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This booklet was written to provide useful information
about Fetal Alcohol Spectrum Disorder (FASD), and to
 focus on an approach and an attitude when working
          with individuals affected by FASD.

         If you have further questions about
                         FASD
            or would like more information,
                   please contact:



       First Nations Special Education
                      at:




                   1.877.422.3672



   This handbook was updated by Madeline Price
          Desktop Design by Brent Scout
                 © 2006 FNESC
TABLE OF CONTENTS
                                                                                     Talking About Special Education Volume


                                                                    Inside:
                                                          Introduction………………………………………..                                  2

                                                          What is FASD?…………………………………...                                  3

                                                          FASD Identification………………………………                                4

                                                          Understanding People with FASD……………..                          5
 “Trying Differently Rather Than Harder”
Understanding the role of the brain in FASD and           Basic Needs of Persons with FASD……………                          8
the shift in recognizing the difference between           The Ideal Classroom……………………………..                               9
non-competence and non compliance sets the
stage for Trying Differently Rather than Harder”          Individual Education Plan (IEP)…………………                       10

                                 Adapted from the book:   Paradigm Shifts and FASD……………………...                          11
                  Trying Differently Rather Than Harder
                     (Diane Malbin M.S.W. 2nd Edition)    FASD in the Classroom………………………….                             12
                            Fetal Alcohol Syndrome and
  Alcohol-Related Neurodevelopmental Disorders. 2002      Teaching Students with FASD/FAE……………                         13

                                                          Design Concrete Measures of Time…………...                      14

                                                          The T Chart……………………………………….                                  15
                                                          Supporting Behavioural Changes……………..                        16
                                                          Trying Differently………………………...……....                         17

                                                          Appendices ……………………………………...                                 19

                                                          A - An Example of an IEP

                                                          B - Resources
What is Fetal Alcohol Spectrum Disorder?
Talking About Special Education Volume II - FASD , 2006                       Talking About Special Education Volume II - FASD , 2006

Introduction
This is an updated handbook from the series of              Fetal Alcohol Spectrum Disorder (FASD) is an umbrella
informational handbooks prepared by the First Nations       term that refers to a range of birth defects caused by
Education Steering Committee (FNESC) and the First          drinking during pregnancy. Fetal Alcohol Syndrome
Nations Schools Association (FNSA). This handbook           (FAS) is a medical diagnosis and has 4 key features:
follows from the general discussion of special needs
included in Talking About Special Education Volume I,       •   prenatal exposure to alcohol
which includes issues such as parental involvement,         •   growth deficiency
special needs identification, individual education plans,   •   certain facial characteristics
and advocacy.                                               •   brain damage

Several sources of information were used in the             *Although the term Fetal Alcohol Effects (FAE) is being
development of this publication. FNESC and the FNSA         phased out, it still appears in the literature usually
would like to gratefully acknowledge the following work     referred to as Alcohol Related Neurodevelopmental
as most of this information in this booklet comes from      Disorders (ARND).
these sources:
                                                            Partial FAS (pFAS) - confirmed maternal alcohol
Trying Differently Rather Than Harder 2nd Edition           exposure - has some but not all of the physical signs of
Diane Malbin, M.S.W. — Director of FASCETS (Fetal           FAS (learning and behaviour difficulties).
Alcohol Syndrome Consultation, Education and
Training Services www.FASCETS.org                           Alcohol-Related Birth Defects (ARBD) - confirmed
                                                            maternal alcohol exposure - displays some physical
Submissions from Deb Evenson — Project FACTS                anomalies resulting from prenatal alcohol exposure, for
http://fasalaska.com/links-html                             example heart, skeletal, vision, hearing, and fine and
                                                            gross motor problems.
Aboriginal Nurses Association of Canada (ANAC).
1997. It Takes a Community. A Resource Manual for           Alcohol Related Neurodevelopmental Disorders
Community-Based Prevention of Fetal Alcohol                 (ARND) — confirmed alcohol exposure — refers to the
Syndrome.                                                   variable range of central nervous system dysfunctions
Contact the ANAC at: 192 Bank Street, Ottawa, ON            that are associated with alcohol consumption during
K2P 1W8, phone (613) 236 - 3373,                            pregnancy. ARND is demonstrated by learning
e-mail Info@anac.on.ca                                      difficulties, poor impulse control, poor social skills, and
                                                            problems with memory, attention and judgment.
Proceedings of the 2005 FASD National Conference


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Talking About Special Education Volume II - FASD , 2006                           Talking About Special Education Volume II - FASD , 2006

                                                                 Understanding People With FASD
(This larger group is now believed to be at greater risk
for failure since they are often not seen as having a            Infants
disability).
                                                                 Infants may experience a range of characteristics.
People with ARND may have significant brain                      Severely affected infants may require hospitalization
differences, yet their behaviours may be the only                from disorders affecting major organs. Infants with
symptoms of their disability. ARND is often referred to          FASD are also prone to infections, and they generally
as an “invisible handicapping condition”                         develop more slowly than other infants. They may have
(Streissguth 1996).                                              difficulty sleeping, sucking and swallowing, keeping
                                                                 food down, gaining weight, and may be irritable and
FASD Identification                                              unpredictable.

The diagnosis of Fetal Alcohol Syndrome requires the             Be patient, and keep their level of stimulation low.
presence of measurable physical characteristics in               (Adapted from Aboriginal Nurses Association, 1997)
addition to symptoms of brain damage and is generally
made by a multidisciplinary team. It is the only alcohol-
related diagnosis that may be make in the absence of a           Young Children
confirmed maternal alcohol history.
                                                                 From toddler through preschool, children with FASD
The majority of people prenatally exposed to alcohol             may be slow to develop, and if they are severely
have no external physical characteristics, since the             affected they may continue to have health problems
facial features of FAS result from specific timing of            due to organ damage.
prenatal alcohol exposure — during days 18-21 of
gestation. However, even though a person with FASD               Delays in their speech and vocabulary may be
has no physical features, their brain dysfunction may            noticeable in preschool years, and referral to therapy
be as severe as for full Fetal Alcohol Syndrome.                 and special needs preschools may be considered.

Identification for this larger group with FASD is crucial        Children with FASD may be clumsy and accident prone
since they are at greater risk for failure due to the            due to late development of their motor skills, and their
greater invisibility of their disability (Clarren et al; 1998;   learning through experience, seeing and hearing may
Riley, 2003, Streissguth et al. 1996).                           also be delayed. They may rely more on touch to
                                                                 explore their surroundings.




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Talking About Special Education Volume II - FASD , 2006                      Talking About Special Education Volume II - FASD , 2006



Understanding People With FASD                              Adolescents and Young Adults with FASD
Young Children (continued)                                  Youth with FASD and their caregivers are dealing with
                                                            normal teenage issues plus the concerns of FASD.
Over-stimulation or changes in daily routine can lead to
tantrums and destructive behaviour, and interacting         Youth with FASD can be easily misled, and may need
with other children may be a problem.                       social skills interventions, a supervised environment
                                                            and appropriate school programming.
An assessment may be needed to determine what
special services are needed to ensure a successful          Affected youth may have problems making friends
transition to school.                                       because of unacceptable or immature behaviour, and
                                                            they may have difficulty in communicating and
                                                            understanding instructions.
School Age Children with FASD
                                                            Abstract thinking is slow to develop, and their literacy
There are physical, learning and behavioural difficulties   and numeracy skills may be below their age and grade
common to most children with FASD.                          level.

Their speech and language development may be                Attention deficit and hyperactivity will affect learning
delayed.                                                    and relationships with peers. Their excess energy
                                                            should be directed.
They may have problems mentally “registering”
information, and once information is learned it may take    Some affected youth become skilled in individual sports
more time to be “retrieved.”                                like swimming or running, and sports can help to build
                                                            self-esteem and social skills.
Their ability to understand consequences may be
impaired, and learning disabilities are common.             The youth, however, may have difficulty with rules,
                                                            daily living skills, managing money and time; therefore,
The child may have a short attention span,                  life skills must be reinforced from an early age.
under-developed motor skills and reasoning, and
learning disabilities resulting in inappropriate
behaviour.




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Talking About Special Education Volume II - FASD , 2006                        Talking About Special Education Volume II - FASD , 2006



Basic Needs of Persons Living with FASD                    The Ideal Classroom
(Adapted from Aboriginal Nurses Association, 1997)
                                                           •   Structured with flexibility
The person affected with FASD needs nurturing,             •   Visual supports
understanding and support.                                 •   Little clutter

A stable home, responsive school system, supporting        The Ideal Teacher Interaction
friends and caring community are also important
aspects of nurturing the child.                            •   Warm and accepting
                                                           •   Consistent in behavioural expectations
The person with FASD needs to feel that he or she is a     •   Frequent positive feedback based on realistic expec-
part of the community. Self-esteem and acceptance are          tations
critically important.                                      •   Regular communications between parent and school
                                                           •   An Individual Education Plan outlining strengths with
Parents of children with FASD need connections with            realistic and achievable goals in place.
the community, other parents, and services that
provide family centred and culturally sensitive support.   Teaching Methods in the Ideal Classroom
Parents may need help dealing with addictions,             •   Emphasis on collaborative problem solving
poverty, low self-esteem, and limited work and             •   Emphasis on explicit teaching (make it as concrete
parenting skills. Caregivers should be respectful and          as possible)
non-judgmental toward families living with FAS/E and       •   Programs adaptations (example: more time allowed
acknowledge that the parents are performing a                  for completion of in-class
demanding job.                                             •   Assignments - less written work, visual supports, use
                                                               of a computer)
The community social safety net should meet the basic
needs of family members and provide early assistance
to the child’s family. Families should have access to
appropriate assessments and diagnoses and be
empowered to contribute to all discussions about their
children.




