of speech-language            remember
    simple bequest would be:          pathology. She passed away on           laughter     and
    “I give and bequeath              February 14, 2008 at the age of 90      tears, but what
    $ ________ (or ____ percent       at her home in Santa Monica,            stood out was
    of my residual estate) to the     California. Through six decades of      how she created
    Stuttering Foundation, a          work as a clinician, educator, and      an environment
    charity founded in Memphis,       mentor, she helped countless peo-       for       change
    Tennessee.”                       ple free themselves of the struggle     through     trust
      In all cases, you should con-   and avoidance associated with stut-     and support. I        Vivian
    sult your legal advisor for the   tering to achieve comfortable,          knew immedi-         Sheehan
    appropriate type of gift and      spontaneous       communication.        ately that I
    wording.                          Vivian was known for her bound-         wanted to do the same. As clini-
      Editor’s Note: We appreci-      less energy, kind demeanor, and         cians who did not stutter, we
    ate the trust and support of      sharp wit. She was passionate           knew we could never truly live
    those who have included the       about her work and the profession       the fear and shame that often ac-
    Foundation in their will. K       of speech-language pathology.           companies a stuttering problem.
                                        Her excitement for group ther-                          Continued on page 12
THE
                                                                            STUTTERING
SUMMER 2008                                                                 FOUNDATION                                                  800-992-9392                   5


 Rocket Science’s Blitz Provides Insight
                                                         Q: What has been your reaction                           Q: Do you want people in the in-
                                                        over the years to the many movies                         dustry to work to foster more pos-
                                                        that display people who stutter in                        itive portrayals of people who
                                                        a negative light?                                         stutter in film and television?
                                                        A: To be honest, I never took it                          A: I think this is actually a danger-
                                                        personally. It always seemed                              ous kind of wish. I don’t think any
                                                        ridiculous to me the way stutter-                         group should be treated such that
                                                        ing was used — as a kind of                               all you see is a positive portrait.
                                                        metaphor for a bigger problem in                          What I hope for is more honest por-
                                                        any character. How many movies                            trayals of life in general. For my-
                                                        do we have to see where the seem-                         self, I don’t need to see a stutterer
                                                        ingly weak kid with a stutter turns                       succeed in a movie as much as I
                Photos courtesy of HBO Video.           out to be the killer before that idea                     want to see a stutterer experience
                                                        starts to seem idiotic. I mean, if                        life as I know it to be. Realism is
 Jeffrey Blitz, writer and direc-                       the hollywood version of stutter-                         the more important goal, I think.
 tor of Rocket Science, answers                         ing was true then we’d all be in
 SFA questions. This latest pro-                        jail for murder. But, to be fair,                         Q: You, no doubt, have gotten
 ject is now available on DVD.                          stupid hollywood movies treat ev-                         many personal responses as a re-
                                                        eryone except supermodels in a                            sult of Rocket Science. What is the
               Q&A                                      negative light. Yes, stutterers get
                                                        the short end of the stick, but so
                                                                                                                  one that stands out most in your
                                                                                                                  mind?
                                                        do many other sorts of people. I                          A: Well, I love it when stutterers
Q: Is there one incident in your                        think it says more about bad and                          tell me that I’ve captured some-
childhood that inspired you to                          thoughtless filmmaking than any-                          thing essential about the experi-
write the screenplay for Rocket                         thing else.                                               ence of stuttering. That always
Science?                                                                                                          lands well for me. My favorite re-
A: There wasn’t a single incident                       Q: What thoughts were going                               sponse came when the movie
that inspired Rocket Science but                        through your head when/if you                             played at the Edinburgh Film
there was one moment that I kept                        watched A Fish Called Wanda?                              Festival and one young stutterer
in mind as I wrote. When I was a                        A: I actually really enjoyed A Fish                       came up after and said that the
high school sophomore, I went to                        Called Wanda when I saw it years                          only thing that would have made
my first debate tournament. I                           ago. The whole movie is over-the-                         the movie better was if two people
blocked on my very first word and                       top including the portrait of the                         stuttered in it and not just one!
stayed blocked on it for the entire                     stutterer. I know that many stutter-
8 minutes I was allocated. I tried                      ers hate that movie but I somehow                         Q: Did you get any negative feed-
to never forget the frustration                         never felt personally savaged by it.                      back from people who stutter and
(and, in a dark way, the humor) of                      I just remember laughing really                           if so, what was the general gripe?
that moment.                                            hard through most of it.                                                            Continued on page 11



                                                Annual Audit of Foundation
 The annual audit of the Stuttering                     expenditures for the year.                              assured that their gifts will go directly
Foundation financial reports for 2007                     The 5.8% of expenditures for adminis-                 to support our program services.
was recently completed by the ac-                       tration and general expenses and the                      The Foundation is a 501(c)(3) pri-
counting firm of Cannon and                             6/10 of 1% for fund raising are very                    vate operating foundation which ex-
Company,       Certified       Public                   low, and since we are fortunate to have                 pends its funds on its own programs
Accountants,    Memphis,        Tenn.                   an endowment which more than covers                     and operations and does not make
Following is a recap of funds and                       our overhead expenses, donors can be                    grants to other institutions.
Funds expended for:
Creation, production, printing and distribution
       of educational materials . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $580,089 . . . . . . . . . . . . . . . . . 36.0%
Public information and education . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 351,521 . . . . . . . . . . . . . . . . 21.8%
Educational symposia for professionals . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .217,436 . . . . . . . . . . . . . . . . . . . 13.5%
Therapy program and research on causes/treatment of stuttering. . . . . . . . . . . . . . . . . 269,637 . . . . . . . . . . . . . . . 16.7%
Maintain Web site and toll-free information hotline. . . . . . . . . . . . . . . . . . . . . . . . . . . . . 88,985 . . . . . . . . . . . . . . . . . . . 5.6%
Total for Program Services: . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,507,668 . . . . . . . . . . . . . . . . 93.6%
Other expenditures:
       Administration and general . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 93,641 . . . . . . . . . . . . . . . . . . 5.8%
       Fund-raising expense . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9,252 . . . . . . . . . . . . . . . . . 0.6%
Total Expenditures: . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,610,561 . . . . . . . . . . . . . . . . . 100%
Dear SFA: Reader Response
                                                           THE
6       www.stutteringhelp.org
                                                           STUTTERING                                          800-992-9392
                                                           FOUNDATION




Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or email info@stutteringhelp.org.

Like a hockey puck                                                                      New book may help
Dear SFA:                                                                               Dear SFA:
   My name is Colton, and I am                                                             Sometimes when I’m
7 years old. I live in Canada. I                                                        stuttering I feel very angry.
like to play hockey, golf, soc-                                                         When I was in second grade,
cer and baseball. I also like                                                           I was stuttering and people
school and my family. Getting                                                           started to laugh at me. My
help from a speech teacher                                                              teacher talked to me outside,
makes a big difference for me.                                                          and she talked to people
I talked to my class about stut-                                                        who were laughing.
tering and it helped because                                                               Also, if you stutter, just use
they got to learn about stutter-                                                        your techniques. It will help
ing, and also I got a chance to                                                         you. People will get used to
tell the other kids important                                                           me stuttering and no one will
                                                                                         laugh at me again.
messages like “Don’t tease Dominic and Rebecca with a “speech tools” birthday              In my new school, my friend
other people because they cake at the University of South Alabama. The cake says Dara stutters too. Dara was
have a difference from you.”       “brain, mouth, vocal folds, lips, voice box.”
                                                                                         crying because boys were
   For me, stuttering is like a           fun, awesome, love my hair, and my      making fun of her. I felt sad for Dara.
hockey puck because it starts going       shoes. When I speak, I repeat the       I felt mad at the people who made
fast then it stops suddenly. It helps     sounds and words several times. I       fun of her.
me to imagine this because I can          prolong sounds. I move body parts       Jonisha
think what to do and then get mov-        (my hands) when I stutter, and I try to Wyandanch, N.Y.
ing with the puck again.                  find other words when I am talking.       Editor’s Note: Trouble at Recess
Colton, 7                                 Katie                                   (on page 7) is a great book that
Canada                                    Owensboro, Ky.                          deals with bullying.
A fun, awesome 3rd grader                  Stuttering isn’t illegal                    Still learning about stuttering
Dear SFA:                                  Dear SFA:                                   Dear SFA:
   My name is Katie. I am in 3rd             I don’t mind stuttering. It’s not           I don’t mind my stuttering. It’s
grade. I like to play football, have       like it’s illegal to stutter. But I don’t   not that bad.
sleep-overs, cheerlead, color, and         like it when I can’t let the words            Sometimes stuttering makes me feel
sleep. I am good at science, math,         out. Robert, my speech therapist,           sad. Especially when people make fun
taking tests, watching TV, and             helps me learn about stuttering. Oh,        of me, which occurs not very often.
changing my baby sister’s diapers.         and by the way, I’m John, and I’m           But sometimes people call me names.
   I have stuttered since the 2nd          8 3/4 years old.                              I go to speech therapy every
grade. My friends think I’m crazy,         John                                                          Continued on page 12


    Picture Perfect
    Sometimes I get stuck on words when I meet new teachers and new
    people, and then I stutter. Now that I go to speech, I have learned how
    to control and work through my stuttering. They both help me with my
    speech. They taught me to say all my letters and words without get-
    ting stuck. They have taught me how to breathe better and how to
    stretch out words and work through bumpy words. I do not mind that
    I stutter and have learned to love talking in front of others! I love play-
    ing drums, and I love to sing.
    Angelo,
                                                                             Angelo drew this picture of a band.
    Roslindale, M.A.
    Do you have artwork to share? E-mail it to us at info@stutteringhelp.org.
THE
SUMMER 2008                                            STUTTERING                                  800-992-9392            7
                                                       FOUNDATION

