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Alwyn Cohall, MD
Mailman School of Public Health, Columbia University
May 2012
Every 24 hours…
 131 men of color, and 148 women of
   color will die from cardiovascular
   disease (heart attacks, strokes, etc.)




American Heart Association, 2008
High Blood Pressure

Plays a significant role in contributing to:
 Heart attacks
 Strokes




         CDC. Health, United States, 2008. Hyattsville, MD: National Center for Health Statistics; 2008.
High Blood Pressure
One in three adults…
Or, about 75 million people, above the age of 20, in the United States have high blood
pressure
High Blood Pressure               and
People of Color
 31% of all Americans affected
 29% of Hispanics
40% of African-Americans
  Among African Americans,
   hypertension (HTN) develops earlier
   in life and tends to be more severe,
   therefore increasing the risk for HTN-
   related complications
Preventing 1 million heart attacks and strokes in 5
years
Status of the ABCS

Aspirin                  People at increased risk of cardiovascular                     47%
                         disease who are taking aspirin


Blood                    People with hypertension who have adequately                   46%
                         controlled blood pressure
pressure
Cholesterol              People with high cholesterol who have                          33%
                         adequately controlled hyperlipidemia


Smoking                  People trying to quit smoking who get help                     23%




  Source: MMWR: Million Hearts: Strategies to Reduce the Prevalence of Leading
  Cardiovascular Disease Risk Factors --- United States, 2011, Early Release, Vol. 60
Case in Point…

                  Vickie
                  Harlem resident
                  Worships at Abyssinian
                   Baptist Church
                  Told by physician that
                   she had high blood
                   pressure…
 What we eat

       What we drink

       What, how much we smoke

       How we exercise

       How we deal with stress




Play significant roles in the development of disease.
Management
 Lifestyle modification
   Pre-hypertension, Stage 1 and Stage 2 hypertension
     Weight loss (5-20 mmHg SBP reduction for every 20 lbs
      lost)
     Reduce Sodium (8-14mmHG SBP reduction)
     Increase Physical activity (4-9 mmHG SBP reduction)
     Reduce Alcohol consumption (2-4 mmHG SBP
      reduction)
     Reduce Smoking (10-20 mmHG SBP reduction)

 Medications
   Stage 1 and Stage 2 hypertension
An “activated” Vickie…

                Changed her diet
                Began exercising
                 regularly
                Embraced yoga and
                 meditation
                Lost 20 lbs
                Normalized her blood
                 pressure…without
                 medication
Unfortunately…

                  Vickie is unique
                  Vickie’s Doctor is
                   unique
Why?

 About 80% of those with high blood pressure,
  were aware, were in treatment
 48% had their high blood pressure controlled
 But…
 52% were not controlled
     AHA.org
Lifestyle Modification

 The average visit length was 15 minutes.
 Providers have minimal time to provide
  counseling and education with clients
 May not feel comfortable in providing
  information and support*
 Lack of resources for other types of clinic-
  based supports
 Need for adjunctive measures
How can we reach more
people with Vickie’s story?
Using the Internet for Health
Information, Advice and
Support
Background


• “More than any other
  communication medium
  or health-related
  technology, the Internet
  has the greatest
  potential to promote
  health and prevent
  disease for individuals
  and communities
  throughout the world”
     • (Bernhardt Health Education
       Res 2000)
Background

 “About 6 million
    Americans go online for
    medical advice on a
    typical day. That means
    more people seek medical
    advice online than
    actually visit health
    professionals...”
   Source: Fox S, Rainie L. Vital decisions: how Internet
    users decide what information to trust when they or their
    loved ones are sick. Pew Internet & American Life
    Project; 2002
Advantages?

 Anonymous
 Private
 Convenient
 Spend as much or as little time as you want or
  need
 Multi-media – appeals to different learning
  styles
 Can turn it off whenever you want – Control!
Pew Internet & American Life Project Reports
People Want Information About…

   93% - a particular illness or condition.
   65% - nutrition, exercise or weight control
   64% - prescription drugs
   48% - alternative or experimental treatments or medicines
   39% - mental health issue such as depression or anxiety
   33% - sensitive health topic that is difficult to talk about
   32% - particular doctor or hospital (report cards)



        Source: Fox S, Rainie L. Vital decisions: how Internet users decide what
        information to trust when they or their loved ones are sick. Pew Internet & American
        Life Project; 2002
Evidence for efficacy?
 50% say information influenced eating and exercise habits

 48% of Internet users say that retrieved information helped improve
   the way they took care of themselves