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Talking About Special Education Volume II - FASD , 2006                            Talking About Special Education Volume II - FASD , 2006

Individual Education Plan (IEP)                            Paradigm Shifts and FASD
                                                           Taken from Building Strengths, Creating Hope — Alberta
The Individual Education Plan is the cornerstone to the    Learning. For a complete manual for instruction online at: http://
educational program of many students with FASD.            www.education.gov.ab.ca/K_12/specialneeds/fasd.asp

Students with FASD can be successful when realistic           From seeing the child as             To understanding the child as
and effective approaches are used. There is much
                                                                         Won’t                                       Can’t
hope for this population!
                                                            Bad, annoying                           Frustrated, challenged
When realistic and achievable goals are designed            Lazy, unmotivated                       Trying hard, tired of failing
                                                            Lying                                   Story telling to compensate for
based on previous and appropriate assessment, the                                                   memory, filling in the blanks
stage is set for student growth and success.                Fussy                                   Oversensitive
                                                            Acting young, babied                    Being younger
The successful IEP is collaborative in nature, and          Trying to get attention                 Needing contact, support
involves all team members (teacher, teacher                 Inappropriate                           Displaying behaviours of a
                                                                                                    younger child
assistants, family members, the student, and others         Doesn’t try                             Exhausted or can’t get started
working with the student in their educational program).     Mean                                    Defensive, hurt
The IEP is designed to set the student up for success.      Doesn’t care                            Can’t show feeling
It focuses on the student strengths, and incorporates       Refuses to sit still                    Over stimulated
support in the areas of student need.                       Resisting                               Doesn’t get it
                                                            Trying to annoy me                      Can’t remember
                                                            Showing off
*  If you would like to have FNESC Special
Education Support demonstrate and facilitate an
IEP at your school, please call or email Kelly               From Personal Feelings of:                      To Feelings of:
Kitchen at 1.877.422.3672 or kellyk@fnesc.ca                Hopelessness                            Hope
                                                            Fear Chaos, confusion                   Understanding
If you have questions related to the IEP please email or    Power struggles                         Organization, comprehension
call    Madeline     Price     at     1. 877.422.3672,      Isolation                               Working with
madelinep@fnesc.ca or call our Toll Free resource Line                                              Networking, collaboration
at 1.877.547.1919 or email Lisa Ellis at lisae@fnesc.ca       Professional shifts from:                             To:

       ***** See Appendix for Example of IEP *****          Stopping behaviours                     Preventing Problems
                                                            Behaviour Modification                  Modeling, using cues
                                                            Changing people                         Changing environments



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Talking About Special Education Volume II - FASD , 2006                        Talking About Special Education Volume II - FASD , 2006



                                                               When teaching students with FAS/FAE...
FASD in the Classroom
(Adapted from FAS/E Support Network 604.576.9911                    Remove charts, maps, etc. after use
or email info@fetalalcohol.com                                      Break down work into small pieces
                                                                    In group activities, pair a FAS/E child with a high
                                                                    tolerance child
When teaching students with FAS/FAE, try the                        Have the same teacher, Teacher aide, assistant all
following:                                                          year 
                                                                    Teach memory strategies
         Provide order!!!                                           Control interruptions of the classroom
         Keep a routine oriented classroom                          Do not allow any talking-out with out hands up 
         Provide a highly structured environment                    Use homework books with parents, making the
         Build in transition periods                                teacher and parents responsible for the books 
         Make areas of the room clearly defined by                  Clean out the child’s desk with them at least once
         activity (wall decorations should reflect only what        weekly
         goes on in that area)                                      Use a wide spaced paper
                                                                    Use pink highlighters, not yellow
         Put as little as possible on the walls
                                                                    Find a way to provide at least some lunch hour and
         Keep colour to a minimum                                   recess supervision
         Put desks in rows—groupings do not work                    Keep any time out very short
         Put the child directly across from speaker for             Supervise the child when going from one place to
         eye contact                                                another 
         Use uncluttered worksheets                                 Use open book tests with the areas being tested
         Give immediate feedback on assignments                     highlighted
         Keep a posted schedule for the day’s activities            Limit homework to a reasonable amount
         Ask visitors to the classroom to arrive on time            Allow the student more time to respond to questions 
         Flick the classroom lights to get attention                Try to have all people who interact with the child use
         Test one on one for knowledge, not attention               the same language to mean the same thing
                                                                    Give thought to developing a peer monitoring
         Use redirects—”this is your”…”this is where it
                                                                    program
         goes”                                                      After elementary school, emphasize life skills and
         Plan ahead for special events and keep them                vocational training
         infrequent                                                 Don’t personalize behaviour
         Break up concentration activities with physical            Use concrete measures of time (see next page)
         activities                                                 Teach explicitly, never assume the student will get it
         Store books, materials, etc. by type, not size             (see T chart—Page 26)
         Label shelves and cupboards with words and                 Listen to parents! They often know what works best
         pictures/symbols

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Talking About Special Education Volume II - FASD , 2006                       Talking About Special Education Volume II - FASD , 2006



HOW TO DESIGN A CONCRETE MEASURE                           The T Chart
OF TIME                                                    T Chart’s can make rules more concrete and visual.
                                                           This is an example of a T Chart for a high school
Many students have great difficulty working on an          student who could read but could not remember how to
assignment to completion — sometimes this is               leave the breakfast area in the resource room clean.
because they cannot grasp the measure of time and
don’t know when they will be finished.                     Rule: Breakfast area is clean after breakfast                 ☺
Time is often a difficult and abstract concept to grasp.                                                   Sounds like:
                                                                   Looks like:
A concrete measure of time can help.
                                                                                                                  *Good Job!
For younger kids paper chains work well — each part
of the chain can represent 1 minute — the task could
be 5 or 10 minutes and at each minute one link is taken
off — this can be attached to the board at the front of
the room or on the student’s desk. Teacher Assistants                                        •
can help with this support.
                                                            * insert a digital photo of
For more sophisticated students — the teacher may          •the real-life situation
                                                               Dishes in cupboard                Teachers and Teacher’s
give them 30 minutes on task work. The teacher could       •   Knives, forks and                 Assistants will be smiling
count down the time by 5’’s and write it on the board.         spoons in tray                    and saying:
                                                           •   Cereal put away in cup-
There are many creative ways to use concrete                   board                             “GOOD JOB KOBI, I
                                                           •   Bread bag has clip on it          REALLY LIKE THE WAY
measures of time. Egg timers work and can be placed                                              YOU CLEANED UP
on a student’s desk, or a big one on the teachers desk.    •   Bread is put in the cup-
                                                               board                             EVERYTHING ON THE
Timers with bells can work as well.                                                              COUNTER, ON THE
                                                           •   Milk is in the fridge
                                                                                                 TABLE AND ON THE
Sometimes students need to know that they can have a       •   Counters are wiped
                                                                                                 FLOOR!”
break after they have successfully completed a certain         and shiny
amount of time on task — so you can pair time on task      •   Floor does not have               * insert photo of student
with 5 minutes of time that the student can have               anything on it                    working
personally — whatever works to make the student
successful and able to complete time on task!

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Talking About Special Education Volume II - FASD , 2006                      Talking About Special Education Volume II - FASD , 2006

                                                          Trying Differently Rather Than Harder —
Supporting Behavioral Changes By                          Supporting Behavioural Changes by
Recognizing Cognitive Differences                         Recognizing Cognitive Differences
                                                          By Diane Malbin — FACETS Inc. www.FASCETS.ORG
A Neurobehavioural Approach
                                                          (Taken from the 2005 Alcohol Spectrum DisorderNational
Recent studies have shown the importance of linking       Conference — Equality of Access: Rights and the Right
brain damage with behaviour and communication to          Thing To Do)
improve outcomes for students with FASD.
                                                          Parents and teachers tend to try harder, using good
Brain damage causes behavioural and communication         techniques, to change behaviours.
symptoms.
                                                          Good techniques that work with other children may
Our Attitudes and Approach in working with students       simply not work for people with FASD. Paradoxically,
with FASD will make a difference.                         their behaviours change as a function of changes in the
                                                          environment. In other words we can set these
                                                          individuals up for success if we adapt the environment
What Interventions are a poor fit?                        to ensure better outcomes.

                                                          1. Accept that the person has an invisible physical disability.
Interventions based on changing behaviour symptoms
                                                             Establish relationship.
have not worked. Traditional methods of teaching
behaviour have often been unsuccessful.                   2. Clarify your needs, feelings, resources and supports.
                                                          3. As with other more obvious physical handicapping
Techniques based on “learning theory” which include          conditions, evaluate environments for their “goodness of
behaviour modification techniques to eliminate or            fit” and adapt /modify environments as appropriate to
change behaviour often make things worse.                    maximize potentials. Recognize which elements of
                                                             environments may be posing undue challenges, chronic
                                                             frustrations...or be inappropriate. Adjust accordingly.
These approaches do not include a conscious
recognition of brain dysfunction.                         4. Ask the “what if” questions and continue to explore
                                                          5. Identify strengths, interests, and work through these.
                                                          6. Create climates characterized by structure rather than
                                                          control.
                                                          7. Control tends to be top-down, other-initiated, set up
                                                          power struggles.


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8.     Structure is safe, respectful, invites participation,                               Chart
      establishes a “with” “not at” relationship and values the                       By Diane Malbin
      person’s input for developing solutions.                                 FASCETS — WWW.FASCETS.ORG
9. Our challenge in part is to recognize the articulate learning                                                  Environmental
    abilities we take for granted, i.e. Inferential learning,            Standard              Secondary      Accommodations to
    generalizing information, linking words with action, and to        Interventions           Behaviours     Prevent Challenging
    then clarify whether a discrepancy exists between                                                               Behaviours
    apparent ability and actual ability.                                   Talk fast          Anxiety                Slow down
                                                                           Therapy          Frustration              Give time
10. Observe patterns; consciously rethink events. Recall that               Punish          Shut down             Adjust workload
    there may be a delayed reaction from the time of stressor       Take away privileges      Anxiety         Give time, Slow down
    and acting out behaviour. A behaviour at home that                      Shame           Frustration         Reduce work load
    apparently occurs in response to a request to do a chore               Ridicule          Tantrums            Accept slow pace
    may actually relate to a frustration that occurred at school,                               Fear              Accept need to
    or with friends. Think broader context, bigger picture.                 Punish          Frustration       re-teach a concept in
                                                                                               Anger             different settings
11.     Depersonalize. Reframe perceptions, shifting from
                                                                      Teach age-based                             Think younger,
      thinking “willful” to considering “organic” component, or
                                                                        skills, Punish         Lonely           Establish develop-
      possible gaps in ability. Shift from thinking “won’t” to         “inappropriate”        Isolated         mentally appropriate
      understanding “can’t.”                                             behaviours         Depression             expectations
12. Work to 90% success. Break down tasks into small steps                  Punish         Anxiety, fear,      Recognize and allow
    and check for completion and comprehension prior to                     Ground        No confidence,           for variability
    adding more tasks. These may gradually be expanded                      Shame        Erode self-esteem        Prevent anxiety
    with pattern development and maturity.                           Punish, More work Agitation, overactive,      Evaluate the
                                                                          Medicate       avoidance, anger,         environment
13. Recognize that individual needs may be at direct odds to             No Recess       anxiety, tantrums      Adjust accordingly
    environmental constraints. Difficult decisions may be                                                         Provide breaks
    necessary.                                                              Punish             Anger              Adjust workload
14. Consider: There’s always logic to the behaviour. It’s our             More work          Tantrums            Provide breaks &
                                                                                                                       snacks
    challenge to understand the context and recognize the
    potential role of “brain damage.”                                                                            Prevent problems
                                                                            Punish          Avoidance           Build on strengths
15. Specifically include the person with FASD in the                                         Defiance             Use visual cues
   strategizing or problem solving process. Choose words               More hours on          Burnout          Provide Kinesthetic
   such as “show me” or “How” rather than “why” to invite           homework, No recess     Shut down         Experiential Relational
   input.                                                                  Therapy            Give up           options for learning
16. Keep it concrete, specific, and simple.                                Interrupt        Resistance          Adjust workload to
                                                                        Assert control         Anger              achieve closure
17. Always consider the neurological potential. “Think               Require transitions   Big Tantrums            Provide time
   younger”, and remember “Fair is not same.”
Page 18                                                                                                                              Page 19
Talking About Special Education Volume II - FASD , 2006   Talking About Special Education Volume II - FASD , 2006