MySpace Outgrows
 Initial Expectations                      Young Author’s Book a Big Success
                                           By Julie Gasway, M.A., CCC-SLP          a difference when talking with
By Joan Warner                                                                     someone who stutters.
                                             Trouble at Recess has been a            Jamie’s friends and their par-
   If you haven’t visited the Stuttering   huge success at home! Jamie was         ents, family members, classmates,
Foundation’s MySpace page recent-          excited to see her “finished prod-      neighbors, school teachers and
ly, hurry to http://groups.myspace.        uct,” as were her parents. She          guidance counselor attended the
com/stutteringfoundation and see           read it proudly and was surprised       book signing. She read Trouble at
what is new.                               to see how her drawings have            Recess in front of her guests while
   Managed by our friend, Eva              changed over time.                      she was surrounded by friends.
Woolwine, the space has grown                When I asked her                                       Many of the kids
leaps and bounds                           what she thought                                      commented that they
in just a short time                       about the book she                                    wanted to write a
and now claims                             said, “I like it!” She                                book too, and in her
144 members.                               also said the best                                    usual positive manner
   Originally con-                         thing about making                                    she encouraged them
ceived to interest                         the book was “draw-                                   to do so. Jamie
teens and young                            ing the pictures.”                                    seemed unaware of
adults by providing idea exchange            Jamie and her par-                                  how rare her accom-
and support, we have all been              ents sched-                                                   plishment
amazed at the level of participation       uled a book                                                   was. Since
by so many people.                         signing for a                                                 the     book
   “We aren’t just hearing from            recent after-                                                 signing,
teens and young adults, and that           noon at the                                                   Jamie has re-
has been a great thing,” Eva tells         local library.                                                ceived many
us. “People of all ages are checking       They sent out                                                 cards telling
in. Each of us may be in a different       i nv i t a t i o n s                                          her that her
place as far as our fluency and how        and gave each                                                 book      has
open we are about are stuttering,          person who                                                    been helping
but we have a strong bond that con-        attended an                                                   other people
nects. Thanks to all the members,          autographed                                                   who stutter.
without them it would just be a            copy             of                                           Several par-
page and not a group!!!”                   Trouble          at                                           ents      and
   One of the initial goals was to         Recess.              Jamie autographs a copy at her book t e a c h e r s
provide insight, awareness, and              They also signing in March.                                 who attend-
education to those who do not              took dona-                                                    ed the book
stutter. Those who stutter gener-          tions so that                                                 signing re-
ally agree that it is nearly impos-                                                      Jamie, at
                                           every          ele-                           center, reads ported that
sible to adequately explain to a           mentary
fluent person the difficulty and                                                         her book as teasing is a
                                           school library                                others follow u n i v e r s a l
depth of emotion involved.                 in our city                                                   topic     and
   A common description shared by                                                        along.
                                           will have a                                                   Jamie’s
many who stutter is “exhaustion.”          copy of her                                                   book would
One member recently posted,                book. Jamie’s                                                 be encour-
“Most people live day by day, but          parents have been active in learn-      aging for all children. The book
stutterers live word by word.” So,         ing about stuttering, and they          signing was a chance to cele-
if you are a parent, relative, teach-      went to the Stuttering Foundation       brate Jamie’s accomplishment,
er, classmate, employer, or even a         website and did their own re-           teach others about stuttering and
stranger who spoke with a stutterer        search.                                 teasing and to further develop
today, please take a few minutes to          They made a “Fact Sheet               Jamie’s self-confidence.
take a look into what is being said        about Stuttering” and passed              As a speech therapist this ex-
by those who so want to be heard.          this out to all who attended the        perience has been especially re-
   Speaking of being heard, another        book signing. Many parents              warding and exciting for me. I
update on our incredibly busy and          were surprised to learn: the inci-      learned more about stuttering,
goal-oriented Eva is in order. She is      dence of stuttering is 1-3% of          stuttering therapy and how to
still studying hard at Northwestern        the population, many famous             access feelings and thoughts
State University in Alva, Oka. and         people stutter, and how to make         through art and writing.           K
                    Continued on page 16
THE
                                                       STUTTERING
8                                                      FOUNDATION
         www.stutteringhelp.org                                                                                     800-992-9392

                                       Smith                                 CND could produce all four
                                                              continued front page 1
    Where’s Nick?                      tests of the brain’s activity in pro-
                                                                             nonwords correctly.
  Actor Nick Brendon has land-                                                  Clearly in terms of these behav-
                                       cessing language, and studies of      ioral results, the children who are
ed a recurring rule                    speech production in which we
on the CBS drama                                                             stuttering do not do as well when
                                       record muscle activity and motion     asked to produce novel speech se-
Criminal Minds,                        of the articulators.
playing       Kevin                                                          quences.
                                         The goal of the project is to de-      During the nonword experi-
Lynch, a technical                     termine if the results of these tests
analyst for the FBI.                                                         ment, we record the motions of
                                       will help us to predict which 4 and   the lips and jaw. We are able to
  Brendon, who’s                       5-year-old children who are stut-
a spokesperson for                                                           look at oral coordination during
                                       tering are likely to persist.         production of the novel non-
the Stuttering Foundation, is also       One of the speech production
working on Super Cat, an ani-                                                words. We analyzed data for the
                                       tasks that our kids do involves pro-  nonword, "mab" since all the
mated project in which he voices       ducing what we call “novel non-
the lead character.                                                          children could produce it. Given
                                       words.” These are words like “mab”    how simple and short this non-
  Visit www.nickbrendon.com            which sound OK in English, but
for more news on the actor.                                                  word is, we did not expect that
                                       which are meaningless. We de-         CWS would be less able to gen-
                                       signed a set of four nonwords of in-  erate a motor program and pro-
Sporty Readers Win                     creasing difficulty, so that “mab” is
                                       the easiest one, and “mab-
                                                                             duce it. Surprisingly though,
                                                                             CWS were significantly more
   In the winter newsletter we         shaytiedoib” is                                                   variable com-
asked readers to guess who was         the most difficult.                                               pared to CND in
added to the Famous People               When we tested           ... the goal is to                     their coordina-
brochure. The answer, of course,       adults who stut-
is Darren Sproles.                     ter, we found that
                                                                    predict which                        tive          patterns
                                                                                                         over 10 produc-
   The first three                     they could pro-           children who are                        tions of “mab.”
winners      were                      duce the words stuttering are likely                                Thus, we can
given T-shirts.                        correctly after
   The winners                         hearing them, but
                                                                       to persist.                       see that already,
                                                                                                         in the earliest
are Juanita Sirois                     they       showed                                                 years of stutter-
of Williamsburg,                       more variability                      ing, even when the child's pro-
Va., Julie Peters                      in their oral movements, suggest-     duction is accurate and no dis-
of Asland, Va., and Linda Wyatt        ing that hearing, encoding, plan-     fluency is perceived, the under-
of Cuyahoga Falls, Ohio.               ning, and producing a novel speech    lying patterns of speech move-
   Runners up include Michelle         sequence was a much more diffi-       ment are different. Are the chil-
O’Loughlin, Lisa Burroughs,            cult task for them compared to nor-   dren who perform most poorly
Paul     Blackburn,    Marilyn         mally fluent adults.                  on this nonword repetition task
Burgin, Mary Eileen Moore,               Is this lower ability to encode     the ones most likely to persist in
Rita McIntyre, Mike Molini,            and produce new sound sequences       stuttering? We will be able to an-
and Andrew Bathish.                    present at the onset of stuttering?   swer that question in the later
                                       Or is it something that develops      years of our project.
                                       after many years of disfluency?          We are truly excited about the
                                       Our experiment is designed to an-     potential for this work to have
                                       swer this question.                   major implications for treating
                                         So far in the “mab” nonword         young children who stutter.
                                       experiment, we have analyzed             If you know of someone who
                                       data from 22, all 4 and 5-year-       has a child who stutters and lives
      Camp Our Time will be held       old children who stutter (CWS)        in our area (Lafayette, Indiana),
    Aug. 10-17, 2008. It is an arts    and 14 children who are normal-       please ask them to contact us at
    camp for young people who          ly developing (CND).                  brownb@purdue.edu.                                   K
    stutter and their siblings, ages     Interestingly, we found that all
    8-15. Camp Our Time will take      of the children could produce
    place in Rock Hill, N.Y., 90
    minutes from New York City.
      For more information call
                                       the simplest nonword, "mab"
                                       correctly. However, on the more
                                       difficult items, such as “mab-
                                                                                         T
                                                                                      he Stuttering Foundation of America is a
                                                                                     tax-exempt organization under section
                                                                                     501(c)(3) of the Internal Revenue Code
                                                                               and is classified as a private operating foundation
    212-414-9696, e-mail camp@         shibe,” only about 25% of the           as defined in section 4942(j)(3). Charitable contri-
    ourtimetheatre.org, or visit       CWS could accurately produce            butions and bequests to the Foundation are tax-
    www.ourtimetheatre.org.       K    them, while about 88% of the            deductible, subject to limitations under the Code.
THE
                                                          STUTTERING
                                                          FOUNDATION                                                  9
SUMMER 2008                                                                                       800-992-9392



   Sometimes I Stutter                         A Recipe for Confidence
 By Robert J. Heemstra                      By Joan Warner                        has affected our lives.”
 Plymouth, Pa.                                                                     Bob McKinney, LSH Specialist
                                             The Stuttering Foundation was        for Southwest High School, has had
 Sometimes I stutter                        excited to hear from students in      a great deal to do with encouraging
 people may look at me strange              San Diego, Calif.                     this group of students to inspire and
 but do they know me?                        “We are a group of students who      motivate not only themselves, but
                                            stutter at Southwest High School in   also others. “These guys are excit-
 They hear my stutter                       beautiful San Diego, Calif.,” the     ed … They are a great group of
                                            students wrote. “Our group is com-    guys, and I’m proud to be able to
 but I am much more than that               posed of five                                               work         with
 Please listen to me                        students (all                                               them,”       Bob
                                            bilingual)                                                  tells us. “I am
 Please don’t look away                     whose stutter-                                              always amazed
 Because of my stuttering                   ing       ranges                                            at the maturity
 Don’t judge me by that ...          K      from mild to                                                they       show
                                            moderate-se-                                                when they dis-
                                            vere. We get                                                cuss their stut-
                                            together fre-                                               tering       with
Signature strengths continued from page 3   quently to dis-                                             their peers,” he
a relatively high degree of atten-          cuss our stut-                                              continued.
tional focus and risk-taking while          tering       and                                                 “All     our
participating in therapy, and may           ways to control                                             lives we’ve had
actively seek out novel experi-             it. We have                                                 to overcome
ences while also being more apt to          also done a se- These students from Southwest High ridicule, em-
take risks in both social and               ries of presen- School in San Diego, Calif., meet fre- barrassment,
speaking situations. The willing-           tations with the quently to discuss stuttering and how and despera-
ness and ability to take risks has          purpose of ed- to control it. They have also done a tion, but being
long been considered a trait im-            ucating      our series of presentations to educate in this group,
portant to progress across all              school regard- other students about stuttering. The we’ve learned
types of therapies (Yalom, 2002).           ing stuttering. students are (from left) Fernando, to accept, and
It is my hope that future research          We would like Irvin, Adrian, Andres, and Christian. to be proud of
will focus on how temperament               to reach out to                                             who we are.”
and other client and clinician at-          all people who                                              They go on to
tributes interact with the tech-            stutter and tell them that they       say, “We are no different than any-
niques we teach to influence the            should not be ashamed of one          one else besides the fact that it takes
outcome of stuttering therapy.              small part of themselves, but be      time to say what we want to say.”
                                            proud of who they are and what         On a recent field trip, the guys
References:                                 they can achieve.”                    made their presentation to a group
   Arnold, H., Conture, E., & Walden, T.     These five teens are worth re-       of school district psychologists. It
(2004). Relation of temperamental
characteristics to picture-naming prac-
                                            marking on for a number of rea-       afforded this group of profession-
tice effects in children who stutter:       sons – all of which are “ingredi-     als the opportunity to receive a re-
Preliminary findings. Poster presented      ents” in the recipe for confidence.   alistic and heart-felt “lesson” on a
at the annual meeting of the American        In their own words, Andres,          often misunderstood disability.
Speech-Language-Hearing Association,        Fernando, Irvin, Adrian and            So, what is in the “recipe” for con-
Philadelphia, PA.                           Christian, tell us, “We are a group   fidence? Apparently, some very
   Seligman, M (2002). Authentic happi-     of students who stutter … Our         solid ingredients including support,
ness: Using the new positive psycholo-
gy to realize your potential for lasting
                                            group rendezvous once every           encouragement, perseverance, ma-
fulfillment. Free Press.                    week to discuss how stuttering has    turity, inspiration, motivation, and a
   Wampold, B.E., Mondin, G.W.,             affected us recently (in either a     dash of being proud of one’s ac-
Moody M., Stich, F., Benson, K. &           positive or negative way).” But       complishments.         In the boys’
Ahn, H. (1997). A meta-analysis of          they don’t stop there, talking        words, “We believe that confidence
outcome studies comparing bona fide         among themselves. “Our group          is the best cure for stuttering.”
psychotherapies: Empirically, “all          has presented several times to high    Please see their exceptional pre-
must have prizes.” Psychological
Bulletin, 122, 203-215.
                                            school students (and once each to     sentation at:
   Yalom, I. (2002). The Gift of            the school district’s speech pathol-  http://blog.suhsd.k12.ca.us/index.
Therapy. New York: Perennial; Harper        ogists, psychologists, and support    php?/specialservices/detail/stut-
Collins.                              K     staff) what stuttering is and how it  tering_presentation/                  K
THE
                                                          STUTTERING
10                                                        FOUNDATION                                      800-992-9392
       www.stutteringhelp.org