 47% say that retrieved information affected their health care
   decisions about treatment and care
      Seeking health care
      Asking doctor new questions
      Getting a second opinion
Health, Internet, &
Harlem(n=646) of Harlem residents
 Phone survey


   Majority have computers (77%) and use the Internet (65%)
   Many seek information on medical problems and treatment, diet,
    nutrition, fitness or exercise
   Majority of Internet users trust the Internet for health-related
    information

  But, there is a lack of high quality, culturally-relevant, low-literacy
    information on health.
  …many expressed difficulty understanding information found online and
    stated a need for assistance in interpreting the health information…
Barriers

 Process issues:
   Consumers often use large
    search engines to obtain
    information
   Searches- Confusing,
    overwhelming, frustrating
      Cline et al, 2001
Formative research: Focus groups
 What would improve          What kind of content
  your experiences on the      would you like to see?
  web?
   “Easy navigation…not         Specific information on
    being bombarded by              health topics, medications
    advertisement…a good           (Provide) Prevention
    catchy website name             information…like what I
    that’s easy to recall”          can do to avoid a stroke
   “Seeing people who             Locating health providers
    look like me…”
   “Break down complex
                                   Exercise regimens,
                                    stretching techniques
    health issues into
    understandable                 Finding health food
    information…”                   stores, restaurants that
                                    serve raw food
                                   Stress reduction
Web Portal Development

 Together with
  community and
  academic partners, we
  developed a Harlem-
  based health
  information website
“Creating Digital Partnerships
for Health”

  www.GetHealthyHarlem.org
Home Page
Health Info
Harlem Word
Profiles of Hope
Diet – Did You Know?
Diet
Diet
Diet
Exercise
Exercise
Exercise
Micro-sites
Stress Management
Stress Management - Yoga
Stress Management – Meditation
Stress Management - Prayer
Medications
Medications
Consumer reactions

Focus group responses to
  GetHealthyHarlem.org:
 “Geared toward residents of Harlem, so more
  personal and interesting”
 “It has more information than (just) medical
  health issues, such as preventive medicine”
 “It keeps you updated (on health issues)”
 “It has real people as subjects of the articles”
 “It has the pulse of the Harlem community”
Activating the Community!!!
Project SHARE
 Support for
  Hypertension
  Awareness, Reduction
  and Education
 CDC funded initiative to
  screen consumers for
  elevated blood pressure,
  link them to health care
  resources and provide
  supportive education
 GHH is a key component
For More Information

Alwyn Cohall, MD
atc1@columbia.edu
www.GetHealthyHarlem.org

Support for the Harlem Health Promotion
  Center and Project SHARE is generously
  provided by the Centers for Disease Control
  and Prevention under the Prevention
  Research Centers Program