                                                                       APPENDICES 1: Example of an IEP


                                                                             ELEMENTARY SCHOOL

                                                                                             Phone:
                                                                                              Fax:

                                                                           Individual Education Plan
                                                                                      YEAR 2005-2006
   Appendix A
Example of an IEP
                                                                            Student: Kobi Anderson

                                                           DATE OF IEP MEETING: June 11, 2005

                                                           BIRTH DATE: September 4th, 1994
                                                           AGE: 11 GENDER M

                                                           MAIL ADDRESS: Box 2220 Sechelt BC VON 3AO

                                                           GRADE: 8

                                                           PHONE: 604-885-9039

                                                           PARENT/GUARDIAN: Victor and Gloria Anderson




                                                                                School: Pine Elementary
                                                                       IEP Year 2005-2006 Student: Kobi Anderson


                                                                                                                     A1
Talking About Special Education Volume II - FASD , 2006        Talking About Special Education Volume II - FASD , 2006

   Example of Individual Education Plan:
                  Student Profile                                                           Example of IEP (continued):

                                                                                                      STUDENT PROFILE
ASSESSMENT INFORMATION:
Formal Assessment: (Standard Scores)                                                             INFORMAL ASSESSMENT:
       Date       Assessment Name                 Comments/
                                               Recommendations                          (Classroom Based/Teacher Assessment)
                 Weschler                      Recommendations:                        Date                 Assessment                  Comments/
                                               - Small group language
       2003      Intelligence Scale for        instruction                                                     Name                 Recommendations
                 Children 111                  - Comprehension
                                               Strategies                                                Informal Teacher      Comprehension
                         (WISC)                Counsellor at school                June 2005             Assessment/           needs to be sup-
                                               recommended 2X weekly.            Reading/Writing         Observation           ported by activities
                                               Explicit teaching of strate-
                 Verbal SS-76                  gies for sensory overload                                                       prior, during and
                 Performance SS-98                                                                       Unit tests at Grade 6 after reading. Is
                                               - Visual calm down
                                               strategies                                                level                 working in a reme-
                                               - Social story folder                                                           dial literacy class in
                                               - Quiet place to ‘hang out’                                                     the afternoons
                                               for sensory overload
                                                                                   June 2005             Informal teacher           Enrolled in a Math
                 Bender Visual Motor           - Include in timetable —
                                               extra computer/and wood               Math                Assessment                 Mastery Skills
       2003      Integration —                 work electives                     Working at a           - Mastery unit tests       Program
                 * area of strength for Kobi
                                                                                 Grade 3/4 level
       2003      Weschler Individual           - Include extra scaffolding
                                               strategies for ‘inferential’           2005               Projects                   Excels in these
                 Achievement Test              comprehension                           PE                                           classes (has 2 block
                 Reading SS 90                 - Stress/Add a ‘Life Skills’         Woodwork                                        of PE) One block is
                 Math SS 70                    to Math Program
                                               - Money                              Computer                                        Physio — working
                 Writing SS 96
                                               - Banking                                                                            on weights
                                               - Accounting program
                                                                                               *************************
       2003      Peabody Picture               *See SLP handout
                                               Pre-teach vocabulary.                   Requires rigid routine/TA Support, and
                 Vocabulary Test
                 (Receptive
                                               Use as many visuals as                      accommodations in all areas
                                               possible
                 Language)                     Support “words with
                 SS 79                         double meanings”                                       ************************
                                               * Use Rewards Program

       2003      Referral to Asante
                 Centre for complete
                 assessment

  A2                                                                                                                                               A3
Talking About Special Education Volume II - FASD , 2006   Talking About Special Education Volume II - FASD , 2006


                                                                                                           AREAS OF NEED
CURRENT SKILL LEVELS:
R = Regular Program A = Adapted Program M = Modified                             ACADEMIC
                                                                                 Math Skills: money, time, accounting
   A       Reading
                                                                                 Reading for comprehension
   M       Math                                                                  Practical Writing Skills

   A       Writing                                                               BEHAVIOURAL
                                                                                 Protocol for managing behaviour outbursts
   A       Social Studies                                                        Strict routine to support success
   A       Science                                                               SOCIAL/EMOTIONAL
                                                                                 Self Esteem
   R       Physical Education
                                                                                 Confidence
   R       Art/Woodwork                                                          LANGUAGE COMMUNICATION
   R       Music                                                                 Build skills in receptive and expressive language

   A       Spelling                                                              PHYSICAL
                                                                                 Bilateral Hearing Loss (FM Systems in place)
   A       Listening
                                                                                 LIFE SKILLS
   A       Expressive Language                                                   Work towards Communications 11 and 12
                                                                                 Math Essentials/Accounting
Strengths: Athletic (enjoys PE); likes to be helpful; enjoys music,              Career Prep. And Job Support/ Work Experience
art and woodwork; creative; likes to make things; can be
independent with a visual schedule; enjoys structure and routine;                              LONG TERM GOALS/DREAMS/DESIRES
loves computers
                                                                                 To graduate Grade 12 and get a job.
Descriptors: Hard working; good sense of humour; can be                          To play on the Men’s Soccer Team after Grade 12
volatile/anger triggers; likes to be independent but has trouble
remembering; likes to have a concrete visual schedule; prints                        WHAT DO WE WANT KOBI TO ACCOMPLISH THIS YEAR?
neatly; can be easily stimulated i.e. sensory system overloads,                  •    To complete and master all literacy units
requires a consistent calming quiet place                                        •    To complete Grade 4 Saxon Math Program
Learns Best When: Has visual schedules for timetable and                         •    To follow his outlined visual schedules
routines; All program adaptations are in place; when feels                       •    To try to remember using polite words
respected; in a quiet environment; 1 on 1 for new concepts; has a                •    To use his color coded binders/bins in the resource room
Learning Assistance Block; When language is spoken slowly,                       •    To put his breakfast food/dishes away in the resource room
clearly, concretely and with few words (“get to the point)” with                 •    To continue to take weights class and PE Class
personal feelings left out                                                       •    To find his TA/Teacher when he feels he is “losing it”
Medical History: Bilateral hearing loss; exposure to alcohol                     •    To use the Resource Room as a calm place to rest
prenatally, chronic congestion; Overactive Sensory System (not                   •    To try to stay in his classes until they are finished
on medication at this time)                                                      •    If he feels tired, to go ask to go to the resource Room
                                                                                 •    Morning routine: 7:30 in Resource Room, makes own
School History: K—7 Pine Elementary                                                   breakfast, cleans up afterwards.
  A4                                                                                                                                         A5
Talking About Special Education Volume II - FASD , 2006          Talking About Special Education Volume II - FASD , 2006


                                GOAL CHART
                                                                                          Adaptations & Modifications
    Need               Goal:            Strategy and Team            Measurement of
  (6 areas )          Student             Responsibility                Progress
                                                                                          Adaptations/Accommodations needed for student to
                Kobi will:             CT’s will:                   CT will:              meet regular grade outcomes:
                - Complete level 20    - Follow Kobi’s              Graph Kobi’s pro-
                by next reporting      protocol for all classes     gress unit by unit                                                     demo/model processes/product
                time Oct. 28           - Use a concrete             - Liaise with RR      Accessibility:
                                                                                                   access to all areas of school           feedback immediate/frequent
                - Use LA time to       measure of time to           Teacher, to help                                                       practice guided/independent 
                complete assign-       help Kobi focus on           Kobi bring assign-             fire exits & routes 
Academic        ments if needed        assignments                  ments to RR for                furniture & storage                     multisensory (oral/experiential/
                                                                                                                                           written)
 Literacy       - Hand in all          - Chart his progress         completion support             health & professional care 
                                                                                                   parking lot, roads & walk-              memory (reduce/teach
                assignments into       so can visually see          - RR teacher will                                                      strategies)
                the RED “IN” BOX       his work completed           check in with                  ways 
                                                                                                   play areas & equipment                  pace quick/slow 
                                       - Support all program        Literacy Teacher                                                       short sessions/lessons 
                Work with TA to be     adaptations, literacy        and support when               showers, washrooms &
                                                                                                   fountains                               teach key concepts/vocabulary
                on time                strategies                   needed                                                                 other:
                                                                                                   transportation to and from
                                                                                                   school 
                Kobi will:             CT’s will:                   Anecdotal notes
                                                                                                   other: 
                                                                                                                                    Organizational & Study
                                       - Direct Kobi to use his                                                                     Strategies
                - Use his “calm        calm-down routines.
                                                                                          Assignments & Homework                           b.b. or chart reminders 
                down” visual sup-       - Allow him to leave        Positive phone                                                         class schedule/timetable 
                                                                                                   alternate assignments or
                port when he feels     the room if he               calls home                                                             clock/timer/watch
                                                                                                   format
                upset/angry            chooses, must go                                                                                    desk/locker/tote tray (personal)
                                                                                                   length and/or number
                - Go directly to the   directly to RR with TA
Behaviour       Resource Room          - Use of concrete            Record of behav-
                                                                                                   (decrease)                              furniture arrangement 
                                                                                                   partner or group                        routines for use of    materials 
                (RR) if he is not      measure of time              iour/solution work-                                                    student planner/home-school
                                                                                                   assignments
                managing his be-       - Use the same               sheets                                                                 book
                                                                                                   time allowed (increase) 
                haviour well           language, “remember                                                                                 teach organizational/study skills
                                                                                                   other:
                - Remember to use      your polite words”                                                                                  other:
                polite words/use       - Follow protocol, use                             Behaviour Management
                journal                of T charts                                                 consequences — clear/            Equipment & Specialized
                                                                                                   consistent                       Materials
               Kobi will: work with    TA will meet Kobi at         Visual attendance              expectations/rules —clear/              augmentative commun device
 Behaviour     his TA to get to        the first bell and walk      graph                          consistent                              Braille machine/materials 
Late for Class class on time           with him to class in                                        home-school program                     calculator (large keys/regular/
                                       time for second bell                                        outside agency support                  voice)
                                                                                                   reinforcement (class/group/             camera (Polaroid/digital/
                Kobi will:             CT’s (and TA’s) will:        CT will:                       individual)                             regular/video)
                                       - Graph progress,            - Graph Kobi’s                 school counselling program              computer/word processor 
                - Complete up to       Praise all efforts, liaise   progress unit by               student contract/goal                   computer printer/peripherals 
                level 14 by Oct. 28    with RR Teachers, RR         unit                           setting                                 fine/gross motor equipment
                                       Teachers will Liaise         - Liaise with RR               teach/assignments at skill              hearing aids/fm system
                - Attend all Math      with CT’s for work           Teacher to help                level                                   headphones/listening centre
                Classes                completion and focus         Kobi bring assign-             teach & reinforce social                Language Master & cards
                                       on task                      ments to RR for                skills 
     Math                                                                                                                                  magnifier/lenses
                                       - Use concrete               completion support             other:                                  overhead projector
                                       measures of time             - RR Teacher will
                                                                                                                                           reference books
                                       - Ensure all outlined        check in with         Teaching Strategies:                             Spell Checker/Grammar
                                       program adaptations          Literacy Teacher               advance organizers/key                  Checker
                                       are in place: calcula-       and support when               visuals
                                       tor, recipe cards,           needed                         alternate content/skills 
                                       calculation process, 1       - Home
                                       on 1 support to check        commun. once
A6                                     understanding                weekly to advise of                                                                              A7
                                                                    progress
Talking About Special Education Volume II - FASD , 2006    Talking About Special Education Volume II - FASD , 2006