                                             Curlee                               cause to do so – no doubt con-
                                                                continued from page 4
Help Not Lost                                Foundation of America memorial
                                                                                  tributed to the many students who
                                                                                  sought his advice, counsel, and
in Translation                               fund has been established in
                                             honor and memory of Dr. Richard
                                                                                  mentoring. A mentor’s mentor,
                                                                                  Dr. Curlee acted like a bridge, for
   Chinese parents now have an-              F. Curlee.                           many students, seeing in them
other tool if their child stutters.            Among his peers, Dr Curlee was     more than they saw in themselves,
   Jennifer Tseng, who attended              known for his                                           taking      them
the 2005 Stuttering Foundation               even-handed,                                            from where they
workshop in                                  precise        and                                      were to where
Iowa,       went                             thoughtful schol-                                       they       could
home       deter-                            arship.     Curlee                                      and/or wanted to
mined to help                                was well regard-                                        be.
bring new infor-                             ed for his early                                              Survived
mation to new                                scholarly       at-                                     by his lovely
compatriots.                                 tempts to apply                                         wife and soul
   This     new                              and/or test the                                         mate,     Jennie,
book, a transla-                             tenets of learning                                      Dick will be
tion of If Your                              theory relative to                                      missed terribly
Child Stutters:       Jennifer               stuttering      re-                                     by his family,
A Guide for            Tseng                 search/treatment.                                       friends,     col-
Parents, is hot                              These ahead-of-                                         leagues, and past
off the press and is sure to be an           their-time schol- Dick Curlee receives the Malcolm s t u d e n t s .
important prevention tool.                   arly contributions Fraser Award for Excellence from Building off a
   Meanwhile, in the Czech                   were followed by Jane Fraser in 2002.                   theme developed
Republic,       Dr.      Elisabeth           several       text-                                     by Dr. Spahr at
Peutelschmiedova continues her               books, aptly described by Dr.        Dick’s memorial service, Dr.
outstanding work translating                 Ingham as classic, treatises that    Curlee may be gone from our
Stuttering Foundation books.                 have stood the test of time in terms midst, but we will be reminded of
   Her latest achievement is Do              of relevance and impact. Dr.         him in our daily lives. For exam-
You Stutter: Straight Talk for               Curlee remains, to this day, one of  ple, when we see some beginning
Teens.                           K           the first to apply “expert system”   scholar falter during a presentation
                                             technology to the diagnosis of       and their mentor, just like Dick
      Czech version of Do You Stutter:       early childhood stuttering, another  might have, makes a gentle sug-
               Straight Talk for Teens.      contribution far ahead of its time.  gestion from the audience to help
                                               Recently, this writer was fortu-   the nervous beginner. Or when
                                             nate to co-edit the third edition of two academicians lock horns, over
                                             one of Dick’s books, and the ex-     theory or method, and a third,
                                             perience of working with Dr.         cooler head like Dick’s often was,
                                             Curlee, his insights, wordsmith      steps in and brings about rap-
                                             skills, and common sense en-         prochement.
                                             riched literally almost every page      For Dick was not only a gen-
                                             of the text. Common sense, it is     tleman and scholar but routinely
                                             said, is not all that common, but    practiced random acts of kind-
                                             Dick possessed it in droves and      ness. Indeed, Dick’s high quality
                                             its use by him could be truly re-    contributions were not restricted
                                             markable as he quickly identified    to his scholarly endeavors, but
                                             the essence of a problem and,        also imprinted his interpersonal
                                             more often than not, a reasonable    interactions. As Shakespeare
                                             solution for same.                   (Merchant of Venice) noted,
                                               Dick’s character, one could rea-   “the quality of mercy is not
                                             sonably say, was at least partially  strain’d, it droppeth as the gen-
                                             shaped by his experience with dis-   tle rain from heaven. Upon the
                                             ability, a concern he adapted to     place beneath: it is twice blest;
                                             and rose above to lead a life of     It blesseth him that gives and
                                             consequence, substance and pur-      him that takes.” And Dick was
                                   Chinese
                                             pose. That character coupled with    so blessed, as were we, by his
                                copy of If   his “don’t complain, don’t ex-       presence.
                                Your Child   plain” personal style – even when       “Farewell Richard, may flights
                                Stutters.    his disability gave him plenty of    of angels sing thee to thy rest.” K
THE
                                                        STUTTERING
                                                        FOUNDATION                                                  11
SUMMER 2008                                                                                      800-992-9392

Rocket Science     continued from page 5   for words and reading, that I
A: Before Rocket Science came
                                           found myself drawn into the                Dream Team
                                           power of film. I am who I am be-
out, I read some hilariously nega-         cause of my stuttering and I’m fi-          Tours USA
tive stuff on stuttering boards            nally very glad for that. When
where some people worked them-                                                       Bob Love’s national school
                                           you’re blocking on a word, you          tour moves ahead.
selves into a froth imagining on           wish it gone. But when you step
the basis of                                                                         The tour includes showing
                                                                 back     and      students Love’s documentary
just the 2                                                       look at the
minute trailer                                                                     Find Yourself a Dream!
                                                                 big picture         The docu-
that the lead                                                    there    are
character                                                                          mentary was
                                                                 some great        recently ac-
didn’t have a                                                    things that
real stutter,                                                                      cepted into
                                                                 come along        the       San
that this was                                                    with stutter-
yet another                                                                        Diego Black
                                                                 ing.              Film Festival
bogus por-
trait of stut-                                                                     and the screen
                                                                 Q: Do you         play for the
tering      and                                                  anticipate
that they’d                                                                        movie was ac-
                                                                 doing any         cepted into the
skip        the                                                  m o r e
movie. I get                                                                       Beverly Hills
                                                                 movies with       Film Festival,
it that people                                                   characters
are sensitive A scene from the movie Rocket Science. who stutter?                  which was held in mid-April.
about this but                                                                       The documentary was re-
                                       A: I think my next movies won’t             cently featured on WYCC, a
what about waiting until you’ve        be autobiographical at all so I
actually seen the movie before                                                     PBS station in Chicago.
                                       don’t have plans to revisit that.           WYCC promoted it with more
judging it? Luckily for me, I think    But you never know.
most stutterers who actually see it                                                than 100 commercials leading
really like it.                                                                    up to each of the showings.
                                       Q: What do you think of treat-              The PBS station reaches 3.6
                                       ment for stuttering ?                       million in the country’s third
Q: What has been the reaction of       A: Well, in the movie, Hal Hefner,
your childhood friends and peers                                                   largest TV market.
                                       my main character, gets no real help          Love has served as a
to the movie, and to you after its     for his stuttering. I have been lucky
release?                                                                           spokesperson for the Stuttering
                                       enough to work with some excellent          Foundation, and is featured on
A: One old friend said, I had no people and have made some gains in
idea it was so hard for you.                                                       the Famous People Who Stutter
                                       my speech because of them. I know           brochure and poster.
Another said, I didn’t realize it      that some people believe that you
was all so funny to you at the time.                                                 The documentary can be or-
                                       should just work to accept stuttering       dered    online    at    www.
So you just never know. But the        and not try to “fix” it. That’s never
truth of it is that the movie is only                                              findyourselfadream.com.       K
                                       been my approach. I’m kind of a
vaguely autobiographical. It’s not     born fighter when it comes to this
meant to be the literal truth of my    stuff, and I like trying to lick a prob-
life as a teen, just an artful extrap- lem even if it’s thought to be unlick-
olation from that.                     able. I think most anything's attain-         This poignant book, written by
                                       able if you’re dedicated enough. K         Kimberly Fusco, for middle and high
Q: If you could give a simple mes-
sage to high school kids who stut-                                                school students features 14-year old
                                         Now available on DVD:                    Cornelia Thornhill. Cornelia’s adven-
ter, what would it be?                   Rocket Science, which received 3
A: Sometimes you want to cut out                                                  tures start not only when her mother
                                                 1/2 stars from movie critic      pulls her out of school but
those parts of yourself that are                     Roger Ebert, is now
frustrating or painful or make you                                                also leaves her high and
                                                      available on DVD.           dry with an elderly great-
different. But those parts are as re-                 The release includes a
sponsible as the good and easy is                                                 aunt in rural New
                                                      behind-the-scenes fea-      England of all places.
for who you are. Stuttering makes                    turette, as well as a
you who you are and it can inspire                                                Readers will be capti-
                                                  music video by film’s           vated by Cornelia’s
some great things. It’s because of       composer and singer/songwriter
stuttering that I got involved in de-                                             courage as she struggles
                                         Eef Barzelay (Clem Snide).               with her own stuttering and copes
bate, that I developed a passion
                                                                                  with an upside down life.          K
THE
                                                       STUTTERING
12      www.stutteringhelp.org                         FOUNDATION                                               800-992-9392

                                        Sheehan                                came part of her growing staff.
                                                            continued from page 4
 On the Loose                              However, Vivian taught me that
                                                                               Joseph accepted a faculty position
                                                                               in the psychology department at
    We know our readers will be         we could develop a valid under-        U.C.L.A. and the Sheehan’s moved
 surprised to learn of two recent       standing of that experience by         to Santa Monica, California where
 retirements.                           listening carefully to our clients and she began one of the first private
    Both Roberta Brugge and Anne        paying attention to our “stuttering    practices in the country. Vivian’s pi-
 Edwards have                           equivalent,” something about our-      oneering work in aphasia contin-
 decided the                            selves we wish to hide to avoid po-    ued. She founded an organization
 time has come                          tential negative                                         that later became
 to enjoy more                          thoughts or reac-                                        the       Emeritus
 leisure time                           tions of others. “Vivian’s contributions P a t h f i n d e r s
 and      grand-                        Vivian’s      sharp        went far beyond               Program at Santa
 motherhood!                            mind and wonder-        her stellar record of Monica College,
    Callers will                        ful sense of humor                                       providing rehabil-
 remember                               delighted       her       clinical work and              itative services
 Anne         who                       friends and col-              service to the             and support to
 began working Anne Edwards             leagues. We cele-           profession and               stroke     patients
 at the Stuttering                      brated the many                                          and their families.
 Foundation in                          things we had in           the community.”
                                        common. One day                          Vivian Sisskin Vivian received
 the         early                                                                               prestigious honors
 1980’s when                            she told me, “No,                                        throughout her ca-
 we were ad-                            we are not people who stutter”, and    reer. She was named an ASHA
 dressing en-                           then with a wink and a smile contin-   Fellow in 1986 and was the recipi-
 velopes        by                      ued, “We just marry them!” Vivian      ent of ASHA’s Frank R. Kleffner
 hand. She had                          was married to the late Joseph         Clinical Career Award in 1993. She
 worked as a li-                        Sheehan, professor of psychology at    was honored numerous times by the
 brarian so was        Roberta          U.C.L.A. and father of avoidance re-   California Speech Language and
 tremendous            Brugge           duction therapy for stuttering. Vivian Hearing Association, the American
 help as we pub-                        worked with Joseph at the U.C.L.A.     Academy of Private Practice, and
 lished more and       THE              Speech Psychology Clinic until his     the National Stuttering Association.
                       STUTTERING       death in 1983. She continued their
 more books.           FOUNDATION                                              She was elected to serve in leader-
    For 12 years,                       work as director of the Sheehan        ship positions within all of the
 Roberta was our Wednesday part-        Stuttering Center well into her 80’s.  above-mentioned organizations.
 timer, taking over thank you letters      Vivian completed her graduate          Vivian’s contributions went far
 to donors and keeping the mailing      studies at the University of           beyond her stellar record of clini-
 list updated.                          Michigan and worked in the Battle      cal work and service to the profes-
    We call on them regularly for       Creek schools during the day and at    sion and the community. She in-
 advice and help!                  K    Percy Jones Army Hospital in the       spired clinicians young and old
                                        evenings. It was during World War      with her wisdom and skill, and has
                                        II, and soldiers were returning from   been cited as the primary force for
                                        battle with brain injuries. Vivian     change among her clients who
Thanks for the Support                  scoured the medical literature to de-  have recovered from stuttering.
                                        velop what became the first aphasia       Vivian was my dear friend and
  Because of the ongoing support        rehabilitation program in the U.S.     mentor. I will never forget her
of NSSLHA chapters around the           Army Hospital system. It was at        warm smile, encouraging words,
country, the                            Percy Jones where Vivian met her       and wonderful sense of humor. I
Stuttering                              future husband, Joseph Sheehan, a      will always be grateful to her for
Foundation                              young speech pathologist who be-       her guidance and love.              K
is able to
provide re-
sources to                              Letters             continued from page 6        Dysfluency Conference
                                                                                       The Eighth Oxford Dysfluency
those who                               Tuesday. It really helps me. Mrs.           Conference, co-sponsored by the Stuttering
stutter, parents, schools, libraries,   Miller helps me ease out of a stutter.      Foundation and the Michael Palin Centre,
universities and physicians.              I’m still learning. I’ve only been                will be at St. Catherine’s College,
                                                                                            Oxford, July 3-6. Speakers include
  NSSLHA chapters have done ev-         to the speech room about 12 times.                  Paul Dolan, Imperial College, Marc
erything from bake sales to working     I hope to learn how to tell people                  Shell, Harvard University, Patricia
the SFA booth at conferences to help    about my stuttering.                        Zebrowski, University of Iowa, Anne Smith,
                                                                                    Purdue University, and Dr. Per Alm, Danish
raise the awareness of stuttering.      Jessica                                     Information Centre for Stuttering. Visit
  We appreciate it. Thanks!             Largo, Fla.                         K       www.odc.org.uk.                          K
THE
                                                      STUTTERING
SUMMER 2008                                           FOUNDATION                            800-992-9392        13