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Ghh and heart health

  • 1. Alwyn Cohall, MD Mailman School of Public Health, Columbia University May 2012
  • 2. Every 24 hours…  131 men of color, and 148 women of color will die from cardiovascular disease (heart attacks, strokes, etc.) American Heart Association, 2008
  • 3. High Blood Pressure Plays a significant role in contributing to:  Heart attacks  Strokes  CDC. Health, United States, 2008. Hyattsville, MD: National Center for Health Statistics; 2008.
  • 4. High Blood Pressure One in three adults… Or, about 75 million people, above the age of 20, in the United States have high blood pressure
  • 5. High Blood Pressure and People of Color  31% of all Americans affected  29% of Hispanics 40% of African-Americans  Among African Americans, hypertension (HTN) develops earlier in life and tends to be more severe, therefore increasing the risk for HTN- related complications
  • 6. Preventing 1 million heart attacks and strokes in 5 years
  • 7. Status of the ABCS Aspirin People at increased risk of cardiovascular 47% disease who are taking aspirin Blood People with hypertension who have adequately 46% controlled blood pressure pressure Cholesterol People with high cholesterol who have 33% adequately controlled hyperlipidemia Smoking People trying to quit smoking who get help 23% Source: MMWR: Million Hearts: Strategies to Reduce the Prevalence of Leading Cardiovascular Disease Risk Factors --- United States, 2011, Early Release, Vol. 60
  • 8. Case in Point…  Vickie  Harlem resident  Worships at Abyssinian Baptist Church  Told by physician that she had high blood pressure…
  • 9.  What we eat  What we drink  What, how much we smoke  How we exercise  How we deal with stress Play significant roles in the development of disease.
  • 10. Management  Lifestyle modification  Pre-hypertension, Stage 1 and Stage 2 hypertension  Weight loss (5-20 mmHg SBP reduction for every 20 lbs lost)  Reduce Sodium (8-14mmHG SBP reduction)  Increase Physical activity (4-9 mmHG SBP reduction)  Reduce Alcohol consumption (2-4 mmHG SBP reduction)  Reduce Smoking (10-20 mmHG SBP reduction)  Medications  Stage 1 and Stage 2 hypertension
  • 11. An “activated” Vickie…  Changed her diet  Began exercising regularly  Embraced yoga and meditation  Lost 20 lbs  Normalized her blood pressure…without medication
  • 12. Unfortunately…  Vickie is unique  Vickie’s Doctor is unique
  • 13. Why?  About 80% of those with high blood pressure, were aware, were in treatment  48% had their high blood pressure controlled  But…  52% were not controlled  AHA.org
  • 14. Lifestyle Modification  The average visit length was 15 minutes.  Providers have minimal time to provide counseling and education with clients  May not feel comfortable in providing information and support*  Lack of resources for other types of clinic- based supports  Need for adjunctive measures
  • 15. How can we reach more people with Vickie’s story?
  • 16. Using the Internet for Health Information, Advice and Support
  • 17. Background • “More than any other communication medium or health-related technology, the Internet has the greatest potential to promote health and prevent disease for individuals and communities throughout the world” • (Bernhardt Health Education Res 2000)
  • 18. Background  “About 6 million Americans go online for medical advice on a typical day. That means more people seek medical advice online than actually visit health professionals...”  Source: Fox S, Rainie L. Vital decisions: how Internet users decide what information to trust when they or their loved ones are sick. Pew Internet & American Life Project; 2002
  • 19. Advantages?  Anonymous  Private  Convenient  Spend as much or as little time as you want or need  Multi-media – appeals to different learning styles  Can turn it off whenever you want – Control!
  • 20. Pew Internet & American Life Project Reports People Want Information About… 93% - a particular illness or condition. 65% - nutrition, exercise or weight control 64% - prescription drugs 48% - alternative or experimental treatments or medicines 39% - mental health issue such as depression or anxiety 33% - sensitive health topic that is difficult to talk about 32% - particular doctor or hospital (report cards) Source: Fox S, Rainie L. Vital decisions: how Internet users decide what information to trust when they or their loved ones are sick. Pew Internet & American Life Project; 2002
  • 21. Evidence for efficacy?  50% say information influenced eating and exercise habits  48% of Internet users say that retrieved information helped improve the way they took care of themselves  47% say that retrieved information affected their health care decisions about treatment and care  Seeking health care  Asking doctor new questions  Getting a second opinion
  • 22. Health, Internet, & Harlem(n=646) of Harlem residents  Phone survey  Majority have computers (77%) and use the Internet (65%)  Many seek information on medical problems and treatment, diet, nutrition, fitness or exercise  Majority of Internet users trust the Internet for health-related information But, there is a lack of high quality, culturally-relevant, low-literacy information on health. …many expressed difficulty understanding information found online and stated a need for assistance in interpreting the health information…
  • 23. Barriers  Process issues:  Consumers often use large search engines to obtain information  Searches- Confusing, overwhelming, frustrating  Cline et al, 2001
  • 24. Formative research: Focus groups  What would improve  What kind of content your experiences on the would you like to see? web?  “Easy navigation…not  Specific information on being bombarded by health topics, medications advertisement…a good  (Provide) Prevention catchy website name information…like what I that’s easy to recall” can do to avoid a stroke  “Seeing people who  Locating health providers look like me…”  “Break down complex  Exercise regimens, stretching techniques health issues into understandable  Finding health food information…” stores, restaurants that serve raw food  Stress reduction
  • 25. Web Portal Development  Together with community and academic partners, we developed a Harlem- based health information website
  • 26. “Creating Digital Partnerships for Health”  www.GetHealthyHarlem.org
  • 31. Diet – Did You Know?
  • 32. Diet
  • 33. Diet
  • 34. Diet
  • 41. Stress Management – Meditation
  • 45. Consumer reactions Focus group responses to GetHealthyHarlem.org:  “Geared toward residents of Harlem, so more personal and interesting”  “It has more information than (just) medical health issues, such as preventive medicine”  “It keeps you updated (on health issues)”  “It has real people as subjects of the articles”  “It has the pulse of the Harlem community”
  • 47. Project SHARE  Support for Hypertension Awareness, Reduction and Education  CDC funded initiative to screen consumers for elevated blood pressure, link them to health care resources and provide supportive education  GHH is a key component
  • 48. For More Information Alwyn Cohall, MD atc1@columbia.edu www.GetHealthyHarlem.org Support for the Harlem Health Promotion Center and Project SHARE is generously provided by the Centers for Disease Control and Prevention under the Prevention Research Centers Program