Equipment & Specialized                        revision (first draft, sharing,
                                               revising, 2nd draft, sharing
Materials                                      3rd draft, polishing;, final,                                SUPPORT TEAM
        standing frame/walker
                                               publishing
        switches/adapted handles,
                                               Have student write ideas on
        etc
        tape recorder 
                                               post it notes and then rear-                   Role                    Participant             Contact
                                               range them to make an outline 
        wheelchair
                                               Teach keyboarding skills                                                 Name                Information
        other: _______________
                                               Use an outline and 2 column
Reading, Writing & Note                        notes for paragraph and essay
taking:                                        writing                                 Mother/Father
                                               Use graphic organizers
        alternate formats note tak-
                                               Use the dot procedure (work to
        ing: carbon copy/outline/
        photocopy/taped notes 
                                               the dot and get feedback)                   Teacher
                                               other: _________________
        alternate formats reading:
        Braille/enlarged print/rebus/
        tapes/videos                    Testing & Evaluation
        alternate formats writing:             alternate setting/time                      Principal
        computer/printing/word                 alternate test/format 
        process                                time (increase/short sessions)
        alternate materials/texts:             open book/take home exams
        easier reading level/parallel          oral (reader/scribe/tape)            Teacher Assistant
        unit                                   programmed learning 
        note taker, reader and/or              rewriting permitted                       (TA)
        scribe (parent/peer/staff/             Recognize and give credit for
                                               class participation 
        volunteer) 
                                               Review the grading process
                                                                                  Teacher/Hearing Imp.
        other: _______________
                                               before the test
Following Directions:                          provide examples of criteria for
        Provide only one or two                each letter grade
        directions at a time                   Allow student to retake test        Classroom Teacher
        Restate directions in clear            Teach Relaxation strategies                (CT)
        simple language                        Provide sample items at the
        Stand close to the student             beginning of the test 
        and gain eye contact before            Provide visual graphic cues as      Classroom Teacher
        giving directions                      the test directions change
        Provide visual support for             Repeat directions to the stu-
        directions (on students desk           dent once you have given them
        or on board                            to the class                        Classroom Teacher
                                               Use take home tests for
Increasing Written Input:                      practice
        Allow for a scribe or record           other: __________________
        responses on tape                                                          Classroom Teacher
        Establish the process for

KEY:
                                                                                      Resource Room
A = ADAPTED (Regular Grade Learning Outcomes w/ Accomm./Adapt.)
E/G = ENRICHED/GIFTED (i.e., Extended Learning Outcomes or                             Teacher (RR)
Advanced Level)
R = REGULAR (Grade Level Learning Outcomes: Content & Skills)                      Special Ed. Teacher
M = MODIFIED ('Substantially Different" from Regular)

  A8                                                                                                                                                A9
Talking About Special Education Volume II - FASD , 2006                                           Talking About Special Education Volume II - FASD , 2006

                                                                                                   SAMPLE PROTOCOL
               INDIVIDUAL EDUCATION PLAN                                                        ATTENTION ALL TEACHERS:
                                                                                     Date: _________ Student: Kobi Anderson — Grade 8
                 REVIEW DATE: __________
                                                                        Structure:
                                                                        Create a structured environment-includes choices and clear routines.
                       ACCOMPLISHMENTS                                  Supervise:
                                                                        Carefully supervise so the behaviour does not escalate into a situation that
                                                                        becomes unworkable.
                                                                        Simplicity
                                                                        Use clear simple language - stated briefly—leave personal feelings out of the
                                                                        conversation-leave out any verbal justifications, explanations.
                            GOAL REVIEW                                 Steps:
                                                                        Break down tasks into small steps, and teach each step through repetition, and
                                                                        social, verbal or appropriate Reward
                                                                        Context:
                                                                        Teach skills into the context in which the skills are to be used- be careful not to
                                                                        assume that the student will generalize from one concept to another, or understand
                         TRANSITION PLAN                                in which contexts the behaviour is appropriate and when it is not.
                                                                        Kobi may not be able to translate information into action- understand cause and
            Transition to Grade 8 , Plan begins _______                 effect. Kobi may not be able to take information learned from one situation and
                                                                        apply it to another.
                                                                        To repeat instructions can sometimes help but does not ensure compliance or
                                                                        understanding.
        BASELINE MEASURE DOCUMENTATION                                  Often problems are not behavioural, emotional, or environmental - they are
                                                                        neurological - damage to the brain.
   Baseline            Review #1           Review #2      End of Year   Situations need to be set up for a “win-win” as much as possible- confrontational or
   Measure                                                 Measure      punitive actions will not support the student well or provide for an ongoing positive
                                                                        relationship.
                                                                        Sometimes Kobi’s behaviour may seem to be willful behaviour, however this may
Reading Level                                                           not be the case and in most circumstances is the result of a disability and therefore
     16                                                                 we need to set up situations that will ensure that structures and routines are in
                                                                        place and external supports are in place to ensure success and safety.
                                                                        Chronological Age 10-11
                                                                        Developmental Age 6 in the areas of social skills, emotional maturity and concept
Math Level 12                                                           development.
                                                                        Auditory memory is weak. Please support Kobi with as many visual supports in the
                                                                        classroom as possible. Homework written on the board, and in his planner. TA
                                                                        may need to ensure this is done at the end of each class.
                                                                        Please send Kobi to the Resource Room if he is having problems adjusting to
  # of times                                                            changes in the classroom setting, or settling down.
 missed Math                                                            *** Kobi has a visual support for calming down-please prompt him to use this
    Class                                                               before he decides to leave the room.
                                                                        ***PLEASE LET KOBI OUT OF CLASS 2 MIN. BEFORE THE BELL. THIS WILL EN-
                                                                        SURE A SAFE AND INCIDENT FREE TRAVEL TO THE RESOURCE ROOM TO
                                                                        CHANGE BINDERS AND BOOKS FOR NEXT CLASS. PLEASE CALL MADELINE
   # of times                                                           POHLMANN “FIRST” CASE MANAGER/RESOURCE ROOM IF A SITUATION ARISES
    missed                                                              WHERE THE PRINCIPAL OR FAMILY ARE ASKED TO BE INVOLVED.
Literacy Class

  A10                                                                                                                                                A 11
Talking About Special Education Volume II - FASD , 2006                          Talking About Special Education Volume II - FASD , 2006


                                                                  FASD Neurocognitive Characteristics,
                                                                 Expectations, Secondary Behaviours and
                                                                     Examples of Accommodations
                                                               Primary                    “Fit” within           Interpretation
                                                             Behavioural                Environments:            of Behaviours
                                                            Characteristics                  Values           when Expectations
                                                                FASD                     Expectations              Are not met
                                                                                           Think fast,             Ignoring me,
                                                           Slow auditory pace,           Pay attention               Resistant
                                                               goes blank                 Stay on task              Personalize
                                                                                    Think fast, timed tests   Controlling, Avoidant
                          Appendix B                       Slow cognitive pace         Finish work within      Not trying, holding
                          Resources                           Doesn’t answer        allotted time/schedule    others up on purpose
                                                          Difficulty generalizing   Follow the rules, learn    Willful on purpose,
                                                          get the piece, not the          inferentially       intentional. He knew
                                                                   picture           “gets it by watching”      what the rule was
                                                                Dysmaturity:                                    Poor Social Skills
                                                             Developmentally            Act your age            Acting like a baby
                                                            younger than their         Be responsible             Inappropriate
                                                          age: 7.5 more like a 3       Be appropriate            Overprotective
                                                           year old & 15 more                                        parents
                                                             like a 10 year old
                                                                                     Learn the first time He/she doesn’t care
                                                           Memory problems           and remember from    — lazy, needs to try
                                                           “on days/off days”            day to day              harder
                                                            Sensory issues                                     Not trying
                                                            Over stimulated          Pay attention           Undisciplined
                                                             Overwhelmed,                Sit still              Off task,
                                                              distractible        Ignore distractions             ADD
                                                                                                            Not trying, Lazy
                                                              Easily fatigued           Keep up              Work Avoidant
                                                                                      Try harder              Unmotivated
                                                                  Impulsive          Think ahead                 Willful
                                                            inability to predict          Plan                Disobedient
                                                                 outcomes              Set goals             Inappropriate
                                                          acts fast—thinks slow Rein in impulses              Doesn’t care
                                                             Concrete thinker    Abstract, sit still pay   Lazy, unmotivated
                                                             Learns by doing     attention, listen/learn and/or poor parenting
                                                          Rigid, perseverance,      Stop when told!      Controlling, wants all
                                                            difficulty stopping/      Don’t resist         the power, bossy,
                                                           changing activities                                Oppositional

                                                                                                                                 B1
Talking About Special Education Volume II - FASD , 2006                    Talking About Special Education Volume II - FASD , 2006



Sources of Information on FASD in BC                      Alcohol and Drug Information and Referral Service
                                                          #202 - 3102 Main Street, Vancouver, B.C., V5T 3G7
To order Diane Malbin’s book:                             Toll-free: 1 - 800 - 663 - 1441
Trying Differently Rather Than Harder                     phone: (604) 660 - 9382 fax: (604) 660 - 9415
contact FASCETS, Inc at www.FASCETS.org
                                                          Information and referral to treatment services and
Website: http//fasal.aska.com/links-html                  agencies for those who are seeking assistance with
                                                          alcohol and other drug misuse.
Teaching Students with FASD
A complete manual for instruction online from Alberta     B.C. FAS Resource Society
Learning:http://www.education.gov.ag.ca/k_12/             Sunny Hill Health Centre for Children
specialneeds/fasd.asp.                                    3644 Slocan Street, Vancouver, B.C., V5M 3E8
                                                          (604) 465 - 8204
FAS Bookshelf — Books and Videos on FASD                  Project Office: #302 - 11965 Fraser Street,
604-942-2024                                              Maple Ridge, B.C. V2X 8H7
                                                          phone: (604) 465 - 5211
For Diagnosis and Assessment:
                                                          Information about support and services to families,
Sunnyhill Hospital for Children                           professionals and the broader community around
604-453-8314                                              prevention, intervention and treatment issues related to
http://www.sunnyhill.ca                                   alcohol and other drug related developmental
http://www.bcchf.ca/index/html                            disabilities.