 Sproles          continued from page 1   ogy. In college, he worked with a      Coming out of Kansas State,
                                          speech pathologist to make inter-   Sproles was one of the most pro-
 National Stuttering Awareness            views less difficult. Darren also   lific runners and all-purpose per-
 Week, which is May 12-18.                got advice from basketball great    formers in college football histo-
    The brochure — which un-              Bill Walton, who struggled with     ry. He set nearly every school
 folds into a small poster — is           stuttering some years ago and is    record imaginable - 23 in all - and
 available free                                                                                he is regarded by
 of charge from                                                                                many as the best
 the Stuttering
 Foundation.                                        Q&A                                        player in the 110-
                                                                                               year history of
    Sproles is fea-       An interview with Darren Sproles                                     Kansas       State
 tured alongside                                                                               football
 other sports leg-        Q: TV interviews are high pressure. In a previous interview
                          with a newspaper, you said you found "little tricks" to con-            As a 5-foot, 6-
 ends who stutter,                                                                             inch      running
 such as Bill             trol stuttering. What are some
                          of the tools that work for you?                                      back and return
 Walton, Kenyon                                                                                specialist with
 Martin,        Ken       A: “I have learned to take my
                          time while answering questions                                       the Chargers, he
 Venturi and Bob                                                                               ranks eighth in
 Love. As such, he        during an interview. I don’t
                          have to be in a hurry to say                                         the NFL in kick-
 is the 18th famous                                                                            off return aver-
 person. Others in-       something. I also ... keep my
                          words flowing.”                                                      age (26.7 yards)
 clude actor James                                                                             and 13th in punt
 Earl         Jones,                                                                           return average
 Marilyn Monroe           Q: Why did you put off the
                          NFL and go back to college?                                          (10.1).
 and       Winston                                                                                 Playing the
 Churchill.               A: “I didn’t want to do it but I
                          made a promise to my mother                                          game has always
    Sproles, who                                                                               come easy for
 became aware of          before she passed away that I
                          will finish school first and then go to the NFL.”                    Sproles.      The
 his stuttering at                                                                             spoken word is
 age 4, says the                                                                               more difficult.
 problem became           Q: The fact that you majored in speech pathology is very ex-
                          citing. Why did you choose it as a major? Has it made a dif-            “I remember a
 more           pro-                                                                           long time ago my
 nounced when             ference in your speech?
                          A: “When I went to college I majored in speech pathology             grandpa told me
 he was a star                                                                                 “don’t ever let
 football player at       because I really wanted to learn about stuttering and how I
                          can better my speech. I feel from me learning about it helped        anybody tell you
 Olathe       North                                                                            that you can’t do
 High School and          me find tools to help me out.”
                                                                                               anything because
 at Kansas State                                                                               you       stutter.”
 University.              Q: What advice would you give others who stutter?
                          A: “Just work on it. Take classes and learn more about where         Sproles said. “I
 “I had to talk to                                                                             always remem-
 the media a lot,         stuttering comes from. I remember a long time ago my
                          grandpa told me ‘don’t ever let anybody tell you that you            bered that and
 and once they                                                                                 worked hard to
 put a camera in          can’t do anything because you stutter.’ I always remembered
                          that and worked hard at improving my speech.”                        improve        my
 my face that’s                                                                                speech.”
 when it got bad,”                                                                               “Darren Sproles
 Sproles said. “I         Q: Do you see yourself as an inspiration and role model for
                          others who stutter?                                                  will be a great
 just had to work                                                                              source of inspi-
 on it. I couldn’t        A: “Yes, I do.”
                                                                                               ration to young
 really       stress                                                                           people        who
 about it, because        Q: What advice did Bill Walton give you?
                          A: “Take my time when I talk. Don’t be in a hurry.”                  struggle      with
 that’s just me.”                                                                              stuttering,” says
    The 24-year                                                                                Jane Fraser, pres-
 old Sproles continues to take            now an NBA analyst.                 ident     of     the     Stuttering
 steps to control his stuttering. He        “I don’t have to be in a hurry to Foundation. She notes that
 bypassed potential NFL riches            say something,” said Sproles,       speech therapists, school clini-
 following his junior season and          who learned to take his time        cians, teachers and others often
 returned to Kansas State to com-         while answering questions dur-      hang the posters in a prominent
 plete his degree in speech pathol-       ing an interview.                   place in their office.            K
THE
 16     www.stutteringhelp.org
                                                                       STUTTERING
                                                                       FOUNDATION                                                    800-992-9392


 Help Spread the Word about Stuttering                                                                        Talk about Stuttering
                                                  Encourage your newspaper to                                   StutterTalk is a self-help styled
  National Stuttering                           do a story on stuttering.                                     audio podcast that can be down-
                                                  Maybe you can set up a display                              loaded directly from www.
   Awareness Week                               of Stuttering Foundation re-                                  stuttertalk.com or via iTunes.
               May 12-18                        sources at your library.                                       Greg Snyder, Ph.D., Peter
                                                  Send us pictures of how you cel-                            Reitzes, CCC-SLP and Eric
                 In May 1988,                   ebrated National Stuttering                                   Jackson co-host the show which
                 the U.S. Congress              Awareness Week. E-mail us at                                  features
                  passed a Joint                info@stutteringhelp.org.                                      weekly,
                  Resolution                      The Stuttering Foundation can                               o p e n
                  designating the               provide public service ads and                                discus-
                   second week of               other resources to newspapers                                 sions
                   May as National              and TV and radio stations.      K                             about
                    Stuttering                                                                                stutter-
                    Awareness Week.              This newsletter is published quarterly.
                                                                                                              ing. Topics have included how,
                                                 Please e-mail address changes and                            why and when to use voluntary
                                                 story ideas to info@stutteringhelp.org.                      stuttering, stuttering openly
  National Stuttering Awareness                                                                               (avoiding avoidance), covert stut-
Week is May 12-18.                                          Volume17, Issue 2
                                                                                                              tering, relapse, non-verbal forms
  There are many ways to cele-                   Jane Fraser . . . . . . . . . . . . . . . . . . . . Editor
                                                                                                              of stuttering and much more.
brate it, educate others, and be-                Scot Squires . . . . . . . . . . Writer/Designer
                                                                                                               Listeners join the show by call-
come involved.                                   Renee Shepherd . . . . . . . . . . Proofreader
                                                 Special thanks to Joan Warner, Patty Reed,                   ing in or emailing. Special guests
  Ask your local radio station to                                                                             have included Kristin Chmela,
                                                 Susie Hall, Pat Hamm, Lisa Hinton, Anne
run the Stuttering Foundation’s                  Edwards, Terri Jones, and Carol Ecke.                        MA, CCC-SLP who discussed
public service ads.                                                                                           recovery from shame, Joseph
                                                                                                              Klein, Ph.D. who shared his
MySpace                 continued from page 7   this summer as Miss Emerald City.                             thoughts about job interviews,
working toward her degree in ele-                 Eva is just one of many real people                         Dennis Drayna, Ph.D. who talked
                                                you will meet on SFA’s MySpace.                               about gene research, Ken St.
mentary education.                                                                                            Louis, Ph.D. who spoke about
                                                  Whether you are a person who
  In early February she competed in             stutters or not, you will see we are                          living with stuttering and clutter-
the Miss Northwestern pageant,                  all much the same: people with                                ing, and Taro Alexander who dis-
where a 2nd runner up place earned              dreams, goals, accomplishments;                               cussed the Our Time Theatre
Eva “…a great experience and a nice             someone’s friend, mother, or                                  Company which is an artistic
scholarship!” Eva has also recently             brother; someone waiting to be                                home for people who stutter.
qualified in preliminaries for Miss             heard, someone’s hero. Come                                    Tune in and join the conversa-
Kansas and will return to the pageant           check us out!                      K                          tion online!                      K


      THE                                                                                                                          NONPROFIT ORG
      STUTTERING                                                                                                                    US POSTAGE

      FOUNDATION                                                                                                                        PAID
                                                                                                                                    MEMPHIS, TN
      3100 Walnut Grove Road, Suite 603                                                                                             PERMIT # 2078
      P.O. Box 11749 • Memphis, TN 38111-0749

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Summer 2008 newsletter

  • 1. www.stutteringhelp.org • 800-992-9392 • www.tartamudez.org T HE S TUTTERING F OUNDATION A Nonprofit Organization SUMMER 2008 Since 1947... Helping Those Who Stutter New Research from Purdue By Anne Smith, Ph.D. Purdue University I am pleased to have this opportu- nity to update you on the progress over the past year from the Purdue Sproles Stuttering Project. You may recall Joins from our earlier Sports articles that we are engaged in a The Legends longitudinal study of young children who stutter and great Darren Sproles, of the San Diego Anne Smith, Ph.D. their normally fluent controls. With funding play Chargers who made history last season by returning a kick- from the NIH's National Institute off and a punt for his on Deafness and Communication Disorders, we Other have been recruiting 4 and 5-year- for SFA first two NFL touch- downs in the same game, joins other fa- olds, and we will be following mous people who them yearly for a period of 5 stutter in a new years. In fact, we have just re- National Stuttering brochure celebrating ceived notice from the NIH that Awareness Week is May 12-18 Continued on page 13 our project will be funded for an Photos courtesy of NFL additional five years. After the five years of testing, the Facts about Darren Sproles children will be 9 or 10 years old, and approximately half of them Team: San Diego Chargers Born: Waterloo, Iowa will have recovered from stutter- Position: Running back Career Highlights: Twice ing, while half will persist. In each and return specialist named The Kansas City yearly visit to our laboratories, the College: Kansas State Star Player of the Year children participate in an extensive University Source: www.wikipedia.com set of experiments, including those that test basic motor timing ability, Continued on page 8 Frances Cook Joins SFA Board Frances Cook, who in 2005, and has been head Inside... joined the SFA Board of of Speciality at the Michael Directors in January, has Palin Centre in London Exciting new DVD . . . . . . . 2 specialized in stuttering since 1995. Fraser earns national award . 3 since the early 1970s. She has authored numer- Remembering Richard Curlee In 2005, she earned ous papers, chapters and Honours of the Royal texts in relation to stuttering and Vivian Sheehan . . . . . . 4 College of Speech and therapy and research, and Letters from young readers. 6 Language Therapists, be- contributed to the Stuttering A recipe for confidence . . . 9 came Honorary Research Foundation’s recently re- Frances Fellow of University College leased DVD Stuttering: Cook Celebrate Awareness Week . 16 London (Psychology Dept) Basic Clinical Skills. K
  • 2. THE STUTTERING 2 www.stutteringhelp.org FOUNDATION 800-992-9392 Luterman’s Expertise Sharpens Skills By Diane Parris, M.S. Boston University “In order to be a growing professional, we need to be always on the fringe of our incompetency,” that is to say we always need to be pushing ourselves to our limits of competence in order to learn new skills at higher levels. This was the invitation offered Bob by David Luterman, D.Ed. as he O’Brien began training ten participants in prepares counseling skills for the latest the video Stuttering Foundation production equipment. Sharpening Counseling Skills. Based on forty years of experience and as Director of the Thayer Lindsey Family-Centered Nursery for Hearing Impaired Children at Emerson College in Boston, and on his seminal book, Counseling Persons with Communication Disorders David Luterman puts on and Their Families, Dr. Luterman describes the coun- his microphone before the seling relationship as an unconventional one. filming begins. “It is a relationship that necessitates deep, self- less listening.” It requires the professional to put aside his or her Behind the scenes point of view in order to fully understand the client’s point of view and to put themselves in the role of “coach, not fixer.” This three-hour DVD captures the unique process that a clinician goes through in learning how to lis- ten deeply and to provide counseling with inner wis- dom. As a viewer, you will join the ten participants — a graduate student, beginning and experienced clinicians, and researchers — as they transform their thinking about being in the role of counselor and practice the skill of nonjudgmental listening. You will hear their personal stories and concerns when an environment of emotional safety is created. When understanding and acceptance are provided, they begin the process of resolving problems on their own. “Getting Wired” Counseling from this perspective means the clin- ician must overcome the discomfort associated Participants put on with silence, an essential tool in deep listening. He their microphones. or she must resist the tendency to provide immedi- ate information and advice to clients and instead listen to the messages that lie beneath their words. “And also, sometimes, we have to be willing to take a few leaps into the void” of vulnerability that comes with not relying on being the expert with all the answers. The kinds of counseling techniques that emerge from estab- lishing this type of genuine therapeutic relationship are masterfully demonstrated by Dr. Luterman. He makes evident the power and opportunity that stillness and silent witnessing create, and he teach- es us to open up to others and to ourselves. Editor: This DVD should be an essential training tool for all those in the helping professions. K
  • 3. THE STUTTERING SUMMER 2008 FOUNDATION 800-992-9392 3 Temperament Can Underlie “Signature Strengths” in Children Who Stutter By Patricia M. Zebrowski, Ph.D. positive outcome in therapy? For University of Iowa example, preliminary research has shown that children who stutter Fraser Earns A number of years ago, I became interested in the study of “Positive who exhibit the temperamental substrate of rhythmicity, or tem- National Award Psychology” (Seligman, 2002 ) as it poral regularity in eating, sleep- With 1.4 million nonprofits may be applied to helping children ing, and elimination, may be more in this country to choose from, who stutter and their parents uncov- likely to benefit from the practice the NonProfit Times named er and appreciate effects associated with picture Jane Fraser, the strengths they naming (which might be associat- the presi- bring to the thera- ed with the practice effect of ther- dent of the py experience, apy) than do children with less Stuttering strengths that like- rhythmic biological cycles Foundation, ly play a major (Arnold, Conture & Walden, Executive role in treatment 2004). As such, there may be in- of the Year outcome. creased likelihood of transfer and for 2007. As Wampold maintenance of speech modifica- In a front- and his colleagues Patricia Zebrowski, Ph.D. tion skills presented in therapy, re- page story, (1997) in the areas gardless of what those strategies the national of psychotherapy and counseling might be. As another example, publication psychology have long argued, I consider the child who experi- recognized Fraser for her long- have come to believe that the at- ences a strong degree of reactivity time work with the 60-year-old tributes of both the client and the and subsequent negative emotion- Foundation. clinician that matter most in therapy al response to either his stuttering, “In choosing our Executive success, and while fluency and stut- or the reaction of others to his of the Year, we consider ex- tering management techniques are stuttered speech. If the child has ecutives who have made a essential to any kind of speech developed the ability to regulate difference not just for their change, they make a relatively small his reactions to his own behavior own organizations but more contribution to the overall experi- (stuttering) or environmental reac- broadly as well, on behalf of ence. As an example, consider the tion (e.g., routinely shift his atten- other nonprofits,” said Mark current clinical and research interest tion onto more pleasant, positive Hrywna, the publication’s se- in child temperament and how it or facilitating stimuli, events or nior editor. may relate to either stuttering devel- people), he may fail to develop ha- “We also examine the impact opment or recovery, or to treatment bituated avoidant speech or inter- that organizations of all sizes success. Our focus in considering action strategies that have long had on the nonprofit sector temperament is frequently on how it been thought to characterize, and during the previous year and may be causal or related to the per- perhaps contribute to, chronic it was clear that Jane Fraser petuation of stuttering and an obsta- stuttering. In such cases, the child met that qualification in cle to therapy. This is certainly a can be described as resilient, in 2007,” he said. K valid assumption, and clinical expe- that his temperament and related rience suggests that it can be the adaptive skills facilitate the ability case. However, looking for “what’s to ‘bounce back’ or take relatively wrong” with the child with regard to negative stuttering related experi- temperament may prevent us from ences in stride. Further, a child considering how temperament may whose levels of reactivity, emo- Donors may now make gifts also represent a ‘strength” for the tional response, and ability to self- through the Network for Good Web child, something that we should regulate contribute to a more dom- site, www.networkforgood.org. point out, nurture, and discuss with inant, extraverted and sociable This excellent organization, as the parents as a way to highlight for personality might be inclined to part of Guidestar, works to make them “what’s right” with the child. readily and positively approach the work of nonprofits more effec- Regardless of their similarities various social and communication tive and efficient as well as pro- or differences, how can the tem- situations, including therapy (as motes transparency and account- perament and personality of a opposed to reluctantly and nega- ability throughout the sector. child who stutters represent a tively approaching same). In ad- Greater transparency means you “signature strength” (Seligman, dition, such a child might display as a donor know where and how 2002), and thus contribute to a Continued on page 9 your donor dollars are being used. K
  • 4. THE STUTTERING 4 www.stutteringhelp.org FOUNDATION 800-992-9392 Richard Curlee: Remembered as a Gentleman, The Malcolm Scholar and for His Acts of Kindness Fraser Society By Edward G. Conture ment, “Of my several dozen doc- Vanderbilt University toral students, Dr. Curlee was eas- By Don Lineback ily the most tal- Furman University “Quality is not an act. It is a ented. He was a and SFA Board Member habit,” said Aristotle. No truer natural leader. words could be spoken about the Fellow students Malcolm Fraser led by ex- late Dr. Richard F. Curlee, who flocked to him ample. He founded the died January 29, 2008 in Tucson, for guidance.” Stuttering AZ. Dr. Curlee’s habit of high- A recipient of Foundation, quality personal and professional the Malcolm sustained it contributions was not happen- Fraser Award with his gen- stance; it was a choice that he from the Stuttering erous gifts, made as a student as well as dur- Foundation of Richard and perpetuat- ing his long tenure as professor, America, Dr. Curlee ed it through a interim Head and Associate Dean Curlee was a Fellow of the magnanimous at his beloved University of Arizona. American Speech-Language- bequest. It is Dr. Curlee went to high school Hearing Association, from which altogether fit- in North Carolina and received he had also received its highest ting that the Malcolm his Bachelor of Arts at Wake award, Honors of the Association. Stuttering Fraser Forest University. Subsequently, His memorial service took place Foundation he received his M.A. and Ph.D. at on March 2, 2008, in Tucson, AZ, Gift Society be named for him. the University of Southern and at that service his friends Drs. The Malcolm Fraser Society California where he studied with Anthony DeFeo, Roger Ingham seeks to honor those who in- Dr. William Perkins, himself a pi- and Frederick Spahr spoke in clude the Stuttering Foundation oneer in the scientific investiga- Dick’s honor about his many ac- in their estate plans, and who tion of stuttering. Even in these complishments, contributions as agree to be listed annually in early days, there were harbingers well as their personal and profes- the newsletter as members of of Dick Curlee’s future success as sional remembrances. A Stuttering the Society. The amount will Dr. Perkins noted at Dick’s retire- not be listed. Continued on page 10 Such gifts may include: • Bequests; Vivian Sheehan: Pioneering Speech-Language • Trusts paying the donor in- Pathologist and Advocate for People Who Stutter come for life; By Vivian Sisskin, apy was nothing less than conta- University of Maryland, gious. As a young undergraduate • Income-producing annuities; College Park student at U.C.L.A., I watched • Life insurance; her perform what seemed to be • IRAs or other pension plans. Vivian Sheehan was a talented, “magic” in innovative and powerful force in group therapy. I Suggested phrasing for a the field of speech-language remember simple bequest would be: pathology. She passed away on laughter and “I give and bequeath February 14, 2008 at the age of 90 tears, but what $ ________ (or ____ percent at her home in Santa Monica, stood out was of my residual estate) to the California. Through six decades of how she created Stuttering Foundation, a work as a clinician, educator, and an environment charity founded in Memphis, mentor, she helped countless peo- for change Tennessee.” ple free themselves of the struggle through trust In all cases, you should con- and avoidance associated with stut- and support. I Vivian sult your legal advisor for the tering to achieve comfortable, knew immedi- Sheehan appropriate type of gift and spontaneous communication. ately that I wording. Vivian was known for her bound- wanted to do the same. As clini- Editor’s Note: We appreci- less energy, kind demeanor, and cians who did not stutter, we ate the trust and support of sharp wit. She was passionate knew we could never truly live those who have included the about her work and the profession the fear and shame that often ac- Foundation in their will. K of speech-language pathology. companies a stuttering problem. Her excitement for group ther- Continued on page 12