Asante Centre for Fetal Alcohol Spectrum Disorder         BC Aboriginal Network on Disabilities Society
1-866-FAS-7101 (1-866-327-7101)                           1179 Kosapsum Crescent
Email: asalahub@asantecentre.org                          Victoria, B.C. V8X 7K7
Web: www.asantecentre.org                                 Toll free: 1 - 888 - 815 - 5511 or: (250) 381 - 7303

Canadian Guidelines for the diagnosis of FASD             Resources are available to First Nations parents,
http://www.cmha.ca/cai/content/full/172/5supply/F1        groups and educators, including videos, manuals,
(Adapted from Materials from the Provincial FAS/E         displays and      brochures dealing with FAS and the
Prevention Coordinator)                                   effects of alcohol on pregnancy.




   B2                                                                                                                      B3
Talking About Special Education Volume II - FASD , 2006                      Talking About Special Education Volume II - FASD , 2006



Prevention Source BC                                        and advocacy through support groups, one-on-one
2750 Commercial Drive, Vancouver, B.C. V5N 5P4              resource parents, and a lending library.
Toll free: 1 - 888 - 663 - 1880 phone: (604) 874 - 8452
                                                            FAS/E Information Service
Information service to residents of BC seeking              YWCA Crabtree Corner FAS/NAS Prevention Project
information about prevention, organizations, programs,      (604) 689 - 5463
materials and research in the area of substance abuse.      101 East Cordova Street, Vancouver, B.C. V6A 1K7
FAS/E Provincial Prevention Coordinator:                    phone: (604) 689 - 2808 fax: (613) 235 - 8101
(604) 875 - 2039
                                                            Canadian Centre on Substance Abuse
Women’s Health Centre                                       #300 - 75 Albert Street, Ottawa, Ontario, K1P 5E7
Room 501, 4500 Oak Street, Vancouver, B.C. V6H              Toll-free: 1 - 800 - 559 - 4514 or phone:
3N1                                                         (613) 235 - 4048
phone: (604) 875 - 3599
                                                            A national service that includes a list server for
Information on how to access information, resources,        discussion with other individuals interested in FAS/E.
expertise and services related to FAS/E. Helps with         E-mail message to list@ccsa.ca and type “join fastlink”
networking among relevant agencies, and setting up          in the message. Offers educational workshops, a
community based initiatives.                                resource lending library, a peer support group for
                                                            moms with children with FAS/NAS and information and
Society of Special Needs Adoptive Parents (SNAP)            crisis counselling. Posters and pamphlets are available,
FAS/E Support Network                                       as well as guides to prevention, caring for children and
(604) 589 - 8438 e-mail: fasnet@istar.ca                    a guide to resources.
151 - 10090 152nd Ave., Suite 187,
Surrey, B.C. V3R 8X8                                        FAS Early Intervention Consultant
phone: (604) 589 - 1854 fax: (604) 687 - 3364               Aurora Centre 4500 Oak Street, 5th floor,
#1150 - 409 Granville Street, Vancouver, B.C. V6C 1T2       Vancouver, B.C. V6H 3N1
Toll-free: 1 - 800 - 663 - 7627 phone: (604) 687 - 3114     phone: (604) 875 - 2017

Information on support, consultation and advocacy           Works with health/social providers on early intervention
services for individuals, families, professionals and the   approaches with women at risk. Develops policy
broader community around prevention, intervention and       regarding treatment and disseminates information on
treatment issues. Assists special needs adoptive            early intervention.
families through mutual support, information sharing

   B4                                                                                                                        B5
Copyright ©

The First Nations Education Steering Committee
                      and
     The First Nations Schools Association
                      2006




     For additional copies, please write to:

       Suite #113-100 Park Royal South
             West Vancouver, BC
                   V7T 1A2