  • 5. THE STUTTERING SUMMER 2008 FOUNDATION 800-992-9392 5 Rocket Science’s Blitz Provides Insight Q: What has been your reaction Q: Do you want people in the in- over the years to the many movies dustry to work to foster more pos- that display people who stutter in itive portrayals of people who a negative light? stutter in film and television? A: To be honest, I never took it A: I think this is actually a danger- personally. It always seemed ous kind of wish. I don’t think any ridiculous to me the way stutter- group should be treated such that ing was used — as a kind of all you see is a positive portrait. metaphor for a bigger problem in What I hope for is more honest por- any character. How many movies trayals of life in general. For my- do we have to see where the seem- self, I don’t need to see a stutterer ingly weak kid with a stutter turns succeed in a movie as much as I Photos courtesy of HBO Video. out to be the killer before that idea want to see a stutterer experience starts to seem idiotic. I mean, if life as I know it to be. Realism is Jeffrey Blitz, writer and direc- the hollywood version of stutter- the more important goal, I think. tor of Rocket Science, answers ing was true then we’d all be in SFA questions. This latest pro- jail for murder. But, to be fair, Q: You, no doubt, have gotten ject is now available on DVD. stupid hollywood movies treat ev- many personal responses as a re- eryone except supermodels in a sult of Rocket Science. What is the Q&A negative light. Yes, stutterers get the short end of the stick, but so one that stands out most in your mind? do many other sorts of people. I A: Well, I love it when stutterers Q: Is there one incident in your think it says more about bad and tell me that I’ve captured some- childhood that inspired you to thoughtless filmmaking than any- thing essential about the experi- write the screenplay for Rocket thing else. ence of stuttering. That always Science? lands well for me. My favorite re- A: There wasn’t a single incident Q: What thoughts were going sponse came when the movie that inspired Rocket Science but through your head when/if you played at the Edinburgh Film there was one moment that I kept watched A Fish Called Wanda? Festival and one young stutterer in mind as I wrote. When I was a A: I actually really enjoyed A Fish came up after and said that the high school sophomore, I went to Called Wanda when I saw it years only thing that would have made my first debate tournament. I ago. The whole movie is over-the- the movie better was if two people blocked on my very first word and top including the portrait of the stuttered in it and not just one! stayed blocked on it for the entire stutterer. I know that many stutter- 8 minutes I was allocated. I tried ers hate that movie but I somehow Q: Did you get any negative feed- to never forget the frustration never felt personally savaged by it. back from people who stutter and (and, in a dark way, the humor) of I just remember laughing really if so, what was the general gripe? that moment. hard through most of it. Continued on page 11 Annual Audit of Foundation The annual audit of the Stuttering expenditures for the year. assured that their gifts will go directly Foundation financial reports for 2007 The 5.8% of expenditures for adminis- to support our program services. was recently completed by the ac- tration and general expenses and the The Foundation is a 501(c)(3) pri- counting firm of Cannon and 6/10 of 1% for fund raising are very vate operating foundation which ex- Company, Certified Public low, and since we are fortunate to have pends its funds on its own programs Accountants, Memphis, Tenn. an endowment which more than covers and operations and does not make Following is a recap of funds and our overhead expenses, donors can be grants to other institutions. Funds expended for: Creation, production, printing and distribution of educational materials . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $580,089 . . . . . . . . . . . . . . . . . 36.0% Public information and education . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 351,521 . . . . . . . . . . . . . . . . 21.8% Educational symposia for professionals . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .217,436 . . . . . . . . . . . . . . . . . . . 13.5% Therapy program and research on causes/treatment of stuttering. . . . . . . . . . . . . . . . . 269,637 . . . . . . . . . . . . . . . 16.7% Maintain Web site and toll-free information hotline. . . . . . . . . . . . . . . . . . . . . . . . . . . . . 88,985 . . . . . . . . . . . . . . . . . . . 5.6% Total for Program Services: . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,507,668 . . . . . . . . . . . . . . . . 93.6% Other expenditures: Administration and general . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 93,641 . . . . . . . . . . . . . . . . . . 5.8% Fund-raising expense . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9,252 . . . . . . . . . . . . . . . . . 0.6% Total Expenditures: . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,610,561 . . . . . . . . . . . . . . . . . 100%
  • 6. Dear SFA: Reader Response THE 6 www.stutteringhelp.org STUTTERING 800-992-9392 FOUNDATION Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or email info@stutteringhelp.org. Like a hockey puck New book may help Dear SFA: Dear SFA: My name is Colton, and I am Sometimes when I’m 7 years old. I live in Canada. I stuttering I feel very angry. like to play hockey, golf, soc- When I was in second grade, cer and baseball. I also like I was stuttering and people school and my family. Getting started to laugh at me. My help from a speech teacher teacher talked to me outside, makes a big difference for me. and she talked to people I talked to my class about stut- who were laughing. tering and it helped because Also, if you stutter, just use they got to learn about stutter- your techniques. It will help ing, and also I got a chance to you. People will get used to tell the other kids important me stuttering and no one will laugh at me again. messages like “Don’t tease Dominic and Rebecca with a “speech tools” birthday In my new school, my friend other people because they cake at the University of South Alabama. The cake says Dara stutters too. Dara was have a difference from you.” “brain, mouth, vocal folds, lips, voice box.” crying because boys were For me, stuttering is like a fun, awesome, love my hair, and my making fun of her. I felt sad for Dara. hockey puck because it starts going shoes. When I speak, I repeat the I felt mad at the people who made fast then it stops suddenly. It helps sounds and words several times. I fun of her. me to imagine this because I can prolong sounds. I move body parts Jonisha think what to do and then get mov- (my hands) when I stutter, and I try to Wyandanch, N.Y. ing with the puck again. find other words when I am talking. Editor’s Note: Trouble at Recess Colton, 7 Katie (on page 7) is a great book that Canada Owensboro, Ky. deals with bullying. A fun, awesome 3rd grader Stuttering isn’t illegal Still learning about stuttering Dear SFA: Dear SFA: Dear SFA: My name is Katie. I am in 3rd I don’t mind stuttering. It’s not I don’t mind my stuttering. It’s grade. I like to play football, have like it’s illegal to stutter. But I don’t not that bad. sleep-overs, cheerlead, color, and like it when I can’t let the words Sometimes stuttering makes me feel sleep. I am good at science, math, out. Robert, my speech therapist, sad. Especially when people make fun taking tests, watching TV, and helps me learn about stuttering. Oh, of me, which occurs not very often. changing my baby sister’s diapers. and by the way, I’m John, and I’m But sometimes people call me names. I have stuttered since the 2nd 8 3/4 years old. I go to speech therapy every grade. My friends think I’m crazy, John Continued on page 12 Picture Perfect Sometimes I get stuck on words when I meet new teachers and new people, and then I stutter. Now that I go to speech, I have learned how to control and work through my stuttering. They both help me with my speech. They taught me to say all my letters and words without get- ting stuck. They have taught me how to breathe better and how to stretch out words and work through bumpy words. I do not mind that I stutter and have learned to love talking in front of others! I love play- ing drums, and I love to sing. Angelo, Angelo drew this picture of a band. Roslindale, M.A. Do you have artwork to share? E-mail it to us at info@stutteringhelp.org.
  • 7. THE SUMMER 2008 STUTTERING 800-992-9392 7 FOUNDATION MySpace Outgrows Initial Expectations Young Author’s Book a Big Success By Julie Gasway, M.A., CCC-SLP a difference when talking with By Joan Warner someone who stutters. Trouble at Recess has been a Jamie’s friends and their par- If you haven’t visited the Stuttering huge success at home! Jamie was ents, family members, classmates, Foundation’s MySpace page recent- excited to see her “finished prod- neighbors, school teachers and ly, hurry to http://groups.myspace. uct,” as were her parents. She guidance counselor attended the com/stutteringfoundation and see read it proudly and was surprised book signing. She read Trouble at what is new. to see how her drawings have Recess in front of her guests while Managed by our friend, Eva changed over time. she was surrounded by friends. Woolwine, the space has grown When I asked her Many of the kids leaps and bounds what she thought commented that they in just a short time about the book she wanted to write a and now claims said, “I like it!” She book too, and in her 144 members. also said the best usual positive manner Originally con- thing about making she encouraged them ceived to interest the book was “draw- to do so. Jamie teens and young ing the pictures.” seemed unaware of adults by providing idea exchange Jamie and her par- how rare her accom- and support, we have all been ents sched- plishment amazed at the level of participation uled a book was. Since by so many people. signing for a the book “We aren’t just hearing from recent after- signing, teens and young adults, and that noon at the Jamie has re- has been a great thing,” Eva tells local library. ceived many us. “People of all ages are checking They sent out cards telling in. Each of us may be in a different i nv i t a t i o n s her that her place as far as our fluency and how and gave each book has open we are about are stuttering, person who been helping but we have a strong bond that con- attended an other people nects. Thanks to all the members, autographed who stutter. without them it would just be a copy of Several par- page and not a group!!!” Trouble at ents and One of the initial goals was to Recess. Jamie autographs a copy at her book t e a c h e r s provide insight, awareness, and They also signing in March. who attend- education to those who do not took dona- ed the book stutter. Those who stutter gener- tions so that signing re- ally agree that it is nearly impos- Jamie, at every ele- center, reads ported that sible to adequately explain to a mentary fluent person the difficulty and her book as teasing is a school library others follow u n i v e r s a l depth of emotion involved. in our city topic and A common description shared by along. will have a Jamie’s many who stutter is “exhaustion.” copy of her book would One member recently posted, book. Jamie’s be encour- “Most people live day by day, but parents have been active in learn- aging for all children. The book stutterers live word by word.” So, ing about stuttering, and they signing was a chance to cele- if you are a parent, relative, teach- went to the Stuttering Foundation brate Jamie’s accomplishment, er, classmate, employer, or even a website and did their own re- teach others about stuttering and stranger who spoke with a stutterer search. teasing and to further develop today, please take a few minutes to They made a “Fact Sheet Jamie’s self-confidence. take a look into what is being said about Stuttering” and passed As a speech therapist this ex- by those who so want to be heard. this out to all who attended the perience has been especially re- Speaking of being heard, another book signing. Many parents warding and exciting for me. I update on our incredibly busy and were surprised to learn: the inci- learned more about stuttering, goal-oriented Eva is in order. She is dence of stuttering is 1-3% of stuttering therapy and how to still studying hard at Northwestern the population, many famous access feelings and thoughts State University in Alva, Oka. and people stutter, and how to make through art and writing. K Continued on page 16
  • 8. THE STUTTERING 8 FOUNDATION www.stutteringhelp.org 800-992-9392 Smith CND could produce all four continued front page 1 Where’s Nick? tests of the brain’s activity in pro- nonwords correctly. Actor Nick Brendon has land- Clearly in terms of these behav- cessing language, and studies of ioral results, the children who are ed a recurring rule speech production in which we on the CBS drama stuttering do not do as well when record muscle activity and motion asked to produce novel speech se- Criminal Minds, of the articulators. playing Kevin quences. The goal of the project is to de- During the nonword experi- Lynch, a technical termine if the results of these tests analyst for the FBI. ment, we record the motions of will help us to predict which 4 and the lips and jaw. We are able to Brendon, who’s 5-year-old children who are stut- a spokesperson for look at oral coordination during tering are likely to persist. production of the novel non- the Stuttering Foundation, is also One of the speech production working on Super Cat, an ani- words. We analyzed data for the tasks that our kids do involves pro- nonword, "mab" since all the mated project in which he voices ducing what we call “novel non- the lead character. children could produce it. Given words.” These are words like “mab” how simple and short this non- Visit www.nickbrendon.com which sound OK in English, but for more news on the actor. word is, we did not expect that which are meaningless. We de- CWS would be less able to gen- signed a set of four nonwords of in- erate a motor program and pro- Sporty Readers Win creasing difficulty, so that “mab” is the easiest one, and “mab- duce it. Surprisingly though, CWS were significantly more In the winter newsletter we shaytiedoib” is variable com- asked readers to guess who was the most difficult. pared to CND in added to the Famous People When we tested ... the goal is to their coordina- brochure. The answer, of course, adults who stut- is Darren Sproles. ter, we found that predict which tive patterns over 10 produc- The first three they could pro- children who are tions of “mab.” winners were duce the words stuttering are likely Thus, we can given T-shirts. correctly after The winners hearing them, but to persist. see that already, in the earliest are Juanita Sirois they showed years of stutter- of Williamsburg, more variability ing, even when the child's pro- Va., Julie Peters in their oral movements, suggest- duction is accurate and no dis- of Asland, Va., and Linda Wyatt ing that hearing, encoding, plan- fluency is perceived, the under- of Cuyahoga Falls, Ohio. ning, and producing a novel speech lying patterns of speech move- Runners up include Michelle sequence was a much more diffi- ment are different. Are the chil- O’Loughlin, Lisa Burroughs, cult task for them compared to nor- dren who perform most poorly Paul Blackburn, Marilyn mally fluent adults. on this nonword repetition task Burgin, Mary Eileen Moore, Is this lower ability to encode the ones most likely to persist in Rita McIntyre, Mike Molini, and produce new sound sequences stuttering? We will be able to an- and Andrew Bathish. present at the onset of stuttering? swer that question in the later Or is it something that develops years of our project. after many years of disfluency? We are truly excited about the Our experiment is designed to an- potential for this work to have swer this question. major implications for treating So far in the “mab” nonword young children who stutter. experiment, we have analyzed If you know of someone who data from 22, all 4 and 5-year- has a child who stutters and lives Camp Our Time will be held old children who stutter (CWS) in our area (Lafayette, Indiana), Aug. 10-17, 2008. It is an arts and 14 children who are normal- please ask them to contact us at camp for young people who ly developing (CND). brownb@purdue.edu. K stutter and their siblings, ages Interestingly, we found that all 8-15. Camp Our Time will take of the children could produce place in Rock Hill, N.Y., 90 minutes from New York City. For more information call the simplest nonword, "mab" correctly. However, on the more difficult items, such as “mab- T he Stuttering Foundation of America is a tax-exempt organization under section 501(c)(3) of the Internal Revenue Code and is classified as a private operating foundation 212-414-9696, e-mail camp@ shibe,” only about 25% of the as defined in section 4942(j)(3). Charitable contri- ourtimetheatre.org, or visit CWS could accurately produce butions and bequests to the Foundation are tax- www.ourtimetheatre.org. K them, while about 88% of the deductible, subject to limitations under the Code.
  • 9. THE STUTTERING FOUNDATION 9 SUMMER 2008 800-992-9392 Sometimes I Stutter A Recipe for Confidence By Robert J. Heemstra By Joan Warner has affected our lives.” Plymouth, Pa. Bob McKinney, LSH Specialist The Stuttering Foundation was for Southwest High School, has had Sometimes I stutter excited to hear from students in a great deal to do with encouraging people may look at me strange San Diego, Calif. this group of students to inspire and but do they know me? “We are a group of students who motivate not only themselves, but stutter at Southwest High School in also others. “These guys are excit- They hear my stutter beautiful San Diego, Calif.,” the ed … They are a great group of students wrote. “Our group is com- guys, and I’m proud to be able to but I am much more than that posed of five work with Please listen to me students (all them,” Bob bilingual) tells us. “I am Please don’t look away whose stutter- always amazed Because of my stuttering ing ranges at the maturity Don’t judge me by that ... K from mild to they show moderate-se- when they dis- vere. We get cuss their stut- together fre- tering with Signature strengths continued from page 3 quently to dis- their peers,” he a relatively high degree of atten- cuss our stut- continued. tional focus and risk-taking while tering and “All our participating in therapy, and may ways to control lives we’ve had actively seek out novel experi- it. We have to overcome ences while also being more apt to also done a se- These students from Southwest High ridicule, em- take risks in both social and ries of presen- School in San Diego, Calif., meet fre- barrassment, speaking situations. The willing- tations with the quently to discuss stuttering and how and despera- ness and ability to take risks has purpose of ed- to control it. They have also done a tion, but being long been considered a trait im- ucating our series of presentations to educate in this group, portant to progress across all school regard- other students about stuttering. The we’ve learned types of therapies (Yalom, 2002). ing stuttering. students are (from left) Fernando, to accept, and It is my hope that future research We would like Irvin, Adrian, Andres, and Christian. to be proud of will focus on how temperament to reach out to who we are.” and other client and clinician at- all people who They go on to tributes interact with the tech- stutter and tell them that they say, “We are no different than any- niques we teach to influence the should not be ashamed of one one else besides the fact that it takes outcome of stuttering therapy. small part of themselves, but be time to say what we want to say.” proud of who they are and what On a recent field trip, the guys References: they can achieve.” made their presentation to a group Arnold, H., Conture, E., & Walden, T. These five teens are worth re- of school district psychologists. It (2004). Relation of temperamental characteristics to picture-naming prac- marking on for a number of rea- afforded this group of profession- tice effects in children who stutter: sons – all of which are “ingredi- als the opportunity to receive a re- Preliminary findings. Poster presented ents” in the recipe for confidence. alistic and heart-felt “lesson” on a at the annual meeting of the American In their own words, Andres, often misunderstood disability. Speech-Language-Hearing Association, Fernando, Irvin, Adrian and So, what is in the “recipe” for con- Philadelphia, PA. Christian, tell us, “We are a group fidence? Apparently, some very Seligman, M (2002). Authentic happi- of students who stutter … Our solid ingredients including support, ness: Using the new positive psycholo- gy to realize your potential for lasting group rendezvous once every encouragement, perseverance, ma- fulfillment. Free Press. week to discuss how stuttering has turity, inspiration, motivation, and a Wampold, B.E., Mondin, G.W., affected us recently (in either a dash of being proud of one’s ac- Moody M., Stich, F., Benson, K. & positive or negative way).” But complishments. In the boys’ Ahn, H. (1997). A meta-analysis of they don’t stop there, talking words, “We believe that confidence outcome studies comparing bona fide among themselves. “Our group is the best cure for stuttering.” psychotherapies: Empirically, “all has presented several times to high Please see their exceptional pre- must have prizes.” Psychological Bulletin, 122, 203-215. school students (and once each to sentation at: Yalom, I. (2002). The Gift of the school district’s speech pathol- http://blog.suhsd.k12.ca.us/index. Therapy. New York: Perennial; Harper ogists, psychologists, and support php?/specialservices/detail/stut- Collins. K staff) what stuttering is and how it tering_presentation/ K
  • 10. THE STUTTERING 10 FOUNDATION 800-992-9392 www.stutteringhelp.org Curlee cause to do so – no doubt con- continued from page 4 Help Not Lost Foundation of America memorial tributed to the many students who sought his advice, counsel, and in Translation fund has been established in honor and memory of Dr. Richard mentoring. A mentor’s mentor, Dr. Curlee acted like a bridge, for Chinese parents now have an- F. Curlee. many students, seeing in them other tool if their child stutters. Among his peers, Dr Curlee was more than they saw in themselves, Jennifer Tseng, who attended known for his taking them the 2005 Stuttering Foundation even-handed, from where they workshop in precise and were to where Iowa, went thoughtful schol- they could home deter- arship. Curlee and/or wanted to mined to help was well regard- be. bring new infor- ed for his early Survived mation to new scholarly at- by his lovely compatriots. tempts to apply wife and soul This new and/or test the mate, Jennie, book, a transla- tenets of learning Dick will be tion of If Your theory relative to missed terribly Child Stutters: Jennifer stuttering re- by his family, A Guide for Tseng search/treatment. friends, col- Parents, is hot These ahead-of- leagues, and past off the press and is sure to be an their-time schol- Dick Curlee receives the Malcolm s t u d e n t s . important prevention tool. arly contributions Fraser Award for Excellence from Building off a Meanwhile, in the Czech were followed by Jane Fraser in 2002. theme developed Republic, Dr. Elisabeth several text- by Dr. Spahr at Peutelschmiedova continues her books, aptly described by Dr. Dick’s memorial service, Dr. outstanding work translating Ingham as classic, treatises that Curlee may be gone from our Stuttering Foundation books. have stood the test of time in terms midst, but we will be reminded of Her latest achievement is Do of relevance and impact. Dr. him in our daily lives. For exam- You Stutter: Straight Talk for Curlee remains, to this day, one of ple, when we see some beginning Teens. K the first to apply “expert system” scholar falter during a presentation technology to the diagnosis of and their mentor, just like Dick Czech version of Do You Stutter: early childhood stuttering, another might have, makes a gentle sug- Straight Talk for Teens. contribution far ahead of its time. gestion from the audience to help Recently, this writer was fortu- the nervous beginner. Or when nate to co-edit the third edition of two academicians lock horns, over one of Dick’s books, and the ex- theory or method, and a third, perience of working with Dr. cooler head like Dick’s often was, Curlee, his insights, wordsmith steps in and brings about rap- skills, and common sense en- prochement. riched literally almost every page For Dick was not only a gen- of the text. Common sense, it is tleman and scholar but routinely said, is not all that common, but practiced random acts of kind- Dick possessed it in droves and ness. Indeed, Dick’s high quality its use by him could be truly re- contributions were not restricted markable as he quickly identified to his scholarly endeavors, but the essence of a problem and, also imprinted his interpersonal more often than not, a reasonable interactions. As Shakespeare solution for same. (Merchant of Venice) noted, Dick’s character, one could rea- “the quality of mercy is not sonably say, was at least partially strain’d, it droppeth as the gen- shaped by his experience with dis- tle rain from heaven. Upon the ability, a concern he adapted to place beneath: it is twice blest; and rose above to lead a life of It blesseth him that gives and consequence, substance and pur- him that takes.” And Dick was Chinese pose. That character coupled with so blessed, as were we, by his copy of If his “don’t complain, don’t ex- presence. Your Child plain” personal style – even when “Farewell Richard, may flights Stutters. his disability gave him plenty of of angels sing thee to thy rest.” K