            Email: fnesc@fnesc.ca

           Or download a copy at:
               www.fnsa.ca

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Fasd Booklet Final Web

  • 1.
  • 2. This booklet was written to provide useful information about Fetal Alcohol Spectrum Disorder (FASD), and to focus on an approach and an attitude when working with individuals affected by FASD. If you have further questions about FASD or would like more information, please contact: First Nations Special Education at: 1.877.422.3672 This handbook was updated by Madeline Price Desktop Design by Brent Scout © 2006 FNESC
  • 3. TABLE OF CONTENTS Talking About Special Education Volume Inside: Introduction……………………………………….. 2 What is FASD?…………………………………... 3 FASD Identification……………………………… 4 Understanding People with FASD…………….. 5 “Trying Differently Rather Than Harder” Understanding the role of the brain in FASD and Basic Needs of Persons with FASD…………… 8 the shift in recognizing the difference between The Ideal Classroom…………………………….. 9 non-competence and non compliance sets the stage for Trying Differently Rather than Harder” Individual Education Plan (IEP)………………… 10 Adapted from the book: Paradigm Shifts and FASD……………………... 11 Trying Differently Rather Than Harder (Diane Malbin M.S.W. 2nd Edition) FASD in the Classroom…………………………. 12 Fetal Alcohol Syndrome and Alcohol-Related Neurodevelopmental Disorders. 2002 Teaching Students with FASD/FAE…………… 13 Design Concrete Measures of Time…………... 14 The T Chart………………………………………. 15 Supporting Behavioural Changes…………….. 16 Trying Differently………………………...…….... 17 Appendices ……………………………………... 19 A - An Example of an IEP B - Resources
  • 4. What is Fetal Alcohol Spectrum Disorder? Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 Introduction This is an updated handbook from the series of Fetal Alcohol Spectrum Disorder (FASD) is an umbrella informational handbooks prepared by the First Nations term that refers to a range of birth defects caused by Education Steering Committee (FNESC) and the First drinking during pregnancy. Fetal Alcohol Syndrome Nations Schools Association (FNSA). This handbook (FAS) is a medical diagnosis and has 4 key features: follows from the general discussion of special needs included in Talking About Special Education Volume I, • prenatal exposure to alcohol which includes issues such as parental involvement, • growth deficiency special needs identification, individual education plans, • certain facial characteristics and advocacy. • brain damage Several sources of information were used in the *Although the term Fetal Alcohol Effects (FAE) is being development of this publication. FNESC and the FNSA phased out, it still appears in the literature usually would like to gratefully acknowledge the following work referred to as Alcohol Related Neurodevelopmental as most of this information in this booklet comes from Disorders (ARND). these sources: Partial FAS (pFAS) - confirmed maternal alcohol Trying Differently Rather Than Harder 2nd Edition exposure - has some but not all of the physical signs of Diane Malbin, M.S.W. — Director of FASCETS (Fetal FAS (learning and behaviour difficulties). Alcohol Syndrome Consultation, Education and Training Services www.FASCETS.org Alcohol-Related Birth Defects (ARBD) - confirmed maternal alcohol exposure - displays some physical Submissions from Deb Evenson — Project FACTS anomalies resulting from prenatal alcohol exposure, for http://fasalaska.com/links-html example heart, skeletal, vision, hearing, and fine and gross motor problems. Aboriginal Nurses Association of Canada (ANAC). 1997. It Takes a Community. A Resource Manual for Alcohol Related Neurodevelopmental Disorders Community-Based Prevention of Fetal Alcohol (ARND) — confirmed alcohol exposure — refers to the Syndrome. variable range of central nervous system dysfunctions Contact the ANAC at: 192 Bank Street, Ottawa, ON that are associated with alcohol consumption during K2P 1W8, phone (613) 236 - 3373, pregnancy. ARND is demonstrated by learning e-mail Info@anac.on.ca difficulties, poor impulse control, poor social skills, and problems with memory, attention and judgment. Proceedings of the 2005 FASD National Conference Page 2 Page 3
  • 5. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 Understanding People With FASD (This larger group is now believed to be at greater risk for failure since they are often not seen as having a Infants disability). Infants may experience a range of characteristics. People with ARND may have significant brain Severely affected infants may require hospitalization differences, yet their behaviours may be the only from disorders affecting major organs. Infants with symptoms of their disability. ARND is often referred to FASD are also prone to infections, and they generally as an “invisible handicapping condition” develop more slowly than other infants. They may have (Streissguth 1996). difficulty sleeping, sucking and swallowing, keeping food down, gaining weight, and may be irritable and FASD Identification unpredictable. The diagnosis of Fetal Alcohol Syndrome requires the Be patient, and keep their level of stimulation low. presence of measurable physical characteristics in (Adapted from Aboriginal Nurses Association, 1997) addition to symptoms of brain damage and is generally made by a multidisciplinary team. It is the only alcohol- related diagnosis that may be make in the absence of a Young Children confirmed maternal alcohol history. From toddler through preschool, children with FASD The majority of people prenatally exposed to alcohol may be slow to develop, and if they are severely have no external physical characteristics, since the affected they may continue to have health problems facial features of FAS result from specific timing of due to organ damage. prenatal alcohol exposure — during days 18-21 of gestation. However, even though a person with FASD Delays in their speech and vocabulary may be has no physical features, their brain dysfunction may noticeable in preschool years, and referral to therapy be as severe as for full Fetal Alcohol Syndrome. and special needs preschools may be considered. Identification for this larger group with FASD is crucial Children with FASD may be clumsy and accident prone since they are at greater risk for failure due to the due to late development of their motor skills, and their greater invisibility of their disability (Clarren et al; 1998; learning through experience, seeing and hearing may Riley, 2003, Streissguth et al. 1996). also be delayed. They may rely more on touch to explore their surroundings. Page 4 Page 5
  • 6. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 Understanding People With FASD Adolescents and Young Adults with FASD Young Children (continued) Youth with FASD and their caregivers are dealing with normal teenage issues plus the concerns of FASD. Over-stimulation or changes in daily routine can lead to tantrums and destructive behaviour, and interacting Youth with FASD can be easily misled, and may need with other children may be a problem. social skills interventions, a supervised environment and appropriate school programming. An assessment may be needed to determine what special services are needed to ensure a successful Affected youth may have problems making friends transition to school. because of unacceptable or immature behaviour, and they may have difficulty in communicating and understanding instructions. School Age Children with FASD Abstract thinking is slow to develop, and their literacy There are physical, learning and behavioural difficulties and numeracy skills may be below their age and grade common to most children with FASD. level. Their speech and language development may be Attention deficit and hyperactivity will affect learning delayed. and relationships with peers. Their excess energy should be directed. They may have problems mentally “registering” information, and once information is learned it may take Some affected youth become skilled in individual sports more time to be “retrieved.” like swimming or running, and sports can help to build self-esteem and social skills. Their ability to understand consequences may be impaired, and learning disabilities are common. The youth, however, may have difficulty with rules, daily living skills, managing money and time; therefore, The child may have a short attention span, life skills must be reinforced from an early age. under-developed motor skills and reasoning, and learning disabilities resulting in inappropriate behaviour. Page 6 Page 7
  • 7. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 Basic Needs of Persons Living with FASD The Ideal Classroom (Adapted from Aboriginal Nurses Association, 1997) • Structured with flexibility The person affected with FASD needs nurturing, • Visual supports understanding and support. • Little clutter A stable home, responsive school system, supporting The Ideal Teacher Interaction friends and caring community are also important aspects of nurturing the child. • Warm and accepting • Consistent in behavioural expectations The person with FASD needs to feel that he or she is a • Frequent positive feedback based on realistic expec- part of the community. Self-esteem and acceptance are tations critically important. • Regular communications between parent and school • An Individual Education Plan outlining strengths with Parents of children with FASD need connections with realistic and achievable goals in place. the community, other parents, and services that provide family centred and culturally sensitive support. Teaching Methods in the Ideal Classroom Parents may need help dealing with addictions, • Emphasis on collaborative problem solving poverty, low self-esteem, and limited work and • Emphasis on explicit teaching (make it as concrete parenting skills. Caregivers should be respectful and as possible) non-judgmental toward families living with FAS/E and • Programs adaptations (example: more time allowed acknowledge that the parents are performing a for completion of in-class demanding job. • Assignments - less written work, visual supports, use of a computer) The community social safety net should meet the basic needs of family members and provide early assistance to the child’s family. Families should have access to appropriate assessments and diagnoses and be empowered to contribute to all discussions about their children. Page 8 Page 9
  • 8. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 Individual Education Plan (IEP) Paradigm Shifts and FASD Taken from Building Strengths, Creating Hope — Alberta The Individual Education Plan is the cornerstone to the Learning. For a complete manual for instruction online at: http:// educational program of many students with FASD. www.education.gov.ab.ca/K_12/specialneeds/fasd.asp Students with FASD can be successful when realistic From seeing the child as To understanding the child as and effective approaches are used. There is much Won’t Can’t hope for this population! Bad, annoying Frustrated, challenged When realistic and achievable goals are designed Lazy, unmotivated Trying hard, tired of failing Lying Story telling to compensate for based on previous and appropriate assessment, the memory, filling in the blanks stage is set for student growth and success. Fussy Oversensitive Acting young, babied Being younger The successful IEP is collaborative in nature, and Trying to get attention Needing contact, support involves all team members (teacher, teacher Inappropriate Displaying behaviours of a younger child assistants, family members, the student, and others Doesn’t try Exhausted or can’t get started working with the student in their educational program). Mean Defensive, hurt The IEP is designed to set the student up for success. Doesn’t care Can’t show feeling It focuses on the student strengths, and incorporates Refuses to sit still Over stimulated support in the areas of student need. Resisting Doesn’t get it Trying to annoy me Can’t remember Showing off * If you would like to have FNESC Special Education Support demonstrate and facilitate an IEP at your school, please call or email Kelly From Personal Feelings of: To Feelings of: Kitchen at 1.877.422.3672 or kellyk@fnesc.ca Hopelessness Hope Fear Chaos, confusion Understanding If you have questions related to the IEP please email or Power struggles Organization, comprehension call Madeline Price at 1. 877.422.3672, Isolation Working with madelinep@fnesc.ca or call our Toll Free resource Line Networking, collaboration at 1.877.547.1919 or email Lisa Ellis at lisae@fnesc.ca Professional shifts from: To: ***** See Appendix for Example of IEP ***** Stopping behaviours Preventing Problems Behaviour Modification Modeling, using cues Changing people Changing environments Page 10 Page 11
  • 9. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 When teaching students with FAS/FAE... FASD in the Classroom (Adapted from FAS/E Support Network 604.576.9911 Remove charts, maps, etc. after use or email info@fetalalcohol.com Break down work into small pieces In group activities, pair a FAS/E child with a high tolerance child When teaching students with FAS/FAE, try the Have the same teacher, Teacher aide, assistant all following: year  Teach memory strategies Provide order!!! Control interruptions of the classroom Keep a routine oriented classroom Do not allow any talking-out with out hands up  Provide a highly structured environment Use homework books with parents, making the Build in transition periods  teacher and parents responsible for the books  Make areas of the room clearly defined by Clean out the child’s desk with them at least once activity (wall decorations should reflect only what weekly goes on in that area) Use a wide spaced paper Use pink highlighters, not yellow Put as little as possible on the walls Find a way to provide at least some lunch hour and Keep colour to a minimum  recess supervision Put desks in rows—groupings do not work  Keep any time out very short Put the child directly across from speaker for Supervise the child when going from one place to eye contact another  Use uncluttered worksheets Use open book tests with the areas being tested Give immediate feedback on assignments highlighted Keep a posted schedule for the day’s activities Limit homework to a reasonable amount Ask visitors to the classroom to arrive on time Allow the student more time to respond to questions  Flick the classroom lights to get attention  Try to have all people who interact with the child use Test one on one for knowledge, not attention the same language to mean the same thing Give thought to developing a peer monitoring Use redirects—”this is your”…”this is where it program goes” After elementary school, emphasize life skills and Plan ahead for special events and keep them vocational training infrequent  Don’t personalize behaviour Break up concentration activities with physical Use concrete measures of time (see next page) activities Teach explicitly, never assume the student will get it Store books, materials, etc. by type, not size (see T chart—Page 26) Label shelves and cupboards with words and Listen to parents! They often know what works best pictures/symbols Page 12 Page 13