  • 11. THE STUTTERING FOUNDATION 11 SUMMER 2008 800-992-9392 Rocket Science continued from page 5 for words and reading, that I A: Before Rocket Science came found myself drawn into the Dream Team power of film. I am who I am be- out, I read some hilariously nega- cause of my stuttering and I’m fi- Tours USA tive stuff on stuttering boards nally very glad for that. When where some people worked them- Bob Love’s national school you’re blocking on a word, you tour moves ahead. selves into a froth imagining on wish it gone. But when you step the basis of The tour includes showing back and students Love’s documentary just the 2 look at the minute trailer Find Yourself a Dream! big picture The docu- that the lead there are character mentary was some great recently ac- didn’t have a things that real stutter, cepted into come along the San that this was with stutter- yet another Diego Black ing. Film Festival bogus por- trait of stut- and the screen Q: Do you play for the tering and anticipate that they’d movie was ac- doing any cepted into the skip the m o r e movie. I get Beverly Hills movies with Film Festival, it that people characters are sensitive A scene from the movie Rocket Science. who stutter? which was held in mid-April. about this but The documentary was re- A: I think my next movies won’t cently featured on WYCC, a what about waiting until you’ve be autobiographical at all so I actually seen the movie before PBS station in Chicago. don’t have plans to revisit that. WYCC promoted it with more judging it? Luckily for me, I think But you never know. most stutterers who actually see it than 100 commercials leading really like it. up to each of the showings. Q: What do you think of treat- The PBS station reaches 3.6 ment for stuttering ? million in the country’s third Q: What has been the reaction of A: Well, in the movie, Hal Hefner, your childhood friends and peers largest TV market. my main character, gets no real help Love has served as a to the movie, and to you after its for his stuttering. I have been lucky release? spokesperson for the Stuttering enough to work with some excellent Foundation, and is featured on A: One old friend said, I had no people and have made some gains in idea it was so hard for you. the Famous People Who Stutter my speech because of them. I know brochure and poster. Another said, I didn’t realize it that some people believe that you was all so funny to you at the time. The documentary can be or- should just work to accept stuttering dered online at www. So you just never know. But the and not try to “fix” it. That’s never truth of it is that the movie is only findyourselfadream.com. K been my approach. I’m kind of a vaguely autobiographical. It’s not born fighter when it comes to this meant to be the literal truth of my stuff, and I like trying to lick a prob- life as a teen, just an artful extrap- lem even if it’s thought to be unlick- olation from that. able. I think most anything's attain- This poignant book, written by able if you’re dedicated enough. K Kimberly Fusco, for middle and high Q: If you could give a simple mes- sage to high school kids who stut- school students features 14-year old Now available on DVD: Cornelia Thornhill. Cornelia’s adven- ter, what would it be? Rocket Science, which received 3 A: Sometimes you want to cut out tures start not only when her mother 1/2 stars from movie critic pulls her out of school but those parts of yourself that are Roger Ebert, is now frustrating or painful or make you also leaves her high and available on DVD. dry with an elderly great- different. But those parts are as re- The release includes a sponsible as the good and easy is aunt in rural New behind-the-scenes fea- England of all places. for who you are. Stuttering makes turette, as well as a you who you are and it can inspire Readers will be capti- music video by film’s vated by Cornelia’s some great things. It’s because of composer and singer/songwriter stuttering that I got involved in de- courage as she struggles Eef Barzelay (Clem Snide). with her own stuttering and copes bate, that I developed a passion with an upside down life. K
  • 12. THE STUTTERING 12 www.stutteringhelp.org FOUNDATION 800-992-9392 Sheehan came part of her growing staff. continued from page 4 On the Loose However, Vivian taught me that Joseph accepted a faculty position in the psychology department at We know our readers will be we could develop a valid under- U.C.L.A. and the Sheehan’s moved surprised to learn of two recent standing of that experience by to Santa Monica, California where retirements. listening carefully to our clients and she began one of the first private Both Roberta Brugge and Anne paying attention to our “stuttering practices in the country. Vivian’s pi- Edwards have equivalent,” something about our- oneering work in aphasia contin- decided the selves we wish to hide to avoid po- ued. She founded an organization time has come tential negative that later became to enjoy more thoughts or reac- the Emeritus leisure time tions of others. “Vivian’s contributions P a t h f i n d e r s and grand- Vivian’s sharp went far beyond Program at Santa motherhood! mind and wonder- her stellar record of Monica College, Callers will ful sense of humor providing rehabil- remember delighted her clinical work and itative services Anne who friends and col- service to the and support to began working Anne Edwards leagues. We cele- profession and stroke patients at the Stuttering brated the many and their families. Foundation in things we had in the community.” common. One day Vivian Sisskin Vivian received the early prestigious honors 1980’s when she told me, “No, throughout her ca- we were ad- we are not people who stutter”, and reer. She was named an ASHA dressing en- then with a wink and a smile contin- Fellow in 1986 and was the recipi- velopes by ued, “We just marry them!” Vivian ent of ASHA’s Frank R. Kleffner hand. She had was married to the late Joseph Clinical Career Award in 1993. She worked as a li- Sheehan, professor of psychology at was honored numerous times by the brarian so was Roberta U.C.L.A. and father of avoidance re- California Speech Language and tremendous Brugge duction therapy for stuttering. Vivian Hearing Association, the American help as we pub- worked with Joseph at the U.C.L.A. Academy of Private Practice, and lished more and THE Speech Psychology Clinic until his the National Stuttering Association. STUTTERING death in 1983. She continued their more books. FOUNDATION She was elected to serve in leader- For 12 years, work as director of the Sheehan ship positions within all of the Roberta was our Wednesday part- Stuttering Center well into her 80’s. above-mentioned organizations. timer, taking over thank you letters Vivian completed her graduate Vivian’s contributions went far to donors and keeping the mailing studies at the University of beyond her stellar record of clini- list updated. Michigan and worked in the Battle cal work and service to the profes- We call on them regularly for Creek schools during the day and at sion and the community. She in- advice and help! K Percy Jones Army Hospital in the spired clinicians young and old evenings. It was during World War with her wisdom and skill, and has II, and soldiers were returning from been cited as the primary force for battle with brain injuries. Vivian change among her clients who Thanks for the Support scoured the medical literature to de- have recovered from stuttering. velop what became the first aphasia Vivian was my dear friend and Because of the ongoing support rehabilitation program in the U.S. mentor. I will never forget her of NSSLHA chapters around the Army Hospital system. It was at warm smile, encouraging words, country, the Percy Jones where Vivian met her and wonderful sense of humor. I Stuttering future husband, Joseph Sheehan, a will always be grateful to her for Foundation young speech pathologist who be- her guidance and love. K is able to provide re- sources to Letters continued from page 6 Dysfluency Conference The Eighth Oxford Dysfluency those who Tuesday. It really helps me. Mrs. Conference, co-sponsored by the Stuttering stutter, parents, schools, libraries, Miller helps me ease out of a stutter. Foundation and the Michael Palin Centre, universities and physicians. I’m still learning. I’ve only been will be at St. Catherine’s College, Oxford, July 3-6. Speakers include NSSLHA chapters have done ev- to the speech room about 12 times. Paul Dolan, Imperial College, Marc erything from bake sales to working I hope to learn how to tell people Shell, Harvard University, Patricia the SFA booth at conferences to help about my stuttering. Zebrowski, University of Iowa, Anne Smith, Purdue University, and Dr. Per Alm, Danish raise the awareness of stuttering. Jessica Information Centre for Stuttering. Visit We appreciate it. Thanks! Largo, Fla. K www.odc.org.uk. K
  • 13. THE STUTTERING SUMMER 2008 FOUNDATION 800-992-9392 13 Sproles continued from page 1 ogy. In college, he worked with a Coming out of Kansas State, speech pathologist to make inter- Sproles was one of the most pro- National Stuttering Awareness views less difficult. Darren also lific runners and all-purpose per- Week, which is May 12-18. got advice from basketball great formers in college football histo- The brochure — which un- Bill Walton, who struggled with ry. He set nearly every school folds into a small poster — is stuttering some years ago and is record imaginable - 23 in all - and available free he is regarded by of charge from many as the best the Stuttering Foundation. Q&A player in the 110- year history of Sproles is fea- An interview with Darren Sproles Kansas State tured alongside football other sports leg- Q: TV interviews are high pressure. In a previous interview with a newspaper, you said you found "little tricks" to con- As a 5-foot, 6- ends who stutter, inch running such as Bill trol stuttering. What are some of the tools that work for you? back and return Walton, Kenyon specialist with Martin, Ken A: “I have learned to take my time while answering questions the Chargers, he Venturi and Bob ranks eighth in Love. As such, he during an interview. I don’t have to be in a hurry to say the NFL in kick- is the 18th famous off return aver- person. Others in- something. I also ... keep my words flowing.” age (26.7 yards) clude actor James and 13th in punt Earl Jones, return average Marilyn Monroe Q: Why did you put off the NFL and go back to college? (10.1). and Winston Playing the Churchill. A: “I didn’t want to do it but I made a promise to my mother game has always Sproles, who come easy for became aware of before she passed away that I will finish school first and then go to the NFL.” Sproles. The his stuttering at spoken word is age 4, says the more difficult. problem became Q: The fact that you majored in speech pathology is very ex- citing. Why did you choose it as a major? Has it made a dif- “I remember a more pro- long time ago my nounced when ference in your speech? A: “When I went to college I majored in speech pathology grandpa told me he was a star “don’t ever let football player at because I really wanted to learn about stuttering and how I can better my speech. I feel from me learning about it helped anybody tell you Olathe North that you can’t do High School and me find tools to help me out.” anything because at Kansas State you stutter.” University. Q: What advice would you give others who stutter? A: “Just work on it. Take classes and learn more about where Sproles said. “I “I had to talk to always remem- the media a lot, stuttering comes from. I remember a long time ago my grandpa told me ‘don’t ever let anybody tell you that you bered that and and once they worked hard to put a camera in can’t do anything because you stutter.’ I always remembered that and worked hard at improving my speech.” improve my my face that’s speech.” when it got bad,” “Darren Sproles Sproles said. “I Q: Do you see yourself as an inspiration and role model for others who stutter? will be a great just had to work source of inspi- on it. I couldn’t A: “Yes, I do.” ration to young really stress people who about it, because Q: What advice did Bill Walton give you? A: “Take my time when I talk. Don’t be in a hurry.” struggle with that’s just me.” stuttering,” says The 24-year Jane Fraser, pres- old Sproles continues to take now an NBA analyst. ident of the Stuttering steps to control his stuttering. He “I don’t have to be in a hurry to Foundation. She notes that bypassed potential NFL riches say something,” said Sproles, speech therapists, school clini- following his junior season and who learned to take his time cians, teachers and others often returned to Kansas State to com- while answering questions dur- hang the posters in a prominent plete his degree in speech pathol- ing an interview. place in their office. K
  • 14. THE 16 www.stutteringhelp.org STUTTERING FOUNDATION 800-992-9392 Help Spread the Word about Stuttering Talk about Stuttering Encourage your newspaper to StutterTalk is a self-help styled National Stuttering do a story on stuttering. audio podcast that can be down- Maybe you can set up a display loaded directly from www. Awareness Week of Stuttering Foundation re- stuttertalk.com or via iTunes. May 12-18 sources at your library. Greg Snyder, Ph.D., Peter Send us pictures of how you cel- Reitzes, CCC-SLP and Eric In May 1988, ebrated National Stuttering Jackson co-host the show which the U.S. Congress Awareness Week. E-mail us at features passed a Joint info@stutteringhelp.org. weekly, Resolution The Stuttering Foundation can o p e n designating the provide public service ads and discus- second week of other resources to newspapers sions May as National and TV and radio stations. K about Stuttering stutter- Awareness Week. This newsletter is published quarterly. ing. Topics have included how, Please e-mail address changes and why and when to use voluntary story ideas to info@stutteringhelp.org. stuttering, stuttering openly National Stuttering Awareness (avoiding avoidance), covert stut- Week is May 12-18. Volume17, Issue 2 tering, relapse, non-verbal forms There are many ways to cele- Jane Fraser . . . . . . . . . . . . . . . . . . . . Editor of stuttering and much more. brate it, educate others, and be- Scot Squires . . . . . . . . . . Writer/Designer Listeners join the show by call- come involved. Renee Shepherd . . . . . . . . . . Proofreader Special thanks to Joan Warner, Patty Reed, ing in or emailing. Special guests Ask your local radio station to have included Kristin Chmela, Susie Hall, Pat Hamm, Lisa Hinton, Anne run the Stuttering Foundation’s Edwards, Terri Jones, and Carol Ecke. MA, CCC-SLP who discussed public service ads. recovery from shame, Joseph Klein, Ph.D. who shared his MySpace continued from page 7 this summer as Miss Emerald City. thoughts about job interviews, working toward her degree in ele- Eva is just one of many real people Dennis Drayna, Ph.D. who talked you will meet on SFA’s MySpace. about gene research, Ken St. mentary education. Louis, Ph.D. who spoke about Whether you are a person who In early February she competed in stutters or not, you will see we are living with stuttering and clutter- the Miss Northwestern pageant, all much the same: people with ing, and Taro Alexander who dis- where a 2nd runner up place earned dreams, goals, accomplishments; cussed the Our Time Theatre Eva “…a great experience and a nice someone’s friend, mother, or Company which is an artistic scholarship!” Eva has also recently brother; someone waiting to be home for people who stutter. qualified in preliminaries for Miss heard, someone’s hero. Come Tune in and join the conversa- Kansas and will return to the pageant check us out! K tion online! K THE NONPROFIT ORG STUTTERING US POSTAGE FOUNDATION PAID MEMPHIS, TN 3100 Walnut Grove Road, Suite 603 PERMIT # 2078 P.O. Box 11749 • Memphis, TN 38111-0749