  • 10. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 HOW TO DESIGN A CONCRETE MEASURE The T Chart OF TIME T Chart’s can make rules more concrete and visual. This is an example of a T Chart for a high school Many students have great difficulty working on an student who could read but could not remember how to assignment to completion — sometimes this is leave the breakfast area in the resource room clean. because they cannot grasp the measure of time and don’t know when they will be finished. Rule: Breakfast area is clean after breakfast ☺ Time is often a difficult and abstract concept to grasp. Sounds like: Looks like: A concrete measure of time can help. *Good Job! For younger kids paper chains work well — each part of the chain can represent 1 minute — the task could be 5 or 10 minutes and at each minute one link is taken off — this can be attached to the board at the front of the room or on the student’s desk. Teacher Assistants • can help with this support. * insert a digital photo of For more sophisticated students — the teacher may •the real-life situation Dishes in cupboard Teachers and Teacher’s give them 30 minutes on task work. The teacher could • Knives, forks and Assistants will be smiling count down the time by 5’’s and write it on the board. spoons in tray and saying: • Cereal put away in cup- There are many creative ways to use concrete board “GOOD JOB KOBI, I • Bread bag has clip on it REALLY LIKE THE WAY measures of time. Egg timers work and can be placed YOU CLEANED UP on a student’s desk, or a big one on the teachers desk. • Bread is put in the cup- board EVERYTHING ON THE Timers with bells can work as well. COUNTER, ON THE • Milk is in the fridge TABLE AND ON THE Sometimes students need to know that they can have a • Counters are wiped FLOOR!” break after they have successfully completed a certain and shiny amount of time on task — so you can pair time on task • Floor does not have * insert photo of student with 5 minutes of time that the student can have anything on it working personally — whatever works to make the student successful and able to complete time on task! Page 14 Page 15
  • 11. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 Trying Differently Rather Than Harder — Supporting Behavioral Changes By Supporting Behavioural Changes by Recognizing Cognitive Differences Recognizing Cognitive Differences By Diane Malbin — FACETS Inc. www.FASCETS.ORG A Neurobehavioural Approach (Taken from the 2005 Alcohol Spectrum DisorderNational Recent studies have shown the importance of linking Conference — Equality of Access: Rights and the Right brain damage with behaviour and communication to Thing To Do) improve outcomes for students with FASD. Parents and teachers tend to try harder, using good Brain damage causes behavioural and communication techniques, to change behaviours. symptoms. Good techniques that work with other children may Our Attitudes and Approach in working with students simply not work for people with FASD. Paradoxically, with FASD will make a difference. their behaviours change as a function of changes in the environment. In other words we can set these individuals up for success if we adapt the environment What Interventions are a poor fit? to ensure better outcomes. 1. Accept that the person has an invisible physical disability. Interventions based on changing behaviour symptoms Establish relationship. have not worked. Traditional methods of teaching behaviour have often been unsuccessful. 2. Clarify your needs, feelings, resources and supports. 3. As with other more obvious physical handicapping Techniques based on “learning theory” which include conditions, evaluate environments for their “goodness of behaviour modification techniques to eliminate or fit” and adapt /modify environments as appropriate to change behaviour often make things worse. maximize potentials. Recognize which elements of environments may be posing undue challenges, chronic frustrations...or be inappropriate. Adjust accordingly. These approaches do not include a conscious recognition of brain dysfunction. 4. Ask the “what if” questions and continue to explore 5. Identify strengths, interests, and work through these. 6. Create climates characterized by structure rather than control. 7. Control tends to be top-down, other-initiated, set up power struggles. Page 16 Page 17
  • 12. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 8. Structure is safe, respectful, invites participation, Chart establishes a “with” “not at” relationship and values the By Diane Malbin person’s input for developing solutions. FASCETS — WWW.FASCETS.ORG 9. Our challenge in part is to recognize the articulate learning Environmental abilities we take for granted, i.e. Inferential learning, Standard Secondary Accommodations to generalizing information, linking words with action, and to Interventions Behaviours Prevent Challenging then clarify whether a discrepancy exists between Behaviours apparent ability and actual ability. Talk fast Anxiety Slow down Therapy Frustration Give time 10. Observe patterns; consciously rethink events. Recall that Punish Shut down Adjust workload there may be a delayed reaction from the time of stressor Take away privileges Anxiety Give time, Slow down and acting out behaviour. A behaviour at home that Shame Frustration Reduce work load apparently occurs in response to a request to do a chore Ridicule Tantrums Accept slow pace may actually relate to a frustration that occurred at school, Fear Accept need to or with friends. Think broader context, bigger picture. Punish Frustration re-teach a concept in Anger different settings 11. Depersonalize. Reframe perceptions, shifting from Teach age-based Think younger, thinking “willful” to considering “organic” component, or skills, Punish Lonely Establish develop- possible gaps in ability. Shift from thinking “won’t” to “inappropriate” Isolated mentally appropriate understanding “can’t.” behaviours Depression expectations 12. Work to 90% success. Break down tasks into small steps Punish Anxiety, fear, Recognize and allow and check for completion and comprehension prior to Ground No confidence, for variability adding more tasks. These may gradually be expanded Shame Erode self-esteem Prevent anxiety with pattern development and maturity. Punish, More work Agitation, overactive, Evaluate the Medicate avoidance, anger, environment 13. Recognize that individual needs may be at direct odds to No Recess anxiety, tantrums Adjust accordingly environmental constraints. Difficult decisions may be Provide breaks necessary. Punish Anger Adjust workload 14. Consider: There’s always logic to the behaviour. It’s our More work Tantrums Provide breaks & snacks challenge to understand the context and recognize the potential role of “brain damage.” Prevent problems Punish Avoidance Build on strengths 15. Specifically include the person with FASD in the Defiance Use visual cues strategizing or problem solving process. Choose words More hours on Burnout Provide Kinesthetic such as “show me” or “How” rather than “why” to invite homework, No recess Shut down Experiential Relational input. Therapy Give up options for learning 16. Keep it concrete, specific, and simple. Interrupt Resistance Adjust workload to Assert control Anger achieve closure 17. Always consider the neurological potential. “Think Require transitions Big Tantrums Provide time younger”, and remember “Fair is not same.” Page 18 Page 19
  • 13. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 APPENDICES 1: Example of an IEP ELEMENTARY SCHOOL Phone: Fax: Individual Education Plan YEAR 2005-2006 Appendix A Example of an IEP Student: Kobi Anderson DATE OF IEP MEETING: June 11, 2005 BIRTH DATE: September 4th, 1994 AGE: 11 GENDER M MAIL ADDRESS: Box 2220 Sechelt BC VON 3AO GRADE: 8 PHONE: 604-885-9039 PARENT/GUARDIAN: Victor and Gloria Anderson School: Pine Elementary IEP Year 2005-2006 Student: Kobi Anderson A1
  • 14. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 Example of Individual Education Plan: Student Profile Example of IEP (continued): STUDENT PROFILE ASSESSMENT INFORMATION: Formal Assessment: (Standard Scores) INFORMAL ASSESSMENT: Date Assessment Name Comments/ Recommendations (Classroom Based/Teacher Assessment) Weschler Recommendations: Date Assessment Comments/ - Small group language 2003 Intelligence Scale for instruction Name Recommendations Children 111 - Comprehension Strategies Informal Teacher Comprehension (WISC) Counsellor at school June 2005 Assessment/ needs to be sup- recommended 2X weekly. Reading/Writing Observation ported by activities Explicit teaching of strate- Verbal SS-76 gies for sensory overload prior, during and Performance SS-98 Unit tests at Grade 6 after reading. Is - Visual calm down strategies level working in a reme- - Social story folder dial literacy class in - Quiet place to ‘hang out’ the afternoons for sensory overload June 2005 Informal teacher Enrolled in a Math Bender Visual Motor - Include in timetable — extra computer/and wood Math Assessment Mastery Skills 2003 Integration — work electives Working at a - Mastery unit tests Program * area of strength for Kobi Grade 3/4 level 2003 Weschler Individual - Include extra scaffolding strategies for ‘inferential’ 2005 Projects Excels in these Achievement Test comprehension PE classes (has 2 block Reading SS 90 - Stress/Add a ‘Life Skills’ Woodwork of PE) One block is Math SS 70 to Math Program - Money Computer Physio — working Writing SS 96 - Banking on weights - Accounting program ************************* 2003 Peabody Picture *See SLP handout Pre-teach vocabulary. Requires rigid routine/TA Support, and Vocabulary Test (Receptive Use as many visuals as accommodations in all areas possible Language) Support “words with SS 79 double meanings” ************************ * Use Rewards Program 2003 Referral to Asante Centre for complete assessment A2 A3
  • 15. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 AREAS OF NEED CURRENT SKILL LEVELS: R = Regular Program A = Adapted Program M = Modified ACADEMIC Math Skills: money, time, accounting A Reading Reading for comprehension M Math Practical Writing Skills A Writing BEHAVIOURAL Protocol for managing behaviour outbursts A Social Studies Strict routine to support success A Science SOCIAL/EMOTIONAL Self Esteem R Physical Education Confidence R Art/Woodwork LANGUAGE COMMUNICATION R Music Build skills in receptive and expressive language A Spelling PHYSICAL Bilateral Hearing Loss (FM Systems in place) A Listening LIFE SKILLS A Expressive Language Work towards Communications 11 and 12 Math Essentials/Accounting Strengths: Athletic (enjoys PE); likes to be helpful; enjoys music, Career Prep. And Job Support/ Work Experience art and woodwork; creative; likes to make things; can be independent with a visual schedule; enjoys structure and routine; LONG TERM GOALS/DREAMS/DESIRES loves computers To graduate Grade 12 and get a job. Descriptors: Hard working; good sense of humour; can be To play on the Men’s Soccer Team after Grade 12 volatile/anger triggers; likes to be independent but has trouble remembering; likes to have a concrete visual schedule; prints WHAT DO WE WANT KOBI TO ACCOMPLISH THIS YEAR? neatly; can be easily stimulated i.e. sensory system overloads, • To complete and master all literacy units requires a consistent calming quiet place • To complete Grade 4 Saxon Math Program Learns Best When: Has visual schedules for timetable and • To follow his outlined visual schedules routines; All program adaptations are in place; when feels • To try to remember using polite words respected; in a quiet environment; 1 on 1 for new concepts; has a • To use his color coded binders/bins in the resource room Learning Assistance Block; When language is spoken slowly, • To put his breakfast food/dishes away in the resource room clearly, concretely and with few words (“get to the point)” with • To continue to take weights class and PE Class personal feelings left out • To find his TA/Teacher when he feels he is “losing it” Medical History: Bilateral hearing loss; exposure to alcohol • To use the Resource Room as a calm place to rest prenatally, chronic congestion; Overactive Sensory System (not • To try to stay in his classes until they are finished on medication at this time) • If he feels tired, to go ask to go to the resource Room • Morning routine: 7:30 in Resource Room, makes own School History: K—7 Pine Elementary breakfast, cleans up afterwards. A4 A5
  • 16. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 GOAL CHART Adaptations & Modifications Need Goal: Strategy and Team Measurement of (6 areas ) Student Responsibility Progress Adaptations/Accommodations needed for student to Kobi will: CT’s will: CT will: meet regular grade outcomes: - Complete level 20 - Follow Kobi’s Graph Kobi’s pro- by next reporting protocol for all classes gress unit by unit demo/model processes/product time Oct. 28 - Use a concrete - Liaise with RR Accessibility: access to all areas of school  feedback immediate/frequent - Use LA time to measure of time to Teacher, to help practice guided/independent  complete assign- help Kobi focus on Kobi bring assign- fire exits & routes  Academic ments if needed assignments ments to RR for furniture & storage  multisensory (oral/experiential/ written) Literacy - Hand in all - Chart his progress completion support health & professional care  parking lot, roads & walk- memory (reduce/teach assignments into so can visually see - RR teacher will strategies) the RED “IN” BOX his work completed check in with ways  play areas & equipment  pace quick/slow  - Support all program Literacy Teacher short sessions/lessons  Work with TA to be adaptations, literacy and support when showers, washrooms & fountains  teach key concepts/vocabulary on time strategies needed other: transportation to and from school  Kobi will: CT’s will: Anecdotal notes other:  Organizational & Study - Direct Kobi to use his   Strategies - Use his “calm calm-down routines. Assignments & Homework b.b. or chart reminders  down” visual sup- - Allow him to leave Positive phone class schedule/timetable  alternate assignments or port when he feels the room if he calls home clock/timer/watch format upset/angry chooses, must go desk/locker/tote tray (personal) length and/or number - Go directly to the directly to RR with TA Behaviour Resource Room - Use of concrete Record of behav- (decrease) furniture arrangement  partner or group routines for use of materials  (RR) if he is not measure of time iour/solution work- student planner/home-school assignments managing his be- - Use the same sheets book time allowed (increase)  haviour well language, “remember teach organizational/study skills other: - Remember to use your polite words” other: polite words/use - Follow protocol, use Behaviour Management journal of T charts consequences — clear/ Equipment & Specialized consistent  Materials Kobi will: work with TA will meet Kobi at Visual attendance expectations/rules —clear/ augmentative commun device Behaviour his TA to get to the first bell and walk graph consistent Braille machine/materials  Late for Class class on time with him to class in home-school program calculator (large keys/regular/ time for second bell outside agency support  voice) reinforcement (class/group/ camera (Polaroid/digital/ Kobi will: CT’s (and TA’s) will: CT will: individual) regular/video) - Graph progress, - Graph Kobi’s school counselling program  computer/word processor  - Complete up to Praise all efforts, liaise progress unit by student contract/goal computer printer/peripherals  level 14 by Oct. 28 with RR Teachers, RR unit setting  fine/gross motor equipment Teachers will Liaise - Liaise with RR teach/assignments at skill hearing aids/fm system - Attend all Math with CT’s for work Teacher to help level headphones/listening centre Classes completion and focus Kobi bring assign- teach & reinforce social Language Master & cards on task ments to RR for skills  Math magnifier/lenses - Use concrete completion support other: overhead projector measures of time - RR Teacher will reference books - Ensure all outlined check in with Teaching Strategies: Spell Checker/Grammar program adaptations Literacy Teacher advance organizers/key Checker are in place: calcula- and support when visuals tor, recipe cards, needed alternate content/skills  calculation process, 1 - Home on 1 support to check commun. once A6 understanding weekly to advise of A7 progress
  • 17. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 Equipment & Specialized revision (first draft, sharing, revising, 2nd draft, sharing Materials 3rd draft, polishing;, final, SUPPORT TEAM standing frame/walker publishing switches/adapted handles, Have student write ideas on etc tape recorder  post it notes and then rear- Role Participant Contact range them to make an outline  wheelchair Teach keyboarding skills  Name Information other: _______________ Use an outline and 2 column Reading, Writing & Note notes for paragraph and essay taking: writing Mother/Father Use graphic organizers alternate formats note tak- Use the dot procedure (work to ing: carbon copy/outline/ photocopy/taped notes  the dot and get feedback) Teacher other: _________________ alternate formats reading: Braille/enlarged print/rebus/ tapes/videos  Testing & Evaluation alternate formats writing: alternate setting/time  Principal computer/printing/word alternate test/format  process time (increase/short sessions) alternate materials/texts: open book/take home exams easier reading level/parallel oral (reader/scribe/tape)  Teacher Assistant unit programmed learning  note taker, reader and/or rewriting permitted (TA) scribe (parent/peer/staff/ Recognize and give credit for class participation  volunteer)  Review the grading process Teacher/Hearing Imp. other: _______________ before the test Following Directions: provide examples of criteria for Provide only one or two each letter grade directions at a time  Allow student to retake test Classroom Teacher Restate directions in clear Teach Relaxation strategies  (CT) simple language  Provide sample items at the Stand close to the student beginning of the test  and gain eye contact before Provide visual graphic cues as Classroom Teacher giving directions the test directions change Provide visual support for Repeat directions to the stu- directions (on students desk dent once you have given them or on board to the class Classroom Teacher Use take home tests for Increasing Written Input: practice Allow for a scribe or record other: __________________ responses on tape Classroom Teacher Establish the process for KEY: Resource Room A = ADAPTED (Regular Grade Learning Outcomes w/ Accomm./Adapt.) E/G = ENRICHED/GIFTED (i.e., Extended Learning Outcomes or Teacher (RR) Advanced Level) R = REGULAR (Grade Level Learning Outcomes: Content & Skills) Special Ed. Teacher M = MODIFIED ('Substantially Different" from Regular) A8 A9
  • 18. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 SAMPLE PROTOCOL INDIVIDUAL EDUCATION PLAN ATTENTION ALL TEACHERS: Date: _________ Student: Kobi Anderson — Grade 8 REVIEW DATE: __________ Structure: Create a structured environment-includes choices and clear routines. ACCOMPLISHMENTS Supervise: Carefully supervise so the behaviour does not escalate into a situation that becomes unworkable. Simplicity Use clear simple language - stated briefly—leave personal feelings out of the conversation-leave out any verbal justifications, explanations. GOAL REVIEW Steps: Break down tasks into small steps, and teach each step through repetition, and social, verbal or appropriate Reward Context: Teach skills into the context in which the skills are to be used- be careful not to assume that the student will generalize from one concept to another, or understand TRANSITION PLAN in which contexts the behaviour is appropriate and when it is not. Kobi may not be able to translate information into action- understand cause and Transition to Grade 8 , Plan begins _______ effect. Kobi may not be able to take information learned from one situation and apply it to another. To repeat instructions can sometimes help but does not ensure compliance or understanding. BASELINE MEASURE DOCUMENTATION Often problems are not behavioural, emotional, or environmental - they are neurological - damage to the brain. Baseline Review #1 Review #2 End of Year Situations need to be set up for a “win-win” as much as possible- confrontational or Measure Measure punitive actions will not support the student well or provide for an ongoing positive relationship. Sometimes Kobi’s behaviour may seem to be willful behaviour, however this may Reading Level not be the case and in most circumstances is the result of a disability and therefore 16 we need to set up situations that will ensure that structures and routines are in place and external supports are in place to ensure success and safety. Chronological Age 10-11 Developmental Age 6 in the areas of social skills, emotional maturity and concept Math Level 12 development. Auditory memory is weak. Please support Kobi with as many visual supports in the classroom as possible. Homework written on the board, and in his planner. TA may need to ensure this is done at the end of each class. Please send Kobi to the Resource Room if he is having problems adjusting to # of times changes in the classroom setting, or settling down. missed Math *** Kobi has a visual support for calming down-please prompt him to use this Class before he decides to leave the room. ***PLEASE LET KOBI OUT OF CLASS 2 MIN. BEFORE THE BELL. THIS WILL EN- SURE A SAFE AND INCIDENT FREE TRAVEL TO THE RESOURCE ROOM TO CHANGE BINDERS AND BOOKS FOR NEXT CLASS. PLEASE CALL MADELINE # of times POHLMANN “FIRST” CASE MANAGER/RESOURCE ROOM IF A SITUATION ARISES missed WHERE THE PRINCIPAL OR FAMILY ARE ASKED TO BE INVOLVED. Literacy Class A10 A 11
  • 19. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 FASD Neurocognitive Characteristics, Expectations, Secondary Behaviours and Examples of Accommodations Primary “Fit” within Interpretation Behavioural Environments: of Behaviours Characteristics Values when Expectations FASD Expectations Are not met Think fast, Ignoring me, Slow auditory pace, Pay attention Resistant goes blank Stay on task Personalize Think fast, timed tests Controlling, Avoidant Appendix B Slow cognitive pace Finish work within Not trying, holding Resources Doesn’t answer allotted time/schedule others up on purpose Difficulty generalizing Follow the rules, learn Willful on purpose, get the piece, not the inferentially intentional. He knew picture “gets it by watching” what the rule was Dysmaturity: Poor Social Skills Developmentally Act your age Acting like a baby younger than their Be responsible Inappropriate age: 7.5 more like a 3 Be appropriate Overprotective year old & 15 more parents like a 10 year old Learn the first time He/she doesn’t care Memory problems and remember from — lazy, needs to try “on days/off days” day to day harder Sensory issues Not trying Over stimulated Pay attention Undisciplined Overwhelmed, Sit still Off task, distractible Ignore distractions ADD Not trying, Lazy Easily fatigued Keep up Work Avoidant Try harder Unmotivated Impulsive Think ahead Willful inability to predict Plan Disobedient outcomes Set goals Inappropriate acts fast—thinks slow Rein in impulses Doesn’t care Concrete thinker Abstract, sit still pay Lazy, unmotivated Learns by doing attention, listen/learn and/or poor parenting Rigid, perseverance, Stop when told! Controlling, wants all difficulty stopping/ Don’t resist the power, bossy, changing activities Oppositional B1
  • 20. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 Sources of Information on FASD in BC Alcohol and Drug Information and Referral Service #202 - 3102 Main Street, Vancouver, B.C., V5T 3G7 To order Diane Malbin’s book: Toll-free: 1 - 800 - 663 - 1441 Trying Differently Rather Than Harder phone: (604) 660 - 9382 fax: (604) 660 - 9415 contact FASCETS, Inc at www.FASCETS.org Information and referral to treatment services and Website: http//fasal.aska.com/links-html agencies for those who are seeking assistance with alcohol and other drug misuse. Teaching Students with FASD A complete manual for instruction online from Alberta B.C. FAS Resource Society Learning:http://www.education.gov.ag.ca/k_12/ Sunny Hill Health Centre for Children specialneeds/fasd.asp. 3644 Slocan Street, Vancouver, B.C., V5M 3E8 (604) 465 - 8204 FAS Bookshelf — Books and Videos on FASD Project Office: #302 - 11965 Fraser Street, 604-942-2024 Maple Ridge, B.C. V2X 8H7 phone: (604) 465 - 5211 For Diagnosis and Assessment: Information about support and services to families, Sunnyhill Hospital for Children professionals and the broader community around 604-453-8314 prevention, intervention and treatment issues related to http://www.sunnyhill.ca alcohol and other drug related developmental http://www.bcchf.ca/index/html disabilities. Asante Centre for Fetal Alcohol Spectrum Disorder BC Aboriginal Network on Disabilities Society 1-866-FAS-7101 (1-866-327-7101) 1179 Kosapsum Crescent Email: asalahub@asantecentre.org Victoria, B.C. V8X 7K7 Web: www.asantecentre.org Toll free: 1 - 888 - 815 - 5511 or: (250) 381 - 7303 Canadian Guidelines for the diagnosis of FASD Resources are available to First Nations parents, http://www.cmha.ca/cai/content/full/172/5supply/F1 groups and educators, including videos, manuals, (Adapted from Materials from the Provincial FAS/E displays and brochures dealing with FAS and the Prevention Coordinator) effects of alcohol on pregnancy. B2 B3
  • 21. Talking About Special Education Volume II - FASD , 2006 Talking About Special Education Volume II - FASD , 2006 Prevention Source BC and advocacy through support groups, one-on-one 2750 Commercial Drive, Vancouver, B.C. V5N 5P4 resource parents, and a lending library. Toll free: 1 - 888 - 663 - 1880 phone: (604) 874 - 8452 FAS/E Information Service Information service to residents of BC seeking YWCA Crabtree Corner FAS/NAS Prevention Project information about prevention, organizations, programs, (604) 689 - 5463 materials and research in the area of substance abuse. 101 East Cordova Street, Vancouver, B.C. V6A 1K7 FAS/E Provincial Prevention Coordinator: phone: (604) 689 - 2808 fax: (613) 235 - 8101 (604) 875 - 2039 Canadian Centre on Substance Abuse Women’s Health Centre #300 - 75 Albert Street, Ottawa, Ontario, K1P 5E7 Room 501, 4500 Oak Street, Vancouver, B.C. V6H Toll-free: 1 - 800 - 559 - 4514 or phone: 3N1 (613) 235 - 4048 phone: (604) 875 - 3599 A national service that includes a list server for Information on how to access information, resources, discussion with other individuals interested in FAS/E. expertise and services related to FAS/E. Helps with E-mail message to list@ccsa.ca and type “join fastlink” networking among relevant agencies, and setting up in the message. Offers educational workshops, a community based initiatives. resource lending library, a peer support group for moms with children with FAS/NAS and information and Society of Special Needs Adoptive Parents (SNAP) crisis counselling. Posters and pamphlets are available, FAS/E Support Network as well as guides to prevention, caring for children and (604) 589 - 8438 e-mail: fasnet@istar.ca a guide to resources. 151 - 10090 152nd Ave., Suite 187, Surrey, B.C. V3R 8X8 FAS Early Intervention Consultant phone: (604) 589 - 1854 fax: (604) 687 - 3364 Aurora Centre 4500 Oak Street, 5th floor, #1150 - 409 Granville Street, Vancouver, B.C. V6C 1T2 Vancouver, B.C. V6H 3N1 Toll-free: 1 - 800 - 663 - 7627 phone: (604) 687 - 3114 phone: (604) 875 - 2017 Information on support, consultation and advocacy Works with health/social providers on early intervention services for individuals, families, professionals and the approaches with women at risk. Develops policy broader community around prevention, intervention and regarding treatment and disseminates information on treatment issues. Assists special needs adoptive early intervention. families through mutual support, information sharing B4 B5
  • 22. Copyright © The First Nations Education Steering Committee and The First Nations Schools Association 2006 For additional copies, please write to: Suite #113-100 Park Royal South West Vancouver, BC V7T 1A2 Email: fnesc@fnesc.ca Or download a copy at: www.fnsa.ca